So well described, thank you. The worst is the look of doubt in people's eyes, when several years after a TBI, you tell them the symptoms have not gone away entirely by far, and you are still struggling
I’m crying. Thankyou for articulating what I’m often unable to. Even when I manage to get the words right, the other person almost immediately forgets what I have said, because they can’t see it. Four years of grief, loss, and anger. Chronic fatigue, pain, mobility issues, can’t work, and difficult as living with it is, I’m still expected to manage myself, and others response to it, esp w people I was once close to. It is very lonely here. Blessings to you and all who are living with this ❤
My son had a massive accident . He had sheering,frontsl.lobe removal, paralysis,,eye damage,speech ...an. guess what...NO SSI?? his head swelled so big that he didn't have a nose,,slits for eyes.an holes for ears... he gets angry..has paranoia tendencies..yet Social security has been denied..WHAT THE HELL! last Christmas he attempted suicide because he isnt working due to his paralysis coming back... ughh. It breaks my heart for my son .
I feel for you and for him. It is clear to me that I can share what I think is wisdom however each of us has our own struggles and what advice I could give may not be worth the time to read it. For me, i had lived a mostly full life prior to my TBI. So, not being employable is not a disadvantage for me. Not that I am rich, heck no, just not something that -i- need to stress over. If he has to struggle with bills and resource drains, that will be a huge thing for him to distress over. For me, my wife handles the finances freeing me of any mental struggles over such matters. I can focus on simpler things while she manages complicated matters. I try no to be a burden upon her but I'm not a quiet partner when something upsets me as well. That oversensatized thing. I can only suggest that freeing him of as many worries and distractions are possible. Help him when he tries to relearn these things but also remind him that in the beginning he can not go as far as he might need to or think he can. All things need practice to perfect and that means spending the time to get up to the points of things changing.
I read we are economic burden. No one really understands living life is a constant burden for us. No on is capable of understanding our lives have been destroyed. Sometimes death is better than suffering with the true burden aka being alive.
Thank you so much! ❤
....and so much more......
So well described, thank you. The worst is the look of doubt in people's eyes, when several years after a TBI, you tell them the symptoms have not gone away entirely by far, and you are still struggling
I’m crying. Thankyou for articulating what I’m often unable to. Even when I manage to get the words right, the other person almost immediately forgets what I have said, because they can’t see it. Four years of grief, loss, and anger.
Chronic fatigue, pain, mobility issues, can’t work, and difficult as living with it is, I’m still expected to manage myself, and others response to it, esp w people I was once close to. It is very lonely here.
Blessings to you and all who are living with this ❤
This is all so true. TBI survivors understand it, others just don’t get it!
We love your videos!!! We share them in our TBI facebook group. THAAAANK YOU for being an advocate for us.
My son had a massive accident . He had sheering,frontsl.lobe removal, paralysis,,eye damage,speech ...an. guess what...NO SSI?? his head swelled so big that he didn't have a nose,,slits for eyes.an holes for ears... he gets angry..has paranoia tendencies..yet Social security has been denied..WHAT THE HELL! last Christmas he attempted suicide because he isnt working due to his paralysis coming back... ughh. It breaks my heart for my son .
I feel for you and for him. It is clear to me that I can share what I think is wisdom however each of us has our own struggles and what advice I could give may not be worth the time to read it. For me, i had lived a mostly full life prior to my TBI. So, not being employable is not a disadvantage for me. Not that I am rich, heck no, just not something that -i- need to stress over. If he has to struggle with bills and resource drains, that will be a huge thing for him to distress over.
For me, my wife handles the finances freeing me of any mental struggles over such matters. I can focus on simpler things while she manages complicated matters. I try no to be a burden upon her but I'm not a quiet partner when something upsets me as well. That oversensatized thing.
I can only suggest that freeing him of as many worries and distractions are possible. Help him when he tries to relearn these things but also remind him that in the beginning he can not go as far as he might need to or think he can. All things need practice to perfect and that means spending the time to get up to the points of things changing.
I'm 32 years into recovery of a TBI. I know this all too well.
So very powerful and spot on. Thank you. ♥
Is mild concoction be healed
I read we are economic burden. No one really understands living life is a constant burden for us. No on is capable of understanding our lives have been destroyed. Sometimes death is better than suffering with the true burden aka being alive.