b@@Raminakai that is until they or someone they love gets this awful life sucking disease! I have found that educating yourself and finding a good compassionate and well educated physician is key to how your life unfolds!' I
@@tauntasmom I thank you for your kindness and comments. Unfortunately, the “health care professional” I went to was not helpful and wanted to put me on mental health track. I have a lot going on hormonal fluctuations, ( menopausal) life stress, all the usual: past trauma experiences as well as physical issues from accidents, and from backbreaking work with folks with wheelchairs etc that required my moving people by myself too often. My job also required dealing with a few unpredictable people that traumatized me further. I have found many of my coworkers had trauma in their backgrounds. I was able to leave this job due to my husband’s support . I had a lot improvement from taking Tumeric, eating Whole Foods as often as possible, and reduction in sugar. I still have flares, and do not handle stress or changes in routine well- my nervous system seems on high alert - and am working on calming it down- which is a continuous practice. Deep breathing is a key for me. My fear response is ingrained- hyper alert. I tend to hold my breath and shallow breath when stressed which is so hard for me to undo. I keep trying. I am looking forward to the calming work to be my usual self. Another thing is pacing myself. I also have to balance others expectations vs. what is best for my being. Sometimes , I push it and other times I give myself a break. God Bless you!
Stress, is STRESS. U know we all handle stress well, but STRESS the moment we wake and realize what we thought we could to today when we went to sleep last night, isnt gpi g to get done.. THAT is pur stress. DOC!
This mamipulation and stretching and MASSAGE is the best decense.. Pt DONT DO IT ENOUGH. STRENTHENED MUSCLES, RETRAINED MUSCLES HAVE LESS PAIN. OVER WORKED AND UNDER USED CAUSES MORE.
I have had fibro for 22 years. It was secondary to a traumatic injury in nursing. My heart aches for everyone who faces this syndrome. I had to fight my whole time for this diagnosis, no doctors believed me. It was so frustrating. I was so happy the medical community finally acknowledged it and me. I still struggle as a disabled nurse at 77 yrs of age. Be your own advocate n keep moving, don't ever give up, please!!!
I had intermittent fibromyalgia for a few years before being injured 3 times as a psychiatric nurse. Then the fibromyalgia became constant. In the past 10 years it hasn’t let up at all. So sorry, fellow nurse, that this happened to you.
I'm so sorry! There time's over yrs when big stressful thing's woulybd happen, I'd end up in bed, I was exhausted. Just recently, I was told I did have fibromyalgia. I had gone to the Dr. I just hadn't put that together in mind.
I have a degree in the medical field and when I finally got my fibromyalgia diagnosis, I didn't believe it because of the stigma around it. I thought I had something much more serious. Once I started doing research it all made sense. Now I know fibromyalgia IS that serious. The worst part for me is never being able to fall asleep at night, and then never wanting to get out of bed in the morning. And my symptoms always flare up real bad when I don't have enough sleep. Never ending cycle
Yes it’s horrible. Iam 60 and have suffered from fibromyalgia since my twenties and now also suffer from MS and degenerative disk disease and arthritis as and depression and anxiety that goes along with it. I can relate. Fibromyalgia is serious
@@kathleengivant-taylor2277 same with me. Ive have back surgery neck surgery knee surgery too. My body is wrecked. Few people understand because you look fairly normal on the surface.
My life was turned upside down.14 yrs and yes it deteriorates with time.i am single working mum who had to forcefully quit my job.Bills ran up,Our home dynamics changed overnight.From an energetic, corporate woman to a almost cabbage,that family members said it was in my head and one even swopped my meds which I wasn't aware of and I suffered severely for one week after that relapse.i pray a lot when I'm feeling better.My condition is improving in Jesus Name.i refuse to be bond in this body.im trusting God for complete healing,may sound Cleche but I believe.I have more than halved my med in take so far.God is Goof,but this thing is a real suffering guys.
My chronic pain is on my knees down 24/7, since 2015 the chronic pain spread to my both hands. I’m not able to work due to the intense pain in the hands. It’s hard to do anything,we need hands to function normal,not my case. I get approved for disability and I won in the first hearing with the Judge 👨🏻⚖️. I lost all “friends “ and life outside. We need to be extra strong to someone times put a pretend face of everything is ok with us,but the reality is we are crying 😢 in side duo to the excruciating pain.
People don't understand the depths in which this changes our lives. It affects every aspect. It affects us not only physically, and emotionally, but financially and socially. One of the hardest parts is how isolating it is. There's days when we can't shower because of the pain or the fatigue. Without social media I would be completely cut off from other people. Wouldn't it be nice if they were actually looking for a cure
@@DrJenCaudle I have been diagnosed with fibromyalgia for about 25 years now and I was diagnosed with Lymes disease and can’t take antibiotics because I am allergic to almost all of them so the Lymes can’t be treated but I am also on cancer meds. The amount of pain I have every since day is absolutely horrible. I feel like I have the flu constantly. I’m desperate! Any ideas what I can do to have better quality of life. Cause mine is not good quality at all !
Went to many Doctors until l finally got a diagnosis! I had a ChildNet certified Childcare. I had to go on disability. My husband had left me. That was 30 years ago. I still get flare ups. Spring and Autumn times are the worst. I look ok. Not complaining any longer, because friends & people don’t like negativity! 😢🙏
Went to many Doctors until l finally got a diagnosis! I had a ChildNet certified Childcare. I had to go on disability. My husband had left me. That was 30 years ago. I still get flare ups. Spring and Autumn times are the worst. I look ok. Not complaining any longer, because friends & people don’t like negativity! 😢🙏
@@terriprobst4680 I had a rheumatologist say I have fibro, but it just means they don't know why you have pain. I changed my diet and went on a carnivore diet, but with some fruit. I also take "ancestral supplements" and some "heart and soil" supplements and my health has changed so much. God bless you I hope this helps!
Mine too☹️. I'm suffering from pain since 4 to 5 years. Like you said, nobody believes. I used to take painkillers which temporarily helped. Again the pain comes. Stopped taking pain killers then and tried to bear the pain. But I saw that walking helped me a lot. I had to stop walking due to some injury and the pain started again. Now started an ayurvedic treatment. Hope and pray that it helps me. God bless us all to fight this pain and find a solution for a painfree life.🙏
true, I loss my life as I knew it,12yrs ago.and it only getting worse.. the fatigue is my major complained...sometime I wonder if im better off dead... now to top it off the only med that was working, was taking away from me..
Ive had fibro since I was 18 wasn't diagnosed till I was 28 I am 47 now, and last yr I was diagnosed with CLL a kind of leukemia , My neck and back are worst, I had major back surgery 8 yrs ago and it was unsuccessful and no one realizes how bad I feel because I look normal, oh your just depressed get over it they say
It took me 5 years to get a diagnosis. I was always told, “you’re too young to be in this much pain” and they would laugh and make me feel like I was crazy. This video really hit home for me
Katie Abdulqadir I’ve had this happen, it’s so infuriating. Once I was painfully making my way down some steps with a walking stick, and an older man passed me coming the other way. He said “You don’t need that stick, you’re young.”. I was 27 at the time, and had already had fibro for thirteen years with constant pain. Jackass. Another time, at age 29, I was getting off a train with some suitcases, which my friend was struggling to carry for me. We attempted to ask the porter for transport along the platform with his cart, and he said, angrily: “This is for disabled people, not luggage.” I told him I WAS disabled and he was prejudiced. Another jackass.
When I said “I can hike 5k but really ache the next day and day after that”, the rheumo I was sent to said “well, you don’t look like a fibro patient”. Apparently I had osteoarthritis...and if I’d brought crayons and paper she would’ve been asked by me to draws fibro patient! Years later now I still love hiking but 5k is a good week. Sigh.
This touched my soul. I was diagnosed over 20 yrs ago, and have been in a “constant state of flare up” for over 10 yrs. I have had to fight so hard to find a doctor who would actually help me, and see me as a patient in chronic pain. I’ve tried every alternative therapy there is out there, with no luck. I’m 37 and feel like I’ll be lucky to make it to 40. This is the worst thing I’ve ever walked through and wouldn’t wish it on my worst enemy.
RileyCai vlogs on my! I’m so sorry you are suffering so much. I am glad this video touched your soul though- I was hoping to reach as many people possible with it. Know that I’m saying prayers for you! Stay strong! Dr Jen
Yes I had tests after dr kim amazing doctor told me I had last year very painful some time like I just don't live because hurt s so 😔😞 God please help me God bless
I was diagnosed in 2000. But I have had to keep my pain to myself. I’ve actually had people tell me that no one can have that much pain especially since I don’t look sick. The only person I tell how I truly feel is my doctor. He was the best. If I needed anything - massage therapy, physical therapy, or meds, he would make it happen. He left and my new doctor has been very supportive as well. I consider myself lucky when I hear what others go through. You must be your own advocate!
I agree some ppl think that it doesn't exist and severity of the pain and suffering due to it being invisible disease its real many think firbromyalgia suffers are imagining pain lazy etc all lies we know our truth pain is for real 😢but God is realer bigger by Jesus stripes we are healed praying for all whom suffers in daily basis from pain rather it be physically. Mentally, emotionally psychologically or even mixure let's stay strong keep believing trusting God 💪 firbro family God Bless 🙌 🙏🏽 ❤️ 💙
@@harjotkapoor1201 a friend of mine does not have it himself, but he does try to understand, and anytime I have one of those "good old" flare ups, just to try and keep my mood up and joke around, he'll ask if I had another practice run at playing human speedbump on a bussy highway... and well, he's kinda right, that's basically what it feels like on the bad days...
I have greatly lessened the pain with the protocols of Anthony William, The Medical Medium. It is the only thing that has helped. Seriously, I have improved so much. Check out his books and also his shows on soundcloud. It is caused by Epstein Barr Virus!
To hear somebody actually say that it is life-threatening... YESSSSS!!! The pain and suffering ALL the time will break even the strongest. There are days when I don't want to live anymore but love life. Stay strong sufferers it's a horrible life no one understands unless they suffer the same.
It IS life-threatening. I'm sorry you struggle with this. ;( I made other videos on fibro and hoping they will help; What Is Fibromyalgia? A Doctor Explains: th-cam.com/video/iO4grsq0hQM/w-d-xo.html What Causes Fibromyalgia? A Doctor Explains th-cam.com/video/VBUqngxexlY/w-d-xo.html How is Fibromyalgia Diagnosed? th-cam.com/video/DBvMn3jCKV0/w-d-xo.html The Best Treatments for Fibro Pain th-cam.com/video/ywGvGGx4jfE/w-d-xo.html
I don’t want to die, but I often fantasize about being placed under general anesthesia for a few hours so that I can feel nothing and actually get some rest.🙏
You know I almost wanted to take my own life just to stop it cause I was undiagnosed over a year and told it was in my head but when I finally got diagnosed I literally felt like the world was lifted off my shoulders.
I totally understand you, I also have fibromyalgia and my body flares up to the point where you can see my tendons swollen or pulsation in my hand... sometimes I'm in extreme pain and there are times when I have difficulty walking. The pain is all over my body... and it's hard when ppl don't believe you until u can't actually move or when I am unable to walk.
3 doctor visits my ass. i have had this for at least 30 years and was finally diagnosed 3/20/2019. this has always been brushed off by the military health care doctors just like my endometriosis was.
I was diagnosed in 1997. Had been looking for an answer for 20 years before that. I'm so sorry for your horrible experience and those still seeking answers.
Fybromyalgia can qualify for VA compensation if it was missed during your time in service. Took civilian and military doctors 12 years and probably 50 + doctors visits to get diagnosed. There is so much associated with this condition like PTSD.
I tell my doc, I feel like my whole body is bruised 24/7 and can't handle being touched. How about you ? Do any of you feel like every muscle in you is bruised ?
Yes! Especially after a long workday my legs will feel as if someone has been using them as punching bags. It is so painful I also have alot of lower spine issues so combined with that it is brutal. I told my bf it is getting to the point where I'm not sure how much longer I can work full time hours.
Sometimes every shred of my being hurts. For the most part, I grin and bear it. I've had times that my precious child is leaning against me or hugging me and I am in SO much pain, but I suck it up because I want to be there.
As a young girl being diagnosed at 16 or younger (now 19) Fibromyalgia really put a barrier on my life. Trying to do daily things, family not understanding what’s going on. It can get frustrating.
I was dealing with it undiagnosed till this year but im around the same age as you and I can remember that stress from my family calling me lazy and that it was just me. I hope people are more understanding about it now.
@Woman of the Quran Thank you for this! I've struggled with fibro for a long time, some things do help! Everyone has to do research and find what works, I'll look into this. 🙇🖒
I raised 5 kids alone with this illness on little or no child support. It was so hard and still brings tears when thinking about it. I am 69 now and realize God carried me daily. Now the pain puts me down all fall, winter, and spring. God bless us all.
Lets be real, the reason it took so long for doctors to take it seriously is because it didnt affect men as much as it affected women. The only reason they really started studying it is it was becoming an inconvenience on the lives of employers and husbands who werent getting the attention they were used to . It's just like other illnesses, like the fact that most people dont know that the publicized heart attack symptoms are the ones that affect men, and that more women die of heart attacks because they dont know their own symptoms because they differ from men's. Men who do have fibromyalgia also get the short end of the stick because it isn't common on men.
I totally agree. I also believe more women get it is because we are exposed to more viruses via children then men. Not because we are weaker in some way. Women always are genetically stronger than men.
My life has been turned upside down because of fibromyalgia. I couldn't work, dance anymore and I've been an advocate for patients with fibromyalgia for years
has anything helped?! I am scared that there is nothing I can do and all the videos I have watched say lyrica is a terrible medication my friend with this disease has already been on 3 medications that did not help
We do here...Keep your self in a positive head space and if the people around you don't understand maybe it's time to make new friends, husband ect... no one knows till they have to go though it...💖trust me I have only 3 people who really understand.
@@lucretiz lyrica cut my pain in half.. so yes it helped a lot.. dont let them put you on pain meds... I was on them for 15yrs.i went cold Turkey on fentanyl,soma,morphine, I hated it.. I still take a very low dose of morphine but I also have 2 herniated discs in my back. But avoid them plz... if I took everything my doctor though at me I would be dead... plz be careful... lyrica isn't a narcotic..💓
Only Child life Sorry to say I have similar cramping and tendon pain. If I use my hands I get painful muscle fatigue and have to rest. It’s difficult to do every day tasks. I did get some trigger point shots in my neck and shoulders and it’s helped, but, I’m in pain over the rest of my body. This disease is brutal, 24/7 pain.
It's taken 15 years for me to be diagnosed. South Africa couldn't get diagnosis, was told it's in my head as well and I'm just always playing up not feeling well. It took moving to the UK to be diagnosed, am in such awe and appreciation for the doctor, physio and specialist who have helped me on the right path.
I live in Germany and I can't find a doctor that takes me seriously. I was even put in a mental clinic saying it's in my mind and that it's probably only depression. Only good thing that came out of it that they gave me early retirement because I never sleep which they could account for after being in the clinic for 6 weeks. I get restless legs and the pain is so unbearable that I just can't sleep. I am also constant drained of energy and full of pain 😢
I am in bed right now in pain watching this. My legs are so sore. I feel like I've ran a marathon. 26 doctors later I was diagnosed. It's a challenging life, but I'm slowly learning to live with it. I'm doing tons of research, changing diet, and trying to keep stress under control. Trying!
I have been on Anthony William's protocol for over 3 years. He is called The Medical Medium. It is caused by Epstein Barr Virus. I am so much better now. Please check this out. You can heal!!! He has 5 brilliant books and free soundcloud shows.
Same here. Some days it feels as if there is ground glass in the fabric of my clothing. Wearing *silk* base layers (long tops & bottoms under my clothing) helps a bit.
I used to have extreme fabric sensitivity too. It's slowly gotten better, but I still wear mostly loose clothes and often have to change during the day to reduce pressure points. My biggest problem still is gut problems and bloating from IBS.
I have had the diagnosis for 10 years. I am allergic to narcotics, so I’ve had to explore holistic ways of managing my pain. I am sharing in the hope that what I’ve learned may help someone else. I will say that I am taking gabapentin, but I’m on a very low dose (400 mg before bed) but that is the only medication that I take for my fibro. Yoga is a biggie. The stretching that you get with yoga is important, but the breathing and meditation is just as helpful. It helps you to get in touch with the different parts of your body which in turn helps you recognize when a flare is coming on. I use essential oils daily in a variety of ways. Topically: depending on what kind of pain I’m experiencing, I have coordinating oils that help. I spent a lot of time doing my own research on oils and how to use them properly and safely. I diffuse oils in every room in my house and in my office at work. If I’m in the middle of a flare, I will sometimes do a detox bath with epsom salt, baking soda and essential oils. Every 4-6 weeks, I go for Chinese fire cupping. My fibro settles in my back so when I was first diagnosed, I would go for deep tissue massage thinking that would help. It didn’t, I would feel worse afterwards than I did before. Thankfully, I found a massage therapist who is very knowledgeable about how the body works and he informed me that traditional massage would not work for me and turned me onto fire cupping. He also does energy work on me and occasionally he will do acupuncture. I have recently changed my diet and I’m amazed at what a difference it’s made! I’ve cut sugar, caffeine and carbonated drinks completely. I’ve lowered my carb intake dramatically and I’ve cut down on fats. This change has had the most dramatic results so far. I started my new lifestyle just before Christmas and I haven’t had a flare since. I can’t remember when I’ve gone 4 months without a flare in the last ten years! I encourage anyone with the diagnosis of fibromyalgia to start your own path of finding holistic ways of treating your pain.
One point you make; the wrong person trying to give you massage, if they're not up on fibro, can cause MORE pain. People don't understand, how touch can be painful. 😐
Are you eating a balanced diet? Years ago I discovered that eating high protein food. Helps the burning pain. Discussed it with my doctor at the time.. And he said neurotransmitters have something do do with the pain. May not be 100%accurate. But it was an observation. Give it a try. Eat a piece of chicken or something like that see if the pain lessons..
@@princessyeboach3698 ok. Just giving you a suggestion from my experience. Maybe you need some vegetables and fruit. Who knows. May be a piece of cocolate would make you feel better. It has health and mood benefits. Just feel good princess . do what you can. Research the problem . every one is different. Have you seen a specialist. Rhematologists treat fibromyalgia.. It part of the speciality. I'm also saw an infectious disease specialist. She was well known and treated the disease. Actually she found things in my blood work. She said she was suprised. That the blood work usually doesn't show anything.
When I first went to the doctor at 20 with complaints of hurting all over and being exhausted all the time, the doctor said I was just lazy. I spent the next 45 years proving I wasn’t lazy and I was so exhausted. The doctors I went to, and there were quite a few, dismissed me and said it was probably nothing. My primary care doctor finally sent me to a rheumatologist and I was finally diagnosed with fibromyalgia two years ago. What a relief to know it wasn’t all in my head after all.
I have recently been diagnosed. It took forever! But like Dr. Caudle said it was my rheumatologist who finally diagnosed me, and in about an hour. I demanded an appointment with a rheumatologist. It’s a horrific global pain issue. It’s very very real!
Dr. Jen Caudle Thank you. It’s absolutely debilitating. I’m trying mindfulness, hypnosis, I’m very positive, but the pain can be unbearable. I recorded myself after a mega flare up to try and help others understand. I haven’t shared it yet. But I think it gives good insight into what the pain is like. It’s important for people to see and understand. Thank you for this video! It’s fantastic! Thank you for taking the time to reply xx
Jacqueline MarieMusic omg I’m so happy you think this video was helpful. That’s all I want to do is educate about health topics. I’m also glad you’re getting help- saying prayers! I know it’s tough, but hang in there! If you’re interested, pls subscribe to my channel where I’ll be posting more videos on fibro soon!
After years ( close to 10 years) of being told that the pain was all in my head and that I am to young to be in all this pain I was finally diagnosed with fibromyalgia by my current doctor 8 to 9 months ago. I am now 35 and most days I can't get out of my bed. Stairs are my enemy. On top of having fibromyalgia I also have diabetic neuropathy and am now on medication that helps with both. Thank u for bringing this to light that fibromyalgia is not a medical condition that can be seen and that those of us that have it suffer in silence. Much love to all who are struggling with fibromyalgia and know that u are not alone. Keep up the fight.
You are NOT crazy! I did a video where I wanted to make sure folks w fibro know that they are ok and not crazy: What Is Fibromyalgia? A Doctor Explains th-cam.com/video/iO4grsq0hQM/w-d-xo.html
@@oo6112 forget the diagnosis - there’s no cure, no pills can fix it, tried everything. Change your food, no sugar no gluten, daily meditation, trigger point massage, pilates just to start, then learning ‘pacing’ life has to slow right down….permanently. We can’t function like ordinary people, if we cook a meal we can’t shop, clean or socialise on the same day. If I am socialising that day, I spend the day resting saving my energy to talk to people - massive lifestyle change but no point in suffering
@@victoriawilliams654 the diagnosis is imp to me cause I think it might be something worse. I feel like my muscles are dying throughout my body. I have huge muscle loss visible in my legs. I think these half ass doctors told me fibro cause they are lazy. I am literally in agony and cant take care of my child. I dont know how to get help or have anyone take me serious.
@@oo6112 I’ve been there and I feel for you 🙏🏻 I had days where I felt paralysed because my body wouldn’t work, especially my legs and arms and I still sometimes have to lift my legs into the the car some days because they don’t work. It sounds like you need therapy to build your muscle back as a thats the first thing that I noticed deteriorating- and the muscle is the only thing that will keep us going despite the screaming pain in the nerves, the connective tissue and the Muscles. Self help seems to be the only thing there is. You really do need to persecute them to at least see a rheumatologist to rule out any auto immune disease - but they will be looking for specifics - so it might be good to do your own research on symptoms first but be warned - once you see the list of symptoms they are all so similar to fibro but auto immune will always shows up on scans or in blood tests as well. That’s how they know. Sending you healing hugs x
Just recently was diagnosed but have been suffering since 2020. Gone through three doctors who never took me seriously and one insisted that i was just anxious and making it up for attention. Thank god for my rheumatologist ❤
Oh no ! I know Im late reading this but have you found anything to make less painful .? Every day? Oh God bless you! I hope you have found a Dr who cares and if not maybe a referral to a specialist.? I should talk most days Im in bed , my husband had a girlfriend and they would hangout downstairs. I stayed upstairs because I had an infant, if I would try to go downstairs into his man cave he would screw the door shut on us because there’s another entrance down there with 2 deadbolts and a regular lock. Somehow I found cooking for him enjoyable but he would wait until the baby and I went to bed to come up and eat. When I did see him he would never look at me,just stone cold. Oh and he would also accuse me of cheating on him. For real? Probably because he was cheating. Oh and I left the baby monitor on one time I was allowed to go downstairs to wash and press his uniforms. Wow he didn’t know I was listening but I got to hear everything he thought about me for real,,, I don’t give him any attention, I’m a bitch, I don’t give him sex. (How do you give someone sex?) shouldn’t it be a two way experience? When he was affectionate he would kiss me on the cheek. It was so weird sooo weird!
I started having chronic pain, bloating and intestinal issues, and extreme fatigue after having my last baby at 37. I saw my GYN and was tested for ovarian cancer, a gastric that told me I needed more water that my pain was constipation, and a PA that said my pain was due to a gall stone. After my cholecystectomy all symptoms were still there. As a nurse I knew these symptoms were valid! I went to a friend who was an MD and after explaining my symptoms he told me “we will find out what is causing your symptoms and get you feeling better.” We ran every test he could think of and my ANA came back positive with cell appearance of Lupus. I was referred to Rheumatologist that diagnosed my constant all over body pain as Fibromyalgia. Through listening to my body and resting when needed, stretching, meditation, eating foods that won’t cause inflammation (caffeine), monthly massages I am able to live a fairly normal life. Although it is still mentally wearing. Find an MD that will listen and listen to your body. Cut down on stress where you able. You are your best advocate!
Dr. Caudle,, I want to thank you for taking the time to educate others on different health topics. I discovered you this past weekend, and I'm following you! I have been diagnosed with Fibromyalgia and I had finally found a doctor(rheumatologist)that would help me. My doctor had been prescribing me different medications until we find something to help me. Unfortunately my doctor doesn't take my insurance anymore and when you find another Dr. It takes so long to get in and you have start over. Are there any other doctors that can help with treatment? Thank you again for what you do! We need more doctors like you!
It took 3 months for my clinic to finally take me serious and send me to several tests, x-rays and MRIs. Until finally another 3 months later I was finally diagnosed. After establishing care with specialists I left my primary clinic and I refused to return to it. And I told everyone I knew to never go to that clinic. After being diagnosed I felt a sense of relief knowing I wasn't crazy and it was real but at the same time I was terrified at the life sentence of pain. Fast forward 3 and a half yrs, after years of physical therapy and continuing care I've come a long way and I'm more mobile and active than I was in the beginning. Even still I can't do everything like I used to do but I've learned to do them differently and be more accepting. Yesterday I mourned the life I once had but today I learn how to live again.
I've had FMS for 25 years now. I was lucky to have been diagnosed fairly quickly due to my detailed documentation of my symptoms. As a nurse, I leaned on my notes to prove when everything started and how it progressed,etc. FMS ain't for sissies!! I know it's not lethal but like this nice female doctor said, it is def LIFE THREATENING... and I need to add LIFE ALTERING and a lot of times LIFE ENDING. May u find peace somehow in a very chaotic and challenging FMS body.
pedsnursewhisper*, Well said. I'm a nurse as well, by your name I'm assuming Peds was/is your specialty. I was an OB nurse for 25 years. I'm now on permanent disability; however, I really loved my work. I look back, and don't know how I hung in there so long.
pedsnursewhisperer * I can’t believe how many nurses are affected by this awful curse. I was 40 years old when my life changed forever, I’m 64 now. I was a labor & delivery and level 2 nursery nurse. I also loved my job dearly, I don’t like saying it was a job because it was more like a calling to me 💕 This will definitely alter your life! The Lord Jesus has given me strength to get through it every day 🙏🏻
@@GodBlessUtoo , Well said. I know what you mean about it being more like a 'calling'. I could never have children (I had a long hx of stage IV Endometriosis). People would frequently comment on how it must have been so difficult for me to work in the the environment that I did (new mom's and babies). It was SO far from the truth. It was the absolute best environment for me. It was such joy, to help new mom's with their newborns, or to help the newborns in the nursery going through withdrawal or other struggles with life! I have a feeling you can relate to this wholeheartedly! I too am a Christian, and I have found that having such a strong faith, helps me accept and live with my new and ever-changing reality! Thanks for leaving your comment, and God Bless YOU! :)
GVGIRL Yes I can totally relate with what you’re saying. I loved the joyful times in OB , but it’s definitely challenging at times. But that’s part of being a good nurse. I’ve done a lot of grieving over not being able to work. So happy to hear that you are a Christian. I don’t think I would have ever been able to tolerate this without my Lord. I will definitely will be praying for you friend🙏🏻 It’s been nice talking to you 😊
This is the best and most honest video I've seen on this subject. Back in June my pain was so bad I decided to die was better. I ended up in a coma and then sent to a mental facility. I'm honestly angry I'm still here. This has gone on for so many years and even the psychiatrist doesn't believe in it. Now I'm having to find a new one! I'm tired, just too worn out. I've taken all the pills, pain meds made it worse, exercise doesn't help. Laying in the ocean motionless is the only peace I get. To have someone touch me is too painful. Where is the help? What is anyone doing about this thing that causes people to kill themselves???
Thank You! Fibro is so tough- I’m sorry you’ve struggled with this. I made some other videos and would love yuh to take a look: What Is Fibromyalgia? A Doctor Explains: th-cam.com/video/iO4grsq0hQM/w-d-xo.html What Causes Fibromyalgia? A Doctor Explains th-cam.com/video/VBUqngxexlY/w-d-xo.html How is Fibromyalgia Diagnosed? th-cam.com/video/DBvMn3jCKV0/w-d-xo.html The Best Treatments for Fibro Pain th-cam.com/video/ywGvGGx4jfE/w-d-xo.html
I have Fibromyalgia. I was thankful to find a Rheumatologist who was able to diagnose it by doing the 18 point pain test. However , I found my own medications and thankfully my doctors ordered them and it has given me some relief. Lyrica, Cymbalta and Flexerol and Tylenol. I am in too much pain to even do water aerobics. Plus I have A -Fib so the exercise makes my heart go too fast. Fibro-flares are really hard to take especially with all of the pain meds being more difficult to get, but the medications mentioned make life bearable.
I had to stop water aerobics also, but continue to just swim gentle lengths of the pool. The water really helps and gives ma a little relief for a short time. Take care. This is a,horrendous disease. Hugs ❤️
After having my tonsils removed at 13 years of age I developed what was thought to be Rheumatic Fever, which they then changed to Fibrositis, then eventually Fibromyalgia I’m 65 years old now and quite frankly don’t remember ever not feeling this way. This is my normal and I have over the years have adjusted my lifestyle around it. Sometimes it’s unbearable but most of the time I can manage and know one would ever know. I was a little surprised at the lady letting the man manipulate her body like that because I can’t bear to be touched like that the pain would send me through the roof, but one thing I’ve learned is everybody responds to to this in a different way. Hope one day they find a cure for it.
So true, there are some days I can’t take a shower because the water touching my skin is unbearable, (I do take a bath though with epson salts that helps before bed.
I saw a pain doctor just last year. It was a young lady and I thought this is going to be a really good visit. Boy was I wrong. She didn't ask me any questions, examine me (she was in 1 corner of the room and I was in the opposite), or anything. Her words were and I quote, "Honey, it's all in your head. I'm not giving you any pain meds and I don't need to see you again". I was floored. I went outside and cried. I've lost everything due to this monster disease. Disability has denied me twice and I have my hearing soon but honestly, I don't expect it to go in my favor. So sad.
I know of a woman getting disability based on nothing but lies!!! People like you that need it...cant get on disability...this woman I know if told me she was going to tell a big lie...and apparently she did!!! It enrages me!!!
I filed in 2005 went up to 2017. For them to tell me im exaggerating my symptoms. That my fibro wasnt officially diagnosed. I cant even find a doctor to take me serious .... That I was capable of working. Mind you I was in a wheelchair at the time. Disability is a Scam!! Single mother and havent worked since 2009. Have no help. Tried to kill myself still here
Arlene ElvisGirl I was told the same thing over 10 years ago,that it was in my head,nothing the matter with you,you can walk sit bend.$275 Thank you pay on the way out
sorry i do not think that drs are doing their jobs besides writing prescriptions. in my experience time and time again you need to be your own dr and use drs for tests and x-rays.
@@hayleygeek if you are able to search on TH-cam for yoga videos, easy short ones that are 3 to 5 mins long. I started there and the stretches feel soooo good. I am now doing 30 to 45 mins a day. I can move better and feel less pain. Fms is still here but I feel much better. Think when we're in pain we are clenching all the time, our poor body hurts from that too. Stretching is so important to us with fms. Hope this helps.
@@hayleygeek Some people have been using Moringa at one teaspoon powder daily. Some use magnesium. Some have had good luck with B12 shots that have other B vitamins in it. Always use the Methelcobalamin form as it absorbs better than the other kind.
Our medical system is a joke. In 5 years I saw 7 doctors each with a totally different diagnosis, $20k in lab tests, from pain pills to prednisone. I was told I was fat (@185lbs and 5'9" with 20lbs of breast tissue) from one Dr. and handed diet pills DIET PILLS FOR JOINT PAIN LOL, had Lupus (given Prednisone which gained more weight) from the next DR., osteoarthritis in EVERY joint from the next, "just hormonal and talk with your gynecologist" from the next, and refused by a rheumatologist with a referral to be seen. I cancelled my insurance and gave up.
I've had fibro for I suspect about 40 years. Some of the most effective management tools I've used are outside of Western medicine. Chiropractic and massage has helped a lot so. But the kind of massage is important. Right above your comment is a very good thread that you might find very helpful. I hope this helps to find you some relief. Good luck
Yes it is. Hopefully these videos will help: What Is Fibromyalgia? A Doctor Explains: th-cam.com/video/iO4grsq0hQM/w-d-xo.html What Causes Fibromyalgia? A Doctor Explains th-cam.com/video/VBUqngxexlY/w-d-xo.html How is Fibromyalgia Diagnosed? th-cam.com/video/DBvMn3jCKV0/w-d-xo.html The Best Treatments for Fibro Pain th-cam.com/video/ywGvGGx4jfE/w-d-xo.html
I’ll be praying for this women every day, and everyone else who has to deal with this, it’s so painful😖 I went through the same problems with hearing my doctor say it’s in my head, So sad
Yes it is sad. Did you see my other videos on fibro? Hoping they will help: What Is Fibromyalgia? A Doctor Explains: th-cam.com/video/iO4grsq0hQM/w-d-xo.html What Causes Fibromyalgia? A Doctor Explains th-cam.com/video/VBUqngxexlY/w-d-xo.html How is Fibromyalgia Diagnosed? th-cam.com/video/DBvMn3jCKV0/w-d-xo.html The Best Treatments for Fibromyalgia (Dr. Oz Episode): th-cam.com/video/54t8ldtykYk/w-d-xo.html
I've had it since I was 26, so 17 years, but it took years to get diagnosed. I had major childhood trauma, depression anxiety PTSD. I teach pilates, aquarobics, and do eastern massage, all of this helps.I have to use vibration machine every day, use massage machine on acupuncture points, drink heaps of herbal tea, low gluten and dairy diet. I have to take aspirin nearly every day. I also see an osteo and a psychologist. I manage the pain most of the time, but the fatigue is not ignorable. I can't work any more than 10 hours a week and I have to sleep and meditate in day every day. If I get stress, it directly makes it worse. It effects my brain, memory, and proprioception. I'm still on waiting list for rheumatologist. I live in Australia.
Boncha. Your story sounds so similar to mine. I believe I developed fibromyalgia after a very big trauma at age 13. I am now 50. It has been a very long and lonely road. The fatigue is something that people who do not have it, cannot seem to understand. I'm wishing you the best
I've been living with fibro for about twenty years. Heat, aspirin, stretching...and I smoke pot. Lifechanging. I learned early on that most of us afflicted with this have a history of trauma. The body/mind connection is so powerful...😐
miapdx I’m 68 think I agree mine started when lost my mum 1984 but only got diagnosed 6 years ago I’m also on diazepam have been for years drs tried weaning me off have cbd oil but not strong enough here In England illegal taking gabapentin but does not completely help reading lots about side effects of it lost my husband 3 years ago and my grandson was killed jan 2018 he died on my late husbands birthday so having bad attacks but won’t give up I do so miss my grandson so my pain is nothing compared to my daughter loosing her child sending you kind regards you sound young bless you 🙏
I've had it for 12 years now. I don't have a life, I just exist. This has been the worst week in several years. I don't know why. It just decided to try to kill me this week. It started me thinking about the last twelve years and all the reading and research I've tried doing. In 2011, I was diagnosed with ITP and was put on Prednisone. It didn't help the ITP (eventually had to have my spleen removed), but my Fibromyalgia symptoms went away. I'm a member of an online support group, when I asked if anyone had ever taken Prednisone for any reason and did it help their fibro symptoms, THEY ALL SAID YES (hundreds of them). Yet when you ask a doctor or try to look it up online they say Fibromyalgia isn't an inflammation disease and that Prednisone won't help. But it DID! I'm living proof it helped. Prednisone a synthetic hormone that is very similar to cortisone....and helps inflammation. So if fibro isn't inflammatory, is it a hormonal? I know fibro has something to do with adrenal glands and the adrenal glands produce cortisol. I know when I got off Prednisone I had to wean as to give the adrenal glands a chance to start working on their own again. I know when I got off of Prednisone, the fibromyalgia came back with a vengeance. So what is the connection?
My eye dr "diagnosed " my fibro. He, and my dentist, diagnosed me with Sorjernes (exessive dry eyes, mouth etc) . 3 years ago he said "I think you have fibromyalgia, go see this person". Changed my life. I still have pain BUT I 've learned some coping skills that can sometimes lesson the pain. My earliest memories of fibro pain was when I was 11 - 13. I was told it was growing pains. I'm 62 now.
+Michele Nakamura oh wow- that’s amazing your eye doc diagnosed it. I made some other videos about fibro and hope it’ll help: What Is Fibromyalgia? A Doctor Explains: th-cam.com/video/iO4grsq0hQM/w-d-xo.html What Causes Fibromyalgia? A Doctor Explains th-cam.com/video/VBUqngxexlY/w-d-xo.html How is Fibromyalgia Diagnosed? th-cam.com/video/DBvMn3jCKV0/w-d-xo.html The Best Treatments for Fibro Pain th-cam.com/video/ywGvGGx4jfE/w-d-xo.html
Sjögren’s is an autoimmune disease that can be primary or secondary to Lupus, RA and other autoimmune diseases. Sjögren’s can also be life threatening attacking lungs and other organs. Sjögren’s is horrible disease that causes daily struggles. I have lupus with secondary Sjögren’s, fibromyalgia, autoimmune lichens sclerosis and much of what they can bring. Hope you find some comfort in your daily life. You’re brave
I have sent over 15 years trying to figure out what was wrong with me finally going to the second RA specialist. They asked if I had heard about Fibromyalgia. That's was it was, now two years later I am working on trying to find out how to get some relief. Thanks for spreading the awareness.
@@DrJenCaudle During the first two years of me having it, I made myself walk, even if it was literally just around the block. I started swimming again eight months later, even though I would totally collapse in bed the following day. And, two years ago, started to get back into the Flute. I could only do ten minutes at a time. Then, I slowly built up to a half-hour. Sometimes, I can do up to fifty minutes of Flute practice.
In all my life, every Primary Care Physician has greatly disappointed me. Most of them make it very very difficult for patients to seek the proper care and treatment. Most of the time, they are clueless and resort to bullying / ridiculing you since they are uneducated and unable to diagnose. Thank God for specialists, but it is truly a painstaking journey until getting there.
I am currently 68, however, when I was young, in High school my menstrual periods were so bad, that I would pass out on that day. We only had male gynecologists in those days, and they patted my hand and said that they knew how I was feeling. 🙄. Right. 😂 It wasn’t until many years later that research was done to really get to the core. Same thing here. Glad that doctors are finally starting to recognize this horrific condition that generally affects women. So, if you have medical issues don’t let the medical establishment label you as crazy. I am now in need of caregivers, as I was exposed to toxins by being a flight attendant. It’s taken years of being shuffled about to get to the root cause. More to my story, but enough for now,as this is specific to Fibro. Good luck suffers. 🙏🏼💜
Good to hear you're not the only one with Fibro & a similar story. Years of being told its in your head, years of testing, doctors & misdiagnosis, and finally finding out it's fibromyalgia & it's chronic with such little research, few medications that only treat some of the symptoms & a lifetime of having an invisible illness. Don't give up if I can start to get better I'm sure anyone can.
My daughter is only 33 right now and has struggled with ALL these symptoms for too many years and still is. Same story!! She finally got diagnosed with fibromyalgia a few weeks ago. She started having problems in her late teens and it progressively got worse. She has no quality of life, her 4 year old son is missing out on quality time with mom, she can't work. We are still hoping for improvement so far there are still too many bad days. Its been really taking a toll on our family life!
It took 10 years for me to be diagnosed. I had Septic and Toxic Shock simultaneously in 1992 due to a hospital borne bacteria I contracted during surgery . On the journey to a diagnosis I went through upwards of 20 exploratory surgeries as well as having every expendable organ removed. Due to permanent damage to my immune system I have autoimmune diseases along with Fibromyalgia such as Psoriasis, Crohn's, Psoriatic Arthritis, Rheumatoid arthritis. I was forced to retire early at 48 years old. My doctor's have told me that it took so long to get the proper diagnosis primarily due to the survival rate of less than 1% in 1992 for someone who had sepsis shock and toxic shock. Therefore, there was no data available in reference to the long term effects of the condition. I am so thankful first to God and then to my doctor's for not giving up in their plight to give me an accurate diagnosis. As I get older it is getting increasingly difficult to get out of bed some days. I encourage anyone to not give up searching for a diagnosis and treatment.
I searched for years and had the same experience. Doctors just looked at me like I was just a complainer. I was tired of continuing to go to Doctors. My husband finally found a good Rheumatologist and I finally found relief.
Hello Doctor OZ, My name is Michael, and I want to add to the list of middle aged men that chronically suffer from Fibromyalgia, and like these patients, For Decades I've have multiple treatments of all kind (Even Back Surgeries)to see what was wrong with me and the Doctors found nothing. Just thought I would let you know...thanks for sharing and I'm so glad that you are here to put it out there, to let the world know what it's all about....Thank you very much and God bless you!
I’m 19 and I feel like I’m way older. Took multiple hospital visits and many doctors appts and tests to figure out I had this. I’ve had severe pain and all of these other symptoms since I was around 12 or 13, but they contributed it to growing pains. It’s a hard road but I hope one day I’ll be able to manage it
@@nadiatarannum5007 doctors are thinking I actually don’t have this anymore and it is something more related to my back pain. Don’t understand why it’s still tricky to figure out many years later but this is a rule out diagnosis when all tests come back clear
Its refreshing to hear a medical professional speak about this condition with passion. Wanting to help patients and bring awareness. There are far too many medical and health professionals that medical gaslight when you have Fibromyalgia or similar.
Pooperscooper Pooperscooper yes they took ages as have osteoarthritis and bad nerves and fybo so they just thought was my anxiety it hurts it’s nasty for anyone and I’m 68 bless the young people I know it is so debilitating for anyone
When I thought back to when my symptoms started, it went back way back to my childhood. It’s sad to suffer as long as I have with no medical help until 4 years ago.
Gosh I’m so sorry to hear this. I made other videos on fibro and hopefully they will help: What Is Fibromyalgia? A Doctor Explains: th-cam.com/video/iO4grsq0hQM/w-d-xo.html What Causes Fibromyalgia? A Doctor Explains th-cam.com/video/VBUqngxexlY/w-d-xo.html How is Fibromyalgia Diagnosed? th-cam.com/video/DBvMn3jCKV0/w-d-xo.html The Best Treatments for Fibro Pain th-cam.com/video/ywGvGGx4jfE/w-d-xo.html
My 15 year old daughter was just diagnosed with amplified musculoskeletal pain syndrome. This is what fibromyalgia and chronic fatigue syndrome are being called in childhood. The doctors say it may be reversed, since she has 10 years before full neurological development is complete.
They (the doctors) forget we men have it as well, but it’s a disease that doesn’t care about gender or age, at 42, I have been battling this for over a decade, we are all the over looked suffers
You know what - you’re right. We DO often forget that men have this condition as well. Thank you for bringing this to light. I made some other videos on fibro- hope you’ll take a look: What Is Fibromyalgia? A Doctor Explains: th-cam.com/video/iO4grsq0hQM/w-d-xo.html What Causes Fibromyalgia? A Doctor Explains th-cam.com/video/VBUqngxexlY/w-d-xo.html How is Fibromyalgia Diagnosed? th-cam.com/video/DBvMn3jCKV0/w-d-xo.html
Andypandie Land you’re not alone! I’ve joined a couple support groups on Facebook, it helps at least to know there are other people out there that understand it.
I’m surprised that more do not know drs are doing this. I have had years of drs telling me I needed to get a psychiatrist or I was faking. I’ve had fibromyalgia since age 27 and I’m 53 now. You do have to advocate for yourself and I also brought my family to a dr appointment. I love this dr!
Wow those are really great suggestions! You’re right about all! Please take a look at my other video on fibro as well: th-cam.com/video/iO4grsq0hQM/w-d-xo.html
It took nearly 15 years of various drs and tests before I received my diagnosis. Even years later I still fight to get help since many drs do not acknowledge fibromyalgia is a actual diagnosis.
I came down with fibromyalgia after I had my gallbladder removed. I had a difficult recovery, but once I recovered shortly after this became my life. I pray for all of you who suffer from this horrific disease!!!!
It took me five years to get to a rheumatologist. Same thing, after seeing my records from my MD, seeing me, he said “this isn’t all in your head. I think I can make help you feel better.” I burst into tears! He helped me get my life back! Bless you, dear Doctor Darvish!
Yes, i hear you. I'm in the same predicament for the past year, going thru test after test with no results. Still in the process of finding the right treatment for me. Never give up.
Oh no! And yes, never give up! I made other videos! Hopefully these will help: What Is Fibromyalgia? A Doctor Explains: th-cam.com/video/iO4grsq0hQM/w-d-xo.html What Causes Fibromyalgia? A Doctor Explains th-cam.com/video/VBUqngxexlY/w-d-xo.html How is Fibromyalgia Diagnosed? th-cam.com/video/DBvMn3jCKV0/w-d-xo.html The Best Treatments for Fibro Pain th-cam.com/video/ywGvGGx4jfE/w-d-xo.html
I’m 30 yrs old and I suffer from fibromyalgia.(10 years now) . I was finally diagnosed w FM in 2016 by rheumatologist . My PCP still does not believe me . They just look at my age and say to me “you’re too young” . I had a previous “doc” tell me it’s all in my head.and that I should see a psychiatrist. I changed my PCP that same day, That really hurt my feelings I’m in pain EVERYDAY😢
I literally got diagnosed today and I’m 27, the specialists literally said I’ve got this condition. I’m so shocked because mine is not so much pain, mine is sleep disturbances and feeling weak all the time with minor joint pain...I’m literally praying for healing
It took me a few years of all sorts of specialists before I was diagnosed. People think its fake. My response is if I was going to fake an illness dont you think I would fake one people believed in? Ugh. Its incredibly sad we have more support online with people weve never met than those who know us personally.
these physicians are doing what chiropractors and massage therapists have been doing for ages! Now they finally realize that it is very important to integrate these techniques.
I started symptoms at the age of 14, they tested me for everything because they thought I was too young. I was finally diagnosed in my late twenties. Constantly in pain, but I try to have a positive mindset, just to get myself out of bed and be productive.
, thanks to Dr omobhude who cured me of fallopian tube blockage and fibroid with his herbal tuber cleanser. My marriage was on the verge of collapsing, because I was unable to bear a child for my husband. Until I came across Dr omobhude recommendation on line, and I Am joana, thanks to Dr omobhude who cured me of fallopian tube blockage and fibroid with his herbal tuber cleanser. My marriage was on the verge of collapsing, because I was unable to bear a child for my husband. Until I came across Dr omobhude's recommendation on line, and I contacted him. And he administered his herbs on me. I now have a child I can call my own. In case you want to contact him for a similar problem, or all other issues, you can reach him through his email: dr.omobhude1@gmail.com or call him on +2349050360605 contacted him. And he administered his herbs on me. I now have a child I can call my own. In case you want to contact him for a similar problem, or all other issues, you can reach him email at dr.omobhude1@gmail.com... Or whatsapp +2349050360605. facebook.com/Dr-Omobhude-herbal-home-107138204797291/
I was diagnosed in the 90s. It has varied in severity. Finally I have referred to a chronic pain clinic in our area. I am graduating from the program tomorrow. After 10 weeks, I am finally feeling like the old me. I was really in bad shape. Spent the last year severely depressed. With addition of Lyrica, and treatment I feel able to manage the symptoms. Thank you Mary Freebed, Grand Rapids, MI
, thanks to Dr omobhude who cured me of fallopian tube blockage and fibroid with his herbal tuber cleanser. My marriage was on the verge of collapsing, because I was unable to bear a child for my husband. Until I came across Dr omobhude recommendation on line, and I Am joana, thanks to Dr omobhude who cured me of fallopian tube blockage and fibroid with his herbal tuber cleanser. My marriage was on the verge of collapsing, because I was unable to bear a child for my husband. Until I came across Dr omobhude's recommendation on line, and I contacted him. And he administered his herbs on me. I now have a child I can call my own. In case you want to contact him for a similar problem, or all other issues, you can reach him through his email: dr.omobhude1@gmail.com or call him on +2349050360605 contacted him. And he administered his herbs on me. I now have a child I can call my own. In case you want to contact him for a similar problem, or all other issues, you can reach him email at dr.omobhude1@gmail.com... Or whatsapp +2349050360605. facebook.com/Dr-Omobhude-herbal-home-107138204797291/
I’ve had this condition as a child and wasn’t diagnosed until I was 27. It has taken a lot from in life. I can’t get out of bad some days . I’m in non stop pain .
I’m a bit over weight and some people will tell me my problem is the weight.. “ if you loose some weight you will feel so much better and the pain will go away” I’ve also overheard the same people refer to me as a hypochondriac and that my only problem is I’m overweight .... it hurts to think that these people think I’m making this up 😢
I was told for many years it was my diabetes until 2019 I finally found a doctor that ran extensive tests and found it. It's frustrating and causes more tension and stress to the body which causes anxiety and depression and when you look fine on the outside people think that you're just trying to get attention or making it up. Thank you for bringing awareness to this!
, thanks to Dr omobhude who cured me of fallopian tube blockage and fibroid with his herbal tuber cleanser. My marriage was on the verge of collapsing, because I was unable to bear a child for my husband. Until I came across Dr omobhude recommendation on line, and I Am joana, thanks to Dr omobhude who cured me of fallopian tube blockage and fibroid with his herbal tuber cleanser. My marriage was on the verge of collapsing, because I was unable to bear a child for my husband. Until I came across Dr omobhude's recommendation on line, and I contacted him. And he administered his herbs on me. I now have a child I can call my own. In case you want to contact him for a similar problem, or all other issues, you can reach him through his email: dr.omobhude1@gmail.com or call him on +2349050360605 contacted him. And he administered his herbs on me. I now have a child I can call my own. In case you want to contact him for a similar problem, or all other issues, you can reach him email at dr.omobhude1@gmail.com... Or whatsapp +2349050360605. facebook.com/Dr-Omobhude-herbal-home-107138204797291/
@@DrJenCaudle i have so many different symptoms regularly that i feel like a hypochondriac...Dr Jen do you know of any natural remedies that help this?
loonylinda good question- it’s really about addressing the underlying symptoms you have. But first, I say find another doctor! One who listens and can guide you through this process!
Wow I was diagnosed one year after my complaints begin, I got worse, my primary care doctor sent me to a doctor for allergy test, the doctor refuse to do the test, he stated that I needed to see a psychiatrist. Many doctors and many diagnosis I'm still hurting but I've taking control with much prayer. Ten years later I'm managing. God speed to all 🙂
I have fibromyalgia and I have Hashimoto's disease. It took me almost 3 years and 3 endocrinologist and two cardiologists and two primary care doctors before I could find anyone that would even diagnose my Hashimoto's let alone fibromyalgia. Kept telling them something's wrong something's not right listed all the symptoms and they treated me like this lady's doctors did her. Finally my new cardiologist mentioned it sent me to a new endocrinologist and I was diagnosed with both. It's amazing. That we have to stay on top of doctors and work so hard when we feel like crap just try to get help. Glad this lady was able to get help finally
It took several years to be diagnosed with fibromyalgia and several different Drs. I have a very high pain tolerance, I play competitive softball with cracked ribs, extremely taped up, during a tournament. We went undefeated all year and I wasn't going to let the team down. I have finally gotten to the point I have to have pain meds to get through the day. I'm in my 50s now, I'm worried about my quality of life as I get older
Oh no! Please try to find a doctor who believes you and wants to help- fibro is real! Here are some videos that might help: What Is Fibromyalgia? A Doctor Explains: th-cam.com/video/iO4grsq0hQM/w-d-xo.html What Causes Fibromyalgia? A Doctor Explains th-cam.com/video/VBUqngxexlY/w-d-xo.html How is Fibromyalgia Diagnosed? th-cam.com/video/DBvMn3jCKV0/w-d-xo.html The Best Treatments for Fibro Pain th-cam.com/video/ywGvGGx4jfE/w-d-xo.html
I had a high pain tolerance until I was hit with fibromyalgia in my 40s. I had 7 children naturally and had no problem handing the pain. Now I’m hypersensitive even to being bumped into.
Straight up pain...not soreness. My sister recently took a class on physical therapy for Fibromyalgia and she was shocked...that I never lied about it. Also, if ANYTHING happens to you on top of the Fibromyalgia, it's extreme pain, not soreness. I damn near fainted in the ER because I had to give in and go. I had a fungal infection causing a fistula from my first ever yeast infection at 42yo. Having to breathe through it all was horrific. I bring my family too. They helped explain. It started for me right after my 4th surgery. A year after the surgery and I couldn't understand why I couldn't get my feet under me. The first rheumatologist didn't believe in it and tried to het me to use Voltaren all over my body to deal with it. Rheumatologist #2 was shocked it took a year because I was 100% on all the identifiers.
If you’ve been told you have Fibromyalgia or Chronic Fatigue Syndrome, find a doctor who is very familiar with Lyme disease to rule that out. My fibromyalgia and chronic fatigue were actually being caused by Lyme.
I have suffered with this for more then 40 years I'm 65 no one could tell me what it was. Finally I went into a research program and was excepted and diagnosed with Fibromya.
Katrinka Harris I’m so glad that you received help! This is such a great start and I’m hopeful! Thank you for sharing. Please stay in touch by subscribing to my channel- I’ll be posting more fibro videos soon!
Yes absolutely. I made a few other videos about fibro- hoping it might help you and others: What Is Fibromyalgia? A Doctor Explains: th-cam.com/video/iO4grsq0hQM/w-d-xo.html What Causes Fibromyalgia? A Doctor Explains th-cam.com/video/VBUqngxexlY/w-d-xo.html How is Fibromyalgia Diagnosed? th-cam.com/video/DBvMn3jCKV0/w-d-xo.html The Best Treatments for Fibro Pain th-cam.com/video/ywGvGGx4jfE/w-d-xo.html
I have fibromyalgia. After my primary care physician ruled out other possible diagnoses, she referred me to a rheumatologist, who diagnosed me by testing pressure points in my back. I almost went through the roof! Treatment is multifaceted, including medication, physical therapy, chiropractic, supplements, diet, and developing healthy relaxation habits. I am now active again, but I have to continue treatments and a balance of work and rest in my life to keep fibro under control.
thank you so much for your comments and i'm glad you're seeing the appropriate doctors and medical care. hang in there and glad you are working to keep your fibro under control
Thank you Dr. Jen. I love your videos. I have had Fibromyalgia for 32 years. Symptoms began after the birth of my oldest daughter...the pregnancy, labor & delivery were extremely rough. It took over 20 years to get a diagnosis. I was tested for everything under the sun. At first the symptoms were relatively mild (by comparison to now) but the symptoms definitely had adverse effects on my daily life. With each decade it has become a little worse. Now in my 50s, I am currently at a peak with Perimenopause (actually, pretty close to Menopause...9 months with no menstrual period...crossing my fingers that it's going to be officially over in 3 months), so...I am literally a hot mess right now & have been for the past 4 years. In addition to ugly body aches (particularly from the lombar region of my spine all the way down to my feet...my feet are cramping as I write this), sleep disorder, anxiety/panic disorder, TMJ, Restless Leg Syndrome, IBS, etc...I now have Hot Flashes, weight gain, Rosacea, my hair is drastically thinning (except for my face...😞) vaginal dryness & I've had more UTIs in the past couple of years. I am not on very many medications like most Fibromyalgia patients I know, I have taken that route of treatment for many years in the past & for me, the meds caused more problems than they solved so I am taking the bare minimum as needed & just doing what my body tells me to. If it says sleep, I sleep. If it says kick back, relax, put your feet up, I do it. I no longer care about the ignorant & insensitive judgements of others because they don't live in my body or pay my bills. I find that stress & negative emotions and/or thoughts are enormous triggers for flares. So...reducing stress is a huge priority. It may seem selfish to others, but it is imperative to my physical & mental well-being & I hope anyone who has Fibromyalgia that reads my extremely long comment draws confidence to make taking care of themselves a priority & the ability to brush off the negative attitudes & hurtful remarks of others. And for people who don't have Fibromyalgia but have a loved one that does, my advice is to be patient & compassionate. Don't tell them all they need is exercise more or to get out & socialize more or try this or that for their pain. Believe me, Fibromyalgia patients have tried MANY things to ease their suffering. If you are a newly diagnosed Fibro patient...get yourself a good Rheumatologist. If you suspect that you or a loved one has Fibromyalgia, see a doctor. Keep searching for a doctor until you get a diagnosis for your symptoms, don't give up. The right doctor is out there. And join a support group. Again, Dr. Jen, thank you for your videos, I love watching them & enjoy your positive messages, receiving the information & seeing your beautiful, face. I wish you were my personal doctor.
This is my story! It look me almost 15 years to be diagnosed! Doctor after doctor just pushed me to the side and family thought I was trying to just get attention. It started after my 2nd son was born. I was 30 years old and I'm now almost 50 and still suffer 😞 The depression is almost as debilitating as all the other symptoms that come along with Fibro!!!
Sounds about right. I started having fibromyalgia symptoms after head on car accident that really messed up my neck and it took about that long to get diagnosed.
My Fibro started after complications from childbirth where I needed a 2 pint blood transfusion. I have since been told I can no longer donate blood. Do doctors know something that they are not telling us, as it relates to blood? I feel in my case they should try the medication to stop organ rejection since this donated blood was not originally mine as given to me by God. I feel this disease is my body fighting foreign cells.
I've been suffering of constant back pain for 3 years daily! I walk with a cane sometimes because it gets worse. My hips hurt too. I've had unexplained IBS ( told oh it's probably stress). I have anxiety, derision and PTSD. 4 years ago I had seizures, out of the blue...again, unexplained after all the testing. For the last 2 years I've been suffering of heat and sweat rash reactions . I have a mix of insomnia and not wanting to get out of bed, tired, no energy. I feel like a shell of a person, I don't recognize myself anymore. 😥
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I’m 65 years old and have battled with fibromyalgia for most of my adult life, they tried so many antidepressants on me that never worked, I was on pain pills for years that helped me but I got off them 2 months ago, but I take alot of ibuprofen and pain patches, I do peroxide baths and take food grade peroxide in a drink everyday. I’m trying to exercise and do whatever I can to help the pain. I take naps everyday because of the fatigue. It just hurt being treated so badly by Drs. throughout my life because they didn’t know how to treat it and assumed it was all in my head. I hope now they can help people. Thank you
Africa's, doctor's like DR RORPOPOR HERBAL on TH-cam who cured I and my boyfriend fibromyalgia❣️ we have been having this sickness for 4 year's now, but with the help of DR RORPOPOR HERBAL on TH-cam we are free 😊😊
Diagnosed with fibro and cfs about 2 years ago, it takes away your life, people just don't understand that when I say I'm having a "good day" it's not the same as their idea of a good day! I'm still in pain, I'm still tired, I'm still struggling
Oh no! I’m so sorry to hear - and it really is so tough! Would love you to take a look at the other videos I have on fibro: What Is Fibromyalgia? A Doctor Explains: th-cam.com/video/iO4grsq0hQM/w-d-xo.html What Causes Fibromyalgia? A Doctor Explains th-cam.com/video/VBUqngxexlY/w-d-xo.html How is Fibromyalgia Diagnosed? th-cam.com/video/DBvMn3jCKV0/w-d-xo.html
I hear that! When I do too much and get myself in a flare, it's like I have a limited budget of energy. Ok, what am I going to do: Fold laundry or take a shower and wash my hair? Go to work and earn money or clean the house. You pick your battle.
People that dont have fibromyalgia will never understand our pain and struggles . As I'm watching I'm in severe pain.
Me too- people think you are making it up. No compassion.
b@@Raminakai that is until they or someone they love gets this awful life sucking disease!
I have found that educating yourself and finding a good compassionate and well educated physician is key to how your life unfolds!'
I
@@tauntasmom
I thank you for your kindness and comments.
Unfortunately, the “health care professional” I went to was not helpful and wanted to put me on mental health track.
I have a lot going on hormonal fluctuations, ( menopausal) life stress, all the usual: past trauma experiences as well as physical issues from accidents, and from backbreaking work with folks with wheelchairs etc that required my moving people by myself too often. My job also required dealing with a few unpredictable people that traumatized me further. I have found many of my coworkers had trauma in their backgrounds. I was able to leave this job due to my husband’s support .
I had a lot improvement from taking Tumeric, eating Whole Foods as often as possible, and reduction in sugar.
I still have flares, and do not handle stress or changes in routine well- my nervous system seems on high alert - and am working on calming it down- which is a continuous practice.
Deep breathing is a key for me. My fear response is ingrained- hyper alert.
I tend to hold my breath and shallow breath when stressed which is so hard for me to undo. I keep trying. I am looking forward to the calming work to be my usual self.
Another thing is pacing myself. I also have to balance others expectations vs. what is best for my being. Sometimes , I push it and other times I give myself a break. God Bless you!
So true, if you do not have Fibro. You will never ever know what we go thru. Nothing like it.
Me too. I cant sleep and In pain so I'm looking for answers and cam across this
Stress makes my fibromyalgia worse. It took years before I got diagnosed with fibro.
Same here 3 years of worrying and every test you can think of before I got a diagnosis.
Stress, is STRESS. U know we all handle stress well, but STRESS the moment we wake and realize what we thought we could to today when we went to sleep last night, isnt gpi g to get done.. THAT is pur stress. DOC!
This mamipulation and stretching and MASSAGE is the best decense.. Pt DONT DO IT ENOUGH.
STRENTHENED MUSCLES, RETRAINED MUSCLES HAVE LESS PAIN. OVER WORKED AND UNDER USED CAUSES MORE.
Cause it roots in psychological conditions.. This thing is so spread that doctors as neither psychologists imagine!! They would freak out
YOU PROBABLY HAVE LYME DISEASE, NO SUCH THING AS FIBRO!
I have had fibro for 22 years. It was secondary to a traumatic injury in nursing. My heart aches for everyone who faces this syndrome. I had to fight my whole time for this diagnosis, no doctors believed me. It was so frustrating. I was so happy the medical community finally acknowledged it and me. I still struggle as a disabled nurse at 77 yrs of age. Be your own advocate n keep moving, don't ever give up, please!!!
I had intermittent fibromyalgia for a few years before being injured 3 times as a psychiatric nurse. Then the fibromyalgia became constant. In the past 10 years it hasn’t let up at all. So sorry, fellow nurse, that this happened to you.
This is Polymyalgia getting fixed using this approach : th-cam.com/video/ptksH-nb_qA/w-d-xo.html
I'm so sorry! There time's over yrs when big stressful thing's woulybd happen, I'd end up in bed, I was exhausted. Just recently, I was told I did have fibromyalgia. I had gone to the Dr. I just hadn't put that together in mind.
And also chronic fatigue syndrome 😢
15 years fibromyalgia
I have a degree in the medical field and when I finally got my fibromyalgia diagnosis, I didn't believe it because of the stigma around it. I thought I had something much more serious. Once I started doing research it all made sense. Now I know fibromyalgia IS that serious. The worst part for me is never being able to fall asleep at night, and then never wanting to get out of bed in the morning. And my symptoms always flare up real bad when I don't have enough sleep. Never ending cycle
Same here! That is my biggest struggle no sleep then all symptoms get worse and it’s a cycle 😞
Yes it’s horrible. Iam 60 and have suffered from fibromyalgia since my twenties and now also suffer from MS and degenerative disk disease and arthritis as and depression and anxiety that goes along with it. I can relate. Fibromyalgia is serious
@@kathleengivant-taylor2277 same with me. Ive have back surgery neck surgery knee surgery too. My body is wrecked. Few people understand because you look fairly normal on the surface.
@@dianehernandez2764 yes unfortunately that is the case alot
My life was turned upside down.14 yrs and yes it deteriorates with time.i am single working mum who had to forcefully quit my job.Bills ran up,Our home dynamics changed overnight.From an energetic, corporate woman to a almost cabbage,that family members said it was in my head and one even swopped my meds which I wasn't aware of and I suffered severely for one week after that relapse.i pray a lot when I'm feeling better.My condition is improving in Jesus Name.i refuse to be bond in this body.im trusting God for complete healing,may sound Cleche but I believe.I have more than halved my med in take so far.God is Goof,but this thing is a real suffering guys.
I started to feel pain in 2000 and I get really diagnosed in 2006. This is the most cruel lonely illness. 💜💜💜💜
Danielle Melli I am so so sorry to hear this :(. Hang in there
My chronic pain is on my knees down 24/7, since 2015 the chronic pain spread to my both hands. I’m not able to work due to the intense pain in the hands. It’s hard to do anything,we need hands to function normal,not my case. I get approved for disability and I won in the first hearing with the Judge 👨🏻⚖️. I lost all “friends “ and life outside. We need to be extra strong to someone times put a pretend face of everything is ok with us,but the reality is we are crying 😢 in side duo to the excruciating pain.
Me too same yr! June 2000. Post traumatic brain injury due to x fiance and surgery to cervical spine sure to the trauma. So, trauma + trauma= FMS/CFS.
People don't understand the depths in which this changes our lives. It affects every aspect. It affects us not only physically, and emotionally, but financially and socially. One of the hardest parts is how isolating it is. There's days when we can't shower because of the pain or the fatigue. Without social media I would be completely cut off from other people. Wouldn't it be nice if they were actually looking for a cure
HiSomebody TrackingMuch? Same here! I’ve lost so very much!
I’ve had fibromyalgia since June of 2018. It’s life changing. All the things you took for granted is taken away in a day
Oh wow - how are you doing mowv
@@DrJenCaudle I have been diagnosed with fibromyalgia for about 25 years now and I was diagnosed with Lymes disease and can’t take antibiotics because I am allergic to almost all of them so the Lymes can’t be treated but I am also on cancer meds. The amount of pain I have every since day is absolutely horrible. I feel like I have the flu constantly. I’m desperate! Any ideas what I can do to have better quality of life. Cause mine is not good quality at all !
Went to many Doctors until l finally got a diagnosis! I had a ChildNet certified Childcare. I had to go on disability. My husband had left me.
That was 30 years ago. I still get flare ups. Spring and Autumn times are the worst. I look ok. Not complaining any longer, because friends & people don’t like negativity! 😢🙏
Went to many Doctors until l finally got a diagnosis! I had a ChildNet certified Childcare. I had to go on disability. My husband had left me.
That was 30 years ago. I still get flare ups. Spring and Autumn times are the worst. I look ok. Not complaining any longer, because friends & people don’t like negativity! 😢🙏
@@terriprobst4680 I had a rheumatologist say I have fibro, but it just means they don't know why you have pain. I changed my diet and went on a carnivore diet, but with some fruit. I also take "ancestral supplements" and some "heart and soil" supplements and my health has changed so much. God bless you I hope this helps!
This is my story...I'm in tears...
Check Dr David Duarte ,holistic hindu medicine ,cure .have nothing to loose everything to gain apanish/english
Me tooooo it's so bad right now and this video popping up just calms my anxiety down just a little bit...thank God we know what it is!
look for the natural cure. you tube. dr josh axe. keto diet fixes.
😭
Mine too☹️. I'm suffering from pain since 4 to 5 years. Like you said, nobody believes. I used to take painkillers which temporarily helped. Again the pain comes. Stopped taking pain killers then and tried to bear the pain. But I saw that walking helped me a lot. I had to stop walking due to some injury and the pain started again. Now started an ayurvedic treatment. Hope and pray that it helps me. God bless us all to fight this pain and find a solution for a painfree life.🙏
Doctors have no clue! How painful the body is! It becomes in bearable to even walk.
true, I loss my life as I knew it,12yrs ago.and it only getting worse.. the fatigue is my major complained...sometime I wonder if im better off dead... now to top it off the only med that was working, was taking away from me..
Yes I know how you feel I was in a wheelchair for 3 months had to get physical therapy
@@millierodriguez600 try supplement D-Ribose capsules, helped me!
Good luck and God bless you
Ive had fibro since I was 18 wasn't diagnosed till I was 28 I am 47 now, and last yr I was diagnosed with CLL a kind of leukemia , My neck and back are worst, I had major back surgery 8 yrs ago and it was unsuccessful and no one realizes how bad I feel because I look normal, oh your just depressed get over it they say
I totally understand what you go threw i feel the same but we just have to be strong
It took me 5 years to get a diagnosis. I was always told, “you’re too young to be in this much pain” and they would laugh and make me feel like I was crazy. This video really hit home for me
Katie Abdulqadir I’ve had this happen, it’s so infuriating. Once I was painfully making my way down some steps with a walking stick, and an older man passed me coming the other way. He said “You don’t need that stick, you’re young.”. I was 27 at the time, and had already had fibro for thirteen years with constant pain. Jackass.
Another time, at age 29, I was getting off a train with some suitcases, which my friend was struggling to carry for me. We attempted to ask the porter for transport along the platform with his cart, and he said, angrily: “This is for disabled people, not luggage.” I told him I WAS disabled and he was prejudiced. Another jackass.
@@Melissa.Garrett
Exactly!
When I said “I can hike 5k but really ache the next day and day after that”, the rheumo I was sent to said “well, you don’t look like a fibro patient”. Apparently I had osteoarthritis...and if I’d brought crayons and paper she would’ve been asked by me to draws fibro patient! Years later now I still love hiking but 5k is a good week. Sigh.
I only listed a few symptoms and my doctor immediately said "that sounds like fibromyalgia" there are good doctors out there!
This touched my soul. I was diagnosed over 20 yrs ago, and have been in a “constant state of flare up” for over 10 yrs. I have had to fight so hard to find a doctor who would actually help me, and see me as a patient in chronic pain. I’ve tried every alternative therapy there is out there, with no luck. I’m 37 and feel like I’ll be lucky to make it to 40. This is the worst thing I’ve ever walked through and wouldn’t wish it on my worst enemy.
RileyCai vlogs on my! I’m so sorry you are suffering so much. I am glad this video touched your soul though- I was hoping to reach as many people possible with it. Know that I’m saying prayers for you! Stay strong! Dr Jen
Yes I had tests after dr kim amazing doctor told me I had last year very painful some time like I just don't live because hurt s so 😔😞 God please help me God bless
To blame the patient is super common among doctors who claim to have no diagnosis .
I think so too.
I was diagnosed in 2000. But I have had to keep my pain to myself. I’ve actually had people tell me that no one can have that much pain especially since I don’t look sick. The only person I tell how I truly feel is my doctor. He was the best. If I needed anything - massage therapy, physical therapy, or meds, he would make it happen. He left and my new doctor has been very supportive as well. I consider myself lucky when I hear what others go through. You must be your own advocate!
it's so true that you do have to be your own advocate! you're absolutely right!
I agree some ppl think that it doesn't exist and severity of the pain and suffering due to it being invisible disease its real many think firbromyalgia suffers are imagining pain lazy etc all lies we know our truth pain is for real 😢but God is realer bigger by Jesus stripes we are healed praying for all whom suffers in daily basis from pain rather it be physically. Mentally, emotionally psychologically or even mixure let's stay strong keep believing trusting God 💪 firbro family God Bless 🙌 🙏🏽 ❤️ 💙
fyi: arms and legs are "sore" is a major understatement! they f-ing hurt like H E double hockey sticks!
Thats true.. i used to feel like hit by sticks early in the morning as i woke up.
@@harjotkapoor1201 a friend of mine does not have it himself, but he does try to understand, and anytime I have one of those "good old" flare ups, just to try and keep my mood up and joke around, he'll ask if I had another practice run at playing human speedbump on a bussy highway... and well, he's kinda right, that's basically what it feels like on the bad days...
Celery juice is curing fibromyalgia in many people
I’ve had fibromyalgia for close to 40 years! I feel like I’ve been hit by a truck when I have a full on attack.
SORE!! Get him....
Fibromyalgia, is a damn life sentence!
Mello Marley it feels like it
I have greatly lessened the pain with the protocols of Anthony William, The Medical Medium. It is the only thing that has helped. Seriously, I have improved so much. Check out his books and also his shows on soundcloud. It is caused by Epstein Barr Virus!
Mello Marley right!? three months my ass
😭
No, it's not! It took me three-long years (every single day of hot yoga) to heal completely!
To hear somebody actually say that it is life-threatening... YESSSSS!!! The pain and suffering ALL the time will break even the strongest. There are days when I don't want to live anymore but love life. Stay strong sufferers it's a horrible life no one understands unless they suffer the same.
It IS life-threatening. I'm sorry you struggle with this. ;( I made other videos on fibro and hoping they will help;
What Is Fibromyalgia? A Doctor Explains: th-cam.com/video/iO4grsq0hQM/w-d-xo.html
What Causes Fibromyalgia? A Doctor Explains
th-cam.com/video/VBUqngxexlY/w-d-xo.html
How is Fibromyalgia Diagnosed?
th-cam.com/video/DBvMn3jCKV0/w-d-xo.html
The Best Treatments for Fibro Pain
th-cam.com/video/ywGvGGx4jfE/w-d-xo.html
I don’t want to die, but I often fantasize about being placed under general anesthesia for a few hours so that I can feel nothing and actually get some rest.🙏
@@22585 I totally understand.. I often wish similar💞
You know I almost wanted to take my own life just to stop it cause I was undiagnosed over a year and told it was in my head but when I finally got diagnosed I literally felt like the world was lifted off my shoulders.
I totally understand you, I also have fibromyalgia and my body flares up to the point where you can see my tendons swollen or pulsation in my hand... sometimes I'm in extreme pain and there are times when I have difficulty walking. The pain is all over my body... and it's hard when ppl don't believe you until u can't actually move or when I am unable to walk.
3 doctor visits my ass. i have had this for at least 30 years and was finally diagnosed 3/20/2019. this has always been brushed off by the military health care doctors just like my endometriosis was.
I think the only reason it's being recognized at all, is because we now have more female doctors.
Spent 20 years waiting to find out what was wrong me. Pain that is so unbearable! Headaches so bad my hair would hurt! Diagnosed December 2018.
I was diagnosed in 1997.
Had been looking for an answer
for 20 years before that.
I'm so sorry for your horrible experience and those still seeking
answers.
@@carriegariepy4862 Yes! I know what you are talking about!!!
Fybromyalgia can qualify for VA compensation if it was missed during your time in service. Took civilian and military doctors 12 years and probably 50 + doctors visits to get diagnosed. There is so much associated with this condition like PTSD.
I tell my doc, I feel like my whole body is bruised 24/7 and can't handle being touched.
How about you ?
Do any of you feel like every muscle in you is bruised ?
Yes! Especially after a long workday my legs will feel as if someone has been using them as punching bags. It is so painful I also have alot of lower spine issues so combined with that it is brutal. I told my bf it is getting to the point where I'm not sure how much longer I can work full time hours.
Yes, this is exactly how it can feel.
I do !!! I tell everybody that how I feel and people thank am lying
All day every day.
Sometimes every shred of my being hurts. For the most part, I grin and bear it. I've had times that my precious child is leaning against me or hugging me and I am in SO much pain, but I suck it up because I want to be there.
As a young girl being diagnosed at 16 or younger (now 19) Fibromyalgia really put a barrier on my life. Trying to do daily things, family not understanding what’s going on. It can get frustrating.
That was really young. I was 38 and I am now 72 will be 73 in June
I was dealing with it undiagnosed till this year but im around the same age as you and I can remember that stress from my family calling me lazy and that it was just me. I hope people are more understanding about it now.
Her story is my story and I was a single Mom thru it all. I wanted to die so many times but being a mom I had to keep going
Jill Sandberg I’m so sorry you went through this ;(
Try D-Ribose capsules supplement,it helped me give you a boost of energy everyday .
Good bless you.
@Woman of the Quran Thank you for this! I've struggled with fibro for a long time, some things do help! Everyone has to do research and find what works, I'll look into this. 🙇🖒
@Woman of the Quran Thank you dear, do rest. Bless you.
I raised 5 kids alone with this illness on little or no child support. It was so hard and still brings tears when thinking about it. I am 69 now and realize God carried me daily. Now the pain puts me down all fall, winter, and spring. God bless us all.
Lets be real, the reason it took so long for doctors to take it seriously is because it didnt affect men as much as it affected women. The only reason they really started studying it is it was becoming an inconvenience on the lives of employers and husbands who werent getting the attention they were used to .
It's just like other illnesses, like the fact that most people dont know that the publicized heart attack symptoms are the ones that affect men, and that more women die of heart attacks because they dont know their own symptoms because they differ from men's.
Men who do have fibromyalgia also get the short end of the stick because it isn't common on men.
Yep, that's exactly right!
👏👏👏 100%
inkstainedgirl What Is Fibromyalgia? A Doctor Explains th-cam.com/video/iO4grsq0hQM/w-d-xo.html
I totally agree. I also believe more women get it is because we are exposed to more viruses via children then men. Not because we are weaker in some way. Women always are genetically stronger than men.
IT'S LYME DISEASE, NO SUCH THING AS FIBRO!
My life has been turned upside down because of fibromyalgia. I couldn't work, dance anymore and I've been an advocate for patients with fibromyalgia for years
I was diagnosed with fibromyalgia 4 years ago i struggle everyday and no one understands what i go threw its so hard.
has anything helped?! I am scared that there is nothing I can do and all the videos I have watched say lyrica is a terrible medication my friend with this disease has already been on 3 medications that did not help
Accupunture helped me. Couldn't walk. Now I can. I still have muscle pain in cold climates
I understand how you feel. My stomach also gets nauseous alot.. I've had to go home from work n even call out of work
We do here...Keep your self in a positive head space and if the people around you don't understand maybe it's time to make new friends, husband ect... no one knows till they have to go though it...💖trust me I have only 3 people who really understand.
@@lucretiz lyrica cut my pain in half.. so yes it helped a lot.. dont let them put you on pain meds... I was on them for 15yrs.i went cold Turkey on fentanyl,soma,morphine, I hated it.. I still take a very low dose of morphine but I also have 2 herniated discs in my back. But avoid them plz... if I took everything my doctor though at me I would be dead... plz be careful... lyrica isn't a narcotic..💓
Maybe these doctors should get a taste of Fibromyalgia...only then will they believe it exists!
Amen
No joke!
Exactly
from what I understand specific brain scan is only way to be absolutely sure.
Only Child life Sorry to say I have similar cramping and tendon pain. If I use my hands I get painful muscle fatigue and have to rest. It’s difficult to do every day tasks. I did get some trigger point shots in my neck and shoulders and it’s helped, but, I’m in pain over the rest of my body. This disease is brutal, 24/7 pain.
It's taken 15 years for me to be diagnosed. South Africa couldn't get diagnosis, was told it's in my head as well and I'm just always playing up not feeling well. It took moving to the UK to be diagnosed, am in such awe and appreciation for the doctor, physio and specialist who have helped me on the right path.
I live in Germany and I can't find a doctor that takes me seriously. I was even put in a mental clinic saying it's in my mind and that it's probably only depression. Only good thing that came out of it that they gave me early retirement because I never sleep which they could account for after being in the clinic for 6 weeks. I get restless legs and the pain is so unbearable that I just can't sleep. I am also constant drained of energy and full of pain 😢
Did you go to a Rheumatologist in S.A.I did here in S.A.39yrs ago was diagnosed with rheumatoid arthritis and fibro. Lucky I had the right Doc.
I am in bed right now in pain watching this. My legs are so sore. I feel like I've ran a marathon. 26 doctors later I was diagnosed. It's a challenging life, but I'm slowly learning to live with it. I'm doing tons of research, changing diet, and trying to keep stress under control. Trying!
Alicia Smith yes keep trying! I know it’s hard!! But keep trying!
I have been on Anthony William's protocol for over 3 years. He is called The Medical Medium. It is caused by Epstein Barr Virus. I am so much better now. Please check this out. You can heal!!! He has 5 brilliant books and free soundcloud shows.
Please try the keto diet. It has helped me a lot.
Try taking Magnesium. It works
Try researching ivermectin 12mg
I have fibromyalgia. I have nerve sensitivity where I can’t even stand my clothes to touch my skin. I can’t even stand massage therapy.
Me too...🙁
Same here. Some days it feels as if there is ground glass in the fabric of my clothing. Wearing *silk* base layers (long tops & bottoms under my clothing) helps a bit.
Does the pain gets any butter in the summertime?
Yes I wish I could make family understand that hugs hurt! It’s nothing personal.
I used to have extreme fabric sensitivity too. It's slowly gotten better, but I still wear mostly loose clothes and often have to change during the day to reduce pressure points. My biggest problem still is gut problems and bloating from IBS.
I’m struggling with fibromyalgia for 7 years now. I hope one day they truly find a cure to heal people.
I have had the diagnosis for 10 years. I am allergic to narcotics, so I’ve had to explore holistic ways of managing my pain. I am sharing in the hope that what I’ve learned may help someone else. I will say that I am taking gabapentin, but I’m on a very low dose (400 mg before bed) but that is the only medication that I take for my fibro.
Yoga is a biggie. The stretching that you get with yoga is important, but the breathing and meditation is just as helpful. It helps you to get in touch with the different parts of your body which in turn helps you recognize when a flare is coming on.
I use essential oils daily in a variety of ways. Topically: depending on what kind of pain I’m experiencing, I have coordinating oils that help. I spent a lot of time doing my own research on oils and how to use them properly and safely. I diffuse oils in every room in my house and in my office at work. If I’m in the middle of a flare, I will sometimes do a detox bath with epsom salt, baking soda and essential oils.
Every 4-6 weeks, I go for Chinese fire cupping. My fibro settles in my back so when I was first diagnosed, I would go for deep tissue massage thinking that would help. It didn’t, I would feel worse afterwards than I did before. Thankfully, I found a massage therapist who is very knowledgeable about how the body works and he informed me that traditional massage would not work for me and turned me onto fire cupping. He also does energy work on me and occasionally he will do acupuncture.
I have recently changed my diet and I’m amazed at what a difference it’s made! I’ve cut sugar, caffeine and carbonated drinks completely. I’ve lowered my carb intake dramatically and I’ve cut down on fats. This change has had the most dramatic results so far. I started my new lifestyle just before Christmas and I haven’t had a flare since. I can’t remember when I’ve gone 4 months without a flare in the last ten years!
I encourage anyone with the diagnosis of fibromyalgia to start your own path of finding holistic ways of treating your pain.
Cinda Odneal thank you for sharing!!
Thank you so much for telling your story 💕 A lot of helpful information 🥰
@@DrJenCaudle THANKYOU for believing us .I wish you could come to England and tell people about fibromyalgia.
Gillian Harper thank you so much!🙏🏾🙏🏾
One point you make; the wrong person trying to give you massage, if they're not up on fibro, can cause MORE pain. People don't understand, how touch can be painful. 😐
I have all those symptoms burning in the legs and my back also
Are you eating a balanced diet?
Years ago I discovered that eating high protein food. Helps the burning pain. Discussed it with my doctor at the time.. And he said neurotransmitters have something do do with the pain. May not be 100%accurate. But it was an observation. Give it a try. Eat a piece of chicken or something like that see if the pain lessons..
@@karenbrandwein4759 girl that's all I eat is chicken an beef I never eat sides or anything I just eat a bowel of meat maybe I eat to much protein lol
@@princessyeboach3698 ok. Just giving you a suggestion from my experience. Maybe you need some vegetables and fruit. Who knows. May be a piece of cocolate would make you feel better. It has health and mood benefits.
Just feel good princess . do what you can. Research the problem . every one is different. Have you seen a specialist. Rhematologists treat fibromyalgia.. It part of the speciality.
I'm also saw an infectious disease specialist. She was well known and treated the disease.
Actually she found things in my blood work. She said she was suprised. That the blood work usually doesn't show anything.
, you mean well, but it is a simplistic solution, to a complex, problem.
princess yeboa c h What Is Fibromyalgia? A Doctor Explains th-cam.com/video/iO4grsq0hQM/w-d-xo.html
When I first went to the doctor at 20 with complaints of hurting all over and being exhausted all the time, the doctor said I was just lazy. I spent the next 45 years proving I wasn’t lazy and I was so exhausted. The doctors I went to, and there were quite a few, dismissed me and said it was probably nothing. My primary care doctor finally sent me to a rheumatologist and I was finally diagnosed with fibromyalgia two years ago. What a relief to know it wasn’t all in my head after all.
I have recently been diagnosed. It took forever! But like Dr. Caudle said it was my rheumatologist who finally diagnosed me, and in about an hour. I demanded an appointment with a rheumatologist. It’s a horrific global pain issue. It’s very very real!
Jacqueline MarieMusic yes it is very real! Glad you’re getting help!
Dr. Jen Caudle Thank you. It’s absolutely debilitating. I’m trying mindfulness, hypnosis, I’m very positive, but the pain can be unbearable. I recorded myself after a mega flare up to try and help others understand. I haven’t shared it yet. But I think it gives good insight into what the pain is like. It’s important for people to see and understand. Thank you for this video! It’s fantastic! Thank you for taking the time to reply xx
Jacqueline MarieMusic omg I’m so happy you think this video was helpful. That’s all I want to do is educate about health topics. I’m also glad you’re getting help- saying prayers! I know it’s tough, but hang in there! If you’re interested, pls subscribe to my channel where I’ll be posting more videos on fibro soon!
Yes!! It was a Rheumatologist that diagnosed me also.
Dr. Jen Caudle I absolutely did subscribe because I think you’re fantastic, kind and very thorough xx
After years ( close to 10 years) of being told that the pain was all in my head and that I am to young to be in all this pain I was finally diagnosed with fibromyalgia by my current doctor 8 to 9 months ago. I am now 35 and most days I can't get out of my bed. Stairs are my enemy. On top of having fibromyalgia I also have diabetic neuropathy and am now on medication that helps with both. Thank u for bringing this to light that fibromyalgia is not a medical condition that can be seen and that those of us that have it suffer in silence. Much love to all who are struggling with fibromyalgia and know that u are not alone. Keep up the fight.
Please take a look at my latest Fibromyalgia video: What Is Fibromyalgia? A Doctor Explains th-cam.com/video/iO4grsq0hQM/w-d-xo.html
I'm thinking I have both as well. What medication did they put you on?
I cried when I was diagnosed by FM after 5 years of being told it is all in my head . Tears of joy that I was not crazy
You are NOT crazy! I did a video where I wanted to make sure folks w fibro know that they are ok and not crazy: What Is Fibromyalgia? A Doctor Explains th-cam.com/video/iO4grsq0hQM/w-d-xo.html
20 years still waiting for a diagnosis😞
@@oo6112 forget the diagnosis - there’s no cure, no pills can fix it, tried everything. Change your food, no sugar no gluten, daily meditation, trigger point massage, pilates just to start, then learning ‘pacing’ life has to slow right down….permanently. We can’t function like ordinary people, if we cook a meal we can’t shop, clean or socialise on the same day. If I am socialising that day, I spend the day resting saving my energy to talk to people - massive lifestyle change but no point in suffering
@@victoriawilliams654 the diagnosis is imp to me cause I think it might be something worse. I feel like my muscles are dying throughout my body. I have huge muscle loss visible in my legs. I think these half ass doctors told me fibro cause they are lazy. I am literally in agony and cant take care of my child. I dont know how to get help or have anyone take me serious.
@@oo6112 I’ve been there and I feel for you 🙏🏻
I had days where I felt paralysed because my body wouldn’t work, especially my legs and arms and I still sometimes have to lift my legs into the the car some days because they don’t work. It sounds like you need therapy to build your muscle back as a thats the first thing that I noticed deteriorating- and the muscle is the only thing that will keep us going despite the screaming pain in the nerves, the connective tissue and the Muscles. Self help seems to be the only thing there is. You really do need to persecute them to at least see a rheumatologist to rule out any auto immune disease - but they will be looking for specifics - so it might be good to do your own research on symptoms first but be warned - once you see the list of symptoms they are all so similar to fibro but auto immune will always shows up on scans or in blood tests as well. That’s how they know. Sending you healing hugs x
3 doc visits ha! You give doctors much credit
This is my story as well. (Edited) does any of you with Fibro also have muscle cramping?
Muscle spasms...n cramping yes
YES
Yes I do some days in my feet legs and Hands.
Yes,,
OMG yes
Just recently was diagnosed but have been suffering since 2020. Gone through three doctors who never took me seriously and one insisted that i was just anxious and making it up for attention. Thank god for my rheumatologist ❤
Every part of my body is affected and its everyday, every week, month and year. It just varies
Of
Oh no ! I know Im late reading this but have you found anything to make less painful .?
Every day? Oh God bless you! I hope you have found a Dr who cares and if not maybe a referral to a specialist.? I should talk most days Im in bed , my husband had a girlfriend and they would hangout downstairs. I stayed upstairs because I had an infant, if I would try to go downstairs into his man cave he would screw the door shut on us because there’s another entrance down there with 2 deadbolts and a regular lock. Somehow I found cooking for him enjoyable but he would wait until the baby and I went to bed to come up and eat. When I did see him he would never look at me,just stone cold. Oh and he would also accuse me of cheating on him. For real? Probably because he was cheating. Oh and I left the baby monitor on one time I was allowed to go downstairs to wash and press his uniforms. Wow he didn’t know I was listening but I got to hear everything he thought about me for real,,, I don’t give him any attention, I’m a bitch, I don’t give him sex. (How do you give someone sex?) shouldn’t it be a two way experience? When he was affectionate he would kiss me on the cheek. It was so weird sooo weird!
I started having chronic pain, bloating and intestinal issues, and extreme fatigue after having my last baby at 37. I saw my GYN and was tested for ovarian cancer, a gastric that told me I needed more water that my pain was constipation, and a PA that said my pain was due to a gall stone. After my cholecystectomy all symptoms were still there. As a nurse I knew these symptoms were valid! I went to a friend who was an MD and after explaining my symptoms he told me “we will find out what is causing your symptoms and get you feeling better.” We ran every test he could think of and my ANA came back positive with cell appearance of Lupus. I was referred to Rheumatologist that diagnosed my constant all over body pain as Fibromyalgia. Through listening to my body and resting when needed, stretching, meditation, eating foods that won’t cause inflammation (caffeine), monthly massages I am able to live a fairly normal life. Although it is still mentally wearing. Find an MD that will listen and listen to your body. Cut down on stress where you able. You are your best advocate!
Dr. Caudle,, I want to thank you for taking the time to educate others on different health topics. I discovered you this past weekend, and I'm following you! I have been diagnosed with Fibromyalgia and I had finally found a doctor(rheumatologist)that would help me. My doctor had been prescribing me different medications until we find something to help me. Unfortunately my doctor doesn't take my insurance anymore and when you find another Dr. It takes so long to get in and you have start over. Are there any other doctors that can help with treatment?
Thank you again for what you do! We need more doctors like you!
Gosh I’m sorry to hear this- you could try a rheumatologist. They often treat Fibro patients!!
@@DrJenCaudle Thank you so much!
It took 3 months for my clinic to finally take me serious and send me to several tests, x-rays and MRIs. Until finally another 3 months later I was finally diagnosed. After establishing care with specialists I left my primary clinic and I refused to return to it. And I told everyone I knew to never go to that clinic.
After being diagnosed I felt a sense of relief knowing I wasn't crazy and it was real but at the same time I was terrified at the life sentence of pain. Fast forward 3 and a half yrs, after years of physical therapy and continuing care I've come a long way and I'm more mobile and active than I was in the beginning. Even still I can't do everything like I used to do but I've learned to do them differently and be more accepting. Yesterday I mourned the life I once had but today I learn how to live again.
I've had FMS for 25 years now. I was lucky to have been diagnosed fairly quickly due to my detailed documentation of my symptoms. As a nurse, I leaned on my notes to prove when everything started and how it progressed,etc. FMS ain't for sissies!! I know it's not lethal but like this nice female doctor said, it is def LIFE THREATENING... and I need to add LIFE ALTERING and a lot of times LIFE ENDING. May u find peace somehow in a very chaotic and challenging FMS body.
pedsnursewhisperer * that is excellent!!! Great work!!
pedsnursewhisper*, Well said. I'm a nurse as well, by your name I'm assuming Peds was/is your specialty. I was an OB nurse for 25 years. I'm now on permanent disability; however, I really loved my work. I look back, and don't know how I hung in there so long.
pedsnursewhisperer * I can’t believe how many nurses are affected by this awful curse. I was 40 years old when my life changed forever, I’m 64 now. I was a labor & delivery and level 2 nursery nurse. I also loved my job dearly, I don’t like saying it was a job because it was more like a calling to me 💕 This will definitely alter your life! The Lord Jesus has given me strength to get through it every day 🙏🏻
@@GodBlessUtoo , Well said. I know what you mean about it being more like a 'calling'. I could never have children (I had a long hx of stage IV Endometriosis). People would frequently comment on how it must have been so difficult for me to work in the the environment that I did (new mom's and babies). It was SO far from the truth. It was the absolute best environment for me. It was such joy, to help new mom's with their newborns, or to help the newborns in the nursery going through withdrawal or other struggles with life! I have a feeling you can relate to this wholeheartedly! I too am a Christian, and I have found that having such a strong faith, helps me accept and live with my new and ever-changing reality! Thanks for leaving your comment, and God Bless YOU! :)
GVGIRL Yes I can totally relate with what you’re saying. I loved the joyful times in OB , but it’s definitely challenging at times. But that’s part of being a good nurse. I’ve done a lot of grieving over not being able to work. So happy to hear that you are a Christian. I don’t think I would have ever been able to tolerate this without my Lord. I will definitely will be praying for you friend🙏🏻 It’s been nice talking to you 😊
This is the best and most honest video I've seen on this subject. Back in June my pain was so bad I decided to die was better. I ended up in a coma and then sent to a mental facility. I'm honestly angry I'm still here. This has gone on for so many years and even the psychiatrist doesn't believe in it. Now I'm having to find a new one! I'm tired, just too worn out. I've taken all the pills, pain meds made it worse, exercise doesn't help. Laying in the ocean motionless is the only peace I get. To have someone touch me is too painful. Where is the help? What is anyone doing about this thing that causes people to kill themselves???
Thank You! Fibro is so tough- I’m sorry you’ve struggled with this. I made some other videos and would love yuh to take a look:
What Is Fibromyalgia? A Doctor Explains: th-cam.com/video/iO4grsq0hQM/w-d-xo.html
What Causes Fibromyalgia? A Doctor Explains
th-cam.com/video/VBUqngxexlY/w-d-xo.html
How is Fibromyalgia Diagnosed?
th-cam.com/video/DBvMn3jCKV0/w-d-xo.html
The Best Treatments for Fibro Pain
th-cam.com/video/ywGvGGx4jfE/w-d-xo.html
I have Fibromyalgia. I was thankful to find a Rheumatologist who was able to diagnose it by doing the 18 point pain test. However , I found my own medications and thankfully my doctors ordered them and it has given me some relief. Lyrica, Cymbalta and Flexerol and Tylenol. I am in too much pain to even do water aerobics. Plus I have A -Fib so the exercise makes my heart go too fast. Fibro-flares are really hard to take especially with all of the pain meds being more difficult to get, but the medications mentioned make life bearable.
I had to stop water aerobics also, but continue to just swim gentle lengths of the pool. The water really helps and gives ma a little relief for a short time. Take care. This is a,horrendous disease. Hugs ❤️
Be careful with lyrica and symbalta ss they cause withdrawals and hard to get off them.
After having my tonsils removed at 13 years of age I developed what was thought to be Rheumatic Fever, which they then changed to Fibrositis, then eventually Fibromyalgia I’m 65 years old now and quite frankly don’t remember ever not feeling this way. This is my normal and I have over the years have adjusted my lifestyle around it. Sometimes it’s unbearable but most of the time I can manage and know one would ever know. I was a little surprised at the lady letting the man manipulate her body like that because I can’t bear to be touched like that the pain would send me through the roof, but one thing I’ve learned is everybody responds to to this in a different way. Hope one day they find a cure for it.
So true, there are some days I can’t take a shower because the water touching my skin is unbearable, (I do take a bath though with epson salts that helps before bed.
I saw a pain doctor just last year. It was a young lady and I thought this is going to be a really good visit. Boy was I wrong. She didn't ask me any questions, examine me (she was in 1 corner of the room and I was in the opposite), or anything. Her words were and I quote, "Honey, it's all in your head. I'm not giving you any pain meds and I don't need to see you again". I was floored. I went outside and cried. I've lost everything due to this monster disease. Disability has denied me twice and I have my hearing soon but honestly, I don't expect it to go in my favor. So sad.
I know of a woman getting disability based on nothing but lies!!! People like you that need it...cant get on disability...this woman I know if told me she was going to tell a big lie...and apparently she did!!! It enrages me!!!
I filed in 2005 went up to 2017. For them to tell me im exaggerating my symptoms. That my fibro wasnt officially diagnosed. I cant even find a doctor to take me serious .... That I was capable of working. Mind you I was in a wheelchair at the time. Disability is a Scam!! Single mother and havent worked since 2009. Have no help. Tried to kill myself still here
Arlene ElvisGirl I was told the same thing over 10 years ago,that it was in my head,nothing the matter with you,you can walk sit bend.$275 Thank you pay on the way out
I am so sorry. This is cruelty- not medicine.
@@oo6112 are you in the US. They keep denying you. You have to have a lawyer. They don't want to you to win.
sorry i do not think that drs are doing their jobs besides writing prescriptions. in my experience time and time again you need to be your own dr and use drs for tests and x-rays.
So true. My doc doesn't have a clue about this condition. I've tried all meds and they dint work. I'm at a loss.
@@hayleygeek if you are able to search on TH-cam for yoga videos, easy short ones that are 3 to 5 mins long. I started there and the stretches feel soooo good. I am now doing 30 to 45 mins a day. I can move better and feel less pain. Fms is still here but I feel much better. Think when we're in pain we are clenching all the time, our poor body hurts from that too. Stretching is so important to us with fms. Hope this helps.
@@hayleygeek yoga with adrianne, tara Stiles, Brett larkin and Sara Beth are my go to youtubers.
@@hayleygeek Some people have been using Moringa at one teaspoon powder daily. Some use magnesium. Some have had good luck with B12 shots that have other B vitamins in it. Always use the Methelcobalamin form as it absorbs better than the other kind.
@@hayleygeek everything I read on the internet makes it seem like this is a hopeless condition :(
Our medical system is a joke. In 5 years I saw 7 doctors each with a totally different diagnosis, $20k in lab tests, from pain pills to prednisone. I was told I was fat (@185lbs and 5'9" with 20lbs of breast tissue) from one Dr. and handed diet pills DIET PILLS FOR JOINT PAIN LOL, had Lupus (given Prednisone which gained more weight) from the next DR., osteoarthritis in EVERY joint from the next, "just hormonal and talk with your gynecologist" from the next, and refused by a rheumatologist with a referral to be seen. I cancelled my insurance and gave up.
Im sorry your going through this but dont give up
I've had fibro for I suspect about 40 years. Some of the most effective management tools I've used are outside of Western medicine. Chiropractic and massage has helped a lot so. But the kind of massage is important. Right above your comment is a very good thread that you might find very helpful. I hope this helps to find you some relief. Good luck
Aww that's how i feel too. What the point big paying all this money. And they don't help.
The same things were e happened in my life.
I’m in so much pain rn. Fibromyalgia is hell.
Yes it is. Hopefully these videos will help:
What Is Fibromyalgia? A Doctor Explains: th-cam.com/video/iO4grsq0hQM/w-d-xo.html
What Causes Fibromyalgia? A Doctor Explains
th-cam.com/video/VBUqngxexlY/w-d-xo.html
How is Fibromyalgia Diagnosed?
th-cam.com/video/DBvMn3jCKV0/w-d-xo.html
The Best Treatments for Fibro Pain
th-cam.com/video/ywGvGGx4jfE/w-d-xo.html
Look into ancestral supplements it's helped me sooo much!! I pray you feel better soon ❤
I’ll be praying for this women every day, and everyone else who has to deal with this, it’s so painful😖
I went through the same problems with hearing my doctor say it’s in my head, So sad
Yes it is sad. Did you see my other videos on fibro? Hoping they will help:
What Is Fibromyalgia? A Doctor Explains: th-cam.com/video/iO4grsq0hQM/w-d-xo.html
What Causes Fibromyalgia? A Doctor Explains
th-cam.com/video/VBUqngxexlY/w-d-xo.html
How is Fibromyalgia Diagnosed?
th-cam.com/video/DBvMn3jCKV0/w-d-xo.html
The Best Treatments for Fibromyalgia (Dr. Oz Episode): th-cam.com/video/54t8ldtykYk/w-d-xo.html
I've had it since I was 26, so 17 years, but it took years to get diagnosed. I had major childhood trauma, depression anxiety PTSD. I teach pilates, aquarobics, and do eastern massage, all of this helps.I have to use vibration machine every day, use massage machine on acupuncture points, drink heaps of herbal tea, low gluten and dairy diet. I have to take aspirin nearly every day. I also see an osteo and a psychologist.
I manage the pain most of the time, but the fatigue is not ignorable. I can't work any more than 10 hours a week and I have to sleep and meditate in day every day.
If I get stress, it directly makes it worse.
It effects my brain, memory, and proprioception.
I'm still on waiting list for rheumatologist.
I live in Australia.
boncha4 I’m so sorry you’re suffering with this. I really admire your multi-faceted approach to the pain and I’m praying things get better 🙏🏾
boncha4 look up Low Dose Naltrexone ! There is also a good Facebook group that is awesome !
Boncha. Your story sounds so similar to mine. I believe I developed fibromyalgia after a very big trauma at age 13. I am now 50. It has been a very long and lonely road. The fatigue is something that people who do not have it, cannot seem to understand. I'm wishing you the best
I've been living with fibro for about twenty years. Heat, aspirin, stretching...and I smoke pot. Lifechanging. I learned early on that most of us afflicted with this have a history of trauma. The body/mind connection is so powerful...😐
miapdx I’m 68 think I agree mine started when lost my mum 1984 but only got diagnosed 6 years ago I’m also on diazepam have been for years drs tried weaning me off have cbd oil but not strong enough here In England illegal taking gabapentin but does not completely help reading lots about side effects of it lost my husband 3 years ago and my grandson was killed jan 2018 he died on my late husbands birthday so having bad attacks but won’t give up I do so miss my grandson so my pain is nothing compared to my daughter loosing her child sending you kind regards you sound young bless you 🙏
I've had it for 12 years now. I don't have a life, I just exist. This has been the worst week in several years. I don't know why. It just decided to try to kill me this week. It started me thinking about the last twelve years and all the reading and research I've tried doing. In 2011, I was diagnosed with ITP and was put on Prednisone. It didn't help the ITP (eventually had to have my spleen removed), but my Fibromyalgia symptoms went away. I'm a member of an online support group, when I asked if anyone had ever taken Prednisone for any reason and did it help their fibro symptoms, THEY ALL SAID YES (hundreds of them). Yet when you ask a doctor or try to look it up online they say Fibromyalgia isn't an inflammation disease and that Prednisone won't help. But it DID! I'm living proof it helped. Prednisone a synthetic hormone that is very similar to cortisone....and helps inflammation. So if fibro isn't inflammatory, is it a hormonal? I know fibro has something to do with adrenal glands and the adrenal glands produce cortisol. I know when I got off Prednisone I had to wean as to give the adrenal glands a chance to start working on their own again. I know when I got off of Prednisone, the fibromyalgia came back with a vengeance. So what is the connection?
I 100 percent agree with you!! I went through the same thing. Thinking it was an adrenal issue. That Prednisone made a world of difference!
I get depo medrol shots for my arthritis condition and it helps my fibro too.
I have noticed the same thing about Prednisone and Fibromyalgia remittance.
My eye dr "diagnosed " my fibro. He, and my dentist, diagnosed me with Sorjernes (exessive dry eyes, mouth etc) . 3 years ago he said "I think you have fibromyalgia, go see this person". Changed my life. I still have pain BUT I 've learned some coping skills that can sometimes lesson the pain. My earliest memories of fibro pain was when I was 11 - 13. I was told it was growing pains. I'm 62 now.
+Michele Nakamura oh wow- that’s amazing your eye doc diagnosed it. I made some other videos about fibro and hope it’ll help:
What Is Fibromyalgia? A Doctor Explains: th-cam.com/video/iO4grsq0hQM/w-d-xo.html
What Causes Fibromyalgia? A Doctor Explains
th-cam.com/video/VBUqngxexlY/w-d-xo.html
How is Fibromyalgia Diagnosed?
th-cam.com/video/DBvMn3jCKV0/w-d-xo.html
The Best Treatments for Fibro Pain
th-cam.com/video/ywGvGGx4jfE/w-d-xo.html
Sjögren’s is an autoimmune disease that can be primary or secondary to Lupus, RA and other autoimmune diseases. Sjögren’s can also be life threatening attacking lungs and other organs. Sjögren’s is horrible disease that causes daily struggles. I have lupus with secondary Sjögren’s, fibromyalgia, autoimmune lichens sclerosis and much of what they can bring. Hope you find some comfort in your daily life. You’re brave
I have sent over 15 years trying to figure out what was wrong with me
finally going to the second RA specialist. They asked if I had heard about Fibromyalgia. That's was it was, now two years later I am working on trying to find out how to get some relief. Thanks for spreading the awareness.
I'm so glad you got a proper diagnosis and are working on getting treatment!
5htp. Look into it.
I think it's worse on women cause our bodies go thru so many changes
I'm a Male, and have Fibromyalgia.
I think I've helped myself more than a lot of medical people....
♥️
@@DrJenCaudle
During the first two years of me having it, I made myself walk, even if it was literally just around the block.
I started swimming again eight months later, even though I would totally collapse in bed the following day.
And, two years ago, started to get back into the Flute.
I could only do ten minutes at a time.
Then, I slowly built up to a half-hour.
Sometimes, I can do up to fifty minutes of Flute practice.
Awesome that's what you have to do. You cant give up. Fight the pain and do that extra something everyday. So proud of you.Much ❤
In all my life, every Primary Care Physician has greatly disappointed me. Most of them make it very very difficult for patients to seek the proper care and treatment. Most of the time, they are clueless and resort to bullying / ridiculing you since they are uneducated and unable to diagnose. Thank God for specialists, but it is truly a painstaking journey until getting there.
I’m so sorry- and you’re right. It’s tough 🙃
I am currently 68, however, when I was young, in High school my menstrual periods were so bad, that I would pass out on that day. We only had male gynecologists in those days, and they patted my hand and said that they knew how I was feeling. 🙄. Right. 😂
It wasn’t until many years later that research was done to really get to the core.
Same thing here. Glad that doctors are finally starting to recognize this horrific condition that generally affects women. So, if you have medical issues don’t let the medical establishment label you as crazy.
I am now in need of caregivers, as I was exposed to toxins by being a flight attendant. It’s taken years of being shuffled about to get to the root cause.
More to my story, but enough for now,as this is specific to Fibro.
Good luck suffers. 🙏🏼💜
Good to hear you're not the only one with Fibro & a similar story. Years of being told its in your head, years of testing, doctors & misdiagnosis, and finally finding out it's fibromyalgia & it's chronic with such little research, few medications that only treat some of the symptoms & a lifetime of having an invisible illness. Don't give up if I can start to get better I'm sure anyone can.
My daughter is only 33 right now and has struggled with ALL these symptoms for too many years and still is. Same story!!
She finally got diagnosed with fibromyalgia a few weeks ago. She started having problems in her late teens and it progressively got worse. She has no quality of life, her 4 year old son is missing out on quality time with mom, she can't work. We are still hoping for improvement so far there are still too many bad days. Its been really taking a toll on our family life!
Thank you for this video🙂
I’m not alone with fibro
🇨🇦
You’re welcome 😊
It took 10 years for me to be diagnosed. I had Septic and Toxic Shock simultaneously in 1992 due to a hospital borne bacteria I contracted during surgery . On the journey to a diagnosis I went through upwards of 20 exploratory surgeries as well as having every expendable organ removed. Due to permanent damage to my immune system I have autoimmune diseases along with Fibromyalgia such as Psoriasis, Crohn's, Psoriatic Arthritis, Rheumatoid arthritis. I was forced to retire early at 48 years old. My doctor's have told me that it took so long to get the proper diagnosis primarily due to the survival rate of less than 1% in 1992 for someone who had sepsis shock and toxic shock. Therefore, there was no data available in reference to the long term effects of the condition. I am so thankful first to God and then to my doctor's for not giving up in their plight to give me an accurate diagnosis. As I get older it is getting increasingly difficult to get out of bed some days. I encourage anyone to not give up searching for a diagnosis and treatment.
Wow I’m so sorry this happened to you/ thank you for sharing- you will help others!
@@DrJenCaudle thank you
I searched for years and had the same experience. Doctors just looked at me like I was just a complainer. I was tired of continuing to go to Doctors. My husband finally found a good Rheumatologist and I finally found relief.
Yes, if you're diagnosed with fibro, the next step should be the rheumatologist. That's where it's confirmed.
I heave had it all my life. 59 years. I still have doctors that say I don’t believe in fibermyoliga. These are my doctors
Change your Drs and go to a reputable Rheumatologist.❤
Hello Doctor OZ, My name is Michael, and I want to add to the list of middle aged men that chronically suffer from Fibromyalgia, and like these patients, For Decades I've have multiple treatments of all kind (Even Back Surgeries)to see what was wrong with me and the Doctors found nothing. Just thought I would let you know...thanks for sharing and I'm so glad that you are here to put it out there, to let the world know what it's all about....Thank you very much and God bless you!
Thank YOU for sharing! I did another video about fibro and hope you take a look: th-cam.com/video/iO4grsq0hQM/w-d-xo.html thanks so much!
I’m 19 and I feel like I’m way older. Took multiple hospital visits and many doctors appts and tests to figure out I had this. I’ve had severe pain and all of these other symptoms since I was around 12 or 13, but they contributed it to growing pains. It’s a hard road but I hope one day I’ll be able to manage it
How are you doing NOW?? I am 20.I also diagnosed as fibromyalgia patient😢
@@nadiatarannum5007 doctors are thinking I actually don’t have this anymore and it is something more related to my back pain. Don’t understand why it’s still tricky to figure out many years later but this is a rule out diagnosis when all tests come back clear
I have had Fibromyalgia since I was 17years old and now nearly 45year-old and still learning about this, my Mum has it too.
Please take a look at my latest Fibromyalgia video: What Is Fibromyalgia? A Doctor Explains th-cam.com/video/iO4grsq0hQM/w-d-xo.html
Its refreshing to hear a medical professional speak about this condition with passion. Wanting to help patients and bring awareness. There are far too many medical and health professionals that medical gaslight when you have Fibromyalgia or similar.
Thank you 🙏🏾
I wish doctors in Britain understood this well x I’ve had this condition for 36 years
Pooperscooper Pooperscooper They are getting better but it took me a long time to get diagnosed, I’m 60 now and had it since I was 28
Pooperscooper Pooperscooper yes they took ages as have osteoarthritis and bad nerves and fybo so they just thought was my anxiety it hurts it’s nasty for anyone and I’m 68 bless the young people I know it is so debilitating for anyone
When I thought back to when my symptoms started, it went back way back to my childhood. It’s sad to suffer as long as I have with no medical help until 4 years ago.
Gosh I’m so sorry to hear this. I made other videos on fibro and hopefully they will help:
What Is Fibromyalgia? A Doctor Explains: th-cam.com/video/iO4grsq0hQM/w-d-xo.html
What Causes Fibromyalgia? A Doctor Explains
th-cam.com/video/VBUqngxexlY/w-d-xo.html
How is Fibromyalgia Diagnosed?
th-cam.com/video/DBvMn3jCKV0/w-d-xo.html
The Best Treatments for Fibro Pain
th-cam.com/video/ywGvGGx4jfE/w-d-xo.html
My 15 year old daughter was just diagnosed with amplified musculoskeletal pain syndrome. This is what fibromyalgia and chronic fatigue syndrome are being called in childhood. The doctors say it may be reversed, since she has 10 years before full neurological development is complete.
This is the best explanation of what I went through. It's the hardest and most challenging thing in my life.
It is sooo challenging and I’m sorry you’re going through it ;(
They (the doctors) forget we men have it as well, but it’s a disease that doesn’t care about gender or age, at 42, I have been battling this for over a decade, we are all the over looked suffers
You know what - you’re right. We DO often forget that men have this condition as well. Thank you for bringing this to light. I made some other videos on fibro- hope you’ll take a look:
What Is Fibromyalgia? A Doctor Explains: th-cam.com/video/iO4grsq0hQM/w-d-xo.html
What Causes Fibromyalgia? A Doctor Explains
th-cam.com/video/VBUqngxexlY/w-d-xo.html
How is Fibromyalgia Diagnosed?
th-cam.com/video/DBvMn3jCKV0/w-d-xo.html
Right on! Been struggling with this for 8 years. Nothing has helped :( so sad!
I'm in utter pain as I listen laying in bed.
Andypandie Land I’m so sorry to hear this!
Me too hun
Andypandie Land same here
Andypandie Land you’re not alone! I’ve joined a couple support groups on Facebook, it helps at least to know there are other people out there that understand it.
Me too!
I’m surprised that more do not know drs are doing this. I have had years of drs telling me I needed to get a psychiatrist or I was faking. I’ve had fibromyalgia since age 27 and I’m 53 now. You do have to advocate for yourself and I also brought my family to a dr appointment. I love this dr!
Wow those are really great suggestions! You’re right about all! Please take a look at my other video on fibro as well: th-cam.com/video/iO4grsq0hQM/w-d-xo.html
It took nearly 15 years of various drs and tests before I received my diagnosis. Even years later I still fight to get help since many drs do not acknowledge fibromyalgia is a actual diagnosis.
I came down with fibromyalgia after I had my gallbladder removed. I had a difficult recovery, but once I recovered shortly after this became my life. I pray for all of you who suffer from this horrific disease!!!!
Same here I think the gut may have a lot to do with it.
It took me five years to get to a rheumatologist. Same thing, after seeing my records from my MD, seeing me, he said “this isn’t all in your head. I think I can make help you feel better.” I burst into tears! He helped me get my life back! Bless you, dear Doctor Darvish!
Yes, i hear you. I'm in the same predicament for the past year, going thru test after test with no results. Still in the process of finding the right treatment for me. Never give up.
Oh no! And yes, never give up! I made other videos! Hopefully these will help:
What Is Fibromyalgia? A Doctor Explains: th-cam.com/video/iO4grsq0hQM/w-d-xo.html
What Causes Fibromyalgia? A Doctor Explains
th-cam.com/video/VBUqngxexlY/w-d-xo.html
How is Fibromyalgia Diagnosed?
th-cam.com/video/DBvMn3jCKV0/w-d-xo.html
The Best Treatments for Fibro Pain
th-cam.com/video/ywGvGGx4jfE/w-d-xo.html
I’m 30 yrs old and I suffer from fibromyalgia.(10 years now) . I was finally diagnosed w FM in 2016 by rheumatologist . My PCP still does not believe me . They just look at my age and say to me “you’re too young” . I had a previous “doc” tell me it’s all in my head.and that I should see a psychiatrist. I changed my PCP that same day, That really hurt my feelings
I’m in pain EVERYDAY😢
Why do they always keep saying that it's all in your head? Doctors are dumb just money hungry jerks!
I literally got diagnosed today and I’m 27, the specialists literally said I’ve got this condition. I’m so shocked because mine is not so much pain, mine is sleep disturbances and feeling weak all the time with minor joint pain...I’m literally praying for healing
It took me a few years of all sorts of specialists before I was diagnosed. People think its fake. My response is if I was going to fake an illness dont you think I would fake one people believed in? Ugh. Its incredibly sad we have more support online with people weve never met than those who know us personally.
these physicians are doing what chiropractors and massage therapists have been doing for ages! Now they finally realize that it is very important to integrate these techniques.
I started symptoms at the age of 14, they tested me for everything because they thought I was too young. I was finally diagnosed in my late twenties. Constantly in pain, but I try to have a positive mindset, just to get myself out of bed and be productive.
, thanks to Dr omobhude who cured me of fallopian tube blockage and fibroid with his herbal tuber cleanser. My marriage was on the verge of collapsing, because I was unable to bear a child for my husband. Until I came across Dr omobhude recommendation on line, and I Am joana, thanks to Dr omobhude who cured me of fallopian tube blockage and fibroid with his herbal tuber cleanser. My marriage was on the verge of collapsing, because I was unable to bear a child for my husband. Until I came across Dr omobhude's recommendation on line, and I contacted him. And he administered his herbs on me. I now have a child I can call my own. In case you want to contact him for a similar problem, or all other issues, you can reach him through his email: dr.omobhude1@gmail.com or call him on +2349050360605 contacted him. And he administered his herbs on me. I now have a child I can call my own. In case you want to contact him for a similar problem, or all other issues, you can reach him email at dr.omobhude1@gmail.com... Or whatsapp +2349050360605.
facebook.com/Dr-Omobhude-herbal-home-107138204797291/
I was diagnosed in the 90s. It has varied in severity. Finally I have referred to a chronic pain clinic in our area. I am graduating from the program tomorrow. After 10 weeks, I am finally feeling like the old me. I was really in bad shape. Spent the last year severely depressed. With addition of Lyrica, and treatment I feel able to manage the symptoms.
Thank you Mary Freebed, Grand Rapids, MI
, thanks to Dr omobhude who cured me of fallopian tube blockage and fibroid with his herbal tuber cleanser. My marriage was on the verge of collapsing, because I was unable to bear a child for my husband. Until I came across Dr omobhude recommendation on line, and I Am joana, thanks to Dr omobhude who cured me of fallopian tube blockage and fibroid with his herbal tuber cleanser. My marriage was on the verge of collapsing, because I was unable to bear a child for my husband. Until I came across Dr omobhude's recommendation on line, and I contacted him. And he administered his herbs on me. I now have a child I can call my own. In case you want to contact him for a similar problem, or all other issues, you can reach him through his email: dr.omobhude1@gmail.com or call him on +2349050360605 contacted him. And he administered his herbs on me. I now have a child I can call my own. In case you want to contact him for a similar problem, or all other issues, you can reach him email at dr.omobhude1@gmail.com... Or whatsapp +2349050360605.
facebook.com/Dr-Omobhude-herbal-home-107138204797291/
I’ve had this condition as a child and wasn’t diagnosed until I was 27. It has taken a lot from in life. I can’t get out of bad some days . I’m in non stop pain .
I’m so sorry!
I’m a bit over weight and some people will tell me my problem is the weight.. “ if you loose some weight you will feel so much better and the pain will go away” I’ve also overheard the same people refer to me as a hypochondriac and that my only problem is I’m overweight .... it hurts to think that these people think I’m making this up 😢
Amanda G you’re not making this up. Don’t ever let anyone tell you your symptoms are all in your head ;(
Wow that all sounds so familiar....been treated that way too....im sorry....its so far from the truth for us....Sending you hugs❤
I was told for many years it was my diabetes until 2019 I finally found a doctor that ran extensive tests and found it. It's frustrating and causes more tension and stress to the body which causes anxiety and depression and when you look fine on the outside people think that you're just trying to get attention or making it up. Thank you for bringing awareness to this!
, thanks to Dr omobhude who cured me of fallopian tube blockage and fibroid with his herbal tuber cleanser. My marriage was on the verge of collapsing, because I was unable to bear a child for my husband. Until I came across Dr omobhude recommendation on line, and I Am joana, thanks to Dr omobhude who cured me of fallopian tube blockage and fibroid with his herbal tuber cleanser. My marriage was on the verge of collapsing, because I was unable to bear a child for my husband. Until I came across Dr omobhude's recommendation on line, and I contacted him. And he administered his herbs on me. I now have a child I can call my own. In case you want to contact him for a similar problem, or all other issues, you can reach him through his email: dr.omobhude1@gmail.com or call him on +2349050360605 contacted him. And he administered his herbs on me. I now have a child I can call my own. In case you want to contact him for a similar problem, or all other issues, you can reach him email at dr.omobhude1@gmail.com... Or whatsapp +2349050360605.
facebook.com/Dr-Omobhude-herbal-home-107138204797291/
Im in UK and saw a Rheumatologist and she said "Fibromyalgia!!" and that was it i wasnt seen by her anymore...great thanks
loonylinda oh no! 😰
@@DrJenCaudle i have so many different symptoms regularly that i feel like a hypochondriac...Dr Jen do you know of any natural remedies that help this?
loonylinda good question- it’s really about addressing the underlying symptoms you have. But first, I say find another doctor! One who listens and can guide you through this process!
@@loonylinda 7
@@loonylinda ķķkķjjjjnjnnnnnnnñbbbbbbbbbbbbbbb.
Wow I was diagnosed one year after my complaints begin, I got worse, my primary care doctor sent me to a doctor for allergy test, the doctor refuse to do the test, he stated that I needed to see a psychiatrist. Many doctors and many diagnosis I'm still hurting but I've taking control with much prayer. Ten years later I'm managing. God speed to all 🙂
I have fibromyalgia and I have Hashimoto's disease. It took me almost 3 years and 3 endocrinologist and two cardiologists and two primary care doctors before I could find anyone that would even diagnose my Hashimoto's let alone fibromyalgia. Kept telling them something's wrong something's not right listed all the symptoms and they treated me like this lady's doctors did her. Finally my new cardiologist mentioned it sent me to a new endocrinologist and I was diagnosed with both. It's amazing. That we have to stay on top of doctors and work so hard when we feel like crap just try to get help. Glad this lady was able to get help finally
Spoken by docs whom have never experienced chronic pain....
Kelly Sheridan how do know that
The thing is every chronic pain is not fibromyalgia
It took several years to be diagnosed with fibromyalgia and several different Drs. I have a very high pain tolerance, I play competitive softball with cracked ribs, extremely taped up, during a tournament. We went undefeated all year and I wasn't going to let the team down. I have finally gotten to the point I have to have pain meds to get through the day. I'm in my 50s now, I'm worried about my quality of life as I get older
Oh no! Please try to find a doctor who believes you and wants to help- fibro is real! Here are some videos that might help:
What Is Fibromyalgia? A Doctor Explains: th-cam.com/video/iO4grsq0hQM/w-d-xo.html
What Causes Fibromyalgia? A Doctor Explains
th-cam.com/video/VBUqngxexlY/w-d-xo.html
How is Fibromyalgia Diagnosed?
th-cam.com/video/DBvMn3jCKV0/w-d-xo.html
The Best Treatments for Fibro Pain
th-cam.com/video/ywGvGGx4jfE/w-d-xo.html
I had a high pain tolerance until I was hit with fibromyalgia in my 40s. I had 7 children naturally and had no problem handing the pain. Now I’m hypersensitive even to being bumped into.
Straight up pain...not soreness. My sister recently took a class on physical therapy for Fibromyalgia and she was shocked...that I never lied about it. Also, if ANYTHING happens to you on top of the Fibromyalgia, it's extreme pain, not soreness. I damn near fainted in the ER because I had to give in and go. I had a fungal infection causing a fistula from my first ever yeast infection at 42yo. Having to breathe through it all was horrific. I bring my family too. They helped explain. It started for me right after my 4th surgery. A year after the surgery and I couldn't understand why I couldn't get my feet under me. The first rheumatologist didn't believe in it and tried to het me to use Voltaren all over my body to deal with it. Rheumatologist #2 was shocked it took a year because I was 100% on all the identifiers.
If you’ve been told you have Fibromyalgia or Chronic Fatigue Syndrome, find a doctor who is very familiar with Lyme disease to rule that out. My fibromyalgia and chronic fatigue were actually being caused by Lyme.
Mine were too.
Anon
You could be right there, I was
Wondering
That
Did you get an MRI w/ contrast before this?
Same here.
I cant get ANYONE to test me for lymes..
I have suffered with this for more then 40 years I'm 65 no one could tell me what it was. Finally I went into a research program and was excepted and diagnosed with Fibromya.
Katrinka Harris I’m so glad that you received help! This is such a great start and I’m hopeful! Thank you for sharing. Please stay in touch by subscribing to my channel- I’ll be posting more fibro videos soon!
Thank you, Dr. Jen, I meant to say that sometimes just my 12-pound cat walking can cause me pain, he's 16 yrs old so I just pet and love him.
Katrinka Harris I’m so sorry to hear this :(
pls state your diet and fluid intake in detail plus any drugs and shots you have had. im curious but understand if u defer...
My doctor said the same thing I found a new doctor and was diagnosed 2015. Its life changing but it helps knowing what it is.
Yes absolutely. I made a few other videos about fibro- hoping it might help you and others: What Is Fibromyalgia? A Doctor Explains: th-cam.com/video/iO4grsq0hQM/w-d-xo.html
What Causes Fibromyalgia? A Doctor Explains
th-cam.com/video/VBUqngxexlY/w-d-xo.html
How is Fibromyalgia Diagnosed?
th-cam.com/video/DBvMn3jCKV0/w-d-xo.html
The Best Treatments for Fibro Pain
th-cam.com/video/ywGvGGx4jfE/w-d-xo.html
I have fibromyalgia. After my primary care physician ruled out other possible diagnoses, she referred me to a rheumatologist, who diagnosed me by testing pressure points in my back. I almost went through the roof! Treatment is multifaceted, including medication, physical therapy, chiropractic, supplements, diet, and developing healthy relaxation habits. I am now active again, but I have to continue treatments and a balance of work and rest in my life to keep fibro under control.
thank you so much for your comments and i'm glad you're seeing the appropriate doctors and medical care. hang in there and glad you are working to keep your fibro under control
Any recommendations? I need help as well
It's so upsetting explaining a new Dr how you feel. But don't give up keep going!!!🦋🦋🦋
i understand but hang in there
It’s very hard around here to get any Dr to treat fibromyalgia. I hope this changes soon!
Thank you Dr. Jen. I love your videos. I have had Fibromyalgia for 32 years. Symptoms began after the birth of my oldest daughter...the pregnancy, labor & delivery were extremely rough. It took over 20 years to get a diagnosis. I was tested for everything under the sun. At first the symptoms were relatively mild (by comparison to now) but the symptoms definitely had adverse effects on my daily life. With each decade it has become a little worse. Now in my 50s, I am currently at a peak with Perimenopause (actually, pretty close to Menopause...9 months with no menstrual period...crossing my fingers that it's going to be officially over in 3 months), so...I am literally a hot mess right now & have been for the past 4 years. In addition to ugly body aches (particularly from the lombar region of my spine all the way down to my feet...my feet are cramping as I write this), sleep disorder, anxiety/panic disorder, TMJ, Restless Leg Syndrome, IBS, etc...I now have Hot Flashes, weight gain, Rosacea, my hair is drastically thinning (except for my face...😞) vaginal dryness & I've had more UTIs in the past couple of years. I am not on very many medications like most Fibromyalgia patients I know, I have taken that route of treatment for many years in the past & for me, the meds caused more problems than they solved so I am taking the bare minimum as needed & just doing what my body tells me to. If it says sleep, I sleep. If it says kick back, relax, put your feet up, I do it. I no longer care about the ignorant & insensitive judgements of others because they don't live in my body or pay my bills. I find that stress & negative emotions and/or thoughts are enormous triggers for flares. So...reducing stress is a huge priority. It may seem selfish to others, but it is imperative to my physical & mental well-being & I hope anyone who has Fibromyalgia that reads my extremely long comment draws confidence to make taking care of themselves a priority & the ability to brush off the negative attitudes & hurtful remarks of others. And for people who don't have Fibromyalgia but have a loved one that does, my advice is to be patient & compassionate. Don't tell them all they need is exercise more or to get out & socialize more or try this or that for their pain. Believe me, Fibromyalgia patients have tried MANY things to ease their suffering. If you are a newly diagnosed Fibro patient...get yourself a good Rheumatologist. If you suspect that you or a loved one has Fibromyalgia, see a doctor. Keep searching for a doctor until you get a diagnosis for your symptoms, don't give up. The right doctor is out there. And join a support group.
Again, Dr. Jen, thank you for your videos, I love watching them & enjoy your positive messages, receiving the information & seeing your beautiful, face. I wish you were my personal doctor.
This is my story! It look me almost 15 years to be diagnosed! Doctor after doctor just pushed me to the side and family thought I was trying to just get attention. It started after my 2nd son was born. I was 30 years old and I'm now almost 50 and still suffer 😞 The depression is almost as debilitating as all the other symptoms that come along with Fibro!!!
Sounds about right. I started having fibromyalgia symptoms after head on car accident that really messed up my neck and it took about that long to get diagnosed.
Yes it can take a long while. Drs don’t want to listen and take u seriously
My Fibro started after complications from childbirth where I needed a 2 pint blood transfusion. I have since been told I can no longer donate blood. Do doctors know something that they are not telling us, as it relates to blood? I feel in my case they should try the medication to stop organ rejection since this donated blood was not originally mine as given to me by God. I feel this disease is my body fighting foreign cells.
I've been suffering of constant back pain for 3 years daily! I walk with a cane sometimes because it gets worse. My hips hurt too. I've had unexplained IBS ( told oh it's probably stress). I have anxiety, derision and PTSD. 4 years ago I had seizures, out of the blue...again, unexplained after all the testing. For the last 2 years I've been suffering of heat and sweat rash reactions . I have a mix of insomnia and not wanting to get out of bed, tired, no energy. I feel like a shell of a person, I don't recognize myself anymore. 😥
Am so sorry Harley
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I’m 65 years old and have battled with fibromyalgia for most of my adult life, they tried so many antidepressants on me that never worked, I was on pain pills for years that helped me but I got off them 2 months ago, but I take alot of ibuprofen and pain patches, I do peroxide baths and take food grade peroxide in a drink everyday. I’m trying to exercise and do whatever I can to help the pain. I take naps everyday because of the fatigue. It just hurt being treated so badly by Drs. throughout my life because they didn’t know how to treat it and assumed it was all in my head. I hope now they can help people. Thank you
wow - peroxide?
Africa's, doctor's like DR RORPOPOR HERBAL on TH-cam who cured I and my boyfriend fibromyalgia❣️ we have been having this sickness for 4 year's now, but with the help of DR RORPOPOR HERBAL on TH-cam we are free 😊😊
Diagnosed with fibro and cfs about 2 years ago, it takes away your life, people just don't understand that when I say I'm having a "good day" it's not the same as their idea of a good day! I'm still in pain, I'm still tired, I'm still struggling
Oh no! I’m so sorry to hear - and it really is so tough!
Would love you to take a look at the other videos I have on fibro:
What Is Fibromyalgia? A Doctor Explains: th-cam.com/video/iO4grsq0hQM/w-d-xo.html
What Causes Fibromyalgia? A Doctor Explains
th-cam.com/video/VBUqngxexlY/w-d-xo.html
How is Fibromyalgia Diagnosed?
th-cam.com/video/DBvMn3jCKV0/w-d-xo.html
I hear that! When I do too much and get myself in a flare, it's like I have a limited budget of energy. Ok, what am I going to do: Fold laundry or take a shower and wash my hair? Go to work and earn money or clean the house. You pick your battle.