How I Became Disabled - My Earliest Symptoms / Squirmy and Grubs

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  • เผยแพร่เมื่อ 21 พ.ย. 2024

ความคิดเห็น • 1.6K

  • @susanajimenez9030
    @susanajimenez9030 5 ปีที่แล้ว +944

    This girls personality makes her the most beautiful girl in the world. She’s already very beautiful but her being so kind and amazing makes her perfect. What a great couple.

    • @MyADL143
      @MyADL143 5 ปีที่แล้ว +20

      I agree. And such a humble couple! 💜

    • @Jburnsey26
      @Jburnsey26 4 ปีที่แล้ว +16

      Honestly she that perfect i wish i could have a girl like that a girl can look good but what makes her perfect is a kind personilty

    • @marinad6228
      @marinad6228 4 ปีที่แล้ว +2

      ohh yeah !!

    • @estherpennington7826
      @estherpennington7826 4 ปีที่แล้ว +6

      I thought the exact same thing. She's like wow!

    • @veelighted7
      @veelighted7 4 ปีที่แล้ว +10

      Susana Seay
      Both of them are extraordinary and beautiful. Agree with you.

  • @yadabotbingo
    @yadabotbingo 4 ปีที่แล้ว +199

    The reason Shane has the love of such amazing woman like Hannah is because he's cool AF. They're a great pair.

    • @BarrywHiteFTW
      @BarrywHiteFTW 3 ปีที่แล้ว

      I think he's "cool" 'cause here's with her.

    • @lizU-i4j
      @lizU-i4j 3 ปีที่แล้ว +3

      He is amazing. I’ve been laughing so much, I had to scroll down to see what others think about it.

    • @kareninman2865
      @kareninman2865 ปีที่แล้ว

      WhYs after mean???

  • @ruckus-rodney
    @ruckus-rodney 5 ปีที่แล้ว +2455

    "I came outta the womb in a tiny wheelchair"
    HAHAHA!!!
    Shane has the best sense of humor😂🤣

    • @lynnrenee8369
      @lynnrenee8369 5 ปีที่แล้ว +15

      This has me cracking up 😂

    • @JerseyLynne
      @JerseyLynne 5 ปีที่แล้ว +11

      @Jayce Ollie yes he does

    • @basook6116
      @basook6116 5 ปีที่แล้ว +5

      his mom must have one massive womb....

    • @superchicken1471
      @superchicken1471 5 ปีที่แล้ว +11

      @Jayce Ollie What a disappointing comment

    • @kymberlyp4056
      @kymberlyp4056 5 ปีที่แล้ว +4

      Rodney ~ Fellow Marylander here and I completely agree with your comment.😁

  • @hevbushnell4013
    @hevbushnell4013 5 ปีที่แล้ว +389

    The love in Hannah's eyes when she looks at Shane is just so touching and inspirational

    • @hevbushnell4013
      @hevbushnell4013 5 ปีที่แล้ว +8

      You're trolling us right?!!!

    • @hevbushnell4013
      @hevbushnell4013 5 ปีที่แล้ว +7

      She is perfectly happy and fulfilled. You can clearly see that. Why wouldn't it be fulfilling for her??? They're a great match.

    • @hevbushnell4013
      @hevbushnell4013 5 ปีที่แล้ว +4

      I might not be! But I meant 'us' as in the rest of Hannah and Shane's followers / supporters. :)

    • @hevbushnell4013
      @hevbushnell4013 5 ปีที่แล้ว +1

      th-cam.com/video/iO77AjVc-jM/w-d-xo.html

    • @radcliffemclean3874
      @radcliffemclean3874 5 ปีที่แล้ว +13

      Who ever wrote that above comment is seriously disturbed.. the mear
      fact that you would judge her reasons for being with him with fictitious reasons that you have made in your mind suggest to me your the one with issues.. we are first spirts have a physical experience than it the opposite and I believe they are spiritually connected who the hell do you think you are spreading such hatred and judgment .. go away and learn to love with compassion than judge with hatred.. find some purpose or meaning in your life any TRUTH you speak is that in of yourself and doesn’t represent their situation or the views of others entirely.. that’s where your TRUTH fails you.. I am sorry Hannah that you would be so chastised by ignorant people .. you are such and inspiration living your truth regardless of internet haters who are devoid of basic compassion and empathy ❤️obviously vanity isn’t something you struggle with nor ego ..your light shines brightly and so does Shane’s both of you do good works keep shining

  • @jacksonabrams4978
    @jacksonabrams4978 5 ปีที่แล้ว +742

    PICTURES PICTURES PICTURES PLEASE!!! Please do a video showing lots of baby/ youth pics of both of you that would be so cool and I'm sure I'm not the only viewer who would love to see that!!!

  • @monicablock4097
    @monicablock4097 5 ปีที่แล้ว +263

    Watching you both is making my marriage better. Thank you both for showing me to love even at the darkest and most difficult moments. It's hard but now, I am so happy and blessed to be alive with my hubby and our son. Cannot thank you enough.

    • @CottageCupcake
      @CottageCupcake 5 ปีที่แล้ว +3

      Monica Block right? What is true love....SHANE AND HANNA and Hanna and Hanna and Hanna and Hanna and Hanna do I dare stop🎯

    • @lollic307
      @lollic307 5 ปีที่แล้ว +7

      Thank God for youtube. It's a good outlet for them and educational and inspiring for us

    • @lollic307
      @lollic307 5 ปีที่แล้ว +5

      That's awesome. God bless you :)

    • @Nele-vg7js
      @Nele-vg7js 4 ปีที่แล้ว +3

      Lolli Carlquist god don’t exists. Just be happy to be alive and forget the religion, the world would be a better place without it. Or you believe to fairies? No? Alright.

    • @6942pjka
      @6942pjka 4 ปีที่แล้ว +10

      Nele1208 first of all, learn to spell. Second, why did you feel the need to say this? If you don’t believe, fine. You don’t have proof God doesn’t exist, do you? But there’s plenty of proof He does. Ask the archaeologists who have discovered artifacts that back up what’s in the Bible. Educate yourself.

  • @julierocketqueen1477
    @julierocketqueen1477 5 ปีที่แล้ว +576

    I absolutely adore the way you 2 play off each other’s humor... can’t get enough of your videos 😂😂😂

  • @isabelcrane
    @isabelcrane 5 ปีที่แล้ว +86

    My dad's cousin's seven month old infant was just diagnosed with SMA. I've been subscribed to your channel for about a year and have watched many of your videos and so I had my grandma share your channel with her and her husband. Thank you for spreading awareness about SMA.

  • @rachaelkonigsberg882
    @rachaelkonigsberg882 5 ปีที่แล้ว +29

    I am a special ed teacher and I worked with a 9 year old boy who also had SMA from birth. He needed a respirator very early on and suffered some complcations but he too had an amazing sense of humor. He passed away a year ago and our whole staff miss him terribly. He taught me about appreciating every small thing I could do and about letting annoying things not get in the way of living happily! Happy birthday!

  • @richbergen46
    @richbergen46 5 ปีที่แล้ว +107

    Hannah's "Nope" response is my que to realize that Shane is joking. You two are made for each other. Sometimes miracles are just good people with kind hearts. Love you guys.

    • @hevbushnell4013
      @hevbushnell4013 5 ปีที่แล้ว

      *cue

    • @scorpionqueen3550
      @scorpionqueen3550 5 ปีที่แล้ว +1

      @@hevbushnell4013 shush shush no grammer here que it is then I guess 🐘

    • @sandylopez1069
      @sandylopez1069 2 ปีที่แล้ว +2

      I like to agree with the miracle statement it is sweet and definitely heart felt. But the truth is that these two individuals have done tons of work on themselves, had supportive parents while growing up, and met each other. Because they match.

  • @lazylohan5355
    @lazylohan5355 5 ปีที่แล้ว +286

    I often forget Shane is disabled, sometimes I'm just like "Why doesn't he just stand up?" 🤦🏿‍♀️😂 This channel has really taught me a lot, especially about normalizing people beyond their disabilities. Love you guys. ❤️ Notification squad.

    • @emh8861
      @emh8861 5 ปีที่แล้ว +22

      He's more "normal" than a lot of people .

    • @Shybairnsgetnowt1
      @Shybairnsgetnowt1 5 ปีที่แล้ว +28

      Lazy Lohan I absolutely agree. I really feel that watching Hannah and Shane’s videos has broadened my mind as to how absolutely normal an interabled relationship is. I love the both of them, I feel almost part of their family but not in a creepy, sad kind of way!

    • @christlegreen9458
      @christlegreen9458 5 ปีที่แล้ว +5

      Lazy Lohan ...exactly what I was thinking. His comedic timing is effortlessly funny! I would purchase a ticket, for sure!

    • @missLeamon2023
      @missLeamon2023 5 ปีที่แล้ว +2

      Love this ♡

    • @miIkbear
      @miIkbear ปีที่แล้ว

      @@emh8861 as a psych nurse i completely agree lol

  • @cynthiagildea-dixon314
    @cynthiagildea-dixon314 5 ปีที่แล้ว +87

    Couple goals: to have someone look at you the way Hannah looks at Shane

  • @chloebriere98
    @chloebriere98 5 ปีที่แล้ว +917

    "I used to be able to roll, I don't know how to explain that."
    "people know what rolling is"
    😂😂😂

  • @flowgood123
    @flowgood123 ปีที่แล้ว +5

    You two are great together. Your lives would be so different without each other, it's like your soul's go way back in time.

  • @itsmeais1736
    @itsmeais1736 5 ปีที่แล้ว +257

    Literally the way hannah is always looking at Shane. The love!! Love yall so much.

    • @missbrooke9458
      @missbrooke9458 5 ปีที่แล้ว +17

      I love how she looks at him. You can see how she loves him so much !

    • @georgesears1615
      @georgesears1615 5 ปีที่แล้ว +5

      @@martinedwardfleet lol you sound angry.

    • @leeartlee915
      @leeartlee915 5 ปีที่แล้ว +6

      I don’t get it. I’ve seen plenty of people who are in love who don’t do that.

    • @missbrooke9458
      @missbrooke9458 5 ปีที่แล้ว +6

      leeartlee915 I’m in love with my husband and I don’t do that. But every love is different. It’s still sweet.

    • @SpringRain23
      @SpringRain23 5 ปีที่แล้ว +7

      I was thinking the same. So much love and admiration.

  • @robinright825
    @robinright825 5 ปีที่แล้ว +170

    27 is my year too! I’ve been 27 for the last 35 years!!! It’s AWESOME!!!

    • @rylee_l
      @rylee_l 5 ปีที่แล้ว +16

      Robin Auras sounds like something my mom would say, lol. Her 45th birthday was actually just the 24th anniversary of her 21st birthday

    • @pryscil4
      @pryscil4 4 ปีที่แล้ว +1

      Mine too! My second 27th birthday this year hahahahah

    • @juliesprik9479
      @juliesprik9479 3 ปีที่แล้ว

      I am going backwards in age from this year on.

    • @betheverett9643
      @betheverett9643 3 ปีที่แล้ว

      27 is the year that I stayed in my head. It’s so weird, after 27...I had to stop and think how old I really was lol. I’ll forever be 27!

    • @googleuser842
      @googleuser842 2 ปีที่แล้ว

      No, Robin you haven't.

  • @mckayladill5551
    @mckayladill5551 5 ปีที่แล้ว +508

    I was fully expecting Shane to make the joke. "I was born with it, the end" 😂 thanks for the in depth video! Happy early birthday!

  • @sandraclark7771
    @sandraclark7771 5 ปีที่แล้ว +39

    I love the two of you, your humour and positivity is inspiring. I have Primary Progressive MS and I've been a full time wheelchair user for 5 years now. I'm on my own so it's not easy. I'm hoping to move into a specialised care facility which is more like a community as it's run by a wonderful charity. It would be so much better for me emotionally to live with other disabled people as well as the caring staff members. I feel very alone and isolated currently. Keep smiling, you are my heroes xx

    • @jenjuice432
      @jenjuice432 3 ปีที่แล้ว +13

      Hey Sandra, I hope you're feeling a bit better now and made it into the community.

  • @eggontoast608
    @eggontoast608 5 ปีที่แล้ว +676

    Nice origin story! I have a feeding tube, and sometimes my wife very seriously turns to me and says "at least I can eat." I think it's hilarious. I totally get disability humor in relationships. :)

    • @SueChicago
      @SueChicago 5 ปีที่แล้ว +47

      I'm blind in one eye. Totally agree about disability humor. I'm teased by my family about depth perception (it is a mystery to me), or they do strange things on my blind side.

    • @bobeighteen
      @bobeighteen 5 ปีที่แล้ว +60

      Yeh same, I have a tube and can't walk. People will be like 'man, that was a tiring walk' and I'm just like 'yeh I know right'.
      Tbh I think it takes the awkwardness away from it. People tiptoe around disabilities not knowing what to say but just bringing the odd joke in helps put people at ease.

    • @chelseafcgirl123
      @chelseafcgirl123 5 ปีที่แล้ว +8

      Danyell Rollf wow, something similar happened to my dad. He didn’t go completely blind in that eye but his vision is severely damaged and he’s sensitive to sunlight because of that eye. Happened at work too.

    • @znyznyzny
      @znyznyzny 5 ปีที่แล้ว +12

      unfortunately I can't find much humor in my mental disability 😔 I do like when I can find stupid memes that can relate tho

    • @rach_laze
      @rach_laze 5 ปีที่แล้ว +14

      My best friend uses "yeah well at least I can walk" on me all the time and it cracks me up everytime

  • @DigiLexi
    @DigiLexi 3 ปีที่แล้ว +8

    You guys are so magical…despite just having a pretty serious fight with my spouse, you popped up in my feed and brightened up a very dark moment for me. I’m just sitting here admiring your beautiful relationship. If all couples were as respectful, loving and caring as you two are towards each other, this world would completely turn around.

  • @terriann7804
    @terriann7804 5 ปีที่แล้ว +36

    Yes! I used to work at an elementary school. There was the cutest little boy that received his first power wheelchair while there. It was candy apple red, with sparkles. He used to love going so fast! I used to tease him about giving him a speeding ticket! He'd giggle and giggle. Precious! Such a blessing!

  • @kaylamerriman7720
    @kaylamerriman7720 5 ปีที่แล้ว +83

    I started watching at 38k. it's crazy to see that y'all are now almost at 400k.

  • @rj-zz8im
    @rj-zz8im 4 ปีที่แล้ว +5

    I just discovered you both yesterday and have binge watched hours and hours. Thank you for unabashedly sharing yourselves, sharing your love for one another, and educating. I wish you didn't have to feel it necessary to justify your love for one another in response to "critics". These people who doubt your relationship have obviously never felt or allowed themselves to feel REAL love for another person, and that's something to pity. What you have is GOLD. Much respect and love from this guy!

  • @earlgreydionne1489
    @earlgreydionne1489 5 ปีที่แล้ว +4

    Thank you Shane and Hannah because my autoimmune disease never lets up and I'm feeling so so low at the moment. Watching you lifts me because of your positivity and hope. Just sincerely thank you xxx

  • @believeinyourself7511
    @believeinyourself7511 5 ปีที่แล้ว +347

    My Mothers birthday is May 26. She will be 95 years old. And going strong.

    • @claireashley427
      @claireashley427 5 ปีที่แล้ว +8

      That's awesome! Happy birthday to your mom!!❤

    • @LoveLivingLoveNow
      @LoveLivingLoveNow 5 ปีที่แล้ว +13

      Yay! for your Mom. My mom is 80 May 27th. Could be 65. 💕 Love her.

    • @blueberrypomegranate
      @blueberrypomegranate 5 ปีที่แล้ว +6

      Incredible! I hope my parents live to a ripe old age that way I know I might have a chance lol all my grandparents passed in their early 80s so fingers crossed that my healthy eating and no smoking keeps me going 😅

    • @heyitsmet333
      @heyitsmet333 5 ปีที่แล้ว +7

      Bless her! Please tell her happy birthday from us!

    • @judyberends4586
      @judyberends4586 5 ปีที่แล้ว +5

      Happy Birthday to your mom ...my late mom's birthday was May 27 but she passed away at almost 61 in March 1984.She was the best ..Congratulations ...💗

  • @southernsassyandclassy6544
    @southernsassyandclassy6544 5 ปีที่แล้ว +33

    I absolutely love how ya'll pick on each other. In my family that is a true sign of affection.

  • @patd1643
    @patd1643 5 ปีที่แล้ว +83

    I had to go back and watch the “I was bit by someone with the disease” like 3 times because it made me laugh so hard

  • @patriciahaley3367
    @patriciahaley3367 4 ปีที่แล้ว +32

    I am disabled. I am also abled!❤️

  • @katina_k_rogers
    @katina_k_rogers 5 ปีที่แล้ว +92

    I love when Hannah says “nope” to Shane’s antics. It’s the best 🤣

  • @lorenengland4079
    @lorenengland4079 4 ปีที่แล้ว +3

    Shane, you have such a great outlook and a sense of humor that’s lout of sight. Hanna, you are just wonderful!

    • @kerry2921
      @kerry2921 ปีที่แล้ว

      They're a fake couple....very fake

  • @pamwilkerson828
    @pamwilkerson828 5 ปีที่แล้ว +4

    Shane I love the way that nothing seems to slow you down. Your attitude, sense of humor everything about you is positive. I just love you two.

  • @sherischmidt7430
    @sherischmidt7430 5 ปีที่แล้ว +2

    Life is so much better with humor and happiness. I myself was recently diagnosed with severe poly neuropathy and times I think how can I live with this. When I see your videos it makes me think why should I complain when so many others have worse things and have such a better out look. Thank you. Both for what you guys do.

  • @andreabarns1128
    @andreabarns1128 5 ปีที่แล้ว +137

    Your parents did an amazing job at raising a well rounded human being - credit to them! It's always interesting to hear the back story. I'd love to know what Hannah was like growing up too...

    • @lollic307
      @lollic307 5 ปีที่แล้ว +8

      I was thinking they both must have incredible parents. I wish we could all have awesome parents...but we dont all get so lucky

    • @ashwin.unlead
      @ashwin.unlead 4 ปีที่แล้ว +3

      @@lollic307 c yeah but that shouldn't stop you to make it better, n live to the fullest.

    • @lollic307
      @lollic307 4 ปีที่แล้ว

      @@ashwin.unlead true . Faith and courage

    • @ashwin.unlead
      @ashwin.unlead 4 ปีที่แล้ว +4

      @@lollic307 Yup , once you change that mindset your life wont be the same again :)

    • @merlehilbun2389
      @merlehilbun2389 2 ปีที่แล้ว +1

      You both are truly amazing. So loving and so sweet to each other. Both of you are blessed to have each other. Thank you for sharing your back story. It is helpful to hear and understand your disability and disease. You really make me a more thankful person. You bless me.

  • @AlinneaDarklordsSis
    @AlinneaDarklordsSis 4 ปีที่แล้ว +67

    “I feel like if I could lift my arms above my head, I would be unstoppable.” Mood. I have EDS & POTS and lifting my arms above my head is unreachable currently but I would get into so much more stuff. 😂

    • @violettelovesjesus8888
      @violettelovesjesus8888 4 ปีที่แล้ว +1

      He's so funny.

    • @marys3127
      @marys3127 3 ปีที่แล้ว +1

      I have EDS and POTS too...symptoms started when I was 29 years old and I am now 52. Hang in there, the pain and blood pressure symptoms get a little better each decade as you age. At least mine did. We become less flexible the older we get.

    • @annedodgson8677
      @annedodgson8677 3 ปีที่แล้ว

      For us who are being supporting please do not caps on important Med references

    • @Sarah-ic4yu
      @Sarah-ic4yu 3 ปีที่แล้ว +1

      Same and same!! RIP to all the great hairstyles I used to do, now lifting my hands over my head to do that is so not worth the consequences haha

    • @dana102083
      @dana102083 3 ปีที่แล้ว

      Im a hEDS POTSie too! I can do arms over head..but do I want a subluxation and more pain than I already have? Nope! Hi zebras friends! 😎🐱

  • @tberkelo
    @tberkelo 4 ปีที่แล้ว +7

    ♡♡♡
    You two should have a podcast channel where you discuss random topics. Your combination of intelligence, wit and humor are charming and fun!

  • @rcasey81
    @rcasey81 5 ปีที่แล้ว +3

    Love you both. Thanks you for showing that people with disabilities can still be loved and share love. Y'all are so beautiful.

  • @Angelgurl1455
    @Angelgurl1455 5 ปีที่แล้ว +1188

    Hannah: "So the local neurologist played with Shane for about an hour....."
    Shane: "That's probably not the best way to phrase that..."
    lmaooooo xD

    • @sherylwilliams1672
      @sherylwilliams1672 5 ปีที่แล้ว +2

      lol

    • @StraightZzzStudent
      @StraightZzzStudent 5 ปีที่แล้ว +5

      Angelgurl1455 i love their wit

    • @sherylwilliams1672
      @sherylwilliams1672 5 ปีที่แล้ว +9

      @@StraightZzzStudent their so silly! It would be 100% fun to take a trip with them

    • @StraightZzzStudent
      @StraightZzzStudent 5 ปีที่แล้ว +3

      Sheryl Williams oh totally!!

    • @marnie9452
      @marnie9452 5 ปีที่แล้ว +3

      @@sherylwilliams1672 can I come? :3

  • @2manybooks2littletime25
    @2manybooks2littletime25 5 ปีที่แล้ว +7

    I love the 2 of you together! I am disabled by 4 neurological disorders. My family and true friends make "mean" comments about me all the time, and I'm the first to belly laugh! I think it's great that Hannah is way past Shane's disability and teases him as much as Shane teases her. You're both keepers❣💘💘❣

    • @bellesparks4374
      @bellesparks4374 4 ปีที่แล้ว +1

      You need new family and friends.

    • @2manybooks2littletime25
      @2manybooks2littletime25 4 ปีที่แล้ว

      @@bellesparks4374 oh, no! They are my rocks, my helpers and we all have a great sense of humor! Nobody makes truly mean comments. Actually I throw zingers at them more than they do to me! When things get serious and I'm having trouble with something or am very down on myself they come to me to get lists of anything that I need and they'll get them for me. When I need to be lifted out of the dark hole, aka very depressed, they bring food, help with cleaning and get me laughing hard again. Naturally, I send "insults" directly to them and we all have a lot of laughter. They'll move Heaven and Earth if I want to go to see a movie and have dinner out. Just today, one of them brought me her warm, uber-delicious homemade cookies. Some Sundays, when she has her parents and in-laws over for dinner, she brings me a huge plate of food!
      For example, one of them made us lunch at her home. She'd told me the menu ahead of time and I was just looking forward to catching up with her life. Instead of making what she'd said would be making, I discovered that she'd changed her mind about the lunch menu and made delicious Italian wedding soup, which I truly like very much.
      When lunch was ready and I'd had a few spoonfuls of her wedding soup, I mocked outrage!

    • @2manybooks2littletime25
      @2manybooks2littletime25 4 ปีที่แล้ว +1

      @@bellesparks4374 oh, no, you misunderstand. My friends and family are so good to me! Long before I got so sick and disabled, we teased each other with "mean" comments. It was and is an hilarious game of one-upmanship! When I got all of my neurological disorders and diseases, they and I carried on the game. A great sense of humor is the best way to make us all cope with my increasingly obvious disease progression. But, when I go through an especially disabling flare-up, they are always here for me. My sister is very kind and loving, but if she can make some fun of my condition, she does! But she let's me know how much she loves me every day.
      I've got 6 cousins who are the sweetest people who live their Christianity. If I need anything, they come running. One of my cousins who is my age picked up the phone about a month ago just to tell me that he loves me and that I am always welcome at his and his wife's home! They know that I am alone on Christmas day and I've been going to their home for dinner and a grab bag afterwards. Hilarity ensues! I'm always invited to the yearly family reunion each July 4th; at a pumpkin carving contest around October 20th is my day to be completely ridiculed because my hands are too weak to properly carve a pumpkin.
      Understand that it is all done with love. They know me well. If they would be pitying me and treating me as such, I would cry. The insults are not limited in my direction; everyone gets "mean" comments and insults! I am not treated differently and I prefer it that way. We laugh till we cry and there are a lot of hugs and expressions of love. I always let my family know that I love them for including The Cripple in every family event.
      My friends. They check in on me every day and will go to a store to get me what I need. I'll find homemade cookies in my mailbox at random moments.
      I'm so very blessed and happy with my family and friends! How many people are lavished with so much love??

    • @bellesparks4374
      @bellesparks4374 4 ปีที่แล้ว

      I am so glad! Lol. I did misunderstand. Sorry about that. I have ms and me and my husband say it is better to laugh than cry:)! We have some especially embarrassing moments that are really hilarious even to us in the moment. Sometimes we just stop whatever we are doing and start laughing and it is much better to smile:)!

  • @keepLaffN
    @keepLaffN 5 ปีที่แล้ว +16

    I learn a lot from this channel. You young ppl these days are just wonderful.

  • @SSDirk1976
    @SSDirk1976 3 ปีที่แล้ว

    Hannah would be the ONLY gift I'd ever need...seriously ....Hannah is THE BEST....

  • @yesterdaydream
    @yesterdaydream 4 ปีที่แล้ว +7

    2:23 I will never be able to unsee the emerging newborn Shane rolling out of...life's great portal into existence. What a divine nativity story!

  • @marilynthomas8036
    @marilynthomas8036 5 ปีที่แล้ว +2

    I love your guy’s sense of humor. I was born with a very rare disability called Femoral Hypoplasia Unusual Facies Syndrome. I’m only 3ft 4in tall. I was born with a cleft palette, club feet, no femur bones in my legs, no Gina in either leg, and my elbows are fused at different angles. You guys are awesome to watch; I love the fact that you educate people while still having a sense of humor about it all. I wish you all the best!!!! 💞

  • @a.shleyferreira
    @a.shleyferreira 5 ปีที่แล้ว +10

    Shane and I are currently the same age and both have May birthdays.
    Happy almost-birthday, Shane!

  • @bkeithmontgomery
    @bkeithmontgomery 5 ปีที่แล้ว +9

    You guys are the best, I LOVE the way Hanna smiles at Shane....

  • @fernsavannah9110
    @fernsavannah9110 5 ปีที่แล้ว +75

    Closed captions: "my parents were both carriers" = "Mike Harrison vegetarians." I sometimes use cc to help me hear better, but the system TH-cam (I assume) uses has too many mistakes to be useful.

    • @SummerMondays
      @SummerMondays 5 ปีที่แล้ว +4

      Fern Savannah I bet that Hannah and Shane will add CC done by them or the community as soon as they are done. TH-cam’s are the worst.

    • @PurdueAlum01
      @PurdueAlum01 5 ปีที่แล้ว +4

      I dont get it because TH-cam not too long ago put auto generated captions on all the videos on the home tab before you select a video to watch and the captions are actually very decent. Yet the auto generated captions you turn on for the video are STILL pretty awful. How do they (as in TH-cam) have a system that works but not universally use it. Urg...frustrating.

    • @karenjatana4941
      @karenjatana4941 4 ปีที่แล้ว +1

      I need captions to help me understand what they are saying

  • @58jennypenny
    @58jennypenny 5 ปีที่แล้ว +3

    '' that you know of'' you two are made for each other, so witty, your sense of humour is just amazing.

  • @joannegilmour3774
    @joannegilmour3774 3 ปีที่แล้ว +3

    I Love your humour!!!! You both are so personable, its great to watch you interact together!

  • @brittaniebraxton4046
    @brittaniebraxton4046 4 ปีที่แล้ว +130

    “Little Shane” could be your rapper name. 🤣

  • @kassiegrace8859
    @kassiegrace8859 5 ปีที่แล้ว +27

    Happy early birthday Shane!! :) I cant believe you're turning 27.. you seem so much wiser than your age! I love you guys, keep being awesome :)

  • @AmandaDi82
    @AmandaDi82 5 ปีที่แล้ว +9

    My doctor knew right away by my tongue!
    My muscle biopsy also said Type 1, but the genetic testing I did for Spinraza says Type 2

  • @MHThinkinBoutTheEnd
    @MHThinkinBoutTheEnd 5 ปีที่แล้ว +6

    I laugh so much every time I watch you two, Shane's attitude is so positive and Hannah brings out the best in him! I love watching all of your videos, thank you for sharing your lives! Happy early birthday Shane!

  • @beccaalvarez3852
    @beccaalvarez3852 5 ปีที่แล้ว +1

    Shane you have the best sense of humor. I adore how you make the best of your situation. I know that it’s hard for you but you always keep smiling!

  • @taylorhuggins9865
    @taylorhuggins9865 4 ปีที่แล้ว +3

    I'm a straight and married 24 year old mom but I have the biggest crush on both of you, I swear hahaha shane your sense of humor is the best and Hannah your smile gives me tingles. I love you both!!

  • @morganraye7769
    @morganraye7769 3 ปีที่แล้ว +2

    The way they love each other is inspirational

  • @ProfessorofPerseverance
    @ProfessorofPerseverance 5 ปีที่แล้ว +6

    I'm a spinal cord injury from playing football. My service dog Ricardo had a birthday last Saturday. Happy B-day. AWESOME videos!

    • @beelarehman5992
      @beelarehman5992 5 ปีที่แล้ว +1

      Professor of Perseverance Happy Birthday Ricardo 🎂

    • @ProfessorofPerseverance
      @ProfessorofPerseverance 5 ปีที่แล้ว +1

      @@beelarehman5992 Thank you Beela. Have a blessed day.

    • @sherylwilliams1672
      @sherylwilliams1672 5 ปีที่แล้ว +1

      🎈 🎂 🌞 🌻 🌈

    • @ff73qoe
      @ff73qoe 5 ปีที่แล้ว +2

      I'm a C4 quadriplegic due to a roll over car accident 13 years ago. I was on a ventilator with feeding tubes for about 10 months. During my in patient hospital stay I didn't realize how close to death I was but thought I was the most adversely affected by the situation but soon came to see how much my husband, mother, friends and family suffered more than I did.

    • @beelarehman5992
      @beelarehman5992 5 ปีที่แล้ว +1

      Professor of Perseverance thanks! I’ve subscribed

  • @scottotero9374
    @scottotero9374 2 ปีที่แล้ว +1

    My son got diagnosed with type 1 SMA... and we thank the Lord he was eligible for Zolgesma life saving treatment. Thee most expensive drug in the world. God bless the NHS (UK).
    You guys are great. Inspiring !! X

  • @daniellealkhabi84
    @daniellealkhabi84 2 ปีที่แล้ว +4

    These are two amazing humans and I’m so happy they found each other ♥️

  • @infinitypoker6383
    @infinitypoker6383 3 ปีที่แล้ว +2

    Shane I feel very close to you and My birthday is two days before yours happy birthday

  • @TheRisskee
    @TheRisskee 5 ปีที่แล้ว +166

    Oh my God... Right when he said "pull my pants down" an ad came on and I laughed so hard! LOL! TH-cam was like NOPE!

    • @LexiPoreda
      @LexiPoreda 5 ปีที่แล้ว +7

      TheRisskee omg I’m watching this video rn and it did that for me too xD

    • @lindathetford3776
      @lindathetford3776 5 ปีที่แล้ว +5

      XD!!!

    • @susanscovill6817
      @susanscovill6817 5 ปีที่แล้ว +3

      TheRisskee OMG The same thing happened to me. I thought it was just a little ‘interlude’. I giggled.

  • @courtneyraiyn-eshaiyn7815
    @courtneyraiyn-eshaiyn7815 5 ปีที่แล้ว +9

    Shane is appearing to be healthier these days. I think love is the best drug there is. When you are well loved & have someone to share life with, it brings longevity & health to your heart keeping you stronger. It's showing through both of you. Love is so powerful & healing.

    • @maroonmoose
      @maroonmoose 5 ปีที่แล้ว

      I also believe that he started taking a drug i think they're injections that slow/stop his disease from progressing.

  • @raedarden9830
    @raedarden9830 5 ปีที่แล้ว +10

    What AMAZING parents you must have, to have raised such wonderful "kids".

    • @The315fan
      @The315fan 2 ปีที่แล้ว

      They both have lovely parents, who have all featured in their videos if you look more carefully into their channel.

  • @thesimplelife963
    @thesimplelife963 5 ปีที่แล้ว +1

    I completely love you guys! You are pure inspiration. I have fshd muscular dystrophy. I love how you both show we are more than just our bodies. Hannah I love how you give Shane so much normalcy. I hate feeling "different " I love support and nurturing from my husband, but I also love that my husband has normalized my condition. I don't like to feel I'm just my illness, but rather I'm my husband's beautiful wife. After I mourned my health I realized everyones body will break or weaken, but our minds and souls are what matters. I love you Shane and Hannah!

  • @dream2451
    @dream2451 5 ปีที่แล้ว +4

    This was hysterical, It only took me 2 days to read my book, I enjoyed all the amazing laughs, I donated to your Facebook fundraiser! Love you both, keep it up!

  • @deniselussier6086
    @deniselussier6086 4 ปีที่แล้ว +2

    I am in love with the cat pillow Shane is laying on! I know this is a year old video but I’m just finding you guys and I’m so happy I did!!! 💕💕💕

  • @valeriepaz8479
    @valeriepaz8479 5 ปีที่แล้ว +47

    I love you guys, it always makes my day just to watch y'all's videos, y'all always put a smile on my face 😊

  • @MsFawndles
    @MsFawndles 5 ปีที่แล้ว +1

    Hi...huge fan of yours here who lurks. I love to watch your videos, you both touch my heart. Shane's story sparked one of my most intense childhood memories so I had to share.
    When I had my first EMG (electrocution torture test - LOL) I was 6 years old, this was in 1978, they did full body and deep muscle tissue all over arms and legs. It was all needles then, even the surface auxiliary locations on hands and feet that they use sticky electrodes for now. Back then there was only needles (EEGs were the same!).
    Childrens Hospital told my Mom it would be too difficult for her to watch. So my Dad went in with me. They bought me a new Barbie on our way to the appointment to bribe me to be good.
    For most of the test my Dad couldn't touch me. He sat at my feet where I could see him. It was the worst pain I had ever experienced. I cried and screamed a lot, they had to hold me down a lot. But the most memorable part of it was that it was the first time I saw my Dad cry. He cried like a baby the entire time.
    I have had to get EMG's more times than I can count since, and every time a new Neuro tells me they want to do it, a memory of my Dad totally sobbing and red flashes before me, and that brand new Barbie doll in my hand afterward whose hair was completely destroyed during the test from spasming and thrashing around while it was tightly gripped in my hand the entire time.
    It's a horrible experience, and for whatever reason it seems to cause me more pain than most people. It also gave me a HUGE phobia of needles like Shane!

  • @jbkidsco
    @jbkidsco 5 ปีที่แล้ว +85

    please show a pic of a 2 1/2 year old shane in his wheelchair. That has to be the cutest!!!

    • @emilycatherine8589
      @emilycatherine8589 5 ปีที่แล้ว +25

      @mommymode1985 how is it sad? Shane has a good life. He's stated he was really excited to get his first wheelchair, so if he's not sad why are you? Unless you're upholding negative views of what disability means?
      Do you understand how patronising it is to view someones life as sad when they don't?

    • @dartarro21
      @dartarro21 5 ปีที่แล้ว +15

      @mommymode1985 Missing the point

    • @hevbushnell4013
      @hevbushnell4013 5 ปีที่แล้ว +4

      Very sad?!! What?! Not at all. He is happy and living a very fulfilled life.

    • @lollic307
      @lollic307 5 ปีที่แล้ว +2

      @mommymode1985 hes lucky to be alive. Not sad

    • @lollic307
      @lollic307 5 ปีที่แล้ว +3

      @mommymode1985 that is one perspective. Some people cant handle normal healthy babies...my mom was an awful mother and I was not disabled. Now i am 39 and emotionally and psychologically disturbed from years of being unloved and toxic relationships. I AM A BURDEN BC I AM MENTAL CASE. this happy guy in a wheelchair is not a burden. ITS ALL PERSPECTIVE

  • @FelixVW
    @FelixVW 4 ปีที่แล้ว +1

    I wish more people would think like you, Shane and Hannah. You've come to terms with your diagnosis and yet make the best of your life. That's really admirable and people should look at you as an example of happy living with a wheelchair. A really happy life - and your sense of humor is very cool and addictive.
    I worked and work with people with disabilities, and I study medicine - I want to be a neurologist. You're great the way you are. Really.
    Regards from Germany.

  • @beautifulsunset4071
    @beautifulsunset4071 5 ปีที่แล้ว +120

    "I came right out in my wheelchair." 😂 Too funny. Happy Birthday, Shane!! 🎉🎂🎈

  • @stephaniecline571
    @stephaniecline571 5 ปีที่แล้ว +2

    May 28th is my son's birthday as well. He's 17 years old🤗🎂Happy birthday Shane! You are an inspiration and your sense of humor is awesome!!!!

  • @Amyrhianna101
    @Amyrhianna101 5 ปีที่แล้ว +5

    I could watch you two all day. You both have so much chemistry and your sense of humour Shane 👌🏻👌🏻👌🏻

  • @alejandrahincapie6648
    @alejandrahincapie6648 5 ปีที่แล้ว +2

    My birthday is May 28th too!!! Happy late birthday. I just started following the channel and I think is great!

  • @kathifoynm
    @kathifoynm 5 ปีที่แล้ว +6

    Thanks for filling us in on your diagnosis journey. You were such a cute munchkin. Hugs to you both.

  • @kimberli2391
    @kimberli2391 5 ปีที่แล้ว +2

    Love your spunk. “Bloom where you are planted”, is an old saying, you sir, have bloomed, grown and developed into an amazing man! ‘Laughter is a good like a medicine’, a bible quote, shows a great way to cope with the frustrations of your disease. Well played, keep it up.

  • @clenaghen123
    @clenaghen123 5 ปีที่แล้ว +5

    Look forward to watching you each day,,, thank you for letting us be part of your journey!

  • @gdhse3
    @gdhse3 3 ปีที่แล้ว +1

    I love the way how you two interact with each other it's so sweet

  • @pjmcgovern2277
    @pjmcgovern2277 5 ปีที่แล้ว +160

    Omg I just decided I want baby pictures of both of you so cute

  • @Lindamartin-ml1nv
    @Lindamartin-ml1nv 6 หลายเดือนก่อน

    I love this couple !!! I'm 75 yrs old and I just regret that I could have watched this couple when I was a child !! I would have learned quickly about life and love which has taken me most of my life to learn !!❤❤

  • @SixBlindKids
    @SixBlindKids 5 ปีที่แล้ว +29

    Hi there! You guys are so funny! Laughter is good like a medicine. So appropriate your life, and charity is aptly named! Love you both! ♥️

    • @ottelisezipporah-isadora8070
      @ottelisezipporah-isadora8070 5 ปีที่แล้ว +2

      Hi Karen...! Yes indeed.. Laughter isss the best medicine!

    • @SixBlindKids
      @SixBlindKids 5 ปีที่แล้ว +1

      @@ottelisezipporah-isadora8070 Hi Astrid! That was Joe, but this is Karen! LOL! I have forbidden him from using emojis, but he won't listen! 🤣😄😁❤❤❤😉

    • @ottelisezipporah-isadora8070
      @ottelisezipporah-isadora8070 5 ปีที่แล้ว +1

      @@SixBlindKids Lolol!

  • @surfsister
    @surfsister 5 ปีที่แล้ว +1

    I love how self-entertaining Shane is. The fact that he cracks himself up cracks me up!

  • @annesullivan7025
    @annesullivan7025 4 ปีที่แล้ว +15

    Maybe I missed this in an earlier video, but what is the explanation or meaning behind “Squirmy & Grubs”.
    I have really enjoyed all of your videos!!

    • @madeline799
      @madeline799 4 ปีที่แล้ว +8

      squirmy is Hannah because she moves a lot in her sleep and grubs is Shane because his hands are really sweaty and grubby

  • @AnnetteMurphyger
    @AnnetteMurphyger 5 ปีที่แล้ว

    I have a form of Muscular Dystrophy myself and almost 52 now and have to use walking aids to get around. I got dianosed with late in life. Your sense of humour is very very refreshing.

  • @shellychatelain9377
    @shellychatelain9377 5 ปีที่แล้ว +5

    Well ... you are a fantastic young couple and compliment each other nicely. Thank you for sharing your life with the rest of us Shane and Hannah. I wish you well and I am sure you will have a fabulous life together. It looks like fun to me!

  • @kd6752
    @kd6752 5 ปีที่แล้ว +1

    Hey Shane and Hannah, I just wanted to say I love your videos! My little brother has a chrome disorder and is disabled so I absolutely love your positive attitudes! So inspiring and fun to watch ❤️

  • @allycat528
    @allycat528 5 ปีที่แล้ว +7

    Omg my birthdays on May 28th too!!! Happy birthday Shane!!!!!!!!

  • @susanmarcoullier1184
    @susanmarcoullier1184 3 ปีที่แล้ว +1

    Hannah you are amazing sticking with Shane. You are a beautiful woman and Shane is so luck to have you

  • @wenbenny13
    @wenbenny13 5 ปีที่แล้ว +8

    Love you both! And LOVE Hannah’s “nopes” in every video..hysterical 😆❤️

  • @jwalt8019
    @jwalt8019 4 ปีที่แล้ว +2

    You two are awesome. I love your banter and your relationship.

  • @ashleydjanie7633
    @ashleydjanie7633 5 ปีที่แล้ว +7

    Hey we are birthday buddies I'm the day after you. Love you both. Have an amazing birthday Shane lots of love

  • @astioffutt8110
    @astioffutt8110 5 ปีที่แล้ว +2

    My birthday is May 28th too! Happy Belated Birthday twinsie. I agree....it is the best day of the year 🎂✌👏🙌

  • @Sara-rr1lu
    @Sara-rr1lu 4 ปีที่แล้ว +3

    It was a needle. Nerve conduction test. The zap is quick, but it’s absolutely terrifying. I laughed every time. Idk why, but the doctor said she’s never actually had anyone laugh through it. Pretty sure I was just soo terrified that I didn’t know what else to do, LOL. Thank God you were a baby!!

  • @kimvannote5024
    @kimvannote5024 5 ปีที่แล้ว

    Love you guys. Want to tell you - I live in Mpls. and grew up in the 60's-70's. My brother Michael and I had 3 best friends who had Muscular Dystrophy - Timmy, Michael and Terry McPhee. Timmy and Michael were (Fraternal Twins) and Terry was their older sister. They passed away in their 20's in the 70's. I will Never Stop Missing Them! They were Brilliant and the Most Beautiful People I've ever met in my life. We had so much fun!! Never Forget. Terry had a recipe for Beef Enchiladas and we'd make them a lot. To this day, I've never had Enchiladas like that in my life and I misplaced the recipe! through a move I made. NO!!! I'm so glad I found you guys here on You Tube. Thanks for sharing Shane. GOD BLESS YOU!

  • @Timothy-NH
    @Timothy-NH 5 ปีที่แล้ว +34

    You two were so meant to be together; you're two peas in a pod!

  • @jeanzyc.5103
    @jeanzyc.5103 5 ปีที่แล้ว

    My brother had muscular atrophy. He was one of the most amazing people I've ever met. Gary was one of the first Jerry's kids for Michigan, before it was televised. I miss him so much. You two are wonderful.

  • @Woopwoopwill
    @Woopwoopwill 5 ปีที่แล้ว +5

    Thanks for the explanation. It's a very complex neuromuscular infection you got from a mosquito bite. I got it..lol
    Dude you are so very very lucky. The way Hannah looks at you ,she absolutely loves and adores you.
    She hangs on your every word.
    So awesome to watch you both interact.
    And my stomach gets a good workout too.lol

    • @JamaicanRain
      @JamaicanRain 5 ปีที่แล้ว +1

      Actually, kinda happens with Lyme disease.

  • @sarabrant723
    @sarabrant723 5 ปีที่แล้ว

    My bday is the 28th yay!!!! Love you guys! You show people love has no boundaries. It doesn't matter if you're able-bodied or if you have a disability like yours. It doesn't matter you can still be with that person and be happy and love each other! You show people that there is hope even if you have a disability that you can still find love and I think that's amazing! I love your channel and I wish you guys nothing but continued happiness!

  • @JD-rq3ur
    @JD-rq3ur 5 ปีที่แล้ว +14

    "And then they had to cut his little baby leg..." LMAO! Hannah explaining medical procedures is EVERYTHING!

  • @rollwiththepunches5932
    @rollwiththepunches5932 4 ปีที่แล้ว

    Your so cool Shane! i broke my neck surfing in 1998..... it was very traumatic but im doing ok despite my disability. i share my story on my channel to hopefully inspire others. thanks again mate

  • @maryabendon845
    @maryabendon845 5 ปีที่แล้ว +3

    Omg I love these 2- gives me faith in humanity- truly an inspiration for all us crazy couples lol

  • @judycook1918
    @judycook1918 4 ปีที่แล้ว

    You never fail to make me smile. You have no idea what a rare treat that is for me. Thank you.