Wow this woman’s attitude just oozes of thankfulness. You can tell she was an excellent recipient of a lung transplant and I doubt there’s not a day of wastefulness with her new lease on life. Very inspiring!
My experience is similar to Diane's, IPF leading to a left lung transplant 3 years ago. Since then I have been able to travel, saw my grandson born in January and will see my daughter married this November. Life is fun again. I cannot express my appreciation quite enough to my Oklahoma donor and his family, to the transplant team at St. Luke's here in Houston or to my wife without whose support none of this would have been possible. I am 71 years old. I exercise almost everyday...because I can!
IM 70 y.o.and in good shape,,, i run marathons and did bike rides of 100 miles untill 2 years ago when i was diagnosed,,,,, do you think i can get a transplant becouse of my age??
@@Jess-wk5jo Thanks a lot for your interest in our videos! According to Dr. Dilling, some patients get one lung transplanted and others have both done, and that decision is based upon individualized assessment that particular patient’s medical issues and the testing that is done ahead of going on the list. Scarring does not occur in the other lung when a single lung transplant is done. In general, a patient with pulmonary fibrosis has scarring in both of the lungs. If you're interested in seeing one of our physicians, you can request an appointment either online at www.loyolamedicine.org/appointment or by phone at 888-584-7888. Good luck! -Keisha
I am so glad you are doing well!!! My mother had a lung transplant a year ago, and she is enjoying live much more than she used to!!! Medical research is a merical!! And i am so greatful for it!
My dad is going through the process of trying to get on the list for a double lung transplant. The surgery will be done at Ohio State Medical Center. I'm worried and scared, but I also know that at this point... it's the only hope. Stories like this give me a lot more of a positive outlook. I know it wont be easy for him post operation even if things go well... it isn't for all patients. But I hope I can have more time with him because I don't want to lose my dad. I have so many more things I want to do and experience with him. I'll keep remaining hopeful, and I hope that anyone else out there reading this can remain hopeful too. I'm wishing all of you the best in wherever you are in your process.
My brother-in-law received his double lung transplant 5 days ago. So far so good. He was extubated about 12 hours after surgery, was sent to a step-down unit from ICU 3 days post-surgery. We are thankful to his surgeon and the team and the donor.
@@randallmoran187Hi randall. I hope your brother is well now. Dear Michael, I hope you are well. My brother is 19 and he needs a double lung transplant. I would be glad, if you could tell me where your brother had his transplant?
I was just diagnosed in jan of 21......I do have IPF, and i just want to thank you for videos like this. They are helping me understand all the things involved.
I really appreciate the honesty in the opening of this video. I am 50 years old. I almost died 3 years ago. I also hit a brick wall with a lung infection that I made the mistake of not seeking antibiotics for, thinking it will pass with rest and sunshine...well..911 and 30 days in the hospital. I almost died in there. I chose to believe that I did "not" have what they were saying and asked for an 02 prescription and went home at 113 lbs.. I had ARDS! Nobody told me that until after I left the hospital when my own customer called me who I told the same story to that I told 8 other doctors to in the hospital. My customer was a renown acute critical care doctor and said, "Mike, it is easy to diagnose what you had...Mike, you had ARDS. Acute Respitory Distress Syndrome. Good news! You lived through it...and if you lived, you will recover. How much is for time to tell. Rest, careful 02, and no stress is the journey ahead of you; 1 to 6 years to heal. You will be ok." Before I fell into ARDS, I fought that infection for over 1.5 years and it came and went and not without scarring my lungs in the process. I chose to not believe my condition was chronic after the infection was effectively killed off by strong anti-biotics. I was totally affronted by negative words in that hospital that I had to war against with my faith and take a stand. Please note: I was at a different hospital than in this video. Currently I sleep with 02 on 2 (with a humidifier bottle) and I charge up when I can, but at almost 3 years after, I can go all day without 02 with stats of 87 to 92. I still have hypoxia and cannot yet play tennis, but I take no meds or anything, and I can be a business owner, dad, and minister by the Grace of a Healing Father who sent His Word to HEAL us. Faith can make molecules do anything! Just remember, God's Word says, life and death is in the power of the tongue, and those who know this reap the benefits of it. I was far down the rabbit hole and still came out into the green pastures with faith in JESUS. "I shall LIVE and NOT die to declare the works of the Lord! I shall live a long life, a full life, with a dignified finish to that life, In the mighty Name of Jesus Christ!"
Thank you for this Diane, this is a massive booster! I got diagnosed with IPF 2 months ago with an expectancy of 3 - 5 years, I have another lung capacity test in 1 week then an appointment with the transplant surgeon the week after, a whole new level of nervous!!
Wondered how you were doing? It's a long road but I am approaching my 4 year anniversary and feeling good! Thank goodness for wonderful donors and all the medical expertise. Hope you are feeling ok.
Diane Williams Hi Diane, I'm doing ok thank you, although on oxygen pretty much most the time now due to an infection I picked up. I've had my consultation with my transplant co-ordinator and I'm going to be having my 3 days of tests in about 4 - 6 weeks. All alot to take in, but the end result to be able to take a normal breath is what's important. Amazing that you are doing so well, especially when the surgeons give you the worst case!
Paul so happy to hear you're rolling along. Tests can be consuming but so important, it was the most extensive testing I have ever been through. Stay well, be brave and please let me know how you're doing.
This video popped up for me on a perfect day. I am listed just over a month now. All day I have wondered, I wonder what I will be doing when I get the call. Thanks for explaining things in such detail. I want to share this with my family. I have NSIP also an idiopathic lung disease. I will be grateful to do laundry again! Grateful to shampoo my own hair! Grateful to serve. I am very thankful for my husband of 30 years who has been by my side as I have his. We are united in marriage for eternity. Best wishes.
I have watched this a few times and love your energy and sparkly eyes!! You are just brimming with happiness!! Well done! You are an inspiration to us all. I'm 47 male and on the list in the UK for a Double Lung Transplant. I have had five calls down to the excellent Freeman Hospital in Newcastle but all cancelled at very last minute (after 2-3 hour road journey from Scotland to England plus once in a helicopter and then into Ward and washed, shaved and Gown waiting!!) Never mind, next time will be my turn I'm sure!! I hope you are still doing great. Well done indeed!! I will let you know when I get the result I need! Keep Going Diane! Inspirational!
I am on a 1600 col.so I have to lose 6 pds before my doctor officiating my name. Your story givese hope that I can do this. I am having it done at the University of Penn HUP. I had all my test my Dr. Suggested I stay in hospital till transplant so they can keep and eye on my weight Again thank you so much for your story.
This is so incredible, basically our body is just like a machine. A very complex machine, but still a machine. You can change a faulty component and it works again! I hope that we will be able to grow new organs out of our own DNA in 10 or 15 years!!!
Hi June you did a really good job on that haven’t heard from you in quite some time but I saw your video pop up and I just had to see what you were up to
I’m waiting for an appointment at Chicago university . I’m seeing a Pulmonologist that’s the best in the country. I’m coughing alot and short of breath
It's really amazing what surgeons can do for us today. Last year i was almost blind due to a tumor right in the very centre of my head behind the nose. Piturity gland tumor. They drilled up inside my nose and removed most of the slow growing tumor. My sight was back to almost normal str8 away.
Hey, I am a senior year translator, and i want to use this video to translate into Arabic, and i need ur authorization to start my project. Best regards,
Thanks for reaching out to us, Risa! According to Dr. Dilling, that statistic is correct, so surgery is generally reserved for situations where life expectancy is worse than that. Some recipients can live for more than 20 years. If you're in the Chicago area, you can schedule an appointment with one of our specialists so they can assess your case and recommend the best course of action for you. Appointments can be scheduled either online at www.loyolamedicine.org or by phone at 888-584-7888. Good luck! -Keisha
RisaNP i read the same thing, half of lung transplant recipients allegedly die after 5 years though I dont know if these statistics are still valid. There is a British man in a FB group I am in, and he had a heart and lung transplant 32 yrs ago and is still doing great. I think he is the longest survivor of a lung transplant, he didnt know if he was.
kris B that's amazing! It seems like he's more of an exception to the rule. Survival rates and quality of life are very important factors to take into account with planning future treatment options. My mom has IPF, but so far she isn't interested in a lung transplant. Initially I was devastated, but after reading about the potential complications and the lifelong immune suppressants she'd have to be on I *kind of* see her point.
I have Pulmonary Fibrosis and in just the past year I have gone downhill quick - I am 43 yo Diane's video made me cry - I sure can empathize about not enjoying being at home - I have no energy - I can't go anywhere - every chore is challenging. I told my family I feel like I am on an airplane that is on fire - it will crash soon - only one parachute left - am I scared? YES! but this plane will crash and then my survival rate will be 0 %. With a parachute - maybe I will have side effects - but I will be alive! I see Diane two weeks after her transplant smiling and BREATHING! what a miracle! No life is guaranteed even one more day - but that HOPE - what a wonderful thing!
Hi Edwin, I am doing well. It will be 4 years in July. I am very thankful for my donor and the wonderful transplant team from Loyola that keep me healthy and hopeful.
Hi, Muzaffar! Thank you for reaching out to us. Costs can vary by patient, but if you would like to know more about pricing, please write to us at loyolahealth@lumc.edu, and I'll put you in touch with the team who can give you that information. Thank you! -Keisha
Hopefully with advanced technology that maybe will create a new organ from cells regeneration or something that most people will easily get organ donations. And/or the preventable medicine will be so advanced that it won’t ever get to the later stage. It is probably more profitable to have healthy people than sick.
Hopefully with advanced tech, they’ll be to create new organs to eliminate people from utilizing other people’s body parts. Even still, just like organ donation, creating new organs it’s still playing God.
Hello everyone, I am a chronically ill person with BPOC, chronic mixed bronchitis, ie with pulmonary emphysema and pleural fibrosis after TBc pot primi un plămân ?
I have cystic fibrosis ( I'm 12 ) and I have liver disease but the cystic fibrosis I have is where I have the digestion one and the bad lungs and it's weird because I'm scared to have the transplant if I have one.
Brian McCarthy how nice of you im in need of a double lung transplant hun God Bless you i can always use extra info on it as well im gonna subscribe to your page you can also subscribe to mine if you like
Being scared is a normal, but knowing more information will help you. You have to trust in the doctors and do what they say. I am not saying its easy, but you can do it. Your young, your body can handle a lot more than someone older. Contact me anytime. B
Pretty much. That’s why organ transplantation exists. Everyone dies eventually including organrecipients.They think they can live forever by getting other people’s body parts. They may live for quite some time but it doesn’t mean that organ can’t fail at some point. Either way, Death is death and I wish they’d accept it. It would be nice if things like this didn’t exist.
Exactly. People will eventually die so this makes organ donation useless. Body parts from other people were not meant to live in other people. It’s ridiculous.
@@MeganJohnson913 - its not ridiculous. I would have died at age 51 without my new lungs. Three years out from transplant. Unless you experience yourself, you have no clue what the journey is like.
@@sherryclark4720 shouldn’t be relying on someone else’s healthy lungs to live. I still don’t agree with organ donation. It doesn’t matter what the deceased individual’s lungs have done for you. Whether you would have died at 51 or whatever, everyone is going to leave this earth at some point. Organ donation is not going to stop that. That’s what people don’t seem to get. I still have much to say but I will end it here.
@@sherryclark4720 Trust me, I wouldn’t want someone else’s body part living in me. I’d rather die. Everyone will be dead one day and there’s nothing you can do about it. Sorry not sorry. Death is a part of life.
My mom is 60 and has been on oxygen for a few years and has stage 4 copd...she will get a transplant eventually. I'm so scared about it, but I want her to have a good quality of life.
I have now had my Double Lung Transplant!! 8 months in and all is amazing!! If anyone out there is currently waiting like I was with many false alarms, keep faith and it will happen!! Everyone keep going. It will happen. 🤗X
@@---do3wv she is doing wonderful! Living thriving!!! Spending her time with her grandbabies!!! It's honestly such a blessing to still have my mom around!!! ❤️❤️❤️
Thanks Diane for your story, Mine is similar. I had mine done almost 7 years ago at University of Chicago. I have to mention something VERY IMPORTANT. Diane and I would not be here with out DONORS. PLEASE DONATE, it is simple and can save lives and help many others. They can use organs and other things that you wouldn’t even consider. I too had IDPF like Diane. When I explain my journey, I split it up into two sections. First, the transplant and hospitalization and second, the recovery at home. For me the first part was more of a physical challenge and the second a mental battle. Of course, I oversimplified it, and yes the entire journey includes both. Please reply if you have questions. Blessing Diane for many years of health ahead. Brian
I have just been told I need a lung transplant. I have PVOD. I am petrified! Then they tell me average lifespan is 1-5 years?!?!?! I am in need of a little more hope than that. Praying...Praying...Praying. How long have all of you survived so far after your transplant? Diane, your story is very inspiring. Thank you for sharing!!
She does.look nice and healthy. I had a left lung transplant just about 6 months ago and i don't look as healthy as her. I was doing fantastic with my recovery. Was working out, walking, eating good. Then the end of January 23 i got covid. That screwed up everything. I spent 10 days in the hospital and im still trying to recover from it. Iv never been so sick in my life. It is like getting hit in the face with a baseball bat and knocked into the street in getting hit by a bus. I actually way worse now then when i got released after my surgery.
Thanks for sharing your video and information regarding to the lung transplant. If I don't getting better I have no other option to think about a lung transplant. So I try to stay positive and speak about it more often, because I still be very scared to do it. I have to wait till September to see what my doctor is saying. God bless you I am happy that you still doing well, wishing you a happy life 🌹🌹🌹
Damn she looks like my mother, who also had a double. COPD caused the need. She made it just over a year, and passed on her birthday. It was a great year, to see her walking on her own, no wheelchair, no oxygen tank and breathing nose tubes. I miss her more than anything.
They called her for the transplant because she’s a model patient and I guess your personality is definitely in the running when you get that call or at least you’ll be at the top of the list someone like her
Hi Dinelia, nice to hear from you. Scarring is good, still pretty numb but I am approaching 4 years since my transplant. Both lungs were damaged but I feel great and breathe very well with my great right lung! Thank goodness for our wonderful donors.
Hello, Jeannine! Thank you for reaching out to us. There isn’t a set age limit for lung transplant recipients, but generally speaking, it's best that possible patients over the age of 70 have excellent overall health and strength if a lung transplant is to be considered, as the chances for a good outcome become less good in that age group. -Keisha
Wow this woman’s attitude just oozes of thankfulness. You can tell she was an excellent recipient of a lung transplant and I doubt there’s not a day of wastefulness with her new lease on life. Very inspiring!
My experience is similar to Diane's, IPF leading to a left lung transplant 3 years ago. Since then I have been able to travel, saw my grandson born in January and will see my daughter married this November. Life is fun again. I cannot express my appreciation quite enough to my Oklahoma donor and his family, to the transplant team at St. Luke's here in Houston or to my wife without whose support none of this would have been possible.
I am 71 years old. I exercise almost everyday...because I can!
Thank you for sharing your story, Michael! We wish you many years of health of happiness! -Keisha
IM 70 y.o.and in good shape,,, i run marathons and did bike rides of 100 miles untill 2 years ago when i was diagnosed,,,,, do you think i can get a transplant becouse of my age??
@@Jess-wk5jo Thanks for your interest in our video! Diane had a right single-lung transplant. -Keisha
@@Jess-wk5jo Thanks a lot for your interest in our videos! According to Dr. Dilling, some patients get one lung transplanted and others have both done, and that decision is based upon individualized assessment that particular patient’s medical issues and the testing that is done ahead of going on the list. Scarring does not occur in the other lung when a single lung transplant is done. In general, a patient with pulmonary fibrosis has scarring in both of the lungs. If you're interested in seeing one of our physicians, you can request an appointment either online at www.loyolamedicine.org/appointment or by phone at 888-584-7888. Good luck! -Keisha
I am so glad you are doing well!!! My mother had a lung transplant a year ago, and she is enjoying live much more than she used to!!! Medical research is a merical!! And i am so greatful for it!
Why am I watching this? My lungs are perfectly fine
You have no idea how lucky you are 😊
As a recipient of a double lung transplant, I can assure you the journey is so rewarding.
Dear Peg, I hope you are well. My brother is 19 and he needs a double lung transplant.
I would be glad, if you could tell me where you had yours?
Donated my kidney two years ago and no regrets
You are an angel! Thank you!
That's amazing!!
how are you alive?
Only need one lol
God bless you angel 😇
Thank you, Dianne. Your grace and thankfulness is an inspiration, not just to transplant patients, but to all who see and hear you. ♥
I have a friend who will soon need lungs and a liver. This is inspiring. Thank you for sharing your story, Diane.
Mary?
My dad is going through the process of trying to get on the list for a double lung transplant. The surgery will be done at Ohio State Medical Center. I'm worried and scared, but I also know that at this point... it's the only hope. Stories like this give me a lot more of a positive outlook. I know it wont be easy for him post operation even if things go well... it isn't for all patients. But I hope I can have more time with him because I don't want to lose my dad. I have so many more things I want to do and experience with him. I'll keep remaining hopeful, and I hope that anyone else out there reading this can remain hopeful too. I'm wishing all of you the best in wherever you are in your process.
God bless you and your father and family. 🙏
This video was very helpful. I appreciated Diane's honesty.
My brother-in-law received his double lung transplant 5 days ago. So far so good. He was extubated about 12 hours after surgery, was sent to a step-down unit from ICU 3 days post-surgery. We are thankful to his surgeon and the team and the donor.
My brother had a double lung transplant three weeks ago. He's still in the ICU and is struggling. Please pray for him. His name is David.
@@randallmoran187 I will keep him in prayer.
I hope your brother is doing better now. Prayers for him 🙏🏻
@@randallmoran187Hi randall. I hope your brother is well now. Dear Michael, I hope you are well. My brother is 19 and he needs a double lung transplant.
I would be glad, if you could tell me where your brother had his transplant?
@@arashcinema4577
Vanderbilt
I was just diagnosed in jan of 21......I do have IPF, and i just want to thank you for videos like this. They are helping me understand all the things involved.
Hii.. how are you doing now..my sister diagnosis with same. Can we connect?
My dad has PF and it’s terrifiy for us. This video has helped
How is he doing now?
How is he now?
A wonderful and uplifting story. Raises my outlook. Transplant is still in my future. Scary.
I really appreciate the honesty in the opening of this video.
I am 50 years old. I almost died 3 years ago. I also hit a brick wall with a lung infection that I made the mistake of not seeking antibiotics for, thinking it will pass with rest and sunshine...well..911 and 30 days in the hospital. I almost died in there. I chose to believe that I did "not" have what they were saying and asked for an 02 prescription and went home at 113 lbs.. I had ARDS! Nobody told me that until after I left the hospital when my own customer called me who I told the same story to that I told 8 other doctors to in the hospital. My customer was a renown acute critical care doctor and said, "Mike, it is easy to diagnose what you had...Mike, you had ARDS. Acute Respitory Distress Syndrome. Good news! You lived through it...and if you lived, you will recover. How much is for time to tell. Rest, careful 02, and no stress is the journey ahead of you; 1 to 6 years to heal. You will be ok." Before I fell into ARDS, I fought that infection for over 1.5 years and it came and went and not without scarring my lungs in the process. I chose to not believe my condition was chronic after the infection was effectively killed off by strong anti-biotics. I was totally affronted by negative words in that hospital that I had to war against with my faith and take a stand. Please note: I was at a different hospital than in this video.
Currently I sleep with 02 on 2 (with a humidifier bottle) and I charge up when I can, but at almost 3 years after, I can go all day without 02 with stats of 87 to 92. I still have hypoxia and cannot yet play tennis, but I take no meds or anything, and I can be a business owner, dad, and minister by the Grace of a Healing Father who sent His Word to HEAL us. Faith can make molecules do anything!
Just remember, God's Word says, life and death is in the power of the tongue, and those who know this reap the benefits of it.
I was far down the rabbit hole and still came out into the green pastures with faith in JESUS. "I shall LIVE and NOT die to declare the works of the Lord! I shall live a long life, a full life, with a dignified finish to that life, In the mighty Name of Jesus Christ!"
Thank you for this Diane, this is a massive booster! I got diagnosed with IPF 2 months ago with an expectancy of 3 - 5 years, I have another lung capacity test in 1 week then an appointment with the transplant surgeon the week after, a whole new level of nervous!!
Wondered how you were doing? It's a long road but I am approaching my 4 year anniversary and feeling good! Thank goodness for wonderful donors and all the medical expertise. Hope you are feeling ok.
Diane Williams Hi Diane, I'm doing ok thank you, although on oxygen pretty much most the time now due to an infection I picked up. I've had my consultation with my transplant co-ordinator and I'm going to be having my 3 days of tests in about 4 - 6 weeks. All alot to take in, but the end result to be able to take a normal breath is what's important. Amazing that you are doing so well, especially when the surgeons give you the worst case!
Paul so happy to hear you're rolling along. Tests can be consuming but so important, it was the most extensive testing I have ever been through. Stay well, be brave and please let me know how you're doing.
What an amazing person!
This video popped up for me on a perfect day. I am listed just over a month now. All day I have wondered, I wonder what I will be doing when I get the call. Thanks for explaining things in such detail. I want to share this with my family. I have NSIP also an idiopathic lung disease. I will be grateful to do laundry again! Grateful to shampoo my own hair! Grateful to serve. I am very thankful for my husband of 30 years who has been by my side as I have his. We are united in marriage for eternity. Best wishes.
How long you was living with idl
Hi..how are you doing
I have watched this a few times and love your energy and sparkly eyes!! You are just brimming with happiness!! Well done! You are an inspiration to us all. I'm 47 male and on the list in the UK for a Double Lung Transplant. I have had five calls down to the excellent Freeman Hospital in Newcastle but all cancelled at very last minute (after 2-3 hour road journey from Scotland to England plus once in a helicopter and then into Ward and washed, shaved and Gown waiting!!) Never mind, next time will be my turn I'm sure!! I hope you are still doing great. Well done indeed!! I will let you know when I get the result I need! Keep Going Diane! Inspirational!
I am on a 1600 col.so I have to lose 6 pds before my doctor officiating my name. Your story givese hope that I can do this. I am having it done at the University of Penn HUP. I had all my test my Dr. Suggested I stay in hospital till transplant so they can keep and eye on my weight
Again thank you so much for your story.
How are you doing, did you get your transplant ? I hope all is well.
GOD BLESS you DIANE, the DOCTORS and NURSES..HAPPY HEALTH, HAPPY LIFE
This makes me want to sign up for the donor card
What a wonderful response! Thank you
I had the same disease and got a double lung transplant .
How long ago and how is it going?
Did you ever have a croup cough?
This is so incredible, basically our body is just like a machine. A very complex machine, but still a machine. You can change a faulty component and it works again! I hope that we will be able to grow new organs out of our own DNA in 10 or 15 years!!!
Hi June you did a really good job on that haven’t heard from you in quite some time but I saw your video pop up and I just had to see what you were up to
Every time I listen to a new set of lungs after transplant it blows me away because I’m hearing someone else’s lung sounds
I’m waiting for an appointment at Chicago university . I’m seeing a Pulmonologist that’s the best in the country. I’m coughing alot and short of breath
So lucky I’m getting on the list
🥴
It's really amazing what surgeons can do for us today.
Last year i was almost blind due to a tumor right in the very centre of my head behind the nose. Piturity gland tumor. They drilled up inside my nose and removed most of the slow growing tumor. My sight was back to almost normal str8 away.
I have a transplant a kidney and pancreas and I understand everything you're going thru
Oh goodness that is a lot. How are you doing?
Thank you so so much for sharing......
Diane Williams how are you now??? 😢
Thank you for this.
Hey,
I am a senior year translator, and i want to use this video to translate into Arabic, and i need ur authorization to start my project.
Best regards,
Hello, Jameela! I'm sorry, but I don't understand your request. Are you asking to translate and put this on your own TH-cam channel? -Keisha
Hi how are u doing
Can lung transfer deal with azmatik problems
How much does having a lung transplant extend ones life-span? I've read where only 60% survive to 5 years, is that correct?
Thanks for reaching out to us, Risa! According to Dr. Dilling, that statistic is correct, so surgery is generally reserved for situations where life expectancy is worse than that. Some recipients can live for more than 20 years. If you're in the Chicago area, you can schedule an appointment with one of our specialists so they can assess your case and recommend the best course of action for you. Appointments can be scheduled either online at www.loyolamedicine.org or by phone at 888-584-7888. Good luck! -Keisha
RisaNP i read the same thing, half of lung transplant recipients allegedly die after 5 years though I dont know if these statistics are still valid. There is a British man in a FB group I am in, and he had a heart and lung transplant 32 yrs ago and is still doing great. I think he is the longest survivor of a lung transplant, he didnt know if he was.
kris B that's amazing! It seems like he's more of an exception to the rule. Survival rates and quality of life are very important factors to take into account with planning future treatment options. My mom has IPF, but so far she isn't interested in a lung transplant. Initially I was devastated, but after reading about the potential complications and the lifelong immune suppressants she'd have to be on I *kind of* see her point.
I have Pulmonary Fibrosis and in just the past year I have gone downhill quick - I am 43 yo
Diane's video made me cry - I sure can empathize about not enjoying being at home - I have no energy - I can't go anywhere - every chore is challenging. I told my family I feel like I am on an airplane that is on fire - it will crash soon - only one parachute left - am I scared? YES! but this plane will crash and then my survival rate will be 0 %. With a parachute - maybe I will have side effects - but I will be alive! I see Diane two weeks after her transplant smiling and BREATHING! what a miracle!
No life is guaranteed even one more day - but that HOPE - what a wonderful thing!
@@LoyolaHealth Any hospitals in California? (San Diego)
Hi, i'm just wondering hows Diane condition in the present days.
Hi Edwin, I am doing well. It will be 4 years in July. I am very thankful for my donor and the wonderful transplant team from Loyola that keep me healthy and hopeful.
@@dianewilliams272 Hi Diane. Congrats. So happy to hear your story. Do you ever get off of the anti-rejection medications, or are they forever?
@@dianewilliams272dianeee please tell me you are ok
how much will cost for lungs transplant
Hi, Muzaffar! Thank you for reaching out to us. Costs can vary by patient, but if you would like to know more about pricing, please write to us at loyolahealth@lumc.edu, and I'll put you in touch with the team who can give you that information. Thank you! -Keisha
@@LoyolaHealthI am interested in a lung transplant.. I have a IPF.
Hopefully with advanced technology that maybe will create a new organ from cells regeneration or something that most people will easily get organ donations. And/or the preventable medicine will be so advanced that it won’t ever get to the later stage. It is probably more profitable to have healthy people than sick.
Wrong. It’s more profitable to have sick people than healthy people. How do you think these drs are still in business. Healthy don’t need drs.
Hopefully with advanced tech, they’ll be to create new organs to eliminate people from utilizing other people’s body parts. Even still, just like organ donation, creating new organs it’s still playing God.
Great
Hello everyone, I am a chronically ill person with BPOC, chronic mixed bronchitis, ie with pulmonary emphysema and pleural fibrosis after TBc pot primi un plămân ?
How are you doing now?
@@jamesrich8463 oribil
I have cystic fibrosis ( I'm 12 ) and I have liver disease but the cystic fibrosis I have is where I have the digestion one and the bad lungs and it's weird because I'm scared to have the transplant if I have one.
Clayton. God Bless
Text me if you have questions. I had a double lung transplant. Brian
Brian McCarthy how nice of you im in need of a double lung transplant hun God Bless you i can always use extra info on it as well im gonna subscribe to your page you can also subscribe to mine if you like
Clayton. God Bless you im praying for you
Being scared is a normal, but knowing more information will help you. You have to trust in the doctors and do what they say. I am not saying its easy, but you can do it. Your young, your body can handle a lot more than someone older. Contact me anytime. B
❤️❤️❤️❤️
In other words the insurance and hospital business get a costumer for life
Pretty much. That’s why organ transplantation exists. Everyone dies eventually including organrecipients.They think they can live forever by getting other people’s body parts. They may live for quite some time but it doesn’t mean that organ can’t fail at some point. Either way, Death is death and I wish they’d accept it. It would be nice if things like this didn’t exist.
#customersforlife
I can imagine fresh lung's cuban cigar new liver red Ferrari and glass of cognac xo.
she must got money no one gets a lung that fast
You're very ill-informed if you believe that.
@@davidbarrett51 can you tell me more about it
Who cares about swollen legs? You're alive. You're breathing.
hmm and that lung wont be used long because she is already somewhat old....
Exactly. People will eventually die so this makes organ donation useless. Body parts from other people were not meant to live in other people. It’s ridiculous.
@@MeganJohnson913 your truly ignorant,
@@MeganJohnson913 - its not ridiculous. I would have died at age 51 without my new lungs. Three years out from transplant. Unless you experience yourself, you have no clue what the journey is like.
@@sherryclark4720 shouldn’t be relying on someone else’s healthy lungs to live. I still don’t agree with organ donation. It doesn’t matter what the deceased individual’s lungs have done for you. Whether you would have died at 51 or whatever, everyone is going to leave this earth at some point. Organ donation is not going to stop that. That’s what people don’t seem to get. I still have much to say but I will end it here.
@@sherryclark4720 Trust me, I wouldn’t want someone else’s body part living in me. I’d rather die. Everyone will be dead one day and there’s nothing you can do about it. Sorry not sorry. Death is a part of life.
shes already old and does not need that lung
WHAT!!!
You are an ass
I got my lungs on Jan 25,2015 . Doing well
Paul Grimm How long were you waiting for a lung?
My mom is 60 and has been on oxygen for a few years and has stage 4 copd...she will get a transplant eventually. I'm so scared about it, but I want her to have a good quality of life.
And do u mind me asking why they say u can only live up to 5 years after the transplant? That freaks me out
Glad you are doing well.
Brorher, U have got single lung or double lung transplant. And how are you now?
I have now had my Double Lung Transplant!! 8 months in and all is amazing!! If anyone out there is currently waiting like I was with many false alarms, keep faith and it will happen!! Everyone keep going. It will happen. 🤗X
Hello do you still alive ?
Hi. My brother is 19 years old. He needs a double lung transplant. I would be glad, if we could have a conversation regarding this.
@@arashcinema4577 yes
My moms lung transplants just got done last week, and she did great! And I am soooo excited for her!
How much money u spent
@@mohanshivamusicfactory my mom got it for free because of the insurance we have
@@treena3 how much you spent or insurance amount in dollars
Hi hows your mom doing?
@@---do3wv she is doing wonderful! Living thriving!!! Spending her time with her grandbabies!!! It's honestly such a blessing to still have my mom around!!! ❤️❤️❤️
Thanks Diane for your story, Mine is similar. I had mine done almost 7 years ago at University of Chicago. I have to mention something VERY IMPORTANT. Diane and I would not be here with out DONORS. PLEASE DONATE, it is simple and can save lives and help many others. They can use organs and other things that you wouldn’t even consider. I too had IDPF like Diane. When I explain my journey, I split it up into two sections. First, the transplant and hospitalization and second, the recovery at home. For me the first part was more of a physical challenge and the second a mental battle. Of course, I oversimplified it, and yes the entire journey includes both. Please reply if you have questions. Blessing Diane for many years of health ahead. Brian
Thanks for weighing in with your experience, Brian! I hope you've been enjoying much health and happiness since your surgery. -Keisha
How much will it cost to go through the whole process from surgery to the rehabilitation?
Got my lungs in Jan 2015
Hi Brian, So how u feel now? Is the new lungs going good?
I have just been told I need a lung transplant. I have PVOD. I am petrified! Then they tell me average lifespan is 1-5 years?!?!?! I am in need of a little more hope than that. Praying...Praying...Praying. How long have all of you survived so far after your transplant? Diane, your story is very inspiring. Thank you for sharing!!
Diane has such a sparkling personality. she’s so lovely
I’m an organ donor and I’m happy that I will be able to help people when I die many years from now.
She looks fantastic to have been 2 weeks post-op! So amazing!
She does.look nice and healthy. I had a left lung transplant just about 6 months ago and i don't look as healthy as her. I was doing fantastic with my recovery. Was working out, walking, eating good. Then the end of January 23 i got covid. That screwed up everything. I spent 10 days in the hospital and im still trying to recover from it. Iv never been so sick in my life. It is like getting hit in the face with a baseball bat and knocked into the street in getting hit by a bus. I actually way worse now then when i got released after my surgery.
I’m an organ donor I hope one day my organs end up in a nice person in the future.
Huuuuuu
Thanks for sharing your story. I do not want to go down this road, but I am heading in this direction. 57 male.
I'm 42 years old last year I was told I have to be put on the transplant list to say I'm absolutely terrified is an understatment
A very kind & nice patient. Seen many that were not. She's very appreciative for what she has been given.
Thanks for sharing your video and information regarding to the lung transplant. If I don't getting better I have no other option to think about a lung transplant. So I try to stay positive and speak about it more often, because I still be very scared to do it. I have to wait till September to see what my doctor is saying. God bless you I am happy that you still doing well, wishing you a happy life 🌹🌹🌹
How often do you see a doctor or technician?
Damn she looks like my mother, who also had a double. COPD caused the need. She made it just over a year, and passed on her birthday. It was a great year, to see her walking on her own, no wheelchair, no oxygen tank and breathing nose tubes. I miss her more than anything.
She lived for only one year? After transplant? Her age
So sorry for your loss.
They called her for the transplant because she’s a model patient and I guess your personality is definitely in the running when you get that call or at least you’ll be at the top of the list someone like her
How are you doing now from the lung transplant are you healthy ?
Love you video
How are you doing?
Crystal, still feeling very good and I am approaching my 4 year anniversary of my transplant. Thank you
@@dianewilliams272hello hownis she ??
@@dianewilliams272how are you? Do you feel good?
How bad was the scarring? When did it get progressive? We’re both lungs damaged?
Sorry. Were
Hi Dinelia, nice to hear from you. Scarring is good, still pretty numb but I am approaching 4 years since my transplant. Both lungs were damaged but I feel great and breathe very well with my great right lung! Thank goodness for our wonderful donors.
@@dianewilliams272 how are you now ?
I hope you are doing well and fine
@@dianewilliams272I’m going for an appointment at Chicago University waiting for an appointment. I have a croup cough and short of breath
What is the age limit for lung transplant .
Hello, Jeannine! Thank you for reaching out to us. There isn’t a set age limit for lung transplant recipients, but generally speaking, it's best that possible patients over the age of 70 have excellent overall health and strength if a lung transplant is to be considered, as the chances for a good outcome become less good in that age group. -Keisha
My wife is facing this decision
I hope she gets what she needs. I'm not sure where is best to go if you need a transplant.
Yes he is a wonderful Dr .. I had my transplant 13 years ago n still going great . Wonderful drs at uk .
Donna Barr
Good luck ...