I'm so sorry you're going through this . I believe I have lots or dysautonomia. I have long covid and am now in a wheelchair because I cant walk for or stand long and its exhausting. This week I had 2 bad episodes . One I was twitching all over and shaking for 20 minutes and my heart rate was at 105-120 for 2 hrs . I would have bad episodes that were like 8 hrs long and nobody can help me . The 2nd episode I had this week was so severe I thought I was having a stroke . My body was so tight and clinched .y chest had so much pressure on it I got super dizzy I couldn't talk or walk I lost all consciousness and I just laid down for an hr and it got better . But idk what to do . My cardiologist doesn't know what to do . Im in the middle of finding a new one but I have bad health insurance. Its been like this for over a year and its so scary I just lay down and suffer Idk what to do . Psyical and mental exertion cause me to feel real crummy. If I push it a little I have these bad episodes . Im sorry just know I love you and stay strong 💪. My mother doesn't help me and kind of just ignores the situation. Im 30 and my gf helps me through this but its ruining our relationship. I was so active and full of life before this I just want some help
I’m really sorry this is all happening to you. A woman I know has multiple illnesses. One of them happens to be epilepsy. One thing she found out, after I suggested to her to track them on a calendar, is that it was always happening right before her period. I highly suggest you track them, if you aren’t already are. I hope they figure this all out for you. Please hold on. Your health is complicated, but someone (doctor) out there can figure this out, or get a lot closer to it than you are now. I’m sending a virtual hug. Make sure to reach out to people who can cheer you up. If ever you want a penpal, I would love to. 💛
Oh, lovey…. I don’t know what to say. I love you and I’m always thinking of you. You can message me through Instagram if you’re upset. I know how scary episodes can be. Hugs ❤️
@@ChronicallyCourageous you bet lovey! Your tears made me cry because I’m having some issues of my own that my doctors can’t figure out. I understand the pain and the frustration
I'm so sorry you're going through this. I have an epileptic dog who gets seizures once a month. And the symptoms you are describing are exactly what happens when he has a seizure. He kicks super hard and wets the bed. He overheats and after he wakes up from one he has zero idea who he is, where he is, who we are. We have him on 5 different meds. He's on gabapentin, Keppra XR, phenobarbital, etc. That I have to give him twice a day every 12 hours or he will have another seizure. The symptoms you describe are literally like seizures. If he sits on something hot, he will have a seizure that night. I watch your book videos and the last time you updated you said you were going to get that at home test done, did it trigger an episode? I've been wondering how that went. Did you end up vlogging the experience?
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The more you share about your journey the more I admire you. You are so strong. Keep fighting!
thank you❤️❤️❤️
Sending you love! Thanks for sharing ❤️
thank you dani❤️ love and miss you
I'm so sorry you're going through this . I believe I have lots or dysautonomia. I have long covid and am now in a wheelchair because I cant walk for or stand long and its exhausting. This week I had 2 bad episodes . One I was twitching all over and shaking for 20 minutes and my heart rate was at 105-120 for 2 hrs . I would have bad episodes that were like 8 hrs long and nobody can help me . The 2nd episode I had this week was so severe I thought I was having a stroke . My body was so tight and clinched .y chest had so much pressure on it I got super dizzy I couldn't talk or walk I lost all consciousness and I just laid down for an hr and it got better . But idk what to do . My cardiologist doesn't know what to do . Im in the middle of finding a new one but I have bad health insurance. Its been like this for over a year and its so scary I just lay down and suffer Idk what to do . Psyical and mental exertion cause me to feel real crummy. If I push it a little I have these bad episodes . Im sorry just know I love you and stay strong 💪. My mother doesn't help me and kind of just ignores the situation. Im 30 and my gf helps me through this but its ruining our relationship. I was so active and full of life before this I just want some help
❤God bless you❤
I’m really sorry this is all happening to you. A woman I know has multiple illnesses. One of them happens to be epilepsy. One thing she found out, after I suggested to her to track them on a calendar, is that it was always happening right before her period. I highly suggest you track them, if you aren’t already are. I hope they figure this all out for you. Please hold on. Your health is complicated, but someone (doctor) out there can figure this out, or get a lot closer to it than you are now. I’m sending a virtual hug. Make sure to reach out to people who can cheer you up. If ever you want a penpal, I would love to. 💛
thank you so much❤️
I hope you can get some answers soon. Hugs!! You’re so strong Avery!!
thank you so much Khadija❤️
I’m sorry you have to go through this. Sending you hugs. 🫂💙
thanks monica❤️
I imagine this is so scary. Thank you for sharing 💜💜💜💜
thank you so much Chloe ❤️
❤God bless you hon❤
🙋🏻Hello from🇮🇹Italy
Oh, lovey…. I don’t know what to say. I love you and I’m always thinking of you. You can message me through Instagram if you’re upset. I know how scary episodes can be. Hugs ❤️
thank you so so so much Lindsey💛
@@ChronicallyCourageous you bet lovey! Your tears made me cry because I’m having some issues of my own that my doctors can’t figure out. I understand the pain and the frustration
I'm so sorry you're going through this. I have an epileptic dog who gets seizures once a month. And the symptoms you are describing are exactly what happens when he has a seizure. He kicks super hard and wets the bed. He overheats and after he wakes up from one he has zero idea who he is, where he is, who we are. We have him on 5 different meds. He's on gabapentin, Keppra XR, phenobarbital, etc. That I have to give him twice a day every 12 hours or he will have another seizure. The symptoms you describe are literally like seizures. If he sits on something hot, he will have a seizure that night. I watch your book videos and the last time you updated you said you were going to get that at home test done, did it trigger an episode? I've been wondering how that went. Did you end up vlogging the experience?
thanks for your comment❤️ yes i ended up filming a few clips
I'm on Keppra. Didn't know dogs can take Keppra.
@Coffee Cay Cay they sure can! He's been on it for 9 years now. He hates taking it, but with low fat cream cheese, good to go, haha.