Omg I cried at the end of the credits (I purposely waited for them to finish to see if there was a tribute for her) and I saw “For Claire” with a pic of her. She was truly an inspiration and I don’t think she even knew it.
@@zeesaleh4683 Oh she knew it alright :) If you look closely at the credits you'll see her name multiple times as a paid consultant for the film. She was friends with the director, Justin Baldoni. Long story short, he asked her 'be honest, have you ever had a boyfriend with cf?' She answered 'No! Cf'ers can't be in the same room together' and he was like 'this is a movie. Should we do this?' www.hollywoodreporter.com/news/justin-baldoni-personal-story-behind-five-feet-apart-1194780
Around a year ago I watched her vid called “what it’s like to die” or sum like that then shortly after i figures out she’d died. Ik the feeling, Rest In Peace to her by the way.
The depth of her insight was so remarkable for someone so young. Moments like this give me so much hope for the future. Wish this angel was still with us. Rest in peace Claire
I just watched the video “what it’s like to die” even though it’s 2 years after it was posted and I don’t think I’ve ever paid so much attention to one video ever.
Same. Also, the fact that she died the way she spent her entire life preparing herself to die (not waking up from the anesthesia) breaks my heart and at the same time heals it :(
Same here! I teach ethics and philosophy and tell my students LISTEN TO THIS! --- this young woman knows. What an incredible testimony and account it was.
You’re a good talker and a good thinker. You’re a philosopher and that’s what you’re meant to be. You may not be proud of who you are, or not happy with yourself, but others are feeding from your life philosophies. Please keep sharing your opinions here on TH-cam. I’m watching and listening
girl I'm so glad that someone else I'm subscribed to knows about Claire, I feel like everyone should. You both make incredibly important videos that are actually so helpful to people who need them/want to understand friends or family members who need them. (side note I love you both xx)
I don't think I have ever come across a person strong as you, and this has NOTHING to do with your illness. Just your personality. I admire you like no one else, and you're younger than me! Thank you for keeping us updated and being there as much as you can. My current goal is exactly what you said, get comfortable with life being uncomfortable. So simple yet so scary.
I hate pain. I run from it constantly. I hate focusing on myself and the areas I know I come up short. Claire has been the biggest wake up call I've ever found. She was an Earth Angel and is still giving to the world even after shes left it. I hope her soul knows how much of a lasting effect she's left. Thank you Claire. If you can handle your immense pain, I can handle mine.
My best friend had a bucket list, she didn't get them all done but her family and I are doing the rest of it for her. It wasn't hollow for her, she didn't have as many opportunities as yourself by the sound of it so anything she wanted to achieve in the timeframe she had was a huge accomplishment. She made one because it was all the things that made her happy. Not big things, going to the beach and park and get her nails and hair done. She did want to go to Japan but wasn't able to because she deteriorated so quickly. I agree with you that you probably don't need one because you've done a lot of things. It wasn't what made her life worth living, it wasn't making anyone proud including herself, it was being her. She didn't get time or the opportunity to spread awareness about cervical cancer, but I will.
emmaholo Thank you for sharing this! After the first 3 minutes I scanned the comments to see if anyone else was buying this shit. I immediately unsubscribed and thought of the many loved ones who were unable to finish theirs, my mom included. Nothing about someone's dreams are hollow. Being near the end of their time or not, just because she feels that way or not, it was just a horrible message. I don't care if she or anyone agrees, I agree with you whole heartedly!!!
I nearly lost my mother because of cancer and can understand how horrid it is to see someone you love so dearly slowly slip away without being able to help them. I have been very lucky with the fact that she was able to pull through but understand that not everybody gets that luxery. Reading your comment made me think back to that time and I just wanted to tell you how amazing you are for finishing her bucketlist with her family and that I find you to be a fantastic person. I as well believe that bucketlists are much more then simply 'fun things' that serve as highs for people. People make them because they are creating their own happiness. They hold onto those memories for life and use them to pull themselves through dark days to come. It is the reason I find it so important to make them because when you read through it you will remember that it is possible to smile and be happy again knowing that fun things and new memories will come in the future. I hope you are able to finish the bucketlist and I wish you and her family all the happiness in the world while doing so and hope you can think back to her with a big smile. I also wish your beloved friend peace, may her soul rest softly.
I think Claire didn't go about explaining her point in the best way possible, but after watching the whole video I see what she was trying to say. I don't think her goal was devaluing the experiences of people who do have bucket lists, but I certainly see how it can be hurtful, especially if you or your loved ones have/had them. I think she was too passionate about her message to think about possibly hurting someone's feelings. So, I understand how you feel, but I personally still find her fundamental point/insight profound and worth listening to.
You're actually talking about some very Buddhist concepts - life is suffering, grasping after things that you think will complete you or make you happy - will not complete you or make you happy in the long run, "accepting" that you will suffer and not running from being in pain or just being "uncomfortable" can lead to a more enlightened life. If only I could do that! You are such an insightful, highly intelligent and deep young woman.
The same concept in catholicism. "To carry your cross" is the analogy we often repeat. It's what makes life worthwhile, accepting your suffering because it is more meaningful than vapid good sensations and feelings.
Tharunee Samarajeewa Yes I have! I was skeptical that it would be any good. I was wrong! It is really good and I still have the book. You might enjoy Buddha's Brain by Rick Hansen. It's really good. I don't know if you are Buddhist or not - but if you aren't, you definitely don't need to be a Buddhist to enjoy it and get a lot out of it.
Yep. I'm not as familiar with Christian theology - but I do know this - and really a lot of these concepts are in a lot of religions - and just really reflect human nature and the human mind.
First off, I love you and the message you send to others, and especially that you are SO real! Secondly, I'm really uncomfortable with looking at myself in that way, but it is so important. Thank you for that, strangely! 💚
This is 2019 and I know Clair is now in heaven but all I ever wanted for her was to have the best life she could have had God bless you Clair Wineland. You spent your lif e vary well.
I feel, though she died she died happy , got the lungs were happy going in, died peacefully as her mum said, but her life was painful and she made it joyful miraculously!
The depth she has at such a relatively early age is just unbelievable. This is the absolute great side of internet. You are helping people with your videos even after your life ended, beautiful ❤️
My mom ALWAYS says that! The speech nowadays is so centered in "what matters is to be happy " We'll never be entirely happy. Good moments exist, but centering your life on the concept of being happy will be fruitless. What western tradition teaches us is to maintain a sustainable life with good decisions and be good to people around us. What you said is extremely true and deep! You're one of the few people who recognizes the struggle that is necessary to make life worthwhile, instead of numbing happy feelings that have no meaning and no substance in the long run.
From minute 7:00 to VB 10:00 is, in my experience, *the* fundamental truth of life. Everything flows from it. It's the entire lesson of 12-step programs, and the reason what worked for alcoholics happens to work for about a million other problems as well. Life hurts, and a meaningful life can't be found in avoidance of the pain of it. Accept life for what it is, wonderful and terrible, connect with other people, and try to be of service to them.
Claire I have watched your videos and want to say you are a beautiful person. As a terminally ill Cancer patient myself I know how you feel. I have been terminal now for 8 years with the Cancer spreading from my Kidney to my lungs then to my brain. During the last 8 years I have traveled all over the world, watched my children grow into adults, watched a grandson being born, and just recently bought a motorcycle. When I look back at all the things I have done or places I have been like going to Paris, Cuba, Washington DC, New York City, Amsterdam, London England wherever! what I have noticed is each item on the bucket list is short lived, impermanent in nature. Sure each thing on my bucket list gave me experience, memoires and pleasure but each was short lived and always came to an end. When it came to end I was always looking for the next big thing or next item on my bucket list to fill in that void or that emptiness. More importantly, I needed that next distraction from the Cancer!!. As time went on I realized I needed something deeper more intrinsic like something that would anchor me to the present moment. That's when I found meditation and mindfulness. I also studied Buddhism and now try to live a life with "limited" clinging, craving and attachment. No I'm not a monk in robes. I am just a laymen that still travels living my life. The difference now compared to before is that I live my life in the present moment as mindfully and meaningfully as I can each and every day.
Edward such a wise perspective! I’m wishing you all the health and love! Can you please tell where does one start to study those things? I really want to try mindfulness and meditation.
Love the way you express what you think. I know it's weird to think that you have "fans", but there are people who actually connect with you and don't want to keep track of your health in a creepy, needy, self-help way. You like to talk and you're good at it, so people like listening to you and what you have to say. Hope you can find a way of travelling more! Lots of love from Lima, Peru
"Giving something of ourselves is going to make life worth living" I think that is such a powerful statement and is very true. I know you lived your life to that standard. Rest in Peace Claire, you were an inspiration to so many lives.
Most people, especially young don't expect to get sick, you were born sick, so your experiences are different. You had no choice to face your illness head on, when you are not born with the illness it makes you experience life different. Its like being on a rollercoaster and bam your time runs out, for you you are grasping at each minute, trying to stay alive. So I think that is why people have bucket lists. That is their way of hanging on to each minute. Stay strong, you are a special person!
Joyce Wyatt I agree with you so much! I am still young but I was diagnosed with several chronic conditions, the most prominent being 4 years ago. It’s weird to watch others your age move on and accomplish the things that you want to do while you’re stuck in a hospital or in bed. My conditions are not terminal, but progressive so they lead into a very limited quality of life. The unknown is scary, and as humans, we try and combat it with what we know, and to combat what we can’t control with what we can. I wish that I wasn’t sick but I’m grateful for the lessons I have learned and that has to be enough for now
StillSurviving Hi Joyce. I'm in the same boat and wanted to give a shout to a fellow spoonie sister. Eventually you stop watching others move fwd with longing and loss. You stop wondering "what if?" And "I used to be..." Then it becomes about today. Just today, each moment, and yourself. I believe everyone can use their lives and stories for a purpose. You are the only person with your story, and your wisdom- just like Claire. Every single action matters. You are a survivor just like your name says 😘
I don't think that bucket lists are necessarily about making your life worth anymore. I think it's more about things that you really just want to experience before you don't have the chance anymore. Example: I have never been snorkeling. It's always been a dream of mine. I'd love to try it before I die. So I put it on my bucket list. I know it won't give my life any more meaning. But I'd still be sad if I never got to experience it. It's not a shallow want.
Louise Belcher Agree with you and even if is a shallow need I don't think Is wrong Being selfish or shallow are not bad things is part of our human nature is only bad when they overcome us and those instics dictate all our life otherwise I think is ok to be shallow once In a while If I were to die I would luv to travel to the Patagonia
I don't find it selfish at all. You're just making the most out of your life. My grandfather almost died and he said he wished he did things he always wanted to do instead of work to the bone.
Louise Belcher that doesn’t necessarily have to be a bucket list you could just want to go snorkeling, I want to meet Gwen Stefani that doesn’t mean that I have to put it on this cheesy list of things to do be fore I die
Bucket lists aren't about being successful or not, it's about what I want to do the most. For example, traveling, just researching places, thinking where do I wanna go makes me happy. For loads of people, it's like that- making a list of things you would like to do makes you motivated to go out there. And by going after your goals/wishes you get to experience many other wonderful things that weren't on your bucket list but made you happier and/or wiser. So I say make a bucket list-if it will motivate you, if it will make you happy- it's not a shallow thing to do. And for some people, it's the only thing that their loved one left... things that the person wanted to see or wished to do and I think you can tell what kind of a human being he was by seeing what he wanted to experience from this life, what he desired for.
She’s stating HER opinion . If it works for then it’s your perspective and don’t get offended. If you agree then that’s great . Pay attention to the good points she makes instead of feeling the need to get offended because you don’t agree
A lot of people disagree with you, but I understand your point. Giving yourself to others really feels like you’re here for something. Yes the bucket list sounds ethereally exotic, but they only fulfill the desire of the superficial; of wanting to do what everyone else is doing in fear of missing out on the “greatest” moments of your life. You’ve changed me and I feel like you’re already doing your part. :)
Buckets list aren't always built on superficial things, what would you consider superficial for someone to have on there bucket list? What they want out of life?
I have a terminal illness, and I also happen to have a "bucket list". I can assure that none of the things on my list are superficial, and none of them determine my overall happiness. There are meaningful things that I want to experience before I die, some big, some small. Maybe a few things will get checked off, maybe none at all, but that doesn't matter to me as my happiness is not solely reliant upon checking things off of a list. Now, that doesn't mean that actually doing those things won't bring me added happiness and fulfillment to my life, and I see nothing wrong with that. After all, only I can determine what brings me joy. Even though I've been sick since birth, I still have hopes and dreams just like anyone else. Experiences I want to have, things I want to see, places I want to go, memories I want to make. What Claire doesn't realize is that she actually DID make a bucket list for herself, she just didn't write it out on paper or gave it an official title. She herself claims that there were things she dreamed of doing all her life, she had goals, things she was passionate about, things she ultimately accomplished. Her list would have consisted of wanting to travel and wanting to be a public speaker, along with some of the other desires I'm sure she has had throughout her life. To me, that's what a "bucket list" is all about. You're simply taking note of experiences you want to have in your life, as this world has a lot of beauty to offer. And those dreams and desires CAN bring happiness and meaning to someone's life, but that doesn't mean that those things DEFINE your happiness, nor is it what your happiness depends on. There certainly IS happiness in doing the things you love, experiencing the beauty in the world around you, and making memories with the people you care most about. A bucket list is a tangible reminder of your desires to do those things. It isn't a set plan for your life, and your life is no more or less happy or meaningful if you don't cross any of those things on your list. There are things that I will never be able to do that are on my list, as I'm far too sick to do them, but it's still nice to think about. There are also many things on my list that are not for me, but things I want to do for others. There are also smaller aspirations that I am able to "cross off" on a daily basis, finding daily reasons to smile and laugh, and sharing that joy with someone I love, being one of them. My list is not "hollow" or "superficial". It is not about wanting to do what everyone else is doing. And it certainly has nothing to do with the fear of missing out. There is nothing "exotic" about it. It's for me, and me alone. I shouldn't still be alive at the age of 24, but I am, although I'm severely affected by the end stages of my disease. I'm not promised tomorrow, and so I make it a point to live my best life today, and most of the time that has nothing to do with anything on my "bucket list". But on the special occasion where I do get to cross something off (which usually isn't in the literal sense), especially something that I've never experienced but always wanted to, I don't know how I couldn't find joy or meaning in that. Everyone has dreams, hopes, desires, and aspirations. A "bucket list" is just putting those simple things in writing. It's not a life plan you have to stick to, and it's not what determines you happiness or feelings of meaningfulness, but it doesn't mean that it can't contribute to those feelings. It's up to every person to determine what brings them happiness, joy, and fulfillment, and no one can determine or define those things for someone else. Despite my circumstances, I'm happy. Truly and genuinely happy, each and every day. That's all that matters. And I wish that same happiness to everyone else, no matter how they find it. 😊💞 God bless!
The problem with bucket lists is a bit the same with NYE parties. You're so anxious about having "the time of your life" that you end up completely not enjoying it.
i wish i could tell this girl how incredible and amazing she was, she had such a positive outlook on this and did the best she could. i wish i could tell her to be strong, and to live her best life ♥️🧸🌻
Anthony Kiedis said something wonderful in his autobiography -- he said that he appreciates every single emotion on the spectrum. I think that this transcends into some greater notions about being at peace in one's life -- that to be at peace does not require one to seek out happiness, but rather to embrace the moment, all the moments, no matter how uncomfortable. Somewhere in that discomfort is peace; peace is innate.
it's difficult to define because "miserable" is different for everyone. most people live with a relatively normal balance of emotions, and they need to learn that all those emotions are okay to feel etc so i think this definitely applies to them. But some people live a *hellish* existance, and i think this is a dangerous concept for them, especially those who have done from being a young child who genuinely do not know what happiness is. To those people - it really can get better so please don't think you just have to "learn to live with it" because that may well be unrealistic for you. Some people definitely experience suffering to an extent most couldn't even *imagine* . Being constantly miserable and suicidal is NOT the typical state of existance, which is genuinely hard for some people to see. I thought for a long time that everyone was actually feeling how I was, and I was just weak so couldn't deal with it as well as them. I learned further on though that my life actually does suck and most people do feel happiness and satisfaction lol, so just know that if you feel like that, there are better times ahead.
dealing with terminal illness my self, and honestly I find your videos more helpful than my therapy sessions ❤️❤️ really appericiate you sharing your thoughts on things, keep up the good work
I've been hospitalized for almost 9 yrs now and have lately thought about putting myself out in TH-cam land but haven't had the uh c uh guts lol to do this but watching you from hospital bed to inspires me and gives me encouragement thanks!
Pastor Peewee do it! make whatever you want,however you want on social media. Do it simply because you can because for people like you, myself,Claire etc life choices dont come so easily for us without constant compromise, especially when hospital gets in the way. So give it a shot. You have nothing to lose but, because it would be YOUR channel, your content you do have valuable gifts to gain from it - it's not even about viewer success (-though we would all subscribe!) It's about finding some autonomy for yourself beyond life's constraints.give it a try pastor because, if nothing else, it's a life's experience you can claim for yourself. If you don't like it, no harm no foul, but if you do ..... life can open up
Pastor Peewee if this helps your prayers atall pastor let me put it this way - I am 49 yes old and very sceptical of most social media so the last thing I usu ally do is leave comments to strangers because you just never know .... (no offence to you personally). It's strangely ironic then that I reply to yours and then you talk of considering ministery work on TH-cam because I myself am not a 'religious' person in any traditional sense, Ie, no church attendency etc... but I do often look for spiritual grounding in life - so maybe you could take it as some sort of sign that I felt drawn to replying to you where I would normally not do so and it seems somehow right that you should be thinking of doing this. Just my instincts, nothing more, but as I said before, there's nothing to lose here and maybe chances to inspire to gain ...... I wish you luck In whatever lies ahead for you
well, from my life experience, as someone that has been depressed and suicidal, but also as someone that in an overall view loves life more than any other thing, I've came to a conclusion that I find pretty uncomfortable to us, humans. Life doesn't offer you one answer, one prespective. Take our virtues and flaws as an example: I can be extremely competitive but that makes you more active towards your goals. If you think about any flaw, you'll find a bright side of it, and vice versa. So, basically those are all charecteristics. The same with life: it is as simple as complex. There have been times when I was all about worth and meaning, thinking and thinking about what is this thing called life, while other times the simple fact of breathing, accepting this and not giving a damn about all the reasons why was just delightful and made life totally worth living. We must accept both. We must accept that life doesn't give a linear answer. Life is as beautiful as ugly, as soft as painful, as superficial as meaningful, as simple as complex. To all of us, that's kind of uncomfortable right? We always seek the answer, the truth. But what if two truths totally anulate eachother? Well, that's life, something that we'll never understand and we shouldn't live to do so. Let's accept that we know nothing, that life is wayyy beyond our knowledge, and just do what our hearts feel it's right, and do the best with the realities we live in. At the end of the day you're not going to meet someone that holds the incontestable absolute truth, so do your thing as best as you can. This beautiful girl Claire did what she felt right, she shared her experiences and thoughts with us. Just for that her life was worth it. Or was it? Maybe we're alive just to kill time for no reason. But for me what she did feels right as hell sooo... But yeah what I'm saying it's just my prespective, there are many other valid ones. Stay awesome
This is gold. I listened to this multiple times over the years and I never truly understood what she meant until now. Meaning, I had an intellectual understanding, not an experiential understanding if that makes sense. I'm so happy she shared this with us. And it feels so reassuring to hear her message, hardly anyone talks about this, the reality of life. It's so refreshing and reassuring ❤️❤️❤️
For me, a bucket list is a reminder to actually live life rather than live “through” it. That life is an adventure and an opportunity rather than hardship that I have to get through.
My bucket list is not for doing certain things before I die. It’s for doing things that I just gotta do, that I’m super stoked about. Maybe it should be a “Fun List”. But I take it in context of how people say, “You ain’t LIVED till you do a, b, c,...” etc.
Joanna Hischke That’s how I’ve planned mine as well. My life is limited due to chronic illnesses so I want to try and plan fun into it. A lot of my life is about waiting. Waiting for pain to stop, waiting until it’s time to take my medicine again, waiting until I get a doctor who listens, waiting until people understand. Waiting, waiting, waiting. I want to not have a need to wait and to just live. However, having things to look forward to is essential and that’s kinda what my list consists of. Things that I want to do, places I want to go, and people I want to be with
R B aw thanks! Actually I have always wondered if I was categorizing it correctly. Just didn’t seem like an actual “bucket” list to me, the more I thought about it. Because if I died without having done Jose things on my list, I wouldn’t bat an eye. And I would NEVER use a bucket list as a way to help myself be at peace with dying. That is totally unnecessary for me personally.
i remember when i first listened to this video… i was playing minecraft and was completely captivated by claire’s words. i watched it when she was still here and subscribed immediately. ive somehow arrived back at this video today and it’s heartbreaking to hear that claire has passed a few years ago. rest in peace, claire wineland. you will always be remembered
this messy, semi-repetitive rant gave me more inspiration than any TED talk or speech or really any public speaking. i wish i was able to donate to her gofundme before her transplant, just so i couldve been a part of helping such a great person.
It's insane how your videos just popped up when I've been feeling down for a long time and wasn't really appreciating life. Your videos are inspiring and I appreciate you uploading them.
I would’ve given anything to just sit down an talk to you for an hour, you are an angel, most amazing speaker this would has to offer, Rest In Peace Claire
She inspired me, because even though she was sick she pretended that she wasn’t and she tried to be happy with the time she had left and that is inspiring because life is short and we need to be happy in the time we have left.
When I hear the Buddhist philosophy of accepting suffering and not relying on hope, I don’t know how I feel about it. It feels so heavy. But when you say it like this I feel the *goodness* of accepting life as it is.
At the end of your life (no matter what age or reason), you have the realisation that exotic vacations, skydiving, writing a novel, etc. have nothing to do with your contentment or satisfaction of HOW YOU LIVED. Goals like travel are still awesome, but not for the sake of "living your best life." I love your videos, Claire. You put into words so eloquently what the rest of us cannot ❤
Just another day that I needed to hear and see Claire. I wish could've met you. You've been a big inspiration and helped me in so many ways. I love you Claire!
I hate bucket lists too!! Mainly because I will never accomplish many of the things I would put on one, and that makes me feel worse, not better about dying. I'd feel like a failure, when spending time with my loved ones is really the only thing that matters to me.
totally get where you're coming from. you had a unique perspective from most..and I agree that ultimately it's the creation of things, immersing yourself, giving of yourself for a greater good will bring more joy and fulfillment than seeking self-serving gratification... I'm not against bucket lists, but understand where you're coming from here.
Claire was an amazing person sick or not!! She's beautiful inside and out, and I hope she's traveling everywhere she wanted to go and do! The more people touched by Claire, the better this world becomes!! Let's make Claire go viral, what she had to say everyone should hear!! GOD BLESS YOU CLAIRE!!!
My grandma just recently passed away from a lung disease, watching your videos make me so happy! Even though you two are no longer with me/us you keep a smile on my face (: Thank you Claire 💓
Claire was the anomaly in which she proved to us wisdom isn't always gained through age. Our loss of Claire's short life is great, but her inspiration will always live on. ❤️❤️❤️
Working in palliative care, I’ve learned never to judge or condemn whatever anyone wants to do with their time they have left. If that’s a bucket list then they deserve to hang on to that as they navigate the hardest moments of their lives.
While I get Claire's point and I don't think she was saying bucket lists are bad if used the right way, I agree with you, I worked in pal care (not in the medical field, but as a volunteer with day patients and med filing etc) and I saw how these lists (I didn't hear too much speak of them) but for some it was something positive in their life to focus on and retain some control over, thinking back it was sometimes a way to make things happen which took considerable help and effort in which otherwise wouldn't have been able to happen if it was a goal wrote down for others to know about to. I think as long as its not something people place to much expectation on its a good thing :)
I really don’t know how I came across your TH-cam channel, but from the first video that I have watched I fell in love with you beautiful Claire. As I went through your videos I was heartbroken to find out that you are not here, but you left a legacy behind you. What a great inspiration you have been and still are to so many of us. God bless your mama and your daddy, and your little sister who went through so much pain. Claire even though you are an inspirational speaker up among the angles, your work here on earth and the way you lived your life have left a major mark on our hearts, souls, and I know that I have learned so much from you. Life is full of pain, but that pain is what makes life worth living and loving. Rest in peace beautiful angel. ❤️🌸❤️🌸❤️🌸❤️
This girl- amazing woman. She has taught this 50-something a lot. I hate that she’s gone too soon. But I agree, the top of any “bucket list” is leaving an indelible mark on the world. Claire-you DID IT! To her parents- my heart aches for you and at the same time I can imagine how thankful you are to be her parents! ❤️
Just wanted to let you know that you have a beautiful, friendly, strong, personable, intuitively wise and motivating aura about you. I enjoy your insight and your life lessons, and i personally feel like everyone can learn something through you and your experiences. Keep it up and i look forward to your videos!
i think claire’s talk about suffering is really really interesting, the fact that everyone suffers differently, and at some point, every single person will be so miserable that they don’t want to be here anymore.. i come back to this video when i’m feeling upset and i’m amazed by claire’s mindset every-time, and i always notice new things.
Wow, i am greatful that u have managed to make something of your situation; and therefore come into my life, regardless of whether ur in physical form or not. U have truely inspired me and changed my perspective on a lot of things. 'incredible' would be too corny so id rather say ur a unique and individual soul, ur energy enlightens and empowers me. Thank you.
For all the awesome things Claire got to see and do., We honour you for your selfless organ donation right to the end. I am so sad you didnt regain consciousness to be able to know how much you blessed so many others. I love the fact you point out we all experience pain !!!
“I have never met anyone... who’s okay” Hi there! I am. I wish I could meet you! :) So yeah I know we’re rare but us happy people do exist. I’ve gotten here through a combination of genetic predisposition, preoccupation with finding (and then enjoying!) the things that interest me, and satisfaction with the things I’ve accomplished. Furthermore, the reason I’ve had the ability to pursue the things that interest me and accomplish the things I’ve accomplished is because I’ve been blessed with a wonderfully strong support system of family, friends and financial security. I totally agree that it’s an unhealthy perspective to view life as a list of things you need to check off in order to be happy. That said, I have a bucket list and I don’t believe it has been bad for my mental health in any way. I don’t know why for sure but I’ll try to unpack it: I have a lot of practice finding the things I’m interested in, so I have hunches about new things I haven’t tried yet but think I might also enjoy. When one of those hunches is very strong, it occurs to me that I’d be mad at myself if I found myself at death’s door without having tried them. Ergo those things are on my bucket list. It’s a short list, and I intend to have knocked all of them out before middle age. And one of the keys to my bucket list items is that they’re all well within my means to experience, which is why I’d be mad at myself for not trying them. Tl;dr: I think there are more and less healthy reasons to have a bucket list and I agree that the things you rant against here are some of the less healthy reasons to have one. I’d be curious to hear if you agree with me that my motives are less problematic than the ones you described :)
love this claire was wise behyond her years and her views and concepts of life are alien to most , i fortunately understand her point of view because our lives were vastly simular. we dont have time we pray for it and are thnkful for it .
I didn’t know people made bucket lists for the sole purpose of making their lives feel more complete.. I thought people made them more for things they wanted to do or places they wanted to go to add extra adventure.. because as you said most people don’t get to travel for free.. I see your point though! I will feel complete when I have a family and raise my children to be kind& gentle humans and when I am able to go to bed knowing I did something positive on this world& made a tiny tiny impact of some sort. Life is a wild wild ride
Miracle axb didn’t say that was my main goal in life.. lol I said I will feel complete when I have kids and a loving family :) of course I’ll do things before then, I don’t plan on having kids until I’m at least 30 - 32 ish
Miracle axb Don’t tell her what is a, “better,” goal for her. Wtf? Having a family is the most fulfilling, amazing thing you can do. You sound like Claire in this video. Stop assuming that what’s important to you should be important to everyone.
Claire, if/when you die, I want you to know that we all love you and we will all miss you. But until that time, the fandom will stay strong & we love you.
Garrett Collier love your comment and I totally agree with it but there’s no “if” when it comes to dying. She’s going to die along with everyone else. Everyone dies. She’s just unfortunately dying a lot quicker than most people. Hope this didn’t offend you or anything. Just trying to inform! ❤️
i really want her to realize she will live after she is gone. these videos are so amazing and she is sharing her wisdom with all the world. i’m so glad the internet stays forever because this deserves to be shown forever. she’s an amazing human and has learned so much
Garrett Collier lol- sorry to laugh amidst the real tragedy of having such limited time with someone as awesome as Claire but I think even she would laugh at the “if” phrasing lol, like, for ALL of us- it’s not a matter of “if” it’s a matter of when. 😜 the beauty of Claire sharing her experience -lol is her own sense of humor which is great- and also bc she has the ability to infect others with whatever special essence she has...to get us to lighten up a little bit about these heavy subjects we all tend to freak out about bc.... I guess by necessity she’s had to learn how to cope with everything and maintain a sense of humor that tends toward the morbid side, again by necessity I presume but it all makes her a fascinating character obviously we all love her :) maybe even more so bc we all know her time might be more limited??? But this is also how I wish we would always treat each other- bc even without forewarning we never really know WHEN (not IF) any one of us could pass on. It’s kind of sad to me that this is actually what it takes- sometimes- for people to actually muster up this level of respect, to cherish others and treat them with the same level of compassion you might treat someone who’s time or life you know is extremely limited. Because life IS relatively limited for all of us. And Claire is right- its never totally free of pain or suffering either so, we all have our own burdens, lol “fundamental quality of being miserable in life” lol.... see this is why I love her? Hilarious. She really has a way of illuminating the paradoxical in life :) she’s definitely a philosopher.
loved the coment she will live after she's gone, i truly love the way you see life, no matter how much time you got, the way you live inspired me so much, you help me to see my life in a whole different way, thank you for being here taking the time to talk about everything in your very own way it will live in my memory forever.
I remember watching this video when it was first uploaded and being so inspired by it. Your whole view on life and happiness touched so many lives and I still cannot believe you are gone- it just isn't fair. Your message of hope and happiness will live on ❤
You articulated it well, I understood what you meant, leading a fulfilling and meaningful life is hard work. I found your comparison of using drugs and chasing bucketlist style experiences that will make you "happy" very insightful.
I wish we lived near each other. We have so many opinions that are the same and I'm also fascinated by death. I too have an incurable disease and spend too much time in hospitals.
I am chronic but dont have a terminal dx. However as my symptoms get worse I can do less and less. So I made up a 'wheelchair' list. I conquered fears and obstacles I would not have done otherwise. For me it was not shallow or meaningless. I am proud of myself for tackling those things. It is not about 'doing life better', its just something personal.
She just keeps on inspiring me, even if she's no longer with us. Every time I come back to this video I understand something new. I truly hope that she's up in heaven with God and his angels.
For so many of us the bucket list is the infusion of hope that gets us through another shift, another leaking toilet, the check engine light while the baby is having asthma attack and the sitter just gave you notice. You are right about just living life with as much integrity and joy of the moment and this message has helped me in this dark time of some funky exhausting neuromuscular disease that hit at 60. You have encouraged me to just push the envelope even if it isn't a guaranteed success cause doing the "right thing" for so long and denying my writing and storytelling no longer makes sense. I watched this video while spinning alpaca fibers into yarn and grooving on the way thin fibers grab onto one another and become this strong useful,soft warm yarn and the whole process is very simple but requires persistence. You and alpaca fibers are great teachers.
Bucket lists seem to be a judgement of dying well. And no one dies well, only timely or not. And swimming with dolphins does not make you die in a better vain. But if you truly dream about swimming with dolphins, then it shouldn't take Dying to force you to do it, you are worthy of those brilliant experiences in the heights of living, not just because you are Dying
My dad died when I was three. He was in hawaii at the time working with a special needs organization that basically provided everyone to have proper care while they got to enjoy a super fun vacation. He died of a heart attack unexpectedly in the bathroom. The last thing he did was swim with dolphins, a lifelong dream.
Sarahwithstars-people do die Well.There are healthy people who die every second.I think people who know they are dieing are lucky in a way,because they can try to resolve any issues with others- and they are given the chance to prepare for it in any way the see fit.
way to miss the point. If you spent your time and money doing your life goals when you were not dying you'd end up jobless and homeless and stuff lol. People still achieve their goals before a terminal diagnosis it's just not as urgent. What a truly stupid comment. Lots of people don't even think about goals because they just assume they will do everything naturally when they have time, assuming they have time which they then find out they dont.
Forever grateful I found her in high school,she changed my outlook on life forever🔥❤now years later with her gone I still watch her videos and she always reminds me why I should live proudly🦋💘 RIP beautiful
To whoever may see this, just know that in the credits of Five Feet Apart, they gave a special thank to Claire, not once, but twice.
Omg I cried at the end of the credits (I purposely waited for them to finish to see if there was a tribute for her) and I saw “For Claire” with a pic of her. She was truly an inspiration and I don’t think she even knew it.
Omg yes that’s how I found about the channel
I miss her
@Ollie she knew it believe me !!! The more you watch the more you will learn
@@zeesaleh4683 Oh she knew it alright :) If you look closely at the credits you'll see her name multiple times as a paid consultant for the film. She was friends with the director, Justin Baldoni. Long story short, he asked her 'be honest, have you ever had a boyfriend with cf?' She answered 'No! Cf'ers can't be in the same room together' and he was like 'this is a movie. Should we do this?'
www.hollywoodreporter.com/news/justin-baldoni-personal-story-behind-five-feet-apart-1194780
I feel like "you start to live when you begin to die"
And, often, when you start to die, it's already too late...
I think the major thing we can do with these lessons is to try to truly live before we begin to die.
Yeah,...
Found her on TH-cam - Fell in Love with her - then discovered she isn't here anymore...
Relatable
She’s still around, just in another way and she’s doing phenomenal in every way shape and form.
Around a year ago I watched her vid called “what it’s like to die” or sum like that then shortly after i figures out she’d died. Ik the feeling, Rest In Peace to her by the way.
@@katedagr8540
Same!!! ;(
The depth of her insight was so remarkable for someone so young. Moments like this give me so much hope for the future. Wish this angel was still with us. Rest in peace Claire
Agree 👍🏼👍🏼👍🏼
I just watched the video “what it’s like to die” even though it’s 2 years after it was posted and I don’t think I’ve ever paid so much attention to one video ever.
Same. Also, the fact that she died the way she spent her entire life preparing herself to die (not waking up from the anesthesia) breaks my heart and at the same time heals it :(
@@ines8131 Its actually so sad, when she finally started to have hope she passed away..
same.💔 i saw her videos when they first came out and when i found out about her passing i was so heartbroken and i still am.💔💔💔💔
Same here! I teach ethics and philosophy and tell my students LISTEN TO THIS! --- this young woman knows. What an incredible testimony and account it was.
Yes that is really eye oppening video
You’re a good talker and a good thinker. You’re a philosopher and that’s what you’re meant to be. You may not be proud of who you are, or not happy with yourself, but others are feeding from your life philosophies. Please keep sharing your opinions here on TH-cam. I’m watching and listening
Perfectly said! 🙌🏼🙌🏼❤️
yesss agreed!
Yes!!!!
Totally agree!
Lol 444 likes and 4 replies c: its a sign to me
You are incredible. Thank you for your videos ❤️
Fancy seeing you here
girl I'm so glad that someone else I'm subscribed to knows about Claire, I feel like everyone should. You both make incredibly important videos that are actually so helpful to people who need them/want to understand friends or family members who need them. (side note I love you both xx)
Anna Campbell i subbed 2 u
I love when my favorite youtubers watch my favorite youtubers
ANNA :D
I don't think I have ever come across a person strong as you, and this has NOTHING to do with your illness. Just your personality. I admire you like no one else, and you're younger than me! Thank you for keeping us updated and being there as much as you can. My current goal is exactly what you said, get comfortable with life being uncomfortable. So simple yet so scary.
Yes 😞😞😞
I hate pain. I run from it constantly. I hate focusing on myself and the areas I know I come up short. Claire has been the biggest wake up call I've ever found. She was an Earth Angel and is still giving to the world even after shes left it. I hope her soul knows how much of a lasting effect she's left.
Thank you Claire. If you can handle your immense pain, I can handle mine.
what pure thoughts...she was a living angle...now she has joined her angle squad in heaven...rest in heaven..
Is she a 90 degree angle or 180 jk she's angel
@@charliealbon4427 😂😂
@@charliealbon4427 "her angle squad" 😂
I like how u said “angel squad”
So true she is most likely in heaven with angels
My best friend had a bucket list, she didn't get them all done but her family and I are doing the rest of it for her. It wasn't hollow for her, she didn't have as many opportunities as yourself by the sound of it so anything she wanted to achieve in the timeframe she had was a huge accomplishment. She made one because it was all the things that made her happy. Not big things, going to the beach and park and get her nails and hair done. She did want to go to Japan but wasn't able to because she deteriorated so quickly.
I agree with you that you probably don't need one because you've done a lot of things. It wasn't what made her life worth living, it wasn't making anyone proud including herself, it was being her. She didn't get time or the opportunity to spread awareness about cervical cancer, but I will.
emmaholo ❤️
emmaholo Thank you for sharing this! After the first 3 minutes I scanned the comments to see if anyone else was buying this shit. I immediately unsubscribed and thought of the many loved ones who were unable to finish theirs, my mom included. Nothing about someone's dreams are hollow. Being near the end of their time or not, just because she feels that way or not, it was just a horrible message. I don't care if she or anyone agrees, I agree with you whole heartedly!!!
I nearly lost my mother because of cancer and can understand how horrid it is to see someone you love so dearly slowly slip away without being able to help them. I have been very lucky with the fact that she was able to pull through but understand that not everybody gets that luxery. Reading your comment made me think back to that time and I just wanted to tell you how amazing you are for finishing her bucketlist with her family and that I find you to be a fantastic person. I as well believe that bucketlists are much more then simply 'fun things' that serve as highs for people. People make them because they are creating their own happiness. They hold onto those memories for life and use them to pull themselves through dark days to come. It is the reason I find it so important to make them because when you read through it you will remember that it is possible to smile and be happy again knowing that fun things and new memories will come in the future. I hope you are able to finish the bucketlist and I wish you and her family all the happiness in the world while doing so and hope you can think back to her with a big smile. I also wish your beloved friend peace, may her soul rest softly.
I think Claire didn't go about explaining her point in the best way possible, but after watching the whole video I see what she was trying to say. I don't think her goal was devaluing the experiences of people who do have bucket lists, but I certainly see how it can be hurtful, especially if you or your loved ones have/had them. I think she was too passionate about her message to think about possibly hurting someone's feelings. So, I understand how you feel, but I personally still find her fundamental point/insight profound and worth listening to.
XXX XXX That was such a lovely message ❤ Your mom is very lucky to have you!!
You're actually talking about some very Buddhist concepts - life is suffering, grasping after things that you think will complete you or make you happy - will not complete you or make you happy in the long run, "accepting" that you will suffer and not running from being in pain or just being "uncomfortable" can lead to a more enlightened life. If only I could do that! You are such an insightful, highly intelligent and deep young woman.
i_love_rescue_animals The same concepts are in Biblical theology as well.
www.thegospelcoalition.org/article/dying-to-self-in-the-age-of-self-love/
The same concept in catholicism.
"To carry your cross" is the analogy we often repeat. It's what makes life worthwhile, accepting your suffering because it is more meaningful than vapid good sensations and feelings.
i_love_rescue_animals have you read this book called, The power of now by Ekhart Tolle? If not please have a look, think you will enjoy reading it :)
Tharunee Samarajeewa Yes I have! I was skeptical that it would be any good. I was wrong! It is really good and I still have the book. You might enjoy Buddha's Brain by Rick Hansen. It's really good. I don't know if you are Buddhist or not - but if you aren't, you definitely don't need to be a Buddhist to enjoy it and get a lot out of it.
Yep. I'm not as familiar with Christian theology - but I do know this - and really a lot of these concepts are in a lot of religions - and just really reflect human nature and the human mind.
First off, I love you and the message you send to others, and especially that you are SO real!
Secondly, I'm really uncomfortable with looking at myself in that way, but it is so important. Thank you for that, strangely! 💚
Sharon Hernandez what the frik!?! stop! if u want a gilfrind/boyfrind this is not the way to do it!!!
Sharon Hernandez stop spamming! You've been reported
Cow_woC Claire is blazing trails that's for sure.
@@dootdoot94xo44 confused
This is 2019 and I know Clair is now in heaven but all I ever wanted for her was to have the best life she could have had God bless you Clair Wineland.
You spent your lif e vary well.
God is an imaginary friend you should know that
Garbage Day coming from an atheist, you are a garbage person
i think she is in a very nice place now. but she didn't really believed in God, she was buddhist :)
I feel, though she died she died happy , got the lungs were happy going in, died peacefully as her mum said, but her life was painful and she made it joyful miraculously!
The depth she has at such a relatively early age is just unbelievable. This is the absolute great side of internet. You are helping people with your videos even after your life ended, beautiful ❤️
Love listening to her chats 🙏💚
Very, very smart woman.
She just has such a comforting voice and I love what she talks about
@@dncviorel she was ahead of her time
So much wisdom beyond her years 👍🏼
My mom ALWAYS says that! The speech nowadays is so centered in "what matters is to be happy "
We'll never be entirely happy. Good moments exist, but centering your life on the concept of being happy will be fruitless.
What western tradition teaches us is to maintain a sustainable life with good decisions and be good to people around us.
What you said is extremely true and deep! You're one of the few people who recognizes the struggle that is necessary to make life worthwhile, instead of numbing happy feelings that have no meaning and no substance in the long run.
From minute 7:00 to VB 10:00 is, in my experience, *the* fundamental truth of life. Everything flows from it. It's the entire lesson of 12-step programs, and the reason what worked for alcoholics happens to work for about a million other problems as well. Life hurts, and a meaningful life can't be found in avoidance of the pain of it. Accept life for what it is, wonderful and terrible, connect with other people, and try to be of service to them.
Watching her videos is like a medicine for feeling better with life ♥️
“Sometimes I don’t wanna be happy, don’t hold it against me, if I’m down just leave me there, let me be sad”
knew there was gonna be a joke like this 😂 😭
😂
a bucket list is just things you want to try at any point in your life. the interpretations you put on it and what it means are your own.
Agreed.
Agreed. I think she's reading way too much into what a bucket list is...
Claire I have watched your videos and want to say you are a beautiful person. As a terminally ill Cancer patient myself I know how you feel. I have been terminal now for 8 years with the Cancer spreading from my Kidney to my lungs then to my brain. During the last 8 years I have traveled all over the world, watched my children grow into adults, watched a grandson being born, and just recently bought a motorcycle. When I look back at all the things I have done or places I have been like going to Paris, Cuba, Washington DC, New York City, Amsterdam, London England wherever! what I have noticed is each item on the bucket list is short lived, impermanent in nature. Sure each thing on my bucket list gave me experience, memoires and pleasure but each was short lived and always came to an end. When it came to end I was always looking for the next big thing or next item on my bucket list to fill in that void or that emptiness. More importantly, I needed that next distraction from the Cancer!!. As time went on I realized I needed something deeper more intrinsic like something that would anchor me to the present moment. That's when I found meditation and mindfulness. I also studied Buddhism and now try to live a life with "limited" clinging, craving and attachment. No I'm not a monk in robes. I am just a laymen that still travels living my life. The difference now compared to before is that I live my life in the present moment as mindfully and meaningfully as I can each and every day.
Edward such a wise perspective! I’m wishing you all the health and love!
Can you please tell where does one start to study those things? I really want to try mindfulness and meditation.
You have inspired me! Thank you :)
Love the way you express what you think. I know it's weird to think that you have "fans", but there are people who actually connect with you and don't want to keep track of your health in a creepy, needy, self-help way. You like to talk and you're good at it, so people like listening to you and what you have to say. Hope you can find a way of travelling more! Lots of love from Lima, Peru
Allison Basurto exactly 100%
why isnt this in spanish
yoseph og Claire doesn't speak spanish so it wouldn't have made sense to write in a language she doesn't know
"Giving something of ourselves is going to make life worth living"
I think that is such a powerful statement and is very true. I know you lived your life to that standard.
Rest in Peace Claire, you were an inspiration to so many lives.
She was so smart and well spoken. Thank you Claire, for sharing your history with us. You were truly an inspiration.
Most people, especially young don't expect to get sick, you were born sick, so your experiences are different. You had no choice to face your illness head on, when you are not born with the illness it makes you experience life different. Its like being on a rollercoaster and bam your time runs out, for you you are grasping at each minute, trying to stay alive. So I think that is why people have bucket lists. That is their way of hanging on to each minute. Stay strong, you are a special person!
Joyce Wyatt
I agree with you so much! I am still young but I was diagnosed with several chronic conditions, the most prominent being 4 years ago. It’s weird to watch others your age move on and accomplish the things that you want to do while you’re stuck in a hospital or in bed. My conditions are not terminal, but progressive so they lead into a very limited quality of life. The unknown is scary, and as humans, we try and combat it with what we know, and to combat what we can’t control with what we can. I wish that I wasn’t sick but I’m grateful for the lessons I have learned and that has to be enough for now
StillSurviving Hi Joyce. I'm in the same boat and wanted to give a shout to a fellow spoonie sister. Eventually you stop watching others move fwd with longing and loss. You stop wondering "what if?" And "I used to be..."
Then it becomes about today. Just today, each moment, and yourself.
I believe everyone can use their lives and stories for a purpose. You are the only person with your story, and your wisdom- just like Claire.
Every single action matters. You are a survivor just like your name says 😘
Amen thank u for saying that
Joyce Wyatt nicely put
Mary M
Thank you so much! I’m working on it and I’ll get there some day😊
I don't think that bucket lists are necessarily about making your life worth anymore. I think it's more about things that you really just want to experience before you don't have the chance anymore. Example: I have never been snorkeling. It's always been a dream of mine. I'd love to try it before I die. So I put it on my bucket list. I know it won't give my life any more meaning. But I'd still be sad if I never got to experience it. It's not a shallow want.
Louise Belcher
Agree with you and even if is a shallow need I don't think Is wrong
Being selfish or shallow are not bad things is part of our human nature is only bad when they overcome us and those instics dictate all our life otherwise I think is ok to be shallow once In a while
If I were to die I would luv to travel to the Patagonia
I don't find it selfish at all. You're just making the most out of your life. My grandfather almost died and he said he wished he did things he always wanted to do instead of work to the bone.
Not a shallow want? Ahahaha get it? Snorkelling, shallow.. AHAHAHA
I'm agree
Louise Belcher that doesn’t necessarily have to be a bucket list you could just want to go snorkeling, I want to meet Gwen Stefani that doesn’t mean that I have to put it on this cheesy list of things to do be fore I die
Claire, you are missed. Such a wise person.
Bucket lists aren't about being successful or not, it's about what I want to do the most. For example, traveling, just researching places, thinking where do I wanna go makes me happy. For loads of people, it's like that- making a list of things you would like to do makes you motivated to go out there. And by going after your goals/wishes you get to experience many other wonderful things that weren't on your bucket list but made you happier and/or wiser. So I say make a bucket list-if it will motivate you, if it will make you happy- it's not a shallow thing to do.
And for some people, it's the only thing that their loved one left... things that the person wanted to see or wished to do and I think you can tell what kind of a human being he was by seeing what he wanted to experience from this life, what he desired for.
She’s stating HER opinion . If it works for then it’s your perspective and don’t get offended. If you agree then that’s great . Pay attention to the good points she makes instead of feeling the need to get offended because you don’t agree
simplycbh well said x
And other people can state THEIR opinion
A lot of people disagree with you, but I understand your point. Giving yourself to others really feels like you’re here for something. Yes the bucket list sounds ethereally exotic, but they only fulfill the desire of the superficial; of wanting to do what everyone else is doing in fear of missing out on the “greatest” moments of your life. You’ve changed me and I feel like you’re already doing your part. :)
Buckets list aren't always built on superficial things, what would you consider superficial for someone to have on there bucket list? What they want out of life?
I have a terminal illness, and I also happen to have a "bucket list". I can assure that none of the things on my list are superficial, and none of them determine my overall happiness. There are meaningful things that I want to experience before I die, some big, some small. Maybe a few things will get checked off, maybe none at all, but that doesn't matter to me as my happiness is not solely reliant upon checking things off of a list. Now, that doesn't mean that actually doing those things won't bring me added happiness and fulfillment to my life, and I see nothing wrong with that. After all, only I can determine what brings me joy. Even though I've been sick since birth, I still have hopes and dreams just like anyone else. Experiences I want to have, things I want to see, places I want to go, memories I want to make. What Claire doesn't realize is that she actually DID make a bucket list for herself, she just didn't write it out on paper or gave it an official title. She herself claims that there were things she dreamed of doing all her life, she had goals, things she was passionate about, things she ultimately accomplished. Her list would have consisted of wanting to travel and wanting to be a public speaker, along with some of the other desires I'm sure she has had throughout her life. To me, that's what a "bucket list" is all about. You're simply taking note of experiences you want to have in your life, as this world has a lot of beauty to offer. And those dreams and desires CAN bring happiness and meaning to someone's life, but that doesn't mean that those things DEFINE your happiness, nor is it what your happiness depends on. There certainly IS happiness in doing the things you love, experiencing the beauty in the world around you, and making memories with the people you care most about. A bucket list is a tangible reminder of your desires to do those things. It isn't a set plan for your life, and your life is no more or less happy or meaningful if you don't cross any of those things on your list. There are things that I will never be able to do that are on my list, as I'm far too sick to do them, but it's still nice to think about. There are also many things on my list that are not for me, but things I want to do for others. There are also smaller aspirations that I am able to "cross off" on a daily basis, finding daily reasons to smile and laugh, and sharing that joy with someone I love, being one of them. My list is not "hollow" or "superficial". It is not about wanting to do what everyone else is doing. And it certainly has nothing to do with the fear of missing out. There is nothing "exotic" about it. It's for me, and me alone. I shouldn't still be alive at the age of 24, but I am, although I'm severely affected by the end stages of my disease. I'm not promised tomorrow, and so I make it a point to live my best life today, and most of the time that has nothing to do with anything on my "bucket list". But on the special occasion where I do get to cross something off (which usually isn't in the literal sense), especially something that I've never experienced but always wanted to, I don't know how I couldn't find joy or meaning in that. Everyone has dreams, hopes, desires, and aspirations. A "bucket list" is just putting those simple things in writing. It's not a life plan you have to stick to, and it's not what determines you happiness or feelings of meaningfulness, but it doesn't mean that it can't contribute to those feelings. It's up to every person to determine what brings them happiness, joy, and fulfillment, and no one can determine or define those things for someone else. Despite my circumstances, I'm happy. Truly and genuinely happy, each and every day. That's all that matters. And I wish that same happiness to everyone else, no matter how they find it. 😊💞 God bless!
Word of the day: fundamentally. 😘
Explicit Low haha literally always !
Shhh - I have a word of the day every day too :D (I thought it too lol)
woah we're twiins
Oh my gosh I just said the same thing!!
The problem with bucket lists is a bit the same with NYE parties. You're so anxious about having "the time of your life" that you end up completely not enjoying it.
Nope I completely enjoy it no matter what
i wish i could tell this girl how incredible and amazing she was, she had such a positive outlook on this and did the best she could. i wish i could tell her to be strong, and to live her best life ♥️🧸🌻
Anthony Kiedis said something wonderful in his autobiography -- he said that he appreciates every single emotion on the spectrum. I think that this transcends into some greater notions about being at peace in one's life -- that to be at peace does not require one to seek out happiness, but rather to embrace the moment, all the moments, no matter how uncomfortable. Somewhere in that discomfort is peace; peace is innate.
it's difficult to define because "miserable" is different for everyone. most people live with a relatively normal balance of emotions, and they need to learn that all those emotions are okay to feel etc so i think this definitely applies to them.
But some people live a *hellish* existance, and i think this is a dangerous concept for them, especially those who have done from being a young child who genuinely do not know what happiness is. To those people - it really can get better so please don't think you just have to "learn to live with it" because that may well be unrealistic for you. Some people definitely experience suffering to an extent most couldn't even *imagine* . Being constantly miserable and suicidal is NOT the typical state of existance, which is genuinely hard for some people to see. I thought for a long time that everyone was actually feeling how I was, and I was just weak so couldn't deal with it as well as them. I learned further on though that my life actually does suck and most people do feel happiness and satisfaction lol, so just know that if you feel like that, there are better times ahead.
aw lol
You just changed my entire perspective. Thank you so much, you have a brilliant mind.
dealing with terminal illness my self, and honestly I find your videos more helpful than my therapy sessions ❤️❤️ really appericiate you sharing your thoughts on things, keep up the good work
What a beautiful intelligent soul. I am watching your videos in a very dark time for me and it makes me get through and learn. Thank you claire.
I've been hospitalized for almost 9 yrs now and have lately thought about putting myself out in TH-cam land but haven't had the uh c uh guts lol to do this but watching you from hospital bed to inspires me and gives me encouragement thanks!
Pastor Peewee do it! make whatever you want,however you want on social media. Do it simply because you can because for people like you, myself,Claire etc life choices dont come so easily for us without constant compromise, especially when hospital gets in the way. So give it a shot. You have nothing to lose but, because it would be YOUR channel, your content you do have valuable gifts to gain from it - it's not even about viewer success (-though we would all subscribe!) It's about finding some autonomy for yourself beyond life's constraints.give it a try pastor because, if nothing else, it's a life's experience you can claim for yourself. If you don't like it, no harm no foul, but if you do ..... life can open up
full healing to you
Ash Bell wow great way of explaining why I should and thinking about it I suppose I could use it as a ministry as well. Thanks ash. I'll pray about it
joyfaithlove thank u greatly, God bless you
Pastor Peewee if this helps your prayers atall pastor let me put it this way - I am 49 yes old and very sceptical of most social media so the last thing I usu ally do is leave comments to strangers because you just never know .... (no offence to you personally). It's strangely ironic then that I reply to yours and then you talk of considering ministery work on TH-cam because I myself am not a 'religious' person in any traditional sense, Ie, no church attendency etc... but I do often look for spiritual grounding in life - so maybe you could take it as some sort of sign that I felt drawn to replying to you where I would normally not do so and it seems somehow right that you should be thinking of doing this. Just my instincts, nothing more, but as I said before, there's nothing to lose here and maybe chances to inspire to gain ...... I wish you luck In whatever lies ahead for you
I love your soul. It's precious. You are a great human Claire.
All the best to you, and positive vibes sent your way!
well, from my life experience, as someone that has been depressed and suicidal, but also as someone that in an overall view loves life more than any other thing, I've came to a conclusion that I find pretty uncomfortable to us, humans.
Life doesn't offer you one answer, one prespective. Take our virtues and flaws as an example: I can be extremely competitive but that makes you more active towards your goals. If you think about any flaw, you'll find a bright side of it, and vice versa. So, basically those are all charecteristics.
The same with life: it is as simple as complex. There have been times when I was all about worth and meaning, thinking and thinking about what is this thing called life, while other times the simple fact of breathing, accepting this and not giving a damn about all the reasons why was just delightful and made life totally worth living.
We must accept both. We must accept that life doesn't give a linear answer. Life is as beautiful as ugly, as soft as painful, as superficial as meaningful, as simple as complex. To all of us, that's kind of uncomfortable right? We always seek the answer, the truth. But what if two truths totally anulate eachother? Well, that's life, something that we'll never understand and we shouldn't live to do so.
Let's accept that we know nothing, that life is wayyy beyond our knowledge, and just do what our hearts feel it's right, and do the best with the realities we live in. At the end of the day you're not going to meet someone that holds the incontestable absolute truth, so do your thing as best as you can. This beautiful girl Claire did what she felt right, she shared her experiences and thoughts with us. Just for that her life was worth it. Or was it? Maybe we're alive just to kill time for no reason. But for me what she did feels right as hell sooo... But yeah what I'm saying it's just my prespective, there are many other valid ones.
Stay awesome
Some people do bucket lists just like they make goals. It's just something to do.
This is gold. I listened to this multiple times over the years and I never truly understood what she meant until now. Meaning, I had an intellectual understanding, not an experiential understanding if that makes sense. I'm so happy she shared this with us. And it feels so reassuring to hear her message, hardly anyone talks about this, the reality of life. It's so refreshing and reassuring ❤️❤️❤️
Claire is like therapy. She gave so much more to the world than she could have imagined ❤️❤️❤️❤️
For me, a bucket list is a reminder to actually live life rather than live “through” it. That life is an adventure and an opportunity rather than hardship that I have to get through.
My bucket list is not for doing certain things before I die. It’s for doing things that I just gotta do, that I’m super stoked about. Maybe it should be a “Fun List”. But I take it in context of how people say, “You ain’t LIVED till you do a, b, c,...” etc.
Joanna Hischke
That’s how I’ve planned mine as well. My life is limited due to chronic illnesses so I want to try and plan fun into it. A lot of my life is about waiting. Waiting for pain to stop, waiting until it’s time to take my medicine again, waiting until I get a doctor who listens, waiting until people understand. Waiting, waiting, waiting. I want to not have a need to wait and to just live. However, having things to look forward to is essential and that’s kinda what my list consists of. Things that I want to do, places I want to go, and people I want to be with
StillSurviving that is so awesome that you do that! It’s so cool that you want to travel and see people. Such essential parts of life. ❤️
Joanna Hischke dont change it to fun list. I feel like people always think they have to agree with or walk on eggshells with people who are dying
R B aw thanks! Actually I have always wondered if I was categorizing it correctly. Just didn’t seem like an actual “bucket” list to me, the more I thought about it. Because if I died without having done Jose things on my list, I wouldn’t bat an eye. And I would NEVER use a bucket list as a way to help myself be at peace with dying. That is totally unnecessary for me personally.
Joanna Hischke I totally get it. This video is kind of bitchy lol
i remember when i first listened to this video… i was playing minecraft and was completely captivated by claire’s words. i watched it when she was still here and subscribed immediately. ive somehow arrived back at this video today and it’s heartbreaking to hear that claire has passed a few years ago.
rest in peace, claire wineland. you will always be remembered
this messy, semi-repetitive rant gave me more inspiration than any TED talk or speech or really any public speaking. i wish i was able to donate to her gofundme before her transplant, just so i couldve been a part of helping such a great person.
It's insane how your videos just popped up when I've been feeling down for a long time and wasn't really appreciating life. Your videos are inspiring and I appreciate you uploading them.
Damn i wish you would write a book.
I really do too!! A book or diary with your thoughts would be awesome! Lots of love to you!
I mean, this IS the book.
actually she has! i don't know if it has a publisher yet but she's definitely written one, she's mentioned it on her podcast/instagram...!!!
YES!!!
I would’ve given anything to just sit down an talk to you for an hour, you are an angel, most amazing speaker this would has to offer, Rest In Peace Claire
Your genuine soul is addicting, could listen to you all day. Hate to see you in hospital
She inspired me, because even though she was sick she pretended that she wasn’t and she tried to be happy with the time she had left and that is inspiring because life is short and we need to be happy in the time we have left.
When I hear the Buddhist philosophy of accepting suffering and not relying on hope, I don’t know how I feel about it. It feels so heavy. But when you say it like this I feel the *goodness* of accepting life as it is.
At the end of your life (no matter what age or reason), you have the realisation that exotic vacations, skydiving, writing a novel, etc. have nothing to do with your contentment or satisfaction of HOW YOU LIVED.
Goals like travel are still awesome, but not for the sake of "living your best life."
I love your videos, Claire. You put into words so eloquently what the rest of us cannot ❤
I could listen to you talk all day❤️
Thanks for being such an inspiration for EVERYONE!
You got this girly!! stay strong we love you🙏🏼❤️😘
She looks so good for someone who went thrue this hell she is such a strong lady..always remembered
Just another day that I needed to hear and see Claire.
I wish could've met you. You've been a big inspiration and helped me in so many ways. I love you Claire!
I hate bucket lists too!! Mainly because I will never accomplish many of the things I would put on one, and that makes me feel worse, not better about dying. I'd feel like a failure, when spending time with my loved ones is really the only thing that matters to me.
And there in lies the secret to life
Dina Diesis I agree
She was so naturally adorable 🥰
It is definitely a well lived life that brings so much wisdom at such a tender age.
totally get where you're coming from. you had a unique perspective from most..and I agree that ultimately it's the creation of things, immersing yourself, giving of yourself for a greater good will bring more joy and fulfillment than seeking self-serving gratification... I'm not against bucket lists, but understand where you're coming from here.
Gone, but never forgotten. I come back to this video at least once a year, there was so much wisdom in Claire.
goodbye angel, thank you for being my inspiration
Wisdom and understanding way beyond her years. God Bless......RIP
Claire was an amazing person sick or not!! She's beautiful inside and out, and I hope she's traveling everywhere she wanted to go and do! The more people touched by Claire, the better this world becomes!! Let's make Claire go viral, what she had to say everyone should hear!! GOD BLESS YOU CLAIRE!!!
My grandma just recently passed away from a lung disease, watching your videos make me so happy! Even though you two are no longer with me/us you keep a smile on my face (:
Thank you Claire 💓
Claire was the anomaly in which she proved to us wisdom isn't always gained through age.
Our loss of Claire's short life is great, but her inspiration will always live on.
❤️❤️❤️
Working in palliative care, I’ve learned never to judge or condemn whatever anyone wants to do with their time they have left. If that’s a bucket list then they deserve to hang on to that as they navigate the hardest moments of their lives.
While I get Claire's point and I don't think she was saying bucket lists are bad if used the right way, I agree with you, I worked in pal care (not in the medical field, but as a volunteer with day patients and med filing etc) and I saw how these lists (I didn't hear too much speak of them) but for some it was something positive in their life to focus on and retain some control over, thinking back it was sometimes a way to make things happen which took considerable help and effort in which otherwise wouldn't have been able to happen if it was a goal wrote down for others to know about to. I think as long as its not something people place to much expectation on its a good thing :)
Tanya Burt which is exactly what she said at the start, this is her personal opinion
Back to this video again. Rest in peace, you may be gone but your message still carries immense value to many of us.
*AMEN!*
I love hangin' out with Claire. She's my spirit animal.
I really don’t know how I came across your TH-cam channel, but from the first video that I have watched I fell in love with you beautiful Claire. As I went through your videos I was heartbroken to find out that you are not here, but you left a legacy behind you. What a great inspiration you have been and still are to so many of us. God bless your mama and your daddy, and your little sister who went through so much pain. Claire even though you are an inspirational speaker up among the angles, your work here on earth and the way you lived your life have left a major mark on our hearts, souls, and I know that I have learned so much from you. Life is full of pain, but that pain is what makes life worth living and loving. Rest in peace beautiful angel. ❤️🌸❤️🌸❤️🌸❤️
This is such a meaningful video. You never go away "empty handed" from claire's videos. There is always a take away....some learning point.
This girl- amazing woman. She has taught this 50-something a lot. I hate that she’s gone too soon. But I agree, the top of any “bucket list” is leaving an indelible mark on the world. Claire-you DID IT! To her parents- my heart aches for you and at the same time I can imagine how thankful you are to be her parents! ❤️
This video just changed my entire perspective on life. Thank you.
Just wanted to let you know that you have a beautiful, friendly, strong, personable, intuitively wise and motivating aura about you. I enjoy your insight and your life lessons, and i personally feel like everyone can learn something through you and your experiences. Keep it up and i look forward to your videos!
i think claire’s talk about suffering is really really interesting, the fact that everyone suffers differently, and at some point, every single person will be so miserable that they don’t want to be here anymore.. i come back to this video when i’m feeling upset and i’m amazed by claire’s mindset every-time, and i always notice new things.
Claire has said so many things that philosophy has been wrestling with since...like forever. she was a natural born leader. Well said, Claire. ❤
Wow, i am greatful that u have managed to make something of your situation; and therefore come into my life, regardless of whether ur in physical form or not. U have truely inspired me and changed my perspective on a lot of things. 'incredible' would be too corny so id rather say ur a unique and individual soul, ur energy enlightens and empowers me. Thank you.
For all the awesome things Claire got to see and do., We honour you for your selfless organ donation right to the end. I am so sad you didnt regain consciousness to be able to know how much you blessed so many others. I love the fact you point out we all experience pain !!!
“I have never met anyone... who’s okay”
Hi there! I am. I wish I could meet you! :)
So yeah I know we’re rare but us happy people do exist. I’ve gotten here through a combination of genetic predisposition, preoccupation with finding (and then enjoying!) the things that interest me, and satisfaction with the things I’ve accomplished. Furthermore, the reason I’ve had the ability to pursue the things that interest me and accomplish the things I’ve accomplished is because I’ve been blessed with a wonderfully strong support system of family, friends and financial security.
I totally agree that it’s an unhealthy perspective to view life as a list of things you need to check off in order to be happy. That said, I have a bucket list and I don’t believe it has been bad for my mental health in any way. I don’t know why for sure but I’ll try to unpack it: I have a lot of practice finding the things I’m interested in, so I have hunches about new things I haven’t tried yet but think I might also enjoy. When one of those hunches is very strong, it occurs to me that I’d be mad at myself if I found myself at death’s door without having tried them. Ergo those things are on my bucket list. It’s a short list, and I intend to have knocked all of them out before middle age. And one of the keys to my bucket list items is that they’re all well within my means to experience, which is why I’d be mad at myself for not trying them.
Tl;dr: I think there are more and less healthy reasons to have a bucket list and I agree that the things you rant against here are some of the less healthy reasons to have one. I’d be curious to hear if you agree with me that my motives are less problematic than the ones you described :)
i 100% agree to you. thanks for sharing your opinion/story :)
rikavanderhofstad aw you’re too kind, thanks for hearing me out I know it was a bit of a long comment
oh i dont care if its a long or short comment. if i wanna read it i read it haha
you seem like such a sweet soul! thank you for sharing!
love this claire was wise behyond her years and her views and concepts of life are alien to most , i fortunately understand her point of view because our lives were vastly simular. we dont have time we pray for it and are thnkful for it .
She really is a gift from god.. the fact that his gave her the chance to be able to understand more then some can or to always be positive is amazing
I didn’t know people made bucket lists for the sole purpose of making their lives feel more complete.. I thought people made them more for things they wanted to do or places they wanted to go to add extra adventure.. because as you said most people don’t get to travel for free.. I see your point though! I will feel complete when I have a family and raise my children to be kind& gentle humans and when I am able to go to bed knowing I did something positive on this world& made a tiny tiny impact of some sort. Life is a wild wild ride
michellebelle There's better goals than having a family. Do things before you settle down
Miracle axb didn’t say that was my main goal in life.. lol I said I will feel complete when I have kids and a loving family :) of course I’ll do things before then, I don’t plan on having kids until I’m at least 30 - 32 ish
Miracle axb Don’t tell her what is a, “better,” goal for her. Wtf? Having a family is the most fulfilling, amazing thing you can do. You sound like Claire in this video. Stop assuming that what’s important to you should be important to everyone.
Kelly Forester Okay 1 being a house wife is fun right? And 2 you didn't watch the video or read the comment
Miracle axb thank you!!! Lol
1. im in love
2. PREACH
3. i need more rants like this in my life
Claire, if/when you die, I want you to know that we all love you and we will all miss you. But until that time, the fandom will stay strong & we love you.
Garrett Collier love your comment and I totally agree with it but there’s no “if” when it comes to dying. She’s going to die along with everyone else. Everyone dies. She’s just unfortunately dying a lot quicker than most people. Hope this didn’t offend you or anything. Just trying to inform! ❤️
i really want her to realize she will live after she is gone. these videos are so amazing and she is sharing her wisdom with all the world. i’m so glad the internet stays forever because this deserves to be shown forever. she’s an amazing human and has learned so much
Garrett Collier agree 100%
Garrett Collier lol- sorry to laugh amidst the real tragedy of having such limited time with someone as awesome as Claire but I think even she would laugh at the “if” phrasing lol, like, for ALL of us- it’s not a matter of “if” it’s a matter of when. 😜 the beauty of Claire sharing her experience -lol is her own sense of humor which is great- and also bc she has the ability to infect others with whatever special essence she has...to get us to lighten up a little bit about these heavy subjects we all tend to freak out about bc.... I guess by necessity she’s had to learn how to cope with everything and maintain a sense of humor that tends toward the morbid side, again by necessity I presume but it all makes her a fascinating character obviously we all love her :) maybe even more so bc we all know her time might be more limited??? But this is also how I wish we would always treat each other- bc even without forewarning we never really know WHEN (not IF) any one of us could pass on. It’s kind of sad to me that this is actually what it takes- sometimes- for people to actually muster up this level of respect, to cherish others and treat them with the same level of compassion you might treat someone who’s time or life you know is extremely limited. Because life IS relatively limited for all of us. And Claire is right- its never totally free of pain or suffering either so, we all have our own burdens, lol “fundamental quality of being miserable in life” lol.... see this is why I love her? Hilarious. She really has a way of illuminating the paradoxical in life :) she’s definitely a philosopher.
loved the coment she will live after she's gone, i truly love the way you see life, no matter how much time you got, the way you live inspired me so much, you help me to see my life in a whole different way, thank you for being here taking the time to talk about everything in your very own way it will live in my memory forever.
I remember watching this video when it was first uploaded and being so inspired by it. Your whole view on life and happiness touched so many lives and I still cannot believe you are gone- it just isn't fair. Your message of hope and happiness will live on ❤
You articulated it well, I understood what you meant, leading a fulfilling and meaningful life is hard work.
I found your comparison of using drugs and chasing bucketlist style experiences that will make you "happy" very insightful.
I wish we lived near each other. We have so many opinions that are the same and I'm also fascinated by death. I too have an incurable disease and spend too much time in hospitals.
Salty, Sweet, And Southern me too I have multiple and would love to meet her
Salty, Sweet, And Southern Same here!
Thank you so much for this video... It gave me a very powerful insight about life. Wish you the best! ❤️
I am chronic but dont have a terminal dx. However as my symptoms get worse I can do less and less. So I made up a 'wheelchair' list. I conquered fears and obstacles I would not have done otherwise. For me it was not shallow or meaningless. I am proud of myself for tackling those things. It is not about 'doing life better', its just something personal.
She just keeps on inspiring me, even if she's no longer with us. Every time I come back to this video I understand something new. I truly hope that she's up in heaven with God and his angels.
For so many of us the bucket list is the infusion of hope that gets us through another shift, another leaking toilet, the check engine light while the baby is having asthma attack and the sitter just gave you notice. You are right about just living life with as much integrity and joy of the moment and this message has helped me in this dark time of some funky exhausting neuromuscular disease that hit at 60. You have encouraged me to just push the envelope even if it isn't a guaranteed success cause doing the "right thing" for so long and denying my writing and storytelling no longer makes sense. I watched this video while spinning alpaca fibers into yarn and grooving on the way thin fibers grab onto one another and become this strong useful,soft warm yarn and the whole process is very simple but requires persistence. You and alpaca fibers are great teachers.
Literally giving me stella from five feet apart vibe🥺🖤
Bucket lists seem to be a judgement of dying well. And no one dies well, only timely or not.
And swimming with dolphins does not make you die in a better vain. But if you truly dream about swimming with dolphins, then it shouldn't take Dying to force you to do it, you are worthy of those brilliant experiences in the heights of living, not just because you are Dying
sarahwithstars 6
Barb Johnstone do it soon because you are worthy of your best living today! Xxxxx
My dad died when I was three. He was in hawaii at the time working with a special needs organization that basically provided everyone to have proper care while they got to enjoy a super fun vacation. He died of a heart attack unexpectedly in the bathroom. The last thing he did was swim with dolphins, a lifelong dream.
Sarahwithstars-people do die Well.There are healthy people who die every second.I think people who know they are dieing are lucky in a way,because they can try to resolve any issues with others- and they are given the chance to prepare for it in any way the see fit.
way to miss the point. If you spent your time and money doing your life goals when you were not dying you'd end up jobless and homeless and stuff lol. People still achieve their goals before a terminal diagnosis it's just not as urgent. What a truly stupid comment. Lots of people don't even think about goals because they just assume they will do everything naturally when they have time, assuming they have time which they then find out they dont.
We love you so much ♡♡♡ stay strong for us
Agree
Forever grateful I found her in high school,she changed my outlook on life forever🔥❤now years later with her gone I still watch her videos and she always reminds me why I should live proudly🦋💘 RIP beautiful