My papa had it, watching someone get so bad is heartbreaking. Watching him fade away and I was there when he was rushed to the hospital I was crying so much, there was no cure for it and that’s what hurt most he will always be remembered I love you papa❤️ and I miss u so much
I had covid in August, 2020 and was hospitalized for about 8 months, in coma 3 months. I pulled through! I was on a ventilator, feeding tube, trachea and I think a tube in my mouth, don't exactly understand what that was all about. I had lots of crazy episodes of fighting with doctors and nurses. Bottom line is, I was fighting for my life. Today I am living but with pulmonary fibrosis. I use oxygen 24/7, I need a walker, wheelchair or motor scooter to be my legs and feet and energy to get around and enjoy my life. Cleaning my home is not the same as it was for me. I must take about 10 minutes to rest and to continue to do my house work, but hey, I am doing better than before. Last year I didn't do this well. Today I did a little bit of a walk with a friend. I'd say it was a good short but extra distance than what I used to do. I was really out of breath but I was determined to get that exercise done and I did! It wasn't easy but neither is it when all I get to do is nothing! I was okay. Yes, I cough crazy as if I'm suffocating and sometimes I cough so bad, I throw up. I don't like that. Life has been different for me but I have a lot to thank God for and I have faith, hope and I believe that I will improve maybe not completely but at a certain limit in its time 🙏. I don't think doubtful and I like to focus on enjoying my life and trying to be happy. I'm disabled now, but this makes me only focus on myself and what I need, my worthiness. People stare at me, I smile and ignore. I've learned that the world isn't always a kind place. Nothing is perfect but I keep an open mind and put the focus on me because I can't change anything but me and that I can learn to do. Difficult people want to be difficult but I don't want to be like them. Besides, I don't have the energy for them. Anxiety is horrible when I have the oxygen running and a cannula up my nose. I look forward for each new thing I can do better at. Every day can be different. Maybe today is a tough day, tomorrow might be better and if I'm feeling tired, then perhaps another day will be best. There's always better days ahead too. So, I beat covid. I didn't let covid beat me. I'm at peace for miracles. I'll never walk away from me.
At this point i'm still very shocked with the negative result I got after suffering from pulmonary fibrosis for so long. Thanks once again Dr. Ogudugu on TH-cam for your medication
I've a friend that has this. She received a lung transplant several years ago and everything seemed fine. She had a new lease on life. Recently her body started rejecting her new lungs. Things are not looking good for her.
@@n2dabloo Yea i read they have be careful not to get sick, stay away from molds/fungus etc like in dirt, stay out of direct sunlight as much as possible to avoid skin cancer etc, But hopefully she get long use of the new transplant. Its kinda like enjoy it as much as you can I'm sure it has to better than where she was before the transplant.
😢 my husband was diagnosed in May of 2024, since then he has lost a lot of lung function! October 29th he was ordered a non-invasive ventilator. He is struggling to use this machine. He is maxed out on his medication, Ofev and one other. He uses a walker and has to have help with daily activities. It is hard to watch him go down. He is 73. 😢
I am so confused. I am a 29 year woman who has never smoked. I recently got a CT scan of my chest. Everything came back normal except it said I had biapical scarring. Does this mean I have pulmonary fibrosis? I hope to God not. I have no idea what this means. My neurologist ordered it (long story why he ordered it). He seemed to think it was fine and that it might have resulted from me having bronchitis (which I had at least 3 times in my life) or something in the past. I am waiting to see a pulmonologist to look it over but it will probably be at least a month before I can get in. I do have days where it is difficult to breath. My pulse ox is normal. When I type in biapical scarring, pulmonary fibrosis instantly comes up and this is terrifying me. What does this mean? Does everyone has some level of scarring? This is exactly what the report said: "There is biapical scarring. There is no airspace consolidation. There is no pleural effusion or pneumothorax. The major central airways are patent."
I got this at 34 from surviving Covid pneumonia. My scarring is "ground glass" and "honeycombing". You can get it younger, but from a pretty serious infection.
@@jessicah3450Hello, how are you doing now? My dad was diagnosed with pulmonary fibrosis because of covid 19 They are saying his lungs are damaged I'm so heart broken..
could be from tuberculosis . the healing process usually results in tissue scarring, and the "no pneumothorax" comments etc are possible tb complications
My father is suffering because of this disease. However its cough which is causing him muscle loss. Is there anything or any medicine we can use to relief his cough?
i lost my dad to pulmonary fibrosis 3 weeks ago. :(((( worst day of my life when he went into cardiac arrest when there was no enough oxygen to the heart💔
There are 2 drugs, Ofev and pirfenidone (sorry if I don't spell that second one correctly). They are called anti-fibrotics and can stop the fibrosis from spreading as quickly. Unfortunately, this is a terminal illness, a lung transplant only buys you more time.
I was just diagnosed with this today.... Mine is most likely caused by my mixed connective tissue disease. Is it down hill from here or does it get a little better.
Anything they recommend for pain besides physical therapy, yoga, stretching. I mean did they try give you any actual medicine to help with the pain? Anything help with the pain? I don't have IPF but i have breathing issues...i basically breath shallower on purpose to avoid pain as when I breath deeper it causes aching/pain for whatever i got they are still trying to figure it out but they aren't in any hurry.
My questions are Does IPF pulmonary fibrosis damaged both of the lungs or only one of them and can young age like 20s 30s get pulmonary fibrosis and can women get IPF thank you for your time
@@americanlungassociation I have question for you over pulmonary fibrosis. Can Idiopathic pulmonary fibrosis damaged both of lungs or only one of the lung
How gonna I know that I have lung fibrosis???... I mean I had TB and I get cure of it... But in my lungs there are some scar.. Is it dangerous???.. Please reply
I'd go to a doctor for help...I know someone who had lung scarring for long time they are still okay I'm sure it affects them but I heard scarring can be stable to depends what it is. best to see pulmonoligst for that answer.
@@behemothinferno so expensive.. I am thinking now tears drop on my face.. looking forwArd to the future... asking my self what if I lost....... How's my 3 child.. I discourage my self to beg on other peOple cause no one listen to me...... :( My Life was so sad.. starting when I was a child until now that I am already a mother... I pray... I pray Hard but sometimes Im disappointed.. I try to be good all time. But why My Life Is So Hard and Difficult.. :_( I Got Tubercolosis Way Back 2016-2017 and now 2020 pulmonary fibrosis no one listen to me. no one believes in me. :_( :_( :_( do I have a chance? do I have a chance to be happy even for a short time :_(
God bless 🙏 doctor Owobu for curing me totally and permanently from fibroids. you can get rid of your fibroids without any surgery. view his channel for more informations
Diagnosed with IPF in 2020 and I'm only GETTING BETTER! Praise the Lord! I also adopted the Carnivore Diet and my health has improved. DON"T BELIEVE THE HYPE! WE will NOT surrender to this disease!
![PASULOL รามเกียรติ์ ตอนที่ 4 นนทกพบรัก [Ramakien Ep.4: Nonthok in love]](http://i.ytimg.com/vi/tMUQgmZzf_A/mqdefault.jpg)
My papa had it, watching someone get so bad is heartbreaking. Watching him fade away and I was there when he was rushed to the hospital I was crying so much, there was no cure for it and that’s what hurt most he will always be remembered I love you papa❤️ and I miss u so much
Sorry for your loss
My mom died the same way, it’s really heartbreaking, I understand what you went through because I lived it 😢
As a student respiratory therapist thank you for sharing your story and good luck with your journey!
As a student respiratory therapist thank you for sharing your story and good luck with your journey)
My dad has just been diagnosed and I am absolutely devastated. I realise that this is going to kill my dad.
I had covid in August, 2020 and was hospitalized for about 8 months, in coma 3 months. I pulled through! I was on a ventilator, feeding tube, trachea and I think a tube in my mouth, don't exactly understand what that was all about. I had lots of crazy episodes of fighting with doctors and nurses. Bottom line is, I was fighting for my life. Today I am living but with pulmonary fibrosis. I use oxygen 24/7, I need a walker, wheelchair or motor scooter to be my legs and feet and energy to get around and enjoy my life. Cleaning my home is not the same as it was for me. I must take about 10 minutes to rest and to continue to do my house work, but hey, I am doing better than before. Last year I didn't do this well. Today I did a little bit of a walk with a friend. I'd say it was a good short but extra distance than what I used to do. I was really out of breath but I was determined to get that exercise done and I did! It wasn't easy but neither is it when all I get to do is nothing! I was okay. Yes, I cough crazy as if I'm suffocating and sometimes I cough so bad, I throw up. I don't like that. Life has been different for me but I have a lot to thank God for and I have faith, hope and I believe that I will improve maybe not completely but at a certain limit in its time 🙏. I don't think doubtful and I like to focus on enjoying my life and trying to be happy. I'm disabled now, but this makes me only focus on myself and what I need, my worthiness. People stare at me, I smile and ignore. I've learned that the world isn't always a kind place. Nothing is perfect but I keep an open mind and put the focus on me because I can't change anything but me and that I can learn to do. Difficult people want to be difficult but I don't want to be like them. Besides, I don't have the energy for them. Anxiety is horrible when I have the oxygen running and a cannula up my nose. I look forward for each new thing I can do better at. Every day can be different. Maybe today is a tough day, tomorrow might be better and if I'm feeling tired, then perhaps another day will be best. There's always better days ahead too. So, I beat covid. I didn't let covid beat me. I'm at peace for miracles. I'll never walk away from me.
At this point i'm still very shocked with the negative result I got after suffering from pulmonary fibrosis for so long. Thanks once again Dr. Ogudugu on TH-cam for your medication
Yes, I am alone. God bless you all
I've a friend that has this. She received a lung transplant several years ago and everything seemed fine. She had a new lease on life. Recently her body started rejecting her new lungs. Things are not looking good for her.
omg I feel so sorry for her and wishing her to get well. how is she doing?
GOOD LUCK
How is she now?
@@charleeschannel4841 she received a second double transplant. Doing ok atm
@@n2dabloo Yea i read they have be careful not to get sick, stay away from molds/fungus etc like in dirt, stay out of direct sunlight as much as possible to avoid skin cancer etc, But hopefully she get long use of the new transplant. Its kinda like enjoy it as much as you can I'm sure it has to better than where she was before the transplant.
Lost my father yesterday morning to this awful disease 😭💔
😢
😢 I am so sorry
Congratulations and great video I should know by July if I made the list ❤
😢 my husband was diagnosed in May of 2024, since then he has lost a lot of lung function! October 29th he was ordered a non-invasive ventilator. He is struggling to use this machine. He is maxed out on his medication, Ofev and one other. He uses a walker and has to have help with daily activities. It is hard to watch him go down. He is 73. 😢
My neighbor has had this for 5 yrs and he’s painting the outside and inside of his house in Florida so maybe find a dr in Florida
Can Idiopathic pulmonary fibrosis damaged both of lungs or only one of the lung
I am so confused. I am a 29 year woman who has never smoked. I recently got a CT scan of my chest. Everything came back normal except it said I had biapical scarring. Does this mean I have pulmonary fibrosis? I hope to God not. I have no idea what this means. My neurologist ordered it (long story why he ordered it). He seemed to think it was fine and that it might have resulted from me having bronchitis (which I had at least 3 times in my life) or something in the past. I am waiting to see a pulmonologist to look it over but it will probably be at least a month before I can get in. I do have days where it is difficult to breath. My pulse ox is normal. When I type in biapical scarring, pulmonary fibrosis instantly comes up and this is terrifying me. What does this mean? Does everyone has some level of scarring? This is exactly what the report said: "There is biapical scarring. There is no airspace
consolidation. There is no pleural effusion or pneumothorax. The major central airways are patent."
Can you please update your status?
I got this at 34 from surviving Covid pneumonia. My scarring is "ground glass" and "honeycombing". You can get it younger, but from a pretty serious infection.
@@jessicah3450Hello, how are you doing now? My dad was diagnosed with pulmonary fibrosis because of covid 19
They are saying his lungs are damaged I'm so heart broken..
@@veronv1670 How is your dad? How are you?
could be from tuberculosis . the healing process usually results in tissue scarring, and the "no pneumothorax" comments etc are possible tb complications
I have question for you over pulmonary fibrosis. Can Idiopathic pulmonary fibrosis damaged both of lungs or only one of the lung
Usually both. Sometimes one worse than the other though.
My father is suffering because of this disease. However its cough which is causing him muscle loss. Is there anything or any medicine we can use to relief his cough?
Hi! Can you tell me if " linear lesions of bilateral pulmonary apical fibrosis " is serious?
My Grandmother died from this on April 21st 2020
Diagnosed in 2022,. Im worried about my wife and kids more than me.
Are you doing well sir?? Can you please share some experience and conditions to me
LET'S BEAT IT TB
I have this horrible disease I’m going to look into that herbal website I’ve had it for 3yrs I hope this remedy works🙏
i lost my dad to pulmonary fibrosis 3 weeks ago. :(((( worst day of my life when he went into cardiac arrest when there was no enough oxygen to the heart💔
😢
Is there any permanent treatment for ILD except Lung Transplant???
There are 2 drugs, Ofev and pirfenidone (sorry if I don't spell that second one correctly). They are called anti-fibrotics and can stop the fibrosis from spreading as quickly. Unfortunately, this is a terminal illness, a lung transplant only buys you more time.
I was just diagnosed with this today.... Mine is most likely caused by my mixed connective tissue disease. Is it down hill from here or does it get a little better.
My guess is perhaps your body gets use to being impared etc to some extent so you can learn to live with whatever condition you have.
I'm 39 I have IPF I found it very painful and everyday is different. It's been 1 yr now that I noticed I had a cough that never went away.
Anything they recommend for pain besides physical therapy, yoga, stretching. I mean did they try give you any actual medicine to help with the pain? Anything help with the pain? I don't have IPF but i have breathing issues...i basically breath shallower on purpose to avoid pain as when I breath deeper it causes aching/pain for whatever i got they are still trying to figure it out but they aren't in any hurry.
Big thanks to you Dr osuma for your support and herbs towards my fibrosis treatment
Is it hereditary uncle that died from it is 62-year-old son has it right now I’m concerned for the other brother
My questions are Does IPF pulmonary fibrosis damaged both of the lungs or only one of them and can young age like 20s 30s get pulmonary fibrosis and can women get IPF thank you for your time
Yes, people who survive Covid are developing it. That's how I got it, I got Covid at 34, before the vaccine was available, and I'm a female.
is he still alive?
I lost my mom because of ILD 😢
my mother was diagnosed with pulmonary fibrosis as of today. she is 68 years old.. how can help her?
Hi there, call our Lung HelpLine at 1-800-LUNGUSA. Our service is free and we are here to help.
This is a chronic disease. Call Dr. John Bergman in Huntington Beach, Ca. He knows and has treated many people with chronic diseases.
@@americanlungassociation I have question for you over pulmonary fibrosis. Can Idiopathic pulmonary fibrosis damaged both of lungs or only one of the lung
Double lung transplant?
Who is hear after aisha chaudhry
Ur father.. this is not a movie stund u making..who is here after this nd that..childish
How gonna I know that I have lung fibrosis???... I mean I had TB and I get cure of it... But in my lungs there are some scar.. Is it dangerous???.. Please reply
I'd go to a doctor for help...I know someone who had lung scarring for long time they are still okay I'm sure it affects them but I heard scarring can be stable to depends what it is. best to see pulmonoligst for that answer.
Are you doing good now??
Can you tell approximately the total cost of lung transplant
700,000 USD
@@behemothinferno so expensive.. I am thinking now tears drop on my face.. looking forwArd to the future...
asking my self what if I lost.......
How's my 3 child..
I discourage my self to beg on other peOple cause no one listen to me...... :(
My Life was so sad..
starting when I was a child until now that I am already a mother...
I pray...
I pray Hard but sometimes Im disappointed.. I try to be good all time. But why My Life Is So Hard and Difficult.. :_(
I Got Tubercolosis Way Back 2016-2017 and now 2020 pulmonary fibrosis
no one listen to me.
no one believes in me.
:_(
:_(
:_(
do I have a chance?
do I have a chance to be happy even for a short time :_(
1.6 million in the US for double lung transplant (aka better have insurance and a Go Fund Me)
good people a transplant in Austria which are the best year Such a thing costs 200000 € per lung
I have ipf
Is there any medicine is available for scaring of lungs
Patanjali ayurvedic medicine swasari gold
@@Deeptijaiswal_ what is this? Any type of medicine
Please do not listen to any of this BS. Go to the Doctor and do what they suggest. Before you use anything, consult your doctor.
God bless 🙏 doctor Owobu for curing me totally and permanently from fibroids. you can get rid of your fibroids without any surgery. view his channel for more informations
@@gabrieltimothy9193 you have any contact number or email address of doctor
This is what my grandma died from it 8 years ago! This disease isn't curable!
Isn’t this what b smyth died from exactly
I have pulmonary fibrosis :(
I hope you are able to do some exercise and are taking care of yourself.
How are you my love?
Diagnosed with IPF in 2020 and I'm only GETTING BETTER! Praise the Lord! I also adopted the Carnivore Diet and my health has improved. DON"T BELIEVE THE HYPE! WE will NOT surrender to this disease!
Very bad disease, I lost my father suffering from IPF