My beautiful baby boy is xxy :) Remember Luke everyone is different, unique, and beautiful in all different kinds of ways. I like to think that my baby was just made extra extra sweet. Congrats on your 5k’s! I couldn’t have done that at 11! Keep up the great work.
Luke, I was not aware. Your mom and dad must be so proud of how well you are growing up. Y’ all have been in my prayers, since the first time I meet you at AWANAS.
I also have Klinefelter Syndrome and people keep harassing and insulting me for it, nowerdays I'm used to it but especially If you also have Asperger people completly missinterpret me and just kick me out of the youth society, it really hurts from far inside. I don't wish anyone to have that bad experience with their condition!!
Im exactly like you.. Im 56 and found out about KS when I was in my mid-20s.. I only found out about having Aspergers in the last year or so.. Its hard when people dont understand where youre coming from.. Im still coming to terms with who I am.. Memories pop up from time to time and make me think "so that's why I did that" I thought it was just having the KS thing and not the Aspie thing..
Hallo nama saya sasa, saya berasal dari Indonesia dan , bahasa inggris saya kurang bagus, 3 bulan lalu saya baru melahirkan, dan anak saya di di diagnosa klinefelter syndrom , selain itu anak saya juga mengalimi banyak kelainan, yaitu atresia esofargus, kelainan jantung bawaan PDA, VSD dan Asimetris pada wajah sehingga saat menanggis bibir nya miring kekanan , telinga sebelah kiri tidak sempurna dan di lehernya ada tyroid , saya mencoba mencari pengalaman orang orang dengan penyakit yang sama seperti anak saya, untuk tau .. apa yang harus saya lakukan
i have low testosterone because I've used testosterone when i was a teenager for bodybuilding reason and my body can't make testosterone anymore we are similar
yes if you do thigh exercises daily for like a month or two you would definitely see a big difference based on my personal experience , but then you got to deal with your butt fat which is very difficult to deal with that
No, no creo que debas preocuparte. Necesita ver a un endocrinólogo para que pueda recibir el tratamiento adecuado cuando lo necesite. Mantén la cabeza erguida y extiende la conciencia positiva.
Joao Gomes, Eu sugiro que inicie o tratamento cedo, meus pais tentaram fingir que eu era normal, até o corpo deformar por completo aos 16, não tinha nenhum interesse por relacionamento com garotas e garotos, fui ao médico e ele disse que o resultado obtido com tratamento injetável seria pequeno e que eu deveria ter começado aos 10 anos durante a fase de crescimento dos ossos. Hoje tenho osteoporose e artrose reumatóide, meu corpo inteiro dói o tempo todo, demorou muito para perdoar os meus pais, não compreendi está decisão, eles me disseram que estavam aguardando a hora certa para me dizer, que eu deveria escolher o que eu queria ser e que Deus me fez desse jeito, esse tipo de tolice, mas já era tarde com ossos fracos e articulações frouxas, assexuado e depressivo. Então leve ele ao médico para que ele possa explicar exatamente do que se trata e como ele deve proceder e sempre apoie ele, faça ele se sentir bem, seu filho é especial de verdade, não é por causa de uma condição genética.
Wilson, eu acho que tenho essa síndrome, mas n apresento todos os sintomas. Estou com 17 anos, sou alto (1,86), acho q tenho ginecomastia, possuo poucos pelos corporais (teve gente que chegou a perguntar se eu me depilo) e sou relativamente magro. Porém, algum dos sintomas que eu li na internet eu n possuo. Tipo, eu nunca tive problemas de aprendizado (pelo contrário, tenho muita facilidade com praticamente qualquer matéria, principalmente com matemática e física), tenho facilidade para falar (sempre tive) e meus testículos são normais. Por conta disso eu fiquei confuso, vc acha que eu possuo a síndrome? Devo procurar um médico? Se sim, qual médico?
Luke is such an inspiration to so many kids who have 47xxy and Klinefelter syndrome.
My beautiful baby boy is xxy :) Remember Luke everyone is different, unique, and beautiful in all different kinds of ways. I like to think that my baby was just made extra extra sweet. Congrats on your 5k’s! I couldn’t have done that at 11! Keep up the great work.
He is a real champ. 5k is no joke. Even 100meters.2 5Ks? Awesome
This is good therapy. Good luck to everyone and keep positive thoughts. God bless
Luke, I was not aware. Your mom and dad must be so proud of how well you are growing up. Y’ all have been in my prayers, since the first time I meet you at AWANAS.
Your so brave! Kudos to you for not letting this syndrome define you! God bless you
Thank you
Luke, You're awesome!!! thanks for sharing your story.
Thank you!
Keep up the good work to both of you. Luke, I felt like I was watching myself as a child. Well done.
I also have Klinefelter Syndrome and people keep harassing and insulting me for it, nowerdays I'm used to it but especially If you also have Asperger people completly missinterpret me and just kick me out of the youth society, it really hurts from far inside. I don't wish anyone to have that bad experience with their condition!!
Im exactly like you.. Im 56 and found out about KS when I was in my mid-20s.. I only found out about having Aspergers in the last year or so.. Its hard when people dont understand where youre coming from.. Im still coming to terms with who I am.. Memories pop up from time to time and make me think "so that's why I did that" I thought it was just having the KS thing and not the Aspie thing..
Hugs dear. Be courageous and stand up for yourself. Don't let people bully you. You are beautiful, capable and kind.
You are a great man. Thanks for helping others.
Hello, Luke, you're great. RyanThanks for sharing the stories.
Thank you. More coming soon.
Good on yah luke keep up the good work , good job Ryan
Luke reminded me of when I was 11 and growing up but I didn’t know I had ks until I was 16
im 16 and its just a week that i found out about it
Great job guys , god bless you 👍🏻👍🏻👍🏻
Fantastic video guys , well done ! From uk ....
Thanks for this video!!!
Hallo nama saya sasa, saya berasal dari Indonesia dan , bahasa inggris saya kurang bagus, 3 bulan lalu saya baru melahirkan, dan anak saya di di diagnosa klinefelter syndrom , selain itu anak saya juga mengalimi banyak kelainan, yaitu atresia esofargus, kelainan jantung bawaan PDA, VSD dan Asimetris pada wajah sehingga saat menanggis bibir nya miring kekanan , telinga sebelah kiri tidak sempurna dan di lehernya ada tyroid , saya mencoba mencari pengalaman orang orang dengan penyakit yang sama seperti anak saya, untuk tau .. apa yang harus saya lakukan
Great Job Luke!!!
Jose Ferreira sabe alguma coisa sobre xxy
i have low testosterone because I've used testosterone when i was a teenager for bodybuilding reason and my body can't make testosterone anymore
we are similar
Nabil Nabil really ? So you need to be on replacement ?
I'm going to watch tour videos more offten
Thanks you!
I don't know how to handle with my XXY
should I go to the gym to make my thighs look normal? they are huge or would it make it worse
No idea bud, depends on your build
yes if you do thigh exercises daily for like a month or two you would definitely see a big difference based on my personal experience , but then you got to deal with your butt fat which is very difficult to deal with that
Nice video
How did you find out you had kf
My mom found out in utero. You can read my story here. www.livingwithxxy.com
so wonderful beautiful video friend i love it see and a cute guy wonderful
You are so kind
@@LivingwithXXY thank you you to my best friend have you instagram or facebook or whatsapp?
Is havaing these genes all that disruptive to a person
Ola o meu filho e um klineferter achas que me devo preocupar
No, no creo que debas preocuparte. Necesita ver a un endocrinólogo para que pueda recibir el tratamiento adecuado cuando lo necesite. Mantén la cabeza erguida y extiende la conciencia positiva.
Living with XXY ele ja anda a ser seguido o k me preocupa mais e na fase adulta ele ainda so tem 5 anos i nao sei cumo lhe eide contar
Joao Gomes, Eu sugiro que inicie o tratamento cedo, meus pais tentaram fingir que eu era normal, até o corpo deformar por completo aos 16, não tinha nenhum interesse por relacionamento com garotas e garotos, fui ao médico e ele disse que o resultado obtido com tratamento injetável seria pequeno e que eu deveria ter começado aos 10 anos durante a fase de crescimento dos ossos. Hoje tenho osteoporose e artrose reumatóide, meu corpo inteiro dói o tempo todo, demorou muito para perdoar os meus pais, não compreendi está decisão, eles me disseram que estavam aguardando a hora certa para me dizer, que eu deveria escolher o que eu queria ser e que Deus me fez desse jeito, esse tipo de tolice, mas já era tarde com ossos fracos e articulações frouxas, assexuado e depressivo. Então leve ele ao médico para que ele possa explicar exatamente do que se trata e como ele deve proceder e sempre apoie ele, faça ele se sentir bem, seu filho é especial de verdade, não é por causa de uma condição genética.
Wilson, eu acho que tenho essa síndrome, mas n apresento todos os sintomas. Estou com 17 anos, sou alto (1,86), acho q tenho ginecomastia, possuo poucos pelos corporais (teve gente que chegou a perguntar se eu me depilo) e sou relativamente magro. Porém, algum dos sintomas que eu li na internet eu n possuo. Tipo, eu nunca tive problemas de aprendizado (pelo contrário, tenho muita facilidade com praticamente qualquer matéria, principalmente com matemática e física), tenho facilidade para falar (sempre tive) e meus testículos são normais. Por conta disso eu fiquei confuso, vc acha que eu possuo a síndrome? Devo procurar um médico? Se sim, qual médico?
Só mais uma dúvida. Essa dificuldade em ler, escrever e falar é algo que surge e se desenvolve em algum período da vida ou vc já nasce com isso?