I have been healing from a nerve injury for about a year and a half, and I feel I have learned a lot about the nerve healing process through this experience. ✩ Related Videos: → More about my injury & how I got hurt: th-cam.com/video/RKFenFbmh8o/w-d-xo.html → An ode to my healing body: th-cam.com/video/A2gJci6KzRo/w-d-xo.html → On chronic pain & substance use: th-cam.com/video/XuL9h-ew50Y/w-d-xo.html → I healed my chronic UTIs without antibiotics: th-cam.com/video/06SLcpnU9cc/w-d-xo.html → Muscle pain vs. nerve pain: th-cam.com/video/VvitsQBuJHM/w-d-xo.html I always knew that the medical approach to my specific injury-pudendal neuralgia-was flawed due to what I thought may be a misunderstanding of *pudendal* nerve healing; however, a recent experience in a totally different area of medicine-dentistry-made me question if this misunderstanding is consistent in general nerve healing in most, if not all, areas of healthcare. I don’t blame providers, nor do I think all providers share this misunderstanding of nerve healing, and I am very open to being wrong; however, I am curious to know what you think or if you’ve had any experiences that parallel mine/support this hypothesis? Of course, only share if you’re comfortable, and I do hope that this video is helpful in some way 🧡
I find your video very interesting. I have fibromyalgia and i believe our current medical system doesn't do a good job at connecting the dots. When i visit my dentist i have to make him aware of how sensitive my nervous system is, including my gums and teeth. He looks at me like I'm speaking a language he doesn't understand. I then have to tell him they way i should be treated before he injects novocaine. The area needs to be first, topically numb. Wait at least 5 minutes before he injects it. Luckily, he does it, but i still feel he doesn't connect the dots between my fibromyalgia and how my nervous system affects all parts of my body differently than a person who doesn't have my condition. Sometimes, even if someone touches me while talking, it is enough for me to get a flare. Unfortunately, the only med that helps me is tramadole, which i take on a daily basis. I'm now following a protocol of high thiamine which apparently helps with the milard (i think it's the name of membrane that cover the nerves in ones body. Which seems to be deficient in my condition according to an Australian researcher I'm following.
I experienced TBI post concussion symptoms for a year and a half. Ever since I injured my brain my gastrointestinal system has been hay-wire. I have had endoscopy and MRI and colonoscopy and trulance. I will be having pelvic floor therapy next. I am convince the Brain injury caused the gastrointestinal issues and it is a kind of nerve broken connection concern. I hope the therapy will retrain the nerve response needed for the issues to recede.
Hi Tori, I'm so happy your pelvic nerve issue is healing, I'm sorry to hear about your tooth nerve pain though. I totally get where you're coming from. I'm an integrative counsellor in the uk. I'm 49 and I have kyphoscoliosis with Harrington rods, tethered spinal cord syndrome, split spinal cord, fatty filum terminale and osteoarthritis in my facet joints. The thing that causes me the most pain is my tethered cord. I had a surgery to untether my cord but surgery was abandoned due to too much fibrous tissue. My nerve pain causes bilateral sciatica, pain in my back, bum cheeks and underneath into my lady parts. I'm on pregabalin and my pain is nowhere near under control and I kind of just exist from one day to the next trying to manage the pain as I go. I've had 2 injections into my facets for the osteo. The first gave me relief from arthritic pain for 8 weeks, the 2nd did nothing. I still have full control over my bladder (thankfully) but get regular ibs and trapped painful wind. I'm rambling now sorry. I wanted to say I too have had an issue with the nerve in my tooth which led to my root canal and a crown, I was in a lot of pain before I had my root canal though because my tooth split and the nerve was exposed. I really felt your confusion over the handling of the nerve pain in your tooth compared to the nerve pain in your pelvis. I was drawn to comment because I've known nerve pain for a long time from my waist down and they (consultants) cannot offer me any more surgery. So, in my case when I was offered a root canal for my tooth pain I jumped at the chance (metaphorically!) Haha. Take care, and I hope both your nerves heal soon. Keep up the great work. ❤
Tracey, I am so sorry to learn about your spine and spinal cord conditions as well as your IBS and bloating - especially learning that your tethered cord causes you different forms of nerve pain. I feel I can really understand what you mean when you say you're just existing from one day to the next trying to manage your pain. I don't blame you for jumping at the root canal one bit, and I really hope that it did the trick and you no longer experience tooth pain. Chronic, "mysterious" conditions can be so difficult to endure. Our healthcare system (at least in the US, I'm not sure if the UK is more supportive) just isn't set up to help someone actually treat these types of conditions - it's all "management" based, and tends to lend itself to whatever Medicine decides is the most up-to-date management intervention... instead of actually taking the time to understand the person, their story, and using that information to help that person heal. I know how dark chronic pain can be, and I also know that there is a difference between mislabeled "chronic" conditions and truly chronic conditions. I understand that a tethered cord and surgical anatomical changes like Harrington rods are different than more "straightforward" nerve injuries, and it is NEVER my intention to claim to know more about your body and your conditions than you do. I know that isn't true and will never be true. But please, please, PLEASE don't give up on your body's ability to improve itself. Bodies are such incredible organisms capable of so, so much healing, and while I know not everything can be fully healed, I also know that things can get better. Don't give up on getting better. On the power of your brain-body connection. On the power of your soul (look at your strength and all that you've endured!). There is a lot of talk about the "rainbow at the end of the storm," and that's great. I get why the rainbow gets so much attention. But my gosh, sometimes surviving the storm is what deserves praise. If that's all you do in a day - survive - that's just as worthy of celebration. I don't know if this is a safe option for you and I cannot make any health recommendations, I can only share my personal experience. That being said, Kratom really helped me create distance between me and my pain experience when my nerve pain was at its worst. Definitely do your research, there are different strains/doses that vary pending on what you're trying to treat/your body weight/etc. But it was a godsend when things were really, really bad. Don't ever apologize for rambling! I really enjoy interacting on here, and I don't mind any length comment ❤️ sending you a big internet hug!
You should TH-cam Dr Ellie Philips she is to Dental health what you are to Pelvic Empowerment .. I am watching you both and learning what I have never learned about both in 74 yrs of life ..
Hi, I may not have your exact issue but I certainly can relate. I had a lamenectomy to my T10&11 back in July 2017 & had a hematoma in the surgical site during post op. Was rushed back to surgery (I'm also a heart patient on warfarin & switched to a heparin drip before surgery). Anyway, I'm left with nerve painon both sides of my hips where it meets the buttocks & my groin was affected. Sometimes the groin feels internally hard like I've been hit with a baseball bat & it hurts. Other times, it may not hurt but is completely numb. The nerve damage runs from my hips down to my toes. It's better than it was the first 3 years but still have 24-7 pain & I can't bend or walk normal. I can't dance, jump or sit any way I'd like. Meds don't work. I've been in/out of phy therapy & was sent out on my own since I'm at an embassy. Neurosurgeon wants me to give steroid shots another try (didn't work & I had a reaction after the last one 2 yrs ago). All you said makes perfect sense & what I've read, nerves grow extremely slow. I haven't given up & hope/pray the nerve pain eventually goes away. It also interferes with my sleep. Oh & I had surgery at age 57 & I'm 61 now. Thanks for sharing your story & giving me an opportunity to share mine. 🙏 & blessings!
Hi Sheila! I remember chatting with you earlier this year. Thank you so much for taking the time to share your story so openly and honestly here - I'm hopeful that someone else will read the comments section silently and feel less alone. While I am SO sorry to learn that you are still suffering, I am SO happy that you haven't given up! I hope that you've had some success learning more about the brain-body connection and medical tr*uma, and if there's anyway to tackle sleep, I am a firm believer that sleeping is an important healing time for the body. Thinking of you and wishing you well ❤️
@@PelvicEmpowerment Thanks for replying & you have a great memory. The info you share, both professionally & personally is priceless! Docs normally forget the power of the mind, body & spirit & address situations very clinically. Thanks for sharing your story & connecting the dots.
@@sheilacostello3205 I wish mind, body, and spirit were addressed together more regularly in medicine, too. And thank you, I'm so glad you find the content I share helpful! 🧡
Neurology is in a very primitive stage. Neurological disorders are poorly understood and the tools that doctors have to deal with them are blunt and limited. It's assumed that nerves don't heal fully, but this hasn't really been confirmed and we now know that nerves are much tougher than previously believed and do not break very easily. Pain itself is more complex than plain damage and we know our beliefs about pain affect the pain we feel. Even in the case of damage, our bodies are designed to adapt and overcome so it seems unlikely that we cannot compensate and heal in response to nerve damage when there is so much evidence of compensation in other parts of the body.
I completely agree about neurology and the limited tools that physicians have in their toolboxes. I think my wish for medicine is a little too idealistic, in that I want a holistic, evidence-based approach that considers lifestyle, diet, genetics, and movement as well as medication, injections, surgery etc. but there's no real way to profit off of a model that gives so much time to each person... and if you step outside of medicine to give that time then you only treat the people who can afford it because you need to make money as a provider. I will be creating a series (free) and a book (for those who want to hold and read something) dedicated to what I've learned about pudendal neuralgia, but I'm starting to think it could be applicable on a much wider scale. And YES! Yes to what you've said about pain. I am ECSTATIC that pain science and the brain-body relationship is FINALLY getting the attention it deserves in mainstream medicine. I'm concerned about the pendulum swinging too far to that side (in that ALL pain can be cured with brain-body techniques), but I'm still glad for it.
Your dentist will get a shock when he turns around and your in the chair with your legs up.... Clears throat: wrong end mam! More seriously you know my issues...i will comment once I have watched the video in full.
Hi Tori I have nerve damage after being diagnosed with Cauda Equina, have lots of numbness including in backside, saddle area, I am only 5 weeks post op but would love to talk to you about your experience with nerve healing? If you are happy to reach out let me know and I'll send you my email, thanks so much!!!
I have been healing from a nerve injury for about a year and a half, and I feel I have learned a lot about the nerve healing process through this experience.
✩ Related Videos:
→ More about my injury & how I got hurt: th-cam.com/video/RKFenFbmh8o/w-d-xo.html
→ An ode to my healing body: th-cam.com/video/A2gJci6KzRo/w-d-xo.html
→ On chronic pain & substance use: th-cam.com/video/XuL9h-ew50Y/w-d-xo.html
→ I healed my chronic UTIs without antibiotics: th-cam.com/video/06SLcpnU9cc/w-d-xo.html
→ Muscle pain vs. nerve pain: th-cam.com/video/VvitsQBuJHM/w-d-xo.html
I always knew that the medical approach to my specific injury-pudendal neuralgia-was flawed due to what I thought may be a misunderstanding of *pudendal* nerve healing; however, a recent experience in a totally different area of medicine-dentistry-made me question if this misunderstanding is consistent in general nerve healing in most, if not all, areas of healthcare. I don’t blame providers, nor do I think all providers share this misunderstanding of nerve healing, and I am very open to being wrong; however, I am curious to know what you think or if you’ve had any experiences that parallel mine/support this hypothesis? Of course, only share if you’re comfortable, and I do hope that this video is helpful in some way 🧡
I find your video very interesting. I have fibromyalgia and i believe our current medical system doesn't do a good job at connecting the dots. When i visit my dentist i have to make him aware of how sensitive my nervous system is, including my gums and teeth. He looks at me like I'm speaking a language he doesn't understand. I then have to tell him they way i should be treated before he injects novocaine. The area needs to be first, topically numb. Wait at least 5 minutes before he injects it. Luckily, he does it, but i still feel he doesn't connect the dots between my fibromyalgia and how my nervous system affects all parts of my body differently than a person who doesn't have my condition. Sometimes, even if someone touches me while talking, it is enough for me to get a flare. Unfortunately, the only med that helps me is tramadole, which i take on a daily basis. I'm now following a protocol of high thiamine which apparently helps with the milard (i think it's the name of membrane that cover the nerves in ones body. Which seems to be deficient in my condition according to an Australian researcher I'm following.
I experienced TBI post concussion symptoms for a year and a half. Ever since I injured my brain my gastrointestinal system has been hay-wire. I have had endoscopy and MRI and colonoscopy and trulance. I will be having pelvic floor therapy next. I am convince the Brain injury caused the gastrointestinal issues and it is a kind of nerve broken connection concern. I hope the therapy will retrain the nerve response needed for the issues to recede.
Hi Tori, I'm so happy your pelvic nerve issue is healing, I'm sorry to hear about your tooth nerve pain though. I totally get where you're coming from. I'm an integrative counsellor in the uk. I'm 49 and I have kyphoscoliosis with Harrington rods, tethered spinal cord syndrome, split spinal cord, fatty filum terminale and osteoarthritis in my facet joints. The thing that causes me the most pain is my tethered cord. I had a surgery to untether my cord but surgery was abandoned due to too much fibrous tissue. My nerve pain causes bilateral sciatica, pain in my back, bum cheeks and underneath into my lady parts. I'm on pregabalin and my pain is nowhere near under control and I kind of just exist from one day to the next trying to manage the pain as I go. I've had 2 injections into my facets for the osteo. The first gave me relief from arthritic pain for 8 weeks, the 2nd did nothing. I still have full control over my bladder (thankfully) but get regular ibs and trapped painful wind. I'm rambling now sorry. I wanted to say I too have had an issue with the nerve in my tooth which led to my root canal and a crown, I was in a lot of pain before I had my root canal though because my tooth split and the nerve was exposed. I really felt your confusion over the handling of the nerve pain in your tooth compared to the nerve pain in your pelvis. I was drawn to comment because I've known nerve pain for a long time from my waist down and they (consultants) cannot offer me any more surgery. So, in my case when I was offered a root canal for my tooth pain I jumped at the chance (metaphorically!) Haha. Take care, and I hope both your nerves heal soon. Keep up the great work. ❤
Tracey, I am so sorry to learn about your spine and spinal cord conditions as well as your IBS and bloating - especially learning that your tethered cord causes you different forms of nerve pain. I feel I can really understand what you mean when you say you're just existing from one day to the next trying to manage your pain. I don't blame you for jumping at the root canal one bit, and I really hope that it did the trick and you no longer experience tooth pain.
Chronic, "mysterious" conditions can be so difficult to endure. Our healthcare system (at least in the US, I'm not sure if the UK is more supportive) just isn't set up to help someone actually treat these types of conditions - it's all "management" based, and tends to lend itself to whatever Medicine decides is the most up-to-date management intervention... instead of actually taking the time to understand the person, their story, and using that information to help that person heal.
I know how dark chronic pain can be, and I also know that there is a difference between mislabeled "chronic" conditions and truly chronic conditions. I understand that a tethered cord and surgical anatomical changes like Harrington rods are different than more "straightforward" nerve injuries, and it is NEVER my intention to claim to know more about your body and your conditions than you do. I know that isn't true and will never be true. But please, please, PLEASE don't give up on your body's ability to improve itself. Bodies are such incredible organisms capable of so, so much healing, and while I know not everything can be fully healed, I also know that things can get better. Don't give up on getting better. On the power of your brain-body connection. On the power of your soul (look at your strength and all that you've endured!).
There is a lot of talk about the "rainbow at the end of the storm," and that's great. I get why the rainbow gets so much attention. But my gosh, sometimes surviving the storm is what deserves praise. If that's all you do in a day - survive - that's just as worthy of celebration.
I don't know if this is a safe option for you and I cannot make any health recommendations, I can only share my personal experience. That being said, Kratom really helped me create distance between me and my pain experience when my nerve pain was at its worst. Definitely do your research, there are different strains/doses that vary pending on what you're trying to treat/your body weight/etc. But it was a godsend when things were really, really bad.
Don't ever apologize for rambling! I really enjoy interacting on here, and I don't mind any length comment ❤️ sending you a big internet hug!
You should TH-cam Dr Ellie Philips she is to Dental health what you are to Pelvic Empowerment .. I am watching you both and learning what I have never learned about both in 74 yrs of life ..
Hi, I may not have your exact issue but I certainly can relate. I had a lamenectomy to my T10&11 back in July 2017 & had a hematoma in the surgical site during post op. Was rushed back to surgery (I'm also a heart patient on warfarin & switched to a heparin drip before surgery). Anyway, I'm left with nerve painon both sides of my hips where it meets the buttocks & my groin was affected. Sometimes the groin feels internally hard like I've been hit with a baseball bat & it hurts. Other times, it may not hurt but is completely numb. The nerve damage runs from my hips down to my toes. It's better than it was the first 3 years but still have 24-7 pain & I can't bend or walk normal. I can't dance, jump or sit any way I'd like. Meds don't work. I've been in/out of phy therapy & was sent out on my own since I'm at an embassy. Neurosurgeon wants me to give steroid shots another try (didn't work & I had a reaction after the last one 2 yrs ago). All you said makes perfect sense & what I've read, nerves grow extremely slow. I haven't given up & hope/pray the nerve pain eventually goes away. It also interferes with my sleep. Oh & I had surgery at age 57 & I'm 61 now. Thanks for sharing your story & giving me an opportunity to share mine. 🙏 & blessings!
Hi Sheila! I remember chatting with you earlier this year. Thank you so much for taking the time to share your story so openly and honestly here - I'm hopeful that someone else will read the comments section silently and feel less alone. While I am SO sorry to learn that you are still suffering, I am SO happy that you haven't given up! I hope that you've had some success learning more about the brain-body connection and medical tr*uma, and if there's anyway to tackle sleep, I am a firm believer that sleeping is an important healing time for the body. Thinking of you and wishing you well ❤️
@@PelvicEmpowerment
Thanks for replying & you have a great memory. The info you share, both professionally & personally is priceless! Docs normally forget the power of the mind, body & spirit & address situations very clinically. Thanks for sharing your story & connecting the dots.
@@sheilacostello3205 I wish mind, body, and spirit were addressed together more regularly in medicine, too. And thank you, I'm so glad you find the content I share helpful! 🧡
You are so wonderful! Thank you for everything❤️🙏🏻
Oh my gosh, thank you so much for the kind words 🧡
Hello Tori, can you share your pudendal nerve healing routine video? it says it's private.Thanks
fabulous thanks
will follow
Hi , thank you !
Thank you so much for watching and commenting ❤️
Very informative
I'm so glad ❤️
Neurology is in a very primitive stage. Neurological disorders are poorly understood and the tools that doctors have to deal with them are blunt and limited. It's assumed that nerves don't heal fully, but this hasn't really been confirmed and we now know that nerves are much tougher than previously believed and do not break very easily.
Pain itself is more complex than plain damage and we know our beliefs about pain affect the pain we feel. Even in the case of damage, our bodies are designed to adapt and overcome so it seems unlikely that we cannot compensate and heal in response to nerve damage when there is so much evidence of compensation in other parts of the body.
I completely agree about neurology and the limited tools that physicians have in their toolboxes. I think my wish for medicine is a little too idealistic, in that I want a holistic, evidence-based approach that considers lifestyle, diet, genetics, and movement as well as medication, injections, surgery etc. but there's no real way to profit off of a model that gives so much time to each person... and if you step outside of medicine to give that time then you only treat the people who can afford it because you need to make money as a provider. I will be creating a series (free) and a book (for those who want to hold and read something) dedicated to what I've learned about pudendal neuralgia, but I'm starting to think it could be applicable on a much wider scale.
And YES! Yes to what you've said about pain. I am ECSTATIC that pain science and the brain-body relationship is FINALLY getting the attention it deserves in mainstream medicine. I'm concerned about the pendulum swinging too far to that side (in that ALL pain can be cured with brain-body techniques), but I'm still glad for it.
I'm dying to know...how is your tooth today?
Your dentist will get a shock when he turns around and your in the chair with your legs up....
Clears throat: wrong end mam!
More seriously you know my issues...i will comment once I have watched the video in full.
😂😂😂 hahaha, I also found it ironic to have issues at both ends!
Hi Tori I have nerve damage after being diagnosed with Cauda Equina, have lots of numbness including in backside, saddle area, I am only 5 weeks post op but would love to talk to you about your experience with nerve healing? If you are happy to reach out let me know and I'll send you my email, thanks so much!!!