She deserved to live longer. It's almost unwatchable to hear her speak of her dreams beyond the procedure. A truly special soul that has resonated across the world and will no doubt continue to do so.
It seems so, so unfair that for years she lived with this...peace and acceptance with death and then this transplant sparked something new. And it was taken away. Not that she was just waiting around to die before, but she seemed really excited for what was beyond a new pair of lungs. She was truly an amazing person.
i am 13 and i have cystic fibrosis, a lot of times i start feeling down about my self and i think “why me?” i have just discovered you and your channel and i want to thank you for your beautiful words and mindset. i pray every single day that maybe, just maybe i can live a normal life, and if i don’t, i know it will all be okay :) i love you
abbyyy s omg bless you xxxooo I have no words or understanding of what you must go thru every. Single. Day. Just bless and prayers for your transplant perhaps someday and or any and alll Light and Love coming yOur way Beautiful Heart ♥️ Being
Check out The Frey Life vlog. Mary has CF and is in her late 20s. Her husband is a minister. But they are not preachy, they are very down to earth and show everyday life with cf. Mary's cf has impacted her other organs heavily so she has low blood sugar drops, appetite and cf digestion issues. They have a very upbeat attitude about life and accepting the boring days, the hard days and embracing the good days. I don't have cf. I have a skeletal dysplasia that is also a degenerative connective tissue disorder. My problems are not generally life threatening, they do affect the quality of my life and it can be really hard to stay looking up and moving forward. I am really focusing on gratitude lately to help. I go back and forth about acceptance and some days are better than others. If you are having a bad day, focus on the amount of time you can handle. Some days might be hour to hour, but make the most of that hour. That includes taking care of yourself.
she didn’t get to live a normal life, and we all miss her so much. stay safe! you can get through this, bad things happen but that doesn’t mean anything will happen to you. stay strong 😘
@@ModestEG she was getting the transplant which was gonna give her years, but she had a stroke due to a blood clot from the surgery. She died a week later unfortunately.
@@ModestEG its not terminal u can get a double lung transplant which would cure it if she was successful she was for the first week but then the following week had a stroke and passed sadly
Your life really is fascinating. It's not that the fact that you're sick is fascinating, it's the fact that you have such a unique perspective that most of us won't experience. That's true about everyone. People love vlogs bc they're intimate feeling glimpses into other people's experience. Learning about other people's struggles and triumphs help us learn about our own lives. So yes I would love to follow your transplant journey
I genuinely think Claire is special; I watch because she's amazing. Not because of the curiosity of the science, but because of how she views life. I hear you Claire; you aren't a pity party, you're inspirational.
cybertree I completely agree. I watch her for the very same reason. I love Claire's look on life. Many would benefit from he. r I know I do. Maybe you should look up The Frey Life. Mary Frey has CF as well and Peter Frey is a Pasteur. Together they educate and show us intimate details in their life journey. So funny too. I love them as well.
One of the things that blew my mind about Claire was when she quoted that one saying that took me more than 30 years to figure out about life. "You will never really get what you want until you really want what you have." True happiness is actually hiding in that quote. Very profound coming from a then 14-year-old who has always seemed like she meant every word. You inspire even with things that have nothing to do with adversity.
Collette who'sthatgirl I've been well! Lots of medications, but I definitely do not regret my decision. In fact, I just recently met my organ donor's mom!
The idea of having someone else's organs inside of me so is weird to think about. I'm happy for you despite the side effects being a downside. I have an aunt who might need a kidney transplant and I'm open to giving one of mine if I can. Whatever I can to do to help someone in need!!
Watching this makes me very sad. You had plans after this transplant to keep everyone up to date how youve been doing and more and whatever it was.. Didnt let you pull through. You were clearly a good girl. A good person. Regardless of what you had. Nothing changes the amount of inspiration you've given people. God needed you. For whatever reason we will never know until it is our time... RIP Claire. Im sure all your pain and suffering is over. And you'll keep inspiring long after this day. 🖤
Is she died because of the surgery???? Please tell me, I'm so scared my dad is doing the same surgery now and they will finish after 10 hours .. I can't sleep !!
sellen Je from what i’ve read she went into cardiac arrest because of a blood clot because of the surgery. I could totally be wrong though. But yes complications AFTER the surgery is what caused her to pass away. On the other hand I have seen so many people have successful lung transplants. Don’t freak out about your dad just because this tragically happened to her. I hope everything goes perfect with your dad and he continues to live a healthy life for many years after ✨ edit - just saw on her friends instagram that she had a stroke and had to be put in a medically induced coma because of swelling on her brain and that it what caused her to pass away
@@legit1318 thank you so much for your your supporting .. I searched about her story, it broke my heart I couldn't stop crying but even all her suffering she was a happy person and she had a good life . I can't lose my dad now I have so many things to tell him before he gone.. I need to live a happy life with him and tell him that I love him everyday . I don't care if it's going to be short. He was suffering all the time I'm so excited to seeing him a new person now that can do whatever he wants. recently things went so bad between us and I have to fix it before the time is too late.. I'm dying from the inside now. Sorry if I disturbed you and sorry for my bad English. Thank you again you helped me a lot ❤
sellen Je It is extremely sad that such a good strong person like claire had to live a life of pain. But she for sure lived her life full of grace and made the most of her short life even with her condition. I’m so sorry to hear about your dad. It must be very hard to see him sick. I’m sure he knows how much he means to you and how much you love him. Think positive! He’s so lucky he gets the opportunity to have this transplant in the first place. Once again i hope your dad gets to live a healthy life for many years to come. And don’t apologise at all, your english is great! I’m glad i could help 💕
@@hibadw3259 She did die because of a stroke due to a bloodclot post surgery but what I can tell you is with this same surgery.. There is a less than 3% chance it happens. She just happened to be one of those less than 3% chance people. It happens. Your father is more than likely, according to what ive read, to be fine after the surgery. And that is actual facts about this particular surgery. So dont worry too much. Because thats not gonna make anything better. Just have hope and positivity.
CLAIRE, It would be my honor to accompany you on your transplant journey. I am grandmother, and have grown to love you so much, that I really WANT to be with you! It is amazing, to get new lungs and the process WILL be fascinating, but always remember that when the times are tough, you have our energy and love to help carry you through!!! (too corney?), sorry! I couldn't think of any other way to say this! haha . XO .
@@christinam3953 This video is so painful to watch now. She's there talking about being hopeful for the first time ever, expecting to live more, it's like life was holding onto her like a punishment and when she finally accepted it, life turned its back. It's so unfair. I'm really devastated. This girl was pure light in this world.
It's kinda ironoc.. She was able to have this transplant that was supposed to help her live comfortably and she was hoping like the average person. She got that urge to fight and she wanted to take us along with her for the ride. It breaks my heart.
Sometimes you have to take the first leap in order to fly, she knew the risks, and she said that on her videos, she wanted to be free and was happy for the opportunity, unfortunately she took the leap but her wings couldn't function properly...now she's flying in the wind among birds and dreams with that beautiful smile on her face...😢
I love hearing about the technical stuff. Hearing all about the lung transplant experience will be helpful to so many and at the same time educate those who love the technicalities of life. You are doing so well and I am so happy for you. It must be weird though. Going from accepting an early death to now realizing you actually have a future. LOL Deep trippy stuff.
Whether or not you realized it, you did live....and you gave....and you did your life’s work. You touched so many people including me. Now spread your wings and enjoy a “normal life” without pain, surgeries, and an oxygen tank. You were an Angel from above....thank you for impacting us and teaching all of us to get out and live. Xo ❤️
Angela Yaun, Your comment was so touching and so true.. Best words of truth.. Ty.. I hope that some can learn to feel as most do.. Some comments on here just floor me.. 🤩
I don't have Cystic Fibrosis but I still consider you as inspirational to me. You make me want to live my life to the fullest and make me understand there are bumps in life and you make me able to be strong to get through them. God bless you.
I'm a nurse. We take care of people bodily, but we seldom get to see the real person - at least not over the long term, and certainly not on a day to day basis. I would be honored to watch your series.
CTF is actually a genetic disorder so it's not caused by smoking! Although, one who does smoke may experience lung effects similar to those with CTF. Regardless, it's good to hear that she was able to stop you from smoking! It can do irreversible and terrible damage to your lungs in addition to so much else! Hope you continue to succeed in doing so :)
Me too... knowing the state of my lungs is caused by smoking... while this girl could not undo her damaged lungs. Totally touched by this Angel xxx RIP Claire.
@@zoelist329 It’s CF - Cystic Fibrosis. Please don’t think I am being rude. I’m trying to make sure you are aware. We all try to educate. We’re still educating even doctors because the doctors who don’t specialize in CF...aren’t even aware enough about it.
I'm crying watching this. And not because she passed away, but because she's speaking so much TRUTH in this video! She was something else, man. Such a special human being. Honestly, Claire, wherever you are, know that you touched my life and many other lives for that matter. We love you, see you soon!
Girl I want to hear about everything that you’re and have gone through. You’re a beautiful intellectual and you’re brain is marvelous and I learn new things about you with every video. I want to hear about your struggles and learn from you.
She knew, she knew the risks involved. And her chances of survival, she tried and fought and unfortuanelty, without the transplant, she still would have died young. I am so proud for her to make that decision but deeply saddened with her passing :(
to be honest, she didn't necessarily know. usually doctors will tell you something like "it will be better for you to get the transplant than to not get it" same as they do when prescribing you antibiotics. they never really tell you that you honestly don't need them and that they can cause you horrible side effects such as creating immunity towards a certain bacteria. they would just rather avoid the 0.0000001% chance of you getting sepsis ugh.
G.M before lung transplant her lung capacity was 27 to 28 percent, her nurse told her protocast stopped working which means her veins were tiny than normal, she had synus problems, pancrease problems and she could not even move anywhere without wheel chair so all that things makes very painful for her to tolerate and on top of that she did not wanted to just die in hospitals but instead wanted to persue her dreams. So taking all those things into account she had no other choice but the lung transplant which eventually did not turn well. So ultimatley if she did not do anything then she would have suffered a lot more which could be very bad. So I think God made the right decision for her and I hope her soul is in good condition. So we should stop thinking what could have happened and leave it on God to handle her soul as we are all eventually going to die by his decision no matter how much we try. So let her go although is also pains me to say all this but we cannot avoid reality.
My dad was 61 years old when he birthed into spirit last December. His story has some similarities to hers. He died following his second liver transplant and kidney transplant. I'm so incredibly moved by her story after being with my father in the days leading to his birth into spirit. It was the hardest experience I have ever gone through to date. But I am so incredibly grateful for his bravery and strength to strive for a better quality of life so he could spend more time with family, with his grandkids. I felt the same sense of pride and admiration watching her speak. My her soul forever dance with the angels of light.
sneksnekitsasnek my mom had a heart transplant in 2015. She’s doing great. Organ transplantation was our last hope and she’s here today because of people like Claire who choose to donate life. Bless you Claire and all organ donors. Thank you from the bottom of MY heart.
Following this girls story is absolutely heartbreaking man. She was so beautiful, charismatic, funny, optimistic, positive and outgoing. Even up to her death, her sense of humor and personality never faded. She was truly a one of a kind.. God rest her beautiful soul🙏💔
Stumbled over her coma video in my recommended yesterday and have spent hours today watching her videos and documentaries. Only wish I could’ve known her, the beautiful soul that she is. I can say, however, that I am forever touched by her words and strength.
Same here man! I also got recommended the "coma" video and I then started binge watching her videos from her old channel. Then i noticed that she hasn't uploaded in 5 years so I started wondering if she's OK. Unfortunately, my worries were correct. It's good to find videos like these here and there, just to slap you back in reality and appreciate life a little bit more!
The moment you admit that you want it you have to admit that you don’t want to fail... and how painful it would be if you did. YOU JUST DESCRIBED ME PERFECTLY! OMG I never understood why I have constantly shied away from “goals and dreams” until now. 😭😭😭
superholly I feed it! Admitting to certain things is hard specially when it comes from our painful past! I was raped by my uncle's and I always saw myself as a victim until now! I stopped myself I learned I'm no longer a victim I'm a survivor.
A series about the transplant would be awesome! I do want to follow your journey through this huge new step in your life, and be there with you along the way. You’re amazing, Claire. Take care, much love from France! ♥️
It makes me so angry that only when she dared to dream that her life may actually go on, that a chance to live longer was for once a consideration...life was completely ripped away from her. It's so bloody cruel. I know it's no good being angry. But it really fucking pisses me off.
Ikr.. It's beyond messed up. She was hopeful for the first time and then something unexpected happened. Seriously makes me wonder whether God is some kinda sadistic monster. But then again.. She's pain free now. No more treatments.
For me as a respiratory therapist, she was blessed dying before the transplant. The body fighting the new lungs in long stays in the ICU is worse than death.
I believe she died of a blood clot after transplant surgery. But I'm with you. And she knew also. She talk about never getting one because it isn't a cure and half die within five years. It is horrible.
Plan of Salvation Before we were born on earth, we lived with our Heavenly Parents as Their spirit children (see Doctrine and Covenants 138:55-56). At a council with all of His children, Heavenly Father presented a plan, known as the “plan of salvation” or “the great plan of happiness” (Alma 42:5, 8). The plan includes all the laws and ordinances of the gospel necessary to gain eternal life, “the greatest of all the gifts of God” (Doctrine and Covenants 6:13). Sadly, one-third of Heavenly Father’s spirit children did not accept the plan. They chose to follow Lucifer, who became the devil, and were cast out of the presence of God (see Revelation 12:7-9). We are on earth because we chose to follow Heavenly Father’s plan. One significant purpose of mortality is to gain a physical body. On earth we can have joy and peace, but we will also face temptation, opposition, and adversity and experience trials. Earthly trials are part of mortality and can help us grow to be more like our Heavenly Father. Essential to the plan is the Atonement of Jesus Christ. Jesus overcame spiritual and physical death and took upon Himself our afflictions, sorrows, and sins (see Alma 7:11-13). This suffering, death, and Resurrection is referred to as the Atonement. The Atonement was necessary since “no unclean thing can dwell with God” (1 Nephi 10:21). It is through Christ’s sacrifice that we can repent and live with God again. Also essential to God’s plan is agency, or the ability to choose. When we choose to repent of our sins, we choose to accept the gift of the Atonement of Jesus Christ. If we exercise our agency to keep the commandments, we have the blessing of participating in sacred ordinances, which are ceremonies that include making covenants or promises with God. These ordinances include baptism, confirmation, priesthood ordination for men, and temple ordinances. Part of our Heavenly Father’s plan is that someday we will all die. Death is the separation of the spirit and the physical body. Our spirit, which existed in the premortal life, will live on after our death. If we lived righteously-repenting as needed-to the end of our mortal life, we will enter spirit paradise. The Book of Mormon prophet Alma described this as “a state of rest, a state of peace” (Alma 40:12). Because of Christ’s Atonement, all of God’s children will be resurrected and our bodies and spirits will be reunited (see 1 Corinthians 15:20-22; Doctrine and Covenants 88:14-17). Resurrection will be followed by the Final Judgment, where God will judge us according to our desires and our obedience to the commandments (see 2 Nephi 9:15-17; Doctrine and Covenants 137:9). If we have qualified through repentance, we will be able to live forever with our loving Heavenly Parents (see Alma 40; 41; Doctrine and Covenants 76).
I am 48 years old and beyond inspired by your strength at your young age. When I was 20...geez. I was NOT eloquent nor philosophical. I am now tho. You have a Sageness about you and I have watched most of your talks on CF. You are a rock, babygirl. You’re beautiful and you sparkle. Literally. I want for you a long long long life, A lifetime of fresh Air and less snot. Like, a whole lot less. I write this as I listen to the early morning birds sing outside my window..I don’t ever want to know you can’t hear them anymore. I swear to God..I want to hug you and make it all better. You could be my Daughter age wise and if you were I’d be the proudest Mom in the World but I am not so I’m just the proudest stranger in the world. I want Transplant to happen! I want you to be healthy enough FOR transplant and I pray it happens soon. I will also pray for the one who donates to you. May the lungs b 1000% clean and compatible for you. I’m scared for you but I feel a great vibe from you and I feel all will work out. What else can I say? Not much except that I am on this Planet with you and that makes you my sister. I live in Cleveland Ohio so just know you got vintage coming from up here on Lake Erie. I wish you peace, health, happiness, Marriage, kids and a LLONG LONG Life. I want you to have Grandkids. That is my hope for you. Love, Lori.
*Good VIBAGE FOR YOU COMING FROM UP HERE ON LAKE ERIE.. dang letters are blurry. See, I want you to reach my age so all you have to talk about is how bad your eyes are getting. XO
"It's really scary because once you want something, then it opens you up to this huge fear of failing. The moment that you admit that you want it, then you have to admit that you don't want to fail. You have to look at how painful would it be to fail and how painful it would be to lose it." Claire, I found you on youtube almost a month ago when I was searching for CF videos when this amazing girl I met told me that she has CF, and I just wanna say that you and her have opened my eyes in this new world I have never been familiar with in the past. It's such an eye opener for me because she taught me to live life to the fullest and be thankful for every breath I take as not everyone gets the privilege to do so without struggling. It's been hard watching her struggle with CF and I know she's still on the fence about considering a lung transplant. I know she's scared because things could go wrong and I know you feel the same way. There's no telling if it will be successful and how painful it would be, but I am hoping and praying that it will be successful and you both will come out of it stronger and healthier than ever. You are both beautiful and I have never met such women as strong as you and Frankie. Hoping to watch your series soon. Cheers! 💕
I am so sorry about your dad. What a beautiful gift he gave. My dad received a heart transplant three years ago and I cannot even begin to describe how grateful we are for his donor.
I didn’t know of her either, Until TH-cam recommended her channel today (just three days after her death). I’m very sad to hear the news, not just because of feeling compassion and empathy for a fellow human, but because she is so special! I can tell that after the first video. My heartfelt sympathy to her parents. They lost an amazing and beautiful girl, and I think the entire world has lost her as well.
I'd love to chat with you about organ transplantation. my friends 12 year old daughter died in January and saved 4 ladies/girls lives by donating her organs one of them is only 5 years old! i love watching your videos. you're very inspirational. i have fibromyalgia and hearing your outlook on life is really refreshing
Rest In Awesome, Claire. You did amazing things here on earth and what you’ve done, what you’ve taught people, transcends your actual time here. You’ve changed many perspectives and lives with your voice.
I watched your videos not because I feel bad for you but to know what's it's like to be in your situation you have a unique insight in something that I don't deal with very well and that's dealing with a terminal illness. My three boys and 2 nephews have a terminal illness ca0lled Duchenne muscular dystrophy. We lost my nephew 2 years ago. My boys never really talk about what they are going through. I need your insight and these videos really help me understand more if what they ate going through.
teresa grant wow! Teresa, im so grateful that this channel is here for people like yourself. I too watch this channel to gain insights and understandings as well as empathy to other people or even simpler yet; other situations! Your comment is so humbling for someone like me who may think her life is a bit more of a struggle than it actually is at times. Good lord, this whole channel is beautiful!
I watched your video’s in the darkest moments of my life. You Inspired me to keep on living because I have a life and I should be grateful for it. I was always scared to go back to your videos and find out that you’re not here in this world anymore. I’m happy you chose life and that your taking us with you on this Journey.
I think nihilism isn't necessarily negative. I think it's more realistic. Life doesn't have a set meaning, and pain is inevitable, but we can make our own meaning in life and we can strive for the happy moments in it. I think Claire feels similarly to me about that.
Mandi B i agree to a point, I think that for some people nihlism leads to really negative thoughts and others make peace with it. Really my joke is based on the fact that Claire has made peace with nihlihm which is a win in my book :)
you have NO idea how much you inspire me. you have helped me deal with my depression, and have taught me to embracee life! (i wish i could hug you) youre probably not gonna see this comment... but still :)
I suffer from severe depression too but it does make me question my life. It's just so hard that a physical illness can be seen and a mental illness can't until it's too late. I've had numerous suicide attempts, the last time I was saved by CPR but part of me wishes that I wasn't saved but Claire makes me feel so guilty for that. I should be happy but my head won't let me. I don't know where my demise lies, it's so confusing =(
I can't explain how sad I feel watching this. She wanted to live and I believe she is alive in the arms of God the Father. I'm so sorry ... I have no more words to say
I am getting all the workup to get a multivisceral transplant. Girl, please make a series. I am in the boat of "do it or not" "risk/reward" "can I maybe be normal again" It's so confusing. I dont know what normal could be for me, there is a range of outcomes. Atm I am IV fed and meds. I continuously getting sepsis. Loosing access. And it wont change my co-illnesses. So I will be ...less sick?... I just saw the transplant consult last week. I am in that mental gymnastics mode.
Nena H thanks. It's comforting (in an odd way) that other transplant candidates have this feeling, and we arent alone. We aren't nuts for not immediately jumping on the offer. I felt alone because my transplant has only had 150 successful adult patients.... So not really many people to commiserate with. Being sick, for me eliminated my friend pool. And family doesnt get my hesitation.
1. Love your username it sounds fitting and is my kind of morbid humor 2. I'm tpn dependent myself and although I'm just a random stranger in passing I'm sending a lot of positive vibes and love your way and think you're incredibly strong it's not easy I've had sepsis 9 times myself.. can't have happiness without sadness it's all a balance unfortunately which is why we must live on purpose not just exist. Regardless of what you choose, don't forget HOPE (hold on pain ends) 💕
It's amazing to hear her speak. I seriously wish I would of found her videos before she passed away. She is just amazing. Few people have the power of making us look deeper and think about life on a new level with new outlooks. I am just in awe of her wisdom at such a young age. I could listen to her just talk for hours.
Can you do a video regarding the extent of damage to your other organs and how they will function after you have a transplant? How will they handle the immunosuppressants?
Claire you are very brave and wise beyound your years, but that is what happens when you are faced with death, isn't it? I started following you and your journey a few years ago. I am a stage IV lung cancer survivor and after 5 1/2 years of treatment I am still NED (no evidence of disease). You are so spot on when you say people pull away, I know people (including myself) were sure I was going to die and when that happens people do not know how to act or what to say. AND even now, people who knew me when I got sick and throughout my journey still have trouble interacting with me to a certain extent, they are not sure what's going on, I think. Anyway, sickness and death have been so isolated and sanitized that we no longer live with it or interact with it or know how to process it. we retreat from the workplace, die in hospitals and send our old people off to nursing homes or senior living facilities. I love how open you are and the sort of in your face type of casual conversations about your situation and feelings about it are valuable, to us (and to yourself maybe?) Yes, please do continue to share and I am praying for success. I hope you get that call very soon. 💜💜
Stephanie Over 50 congratulations on beating your dragon I too travel the road of stage 4 cancer. Mine was very advanced when they found it (bone mets throughout most of my skeleton). I was told that I had a couple of months to live and so far I’ve lasted 3 1/2 years. Live life to the fullest and love more each day. May God bless you all the days of your life!
You have helped me so much but who remembers when she also almost got the hiccups on her “what it feels like to die” video where she almost gets the hiccups
Thank you for this, I’ve been dealing with health and mental issues recently and hearing you talk about this it really starting to get to me. Thank you and I’ll totally keep watching the series if you make it!❤️
I’ve been struggling to process the myriad of emotions I have. Every passing brings reflection and spiritual movement. Claire’s release into complete freedom trails ribbons of shining complexities, ironies, intentions, hopes, fears, unfulfilled potential and fulfilled potential. I think Claire ultimately did what she came here to do. Lord, we’re all going to miss her. We’re all changed and will move forward with the spark of her within.
Even as a fairly healthy individual I think those conversations you're sharing with us are absolutely priceless and need to happen. We live in a society where death is swept under the rug and people are so uncomfortable with the idea that they'll stop seeing people when they get really sick. So they don't have to face what it's like. But the way you speak about things with such clarity and sincerity is incredibly valuable. I think about my own mortality a lot, and how health isn't something that's granted to all of us. Even if we do tend to take our health for granted. Your journey is awe inducing and I'd love to see where it leads you next.
As a 16 year old girl who is about to have her 18cm spleen removed, this helped a lot. You're such a huge inspiration and your story has helped me get through these long years of sickness. #SickKids
I've personally had an appendectomy, the best advice I can give is to take it slow. You might think you can run around and be your "normal self" after, but recovery is a process. If it hurts too much, reduce your activity level. It's ok to go at your own pace. If you push things too much, the pain isn't worth it. So stop when you're in pain. I know how obvious that sounds, but over a year after, I'm still not at my best. I'm much better than I was before, but it's a process. Don't be too hard on yourself ok? Everyone heals at their own pace and as long as you are showing improvement or not going backwards, then you are already winning. Make that goal enough and if you need to cry and feel defeated at times, that's ok too. Make sure you share your feelings with your loved ones so they can be the rocks that they are ready to be. You have to give them a job after all right? Make them work for it.
Not gone. Just not here physically anymore. Love you ❤️ for being so brave and sharing when you were here, and really making me think about so much, at a time when it was really needed. Your voice lives on forever for people to hear you and you are still touching others.
Thank you for making these videos. It's crazy to me how much you have made a difference in my life simply by sharing your unique perspective and wisdom. You are a gift to this world simply by being yourself and sharing your experiences, which inspires me to realize that maybe I have something to contribute to this world as well. By shining your own light, you inspire others to shine.💟💞💖
I would LOVE it if you did this series! and I totally get not wanting to be "the sick girl" that always talks about her sickness, and that's absolutely not how I see you, but a LUNG TRANSPLANT is kind of hard not to talk about at all, on any level. so whatever level you feel like sharing this journey with us, I'm in!
Number one, I would love to see that video series, that sounds awesome and I'd be really interested to learn about the process and hear how you're doing throughout (if you have the energy for it of course). Number two, I'm typically a pretty jaded person by nature, I've dealt with a lot of sickness and death in the past 3 years and your comments on the way people distance themselves having to go through these things and feeling like it's all you ever talk about are spot on. But whenever you start talking about the way you view everything and how you try to live your life and be positive, you always say it's 'corny' but it's not corny at all, it's some of the most real shit I've heard, and to hear it from someone who is going through something like this makes me rethink a lot of the ways I look at my day to day life. I think too many people tend to associate optimism with being corny because it's so hard not to constantly be afraid of that thing that is going to yank the rug out from under you and make a fool out of you, just like you said (wonderfully put), and it makes people bitter, myself included. But it never sounds corny coming from you, and I always really enjoy watching your videos. Just wanted to say that. I wish you all the best in your journey.
Laura Huynh yes, believe it or not I already knew that. What I also know is putting "rip" at the end of your comment doesn't make it less insensitive...not understanding why you felt the need to even say it, but go off ig.
Lourde Heru thank you for being the only other person in this thread w common sense♡ Seriously, what specifications needed to be made? Clearly I must have been keeping up w her to have wanted to make the first comment initially...maybe my emotions toward this loss is making me come off as blunt or rude or w.e but that person's comment was unnecessary. @elena
Going through my own experience (cancer), I've been making my own videos about it for over a year now. My vlog has gravitated away from just being about my cancer, and has grown to encompass my life as a whole. I think that's important, so that people don't just see me as a sick person. I don't want that to be the only thing I leave behind. I want people to know who I am and was, and that while the experience definitely changed me it didn't define me. I encourage you to do the same. Admittedly, I've only been going through my experience since January of 2016, whereas yours has been a lifetime, but maybe it'll help all the same.
Daniel DC Becker I had a friend who died of cancer and it went away for 2 years we were all thankful that it was gone then it came back stronger than ever he died last week
I saw u have a go fund me for your cancer and I so badly wish I had even a dollar to donate to u and I feel so awful that I can’t help u and Claire and everyone else in the world who needs it for all the many reasons there are, sadly :’( so I pray more ppl see this and maybe they can donate to you, God Bless You
Thank you, Sara, that means a lot to me. I understand, not everyone has the money to donate, and I'm not nearly as in need as others. If you do have money to spare, please donate to Claire, she really does need it more than me.
this is heartbreaking. she had so much planned but she never made it and hearing her talk about her future is so sad. she’s an angel, she inspired me so much. I miss her so much
She knows much more than a 100 year-old person and she really lived a life to be proud of. Even I'm proud of being the same species as her. She was a real Angel and she has gone back to heaven.
she deserves to be here still. she’s a beautiful angel and was extremely high hopes and extremely loving and happy. i never met her in real life but i miss her. i love you Claire ❤️ rest in peace bby
She deserved to live longer. It's almost unwatchable to hear her speak of her dreams beyond the procedure. A truly special soul that has resonated across the world and will no doubt continue to do so.
problemdrinker she was so beauty 😓😓😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭
She isn’t dead, she’s still posting?
It seems so, so unfair that for years she lived with this...peace and acceptance with death and then this transplant sparked something new. And it was taken away. Not that she was just waiting around to die before, but she seemed really excited for what was beyond a new pair of lungs. She was truly an amazing person.
@@norahdejournett142 Her sister is still putting her vids up, on her gofundme her parents announced her death...
- Simplicity why didn’t she get her new lungs?
i am 13 and i have cystic fibrosis, a lot of times i start feeling down about my self and i think “why me?” i have just discovered you and your channel and i want to thank you for your beautiful words and mindset. i pray every single day that maybe, just maybe i can live a normal life, and if i don’t, i know it will all be okay :) i love you
abbyyy s omg bless you xxxooo I have no words or understanding of what you must go thru every. Single. Day. Just bless and prayers for your transplant perhaps someday and or any and alll Light and Love coming yOur way Beautiful Heart ♥️ Being
You are amazing ❤ Lauren Rowe makes some incredible videos about C.F. and her life after her lung transplant if you're interested!
Check out The Frey Life vlog. Mary has CF and is in her late 20s. Her husband is a minister. But they are not preachy, they are very down to earth and show everyday life with cf. Mary's cf has impacted her other organs heavily so she has low blood sugar drops, appetite and cf digestion issues. They have a very upbeat attitude about life and accepting the boring days, the hard days and embracing the good days.
I don't have cf. I have a skeletal dysplasia that is also a degenerative connective tissue disorder. My problems are not generally life threatening, they do affect the quality of my life and it can be really hard to stay looking up and moving forward. I am really focusing on gratitude lately to help. I go back and forth about acceptance and some days are better than others. If you are having a bad day, focus on the amount of time you can handle. Some days might be hour to hour, but make the most of that hour. That includes taking care of yourself.
stay strong, you’re beautiful inside and out :))
she didn’t get to live a normal life, and we all miss her so much. stay safe! you can get through this, bad things happen but that doesn’t mean anything will happen to you. stay strong 😘
I really wanted her to make it...She deserved it.
Wait, she died?!
Cf is terminal..how was she gonna make it?
@@penelpesrrell790 yes, she died of a stroke a veek after the transplant.
@@ModestEG she was getting the transplant which was gonna give her years, but she had a stroke due to a blood clot from the surgery. She died a week later unfortunately.
@@ModestEG its not terminal u can get a double lung transplant which would cure it if she was successful she was for the first week but then the following week had a stroke and passed sadly
Why didn’t I find this before her passing😩 she’s so amazing.. such a beautiful soul
I have thought the same thing. Amazingly beautiful inside & out.
I came across one of her videos in the past. This is sad
When did she pass?
@@yourmom303 in 2018 I think
Yes 🥺
Your life really is fascinating. It's not that the fact that you're sick is fascinating, it's the fact that you have such a unique perspective that most of us won't experience. That's true about everyone. People love vlogs bc they're intimate feeling glimpses into other people's experience. Learning about other people's struggles and triumphs help us learn about our own lives. So yes I would love to follow your transplant journey
very well said
I genuinely think Claire is special; I watch because she's amazing.
Not because of the curiosity of the science, but because of how she views life.
I hear you Claire; you aren't a pity party, you're inspirational.
cybertree I completely agree. I watch her for the very same reason. I love Claire's look on life. Many would benefit from he. r I know I do. Maybe you should look up The Frey Life. Mary Frey has CF as well and Peter Frey is a Pasteur. Together they educate and show us intimate details in their life journey. So funny too. I love them as well.
why do people idolize people like the Pauls when this inspiring angel is right here?
Sara S. some people have their heads in the wrong places and haven’t truly seen an inspiring person.
Was* right there... :c
honestly we can idolize whoever the fuck we want
@Kayla Kemp he does have a point, we can have our own idols, you can't force someone to like someone because you don't "own" him/her.
@John Hawkes How old are you little kid, how does such a little kid with no grammar say a thing? Do I need to call your mommy? Oh how sad.
Yes, I want to be up to date! but only if it's not too exhausting or annoying for you.
2listening1 ++
She passed away
Ohhhh, I just heard. Too sad! My sympathies to her family especially. :( ... Thank you.
I would love to be part of that. You've been opening up more since you've came back to TH-cam. It's honestly admirable.
Bruja Kween you might know, but she passed. sadly there will be no journey to watch.
My heart hurts 😞💔 RIP beautiful angel
I know...so terribly sad. So relieved her death was the most peaceful passing they had ever seen
No....she passed away? When? How did you know? Such a sweet angel
OMG this was in my recommendation and I just heard about her a few days ago
She’s dead ?
...
I just found her on you tube 😞
Nicole she not dead
One of the things that blew my mind about Claire was when she quoted that one saying that took me more than 30 years to figure out about life.
"You will never really get what you want until you really want what you have."
True happiness is actually hiding in that quote. Very profound coming from a then 14-year-old who has always seemed like she meant every word.
You inspire even with things that have nothing to do with adversity.
I got my transplant when I was 17, but I don't think I ever felt ready. Certainly the hardest decision of my life. The best to you ❤
Katie how's life been for you after the transplant?
Collette who'sthatgirl I've been well! Lots of medications, but I definitely do not regret my decision. In fact, I just recently met my organ donor's mom!
dont you have to take meds for the rest of you life?
COMICS ARE THE BEST Yes I do, and they have quite a few side effects, but it is better than the alternative, I suppose. :)
The idea of having someone else's organs inside of me so is weird to think about. I'm happy for you despite the side effects being a downside. I have an aunt who might need a kidney transplant and I'm open to giving one of mine if I can. Whatever I can to do to help someone in need!!
Watching this makes me very sad. You had plans after this transplant to keep everyone up to date how youve been doing and more and whatever it was.. Didnt let you pull through.
You were clearly a good girl. A good person. Regardless of what you had. Nothing changes the amount of inspiration you've given people.
God needed you. For whatever reason we will never know until it is our time...
RIP Claire. Im sure all your pain and suffering is over. And you'll keep inspiring long after this day. 🖤
Is she died because of the surgery???? Please tell me, I'm so scared my dad is doing the same surgery now and they will finish after 10 hours .. I can't sleep !!
sellen Je from what i’ve read she went into cardiac arrest because of a blood clot because of the surgery. I could totally be wrong though. But yes complications AFTER the surgery is what caused her to pass away. On the other hand I have seen so many people have successful lung transplants. Don’t freak out about your dad just because this tragically happened to her. I hope everything goes perfect with your dad and he continues to live a healthy life for many years after ✨
edit - just saw on her friends instagram that she had a stroke and had to be put in a medically induced coma because of swelling on her brain and that it what caused her to pass away
@@legit1318 thank you so much for your your supporting .. I searched about her story, it broke my heart I couldn't stop crying but even all her suffering she was a happy person and she had a good life . I can't lose my dad now I have so many things to tell him before he gone.. I need to live a happy life with him and tell him that I love him everyday . I don't care if it's going to be short. He was suffering all the time I'm so excited to seeing him a new person now that can do whatever he wants. recently things went so bad between us and I have to fix it before the time is too late.. I'm dying from the inside now. Sorry if I disturbed you and sorry for my bad English.
Thank you again you helped me a lot ❤
sellen Je It is extremely sad that such a good strong person like claire had to live a life of pain. But she for sure lived her life full of grace and made the most of her short life even with her condition.
I’m so sorry to hear about your dad. It must be very hard to see him sick. I’m sure he knows how much he means to you and how much you love him. Think positive! He’s so lucky he gets the opportunity to have this transplant in the first place. Once again i hope your dad gets to live a healthy life for many years to come.
And don’t apologise at all, your english is great! I’m glad i could help 💕
@@hibadw3259 She did die because of a stroke due to a bloodclot post surgery but what I can tell you is with this same surgery.. There is a less than 3% chance it happens. She just happened to be one of those less than 3% chance people. It happens. Your father is more than likely, according to what ive read, to be fine after the surgery. And that is actual facts about this particular surgery. So dont worry too much. Because thats not gonna make anything better. Just have hope and positivity.
CLAIRE, It would be my honor to accompany you on your transplant journey. I am grandmother, and have grown to love you so much, that I really WANT to be with you! It is amazing, to get new lungs and the process WILL be fascinating, but always remember that when the times are tough, you have our energy and love to help carry you through!!! (too corney?), sorry! I couldn't think of any other way to say this! haha . XO .
Judith Nolan you are just lovely, what a suppotive and kind soul!
I love your comments on all of Clares videos. it's so sweet and supportive
You attract, who you are. Claire attracts "LOVE"!!!!!! XO
:(
@@judithnolan109 hey grandma! how have you been lately?
I'm fascinated by the technical stuff too, more videos would be awesome!
95TurboSol *awesome*☺
I have a dyslexic finger :D
More videos... shes passed away ;-;
Razor Gamer she’s passed away 😢
@@christinam3953 This video is so painful to watch now. She's there talking about being hopeful for the first time ever, expecting to live more, it's like life was holding onto her like a punishment and when she finally accepted it, life turned its back. It's so unfair. I'm really devastated. This girl was pure light in this world.
It's kinda ironoc.. She was able to have this transplant that was supposed to help her live comfortably and she was hoping like the average person. She got that urge to fight and she wanted to take us along with her for the ride. It breaks my heart.
It’s also really sad to think she would’ve lived (at least a little bit) longer without the operation.😢
Sometimes you have to take the first leap in order to fly, she knew the risks, and she said that on her videos, she wanted to be free and was happy for the opportunity, unfortunately she took the leap but her wings couldn't function properly...now she's flying in the wind among birds and dreams with that beautiful smile on her face...😢
@sneksnekitsasnek That's what i was thinking :(
I love hearing about the technical stuff. Hearing all about the lung transplant experience will be helpful to so many and at the same time educate those who love the technicalities of life. You are doing so well and I am so happy for you. It must be weird though. Going from accepting an early death to now realizing you actually have a future. LOL Deep trippy stuff.
I can't believe she passed away.. :'( #RestInParadiseClaire
itzbabykate WHAT? WHen? SHe was waiting for a lung transplant!
she got the transplant but suffered a stroke after :( I still can't believe it tbh
Yes keep us updated! 💞 as long as you don't mind doing so
Kayla Marie she passed away
@@ElinWinblad sadly I know 💔
Kayla Marie at least her body was able to help others through her donation
Whether or not you realized it, you did live....and you gave....and you did your life’s work. You touched so many people including me. Now spread your wings and enjoy a “normal life” without pain, surgeries, and an oxygen tank. You were an Angel from above....thank you for impacting us and teaching all of us to get out and live. Xo ❤️
i love your comment its very true
Angela Yaun, Your comment was so touching and so true.. Best words of truth.. Ty.. I hope that some can learn to feel as most do.. Some comments on here just floor me.. 🤩
This made me tear up :)
of course she realized it. that was her whole reason for making these videos.
Amen 🙏
I don't have Cystic Fibrosis but I still consider you as inspirational to me. You make me want to live my life to the fullest and make me understand there are bumps in life and you make me able to be strong to get through them. God bless you.
I'm a nurse. We take care of people bodily, but we seldom get to see the real person - at least not over the long term, and certainly not on a day to day basis. I would be honored to watch your series.
She's inspired me to stop smoking💕she was so brave
Me too
CTF is actually a genetic disorder so it's not caused by smoking! Although, one who does smoke may experience lung effects similar to those with CTF. Regardless, it's good to hear that she was able to stop you from smoking! It can do irreversible and terrible damage to your lungs in addition to so much else! Hope you continue to succeed in doing so :)
Me too... knowing the state of my lungs is caused by smoking... while this girl could not undo her damaged lungs. Totally touched by this Angel xxx RIP Claire.
Well done good on you
@@zoelist329 It’s CF - Cystic Fibrosis. Please don’t think I am being rude. I’m trying to make sure you are aware. We all try to educate. We’re still educating even doctors because the doctors who don’t specialize in CF...aren’t even aware enough about it.
Please make it a series! I love medical stuff (growing up sick myself and taking care of a sick dad since I was 12). Plus I want to know how it goes.
These free flow type videos are so lovely to watch, I love seeing authentic moments from your life
I'm crying watching this. And not because she passed away, but because she's speaking so much TRUTH in this video! She was something else, man. Such a special human being. Honestly, Claire, wherever you are, know that you touched my life and many other lives for that matter. We love you, see you soon!
We DOOO want to be up to date! We love you!
Girl I want to hear about everything that you’re and have gone through. You’re a beautiful intellectual and you’re brain is marvelous and I learn new things about you with every video. I want to hear about your struggles and learn from you.
She knew, she knew the risks involved. And her chances of survival, she tried and fought and unfortuanelty, without the transplant, she still would have died young. I am so proud for her to make that decision but deeply saddened with her passing :(
A Non thank you for explaining this do well
to be honest, she didn't necessarily know. usually doctors will tell you something like "it will be better for you to get the transplant than to not get it" same as they do when prescribing you antibiotics. they never really tell you that you honestly don't need them and that they can cause you horrible side effects such as creating immunity towards a certain bacteria. they would just rather avoid the 0.0000001% chance of you getting sepsis ugh.
G.M before lung transplant her lung capacity was 27 to 28 percent, her nurse told her protocast stopped working which means her veins were tiny than normal, she had synus problems, pancrease problems and she could not even move anywhere without wheel chair so all that things makes very painful for her to tolerate and on top of that she did not wanted to just die in hospitals but instead wanted to persue her dreams. So taking all those things into account she had no other choice but the lung transplant which eventually did not turn well. So ultimatley if she did not do anything then she would have suffered a lot more which could be very bad. So I think God made the right decision for her and I hope her soul is in good condition. So we should stop thinking what could have happened and leave it on God to handle her soul as we are all eventually going to die by his decision no matter how much we try. So let her go although is also pains me to say all this but we cannot avoid reality.
My dad was 61 years old when he birthed into spirit last December. His story has some similarities to hers. He died following his second liver transplant and kidney transplant. I'm so incredibly moved by her story after being with my father in the days leading to his birth into spirit. It was the hardest experience I have ever gone through to date. But I am so incredibly grateful for his bravery and strength to strive for a better quality of life so he could spend more time with family, with his grandkids. I felt the same sense of pride and admiration watching her speak. My her soul forever dance with the angels of light.
sneksnekitsasnek my mom had a heart transplant in 2015. She’s doing great. Organ transplantation was our last hope and she’s here today because of people like Claire who choose to donate life. Bless you Claire and all organ donors. Thank you from the bottom of MY heart.
You're such a big inspiration to me. Thank you for everything.
Low-key my fave gal on TH-cam 💓💓 I'm 16 and have cf too and you're such an inspiration to me :)) xx
Mya Rees Good luck to you, I hope you are okay :)
That's actually beautiful that she's an inspiration to you. :) I hope all is well!
She is super inspirational. I'm glad you found someone to relate with. I hope all is well for you. You'll be in my prayers tonight as well. 💚💚💚
Following this girls story is absolutely heartbreaking man. She was so beautiful, charismatic, funny, optimistic, positive and outgoing. Even up to her death, her sense of humor and personality never faded. She was truly a one of a kind.. God rest her beautiful soul🙏💔
We're here for you. Keep talking. *hug*
Claire, speaking to us, to people is obviously your gift. It would be an honor to share your journey, no matter the destination, with you. I'm all in~
Stumbled over her coma video in my recommended yesterday and have spent hours today watching her videos and documentaries. Only wish I could’ve known her, the beautiful soul that she is. I can say, however, that I am forever touched by her words and strength.
Same here man! I also got recommended the "coma" video and I then started binge watching her videos from her old channel. Then i noticed that she hasn't uploaded in 5 years so I started wondering if she's OK. Unfortunately, my worries were correct. It's good to find videos like these here and there, just to slap you back in reality and appreciate life a little bit more!
I would love to follow you on your journey 💜
Going to support you regardless, no matter what you do.
What kills me is that these new lungs she so deeply wanted at the end are the cause she died
The moment you admit that you want it you have to admit that you don’t want to fail... and how painful it would be if you did.
YOU JUST DESCRIBED ME PERFECTLY!
OMG I never understood why I have constantly shied away from “goals and dreams” until now.
😭😭😭
superholly I feed it! Admitting to certain things is hard specially when it comes from our painful past! I was raped by my uncle's and I always saw myself as a victim until now! I stopped myself I learned I'm no longer a victim I'm a survivor.
HOLLLYYYYY
holaaaaaaa
Yeah, that's such a good piece of advice. I want to quote that to people now.
Monserrat Garibay holllyyy!!! 😭❤️
A series about the transplant would be awesome! I do want to follow your journey through this huge new step in your life, and be there with you along the way. You’re amazing, Claire. Take care, much love from France! ♥️
It makes me so angry that only when she dared to dream that her life may actually go on, that a chance to live longer was for once a consideration...life was completely ripped away from her. It's so bloody cruel.
I know it's no good being angry. But it really fucking pisses me off.
Ikr.. It's beyond messed up. She was hopeful for the first time and then something unexpected happened. Seriously makes me wonder whether God is some kinda sadistic monster. But then again.. She's pain free now. No more treatments.
@@allidoiscry4119 the only god is the nature we came from, the elements, the water, the molecules. In my opinion
For me as a respiratory therapist, she was blessed dying before the transplant. The body fighting the new lungs in long stays in the ICU is worse than death.
I believe she died of a blood clot after transplant surgery. But I'm with you. And she knew also. She talk about never getting one because it isn't a cure and half die within five years. It is horrible.
Plan of Salvation
Before we were born on earth, we lived with our Heavenly Parents as Their spirit children (see Doctrine and Covenants 138:55-56). At a council with all of His children, Heavenly Father presented a plan, known as the “plan of salvation” or “the great plan of happiness” (Alma 42:5, 8). The plan includes all the laws and ordinances of the gospel necessary to gain eternal life, “the greatest of all the gifts of God” (Doctrine and Covenants 6:13).
Sadly, one-third of Heavenly Father’s spirit children did not accept the plan. They chose to follow Lucifer, who became the devil, and were cast out of the presence of God (see Revelation 12:7-9).
We are on earth because we chose to follow Heavenly Father’s plan. One significant purpose of mortality is to gain a physical body. On earth we can have joy and peace, but we will also face temptation, opposition, and adversity and experience trials. Earthly trials are part of mortality and can help us grow to be more like our Heavenly Father.
Essential to the plan is the Atonement of Jesus Christ. Jesus overcame spiritual and physical death and took upon Himself our afflictions, sorrows, and sins (see Alma 7:11-13). This suffering, death, and Resurrection is referred to as the Atonement. The Atonement was necessary since “no unclean thing can dwell with God” (1 Nephi 10:21). It is through Christ’s sacrifice that we can repent and live with God again.
Also essential to God’s plan is agency, or the ability to choose. When we choose to repent of our sins, we choose to accept the gift of the Atonement of Jesus Christ. If we exercise our agency to keep the commandments, we have the blessing of participating in sacred ordinances, which are ceremonies that include making covenants or promises with God. These ordinances include baptism, confirmation, priesthood ordination for men, and temple ordinances.
Part of our Heavenly Father’s plan is that someday we will all die. Death is the separation of the spirit and the physical body. Our spirit, which existed in the premortal life, will live on after our death. If we lived righteously-repenting as needed-to the end of our mortal life, we will enter spirit paradise. The Book of Mormon prophet Alma described this as “a state of rest, a state of peace” (Alma 40:12).
Because of Christ’s Atonement, all of God’s children will be resurrected and our bodies and spirits will be reunited (see 1 Corinthians 15:20-22; Doctrine and Covenants 88:14-17). Resurrection will be followed by the Final Judgment, where God will judge us according to our desires and our obedience to the commandments (see 2 Nephi 9:15-17; Doctrine and Covenants 137:9). If we have qualified through repentance, we will be able to live forever with our loving Heavenly Parents (see Alma 40; 41; Doctrine and Covenants 76).
I am 48 years old and beyond inspired by your strength at your young age. When I was 20...geez. I was NOT eloquent nor philosophical. I am now tho. You have a Sageness about you and I have watched most of your talks on CF. You are a rock, babygirl. You’re beautiful and you sparkle. Literally. I want for you a long long long life, A lifetime of fresh Air and less snot. Like, a whole lot less. I write this as I listen to the early morning birds sing outside my window..I don’t ever want to know you can’t hear them anymore. I swear to God..I want to hug you and make it all better. You could be my Daughter age wise and if you were I’d be the proudest Mom in the World but I am not so I’m just the proudest stranger in the world. I want Transplant to happen! I want you to be healthy enough FOR transplant and I pray it happens soon. I will also pray for the one who donates to you. May the lungs b 1000% clean and compatible for you. I’m scared for you but I feel a great vibe from you and I feel all will work out. What else can I say? Not much except that I am on this Planet with you and that makes you my sister. I live in Cleveland Ohio so just know you got vintage coming from up here on Lake Erie. I wish you peace, health, happiness, Marriage, kids and a LLONG LONG Life. I want you to have Grandkids. That is my hope for you. Love, Lori.
**vibage...not Vintage.
*Good VIBAGE FOR YOU COMING FROM UP HERE ON LAKE ERIE.. dang letters are blurry. See, I want you to reach my age so all you have to talk about is how bad your eyes are getting. XO
haha you weren't kidding lol *XD
YES. Please document if you can. Not only is it extremely fascinating, it helps me see what my friend with CF may be expecting someday.
“Believing she was going to die in early 20s” little did we know that this would actually happen, we lost an angel rest in piece Clair
"It's really scary because once you want something, then it opens you up to this huge fear of failing. The moment that you admit that you want it, then you have to admit that you don't want to fail. You have to look at how painful would it be to fail and how painful it would be to lose it."
Claire, I found you on youtube almost a month ago when I was searching for CF videos when this amazing girl I met told me that she has CF, and I just wanna say that you and her have opened my eyes in this new world I have never been familiar with in the past. It's such an eye opener for me because she taught me to live life to the fullest and be thankful for every breath I take as not everyone gets the privilege to do so without struggling. It's been hard watching her struggle with CF and I know she's still on the fence about considering a lung transplant. I know she's scared because things could go wrong and I know you feel the same way. There's no telling if it will be successful and how painful it would be, but I am hoping and praying that it will be successful and you both will come out of it stronger and healthier than ever. You are both beautiful and I have never met such women as strong as you and Frankie. Hoping to watch your series soon. Cheers! 💕
Bernadeth Aquino I started reading this right when she started saying it! 😂
My dad passed away 2 months ago and was a donor. His kidneys and liver were transplanted! I would love to hear about the recipients side. ♡
Rachel Stocum I am sorry for your loss. That's great he ended up helping someone ❤
I am so sorry about your dad. What a beautiful gift he gave. My dad received a heart transplant three years ago and I cannot even begin to describe how grateful we are for his donor.
Was he a deceased donor (passed away) a couple hours ago, or a living donor
@@sketchuyu7298 deceased donor. They were able to use liver and both kidneys.
Now she passed away 2 months ago💔
Sad to say she passed away yesterday. Brought me to tears though I didn't even know of her till I saw a video on CNN.
I didn’t know of her either, Until TH-cam recommended her channel today (just three days after her death). I’m very sad to hear the news, not just because of feeling compassion and empathy for a fellow human, but because she is so special! I can tell that after the first video. My heartfelt sympathy to her parents. They lost an amazing and beautiful girl, and I think the entire world has lost her as well.
I'd love to chat with you about organ transplantation. my friends 12 year old daughter died in January and saved 4 ladies/girls lives by donating her organs
one of them is only 5 years old!
i love watching your videos. you're very inspirational. i have fibromyalgia and hearing your outlook on life is really refreshing
yes please update us on this process!
Rest In Awesome, Claire.
You did amazing things here on earth and what you’ve done, what you’ve taught people, transcends your actual time here. You’ve changed many perspectives and lives with your voice.
I’d love to hear about as much as you want to share. I appreciate how willing you are to include us.
I am just in awe of you. I lost my baby sister at age 6 from cystic fibrosis. I just....❤️
P.S I am an organ donor because of my baby sister. ❤️🙂
Losing a sibling is such a unique and terrible kind of grief. I lost my little sister in 2009. I’m sorry for your loss 💕💖
Rest in Peace and Awesomeness Claire.
You Radiated beauty, grace, joy and optimism to the 9th degree. Rest easy, breathe freely and love always.
What did she die?? Why?
@@starstablefolk5641 she had a stroke .
I think you should. I would love to see your story from beginning to end of getting that done. I would watch every video ❤️
Whether you document the journey or not, we'll be with you every step of the way, girl.
"someone that was going to die in their early twenties or late teens" oh Claire😭 that felt like a punch in the chest
I watched your videos not because I feel bad for you but to know what's it's like to be in your situation
you have a unique insight in something that I don't deal with very well and that's dealing with a terminal illness. My three boys and 2 nephews have a terminal illness ca0lled Duchenne muscular dystrophy. We lost my nephew 2 years ago. My boys never really talk about what they are going through. I need your insight and these videos really help me understand more if what they ate going through.
teresa grant wow! Teresa, im so grateful that this channel is here for people like yourself. I too watch this channel to gain insights and understandings as well as empathy to other people or even simpler yet; other situations! Your comment is so humbling for someone like me who may think her life is a bit more of a struggle than it actually is at times. Good lord, this whole channel is beautiful!
teresa grant I'm so sorry for your whole family and send you all much love 😭❤
I watched your video’s in the darkest moments of my life. You Inspired me to keep on living because I have a life and I should be grateful for it. I was always scared to go back to your videos and find out that you’re not here in this world anymore. I’m happy you chose life and that your taking us with you on this Journey.
She was so beautiful in every way! ❤🕊🌹
Won't forget her. 🌸🌸🌸
Claire vs nihlism, I think you won this round :)
Lemon Cake I love this comment so much haha
Dis comment fresh af
I think nihilism isn't necessarily negative. I think it's more realistic. Life doesn't have a set meaning, and pain is inevitable, but we can make our own meaning in life and we can strive for the happy moments in it. I think Claire feels similarly to me about that.
Mandi B i agree to a point, I think that for some people nihlism leads to really negative thoughts and others make peace with it. Really my joke is based on the fact that Claire has made peace with nihlihm which is a win in my book :)
She has some dharma in her thoughts, about the inherent suffering in life! (pls, don't take it too much to the religious aspect)
you have NO idea how much you inspire me.
you have helped me deal with my depression, and have taught me to embracee life!
(i wish i could hug you)
youre probably not gonna see this comment... but still :)
Manda Infinity I'm happy for you!
I suffer from severe depression too but it does make me question my life. It's just so hard that a physical illness can be seen and a mental illness can't until it's too late. I've had numerous suicide attempts, the last time I was saved by CPR but part of me wishes that I wasn't saved but Claire makes me feel so guilty for that. I should be happy but my head won't let me. I don't know where my demise lies, it's so confusing =(
Manda Infinity she isn’t going to see this comment. in fact, she won’t ever see another comment. she passed.
I can't explain how sad I feel watching this. She wanted to live and I believe she is alive in the arms of God the Father. I'm so sorry ... I have no more words to say
faby f him
faby f hi
Bruh, just no with this religious bullshit.
@@jadenscott8047 she can put whatever she wants in her comment. Whether you believe in her religion or not, dont be disrespectful.
Cece I can put whatever I want in my comments too, it’s the internet lmao.
She blows my mind ... an amazing role model for my 9 year old daughter
Hey I'm 9 and a girl
I am getting all the workup to get a multivisceral transplant. Girl, please make a series. I am in the boat of "do it or not" "risk/reward" "can I maybe be normal again"
It's so confusing.
I dont know what normal could be for me, there is a range of outcomes.
Atm I am IV fed and meds. I continuously getting sepsis. Loosing access.
And it wont change my co-illnesses. So I will be ...less sick?...
I just saw the transplant consult last week.
I am in that mental gymnastics mode.
Not_yetdead whatever you choose, I wish you the best of luck! Xo
Nena H thanks. It's comforting (in an odd way) that other transplant candidates have this feeling, and we arent alone. We aren't nuts for not immediately jumping on the offer.
I felt alone because my transplant has only had 150 successful adult patients.... So not really many people to commiserate with. Being sick, for me eliminated my friend pool.
And family doesnt get my hesitation.
whatever your choice ends up being, your decision is valid and you've got my support (even tho it might not mean much)
1. Love your username it sounds fitting and is my kind of morbid humor 2. I'm tpn dependent myself and although I'm just a random stranger in passing I'm sending a lot of positive vibes and love your way and think you're incredibly strong it's not easy I've had sepsis 9 times myself.. can't have happiness without sadness it's all a balance unfortunately which is why we must live on purpose not just exist. Regardless of what you choose, don't forget HOPE (hold on pain ends) 💕
Not_yetdead sending thoughts and prayers your way, and for peace with whatever you decide
It's amazing to hear her speak. I seriously wish I would of found her videos before she passed away. She is just amazing. Few people have the power of making us look deeper and think about life on a new level with new outlooks. I am just in awe of her wisdom at such a young age. I could listen to her just talk for hours.
I am screaming about all of the Clarie content lately! I'm so happy for you! Clarie, you feel like my best friend. Thank you!
Can you do a video regarding the extent of damage to your other organs and how they will function after you have a transplant? How will they handle the immunosuppressants?
This girl had such a cool vibe. Smart, emotionally deep, articulate, chill
I think as long as you feel comfortable. I would be interested in following you on this transplant journey.
Claire you are very brave and wise beyound your years, but that is what happens when you are faced with death, isn't it? I started following you and your journey a few years ago. I am a stage IV lung cancer survivor and after 5 1/2 years of treatment I am still NED (no evidence of disease). You are so spot on when you say people pull away, I know people (including myself) were sure I was going to die and when that happens people do not know how to act or what to say. AND even now, people who knew me when I got sick and throughout my journey still have trouble interacting with me to a certain extent, they are not sure what's going on, I think. Anyway, sickness and death have been so isolated and sanitized that we no longer live with it or interact with it or know how to process it. we retreat from the workplace, die in hospitals and send our old people off to nursing homes or senior living facilities. I love how open you are and the sort of in your face type of casual conversations about your situation and feelings about it are valuable, to us (and to yourself maybe?) Yes, please do continue to share and I am praying for success. I hope you get that call very soon. 💜💜
Stephanie Over 50 congratulations on beating your dragon I too travel the road of stage 4 cancer. Mine was very advanced when they found it (bone mets throughout most of my skeleton). I was told that I had a couple of months to live and so far I’ve lasted 3 1/2 years. Live life to the fullest and love more each day. May God bless you all the days of your life!
I pray for your health and longevity also. Take care and God Bless!🙏
I wish this angel were still here. Her perspectives are so genuine and beautiful.
You have helped me so much but who remembers when she also almost got the hiccups on her “what it feels like to die” video where she almost gets the hiccups
Thank you for this, I’ve been dealing with health and mental issues recently and hearing you talk about this it really starting to get to me. Thank you and I’ll totally keep watching the series if you make it!❤️
I’ve been struggling to process the myriad of emotions I have. Every passing brings reflection and spiritual movement. Claire’s release into complete freedom trails ribbons of shining complexities, ironies, intentions, hopes, fears, unfulfilled potential and fulfilled potential. I think Claire ultimately did what she came here to do. Lord, we’re all going to miss her. We’re all changed and will move forward with the spark of her within.
This is so true. RIP
Even as a fairly healthy individual I think those conversations you're sharing with us are absolutely priceless and need to happen.
We live in a society where death is swept under the rug and people are so uncomfortable with the idea that they'll stop seeing people when they get really sick. So they don't have to face what it's like.
But the way you speak about things with such clarity and sincerity is incredibly valuable.
I think about my own mortality a lot, and how health isn't something that's granted to all of us.
Even if we do tend to take our health for granted.
Your journey is awe inducing and I'd love to see where it leads you next.
RIP sweet angel 🙏
"choosing to live" i love you
As a 16 year old girl who is about to have her 18cm spleen removed, this helped a lot. You're such a huge inspiration and your story has helped me get through these long years of sickness. #SickKids
SimBeans good luck on the surgery, hope recovery is quick!
I've personally had an appendectomy, the best advice I can give is to take it slow. You might think you can run around and be your "normal self" after, but recovery is a process. If it hurts too much, reduce your activity level. It's ok to go at your own pace. If you push things too much, the pain isn't worth it. So stop when you're in pain. I know how obvious that sounds, but over a year after, I'm still not at my best. I'm much better than I was before, but it's a process. Don't be too hard on yourself ok? Everyone heals at their own pace and as long as you are showing improvement or not going backwards, then you are already winning. Make that goal enough and if you need to cry and feel defeated at times, that's ok too. Make sure you share your feelings with your loved ones so they can be the rocks that they are ready to be. You have to give them a job after all right? Make them work for it.
it would be great to follow you through this process :)
Yeah, I would be honored if she decides to share that journey with us with so little time she has left. :'(
Joona Koski you don't know how much she has left
Not gone. Just not here physically anymore. Love you ❤️ for being so brave and sharing when you were here, and really making me think about so much, at a time when it was really needed. Your voice lives on forever for people to hear you and you are still touching others.
Thank you for making these videos. It's crazy to me how much you have made a difference in my life simply by sharing your unique perspective and wisdom. You are a gift to this world simply by being yourself and sharing your experiences, which inspires me to realize that maybe I have something to contribute to this world as well. By shining your own light, you inspire others to shine.💟💞💖
I would LOVE it if you did this series! and I totally get not wanting to be "the sick girl" that always talks about her sickness, and that's absolutely not how I see you, but a LUNG TRANSPLANT is kind of hard not to talk about at all, on any level. so whatever level you feel like sharing this journey with us, I'm in!
So sad your journey ended. RIP
Nah, fam. She made a lasting impact that's going to continue for a long time
Number one, I would love to see that video series, that sounds awesome and I'd be really interested to learn about the process and hear how you're doing throughout (if you have the energy for it of course). Number two, I'm typically a pretty jaded person by nature, I've dealt with a lot of sickness and death in the past 3 years and your comments on the way people distance themselves having to go through these things and feeling like it's all you ever talk about are spot on. But whenever you start talking about the way you view everything and how you try to live your life and be positive, you always say it's 'corny' but it's not corny at all, it's some of the most real shit I've heard, and to hear it from someone who is going through something like this makes me rethink a lot of the ways I look at my day to day life. I think too many people tend to associate optimism with being corny because it's so hard not to constantly be afraid of that thing that is going to yank the rug out from under you and make a fool out of you, just like you said (wonderfully put), and it makes people bitter, myself included. But it never sounds corny coming from you, and I always really enjoy watching your videos. Just wanted to say that. I wish you all the best in your journey.
YAY CONGRATULATIONS, I know everything will go great ❤️❤️❤️
I would also love to be up to date with your transplant!
She was beautiful inside and out.
Claire: I'm thinking of making a series-
Me: SAY NO MORE, the answer is yes
She recently passed away. RIP
Laura Huynh yes, believe it or not I already knew that. What I also know is putting "rip" at the end of your comment doesn't make it less insensitive...not understanding why you felt the need to even say it, but go off ig.
ᴇ ʟ ᴇ ɴ ᴀ ღ ᴡ ᴇ ɪ ʀ ᴅ ᴅ
You know the original comment was posted 2mnths ago? When she was alive?
So there shouldn't be anything to "specify" there....
Lourde Heru thank you for being the only other person in this thread w common sense♡
Seriously, what specifications needed to be made? Clearly I must have been keeping up w her to have wanted to make the first comment initially...maybe my emotions toward this loss is making me come off as blunt or rude or w.e but that person's comment was unnecessary. @elena
Going through my own experience (cancer), I've been making my own videos about it for over a year now. My vlog has gravitated away from just being about my cancer, and has grown to encompass my life as a whole. I think that's important, so that people don't just see me as a sick person. I don't want that to be the only thing I leave behind. I want people to know who I am and was, and that while the experience definitely changed me it didn't define me. I encourage you to do the same. Admittedly, I've only been going through my experience since January of 2016, whereas yours has been a lifetime, but maybe it'll help all the same.
Daniel DC Becker I had a friend who died of cancer and it went away for 2 years we were all thankful that it was gone then it came back stronger than ever he died last week
I saw u have a go fund me for your cancer and I so badly wish I had even a dollar to donate to u and I feel so awful that I can’t help u and Claire and everyone else in the world who needs it for all the many reasons there are, sadly :’( so I pray more ppl see this and maybe they can donate to you, God Bless You
Thank you, Sara, that means a lot to me. I understand, not everyone has the money to donate, and I'm not nearly as in need as others. If you do have money to spare, please donate to Claire, she really does need it more than me.
Diamond Master why the fuck did you feel the need to leave this comment. talking about steeling hope. disgusting.
She was so quirky and cute in all her dire circumstances. She didn’t deserve to die. I believe there’s a heaven and I know she’s up there ❤️
three years late.....just found out about her yesterday.(random recommendation).... amazing human being....no words.... rip beautiful Angel
I think it would be an amazing series! You will be informing people about a process that a lot of us don't know about.
this is heartbreaking. she had so much planned but she never made it and hearing her talk about her future is so sad. she’s an angel, she inspired me so much. I miss her so much
Lowkey loved the dip analogy
trust me girl we want to be kept up to date- we care about you sm
She knows much more than a 100 year-old person and she really lived a life to be proud of. Even I'm proud of being the same species as her. She was a real Angel and she has gone back to heaven.
Do a series!! There are not enough videos that explain the hard times people have to deal with.
Hi ❤️ love your vids. You’re so inspirational x
she deserves to be here still. she’s a beautiful angel and was extremely high hopes and extremely loving and happy. i never met her in real life but i miss her. i love you Claire ❤️ rest in peace bby
So wise beyond her years so much hope and faith fly high Angel xxx
My heart is broken, and I feel honor, knowing this fine person. She's an angel we can never forget.
She deserved to live longer.
She was such a beautiful and generous person may her soul rest in eternal peace