my experience with an at home EEG & heart monitor
ฝัง
- เผยแพร่เมื่อ 16 ก.ค. 2022
- Hi, y'all!❤️ Here is my vlog of what happened to me during my 72 hr EEG.
Please leave any questions for me in the comments :)
Thanks so so much for watching!!
✨ABOUT ME✨
Hi, y'all!! My name is Averie and I am a 23-year-old college student studying to become a teacher! I fell in love with making TH-cam videos when I started my BookTube channel in 2017. It has become a huge passion of mine, and so many people have persuaded me to start a new channel talking about all things gluten-free and chronic illness-related! I found out I have Celiac Disease when I was seven, and have been Gluten Free ever since! During this pandemic, I have gotten really into cooking and baking and I have been loving all of the different types of recipes that I have been trying. I was also diagnosed with POTS when I was 17, and other chronic illnesses in the years following. I made this channel in hopes that people with other disabilities and chronic illnesses can feel seen and heard. This is also a safe place for me to vent about my health issues, struggles, and triumphs.
✨SOCIALS✨
Chronically Courageous Apparel & Mug: www.bonfire.com/store/avasrom...
Booktube Channel: / darkblueluver27
Instagram: chronically...
Bookmark Etsy Shop: www.etsy.com/shop/averieloves...
Email: avasromancebooks@yahoo.com
TikTok: @ avasromancebooks
Intro and Outro Music is from: www.bensound.com
xoxo Averie 💕
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I have epilepsy and feel like I just found a friend in you. I just discovered your channel and just subscribed! Thank you! We are chronically courageous ❤️
I'm getting my 96 hours done this Friday. So glad I found your video 💕
I’m getting a 72 hr EEG on the 4th and I’m very nervous. It’s been 5 yrs of passing out without any definitive reason or even warning. This video has helped to ease my anxiety about it. So thank you ❤
Averie, what you are experiencing is real and is indeed terrifying. Feeling anger and frustration when the testing is negative is a totally reasonable response. Unless asked, I make no recommendations on how others who are chronically ill should handle these things. But I can share my own situation. Two caring practitioners taught me how to practice self-compassion when I felt like a failure. I could not manage the anxiety caused by inconclusive tests for symptoms that could not be provoked on demand in order to make a differential diagnosis. I thought I should be able to manage it all by myself and when I couldn’t, it took a tremendous toll on my self-esteem. I am learning to treat myself with kindness and not expect to be a Superheroine during a chronic illness “perfect storm.” It is even more complex when we have more than one chronic illness to address. You may not know it, Averie, but you provide inspiration and hope to many of us who live with chronic illness, and those who care for us. You have done everything you possibly can to help yourself, and I hope you can find it in your heart to commend yourself for that. There is no “right way” you should think and feel. Your authentic self is quite wonderful just as you are. I will continue to pray for you each day and share your courageous story with my husband and my best friend who are always anxious for updates on how you are doing. And I know you will be an even better teacher for having successfully navigated your life challenges.
My darling, you are not insane. You are wonderful and fighting a big battle. I was in the hospital for 5 days of testing and nothing!! happened. I have seizures 12 to 14 days each month. As much as I don't like them I'm more annoyed by the whole thing. Keep your head up high; you are very brave.
As someone who goes through the SAME thing and heat, stress, etc triggers mine. You're NOT alone and I've been dealing with it for 10 years. Mine are random too. You are brave! You are doing great!
I'm starting a 96-hr video EEG this morning. I'm right there with you with chronic illness. Keep inspiring! ❤
ily ❤
This whole experience sounds so frustrating and draining. It's hard enough to deal with the physical side of a chronic illness, but the mental side is just as difficult. It makes me so angry with the healthcare system here because one of the biggest reasons why this is so hard is because of how expensive it is on top of everything else. Also, if mental healthcare was free, you'd be able to have someone help you through the mental side of things which I truly feel is necessary, but I know is not feasible for everyone.
You have every right to be angry and frustrated. Your body is telling you something is wrong. Hopefully you and your doctors will figure it out.
thank you monika💗
On my second day! This is my 5th since I was diagnosed with epilepsy 5 years ago. My other EEG were uncomfortable but this has been the the most uncomfortable and frustrating EEG that I’ve had so far. I also have to do ECG with the EEG and it’s a video EEG so the people that are monitoring me can also hear everything that’s happening here in my room😭🤦🏻♀️
I’m haveing this done right now. Day one right now lol can’t sleep. I’m watching this and it’s midnight. There checking me for epilepsy. Also they have a heart thing on me to. Mine is smaller than yours. It’s attached to a cord. I have cords all over the place. Also there like taped together too keep them from getting tangled. I have seizures everyday. I know they already caught one. I gotta push a button each time I have one. They also have cameras one in the front room 1 in the bedroom. Can’t be off camera very long. They people come here to my apartment to put it on and take it off. If some cord comes loose I got to fix it.
My epilepsy is hard to catch. People think I’m ignoring them when I’m not but it’s my epilepsy. My family even said I was faking it. But I know I’m not. 😢
You’re not alone girl. We are not crazy. We know when something is wrong with us
I wish I could give you a hug. I honestly would have been so angry and frustrated as well. I understand the thoughts of "is this even really happening" or "is this just in my head" too, since I have chronic illness as well and I didn't start seeking treatment/diagnoses until 2020 :( I think you're very brave and thank you for sharing your experience online with others.
thank you so much zoe! im so sorry you have felt the same way. it sucks💗
For the 1st time in my life I found someone I can relate to...
Seizures... The worst terrible feeling in the entire world..
For years I prayed for answers(still didn't get a proper one) got MRI done, Eeg all normal.. No one believed me, took it all as fake.. or like for attention drawing( people think it is because I am psychologically not well)...
Waiting months for video EEG, didn't get a call because my case is not "that serious"...
Whenever I have my complex partial seizures it the most pathetic and hard to describe thing in this Earth for me..
Whenver in the EEG it doesn't happen(maybe bcz our body becomes more conscious that ok a seizure may be triggered and tries to protect it ...)
I am literally tired of this and just want it all to end..
Hope your rough time ends soon too, always know you are not alone, ❤❤
And you look GREAT with the Battle-Hat on.
I’m having a 96 hour eeg and I’m honestly very nervous, I pray I have a loc episode when I’m in the test
Also, yes heart monitors suck! I had the zio xt for a week and it was so beyond itchy and awful!
I completely understand what you are going through I’m so sorry
I would wear button up shirts.❤
Let's try it this way: You're in a race, leading the race, in 1st place. And not one of the doctors can keep up. You're the gold medal winner.
Oh gosh I’m so sorry you feel you have to prove yourself. I totally relate. Americans health care system is so frustrating sometimes
yes they are unfortunately. thank you chloe💗
I'm going through this right now, I go Monday to get my 72 hour EEG.
25:00 ik what u mean, at this point I almost want to cry when a doctor will come in and tell me the results are all clear. I just want it to be something, now that I know this isnt normal I really want to know wtf I have