What a wonderful Dr you are!! I’ve been living with pulmonary fibrosis since I was 29 and I just turned 58! I owe everything to my Lord and Savior Jesus Christ and the wonderful drs and medical staff. I love your videos so much. This one has been my favorite!
Thank you, I’m 73 and have just learned this is my life/ death now. Just need to accept what is. Thank you for your info and time you have spent with your videos. I’m sad, can’t believe this is my life now. Thank you.
I have recently been diagnosed with Interstitial lung disease and since I didn't know what it was I was calm about it, but when the reality of the seriousness of the disease step in I started to feel despair. Just wanted to say thank you for taking the time to make these videos they are very informative and educational and has brought alot of comfort to me.
I am a 68 y.o. Just dx. With IPF and I want to thank you for this video and your other videos! You have made me want to live my best life, I felt like giving up when I was first dx. I am a runner, running 2 miles a day. I am also an artist and I want to continue painting and running as long as possible. Thank you for changing my thoughts to a positive!❤
I was diagnosed on Monday, 3 days ago. Thank you for all your support, time and efforts you put into this video. Positivity in my mind, I believe is a huge Catalyst to survival. This young man of 63 years thanks you again for sharing all your thoughts and experience. Keeping the Faith!
I have seen many doctors and have had many interactions with people in the medical industry. You are very intelligent and give very good information. I can tell you are calculated and you care. Keep these videos coming! 👍
Brilliant advice! One tip l've tried, when l go swimming, l asked permission to take my oxygen tank and leave it at the side of the pool for when l get breathless. It really helps and stops me panicking.
Thank you so much for this video, I have 9 grandchildren half of them do sports, I try to make it to one sports event per week, that has truly helped lift my spirits. Pulmonary fibrosis was never a part of my plan, I have to find new normals, which can be challenging my mind says I don't have limitations however my body says otherwise. I'm super thankful for still being on this planet and for this channel.
Dr Stefan, thank you for the video. Sorry for the long comment. I am from north of Pakistan and my father (76 years) was diagnosed with pulmory fibrosis last year in March. He has been on medication since then. Unfortunately, we still couldn't figure out the leading cause of this disease, but still, he is doing really good. Our city's elevation is 2300m above sea level, which makes this disease a little more complicated. He has to use an O2 concentrator in my town (Skardu), but he does not have to use any concentrator in Islamabad. He usually walks and does exercise every morning and sometimes in the late afternoon as well. He had been using essential cough syrups since the beginning, but the cough was not going away, so he decreased the usage, improving his cough. He mainly does his own household work, which makes him happier and more robust.
Thank you so much for this video. I am IPF patient since 2018. Beside prescribed medicines , exercises, breathing exercises, pranayam and balloon Blowing helps a lot. My overall health is stable.
I am 46 years old and was just diagnosed with IPF. My mother had it, as well as other health issues, and passeed away at the age of 41. I got 5 years up on her... This has been quite the shock to my system, needless to say. I have alwaays haddd issues with mental health and this has just blasted me. i am seeing a therapist about that, but where I am living makes it difficult to get any help as to what and where I need to go, where to turn to get treatment for my IPF. Your videos have been very helpful in what I can ask the doctors and where I can turn. Thank you, God bless.
I have appts. with my Pulmonologist and a vascular surgeon today. Friday I was at the ER - purple lips, x-ray showed hypoventilation. ECG- tachy bradychardia-44-154 heart rate, I was diagnosed with PF 2 years ago. I am 55. I thank you ever so much for this information. I like your presentation, authenticity, and obvious compassion and knowledge. I look forward to watching ALL of these. Absolutely the lift I needed prior to my appointments.
Wow Doctor thankyou so much for the most amazing , encouraging, informative vidio. Having just received news that my brother has been diagnosed with IPF ...I have been struggeling to know how to encourage him but having found this vidio, I really believe you have put everything in a nutshell & it is great that it would be comeing straight from a m/o & not from a know.. it ..all sister! I can trully feel your compassion & dedication comeing through in this channel. Your patients are very privallaged to have you as their physician! Much blessings from South Africa 🇿🇦
I'm 69 & was diagnosed in 2021, I also lost my love to breast cancer the same year. I'm alone & worry about what I am facing. Thank you for making these videos. You have opened my eyes and I'm going to start trying to make the best of this situation.
Thanks for taking the time to share your experience and knowledge. Its inspiring. I have not been diagnosed but ever since I had covid my lungs have not been the same… so I have been looking for advice and suggestions to improve…
thanks for posting diagnosed about a year ago had severe rhumatoid arthritis that scared my lungs almost 69 years old videos like yours keep me from giving up.
Thank you Dr Stefan, your advice is extremely helpful and appreciated. I plan to watch as many of your videos as possible as I need to absorb as much wisdom, knowledge and understanding as possible in order to stay alive, as healthy as possible and as long as possible for my family and myself. May God bless you sir.🙏🙏🙏
Thanks Dr, I have found your videos extremely helpful in ways that will be of a benefit to me, structuring your information directly to my needs. The fact that you advise frequently that this is not a guaranteed fix and everyone is different so to structure it accordingly, is reassuring and perfectly helpful. Thank you so much.
What an uplifting video, you present such a positive awareness of this disease which has helped to ease my fears for my future. Thank you, thank you, thank you.
Thank you doctor. It is really excellent advice for the patient. Very direct and beneficial, I would like to have some insights on the type of exercise we can do
Thank you so much for all your beautiful & helpful suggestions. Unfortunately I not only have IPD, but also have fibromyalgia, osteoarthritis & effects from having a Nissan Fundoplication like spasm of oesophgus. I am 77 & tend to want to just ‘give up’ as I can no longer give to the community as I used to do. I am always tired & in pain. I’m definitely going to try & follow your ‘healthy sleep pattern’ advice. Thank you so much & God bless you!
Your channel is very helpful! My husband was diagnosed with IPF last month. You are a compassionate doctor. Thank you for all the information that you share. We will be at the PFF Summit in November and hope to learn more and develop some new relationships.
TY for asking . He has been on OFEV 6 months , and it has been stopping the progression of tissue damage . The PFF - Pulmonary Fibrosis Summit is sponsored by the Pulmonary Fibrosis Foundation. It is an educational conference for leaders in the field , patients, caregivers, transplant recipients etc…. Look into the Pulmonary Fibrosis Foundation in the USA. God be with you and your loved ones 💙💚💙💚 @janeceest
Was just diagnosed with a pulmonary node as an x nurse of course I’m listening to e everything under the sun 51 I don’t sleep well ahhh 😌 😢praying for everyone here
Thanks for great info. My husband ended up stage on hospice. Bending over closes of a lot of air. Marshmallows and honey good for the cough. Dr told us that. I was like 😳 then I looked it up. It’s helps. Cool air is best fans help when your breathless. Great tips thank you 👍
just saw your video. thanks much . i was just diagnosed with pulmonary fibrosis. I am a christian and without Christ I would be depressed . He said come to me all of you who are weary and heavy laden and I will give you rest. for my yoke is easy and my burden is light. the apostle Peter said cast all your cares on Jesus for he cares for you. So I will lean on him as I face this diagnosis where ever it may take me. Thank you for your video I sense your real concern and care for your patients . Just like Jesus the great physician.
Thank you Doctor, I discovered your channel a couple of months ago , I find all of your information very helpful. Twelve months ago I was diagnosed with IPF , and it's been a bit of a battle, I struggle to find the right questions to ask my specialist , so I leave his office sometimes more confused about my diagnosis . Thank you. Viktorya 🇦🇺
it's very common for this to happen unfortunately, because there is a lot of info to discuss during consultations. I personally also struggle sometimes with the limited time allocated to each patient (that I cannot control). But do keep asking questions and seeking clarification. I wish you all the best!
Since covid I got this pain in my upper back never had it. I have sleep apnea they said it scaring in the lung I wake up with pain as I move it goes away but when I wake up it's there. So annoying and frustrating I stopped smoking ty probably the best video I came across
Thank you. I'm 51. I was diagnosed about 21 months ago with copd and emphysema and pulmonary fibrosis. I'm stage 3. I thought I just kept getting bronchitis or something. When I noticed my by breathing was getting difficult it took about 7 months to get seen because of work and working up to 70 hoursa week. My lung function was 48% it is now 88 I'm only using the trelegy inhaler.
I quit smoking in 1979 and never smoked again. Now I have , end stage, PF and Emphysema. I had been a heavy smoker. I'm experimenting with Metformin although not a diabetic as it has shown to reduce fibrosis in mice. I'm also reducing caffeine and eliminating alcohol whilst living on a keto diet . I'm 80 (in October). Not ready to quit as yet but, in reality, totally buggered! Even using the toilet means that I have to rest for twenty minutes thereafter with a Spo2 slowly coming back from 72%. I'm on continuous O2. Stopping coffee helps me reduce ectopic arrythmia but its a high price to pay!!! Keep posting these really encouraging talks, please.
Please do not take offense but did you have COVID or take any of the vaccines? My healthy 40 yr old nephew was just diagnosed with pulmonary fibrosis,gave him less than five years to live . Healthy prior to the vaccines . Hey had three of them
hello dr,thank you for all your work.keep going what about Zn , what about complementary medicine like serropeptase,curcumine ,when antifibrotic inhaler ? congratulations
I've just been diagnosed last week. Im 41 years old and have been suffering from with rheumatoid arthritis about 5 years now. Been on several medication for it and lastly Methotrexate. The doctors ruled out Methotrexate as the caused of the scarring. Now I've been put on Ofev and continuing with the RA meds. I'm not confident about the meds and wondering if it's worth taking them?
I have just been diagnosed with pulmonary fibrosis stage one. Had a cough since Christmas 23. It's now Oct 24. Can't do a lung function test because of my cough despite trying techniques and inhaler. Breathless, tired, muscle aches
The cough is the worse thing for me so far the inhalers have not worked. I don't have reflux. I am trying to walk swim keep allergens down in the house. I have a year ago moved back to Spain and so far I've not been able to see a consultant .I've paid to have a private scan which showed no deteriorating lung function but I feel OK in myself ( 76 yrs)
I don't hear PT suggested, which my FP ordered for me. I was told 2 years ago I have this on an incidental finding with a kidney CT scan. Now, a new FP doctor doesn't care either.
Hi. I was asked if i had a rash. ! Can you elaborate on this please. Such a small thing. But I did have one on the left handside of my face.. under my eye. A dry patch.. but it went with a touch of moisturiser ! I would be grateful for some explanation. Your talks are amazing. Much regard. Bet
There isn’t. A lot of info about it. When there is, the comments are turned off. My husband diagnosed 2022 with ipf but itvwas 7 months earlier they knew he had lung disease took 7 months to eliminate everything else. He took ofev and had to be tested every month kidneys and liver. It did hit them both twice. Dr said borderline to stop taking it. Left it up to my husband . He stopped taking it cause it also made him so sick. So now 2 years later. He is end stage and on hospice. He’s ok while sitting but air drains just walking to bath room. Bending over to pet the dog is not an option anymore. Hospice ppl are amazing. He still keeps palliative care also because he is a veteran. Both have been of great help with this ugly disease. Also Dr told us at same time you have ipf you are both in for a major roller coaster life. Highs and lows. Even still at end stage. Maybe 2 descent days a week. This is great help for so many, thank you my husband is 79 now. He was never a candidate for lung transplant.
Just found my father is diagnosed with subtle interlobular thickening. Im devastated know this. He is 69.5 years and is fit with no sugar or BP. Im worried about his health post medication. Please help to find out ways to keep him healthy.
Hello from NZ, have just found your channel. My 82 yo father has IPF and is currently struggling due to his first chest infection. Apparently the antibiotics worked but have noticed his food/fluid intake has dramatically dropped, I think he has reflux and am going to try Gaviscon to help? Have been in touch with his GP & specialist but still waiting reply. Last specialist appointment three months ago he was stable but i have noticed a considerable deterioration, hoping he can get his food intake/energy up slightly but I know it’s not looking great ☹️
Excellent presentation with many helpful ideas. The only thing I'd add (apart from to endorse the comments about diet, exercise and social connections) is to check if pulmonary fibrosis is in your family genes. If it might be, encourage every family member over 50 to get a CT scan to see if they have the disease. (Simple XRays may not show early fibrosis.) I would not be able to maintain my very active lifestyle if I had symptoms. Fortunately, I was diagnosed two years ago, at an early stage in my pulmonary fibrosis.
I am a 65 year old male with IPF. I am on oxygen at 3 liters per minute. I don't smoke. I struggle to breathe, I have some honeycombing, mostly ground glass Do I have a chance?
Great suggestions doctor..I incorporate almost all of your suggestions into my daily life.. I honestly believe I have been treating my condition inadvertently by my lifestyle especially my intense exercise routine.. I think it opens up genetic pathways that have an inflammation reducing Effect.. i notice that after an exercise session i have a greatly reduced irratation in my lungs and almost no coughing for 24 to 36 hrs .it may even help in the development of scar tissue in the lungs.
unfortunately I think it's still hard to define exactly from a scientific perspective how exercise alters the fibrotic pathways. This would be a great topic for research however
My wife was recently diagnosed with ipf, but, the dr found that she was using macrobid since late 2016, when all her lung problems began. She stoped the medication 6 months ago, as it was per pulmonologist dr recommended, she still asymptomatic, she had a lft within sage 1 pf . Is it possible that pf gradual less progression can be achieve. Thank for the possible answer.
no we cannot say that a specific drug will cause lung fibrosis at this stage , can't make that blanket statement - I have just published another video about how we make the diagnosis of drug-induced pulmonary fibrosis
Legalise euthanasia and voluntary assisted death…would make life much better for many. Eating well, sleeping well etc isn’t going to materially alter disease progression, unfortunately that’s a fact. Once you have it, you have it….
What a wonderful Dr you are!! I’ve been living with pulmonary fibrosis since I was 29 and I just turned 58! I owe everything to my Lord and Savior Jesus Christ and the wonderful drs and medical staff. I love your videos so much. This one has been my favorite!
Thank God u are still with us. Keep on keeping on. 🙏🙏
Good for you it’s hard disease keep u p what doing that Comment gave me hope
Thank you, I’m 73 and have just learned this is my life/ death now. Just need to accept what is. Thank you for your info and time you have spent with your videos. I’m sad, can’t believe this is my life now. Thank you.
May God bless
msm and nac may help breathing , even selenium and vitamin D3
My husband to. On hospice now. Some meds help a little dr said reserve energy. Hug to you and your family
You are a beautiful person. Carry-on. Sometimes who you are brings more health than what you say. Thank you.
I have recently been diagnosed with Interstitial lung disease and since I didn't know what it was I was calm about it, but when the reality of the seriousness of the disease step in I started to feel despair.
Just wanted to say thank you for taking the time to make these videos they are very informative and educational and has brought alot of comfort to me.
My daughter as well I'm devastated, thanks to covid 😢
I am a 68 y.o. Just dx. With IPF and I want to thank you for this video and your other videos! You have made me want to live my best life, I felt like giving up when I was first dx. I am a runner, running 2 miles a day. I am also an artist and I want to continue painting and running as long as possible. Thank you for changing my thoughts to a positive!❤
I was diagnosed on Monday, 3 days ago. Thank you for all your support, time and efforts you put into this video. Positivity in my mind, I believe is a huge Catalyst to survival. This young man of 63 years thanks you again for sharing all your thoughts and experience. Keeping the Faith!
I have seen many doctors and have had many interactions with people in the medical industry. You are very intelligent and give very good information. I can tell you are calculated and you care. Keep these videos coming! 👍
So much I didnt know, Thank you for not letting me feel alone
I was diagnosed 1 year ago. At 77 I have started to do puzzles. So nothing is impossible. Thank you for this video very helpful.
Brilliant advice! One tip l've tried, when l go swimming, l asked permission to take my oxygen tank and leave it at the side of the pool for when l get breathless. It really helps and stops me panicking.
Thank you so much for this video, I have 9 grandchildren half of them do sports, I try to make it to one sports event per week, that has truly helped lift my spirits. Pulmonary fibrosis was never a part of my plan, I have to find new normals, which can be challenging my mind says I don't have limitations however my body says otherwise. I'm super thankful for still being on this planet and for this channel.
Best wishes to you positive woman 💚💙💚💙
Your message about finding purpose is so very important. Thank you.
Your style of telling things is marvellous, very useful information.
Dr Stefan, thank you for the video. Sorry for the long comment.
I am from north of Pakistan and my father (76 years) was diagnosed with pulmory fibrosis last year in March. He has been on medication since then. Unfortunately, we still couldn't figure out the leading cause of this disease, but still, he is doing really good. Our city's elevation is 2300m above sea level, which makes this disease a little more complicated. He has to use an O2 concentrator in my town (Skardu), but he does not have to use any concentrator in Islamabad. He usually walks and does exercise every morning and sometimes in the late afternoon as well. He had been using essential cough syrups since the beginning, but the cough was not going away, so he decreased the usage, improving his cough. He mainly does his own household work, which makes him happier and more robust.
I was diagnosed this 3 days a go. Learning so much on the healing journey
Thank you so much for this video. I am IPF patient since 2018. Beside prescribed medicines , exercises, breathing exercises, pranayam and balloon Blowing helps a lot. My overall health is stable.
glad to hear, best of luck to you!
What is your prescribed medication if you don't mind?
I am 46 years old and was just diagnosed with IPF. My mother had it, as well as other health issues, and passeed away at the age of 41. I got 5 years up on her... This has been quite the shock to my system, needless to say. I have alwaays haddd issues with mental health and this has just blasted me. i am seeing a therapist about that, but where I am living makes it difficult to get any help as to what and where I need to go, where to turn to get treatment for my IPF. Your videos have been very helpful in what I can ask the doctors and where I can turn. Thank you, God bless.
I have appts. with my Pulmonologist and a vascular surgeon today. Friday I was at the ER - purple lips, x-ray showed hypoventilation. ECG- tachy bradychardia-44-154 heart rate, I was diagnosed with PF 2 years ago. I am 55. I thank you ever so much for this information. I like your presentation, authenticity, and obvious compassion and knowledge. I look forward to watching ALL of these. Absolutely the lift I needed prior to my appointments.
O
Did you take the vaccines by chance ?
@@ibelieve98 No I did not.
@@JazzySerendipitysame here... no jabs or medication since 2019... still got it in both lungs diagnosed 3 months ago
This one is very important part of the disease process. Love his encouragement . ❤❤❤❤
Wow Doctor thankyou so much for the most amazing , encouraging, informative vidio.
Having just received news that my brother has been diagnosed with IPF ...I have been struggeling to know how to encourage him but having found this vidio, I really believe you have put everything in a nutshell & it is great that it would be comeing straight from a m/o & not from a know.. it ..all sister!
I can trully feel your compassion & dedication comeing through in this channel. Your patients are very privallaged to have you as their physician!
Much blessings from South Africa 🇿🇦
Thanks for your message, all the best to your brother!
Did he by chance take any of the vaccines?
I'm 69 & was diagnosed in 2021, I also lost my love to breast cancer the same year. I'm alone & worry about what I am facing. Thank you for making these videos. You have opened my eyes and I'm going to start trying to make the best of this situation.
Thanks for taking the time to share your experience and knowledge. Its inspiring. I have not been diagnosed but ever since I had covid my lungs have not been the same… so I have been looking for advice and suggestions to improve…
thanks for posting diagnosed about a year ago had severe rhumatoid arthritis that scared my lungs almost 69 years old videos like yours keep me from giving up.
Thanks for your message, it encourages me to keep creating this type of content! All the best to you!
thank you. the video gives a confidence to accept the reality and move.
I was diagnosed yesterday with Pulmonary Fibrosis yesterday and I think you for telling me about it and I do not smoke ❤
Thanks once again for helping us manage our problems with a good attitude
Highly apricate these kind of honest videos on the web.
Looking forward to watching more of your videos! You made my day! Thanks!
Informative thanks
Thank you Dr Stefan, your advice is extremely helpful and appreciated. I plan to watch as many of your videos as possible as I need to absorb as much wisdom, knowledge and understanding as possible in order to stay alive, as healthy as possible and as long as possible for my family and myself. May God bless you sir.🙏🙏🙏
Thanks Dr, I have found your videos extremely helpful in ways that will be of a benefit to me, structuring your information directly to my needs. The fact that you advise frequently that this is not a guaranteed fix and everyone is different so to structure it accordingly, is reassuring and perfectly helpful. Thank you so much.
Very helpful timeless information for a recent diagnosed person.
Thank you for this excellent advice. I will listen to this regularly.
Thank you so much, your advice and talks are always so helpful and encouraging. Your understanding and care mean so much!
Good video. Very informative and useful
Dr You are SOO Kind! May God in Heaven Bless You Abundantly! Thank You!😊
Excellent doctor, Many blessings
This information is EXCELLENT! It provides significant optimism for my IPF diagnosis. Thank you , DR. Stefan , VERY MUCH.
What an uplifting video, you present such a positive awareness of this disease which has helped to ease my fears for my future. Thank you, thank you, thank you.
I really appreciate these videos! It is so helpful!
Thank you doctor. It is really excellent advice for the patient. Very direct and beneficial, I would like to have some insights on the type of exercise we can do
Thank you so much for all your beautiful & helpful suggestions. Unfortunately I not only have IPD, but also have fibromyalgia, osteoarthritis & effects from having a Nissan Fundoplication like spasm of oesophgus. I am 77 & tend to want to just ‘give up’ as I can no longer give to the community as I used to do. I am always tired & in pain. I’m definitely going to try & follow your ‘healthy sleep pattern’ advice. Thank you so much & God bless you!
Rats not wraps
I am going listen all your videos. Thank you for the advice and giving me hope
Thank you for ur information about this lots of love for ur video ❤
Thank you so much. Such a good advice. May God bless you and use you more
Thank you so much ❤
Thank you for these videos!
Thanks Doctor.This video is very encouraging.
Your channel is very helpful! My husband was diagnosed with IPF last month. You are a compassionate doctor. Thank you for all the information that you share. We will be at the PFF Summit in November and hope to learn more and develop some new relationships.
How is he now
Please, what is the PFF Summit?
TY for asking . He has been on OFEV 6 months , and it has been stopping the progression of tissue damage .
The PFF - Pulmonary Fibrosis Summit is sponsored by the Pulmonary Fibrosis Foundation. It is an educational conference for leaders in the field , patients, caregivers, transplant recipients etc…. Look into the Pulmonary Fibrosis Foundation in the USA. God be with you and your loved ones 💙💚💙💚 @janeceest
@@lorismith5369 Thank you, and may God be with you as well.
Very helpful!
Thank you so much for this information, really enjoying your videos.
Thank you Dr. Stephan. You have helped me a lot. Keep up the good work.
Thank you for info very useful- and will help going forward 👍
Was just diagnosed with a pulmonary node as an x nurse of course I’m listening to e everything under the sun 51 I don’t sleep well ahhh 😌 😢praying for everyone here
Thank you very helpful!
It’s very useful advices I have diagnose PFB LAST WEEK I am on soma madication
Thanks for great info. My husband ended up stage on hospice. Bending over closes of a lot of air. Marshmallows and honey good for the cough. Dr told us that. I was like 😳 then I looked it up. It’s helps. Cool air is best fans help when your breathless. Great tips thank you 👍
Is there any truth to Zinc helping IPF?
A few things I'll be adding to my regimen are Tocotrienol, Air Physio & Mullein❤Thank u for the great advice
It amazing , helpful video!!!Dr . God bless you🌹🌹♥️
i'm very happy it was helpful, god bless!
Thankyou so much your videos r very helpful good job sir👍
just saw your video. thanks much . i was just diagnosed with pulmonary fibrosis. I am a christian and without Christ I would be depressed . He said come to me all of you who are weary and heavy laden and I will give you rest. for my yoke is easy and my burden is light. the apostle Peter said cast all your cares on Jesus for he cares for you. So I will lean on him as I face this diagnosis where ever it may take me. Thank you for your video I sense your real concern and care for your patients . Just like Jesus the great physician.
Thank you Doctor, I discovered your channel a couple of months ago , I find all of your information very helpful. Twelve months ago I was diagnosed with IPF , and it's been a bit of a battle, I struggle to find the right questions to ask my specialist , so I leave his office sometimes more confused about my diagnosis . Thank you.
Viktorya 🇦🇺
it's very common for this to happen unfortunately, because there is a lot of info to discuss during consultations. I personally also struggle sometimes with the limited time allocated to each patient (that I cannot control). But do keep asking questions and seeking clarification. I wish you all the best!
Since covid I got this pain in my upper back never had it. I have sleep apnea they said it scaring in the lung I wake up with pain as I move it goes away but when I wake up it's there. So annoying and frustrating I stopped smoking ty probably the best video I came across
Thank you. I'm 51. I was diagnosed about 21 months ago with copd and emphysema and pulmonary fibrosis. I'm stage 3. I thought I just kept getting bronchitis or something. When I noticed my by breathing was getting difficult it took about 7 months to get seen because of work and working up to 70 hoursa week. My lung function was 48% it is now 88 I'm only using the trelegy inhaler.
I quit smoking in 1979 and never smoked again. Now I have , end stage, PF and Emphysema. I had been a heavy smoker. I'm experimenting with Metformin although not a diabetic as it has shown to reduce fibrosis in mice. I'm also reducing caffeine and eliminating alcohol whilst living on a keto diet . I'm 80 (in October). Not ready to quit as yet but, in reality, totally buggered! Even using the toilet means that I have to rest for twenty minutes thereafter with a Spo2 slowly coming back from 72%. I'm on continuous O2. Stopping coffee helps me reduce ectopic arrythmia but its a high price to pay!!! Keep posting these really encouraging talks, please.
Please do not take offense but did you have COVID or take any of the vaccines? My healthy 40 yr old nephew was just diagnosed with pulmonary fibrosis,gave him less than five years to live . Healthy prior to the vaccines . Hey had three of them
@@ibelieve98 I have had Covid jabs with three boosters. My fibroses was established long before Covid.
Thank you sir but please make video on acid reflux
Thanks ❤
I am also having this disease..your words help alot..I am 44 years old got this disease in 38
hello dr,thank you for all your work.keep going
what about Zn , what about complementary medicine like serropeptase,curcumine ,when antifibrotic inhaler ?
congratulations
I have a daughter who's 30 years old and in 2021 she contracted scarring of the lungs
There is a little suggestion...doing pranayama n yog as described in ayurveda can really turn around wonderful in the case of ILD..
Look at Cordyceps (mushrooms).
Does this help in reversing the pulmonary fibrosis??
I've just been diagnosed last week. Im 41 years old and have been suffering from with rheumatoid arthritis about 5 years now. Been on several medication for it and lastly Methotrexate. The doctors ruled out Methotrexate as the caused of the scarring. Now I've been put on Ofev and continuing with the RA meds. I'm not confident about the meds and wondering if it's worth taking them?
I have just been diagnosed with pulmonary fibrosis stage one. Had a cough since Christmas 23. It's now Oct 24. Can't do a lung function test because of my cough despite trying techniques and inhaler. Breathless, tired, muscle aches
Dear Dr Stefan, please may I ask if IR light is a good treatment for Interstitial Lung disease?
The cough is the worse thing for me so far the inhalers have not worked. I don't have reflux. I am trying to walk swim keep allergens down in the house. I have a year ago moved back to Spain and so far I've not been able to see a consultant .I've paid to have a private scan which showed no deteriorating lung function but I feel OK in myself ( 76 yrs)
I don't hear PT suggested, which my FP ordered for me. I was told 2 years ago I have this on an incidental finding with a kidney CT scan. Now, a new FP doctor doesn't care either.
Hi. I was asked if i had a rash. ! Can you elaborate on this please.
Such a small thing. But I did have one on the left handside of my face.. under my eye. A dry patch.. but it went with a touch of moisturiser !
I would be grateful for some explanation.
Your talks are amazing. Much regard. Bet
I have the same dry red patch under one eye that won’t go away since the last year. I’d like to know how to get it healed for good
There isn’t. A lot of info about it. When there is, the comments are turned off. My husband diagnosed 2022 with ipf but itvwas 7 months earlier they knew he had lung disease took 7 months to eliminate everything else. He took ofev and had to be tested every month kidneys and liver. It did hit them both twice. Dr said borderline to stop taking it. Left it up to my husband . He stopped taking it cause it also made him so sick. So now 2 years later. He is end stage and on hospice. He’s ok while sitting but air drains just walking to bath room. Bending over to pet the dog is not an option anymore. Hospice ppl are amazing. He still keeps palliative care also because he is a veteran. Both have been of great help with this ugly disease. Also Dr told us at same time you have ipf you are both in for a major roller coaster life. Highs and lows. Even still at end stage. Maybe 2 descent days a week. This is great help for so many, thank you my husband is 79 now. He was never a candidate for lung transplant.
Just found my father is diagnosed with subtle interlobular thickening. Im devastated know this. He is 69.5 years and is fit with no sugar or BP. Im worried about his health post medication. Please help to find out ways to keep him healthy.
Hello from NZ, have just found your channel. My 82 yo father has IPF and is currently struggling due to his first chest infection. Apparently the antibiotics worked but have noticed his food/fluid intake has dramatically dropped, I think he has reflux and am going to try Gaviscon to help? Have been in touch with his GP & specialist but still waiting reply. Last specialist appointment three months ago he was stable but i have noticed a considerable deterioration, hoping he can get his food intake/energy up slightly but I know it’s not looking great ☹️
Excellent presentation with many helpful ideas. The only thing I'd add (apart from to endorse the comments about diet, exercise and social connections) is to check if pulmonary fibrosis is in your family genes. If it might be, encourage every family member over 50 to get a CT scan to see if they have the disease. (Simple XRays may not show early fibrosis.) I would not be able to maintain my very active lifestyle if I had symptoms. Fortunately, I was diagnosed two years ago, at an early stage in my pulmonary fibrosis.
How do you get a diagnosis for it ? Ct scan? Is it easily seen ?
I am a 65 year old male with IPF. I am on oxygen at 3 liters per minute. I don't smoke. I struggle to breathe, I have some honeycombing, mostly ground glass
Do I have a chance?
Does anyone know if zinc supplements with NAD+ help with IPF ?
I read about zinc ... How good zinc is in stopping PF? i mean he has a good role in being anti inflammatary metal..
❤
Great suggestions doctor..I incorporate almost all of your suggestions into my daily life..
I honestly believe I have been treating my condition inadvertently by my lifestyle especially my intense exercise routine.. I think it opens up genetic pathways that have an inflammation reducing
Effect.. i notice that after an exercise session i have a greatly reduced irratation in my lungs and almost no coughing for 24 to 36 hrs .it may even help in the development of scar tissue in the lungs.
unfortunately I think it's still hard to define exactly from a scientific perspective how exercise alters the fibrotic pathways. This would be a great topic for research however
Nice video..
Good information and advice
I am working as medical consultant and it will help me and my patients
Great video...I'm a 74 yr IPF patient for 10 months and I appreciate the encouragement, we all need it😊
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Sometimes it's possible to change the settings of the auto captions to translate them by clicking the settings on the video
My wife was recently diagnosed with ipf, but, the dr found that she was using macrobid since late 2016, when all her lung problems began. She stoped the medication 6 months ago, as it was per pulmonologist dr recommended, she still asymptomatic, she had a lft within sage 1 pf . Is it possible that pf gradual less progression can be achieve. Thank for the possible answer.
Are you saying metformin can cause pulmonary fibrosis???? at the end of your talk.
no we cannot say that a specific drug will cause lung fibrosis at this stage , can't make that blanket statement - I have just published another video about how we make the diagnosis of drug-induced pulmonary fibrosis
My husband died age 68 with this
Losing weight, vitamin d c zink, simlplifi life and ist thing pray.
What about sex
Read that coffee can give pulmonary fibrosis . I on a coffee free diet 3 day .
4 or 5 grams of magic mushrooms and you will quit smoking that day.
Legalise euthanasia and voluntary assisted death…would make life much better for many. Eating well, sleeping well etc isn’t going to materially alter disease progression, unfortunately that’s a fact. Once you have it, you have it….
I agree it’s important to have choices in how we die. Peace and acceptance is not enough.