When I heard about it, it felt like a kick to the stomach... I felt like I'd lost a friend. I still tear up a bit when I hear her speak. She was wonderful.
I had the exact same experience... I just cried and cried. I truly love and appreciate Claire so much. And she has truly changed the world. She is missed by so many people. I am so happy we all get to watch her videos. I am so happy to have been on the planet with her.
You know what's funny? As I got very emotional about it, I could feel myself feeling silly in a way, like I knew she would gently scorn her viewers for crying. She struck me as the kind of person who didn't want to be cried over, but you don't get to choose how you affect people in this world, and she reached a lot of hearts. I hope she's laughing and shaking her head at all of us down here.
@@RealElongatedMuskrat same, I felt her infectious silliness and when they had the text showing day of death and "21 years old" below, I expected it to say "never made it to the club." I think she would have laughed so hard about that.
She had to grow up sooner. Life was tough to her, so she had two choices, give up or keep moving. She did what lots of us still try to figure out. She lived her life to her fullest.
Exactly! Well....that. And free music. In all seriousness, she was an amazing person and the definition of inspiration. Kinda bummed I didn't know about her until today.
@Michael Ross had to google what y t p ment......and I have to disagree with you. This girl was different. I watched alot of her stuff and it changed my view on life for the better. She is just lovely. Have you actually watched her stuff? By your throw away post it seems like you should.
I never forget about her. I donated to her go fund me for her lung transplant, and I grieved when she died. I always come back to this channel and get a sense of gratitude in my life. Always get inspired to keep going.
@@catguthrie6264 She so was wise beyond her years ..if only we all learned something of that, earlier in our lives. Thank God for technology where we can still meet with these previous people who have passe in. Their legacy lives on.
this video is a hard one to watch affer a year i can sit and watch it with minimlal crying i use to not even be able to hear her voice or see her pic without crying for ever im a guy and idgaf i knew claire personally and as many people say i wish i knew her but it hurts me any way!!! imagine getting to know that angel then have hwr taken away and all the questions and thoughts being religious and how god works. its alot but i had to put my faith in him and let him guide me back and here i am still crying and missing my angel 😭😢😢
@@christophermcnamara5591 it is not only experience. it is a reflection of your existence and contemplation of where you are. Thus, you have to use deep thinking and pure reason in order to become a wise human being.
@@frederickwalzer5555 I'd say that you still need experience, as Cristopher mentioned. Wisdom is about aknowledging patterns, and patterns need time to manifest into your existance. However, if your IQ is high you can see this patterns earlier, I'd say Claire did see some of them earlier due to her intelligence.
As someone with CF, I can definitely agree on that. Sometimes, I wish that I had heard of Claire's story, prior to her death. She seems so much like a humble and understanding person, that who I could totally relate in a way. Amazing human being. She plays a fantastic role for the Cystic Fibrosis Community and beyond.
Xander Harris. Same. I complain that i am depressed and don't do anything with my life but wallow in my misery. Then you see a person like Claire and i feel so disgusted with myself for acting this way and not being super appreciative for everyday of my life and wasting it.
THIS! THIS IS SO TRUE and i wish more people would look up to those that inspire others instead of those looking for fame. I would love if they showed strong people like Claire in the news or for school documentaries so we can understand and learn more about these different conditions and the hurdles they have to pass daily.
Amen Amen Amen.. The world we're living in, has got things upside down. Claire is an inspiration, I saw a few of her vids recently, her attitude, her ability, no actually her determination, to be positive no matter what, is awe inspiring. Her family are blessed to have had such a fantastic presence among them, and I'm sure they don't forget that for a moment. Love to them, especially Lil sis, in sure you miss her more than is possible to imagine.. But you guys.. You were blessed.. I don't know ANYONE as cool as Claire.. (sorry fam n friends, it's true though lol)
@BULLET BILL bitch im not shallow there are lots of good role models out there take beyonce or tinashe for example they are standing up for people who had no one stand up for them shame on you to try and scrutinize and be little other celebs and there not even celebs there people who are well known i mean yes there alot of bad celebs out there that people idolize but there are also alot of good people out there to idolize , Yes the girl had a disease she died from she impacted peoples lives, just like how other good celeb role models do
@@fffernsw4dl539 ikr, if you ask me, people like Claire should be here longer, living way past 21, THEY'RE the ones who are supposed to live, not criminals like rapists, drug dealers, child abusers, child molesters, women batterers, animal abusers, etc, they're the ones who aren't supposed to be here, but no, it's always the brightest lights that burn the out the soonest 😭 I swear to God it's like the world doesn't want anyone to make it a better place, it's like nobody wants it to make it better, it's not fair
I think shes dead now. N I think I said in front of everybody that I wanted to steal her sunglasses and asked for her sunglasses. I apologize for that. When my friend died she was dead on the carpet so I can say that you know this chicks dead she's dead who cares. To be honest I just don't care that she's dead. I don't feel anything. N yes I would steal her sunglasses, she doesn't need them anymore anyway.
I kinda hope she at least got to have that drink. It’s kinda strange in a way that when she nearly died the first time she was able to talk about how this could be the end and she could feel that she was dying. When she actually died, there was none of that. She was happy and seemingly in good spirits. It’s kinda sad that her life didn’t end at her lowest moment but at a moment when she was happiest and looking forward to more things in life, when everyone around seemed the most optimistic about her life. She seemed like she was ready for the new lease on life and that she saw it as an opportunity to do more. Like she couldn’t wait. That’s when death came for her. At least there was little to no suffering. Surgery is one of those things that scares me. I’ve had a few and never really thought about it much until I woke up in the middle surgery (they were far more surprised then I was). At the painkillers were still doing their thing. But I’ve heard so many stories about people going in for major and minor routine surgeries and some unexpected complication happens and their gone. For it seemed like the surgery went well and then she had a stroke while still under and never came out of it. Kinda scary.
@@CamaroAmx I totally felt that, the passing at her happiest and more hopeful moments in her life makes me so sad, mad and in disbelief with life. I'm just sitting here trying to accept the death of someone I never knew and never met, occurred two years and half ago.
@@Christine_990 omg i have just watched her video titled " how it's like to die" and i got emotional and she really died after that omg i want to cry for the whole day
@Sebastian Gonzalez hey, just sharing information: physical features means she is in good shape and eyes, nose, face, curves are all physical features which makes a girl beautiful, a woman beautiful and it all makes her, claire. It does not always mean sexually. Try to see/feel things more open and free. I am not here for any fight. Wish you a great time. Thank you.
Watching this makes me feel even more embarrassed and shitty for smoking cigarettes and ruining my lungs when this girl would have loved to have my lungs and wouldn't be taking them for granted. So today, I am setting a quit date and will stop smoking. Not just for me but for little Claire's all over the world. This chick touched my heart!!!
Addictions are difficult - and its a conversation of its own like this one in a many stories format. Claire actually caught me at one point (and I'm paraphrasing here) saying that everyone has the same pain, no matter who you are and your story. I think that spoke deeply on many levels there - I know for myself and family that addiction, whether considered small or large, is based on some sort of pain or problem, somewhere, deep down... you just have to dig - and yes it's often genetically driven, and yes it's a fucking terrible social enabler, but it also can route from things you don't realize at the moment. Good luck with your journey - we're all on one in many ways, from cigarettes, to alcohol, to depression, to self hate, to personal joy and acceptance... accepting and working on it is the most beautiful thing you can do to yourself. And Duct Tape Bandit (love that) - if you fail, just pick up and start again. Addictions are a life-long struggle (accept that now and it'll be easier), and when failure comes you should accept it, dont beat yourself up, and charge back up that hill.
You can do it! Sucks at first but you'll get over it, I promise. I'm at about a year now and other than some weird dreams smoking doesn't really cross my mind
I had a childhood friend with CF. I remember so clearly, even though I was half-asleep, seeing her tiptoe around our sleeping bags to meet her mom at the bedroom door trying not to wake us up. We slept over on a school night, and before the sun had even began to rise her mom was helping her take her handfuls of pills and get set up for do hours of treatment before the rest of us were even awake. It wasn't really until I became an adult that I could fully realize the magnitude of what she had already went through at such a young age. Claire reminds me so much of her- boundless optimism and wisdom.
Same. I still grieve her death, but I smile because she left something behind and gave her organs to those who were in need. This makes me more proud to be an organ donor, so I can hope I can save a life someday, if I am unable to be saved. RIP Claire, she has indeed earned her angel wings.
She would not want us to pity her, that was the one thing she hated. Instead of talking about how she died, let’s talk about what she did with her life, the millions she inspired, and her impact on the world. Claire, you will never be forgotten.
@@iheartgallavich7114 gawd i remember seeing this for the first time, having watched it midway, and then going through the comments I just thought 'no, no, no! This can't be!' It was the worst.
@@sheedee2 Right? There are people who treat their bodies like a dumpster. If only they would realize how lucky they are and how precious their fragile bodies really are
Creepy how your comment talking about angels has 666 likes. But anyway, Claire was a gift to this world. I’m so thankful I found her on TH-cam. I’m sick so she definitely helped change my perspective on things. I wish there was more people like her.
Sometimes i feel like people that struggle usually have more optimism than the rest though, like they have that fight to get better and see things more clearly while people that live a comfortable life are more cynical and take what they have for granted, i know it's messed up but it can be like that. And i am sometimes guilty of it myself.
dont be ashamed, there are always people living better than you and it shouldnt stop you from being happy either your feelings are valid, to want and to be concerned is deeply human
We are just human, we’re hardwired to want stuff and worry about stuff all the time because it has helped us survive. But when you take survival away from a person they suddenly stop worrying and start to live fully. We are all going to die one day and it might be sooner than we realize. Do everything in your power to get the things you want now because your time is limited.
The fact that another person goes without food doesn't mean that you have to go without clothes. It's stupid to invalidate your own wants and needs because others are suffering more than you. You only have one life to live, and there will ALWAYS be someone that has it worse and better than you.
This has been up for two days and only has 100k views and all that’s been donated is $37????????????? But jake Paul and tana charge $50 to live stream their wedding and make 3 million off of it? People need to wake up. TH-cam needs this to be trending right now.
I totally agree with you one hundred percent...its really sad..Claire is such an inspiration to us all...I am going to share it everywhere I can...priorities are all messed up! Xo Hydie 💟
I wonder how many CF patients get told that. My friend was told that a lot. I guess something about being told "you probably won't survive the next 2-5 years" early on since childhood and for the rest of your life causes you to approach life in a different way.
I literally was feeling so depressed right now. So i typed in "I NEED HELP" on youtube and this is what i got. I've literally been taking life for granted, locked in my room whole day watching videos on youtube thats absolutely not going to help me and i felt like giving up. But Claire's life brought some hope into my life. thank you so much for existing
Adrian Allen Jr... We all do feel depressed so many times.. It is life, its not easy.. But remember when ever u feel alone, lonely, u feel so down,,, have on your mind tht someone else is feeling worst thn you.. And better days will come straight up never give up...
That's all it took for me too. I randomly came across her video of "What it's like to die" yesterday, or it came up on my suggested videos, idk why a video like that came up, But I guess I was meant to see it. So, Anyway, at first I put it on the watch later list, and later on I was watching another video on the list and when it ended, it automatically went to her video and started playing. I almost turned it off and was gonna put off watching it till later again, but after about 10 or 20 seconds of hearing her speak, I was just so taken in and interested in what all she had to say, so, I couldn't turn it off. I had to keep listening to her. What a wonderful young lady and beautiful soul she was. Such an inspiration to so many and she did so much good and made the best of life she was given while battling such a horrible disease. I want to watch more and more of her inspiring videos. It broke my heart when I found out that she passed away and I've been sitting here balling my eyes out watching this documentary. RIP Claire beautiful angel.
@@nicoleangel4383 what an amazing angel she is. SO SO SO WISE BEYOND HER YEARS. A modern day Mother Teresa. She was sad she couldn't stick around to do more and she didn't realize she did more than anyone ever could have. I'll never forget her story and life.
zBash i didn’t know and I can tell you, it’s horrible too because when she said « I’ve got my lungs!! » I was so smiling and happy . Right now? Crying my f**** heart out 😭😭😭😭😭 she was an angel on earth 🌍
zBash oh my god i didn’t even realize that she passed 🥺 i used to watch her and be like you’ll make it , now she’s gone :( i watched her every time she uploaded 😔
That day I really wanted to die, or I thought I wanted. I googled "what it feels like to die" or something around those lines and Claire came up as a ray of light. She helped to get throught that day and her life made me try harder to stay here. Thank you, Claire. You gave this world more meaning. I never knew you, but I love you.
You are wanted. you are needed. Please stay, even when it is dark, just wait one more minute, one more hour, one more day. Stay, you have so much to give.
She did get past 21, she keeps living through her videos. Her videos will be here, forever in the internet. She keep inspiring people through her videos, and i'm so proud of her 🥺
My beautiful daughter passed away when she was 14. She taught a lot of people. God bless you, angels. I almost died of sorrow, but now I live in her honour.
After almost 5 years from her death still thinking of her. She was a truly inspiration, I’m struggling with finishing my studies in energy engineering, sometimes I feel like to quit but then I remember Claire’s words “ If you think you have something to give to the world try to put you in the position to do it”. I want to study to help the planet, to help people, to repair the damage people did to this planet. Claire helps me to think of my purpose in life and in the potential of just being alive ❤ Sending a lot of love for this angel from Italy, always in my heart ❤
When she was 13, she was 31 When she was 15, she was 51 When she was 19, she was 91. She lived a life of meaning and purpose that virtually no one her age can possibly compare.
Exactly, which makes it ironic that people fucking look down on sick/disabled people, when they are clearly some of the most mature, smart people from their life experiences. Perfectly able-bodied people wouldn’t be able to fathom it.
Ok so I’m not tryna be disrespectful but I think you think that wise ness comes with age which is not true because I mean Claire obviously showed us that I just feel like people think that in order for you to be wise you have to be old I honestly hope you can see where I’m coming from
Ugh how sad. Received a double lung transplant and died from a stroke shortly after. That is so sad and tragic but I’m glad she made these videos to inspire others
It’s so unfair but sadly I believe her purpose had been completed - she came here and shared her story and impacted so many people. Sadly, that was her purpose and why she was here (not the entire purpose but I’m keeping this short)
As someone with Bipolar Disorder (which is also a lifelong illness) Claire has inspired me so much to stop playing the victim over having it and change my perspective about life in that having bipolar isn't something to let yourself get you down at all and that having it isn't even good or bad in the first place. Thank you Claire, a true beautiful soul.
MissTotos point being, she made us all realize that there are many wonderful humans on this planet. And the sick ones and the suffering ones have A LOT more to contribute with. She taught us that you can create the most beautiful art, be the most connected with humanity, if you have suffered. She is gone, but she left a huge piece of herself behind.
I cried so hard last year when I saw she had passed. The world truly got a lot gloomier when her wild flame burnt out. She was genuinely 1 in a billion.
I needed this now more than ever, even a year later she is still impacting my life just as greatly as she did when she was here. We love you endlessly Claire
It’s combing in six years since Claire has passed, It’s 2024 its passed midnight and there was a song that reminded me of her, She is such a bright light. I miss her and I have never met her but wow what a tremendous gift God gave us with her even for a short time. I believe in Eternity with God and I believe she is in heaven healthy and radiant. Thanks Wayland family for sharing such a beautiful soul with all of us.
@@butterflyb3716 Butterfly I have been a Christian and in missions for years, One thing I learned is that you assume that because there is not an official prayer such as “Jesus forgive me for my sins, I surrender my life to you” That you won’t get into heaven. Remember the thieve on the cross What did he say? He did not ask for forgiveness at all. He said “ Remember me when You come into your kingdom”. I encourage Christians to check what they say before they say it. Your tone is judge-mental. Be Humble, be merciful.
The Wise Woman i also have ms. I have been symptom free for 3 years after rapid decline and brain and spinal lesions. I hope you find things to aide your journey and bring you relief
The Wise Woman i too have ms.. I understand how you feel and I totally agree. When you say rare form do you mean primary progressive? This life is a cruel one :( since my diagnosis i did college and got into uni studying medical science because my research into my condition sparked up such a love for the subject. Also I figured i needed to retrain in something as one day I may need a sit down job :( don’t let this illness win ❤️
I too have had MS for 14 yrs now...i take every day one step at a time,I am doing my best trying to keep my legs going so I don't end up in a wheelchair,my lungs honestly give me more problems right now...i keep going for my 2 youngest girls and getting them thru high school...i know how hard it is living with MS and even thru my hard days I try as hard as I can to stay positive
I went to high school with Claire and she was such a lovely person. Today I will be doing a charity stream for the Claire's Place Foundation and I am aiming to reach at least $1,000 to donate. I miss you dearly Claire and it was a pleasure to get to know you.
I'm jealous I wish I could have met her you know I only found out about her through Shane Dawson whenever she passed but I don't have any chronic illnesses cystic fibrosis I know someone with cystic fibrosis but I think that Claire was an inspiration i think she can is an inspiration to anyone
I am absolutely heartbroken... I just stumbled across this lovely ladies channel and watched a video, this video came up on the sidebar and I was thinking "I really hope she's doing ok now" only to scroll to the comments and see that she sadly passed away. Life can be so cruel sometimes but it sounds like Claire lived her life on her own terms and faced each day with a smile. What an inspirational lady. Rest in peace beautiful girl.
the night before her transplant i was on her live for hours, watching her answer questions (including mine) and talk about life. it’s so crazy and upsetting to me to think she’s never going to do it again and i catch myself thinking about those hours a lot. miss u claire
@Mallory Bedney Wow :( Hope they can be retrieved somehow, you never know. Thank you for sharing this anecdote though Elle, it makes me happy that she could do this shortly before her surgery ❤️
I sat here in tears as I watched this with my 8 month old daughter with cf as she coughed her little cough. As a parent to such a special little life, Claire inspires me even now to build this same fire within my little Phoenix. I hope that I can live up to that. Breathe easy, Claire. Rest in peace.
New medicines are being developed at lightning speed right now for this and other diseases. It is an awesome time to be alive. I truly believe your daughter will live a normal lifespan with the new treatments that are available now, like Vertex, and the new treatments that will become available in the next 10 years.
After 5 yrs I've come back to watch this documentary again. This girl is so inspiring and beautiful inside and out. Such a special soul. I cry so much every time I watch this documentary. So many of us waist so much of our lives and Claire enjoyed every moment of hers.
"I'm dying, faster than everyone else." That has helped me enjoy life despite my health deteriorating. (Not CF) We're all dying, only some of us take the time to live our life. A long life is not necessarily a full one. The older I get, the more I realize a long life could be terrifying, especially a life full of regrets and mistakes. I have many elders whom I adore, lone survivors of their families, even outliving children and grandchildren. Some become bitter and others treasure the memories, celebrating that they have had a life of meaning.
"The cure to illness, isn't actually anything to do with being healthy. Right, fixing yourself when you're sick has nothing to do with being healthy or fixing your body. Fundamentally what it has to do with, is fixing the way you view your part in society and in the world." Damn what a powerful statement to make, and she's so right... That's some great wisdom from someone of her age, so mature. She is so well spoken it's super impressive. I teared up when she said that. That quote is so deeply rooted with power and meaning. Such a beautiful piece of wisdom from her.
The first video I ever saw of Claire was her "What it feels like to die" video and the reason I came upon that video is because I had depression and was looking up ways to hurt yourself without leaving marks or how to die an unpainful death. I'm forever grateful that I stumbled upon Claire because her insight into the world enlightened me and changed my whole view on life and she essentially saved my life.
God sends these stars(biblical reference you’ll know what I’m talking about if you study spirituality) in the world. They come to say what they have to say and go quickly. She’s one of them.
All I can vision is Claire being wherever she is, walking up on what could be a mountain, and smiling and then taking a deep breath in, and just looking so peaceful and relaxed knowing that she did it. she did something for people.
I saw this video in my feed and decided to watch it. This one click triggered so much. I didn't know Claire or her story yet, but from the first minute I felt what an amazing girl she was. Her videos are so real, it felt like I made a new friend. I can only look up to her positive mindset and her will to keep going. Her story has taken me tremendously. So sorry she is no longer around, because she is a bright spot for so many people. I am so happy that her story and amazing personality are being immortalized on TH-cam. It is impossible to describe the impact Claire had on all of us. Thank you Claire!
On the reverse side of things, her passing was just as she envisioned it and wanted. It wasn't a panicking, gasping for breath, or slowly losing her sparkle as her body shut down around her. It was that gentle euphoric sleep she some how knew she someday wouldn't wake from. Did the surgery kill her or save her from a downward spiral she dreaded?
May 2023 ~ Interestingly, I found Claire's channel and her amazing story, through her Dad, John's TH-cam channel. What an extraordinary woman Claire was and became in the short 21 years she was on the earth. Claire is an angel now - it seems the brightest lights are often taken too soon. I am touched by her life, her story and this documentary. With love & light ~ 🕊️
I just wanted to let Claire's parents know that in this moment there os someone on the other side of the world who knows that they're going to take this 40 min video with them forever. Thank you for being amazing parents and have raised this incredible woman. I'm so deeply sorry for your loss.
Well said. Claire honestly knew and experienced joy in life more than 90% of ppl who lived a full life or 80+/-. This is the 1st video I've watched so haven't watched her grow via TH-cam videos and I did not know Claire, but really wish I did. If I did I would have loved to work with her by offering her marketing + leadership experience or should say additional support, or built a mutually reciprocated mentorship with her. Although I could have taught her strategic digital and partnership marketing opportunities and skillsets to spread her wildly successful view of life and self deception for everyone to unite and empower each other, to individually fight harder, never give up or stop trying to find your purpose and create extraordinary life memories no matter what battle you or someone else is facing. Even if I was a genius marketer, I am confident it would not even compare to her true integrity or the greater good, bigger than life impact she wanted to do "when she got new lungs." However, she was focused on everyone else learning about the importance of living in the present, supporting uniting families with kids in the hospital fighting for every breath... that she was picturing her future with grace and bringing the world to their feet... that she didn't realize she was already doing it... everyday in endless ways with CF... and her life journey lives on and she continues being an inspiration to others and her joy in her purpose DID Bring the World to Their Feet!! And she did create a purpose larger than herself! But it cannot stop here....! It saddens me that I didn't know her story back in 2016 or sooner to attend her foundation awareness events, or anytime to just hang around her to be in the presence of her contagious smile, love of life, her wildly successful drive, grace and will to maximize literally every breathe of greatness she had in her. My younger cousin just turned 25 (yay!) and battles CF everyday too. She too has a beautiful soul inside out but she had a different or the opposite approach growing up and she use to avoid talking about it with very many ppl until high school when she couldn't join her classmates in curtain older buildings w/ potential mold etc. So she had to sit in another building and video in on the class lecture. This said, back to avoidance of telling a lot ppl, I assume it's vprobably bc of the fear of pitty, becoming her identity (vs her beautiful, smart, sweet soul inside and out + committed faith and grace of God,) scared of how ppl's behaviors will change once they know or the fear of fake friendships, etc. Or sometimes, I wonder if she's scared to be a constant reminder of being terminally ill to ppl she loves deeply. All this said, her mom (my sweet aunt) is actually who I worry about the most bc she doesn't let a lot of ppl in and has closed herself off from having her own friends and life, outside of her husband and kids. It's not like she lives the saddest life ever, but from my perspective (outside looking in, and I'm probably the closest family member to her) it's definitely a lonelier life than she deserves. She's gorgeous inside out like my cousin, married to her high school sweetheart and 3 amazing kids. But I sometimes worry she's bottled everything up, or the opposite kept herself busy with making sure her daughter has all her pills, treatments, Dr visits, long hospital visits, with everything to keep her mind occupied and she's just numb inside. It's like she's waiting for "someday" to live her life, she's always made sure she's doing everything she can until the dreaded saddest day ever comes. I would love to see and even help Claire's mom (bc she lived it and learned from her amazing daughter to live your best life in the present moment or someone similar) but to see her continue sharing Claire's journey but also maybe use this platform to speak to other mom's, and family members to share her perspective (and other CF families) and help bring the same positive or just realness vibes, preparing how to coexist with the fear of any day (everyday for 1 to 22+ years) and forcing yourself to have other plans that do not include worrying about the fears of CF battles or hospital visits, with more joy, grace, and love of life and energy for all other mom's and/or dad's, etc. It's also hard for families to talk after a certain age bc the kids want or need to go alone to hospital visits and as of a few+ years ago CF kids cannot be within 6 feet of each other so it's harder for them to meet or be around other CF kids. Especially, those living with the constant fear of which trip to the hospital will be their child's last, or the constant worry of making sure their child is doing their treatments and taking their medicine on time or not skipping treatments bc they're having too much fun or scared of letting ppl see what they go through or fear of social bullying from uneducated cruel cyber bullies, or their child's fear of not being able to find someone strong enough to see past it to have a loving relationship, etc. (Lucky my cousin married young and finally moved to another state but it doesn't mean they or other parents aren't going through it don't need a support team or online community, etc.) aren't also deeply effected by watching their child's struggles, fears, self doubts and the pressures of being the adult and always having to put on a brave face for not only their child but the parents of classmates, friends, etc and even more so their family members with constant pitty concerns. Or prepping their child for hospital visits for 3 days, 3 weeks to months at a time. As you can tell, I can go on for hours. However, my point is Claire's story, grace and inspiration is more than admirable... and her mom is just as uplifting and genuine. And something inside of me and my faith tells me there is more to this journey.... and her mom and/or similar CF moms would be a great example of demonstrating the support system she used to empower and inspire Claire's vision of making this bigger than herself, believing and leading by example for many and the natural next step is helping parents of terminally ill children bring the same energy and positive point of view on the joy and grace of living in the present to the parents struggling with the realness of the impact not only on the CF kids but their parents that find out they have CF basically weeks before or after their kids are born and immediately start multiple daily treatments and pills. And have close calls a few times throughout their lifetime. Claire's outlook on life and drive for supporting the the family's during hospital visits, etc. is so selfless and admirable!!!! I want to offer my help and support to Claire's passion and will to continue her journey and reaching more people and supportering in more ways. Including starting uplifting, social, or individual parent sessions and activities learning to prepare and live as their kids start their CF journey. Also the real hard sessions and the grieving process. By empowering and uniting parents to have extraordinary memories and keep bringing the world to their feet for Claire!Press forward in away to support CF moms and/or dads to find purpose and love of life again.
This poor kid endured more pain and hardship in her short time than many others do in a lifetime, and she did it with grace and poise. What a wonderful soul. Perhaps it was a blessing that her passing was peaceful. An amazing and tragic story, I am glad I was able to learn about her life.
That's what she wanted 🥰 and it just shows the true impact she made in her 21 years. I hope she knew how incredibly powerful and inspiring she was! She made a difference in my life that's for sure. 💜
It looks like I'm not the only one who is just learning about Clair now because she's suddenly showed up in my feed. I'm not sure why this is popping up for so many of us now, but I'm glad it is. I'm glad her voice continues to carry.
It’s so weird, she popped on my recommended, I really liked her and watched almost all her videos. Suddenly I realised that she hadn’t posted for three years. I cried and cried over a person I hadn’t met before. She was an incredible person♥️♥️♥️
I remember Claire's last Instagram stories. She was so happy and so excited to get new lungs and to have a chance to live a bit longer. I was so happy and was waiting to see her again. Then 4th September on my birthday they announced her death and I felt so empty and cried so much. Thank you so much for everything Claire.
I know. That's why we're all crying cause in the end it wasn't even BECAUSE of what she had that caused her death. It should've been the new beginning...not the end.
My birthday is also september 4th the day they announced her passing. I was in the hospital battling my own terminal illness when she passed.. Its all so familiar to me. I love her and i cant wait to finally meet her.
@@slipdripdrop6929 hey, I just wanna say I love you. Hope you find your peace and happiness. P.s. it's almost our birthday so happy birthday dear Samantha
I just found this video and it brought back so many memories and emotions from many directions. First, I worked as a nurse all my life. A few years on a pediatric unit taking care of CF kiddos. They were the best and at times, the most emotionally draining patients going from doing ok one moment to being critical the next. Second, growing up I had a lot of respiratory issues. I would get bronchitis 4-6 times a year. When I was 50, I was diagnosed with COPD even though I never smoked a single cigarette or anything else in my life. I was put on a CPAP machine when I was 26 and by the time I was 50, my breathing was bad enough I was changed to a BiPAP machine. Just seeing how excited Claire was to be getting a lung transplant, I was so happy for her. I had to stop the video for a few minutes after her surgery to dry my eyes 😢😢. God bless you Claire.
It’s funny. In the beginning I thought she was a little bit of a bitch, but then as the video went on, I started to understand her and then like her. Her personality grew on me pretty quick.
I can't help but feel sooooo angry that this is how she died. I'm a doctor-in-training and I am very well aware that surgical complications happen, and often they're inevitable and there's often nothing that can be done. But it just feels so unfair. She was so full of life and so excited to get new lungs. She survived all the crazy things her body was doing to her, but in the end, her cystic fibrosis didn't even kill her, it was us. My only solace is that she died under anaesthesia and not from suffocating to death, full of hope and joy which I'm sure is a much better way to die than dying full of fear that you're drowning. I hope her family is doing well
False I had a bad reaction to anesthesia and I stopped breathing once I woke up and it was panicking and distressing but then its super peaceful quiet surreal
This has nothing to do with anesthesia like that but I have sleep apnea and I need this machine thingy and if I don’t use it while I sleep I could die so.... :|
It’s trying to be considerate. One does not know if they would hurt the sick so they try to be careful not to further hurt them. You have got to understand that people do that with good intentions.
@@waykee33 my uncle has Down syndrome. All the counselors and people that work with him are amazed how much he can do compared to most like him. He has a job that he’s been at for years. He can drive. He can cook. He can do many things that people like him can’t. Why? Because my grandparents raised him like a normal child. They never babied him and treated him like he was disabled. Yes of course there were concessions and challenges in that. But they never treated him different then any of their other children. They taught him everything that you would teach any other child and adapted to the things he couldn’t do but also worked with him so he could do as many of those other things as possible. That’s how you treat a person with a chronic illness or disability.
By chance I saw the IG profile that mentioned Claire’s story and watched the documentary. It was touching. Honestly, I’m glad she didn’t have to experience the pandemic, isolation, and now the current climate of the world. It’s ruthless more and more everyday. She passed peacefully and as a hero. Such an intelligent mind, truly unforgettable. Tomorrow is the anniversary, I hope you are resting well and shining light to your family and friends Claire.
I just want to say she is my role model. I am 14 years old and I have cystic fibrosis. I have been hospitalized 5 times and I feel so bad for her because just two years ago a pill called trikafta was invented after it’s 20 year drug trial and I was blessed enough to be able to use it. My life expectancy was 5, but my parents didn’t let me pity myself and actually didn’t let me know what cf was until I was in 1st grade when I was hospitalized the first time. Thank you Clair for showing me life isn’t just worth surviving, it’s worth living
Claire, I'm crying right now because I have borderline CF and just turned 50. But my days are numbered by a rare fungal infection. Humor helps. What can I say, I'm a fun-gal? Sometimes the past six years have been nothing but trying to stay alive. It feels selfish. What can I give? Tomorrow I promise you I will sit down (while doing my Vest for 40 minutes) and really really concentrate on what can I do with my remaining days to help others. Thank you dear Angel. See you on the other side.
Thinking of you and holding you in my heart. You have so much to give. Look into yourself and look around at those who love and support you. You are worthy of joy and your humor is a gift! Making others laugh is a beautiful gift to the world. And I'm sure so many more gifts within you that the world is waiting to receive. You are never alone. ♡ Claire was such a beautiful inspiration to soak up every juicy bit of life. She will be forever missed and in my heart.
I really wish you have a great rest of your life. And don’t pity yourself live life to the fullest because we all only have so long and you just have a little less amount but PLEASE ago out HAVE fun and BE yourself!
Hi, there's so mush room in our hearts for you, Krya and thank you for sharing what's going on with you, in your life. Social media is a strange entity in that we can curse it for what we don't have -- yet we can also share with it what we do have. Clair's journey affected me in a way that I don't know how to explain and now she is collecting people, people who would never know of each other, together. The will to live, the act of doing what it takes to keep your feet on the ground is not a selfish path - no one believes you are selfish. You have souls who love you, depend on you and have grown with you and your presence is/will be irreplaceable. You owe us no promises other than keeping your spirit free, releasing guilt and fears, and forgiving yourself or others. We are thinking about you.
Last year I started an experimental drug I gained 17% lung function and have not been hospitalized once. I could have been you and you could have been me. I won the lottery and I’m living my best life. Thanks for all your videos and helping me stay positive. Thinking of you all the time ❤️
@@CaitlinStoryLovesYou. I have EDS as well. Always nice to meet another zebra! Clair has really opened me and changed my perspective of being chronically ill with a progressive illness, in which there is no cure.
I’ve noticed over the years that young humans that encounter hardships early in life are the most make, level headed people out there. I feel like sheltering really stunts us to a significant degree. People like Claire really help put into perspective how much time we waste on telling ourselves that we can’t or we shouldn’t. Thank you Claire for reminding us that no matter what life is always worth living. ❤
It wasn’t a coincidence that any of us found this video. We all needed to meet this angel. God Bless this beautiful soul. Thank you for your wisdom and your slap in the face realness! R.I.P Claire🙏🏽
In my case I can thank Stephi Lee for this along with the director of 5 feet apart (the original documentary on Claire) for this video. It was from him that I heard that she was on a clinical trial for a new drug for CF before she died. The version she took didn’t work but those trials lead to the new drug that’s out now (as of late last year) that does work on most CF people and has added years to their lives. Stephi Lee is 26 and is now expected to live for anther 15-20 years because of the drug. Before she maybe had 2 or 3 max. Her lung function was bordering on the point where a lung transplant was going to be her only option (generally when it reaches 20% or less). Hers was at 23-25%). She’s now at 80-90% lung function.
Me as well. I spent a long time hidden away in my room, in bed, feeling sorry for myself. Then, Red Band Society came out, and I loved watching Claire talk about it each week. She inspired me to live my life as a person, who also happens to be sick, rather than a sick person. There is more to life than hospitals and medications, even for someone who relies on those things to live.
watching this always get me in tears because how someone who lived a short and limited life have such an incredible life and so proud of it and had given so much voice for herself?
@@E_w_a I mean they sure can try and get rid of the addiction. But it's not like they can just decide to stop and everything will be okay out of the blue. They need to put in real effort to get out of it.
I was made aware of her existence less than an hour ago and she has changed my life in ways she couldn’t have imagined. Never thought I would ball my eyes out to the death of a person I’ve only seen on screen for less than an hour. Not because she isn’t here physically, but because of way of life. The true meaning of life. She was such a powerful & wise woman. I have no doubt she is living it UP in heaven.
Right? Like I’m just watching now and I think the reason why I love her so much is because you can easily see her as a good friend. She just had that kind, sweet energy that any friend - and us as viewers- are lucky to have experienced. Reminds me to always lead with kindness.
Many of us all over the world have shed tears for this beautiful girl ... and now I'm doing it again. A true inspiration ... she'll be remembered when we're all forgotten
Right!!!! I feel the exact same way and I just came across Claire's video 35 minutes ago. I can't explain what her word's and spirit have done to & for me. She is beyond wise and beyond amazing and has such a beautiful singing voice. There is just something about Claire that I can't explain, she's changed my life. She has touched a part of my soul I didn't even know existed.
So beautiful to watch this again. I followed Claire in her last year or so and found her so inspiring and wise. I was so sad and shocked when she passed. But seeing this documentary brought her fully to life again. Her legacy is huge- she was such s bright light in this world- a living angel. Fly high Claire- you live on in the hearts and lives of all those you touched and all those yet to be touched by you. ❤❤❤
It's hard seeing her alive again. I stopped watching her videos when she died, I was just too angry. Now, the anger has (almost) gone and I grief for our loss. Such an enlightened soul. Gone but not forgotten.
I had notifications on for her all her uploads and when she died I stayed subscribed, however, I had the notifications set to occasional because it was so difficult for me to cope with her loss. I had just lost 3 loved ones (one of which was my little brother) in the span of less than a year right before Claire passed and once I heard of Claire's death and that blood clots caused her death, all my wounds opened wider and I just fell deeper into my sorrow. My little brother had died from blood clots and suffered multiple heart attacks because of them before his death and I was inconsolable (I literally felt like he took a part of my soul when he passed and still feel like that now) and then hearing blood clots caused Claire to have a stroke and die was more than I could handle. I am just now finally watching Claire's documentary and my goodness she shined so bright. We truly lost a great and wondrous hero.
I’ve struggled with depression and anxiety for a very long time, and she’s taught me that there is more to life than the struggles we face on a daily basis, and that there’s always something to look forward to and appreciate even when it feels like the world is crumbling down around you. I miss you Claire
Same....... or atleast I try...... I deal with very violent panic attacks that hit me out of the blue sometimes I win sometimes its gets the best of me. Claire is truly an inspiration indeed and I miss her. I still deal with what I deal with but I think of her and others to overcome what I'm battling. Be strong friend
spanishsamurai same here man, it’s okay though. Anxiety and depression is hell, and it’s something we can’t fully get rid of but there’s always something that can help it, even if it’s in the smallest amount. I struggle everyday with it, and even though it got better at one point, it likes to come back full force and just screw everything up, but I’m managing. Just remember you’re not alone :)
She had a good ending. She was allowed to say goodbye to her beloved ones, the anesthesist hold her hand while giving her the anesthesia, and she went by without any pain. I often wished not to wake up after the anesthesia...
It takes courage to REALLY watch this film because you have the opportunity to see how you're not living up to your full potential. And when you do...you also see that it's ok...and you have the opportunity to be inspired to embrace all that you are and can be.
Absolutely. My chronic illness (Lupus) started at 18 and now I am 52 years of age with Chronic Kidney Disease and Multiple Myeloma Cancer. This beautiful young woman has truly inspired me to live life to the fullest even thru the pain, anguish, medicines, tests, doctors. Thru all of this, God is still faithful and in control of our lives. Enjoy every moment.
I was sobbing throughout this documentary. It really hurts to watch, but it is also beautiful. Thanks for what you’ve done for the world, Claire. You were an amazing human being and I will continue to cherish your wisdom in my life. Once again. Thank you.
She made it to 21 just like she wanted. I only wish it could've lasted longer. I cried for days when I heard you were gone. I miss you, Claire.
When I heard about it, it felt like a kick to the stomach... I felt like I'd lost a friend. I still tear up a bit when I hear her speak. She was wonderful.
I had the exact same experience...
I just cried and cried. I truly love and appreciate Claire so much. And she has truly changed the world. She is missed by so many people. I am so happy we all get to watch her videos. I am so happy to have been on the planet with her.
You know what's funny? As I got very emotional about it, I could feel myself feeling silly in a way, like I knew she would gently scorn her viewers for crying. She struck me as the kind of person who didn't want to be cried over, but you don't get to choose how you affect people in this world, and she reached a lot of hearts. I hope she's laughing and shaking her head at all of us down here.
@@RealElongatedMuskrat same, I felt her infectious silliness and when they had the text showing day of death and "21 years old" below, I expected it to say "never made it to the club." I think she would have laughed so hard about that.
Same i balled like a baby. She was an amazing young woman 💖💖💖
Dude this kid was something amazing. She talks as if she has lived 100 years.
An old soul
Yeah you could say that
She had to grow up sooner. Life was tough to her, so she had two choices, give up or keep moving. She did what lots of us still try to figure out. She lived her life to her fullest.
oSILENTDEATHo word
Imagine if she had.
This is the reason TH-cam was created, so people like her could share her life with us
Exactly! Well....that. And free music.
In all seriousness, she was an amazing person and the definition of inspiration. Kinda bummed I didn't know about her until today.
not really
@Michael Ross had to google what y t p ment......and I have to disagree with you. This girl was different. I watched alot of her stuff and it changed my view on life for the better. She is just lovely. Have you actually watched her stuff? By your throw away post it seems like you should.
It was created for fun videos
Hashtag EV no, no it wasn’t. it’s for people to post what they want. Claire found it fun to post youtube videos, so shush
I never forget about her. I donated to her go fund me for her lung transplant, and I grieved when she died. I always come back to this channel and get a sense of gratitude in my life. Always get inspired to keep going.
First time I see her. I just watched 5 mins but she i am already so impressed by her, a lovely lovely lady.
@@Pujo-f9t same
I donated my first paycheck towards that go fund me. I was devestated. She was a beautiful person.
"When you pity people who are sick you take away their power." WOW!
C J so don’t pity people who are sick
Top qenell
When you pity people, in general, it may take their willpower away.
Jillian Paciello that is a very important detail. Very prevalent to what most feel. It is something they want heard.
I kind of need someone to explain me this..
When she said “I’m sad to go, but it is what it is. We’d have to leave anyway, eventually”
That put me at peace at the end of the video.
Me too, Emily, I always felt like Claire already new there was more. She was so wise, at such a young age.
@@catguthrie6264 She so was wise beyond her years ..if only we all learned something of that, earlier in our lives. Thank God for technology where we can still meet with these previous people who have passe in. Their legacy lives on.
this video is a hard one to watch affer a year i can sit and watch it with minimlal crying i use to not even be able to hear her voice or see her pic without crying for ever im a guy and idgaf i knew claire personally and as many people say i wish i knew her but it hurts me any way!!! imagine getting to know that angel then have hwr taken away and all the questions and thoughts being religious and how god works. its alot but i had to put my faith in him and let him guide me back and here i am still crying and missing my angel 😭😢😢
Is she alive still !?
יהודה no she passed september 2nd 2018
she was living proof that wisdom is ageless
Abigail Nicholas
Yes, yes it is.
Wisdom is experience
@@christophermcnamara5591 it is not only experience. it is a reflection of your existence and contemplation of where you are. Thus, you have to use deep thinking and pure reason in order to become a wise human being.
@@frederickwalzer5555 I'd say that you still need experience, as Cristopher mentioned. Wisdom is about aknowledging patterns, and patterns need time to manifest into your existance. However, if your IQ is high you can see this patterns earlier, I'd say Claire did see some of them earlier due to her intelligence.
Oh yeah. She carries and speaks with confidence.
How do I miss someone I have never met? What a beautiful human.
A true angel...
Living testimony that they exist ❤
I miss her too. So much. I truly believed she would live through that transplant. I was heartbroken when she passed. She is/was an incredible human.
Me too. The older I get the more it makes sense.
Real. I miss her too.
As someone with CF, I can definitely agree on that. Sometimes, I wish that I had heard of Claire's story, prior to her death. She seems so much like a humble and understanding person, that who I could totally relate in a way. Amazing human being. She plays a fantastic role for the Cystic Fibrosis Community and beyond.
I just feel so disgusted at how much I take my life completely for granted...
Noah Alexander Harris you’re not alone.. now I feel like I should do more with my life and take care of myself and not waste it
Xander Harris..you still have time..accept change and you will change..celebrate your life dude! I love u and wish you happiness and success😘😘
Xander Harris. Same. I complain that i am depressed and don't do anything with my life but wallow in my misery. Then you see a person like Claire and i feel so disgusted with myself for acting this way and not being super appreciative for everyday of my life and wasting it.
Ok
same
In the hospital right now, I also have cystic fibrosis. We looked at her as a leader. It's been an honor to share genetics with her.
lasagnapapa Hope you’re alright and having a good time even though you’re there!
love you :)
I hope you’re okay
🙏
.. Live your best life. We love you
We idolize celebrities instead of this magnificent soul. Shame on us.
THIS! THIS IS SO TRUE and i wish more people would look up to those that inspire others instead of those looking for fame. I would love if they showed strong people like Claire in the news or for school documentaries so we can understand and learn more about these different conditions and the hurdles they have to pass daily.
What's a celebrity? All I see is rich pedophiles.
Amen Amen Amen.. The world we're living in, has got things upside down. Claire is an inspiration, I saw a few of her vids recently, her attitude, her ability, no actually her determination, to be positive no matter what, is awe inspiring. Her family are blessed to have had such a fantastic presence among them, and I'm sure they don't forget that for a moment. Love to them, especially Lil sis, in sure you miss her more than is possible to imagine.. But you guys.. You were blessed.. I don't know ANYONE as cool as Claire.. (sorry fam n friends, it's true though lol)
@BULLET BILL bitch im not shallow there are lots of good role models out there take beyonce or tinashe for example they are standing up for people who had no one stand up for them shame on you to try and scrutinize and be little other celebs and there not even celebs there people who are well known i mean yes there alot of bad celebs out there that people idolize but there are also alot of good people out there to idolize ,
Yes the girl had a disease she died from she impacted peoples lives, just like how other good celeb role models do
Why shame on United States I dont know what they did?
I had breast cancer at 21. Claire's videos really helped me at that time. She's a true angel.
How are you doing now?
@embee5375 Hope you're doing okay???
@sky5609 @muhammadmajid2389 I'm just fine, thank you!!
@@embee5375 God bless you and wish you a bright 🌞
@@embee5375 good to know cancer sucks
That we even shared the planet with her for a time....what a blessing
Its not fair. To think that some criminal is living past her is so...
@@fffernsw4dl539 ikr, if you ask me, people like Claire should be here longer, living way past 21, THEY'RE the ones who are supposed to live, not criminals like rapists, drug dealers, child abusers, child molesters, women batterers, animal abusers, etc, they're the ones who aren't supposed to be here, but no, it's always the brightest lights that burn the out the soonest 😭 I swear to God it's like the world doesn't want anyone to make it a better place, it's like nobody wants it to make it better, it's not fair
christina amen
This is inspirational and beautiful
I think shes dead now. N I think I said in front of everybody that I wanted to steal her sunglasses and asked for her sunglasses. I apologize for that. When my friend died she was dead on the carpet so I can say that you know this chicks dead she's dead who cares. To be honest I just don't care that she's dead. I don't feel anything. N yes I would steal her sunglasses, she doesn't need them anymore anyway.
When she said “I hope I get passed 21”, that really hit hard cuz she passed away at 21 :(
I kinda hope she at least got to have that drink.
It’s kinda strange in a way that when she nearly died the first time she was able to talk about how this could be the end and she could feel that she was dying. When she actually died, there was none of that. She was happy and seemingly in good spirits. It’s kinda sad that her life didn’t end at her lowest moment but at a moment when she was happiest and looking forward to more things in life, when everyone around seemed the most optimistic about her life. She seemed like she was ready for the new lease on life and that she saw it as an opportunity to do more. Like she couldn’t wait. That’s when death came for her. At least there was little to no suffering.
Surgery is one of those things that scares me. I’ve had a few and never really thought about it much until I woke up in the middle surgery (they were far more surprised then I was). At the painkillers were still doing their thing. But I’ve heard so many stories about people going in for major and minor routine surgeries and some unexpected complication happens and their gone. For it seemed like the surgery went well and then she had a stroke while still under and never came out of it. Kinda scary.
Brother passed he had diabetes before 21
@@CamaroAmx I totally felt that, the passing at her happiest and more hopeful moments in her life makes me so sad, mad and in disbelief with life.
I'm just sitting here trying to accept the death of someone I never knew and never met, occurred two years and half ago.
I was going through my subscriptions and stopped in to check on the channel after a year and a half or maybe two. She's really gone?
@@wozing yes she died around the same time as my brother. He died at 20. He died from a genetic disease as well. Diabetes type 1.
She reminds me of the saying that the brightest lights burn the fastest
Gerard Scott omg ❤️
Slightly different phrasing.... Skip ahead to 2:26 th-cam.com/video/t5Oqf4NfAIk/w-d-xo.html
Yes!!
Very much so
The French mathematician galois is another example of that
She said it perfectly. Yes, we are all dying, only her being quicker than us. What a gifted speaker she was.
Even though she didn't live long, she's lived life more than most people.
How so?
Wait did she die
topshot gamer yeah like 2 years ago I think
September 2018 she passed away shortly after her lung transplant, there was a blood clot after her surgery that deprived her brain of oxygen.
@@Christine_990 omg i have just watched her video titled " how it's like to die" and i got emotional and she really died after that omg i want to cry for the whole day
Claire's mom gave birth to the most beautiful and healthy mind in the universe
Shreya Shrestha
👍🏼
You say the right words.
She is also very beautiful in terms of physical feautures
so did yours.
@Sebastian Gonzalez hey, just sharing information: physical features means she is in good shape and eyes, nose, face, curves are all physical features which makes a girl beautiful, a woman beautiful and it all makes her, claire. It does not always mean sexually. Try to see/feel things more open and free. I am not here for any fight. Wish you a great time. Thank you.
I disagree
Watching this makes me feel even more embarrassed and shitty for smoking cigarettes and ruining my lungs when this girl would have loved to have my lungs and wouldn't be taking them for granted. So today, I am setting a quit date and will stop smoking. Not just for me but for little Claire's all over the world. This chick touched my heart!!!
How has the beginning of your journey been going?
Addictions are difficult - and its a conversation of its own like this one in a many stories format. Claire actually caught me at one point (and I'm paraphrasing here) saying that everyone has the same pain, no matter who you are and your story. I think that spoke deeply on many levels there - I know for myself and family that addiction, whether considered small or large, is based on some sort of pain or problem, somewhere, deep down... you just have to dig - and yes it's often genetically driven, and yes it's a fucking terrible social enabler, but it also can route from things you don't realize at the moment.
Good luck with your journey - we're all on one in many ways, from cigarettes, to alcohol, to depression, to self hate, to personal joy and acceptance... accepting and working on it is the most beautiful thing you can do to yourself.
And Duct Tape Bandit (love that) - if you fail, just pick up and start again. Addictions are a life-long struggle (accept that now and it'll be easier), and when failure comes you should accept it, dont beat yourself up, and charge back up that hill.
Stay strong❤
You are so brave.. You can do it.
You can do it! Sucks at first but you'll get over it, I promise. I'm at about a year now and other than some weird dreams smoking doesn't really cross my mind
I had a childhood friend with CF. I remember so clearly, even though I was half-asleep, seeing her tiptoe around our sleeping bags to meet her mom at the bedroom door trying not to wake us up. We slept over on a school night, and before the sun had even began to rise her mom was helping her take her handfuls of pills and get set up for do hours of treatment before the rest of us were even awake. It wasn't really until I became an adult that I could fully realize the magnitude of what she had already went through at such a young age. Claire reminds me so much of her- boundless optimism and wisdom.
These people are special! And should be cherished :)
It's wierd how badly you can miss someone you've never met. Rest in Peace angel
sounds problematic
Same. I still grieve her death, but I smile because she left something behind and gave her organs to those who were in need. This makes me more proud to be an organ donor, so I can hope I can save a life someday, if I am unable to be saved. RIP Claire, she has indeed earned her angel wings.
I followed her on Instagram she was so beautiful inside and so insightful and wonderfully mature for her age 😭
Claire you will never be forgotten and always loved and remembered wish l could have met you and l would have took you clubbing !!!!!!
yeah right, if she was healthy in your stupid classroom you'd had been ruthless with her 'cause she was prettier than you, fuck you
Also I'm proud of youtube for not making this TH-cam red
Septic or monetized
YES!!!
Liz Mowrey we spoke too soon. I see a few ads on this video that shouldn’t have ads
MasterCobraGaming it is monetized.
VoiD I KNOW
She would not want us to pity her, that was the one thing she hated. Instead of talking about how she died, let’s talk about what she did with her life, the millions she inspired, and her impact on the world. Claire, you will never be forgotten.
indeed my friend
I didn't know she died. I'm crying now. I went to the comments first, I don't know if it said it in the video.
exactly
@@iheartgallavich7114 gawd i remember seeing this for the first time, having watched it midway, and then going through the comments I just thought 'no, no, no! This can't be!' It was the worst.
Yeah...talk about how she lived 😊😊
"Your health doesn't mean anything unless you're actually doing something with it."
That hit hard.
Her wisdom is beyond words❤
Her strength unimaginable
👏👏👏👏👏👏👏👏👏👏👍
i smash. next question
@@sheedee2 Right? There are people who treat their bodies like a dumpster. If only they would realize how lucky they are and how precious their fragile bodies really are
Everytime I get “bored” of life, I come back to these videos. She reminds me that life shouldn't be wasted.
wow!! so rightly said...
Me too♥️🙏
It not funny
@@kingpatrickodonnell9306
Who said that any of this is funny?!
Taking to each other you don't hypocrites
We all witnessed a living talking angel.....I will forever cherish her wisdom...
zelda fanz, you give too much credit to angels. She was so much more..
Creepy how your comment talking about angels has 666 likes. But anyway, Claire was a gift to this world. I’m so thankful I found her on TH-cam. I’m sick so she definitely helped change my perspective on things. I wish there was more people like her.
zelda fanz Claire actually really hated being called an 'angel'. But you mean well
If everyone had 1/1000th the optimism she had the world would be a much better place.
Does that mean she has the optimism for 1000 of us. If this is the case we only need 7.5 million people like her. I think we can do it.
Sometimes i feel like people that struggle usually have more optimism than the rest though, like they have that fight to get better and see things more clearly while people that live a comfortable life are more cynical and take what they have for granted, i know it's messed up but it can be like that. And i am sometimes guilty of it myself.
Well said
When I see a person like Claire I am ashamed of my own silly wants and concerns. What a inspiration.
Me too. Makes me want to kick myself for complaining so much.
dont be ashamed, there are always people living better than you and it shouldnt stop you from being happy either
your feelings are valid, to want and to be concerned is deeply human
We are just human, we’re hardwired to want stuff and worry about stuff all the time because it has helped us survive. But when you take survival away from a person they suddenly stop worrying and start to live fully. We are all going to die one day and it might be sooner than we realize. Do everything in your power to get the things you want now because your time is limited.
I was just thinking the same thing
The fact that another person goes without food doesn't mean that you have to go without clothes. It's stupid to invalidate your own wants and needs because others are suffering more than you. You only have one life to live, and there will ALWAYS be someone that has it worse and better than you.
This has been up for two days and only has 100k views and all that’s been donated is $37????????????? But jake Paul and tana charge $50 to live stream their wedding and make 3 million off of it? People need to wake up. TH-cam needs this to be trending right now.
Special Agent Dana Scully share this everyone
totally agree with your comment.
I totally agree with you one hundred percent...its really sad..Claire is such an inspiration to us all...I am going to share it everywhere I can...priorities are all messed up! Xo Hydie 💟
Sadly this is the kind of world we live in..... This video would help so many people.❤
It was just suggested to me. The TH-cam algorithms are annoying. Wish I knew when it was released.
She was wise beyond her years. A natural born leader and blessing to the world.
She was god sent
@@BBoysLibya she died 2 years ago
@@idkjules7167 damn... she is in a better place for sure
I wonder how many CF patients get told that.
My friend was told that a lot. I guess something about being told "you probably won't survive the next 2-5 years" early on since childhood and for the rest of your life causes you to approach life in a different way.
@@BBoysLibya And she left the world a little bit of a better place too. : - )
I literally was feeling so depressed right now. So i typed in "I NEED HELP" on youtube and this is what i got. I've literally been taking life for granted, locked in my room whole day watching videos on youtube thats absolutely not going to help me and i felt like giving up. But Claire's life brought some hope into my life. thank you so much for existing
Hey I’m glad you found this video and feel better. Hang in there friend!!
Hey man I hope you're okay I love you
im here if you need to talk
A lot of people understand what your going through I hope you know that and I hope your doing well
Adrian Allen Jr... We all do feel depressed so many times.. It is life, its not easy.. But remember when ever u feel alone, lonely, u feel so down,,, have on your mind tht someone else is feeling worst thn you.. And better days will come straight up never give up...
She's an angel who's touched a lot of lives.
That's the exact word that describes her❤
40 minutes and my entire perspective on life has changed. That's how remarkable she was.
Fly high and breathe easy, Claire. You changed the world.
She Shure did 🙏🙏🙏 RIP beautiful Claire 💔💖💕✨💫
AMEN ❤❤❤❤😊
“Health doesn’t mean anything unless you’re actually doing something with it.”
Wow...
She did more for the world at 17 than most of us do at 40.
Well, she had more motivation, more courage, more help, and a good support system too. A lot of people don't have any of that.
I disagree. I've done more.
@@aarontoaletGood for you, you want a cookie?
@@aarontoalet Attention seeking isn't an achievement though.
@@krashd I just stated a fact.
I took about ten seconds to realise this women is beyond amazing.
craig dempsey was.
I wish I could have met her, been a friend. What a soul. If Heaven truly exists, she is there.
That's all it took for me too. I randomly came across her video of "What it's like to die" yesterday, or it came up on my suggested videos, idk why a video like that came up, But I guess I was meant to see it. So, Anyway, at first I put it on the watch later list, and later on I was watching another video on the list and when it ended, it automatically went to her video and started playing. I almost turned it off and was gonna put off watching it till later again, but after about 10 or 20 seconds of hearing her speak, I was just so taken in and interested in what all she had to say, so, I couldn't turn it off. I had to keep listening to her. What a wonderful young lady and beautiful soul she was. Such an inspiration to so many and she did so much good and made the best of life she was given while battling such a horrible disease. I want to watch more and more of her inspiring videos. It broke my heart when I found out that she passed away and I've been sitting here balling my eyes out watching this documentary. RIP Claire beautiful angel.
@@nicoleangel4383 what an amazing angel she is. SO SO SO WISE BEYOND HER YEARS. A modern day Mother Teresa. She was sad she couldn't stick around to do more and she didn't realize she did more than anyone ever could have. I'll never forget her story and life.
Is she still living??
*Don’t regret she died, be happy that such a mortal soul was alive*
Wait she died...?
@@waitaseq8833 2018 actually
She's gone????
The Mango yeah she was gonna get a lung transplant but there was a complication. she passed almost a year ago 😔
Its a relief to know she is watching over us, she is missed blessings
knowing she’s already passed makes this so hard to watch
💔❤
zBash i didn’t know and I can tell you, it’s horrible too because when she said « I’ve got my lungs!! » I was so smiling and happy . Right now? Crying my f**** heart out 😭😭😭😭😭 she was an angel on earth 🌍
zBash oh my god i didn’t even realize that she passed 🥺 i used to watch her and be like you’ll make it , now she’s gone :( i watched her every time she uploaded 😔
But she left a legacy, is an inspiration. Her story is always here and who knows, it could save others..
Man. I just turned 21 today. I’m her age now. She makes me want to do more with my life.
That day I really wanted to die, or I thought I wanted. I googled "what it feels like to die" or something around those lines and Claire came up as a ray of light. She helped to get throught that day and her life made me try harder to stay here.
Thank you, Claire. You gave this world more meaning. I never knew you, but I love you.
Stay.
this made me physically sob, you are worth it i love you
Same
You are wanted. you are needed. Please stay, even when it is dark, just wait one more minute, one more hour, one more day. Stay, you have so much to give.
Same
"I'm hoping I get past 21"
O sweetheart we love and miss you everyday
I'm 25 going for 26 we'll get there
We do lover her🧡
When did she past away?
Faryal Qadri 2018
She did get past 21, she keeps living through her videos. Her videos will be here, forever in the internet. She keep inspiring people through her videos, and i'm so proud of her 🥺
My beautiful daughter passed away when she was 14. She taught a lot of people. God bless you, angels. I almost died of sorrow, but now I live in her honour.
My condolences
❤️
Sending you love ❤️ you’re so strong 🙏🏽
❤️🌎💜✌️
Im sorry :(
After almost 5 years from her death still thinking of her. She was a truly inspiration, I’m struggling with finishing my studies in energy engineering, sometimes I feel like to quit but then I remember Claire’s words “ If you think you have something to give to the world try to put you in the position to do it”. I want to study to help the planet, to help people, to repair the damage people did to this planet. Claire helps me to think of my purpose in life and in the potential of just being alive ❤ Sending a lot of love for this angel from Italy, always in my heart ❤
When she was 13, she was 31
When she was 15, she was 51
When she was 19, she was 91.
She lived a life of meaning and purpose that virtually no one her age can possibly compare.
Best coment. I think the same!
Yes! There's dog years and now there's Claire years!
I know right she figured things out in a quarter of what it took me and then some
Exactly, which makes it ironic that people fucking look down on sick/disabled people, when they are clearly some of the most mature, smart people from their life experiences. Perfectly able-bodied people wouldn’t be able to fathom it.
Ok so I’m not tryna be disrespectful but I think you think that wise ness comes with age which is not true because I mean Claire obviously showed us that I just feel like people think that in order for you to be wise you have to be old I honestly hope you can see where I’m coming from
When I saw that she passed away on the 2nd of September, then I realised it was the 2nd of September, i cried 😭
It's been a year? Fuck I'm gonna go cry now... it passed so quick
Omg :(
She passed away on my birthday now its a tradition everyear i rewatch all her videos 2 year now 💖 we miss you claire we miss your wisdom even more
it’s been a fucking year? oh my god
How the hell has it been a year?! Feels like she just left
The most sad part was when she thought she was going to live finally with a transplant, that's when she died. That broke my heart into pieces.
Ugh how sad. Received a double lung transplant and died from a stroke shortly after. That is so sad and tragic but I’m glad she made these videos to inspire others
It’s so unfair but sadly I believe her purpose had been completed - she came here and shared her story and impacted so many people. Sadly, that was her purpose and why she was here (not the entire purpose but I’m keeping this short)
My heart broke
@@jules4080 I have to agree and unfortunately it was time for Claire to go home she completed her work on Earth in her very short lifetime 💕
i was watching this with hope for this person and then ....... read this 😭
As someone with Bipolar Disorder (which is also a lifelong illness) Claire has inspired me so much to stop playing the victim over having it and change my perspective about life in that having bipolar isn't something to let yourself get you down at all and that having it isn't even good or bad in the first place. Thank you Claire, a true beautiful soul.
I can't believe she is gone.. It's just.. the world is missing a wonderful person.
MissTotos point being, she made us all realize that there are many wonderful humans on this planet. And the sick ones and the suffering ones have A LOT more to contribute with.
She taught us that you can create the most beautiful art, be the most connected with humanity, if you have suffered.
She is gone, but she left a huge piece of herself behind.
Preach I’m sad
Omg!! She passed?! Omg 😭
Emo Tacos I’m sad too
I cried so hard last year when I saw she had passed. The world truly got a lot gloomier when her wild flame burnt out. She was genuinely 1 in a billion.
I needed this now more than ever, even a year later she is still impacting my life just as greatly as she did when she was here. We love you endlessly Claire
Has it really been a year??
@@emilym7251 It feels like it was just last week :(
I have grown so so much, mentally and spiritually this past year, all thanks to Claire ❤
@@emilym7251 This was released on the one year anniversary. The movie shows this at the end.
Did she die or something
@@safiiii9188 Yes, sadly this world lost an angel last year, but her inspiration is going to live on forever.
"I can't spend the rest of my life waiting for someone to give me permission to live a life that I'm proud of" - Claire Wineland
It’s combing in six years since Claire has passed, It’s 2024 its passed midnight and there was a song that reminded me of her, She is such a bright light. I miss her and I have never met her but wow what a tremendous gift God gave us with her even for a short time. I believe in Eternity with God and I believe she is in heaven healthy and radiant. Thanks Wayland family for sharing such a beautiful soul with all of us.
I hope she repented and believed in Jesus Christ or she won’t be in heaven 😔❤️
@@butterflyb3716 Butterfly I have been a Christian and in missions for years, One thing I learned is that you assume that because there is not an official prayer such as “Jesus forgive me for my sins, I surrender my life to you” That you won’t get into heaven. Remember the thieve on the cross
What did he say? He did not ask for forgiveness at all. He said “ Remember me when You come into your kingdom”.
I encourage Christians to check what they say before they say it. Your tone is judge-mental. Be Humble, be merciful.
“You don’t have to find out you’re dying to start living “
4 months ago I found out I had a rare form of multiple sclerosis, Claire is my inspiration, I don’t want to just exist anymore I want to live.
The Wise Woman So sorry for your diagnosis. Wishing you well on your journey. 💕
The Wise Woman i also have ms. I have been symptom free for 3 years after rapid decline and brain and spinal lesions. I hope you find things to aide your journey and bring you relief
The Wise Woman i too have ms.. I understand how you feel and I totally agree. When you say rare form do you mean primary progressive? This life is a cruel one :( since my diagnosis i did college and got into uni studying medical science because my research into my condition sparked up such a love for the subject. Also I figured i needed to retrain in something as one day I may need a sit down job :( don’t let this illness win ❤️
You are not alone 🧡🎗 Out here trying to live my best life (possible). And yes I am still a whole person in this broken body.
I too have had MS for 14 yrs now...i take every day one step at a time,I am doing my best trying to keep my legs going so I don't end up in a wheelchair,my lungs honestly give me more problems right now...i keep going for my 2 youngest girls and getting them thru high school...i know how hard it is living with MS and even thru my hard days I try as hard as I can to stay positive
I went to high school with Claire and she was such a lovely person.
Today I will be doing a charity stream for the Claire's Place Foundation and I am aiming to reach at least $1,000 to donate.
I miss you dearly Claire and it was a pleasure to get to know you.
pebblesx
Hope it goes well and that it actually gets put to good use.
Do you stream on twitch?
pebblesx how did it go?
Where ?
I'm jealous I wish I could have met her you know I only found out about her through Shane Dawson whenever she passed but I don't have any chronic illnesses cystic fibrosis I know someone with cystic fibrosis but I think that Claire was an inspiration i think she can is an inspiration to anyone
I am absolutely heartbroken... I just stumbled across this lovely ladies channel and watched a video, this video came up on the sidebar and I was thinking "I really hope she's doing ok now" only to scroll to the comments and see that she sadly passed away. Life can be so cruel sometimes but it sounds like Claire lived her life on her own terms and faced each day with a smile. What an inspirational lady. Rest in peace beautiful girl.
the night before her transplant i was on her live for hours, watching her answer questions (including mine) and talk about life. it’s so crazy and upsetting to me to think she’s never going to do it again and i catch myself thinking about those hours a lot. miss u claire
Is there anywhere where we can find it? 🙁
@Mallory Bedney Wow :( Hope they can be retrieved somehow, you never know.
Thank you for sharing this anecdote though Elle, it makes me happy that she could do this shortly before her surgery ❤️
Mee too, It was an Instagram live, She was so funny and candid, never going to forget It, She is the epithome of dignity 💞
Mallory Bedney
I guess not many watched? If there was, there should be someone out there that recorded it while it was happening.
Mallory Bedney
What did you imagine you had in common?
I sat here in tears as I watched this with my 8 month old daughter with cf as she coughed her little cough. As a parent to such a special little life, Claire inspires me even now to build this same fire within my little Phoenix. I hope that I can live up to that. Breathe easy, Claire. Rest in peace.
💛
Thank you 💜
Phoenix is such a beautiful name for your little warrior ❤️
@@macsaucee4447 thank you!!!
New medicines are being developed at lightning speed right now for this and other diseases. It is an awesome time to be alive. I truly believe your daughter will live a normal lifespan with the new treatments that are available now, like Vertex, and the new treatments that will become available in the next 10 years.
This wasn't a life taken away. This was a life given to us for twenty one years.
exactly, to US😁🥲
Amen ! Beautifully said ❤️
Beautiful comment
Absolutely correct, she was given to us on loan for 21 years
Amen
After 5 yrs I've come back to watch this documentary again. This girl is so inspiring and beautiful inside and out. Such a special soul. I cry so much every time I watch this documentary. So many of us waist so much of our lives and Claire enjoyed every moment of hers.
Is she still Alive
Because she had a very close relationship with death most humans think they won’t die
Yes, waste our lives
Claire didn't die faster than us, she just lived faster than us.
Love this
Its a great comment, but the sonic avatar makes this a bit cursed
i mean she talked 1000 words a second so yeah. lol
Nicely said
Beautiful comment. She also lived larger than us and braver.
The way she carried herself, how articulated she was, the distinguished beauty she radiated was impeccable. She was impeccable.
"I'm dying, faster than everyone else." That has helped me enjoy life despite my health deteriorating. (Not CF) We're all dying, only some of us take the time to live our life. A long life is not necessarily a full one. The older I get, the more I realize a long life could be terrifying, especially a life full of regrets and mistakes. I have many elders whom I adore, lone survivors of their families, even outliving children and grandchildren. Some become bitter and others treasure the memories, celebrating that they have had a life of meaning.
You mean articulate. Articulated is something completely different. The irony.
I thought so too..gosh when i was that age my wisdom could fit on half my pinky nail. She had something god given x
She did more in her short life than some people do with an entire healthy life. Her parents should be proud of her as she should be proud of herself.
She was seriously an old soul and wise beyond her years.
Definitely! It shines through her being so obviously. More than anything else. Immediately
An old soul 🧡
"The cure to illness, isn't actually anything to do with being healthy. Right, fixing yourself when you're sick has nothing to do with being healthy or fixing your body. Fundamentally what it has to do with, is fixing the way you view your part in society and in the world."
Damn what a powerful statement to make, and she's so right... That's some great wisdom from someone of her age, so mature. She is so well spoken it's super impressive. I teared up when she said that. That quote is so deeply rooted with power and meaning. Such a beautiful piece of wisdom from her.
The first video I ever saw of Claire was her "What it feels like to die" video and the reason I came upon that video is because I had depression and was looking up ways to hurt yourself without leaving marks or how to die an unpainful death. I'm forever grateful that I stumbled upon Claire because her insight into the world enlightened me and changed my whole view on life and she essentially saved my life.
She has done more good than she could have ever known. I understand completely, I came from the same place. I'm glad your still here.
I sincerely hope you are doing better now!♡
JennaMay410 That’s how I found her too. I wish I could trade my life with hers, she had so much to live for.
God sends these stars(biblical reference you’ll know what I’m talking about if you study spirituality) in the world. They come to say what they have to say and go quickly. She’s one of them.
That is also one of my favorite videos of her. I love how she's so inspiring but grounded at the same time.
All I can vision is Claire being wherever she is, walking up on what could be a mountain, and smiling and then taking a deep breath in, and just looking so peaceful and relaxed knowing that she did it. she did something for people.
What a lovely comment!
Reese Monster ❤️❤️❤️
28 seconds in and I had to pause it, I’m already tearing up...
Bartosz Bartosz it takes strength and humility to admit vulnerability
I saw this video in my feed and decided to watch it. This one click triggered so much. I didn't know Claire or her story yet, but from the first minute I felt what an amazing girl she was. Her videos are so real, it felt like I made a new friend. I can only look up to her positive mindset and her will to keep going. Her story has taken me tremendously. So sorry she is no longer around, because she is a bright spot for so many people. I am so happy that her story and amazing personality are being immortalized on TH-cam. It is impossible to describe the impact Claire had on all of us. Thank you Claire!
A lung transplant is the one thing she never wanted, and in the end, it's the procedure that killed her. Knowing that kills a small part of me.
true ! i started crying at this part. Its so unfair.
On the reverse side of things, her passing was just as she envisioned it and wanted. It wasn't a panicking, gasping for breath, or slowly losing her sparkle as her body shut down around her. It was that gentle euphoric sleep she some how knew she someday wouldn't wake from. Did the surgery kill her or save her from a downward spiral she dreaded?
@@YTistooannoying I agree, look how happy she was on her transplant day!!
WAIT WHAT-
@Heart Lourisse she had a massive stroke
She said she wanted to live until 21 I’m so happy she got her wish
She doesn't know it but she saved me a few times. Thank you, Claire.
May 2023 ~ Interestingly, I found Claire's channel and her amazing story, through her Dad, John's TH-cam channel. What an extraordinary woman Claire was and became in the short 21 years she was on the earth. Claire is an angel now - it seems the brightest lights are often taken too soon. I am touched by her life, her story and this documentary. With love & light ~ 🕊️
A year has passed and this Angel forever lives on in our minds and hearts. A true inspiration.
Her birthday is in 4 days.
Wish her a happy 23rd birthday on the 10th of April.
Happy birthday Claire
Happy birthday, Claire.
I loved her content still can't believe she's gone, but she a stunning angel in heaven now
I know I am late, but still Haply Birthday, Claire! Rest in Peace ❤️❤️❤️
@@spirtumamoris5522 She was sweet,
I just wanted to let Claire's parents know that in this moment there os someone on the other side of the world who knows that they're going to take this 40 min video with them forever. Thank you for being amazing parents and have raised this incredible woman. I'm so deeply sorry for your loss.
Well said. Claire honestly knew and experienced joy in life more than 90% of ppl who lived a full life or 80+/-. This is the 1st video I've watched so haven't watched her grow via TH-cam videos and I did not know Claire, but really wish I did.
If I did I would have loved to work with her by offering her marketing + leadership experience or should say additional support, or built a mutually reciprocated mentorship with her. Although I could have taught her strategic digital and partnership marketing opportunities and skillsets to spread her wildly successful view of life and self deception for everyone to unite and empower each other, to individually fight harder, never give up or stop trying to find your purpose and create extraordinary life memories no matter what battle you or someone else is facing. Even if I was a genius marketer, I am confident it would not even compare to her true integrity or the greater good, bigger than life impact she wanted to do "when she got new lungs." However, she was focused on everyone else learning about the importance of living in the present, supporting uniting families with kids in the hospital fighting for every breath... that she was picturing her future with grace and bringing the world to their feet... that she didn't realize she was already doing it... everyday in endless ways with CF... and her life journey lives on and she continues being an inspiration to others and her joy in her purpose DID Bring the World to Their Feet!! And she did create a purpose larger than herself! But it cannot stop here....!
It saddens me that I didn't know her story back in 2016 or sooner to attend her foundation awareness events, or anytime to just hang around her to be in the presence of her contagious smile, love of life, her wildly successful drive, grace and will to maximize literally every breathe of greatness she had in her.
My younger cousin just turned 25 (yay!) and battles CF everyday too. She too has a beautiful soul inside out but she had a different or the opposite approach growing up and she use to avoid talking about it with very many ppl until high school when she couldn't join her classmates in curtain older buildings w/ potential mold etc. So she had to sit in another building and video in on the class lecture. This said, back to avoidance of telling a lot ppl, I assume it's vprobably bc of the fear of pitty, becoming her identity (vs her beautiful, smart, sweet soul inside and out + committed faith and grace of God,) scared of how ppl's behaviors will change once they know or the fear of fake friendships, etc. Or sometimes, I wonder if she's scared to be a constant reminder of being terminally ill to ppl she loves deeply.
All this said, her mom (my sweet aunt) is actually who I worry about the most bc she doesn't let a lot of ppl in and has closed herself off from having her own friends and life, outside of her husband and kids. It's not like she lives the saddest life ever, but from my perspective (outside looking in, and I'm probably the closest family member to her) it's definitely a lonelier life than she deserves. She's gorgeous inside out like my cousin, married to her high school sweetheart and 3 amazing kids. But I sometimes worry she's bottled everything up, or the opposite kept herself busy with making sure her daughter has all her pills, treatments, Dr visits, long hospital visits, with everything to keep her mind occupied and she's just numb inside. It's like she's waiting for "someday" to live her life, she's always made sure she's doing everything she can until the dreaded saddest day ever comes.
I would love to see and even help Claire's mom (bc she lived it and learned from her amazing daughter to live your best life in the present moment or someone similar) but to see her continue sharing Claire's journey but also maybe use this platform to speak to other mom's, and family members to share her perspective (and other CF families) and help bring the same positive or just realness vibes, preparing how to coexist with the fear of any day (everyday for 1 to 22+ years) and forcing yourself to have other plans that do not include worrying about the fears of CF battles or hospital visits, with more joy, grace, and love of life and energy for all other mom's and/or dad's, etc. It's also hard for families to talk after a certain age bc the kids want or need to go alone to hospital visits and as of a few+ years ago CF kids cannot be within 6 feet of each other so it's harder for them to meet or be around other CF kids.
Especially, those living with the constant fear of which trip to the hospital will be their child's last, or the constant worry of making sure their child is doing their treatments and taking their medicine on time or not skipping treatments bc they're having too much fun or scared of letting ppl see what they go through or fear of social bullying from uneducated cruel cyber bullies, or their child's fear of not being able to find someone strong enough to see past it to have a loving relationship, etc. (Lucky my cousin married young and finally moved to another state but it doesn't mean they or other parents aren't going through it don't need a support team or online community, etc.) aren't also deeply effected by watching their child's struggles, fears, self doubts and the pressures of being the adult and always having to put on a brave face for not only their child but the parents of classmates, friends, etc and even more so their family members with constant pitty concerns. Or prepping their child for hospital visits for 3 days, 3 weeks to months at a time. As you can tell, I can go on for hours. However, my point is Claire's story, grace and inspiration is more than admirable... and her mom is just as uplifting and genuine. And something inside of me and my faith tells me there is more to this journey.... and her mom and/or similar CF moms would be a great example of demonstrating the support system she used to empower and inspire Claire's vision of making this bigger than herself, believing and leading by example for many and the natural next step is helping parents of terminally ill children bring the same energy and positive point of view on the joy and grace of living in the present to the parents struggling with the realness of the impact not only on the CF kids but their parents that find out they have CF basically weeks before or after their kids are born and immediately start multiple daily treatments and pills. And have close calls a few times throughout their lifetime.
Claire's outlook on life and drive for supporting the the family's during hospital visits, etc. is so selfless and admirable!!!! I want to offer my help and support to Claire's passion and will to continue her journey and reaching more people and supportering in more ways. Including starting uplifting, social, or individual parent sessions and activities learning to prepare and live as their kids start their CF journey. Also the real hard sessions and the grieving process. By empowering and uniting parents to have extraordinary memories and keep bringing the world to their feet for Claire!Press forward in away to support CF moms and/or dads to find purpose and love of life again.
This poor kid endured more pain and hardship in her short time than many others do in a lifetime, and she did it with grace and poise. What a wonderful soul. Perhaps it was a blessing that her passing was peaceful. An amazing and tragic story, I am glad I was able to learn about her life.
Imagine finding someone just about two hours ago and changing your whole perspective about life. 🥺
R.I.P. ☹️
She was a miracle. Truly.
That's what she wanted 🥰 and it just shows the true impact she made in her 21 years. I hope she knew how incredibly powerful and inspiring she was! She made a difference in my life that's for sure. 💜
I literally just watched the movie five feet apart last night and research the TH-cam channel today and as I'm scrolling down and found out she died
Kinda knew about her
Rest in peace you changed the world you left your mark you are beautiful 😭 😔 you inspired the world you
Inspire me to live my life do the fullest
It looks like I'm not the only one who is just learning about Clair now because she's suddenly showed up in my feed. I'm not sure why this is popping up for so many of us now, but I'm glad it is. I'm glad her voice continues to carry.
I dont know but its sad
Same
So very sad, just 21 yrs old.. Just so hard to understand ..just so sad. R.I.P.sweetie your free now like a butterfly!
It’s so weird, she popped on my recommended, I really liked her and watched almost all her videos. Suddenly I realised that she hadn’t posted for three years. I cried and cried over a person I hadn’t met before. She was an incredible person♥️♥️♥️
I looked her up after reading Life’sToo Short by Abbey Jimenez - she inspired her book
I remember Claire's last Instagram stories. She was so happy and so excited to get new lungs and to have a chance to live a bit longer. I was so happy and was waiting to see her again. Then 4th September on my birthday they announced her death and I felt so empty and cried so much. Thank you so much for everything Claire.
I know. That's why we're all crying cause in the end it wasn't even BECAUSE of what she had that caused her death. It should've been the new beginning...not the end.
your birthday?? omygosh I'm so sorry that it had to happen then
My birthday is also september 4th the day they announced her passing. I was in the hospital battling my own terminal illness when she passed.. Its all so familiar to me. I love her and i cant wait to finally meet her.
@@slipdripdrop6929 hey, I just wanna say I love you. Hope you find your peace and happiness. P.s. it's almost our birthday so happy birthday dear Samantha
@@baguettebtch it's okay as I accepted that we can not really control things to go our way 💛
I just found this video and it brought back so many memories and emotions from many directions. First, I worked as a nurse all my life. A few years on a pediatric unit taking care of CF kiddos. They were the best and at times, the most emotionally draining patients going from doing ok one moment to being critical the next.
Second, growing up I had a lot of respiratory issues. I would get bronchitis 4-6 times a year. When I was 50, I was diagnosed with COPD even though I never smoked a single cigarette or anything else in my life. I was put on a CPAP machine when I was 26 and by the time I was 50, my breathing was bad enough I was changed to a BiPAP machine.
Just seeing how excited Claire was to be getting a lung transplant, I was so happy for her. I had to stop the video for a few minutes after her surgery to dry my eyes 😢😢. God bless you Claire.
Her personality is so infectious....i could listen to her all day.
It’s funny. In the beginning I thought she was a little bit of a bitch, but then as the video went on, I started to understand her and then like her. Her personality grew on me pretty quick.
Infectious is not a really good word for this video
I can't help but feel sooooo angry that this is how she died. I'm a doctor-in-training and I am very well aware that surgical complications happen, and often they're inevitable and there's often nothing that can be done. But it just feels so unfair. She was so full of life and so excited to get new lungs. She survived all the crazy things her body was doing to her, but in the end, her cystic fibrosis didn't even kill her, it was us. My only solace is that she died under anaesthesia and not from suffocating to death, full of hope and joy which I'm sure is a much better way to die than dying full of fear that you're drowning. I hope her family is doing well
This makes me so sad to read, it really sucks :( I'm sure you'll be an amazing doctor💛
oh idk she passed away. oh Jesus bless her heart
I loved the song she sang. xoxo God bless Claire 💖
False I had a bad reaction to anesthesia and I stopped breathing once I woke up and it was panicking and distressing but then its super peaceful quiet surreal
This has nothing to do with anesthesia like that but I have sleep apnea and I need this machine thingy and if I don’t use it while I sleep I could die so.... :|
"When you pity people who are sick, you take away their power"
It’s trying to be considerate. One does not know if they would hurt the sick so they try to be careful not to further hurt them. You have got to understand that people do that with good intentions.
@@waykee33 my uncle has Down syndrome. All the counselors and people that work with him are amazed how much he can do compared to most like him. He has a job that he’s been at for years. He can drive. He can cook. He can do many things that people like him can’t. Why? Because my grandparents raised him like a normal child. They never babied him and treated him like he was disabled. Yes of course there were concessions and challenges in that. But they never treated him different then any of their other children. They taught him everything that you would teach any other child and adapted to the things he couldn’t do but also worked with him so he could do as many of those other things as possible. That’s how you treat a person with a chronic illness or disability.
@@CamaroAmx OK
Thank you I'm sick myself and it's about time someone said that
damn i read ur comment the same time she said that in the video
By chance I saw the IG profile that mentioned Claire’s story and watched the documentary. It was touching. Honestly, I’m glad she didn’t have to experience the pandemic, isolation, and now the current climate of the world. It’s ruthless more and more everyday. She passed peacefully and as a hero. Such an intelligent mind, truly unforgettable. Tomorrow is the anniversary, I hope you are resting well and shining light to your family and friends Claire.
I just want to say she is my role model. I am 14 years old and I have cystic fibrosis. I have been hospitalized 5 times and I feel so bad for her because just two years ago a pill called trikafta was invented after it’s 20 year drug trial and I was blessed enough to be able to use it. My life expectancy was 5, but my parents didn’t let me pity myself and actually didn’t let me know what cf was until I was in 1st grade when I was hospitalized the first time. Thank you Clair for showing me life isn’t just worth surviving, it’s worth living
I'm so glad you are able to use the new pill and are doing well! I wish you continued strength, love, and joy.
@@katarey thank you
I'm so glad you were able to find something that helps you feel better. I'm wishing you the best!!
I am in awe of your beautiful soul. I hope you are happy and doing well
Hey beautiful i wish you are doing well❤️
LOTS OF LOVE😘
Take care💗
Claire, I'm crying right now because I have borderline CF and just turned 50. But my days are numbered by a rare fungal infection. Humor helps. What can I say, I'm a fun-gal? Sometimes the past six years have been nothing but trying to stay alive. It feels selfish. What can I give? Tomorrow I promise you I will sit down (while doing my Vest for 40 minutes) and really really concentrate on what can I do with my remaining days to help others. Thank you dear Angel. See you on the other side.
Thinking of you and holding you in my heart. You have so much to give. Look into yourself and look around at those who love and support you. You are worthy of joy and your humor is a gift! Making others laugh is a beautiful gift to the world. And I'm sure so many more gifts within you that the world is waiting to receive. You are never alone. ♡ Claire was such a beautiful inspiration to soak up every juicy bit of life. She will be forever missed and in my heart.
I wish you nothing but the best with this part of your life; your positivity and light inspire me so much 💛
i hope the rest of your days are full of nothing but pure happiness. you are a true joy to this world and i am praying for you.
I really wish you have a great rest of your life. And don’t pity yourself live life to the fullest because we all only have so long and you just have a little less amount but PLEASE ago out HAVE fun and BE yourself!
Hi, there's so mush room in our hearts for you, Krya and thank you for sharing what's going on with you, in your life. Social media is a strange entity in that we can curse it for what we don't have -- yet we can also share with it what we do have. Clair's journey affected me in a way that I don't know how to explain and now she is collecting people, people who would never know of each other, together.
The will to live, the act of doing what it takes to keep your feet on the ground is not a selfish path - no one believes you are selfish. You have souls who love you, depend on you and have grown with you and your presence is/will be irreplaceable. You owe us no promises other than keeping your spirit free, releasing guilt and fears, and forgiving yourself or others. We are thinking about you.
Last year I started an experimental drug I gained 17% lung function and have not been hospitalized once. I could have been you and you could have been me. I won the lottery and I’m living my best life. Thanks for all your videos and helping me stay positive. Thinking of you all the time ❤️
What drug?
Ahhh! That’s so awesome! I’m happy for you!
I’m about to have surgery to improve my lung function and my heart! I don’t have CF I have EDS.
Cait Madison stay strong❤️❤️❤️❤️
She passed away.:(
@@CaitlinStoryLovesYou. I have EDS as well. Always nice to meet another zebra! Clair has really opened me and changed my perspective of being chronically ill with a progressive illness, in which there is no cure.
I’ve noticed over the years that young humans that encounter hardships early in life are the most make, level headed people out there. I feel like sheltering really stunts us to a significant degree. People like Claire really help put into perspective how much time we waste on telling ourselves that we can’t or we shouldn’t. Thank you Claire for reminding us that no matter what life is always worth living. ❤
It wasn’t a coincidence that any of us found this video. We all needed to meet this angel. God Bless this beautiful soul. Thank you for your wisdom and your slap in the face realness! R.I.P Claire🙏🏽
In my case I can thank Stephi Lee for this along with the director of 5 feet apart (the original documentary on Claire) for this video. It was from him that I heard that she was on a clinical trial for a new drug for CF before she died. The version she took didn’t work but those trials lead to the new drug that’s out now (as of late last year) that does work on most CF people and has added years to their lives. Stephi Lee is 26 and is now expected to live for anther 15-20 years because of the drug. Before she maybe had 2 or 3 max. Her lung function was bordering on the point where a lung transplant was going to be her only option (generally when it reaches 20% or less). Hers was at 23-25%). She’s now at 80-90% lung function.
Thank God for Steph Lee’s success and the success of other’s will have as a result of this new drug!
Very well said Catrina.
@@Eddie_Gonzalez Thank you
I’m gonna be better, just for you Claire.
Be better be you
Sending love ❤️
And for you too.
It’s because of Claire I learned how to live a big full life despite chronic illness. Ty ✌🏼
same !
She would say that that is what her life make worth. Bless you!
Me, also.
Me as well. I spent a long time hidden away in my room, in bed, feeling sorry for myself. Then, Red Band Society came out, and I loved watching Claire talk about it each week. She inspired me to live my life as a person, who also happens to be sick, rather than a sick person. There is more to life than hospitals and medications, even for someone who relies on those things to live.
Me too.
watching this always get me in tears because how someone who lived a short and limited life have such an incredible life and so proud of it and had given so much voice for herself?
in tears, need to change my life.
Brittney G yes. Me too. Smh
Same. I'm a heroin addict.
@@persephone2706 hey. Don't do it to yourself. You are worth living and loving
@@E_w_a I mean they sure can try and get rid of the addiction. But it's not like they can just decide to stop and everything will be okay out of the blue. They need to put in real effort to get out of it.
I was made aware of her existence less than an hour ago and she has changed my life in ways she couldn’t have imagined. Never thought I would ball my eyes out to the death of a person I’ve only seen on screen for less than an hour. Not because she isn’t here physically, but because of way of life. The true meaning of life. She was such a powerful & wise woman. I have no doubt she is living it UP in heaven.
Right? Like I’m just watching now and I think the reason why I love her so much is because you can easily see her as a good friend. She just had that kind, sweet energy that any friend - and us as viewers- are lucky to have experienced. Reminds me to always lead with kindness.
Many of us all over the world have shed tears for this beautiful girl ... and now I'm doing it again. A true inspiration ... she'll be remembered when we're all forgotten
@Funny Lady did she passed away?
Right!!!! I feel the exact same way and I just came across Claire's video 35 minutes ago. I can't explain what her word's and spirit have done to & for me. She is beyond wise and beyond amazing and has such a beautiful singing voice. There is just something about Claire that I can't explain, she's changed my life. She has touched a part of my soul I didn't even know existed.
It seems she was a atheist.I'm sorry but if you don't believe
in God you go to hellfire.
She has honestly been one of the most inspirational people I’ve ever seen. I’m glad I got to follow her story from 2016.
So beautiful to watch this again. I followed Claire in her last year or so and found her so inspiring and wise. I was so sad and shocked when she passed. But seeing this documentary brought her fully to life again. Her legacy is huge- she was such s bright light in this world- a living angel. Fly high Claire- you live on in the hearts and lives of all those you touched and all those yet to be touched by you. ❤❤❤
It's hard seeing her alive again. I stopped watching her videos when she died, I was just too angry. Now, the anger has (almost) gone and I grief for our loss. Such an enlightened soul. Gone but not forgotten.
When did she died 💔?
@@lina12340 September 2, 2018
HoneyBadgerKnockOut Badger's R Us omg that’s so sad 💔🥺
@@lina12340 VERY sad indeed.....I truly wish she was still here to teach us more of her wisdom....she was (is) brilliant!
I had notifications on for her all her uploads and when she died I stayed subscribed, however, I had the notifications set to occasional because it was so difficult for me to cope with her loss. I had just lost 3 loved ones (one of which was my little brother) in the span of less than a year right before Claire passed and once I heard of Claire's death and that blood clots caused her death, all my wounds opened wider and I just fell deeper into my sorrow. My little brother had died from blood clots and suffered multiple heart attacks because of them before his death and I was inconsolable (I literally felt like he took a part of my soul when he passed and still feel like that now) and then hearing blood clots caused Claire to have a stroke and die was more than I could handle. I am just now finally watching Claire's documentary and my goodness she shined so bright. We truly lost a great and wondrous hero.
I’ve struggled with depression and anxiety for a very long time, and she’s taught me that there is more to life than the struggles we face on a daily basis, and that there’s always something to look forward to and appreciate even when it feels like the world is crumbling down around you.
I miss you Claire
Same....... or atleast I try...... I deal with very violent panic attacks that hit me out of the blue sometimes I win sometimes its gets the best of me. Claire is truly an inspiration indeed and I miss her. I still deal with what I deal with but I think of her and others to overcome what I'm battling. Be strong friend
spanishsamurai same here man, it’s okay though. Anxiety and depression is hell, and it’s something we can’t fully get rid of but there’s always something that can help it, even if it’s in the smallest amount. I struggle everyday with it, and even though it got better at one point, it likes to come back full force and just screw everything up, but I’m managing. Just remember you’re not alone :)
She had a good ending. She was allowed to say goodbye to her beloved ones, the anesthesist hold her hand while giving her the anesthesia, and she went by without any pain. I often wished not to wake up after the anesthesia...
It takes courage to REALLY watch this film because you have the opportunity to see how you're not living up to your full potential. And when you do...you also see that it's ok...and you have the opportunity to be inspired to embrace all that you are and can be.
This is so beautiful and so true.
Absolutely. My chronic illness (Lupus) started at 18 and now I am 52 years of age with Chronic Kidney Disease and Multiple Myeloma Cancer. This beautiful young woman has truly inspired me to live life to the fullest even thru the pain, anguish, medicines, tests, doctors. Thru all of this, God is still faithful and in control of our lives. Enjoy every moment.
I was sobbing throughout this documentary. It really hurts to watch, but it is also beautiful. Thanks for what you’ve done for the world, Claire. You were an amazing human being and I will continue to cherish your wisdom in my life. Once again. Thank you.