TBI It is one of the worst things to experience with the constant pain etc. When you go from a GPA of just under 4.0, and suddenly.. you are compared to a middle schooler with less than average perception ... is extremely hard, especially when you are working towards getting your degree.... then you lose your job, then you can't pay or understand your courses so you have to forfeit it, and any independence you have left is gone because you need someone with you everywhere you go because you can't comprehend or remember what you are doing. it has been 3 years... working on 4 years now dealing with it and I am still fighting to get help/insurance/SSD/lawyers etc. All because of, "You look fine, there's nothing visually wrong with you" "I don't know what is wrong with you", "Sorry I can't help you". It seems if you don't look disabled, no one wants to help you..
Yes, I have experienced almost every thing you have described. I think there should be a tbi wallet card, a disability wallet card. Im so sorry, youve been discriminated against, just like myself and Im sure others
I can definitely relate... Post TBI I attempted and failed at several careers -( Special Education Teacher,Car Salesman,911 Radio Dispatcher)... I FINALLY received SSDI-( Social Security Disability Income ) after 15 years,4 appeals and 3 attorneys...
I'm going on year 5 almost 6 I had 2 TBI's in same 6 month period As well i feel they look at Me and think your looking great 👍 Inside I'm barely hanging in Worst part is the doctors have no idea or just seem not to care I have told them that i have ran out of fake smiles 😃 It's tough I have just started to talk and search the subject trying to figure out something I'll figure that out next 🤔 Stay safe brother stay strong
I suffered a serious TBI in 2015 and was told repeatedly that I needed to "accept" it. I refused and it took me a few years to finally accept it. However now I have move passed acceptance to embracing the new me. I firmly believe you must fight through your injury until you have reached the point of acceptance but its just as important to move pass that to "embracing" the new you....prayers to all TBI suffers and their families.
@@ILearoy It varies widely depending on the TBI severity. They’re generally categorized as being mild or severe. The effects can also vary widely. Some people experience headaches for example, another example is loss of vision. Sometimes in mild cases but oftentimes in severe cases, the victim of the TBI can have a personality change. In caregiving I most often noticed increase in impulsivity, but it can be a more broad personality change. Another common side effect is being forgetful, because your brain is what remembers things of course.
I had a traumatic brain injury when I was 8 years old. You would meet me on the street and never even suspect it. I tell people about my story and they do not believe me. I was in a coma for two weeks, when I woke up I was in a wheel chair for the next couple months. Then I learned how to walk, talk, eat, breathe, I counted every step I took, every words I said, syllables, everything, now I'm sane. They said I said should be dead.Not only have I overcame my traumatic brain injury, I have exceeded every obstacles they thought I would never be able to reach. DO NOT LET THIS HOLD YOU BACK. Move forward and challenge yourself, be determined, set your goals, aim further.
I posted a video of me, if you look it up diffuse axonal injury recover . you would never even think that I had one. I do get frequent migraines and memory loss, but sometimes i do not know if that is age or the injury lol
Hey Zachary Johnson my name is Faith B I have TBI technical brain injury wen I was little. Your store got to me just want I need to here! I just wanted to find more people who a tbi can do more and don't let tbi hold you back. I need to do the same .I thank you for sharing your store just thanks Zachary Johnson :)
See the silver lining and don't worry about what people don't believe only you and God knows the truth majority of people are ignorant. You could spend a life time stressing about it. Why? it's their ignore. Seek the real truth to why your here and take action. may Allah guide you.
After surviving a severe TBI (coma for weeks) I have re-learnt all basic functions, I am now studying for an Msc. in Psychology which I juggle with two young children. I felt I had to go back and remember, I felt that the TBI part of my identity was complicated and misunderstood. I watched this and felt like part of a community again. I dont have any family support, or a partner or regular carer - so it is easy to feel really stranded - good stuff!
I've had a mild TBI even though I was in a coma for three months. I was in a motorcycle accident. April 24 in 2016 was my two year anniversary. I was going to school to be a physical therapist, but I'm just going to finish my Health and Exercise Science degree to be a pharmacist and an athletic trainer to train people in health and fitness.
What exactly do you mean, what came from my brain injury? I’m unable to walk independently and I have difficulties with speech. I’m so much better, but I’ve still got a long journey.
I hit my head against a concrete wall when I was 10, following a lengthy stay in a hospital and a permanent “harry potter” scar on my forehead I’ve always been considered weird by everyone and I have zero people social skills, I get angry and aggressive very easily, I have a tough time feeling empathy towards other people, and I am constantly frustrated and depressed. I am 27 now and I feel like everything is only getting worse, starting to have problems doing my job and have never had a single romantic relationship (other than just sex). The worst thing is I don’t think I would ever be able to kill myself so I am doomed to suffer, amazing!
I am 40 now, and a very similar experience pretty much at the same age and with a brick wall. I also played sports and was very active child and hit my head hard many times; so many that I actively try to remember each encounter with a head injury. I am just now starting to get the root of why I am the way I am. Everything you stated in your shared post is basically me, including relationships. Stay strong and safe my friend. One moment at a time.
I got hit in my head at 8 months old. I've had a super rough childhood. Could never keep jobs. I think I could've been accepted by social security all my life but I never did.
My experience has been that my mind and my brain are not the same thing. My mind knows what it wants to do - my brain frequently cannot do what my mind has directed and that's when the massive frustration and anger are triggered in the damaged emotional centre of my brain.
At 2:15 she says "it doesn't take very much pressure for my mind to go blank." This is my biggets obstacle in college. I'm 48 now, and just returned to college in Janurary after a 21-year recovery. I go to Purdue. It was a HUGE deal to be accepted, considering I was predicted to be in a nursing home by now. My mind will shut off half way through algebra, or in my tech class while programming a circuit board. If I can't understand a concept readily, my brain just locks up, leaving me useless for the rest of the day. It's incredibly frustrating. I'm as intelligent as I ever was, it's just hard to get it in there. lol
Thank you for this video. I had TBI about 4 months ago. That is really hard and stressful, especially for ambitious people. It’s hard to talk and find words sometimes, memory issues, so as amnesia, it’s hard to believe that it happened to me. I try to focus on the positive side, the fact that I’m alive:)
@@0700083edu hey 👋I would say that I’m doing the same as 3 years ago. Some symptoms disappeared, others appeared and getting worse. But I try to work on my mood and accept it. How’s your recovery been so far?
I can identify with so much in this video. In 1989 I suffered a concussion, fracture and internal bleeding (epidural hematoma) from a vehicle accident. They had to remove about a one inch piece of skull and pick out the Dried blood, that was after being unsuccessful with a bur hole. And I now have a piece of composite filling the larger hole. Well, I didn't really have functioning problems after that injury, I was able to keep working. Fast forward to March 2005 and I came home from a deployment, and had a lot of problems functioning. I ended up being diagnosed with TBI in November 2005 after full cognitive testing. Anyway, thanks for posting this.
Thanks for posting this! I had a severe TBI last summer and didn't know anything about my condition. I am just SO happy to be alive and after watching this, I am real thankful to be as functional as I am!
I was shot in the head. I have TBI and I'm blind in my left eye. I struggle every single day and if you don't know you'll look at me and think nothing is wrong. I'm trying to do better but every day is an intense struggle. I don't want this for anyone but knowing there are other people out there that can relate helps. To everyone. God is there for us.
I think it's possible for his old personality to return. My personality changed a great deal after my TBI, but I was able to return to the "old me" personality. But than again I am fairly young so maybe my brain healed faster...I don't know. But I really hope he does come back to his old self!
i bet its frustrating. Can you imagine being a very intelligent person and one day getting a head injury and you know you're intelligent yet your brain don't work.
+J o n a t h a n We're no longer intelligent m8. You're brain makes up your intellect, and if it's somehow damaged than it also damages your intelligence. I truly hate it, using a "complex" word in the correct context without knowing what it means. You're still able to form sentences that are completely correct but you don't even know what they mean. The feeling of solving a problem in 3/1 of the time it would normally take you. Not being able to debate with yourself, sigh.
I had a tumor on my pineal gland that blocked where spinal fluid exists your brain. I was misdiagnosed three time so I had months of pressure on my brain. During the biopsy the doctor messed up and my brain hemorrhaged and sent me to the ICU for a week. I don't remember any of it except when they had to connect the halo to my head. The cancer also wrecked my thyroid. Multiple life long side effects. That was in 1993 when I was 13. 23 years of struggling with everyday life. If you're reading this and in pain you're not alone. 8 )
Same here. “Take two aspirin and call me in the morning, drink plenty of fluids and get plenty of rest” Basically..suck it up and walk it off 5 times as well I’ve had to relearn more than once and I’m half what I once was
I have found a wide range of things a person can do at home to work thru the cognitive challenges like reading playing braingames of any kind challenge yourself. Very important stay focused, mentally relaxed. Also a lot of great stories to read. Wishing you well
Unfortunately most G.P's are just practising. You need to ask them to refer you to a neurologist. They will then direct you to the professionals who are most likely to be able to help.That is when your battles really begin. God speed mate.
I often wish that I died from the brain injury accident I had 22 years ago. You turn into a different person. Parts of my brain are gone but the doctor will not tell me that. The friend I had then was at the scene and told me he saw my brains. Doesn't matter how good you are ALWAYS wear a helmet especially when you're drinking booze and riding.
THANK YOU THANK YOU so much for this video!! I have a TBI from a motorcycle accident nearly 9 months ago. I am trying to learn how to be normal, function normal even though I can't remember most of my life prior to my accident. I don't even remember my family or kids or wife. I'm so miserable and I hate that I appear normal. People think because I look normal nothing is wrong but I don't even remember my "normal," my military history, my job as a VP of a major group of auto dealerships, or even where I live. I'm just a shell now. This video mainly helped me to realize I'm not alone in this struggle and I can find new things (I hope).
I have a mental illness and a traumatic brain injury. Life is hard. Things are getting better lately but still feel sick with headaches and difficulty thinking.
19:00 27 years after a car wreck. I went from Type A, go-getter, hyper energetic person to not being able to wake up until late in the day. Can't sleep. Getting help is impossible. Kathleen Bell, MD seems to speak from my perspective. I can't initiate activities and KNOW what needs done - just can't giddy-up. Took years to get a diagnosis.
Not sure if you'll see this. But you made a comment 3 years ago about not being motivated after your brain injury. I'm currently a full time caregiver to my fiance of 20 yrs. He has no motivation. He was a jack of all trades. A very motivated person. Now he's content with sitting infront of a t.v. all day. I was wondering if you have any advice.
@@kimberlyedmonds3035 hi Kimberly. Just checking in with you, see how you are, as well as your husband. Had a stbi twelve years ago. I was the same as your husband, a leader of people at my job before. Lost all that from my tbi. Hard enough leading myself day to day. I don't know if you are living in a city, or the country. To me and my well being, it made a difference. Went from subdivision living to the country.
I SLIPPED AND FELL ON ICE AT WORK AND BANG MY HEAD A COUPLE OF TIMES ON MY WAY TO THE GROUND AND BECAUSE THE INJURIES AREN'T NOTICEABLE TO THE NAKED EYE, EVEYONE THINKS I'M OK. I HAVE A SPEECH PROBLEM, SEVERE MIGRAINES, DIZZINESS AND WEAKNESS IN MY LIMBS.
I describe my brain injury as just bit lost at moment finding my way after all I died 26minutes hypoxia spent weeks months in coma rehab hospital learning talk walk again secret is never give up on yourself many will never yourselves never doctors said I will never talk walk again been a recovery massive discovery never ever give up sending love from headway Nottingham UK takecare xxx
Brian is so sweet, he reminds me of my son, my son is in a vegatative state with TBI, he's still in oxygen 24 hours a day to help him breath, I know my my son is aware of what's going around him just can't talk or move but when I walk in his room and I talk to him he wakes up by listening to my voice I know my son will have difficulties with his speech once he starts to recover, I know how people are going thru with TBI I'm going thru it with my son
I got knocked off my motorbike 11 months ago by a deer and hit my head. Contustion, bleeding and brain shear is what I'm told. My wife did some research afterword and was shocked to see that after gaining consciousness, with a shear I was to start therapy right away. Now I am on a 3 year wait list to see a neuropychologist. 11 months later, in a blow up of insane proportions caused by my anxiety (a new thing since the accident) she told me she had been trying to tell me for the last year that I need to find help, I disregarded and denied that I needed help beyond what I would get when I see the specialist. And this pushed her out of my life yesterday, now that I'm aware I need more help than I thought, it's a shame what it took to show me, but I am seeking it now. I can't believe the level of denial that I had, to blind me of what an ass I had become in stressful situations.
Don't blame yourself! Marriage is suppose to be for better and for worse. It's easy for her to point the finger at you as she walks. But what truly does she know about what you're dealing with? Nothing! It's easy to just blame you and walk. She simply wants the easy road, and so much for Marriage, and so easy to blame you for it. Just as much I can see she took the easy road. I can also see how she places the blame on you, points the finger at you, as if it's all your fault for why she's leaving. NO! It was all her choice to take the easy road, NOT your choice. Yeah right- and is she telling people you twisted her arm and made her do it? Please! Come on what modern feminist society programmed Bull! And the U.S. population has been eating it all up like a Turkey for far too many decades now (should mention that it has now been more a Century now since they started the whole plan), and our western societies programmed to think like it's some kind of good, positive, thing.
As a TBI survivor, I'm reminded everyday how blessed I am. I'm beyond fortunate that I can do everything I did before my injury. I used to be angry, didn't understand why this happened to me, but I see all the time that I had no real reason to be angry
TBI survivor here, twelve years ago. I can not do everything as I once did before, but I've made peace with myself over that. Just fortunate to be alive, attempt to make each day better than the last. There's no going back to correct things, it is what it is, the TBI happened, deal with it. Coming out of a coma, I didn't know who I was before the TBI, no clue. Memory wiped clean of events, and of most people. Monetarily, lost my job, my place to live, and most friends because I didn't know who they were to me. Like someone pushed the reset button for me, on me. Was in a wheelchair for six months, had to learn how to walk, talk, write. You name it I had to relearn it. But i was always positive, I'm not much for negativity. I share Toms thought here, some days can be completely frustrating, headaches are awful. But I know I could be in a much darker place, just by meeting people and seeing people worse off than me in my rehabilitation days. So that's a quick story of me. Just thought I would share that with you Bob, Tom, and Nancy. Be well all of you 😀💕🙏
"It doesn't take much pressure to make my mind go blank" hits really close to home for me, though it doesn't fall under specifically tbi, I do have a brain injury because of getting encephaliti as a child, after around 10 years I'm finally starting to accept it and the long term effects of it, these videos help me a lot
hi--i'm having a brain aureurism clamped on june 9th. i am very afraid. i worry--i have my teenage kids but noone that really understands what is about to happen--they are like-- you'll be fine--i don't say anything, don't want to worry them--being alone is hard. i live on disability after 20+ years as a nurse. i dont know how your supposed to live on less than 1000/month. please pray for me--thanks, kathy
The angriest and most frustrated TBI survivors I've met were very high functioning before the injury. They kept saying they were going back to the same job, even though that was not true. Realistic goals are extremely important.
So true I wish i would have died. I don’t care what others think. This my living hell. For over a decade and a half. I have ben begging god to take me home. Tired of ime doctors lying saying i am fine. Paid professional whores. So i have had more brain problems due to seizures. I just lay in bed with my dog. I was told i am not productive in society i am a burden. So just let me go.......
disagree.......you must have false expectations and keep trying to get better. The day will come when you realize that that is it but until then never stop trying to get better, never.
I have a mild TBI from an auto accident, I was hit my a person who was DUI. Anyway that was three years ago. Initially I had some improvement during the first year. After that I seem to have reached a plateau where things have been the same for two years. This video showed me exactly what I going on, gave me language to explain how I feel and gave me new understanding of things that I could not understand. I am in therapy now and from this video I can now understand what my therapist is doing.
@@aarongarcia1101 ive met some friends whom have been down this road and raced pro dirt bikes which has helped a lot. its been super hard with nobody really understanding what im going through.. especcialu my gf since I foret everything, depression, its just hard. I cant imagine anyone doing this alone.. thats who I really feel for.
I had a TBI when i was 18 months old and I had a hard childhood from it. Never connected with my parents much or friends growing up because of my chaotic behavior. I never understood why i did the things i did as a kid. No rhyme or reason to being such an angry and crazy kid. I am 19 now and things are getting better but sometimes i wonder what my life would be like if i hadn’t had my fall. I get so angry :( and i always regret it.
Severe Penetrating TBI Diffuse Axonal Injury Subdural Hematoma Looking at me you would be hard pressed to see any of these things having happened to me, but every day life and depression are so much harder. I’ve been trying to find a way to feel useful again, but it’s been hard
Talk with someone, talk to somebody. I have a psychologist, and it helps talking with them. Because of my tbi, friends and family aren't around much for me to talk with, and they don't understand what im saying anyway
@@heatherhartman6474 I'm far better than what the pros originally told my family and I also came top of my business management class and while being given an award the following year my teacher told me and the crowd if the insurer had of let me go back that year that I could have easily taught the highest degree!!
@@heatherhartman6474 I'm far better than what the pros originally told my family and I also came top of my business management class and while being given an award the following year my teacher told me and the crowd if the insurer had of let me go back that year that I could have easily taught the highest degree!!
@@Hitajdonahelai I'm far better than what the pros originally told my family and I also came top of my business management class and while being given an award the following year my teacher told me and the crowd if the insurer had of let me go back that year that I could have easily taught the highest degree!!
8 years ago I was in a motorcycle wreck I went down at 80 mph head first no helmet Total death of right front lobe the difficulty I deal with is unbelievable I remember what I was like before the wreak compared to how I am now is night and day I really breKs me some days
Well yesterday marked the 10-year anniversary from the accident the biggest thing that I deal with on a day-to-day basis is Nero fatigue or neurological fatigue. I also suffer from a consistent headache that hasn't gone away in 10 years and some other minor executive dysfunction issues. other than that I'm fairly well capable independent have a good job I have friends try not to self isolate other than that I'm doing about as good as could be expected thank you all for asking and the kind words I appreciate it!
13yrs ago, I suffered a TBI, and today, I deal with Dycristic seizures. I was struck in the left side of my head. This injury happened after I had already a temporal lobectomy for epilepsy 20yrs earlier. I now have a VNS implant. My activities while at home on disability is building wood toys for hospitalized children.
Been wondering if there's programs that would help when my uncle got in a car accident it was like Hospital rehabilitation center and he was very violent nobody could handle him he got way better and I feel like all the medication that he's on make some sleep a lot yeah I just need help and directions on where to go what to do ...
We know how you feel. I would do anything do snap out of "it." I don't actually feel awake and alert anymore. I just feel... kind of "high" all the time.
Thanks for sharing and gives me inspiration! I had a bike accident and have TBI... Still searching for more understandings and knowledge online. Waking up everyday and fighting hard to survive thru the day is my weakness...
This brings more problems than people realize, and what is the hardest is the lack of mercy from those who are closest to us. I hear "I admire you", and it helps. I would love to hear this from my immediate family. It's wearisome to get in trouble, although no one means it to come off that way. Education softens what is said to our loved ones. I feel lonely, but I know that is part of the emotional aspect of TBI. I learn or do something new.... and it's not looked at as a great milestone! 13 years. There is no way to explain, no way to mimic, we just rely on kindness and understanding. Family is our greatest love, and when they aren't around, it's very difficult. One gets tired of answering "why do you do this, or that, or this way or that way." I would, if I only I only knew how!:)
Developing 3d modelling skills and learning to draw really helped me heal from my brain injuries. Also eating 8 half boiled eggs everyday for months really help me recover. It's not the same brain but it's functional for the most part! :p
I finally starting drawing and I can do stick figures. It was interesting to see how I saw myself and the emotions that came out of the pictures. It's good to keep so that there can been seen an improvement. It helped me heal emotionally.
Cathy Turner it's amazing really. It's like the brain is speaking to itself in very positive ways that normal language can't comprehend. Also I'm now aiming for 12 eggs a day! :D
3d and other drawings that aren't too personal.... if you want, I'd be interested to see. I'll see if I can get my "masterpiece" on here! :) I know about the eggs, but why 1/2 boiled? I'm interested in that, although I think I'd gag! Just checking in to see how things are going.
I was involved in a bad motorcycle accident April 4th 2020. I have severe TBI. I can't drive or work and have right side weakness. I'm fortunate to survive the crash, I was in a coma for 5 days and in hospital for 6 weeks. I want to drive again and get back to work so everything is normal. I DON'T WISH TBI on ANYBODY, this SUCKS
@@bruceradz well things got better, then basically I hit a "plateau" not getting any worse or better. I can drive again but not work. I just turned 39 and on long-term disability. You're having migraines, I didn't get that.. I hope meds can help with that.. my goal is to go back to work someday, being "retired" so young is SOOO BORING
@@macwiller2105 my tbi was twelve years ago, motor vehicle accident, rollover. Was in a coma two weeks. Rehab eight months after my hospital stay. Two years later, tried going back to work on my old job that lasted four months. Went to more rehab, got another job, lasted one month. I can't work forty hours a week. Tried half that, nope, failed that. Now, I volunteer when I can, gets me out of the house and gives me something to look forward to. My advice is to try volunteering first, get you into a schedule of "work". Many places love volunteer workers. I volunteered at my local animal shelters, and, two different hospitals in my area. Friends didn't understand my hospital volunteering, but I spent so much time in them as a patient, it felt comfortable to me haha
@@bruceradz well from where I was to now, I'm improved alot, my right side is still and probably always will be messed up.. I still get the odd dizzy spell but no where near as bad as before.. biggest problem is when I woke up from the coma I pulled the tubes out of my throat and wrecked my vocal cords.. so when I talk it's "breathy" and that drives me crazy when trying to order something and people are like "what?"
I worked in this for about 2 years and I learned so much in challenging the patients and see life a different way I really Thank Centre for Nuero skills for teaching me a lot.
I got jumped by 5 guys. It it was in 2012 I was knocked out from a punch behind my ear then had my head stomped so hard I had 7 Basel skull fractures i woke up to a man sitting on my chest holding me up by my shirt and repeatedly punching my face. I suffer headaches and constant tinnitus,I received a broken nose and eye socket. My c spine is now crooked and causes me all sorts of nerve issues. I was only unconscious for 1 minute, so it is deemed a mild tbi. I had no follow-up on leaving the hospital, and the insurance company says I'm fine, so they're not paying. Not long after that, I had a major back surgery with multiple fusions. This has left me with chronic nerve pain and a lack of mobility that has severely affected my perceptions of strength and safety and i am now unable to do the things that gave me joy. I feel constantly vulnerable to another assault, I'm convinced another blow to the head would kill me. This has left me unable to provide for my family and with a feeling that I can't protect them either. This leaves me feeling weak and pathetic, useless just a burden. I suffer from PTSD and all the other associated disorders like depression anxiety and chronic pain. social anxiety is debilitating and I'm never at ease . Frustration, anger, and hopelessness are my companions now. Since my head injury, I have pulled away from my family and friends and isolated myself. My partner of ten years, ten years of support and love, the only person who gave me a reason has just left me and taken my kids, my home and any safety I felt I had. She can no longer accept my constant anger, frustration and the physical abuse. I lash out and relive my trauma at any slightly aroused emotion. I'm alone and scared it hardly seems worth it anymore. I hurt the ones I love and have no control over my life or myself. My life has no joy left and I wish it had of killed me sometimes.
I'm really sorry to hear all of this, and I'm sorry that it happened to you. I want you to know that I read all of what you have to say and that I am rooting for you. I want you to still be alive and I am glad you are. I don't know you and I don't need to. It's better that you are here. I would rather have you here than not. I don't have anything to offer you and I wish I did, I've never experienced anything like what you've described. All I have is the knowledge, at least for my own life, that things can change for the better, but I don't want to preach that at you, I have a feeling you've heard enough sermons from people who know your story. Please stay strong, please keep coming back to the world every morning, please keep fighting to have a better life than you did yesterday.
Post TBI I attempted several carrers and failed due to my TBI-( Special Education Teacher,Car Salesman,911 Radio Dispatcher)... This led to increased Depression,Anxiety and Suicidal thoughts... I now have a somewhat decent quality of life through SSDI-( Social Security Disability Income),my part time job driving for a Car Dealership and my Model Car Building hobby... ( I am having issues with the model car building hobby and hoping a med adjustment can help me continue the model building and control my intense Anger and Depression brought on by my TBI)..
I feel guilty as so many people are not the cause of there brain trauma, where im to blame for mine i was in a realy bad place and it seemed to be the only way out it was actually a suicide attempt by drug overdose I stoped breathing for a while and was found unresponsive and the lack of oxygen to my brain caused hypoxia a type of brain injury but to everyone else I look and seem normal but I seize up and go all stiff and fall, my body completely locks up especially if I'm in crowded places or im about to be attacked wich means I cant defend myself or my family it worries me alot I just dont feel safe anywhere. There must be somthing I can do
Yes, there is, stop feeling guilty about it, or you can take my guilt from a self-induced car accident, my fault, and I'll take your feeling that life wasn't worth living
I'm VERY thankful to be alive after my motorcycle accident but having a T.B.I. definatly is causing me to experance a whole new life, a very challenging one! The largest and most obvious symptom from my bain injury is my complete loss of balance, loss of the ability to WALK! I'm thinking that now that I'm able to is to start learning about T.B.I.s I'll learn about diffent healing tatics and how to retrain our big badly bruised bloody brains! I'm hoping to be a positive influence and offer support to people that are showingtheir love and support to their loved one who's got a B.I.! It's a whole new life for me, it's given me the excuse to work on carring through with my life-long dream, helping others live a more fullfilling life! I'll start by learning about other brain injured peoples dreams (present and future)! I've had to redevelop my beliefs, opinions and my atitude towards eveything! To cut my new religion short I now realize and fully belive in the power of LOVE, CARE and UNDERSTANDING! I like feeling good and I've noticed how others pick-up on ones vibe and it effects the way that things happen so it's my goal to always feel good and be supportive, intrested and curious about others ideas! Of course I won't be supportive of ALL ideas especially ones that cause other life harm but I'm supportive of ALL ideas that show support for the less privaledged people! With my new belief system I'm hoping to be an example of how you're able to carry-on living and how positivity is the key to fining happiness no matter how injured, life-stye change limitations your injuries have on you! LOVE, HEALTH and UNDERSTANDING are what my new self is focussing on!
One thing I haven't noticed mentioned is the permanent, complete loss of the sense of smell. I have to have gas sensing alarm which can be purchased at the bigger hardware stores. I can't smell that "burning plastic smell" which precedes a lot of fires where smoke is not visible. Living with other people raises the paranoia of someone else accidentally starting a fire on their way out the door, or when they go to bed. Also the fear of my delayed response time to save others in the house.
Comments listed above by Tyler Butz who is my grandson and I am on his computer My name is Wayne Shaw. My concussions, mood swings memory lose had a lot too do with a divorce years ago and and had a lot to do with ending many good relationships over years. They also contributed to some significant business loses over the years. I was remeniscing with an old teammate centre recently and he remember an incident where I was playing guard [i was a starting linebacker for 12 years]& pulled the wrong way to collide with my brother Cliff, He started to call us dumb &dumber for a while which upset me very much. I showed him my Sask Education record of my Grade 12 marks which in those days [1956]were used all over the province and sent to Regina for uniform marking. I still have the record and I had average marks of 91.4% which led the class of 40 some students at Notre Dame College.and told my teammate if he could show me his records for Gr. 12 marks and they were better than mine he could call us dumb & dumber. He never showed his marks and never called us that again. It is funny odd & irritating that I can remember things 40 or 50 some years ago but can't remember many things that happened today or yesterday. There are other things that bother me about the concussion but memory lose, mood swings, migrane headaches are the worst and I suppose memory lose the worst since I had such a good memory at 17 when I could read a book or listen to a lecture and remember 91.4 % of what I read or heard. Now I would be lucky to remember 5 -10% of what I read or hear. There are many other things I would like to say about this but can't remember right now, maybe later Wayne Shaw. ps. I would be glad to answer anyones question on this subject that I could answer.
Hi Mr. Shaw, I'm the same way. I can clearly remember things from when I was young and struggle with things that happen currently. Your comment was posted a number of years ago and I was curious to know if you had found any ways of managing your situation that I could use as well. I'm hoping to return to college and get a good job but need to find ways of dealing with my current state. If you have any advice I would really appreciate it. Sincerely, May P.S. Say hi to your grandson Tyler for me. He's very sweet to let you use his account.
In 2021 I was hit head on by a military transport truck heading home from work. My battery was pushed through my face at the nose. It broke a 4 by 6 inch price of my skull off and embedded a sliver of steel in the brain also. Most of the tope part of my brain was a wreck. I couldn't understand what was work s long time I was told I broke 68 bones and was waiting to die but I did not feel nothing wrong with me outside the physical. I was told If never heal enough to ever walk age. Which to me was nuts it became my goal to walk to the point I could work I locked in on being able to walking gained 100 pounds in a nursing home with not help up put the bed it was to big a risk. I got home 16, months after and was hell bent on being able to walk cause that ment work. I was sure if I could do that I would be good. In my push to walk I did not notice the brain was not the same. I have now walked 166 miles since April 2033. My body is read and I have a new way of seeing the world but you can tell there is something off talking to me. I'm just to happy and asure of everything and I don't attempt to hid it it's just who I am. I am able to do just bout everything I believe but something in the way I hand socal interaction is holding me back I just noticed this brain is not ready but I'm going to give my son every second of my life cause he has went through all this with me. Until April 2023 when him mom picked him up and has kept him from me he is my rehab buddy at almost 4 we worked all day everyday. Since I was in the nursing home she moved on and there is no custody agreement sice we was not married this loss if my son is out of my hands and the added stress is way worse. They said it would take 3 years to help and that is 9 months away but this stress is trying to kill me and it is harder then it has to be on him also
Also if you forget anything I tell myself it's not worth remembering giving up isn't a option keep going keep positive hidden disability people don't see that I tell myself they have the problem not you we are survivors sent back for a purpose live for today all amazing x
Stay strong keep going doing amazing things bravo well done stay safe stay positive its time all in good time you got this sending love from headway Nottingham UK we are survivors fighters sending you all luck love good luck were the winners xxx
I can't even whatch this.. these poor victims I would would know why....its hell on earth And so many people have clue....multiple rear end car accidents within weeks Struggle everyday
My issue is insomnia and mood changes, I can't complete an application to find work. Everything seems like a mountain. Reworking my resume seems like a huge task.
I got off pretty good just forgot 6 months of my life and now I have some trouble with remembering but I learn pretty good and can maintain my life, excel at my job but yea I do struggle with remembering some things
I got beat up by three thugs they had me on the ground punching me in the head and when they were done they started kicking me in the head I was in a coma for two weeks it's been 4 years now I'm still going to the doctor's
I got jumped by 5 guys. It it was in 2012 I was knocked out from a punch behind my ear then had my head stomped so hard I had 7 Basel skull fractures i woke up to a man sitting on my chest holding me up by my shirt and repeatedly punching my face. I received a broken nose and eye socket. My c spine is now crooked and causes me all sorts of nerve issues. I was only unconscious for 1 minute, so it is deemed a mild tbi. I had no follow-up on leaving the hospital, and the insurance company says I'm fine, so they're not paying. Not long after that, I had a major back surgery with multiple fusions. This has left me with chronic nerve pain and a lack of mobility that has severely affected my perceptions of strength and safety I feel constantly vulnerable to another assault, I'm convinced another blow to the head would kill me. This has left me unable to provide for my family and with a feeling that I can't protect them either. This leaves me feeling weak and pathetic, useless just a burden. I suffer from PTSD and all the other associated disorders like depression anxiety and chronic pain. Frustration, anger, and hopelessness are my companions now. Since my head injury, I have pulled away from my family and friends and isolated myself. My partner of ten years, ten years of support and love, the only person who gave me a reason has just left me and taken my kids my home and any safety I felt I had. She can no longer accept my anger frustration and physical abuse when I relive my trauma at any slightly aroused emotion. I'm alone and scared it hardly seems worth it anymore. I hurt the ones I love and have no control over my life or myself. My life has no joy left.
I have improved a lot over the past few years but my memory and executive function still are not great. My communication has improved significantly! For a while I couldn’t communicate very well. I struggled with reading and writing. At times I was able to write something down but then later I couldn’t read it. Or I thought I was writing something down but later it was a jumbled mess of letters that had no meaning and sometimes you couldn’t even figure what letter it was supposed to be. And I couldn’t remember! There were times when I was told to put my shoes on because we had to leave soon for my appointment. I would put one shoe on and sit up to catch my breath and then I wasn’t sure if I was putting my shoes on or taking them off. It was overwhelmingly stressful and at times I felt like I wish I would have died. And I didn’t understand why everyone who supposedly loves me was yelling at me all the time and seemingly hated me! And then someone said to me one day you know everything isn’t always about you! And I realized that because I was unable to be who I was before that I was not able to be supportive like I once was, and I was not as self sufficient as I used to be, not only has my world flipped upside down but so has everyone else’s lives! And sometimes it is difficult to see that when you are struggling to get a grip on yourself. I have improved immensely and I have apologized to everyone in my family because I said that even though it was beyond my control and I don’t remember a lot, I also realize that it has been a major stress on you and that you have to take care of yourself first because it’s not fair for anyone to have to devote all their time and attention to me. A major factor in my recovery is that I was finally diagnosed with temporal lobe seizures which really affected my perception of reality and my memory. With medication I have improved so much I feel like a completely different person. I have throughout this journey felt like I have morphed into different versions of myself. It’s hard to explain. I’m not the me I used to be and I’m not quite sure who I am now but I feel like I’m becoming someone stronger than I ever imagined I could be! And it’s not a straight line! It’s a dance and your never sure when the music is going to change but slowly you learn how to shift the dance as you go
I can relate with the feeling you wish you were dead.. but if I was dead I would miss out on the things I do that help my TBI issues improve such as model car building and playing Scrabble on my phone...
My dad had a car accident april of 2011. He has a traumatic brain injury an has a different personality. Im only 17 and I need my dad back.. Please help?
No. I had many concussions. None of them had any effect until I drove my face into a concrete barrier at 20mph. That was the nail in the coffin for me. When it becomes a problem, you will know. Believe me.
Yes . You will know there is a huge difference but sometimes it does not completely wreck your vocabulary so you can still comunicates and therefore you are not properly diagnosed.
if you think you can or think you cant, your probably right, I'm a TBI survivor, I have recovered from left sided hemiplegia, and apraxia of speech. I got hit by a car when I was 3 in 1994, neuroscience was in its infancy back then so I was told that I could recover up until the age of about 6 when the critical period ends. That's basically a load of crap, because after i read a book called "the brain that changes it's self" after reading that book i Started to recover again in my mid-late 20s. My philosophy is to take everything you ever hear from anyone with a pinch of salt and to listen to what your brain and body are telling you rather than a bunch of idiot who know what they want people to believe
@@Maggot1077 that's great, happy to hear that you are doing well considering. Hope you have some help. You must have been playing sports, to injure your brain four different times. Me, was a rollover car accident, and just one time
I also think TBI being such an invisible disability makes it more difficult to get SSDI and or public assistance because it is,suck an invisible disability.... After 10 years of unsuccessfully pursuing careers after my TBI it took me 15 years ...through 4 appeals... And 3 attorneys to FINALLY get approved for SSDI!!
@@RoadRunnergarage8570 well, at least you got it eventually. I forgot to mention, they initially denied mine, first time around. I think they do that with everybody. Yes, had to get a lawyer myself too. But she was very knowledgeable. It was definitely a learning experience for me. Congratulations to you tho Tom, such a shame you had to go thru all of that
By the way, I wish the government gad a formal wallet card that states we are on SSDI, just have something to show people easily. I used to carry the piece of paper that I got from Social Security stating I was getting SSDI, but I haven't done that in a long time. I had a friend even tell me that I couldn't collect Medicare, I wasn't old enough yet, tried explaining to him my situation many times haha
and his story show the importance of family. When something bad happens to you (specifically) can loose everything but not good family. We can often especially in this modern world constantly explained by science reduce ourselves to the material a brain injury thus fundamentally changing us even in the deep personal and emotional level, but having family reminds us that we are intrinsically valuable and offers a reminder that we are not simply material but also a soul.
I dont know if I have had a tbi l, I don't rmeber geting hit on the head. But I do have symptoms that are similar to what they described, supposedly from Lymes disease. And hearing this made me cry. Because unlike people with tbi who can have diagnosis and support and medication under insurance etc, I don't have all the things I need and have been barely surviving. The support part especially made me cry. My mom sent me this because she recently is going through this. And I bet she was thinking I needed to understand what it's like, for empathy, but instead I cried because I know all too well what going through so many of those symptoms are like and worse I had no help for it and am still going through them. While it's gotten better it isn't better by much and I feel quite alone in this. And it's pointless to explain to my family because they never hear me when I try to explain. They jsut don't understand. It's not liek I have any proof about how similar it is. She thinks "it's worse, and you have no idea how worse etc" but she has no idea what it's been like for me the last 10 years. And she never will no matter how much I try to explain. I gave up. So I cried. And prayed it will get better one day and I'll have the support I deserve from someone better than my family one day. 💔
We are sorry you are experiencing that stress with no support. Changes in cognitive processes and neurofatigue or brain fog can be caused by many things. If you know it is Lyme Disease, there are online resources and a support group: www.lymedisease.org/lyme-disease-support-groups/
You may want to look up narcissistic personality disorder. It sounds like you make have some people in your family who have it. No shade intended, just trying to say you're not alone and if you're feeling like this it's for a reason.
@mayhill6210 I'm aware of that diagnosis, I took a lot of psychology classes before I couldn't continue college due to my disabilities, health, and being homeless at the time. So im aware of what it entails. But that's actually not the case for my family, tho I know a family friend that it may apply too. Thanks tho.
@brainline thank you. I'm not actually sure the first diagnosis of lymes was correct. So I woudlnt say I agree. I am gonna get a through check in the future to consider all possibilities. But thanks I appreciate it
@@gabek1120 I'm very happy to hear that's not the case. I hope I didn't offend you. I wouldn't have felt right if I didn't say anything but that not being the case for most of your family makes me very happy. My best wishes to you!
Very insightful. Thank you for sharing this, especially to those of us who have just reluctantly joined the TBI community. Brain fungus is a hard one to avoid let me tell you.
My boyfriend was in a motorcycle accident while racing in pikes peak this June (just over a month ago) He crashed, injuring his neck and head. Contusions and bleeding. He was born with a Chiari malformation which aggravated his condition. I don't know which parts of the brain he has damaged as being on the other side of the world and only 19 years old, everyone has decided I am not worth telling these sorts of things. He seems to have little trouble communicating besides slower response times. I've not had a lot of time to talk to him yet as, like I said, I'm in a different country so I don't know how else he has been affected. All I know is he has constant, debilitating migraines that painkillers can barely even affect. I wish there were something I could do to help him. At least he's finally coming back to Scotland this week, but even then I'll be completely helpless. I just want him to be happy and healthy and not in pain. It's scary thinking he might never fully have that.
+Watermelon Patrick he's 22. Since writing this he's shown a lot of improvement. The chronic pain is still there as to be expected from such a recent injury but mentally he's his same old self, thank god. His injuries were to the front and back of his brain & his scans showed he had the malformation just as a coincidence. Luckily it was caught and treated - the treatment of which also brought blood clots at the back of his brain to his surgeon's notice which could potentially have saved his life - had they burst before discovery he'd likely have died. He got very lucky. I'm sorry to hear you've suffered this injury and I hope your recovery is going well.
Watermelon Patrick It's hard to tell this early on, as some things could be related to medication, and some things might go away. His memory and communication skills appear to be unharmed, and his motor skills are improving, though he is still quickly exhausted and sluggish. His sex drive is diminshed significantly and he is in constant, chronic pain (which is probably why he's never in the mood lol) but the pain has been projected to subside by around christmas.
Be patient and don't add to much pressure to his daily struggle. If you can stick with him, I had a motorcycle accident too, severe TBI, broken back, neck injuries, eye damage, severed optical nerve, torn and severed nerves in my spine, lost sense of smell, collapsed lungs from blood, brain fluid and spinal fluid filling them, over 70 facial fractures and 40 skull fractures, and other broken bones and had was in Vietnam where a police truck picked me up off the road after I had hit a large tree head first which exploded my helmut, folded my handle bars forward from the force of my grip as I plunged forward over the bike as it folded in half. The police threw me in the truck and took me to a local terrible hospital where I was given no first aid, nor cleaned up, treated in any way and was left to die on a metal table in the morgue with several other dead bodies (25 I was told later) where I lay unconscious for the next 48 hours till I was found by staff and friend who fought with the hospital to move me out into a private space which ended up being a small room that was normally used for storage! Still with no medical care and only a iv stuck in my arm improperly that later a nurse from a private clinic replaced once my friends remembered I told them if they needed medical care to go to the SOS international clinic and never go to a Vietnamese hospital. I was taken there and air evacuated to Bangkok within 24 hours of being moved to a highly respected hospital that many foreigner from around the world go to for surgeries of all kinds, or I would have definitely died. Even after several 25 and 28 hour surgeries they still expected me to die but I fought and a month later came out of my coma. My girl friend had come to Bangkok and was there when I woke, my first words were I loved her and still wanted to marry her, which I don't remember or even know how I could have those as my first words. I was a mess and couldn't really walk, barely speak, had lost use of my hands and was in the most excruciating pain imaginable, especially when I left the hospital without therapy due to the extreme cost which was already well over $250,000.00 which I was forced to pay as my insurance company failed to pay but having my girlfriend near kept me going until she had to leave but days later I was planning to get assistance to return to Vietnam as I had a house there since I lived there part time for business and was completely unable to travel any further. Even the hour flight nearly killed me. This was the worst experience I ever had and beyond comprehension for anyone, I wouldn't have ever understood pain like that if I hadn't experienced it, all I wanted was my girlfriend to be even near and to know she cares and to know my daughter was safe and that I'll live to take care of her. When I got to Vietnam all I wanted was for my girlfriend to come, stay with me, be close and help by being strong until I could recover. She was quite a lot younger than I which had never been a problem but I realized my situation could end up where maybe I'd loose my business and not be able to care the way I hoped for her and perhaps she worried she would have to nurse me for years and years or even to some degree for life! What ever she truly thought I'll never know but she left me a few days later. I suffered a lot but the fact she left me in a time when I was in need and almost confined to a bed for the next 4 months hurt me more than all the pain. She did try to return once she saw I was beating the injuries but the fact she left stuck in my mind even with the brain injuries which I still deal with 8 years later. She never tried to understand the TBI even when she came back and was sorry for leaving. She did love me I'm sure but she never loved me enough to understand that I had my life changed and it was going to be a on going struggle for years. If you can learn, understand and make him feel safe, secure, encourage but not obviously and give joy, warmth and show him you'll be there without having to tell him you'll help him, I hope. Your already part way by trying to learn now, but it will also depend on how he is and if he has strong feelings for you. Best of luck
Yes still, been trying to get into to see a doctor who has done a lot of work with TBI , he's in LA and works with athletes, vets, and accident victims but because I'm in Canada has been a slow process. Took some digging to find this message so I apologize for the delay. Not to active on TH-cam or any type of group discussions. From my experience it is pretty much a problem not many doctors deal with, at least with any results that help much. After a while you just learn to deal with things on your own. Guess since there isn't a expensive operation or treatment doctors can profit from and for the most part TBI victims can go about life without needing wheelchairs or special attention from government there isn't much being done. Maybe as more connection to unproductive or costs to government from work related TBI has a larger effect it can go on as the invisible injury. It kind of is a difficult one for most to recognize or even acknowledge, effects people in different ways so how can it be defined. I'm sure insurance companies would like to have a way to measure its effect on the people getting benefits and could claim that someone is recovered or healed so they could return to work or at least be cut off benifits.
TBI It is one of the worst things to experience with the constant pain etc. When you go from a GPA of just under 4.0, and suddenly.. you are compared to a middle schooler with less than average perception ... is extremely hard, especially when you are working towards getting your degree.... then you lose your job, then you can't pay or understand your courses so you have to forfeit it, and any independence you have left is gone because you need someone with you everywhere you go because you can't comprehend or remember what you are doing.
it has been 3 years... working on 4 years now dealing with it and I am still fighting to get help/insurance/SSD/lawyers etc. All because of, "You look fine, there's nothing visually wrong with you" "I don't know what is wrong with you", "Sorry I can't help you". It seems if you don't look disabled, no one wants to help you..
Yes, I have experienced almost every thing you have described. I think there should be a tbi wallet card, a disability wallet card. Im so sorry, youve been discriminated against, just like myself and Im sure others
I hope you all are doing well, how has life been
@@houstonswisha143 doing ok, wishing you are doing good as well 😀
I can definitely relate... Post TBI I attempted and failed at several careers -( Special Education Teacher,Car Salesman,911 Radio Dispatcher)... I FINALLY received SSDI-( Social Security Disability Income ) after 15 years,4 appeals and 3 attorneys...
I'm going on year 5 almost 6 I had 2 TBI's in same 6 month period
As well i feel they look at Me and think your looking great 👍
Inside I'm barely hanging in
Worst part is the doctors have no idea or just seem not to care
I have told them that i have ran out of fake smiles 😃
It's tough I have just started to talk and search the subject trying to figure out something I'll figure that out next 🤔
Stay safe brother stay strong
I suffered a serious TBI in 2015 and was told repeatedly that I needed to "accept" it. I refused and it took me a few years to finally accept it. However now I have move passed acceptance to embracing the new me. I firmly believe you must fight through your injury until you have reached the point of acceptance but its just as important to move pass that to "embracing" the new you....prayers to all TBI suffers and their families.
God Bless You Thank You
1987 for me.
@@MrJgreig72 What do you feel would be good ways in which to help someone with a TBI in a caregiving environment?
@@coolkid9967 Don't cater to them. Encourage them to do it themselves,
@@ILearoy It varies widely depending on the TBI severity. They’re generally categorized as being mild or severe.
The effects can also vary widely. Some people experience headaches for example, another example is loss of vision.
Sometimes in mild cases but oftentimes in severe cases, the victim of the TBI can have a personality change.
In caregiving I most often noticed increase in impulsivity, but it can be a more broad personality change.
Another common side effect is being forgetful, because your brain is what remembers things of course.
I had a traumatic brain injury when I was 8 years old. You would meet me on the street and never even suspect it. I tell people about my story and they do not believe me. I was in a coma for two weeks, when I woke up I was in a wheel chair for the next couple months. Then I learned how to walk, talk, eat, breathe, I counted every step I took, every words I said, syllables, everything, now I'm sane. They said I said should be dead.Not only have I overcame my traumatic brain injury, I have exceeded every obstacles they thought I would never be able to reach. DO NOT LET THIS HOLD YOU BACK. Move forward and challenge yourself, be determined, set your goals, aim further.
I have had a severe traumatic brain injury since the age of 1 1/2. my head was ran over by a car. I won't let hold me back
I posted a video of me, if you look it up diffuse axonal injury recover . you would never even think that I had one. I do get frequent migraines and memory loss, but sometimes i do not know if that is age or the injury lol
yea whatever I'm still fucking waiting
Hey Zachary Johnson my name is Faith B I have TBI technical brain injury wen I was little. Your store got to me just want I need to here!
I just wanted to find more people who a tbi can do more and don't let tbi hold you back. I need to do the same .I thank you for sharing your store just thanks Zachary Johnson :)
See the silver lining and don't worry about what people don't believe only you and God knows the truth majority of people are ignorant. You could spend a life time stressing about it. Why? it's their ignore.
Seek the real truth to why your here and take action. may Allah guide you.
I agree the worst aspect of TBI is that it is such an invisible disability...
After surviving a severe TBI (coma for weeks) I have re-learnt all basic functions, I am now studying for an Msc. in Psychology which I juggle with two young children. I felt I had to go back and remember, I felt that the TBI part of my identity was complicated and misunderstood. I watched this and felt like part of a community again. I dont have any family support, or a partner or regular carer - so it is easy to feel really stranded - good stuff!
How is it going??
I've had a mild TBI even though I was in a coma for three months. I was in a motorcycle accident. April 24 in 2016 was my two year anniversary. I was going to school to be a physical therapist, but I'm just going to finish my Health and Exercise Science degree to be a pharmacist and an athletic trainer to train people in health and fitness.
Were you wearing a helmet?
+David Suspended yes sir! Thankfully
What were your symptoms from brain injury?
What exactly do you mean, what came from my brain injury? I’m unable to walk independently and I have difficulties with speech. I’m so much better, but I’ve still got a long journey.
Oh I see.
I hit my head against a concrete wall when I was 10, following a lengthy stay in a hospital and a permanent “harry potter” scar on my forehead I’ve always been considered weird by everyone and I have zero people social skills, I get angry and aggressive very easily, I have a tough time feeling empathy towards other people, and I am constantly frustrated and depressed. I am 27 now and I feel like everything is only getting worse, starting to have problems doing my job and have never had a single romantic relationship (other than just sex). The worst thing is I don’t think I would ever be able to kill myself so I am doomed to suffer, amazing!
I am 40 now, and a very similar experience pretty much at the same age and with a brick wall. I also played sports and was very active child and hit my head hard many times; so many that I actively try to remember each encounter with a head injury. I am just now starting to get the root of why I am the way I am. Everything you stated in your shared post is basically me, including relationships. Stay strong and safe my friend. One moment at a time.
I got hit in my head at 8 months old. I've had a super rough childhood. Could never keep jobs. I think I could've been accepted by social security all my life but I never did.
I hope you are ok internet person
My experience has been that my mind and my brain are not the same thing. My mind knows what it wants to do - my brain frequently cannot do what my mind has directed and that's when the massive frustration and anger are triggered in the damaged emotional centre of my brain.
I can relate to this from my tbi
I totally relate and understand, very frustrating.
That’s a good way of putting it 💚
At 2:15 she says "it doesn't take very much pressure for my mind to go blank." This is my biggets obstacle in college. I'm 48 now, and just returned to college in Janurary after a 21-year recovery. I go to Purdue. It was a HUGE deal to be accepted, considering I was predicted to be in a nursing home by now. My mind will shut off half way through algebra, or in my tech class while programming a circuit board. If I can't understand a concept readily, my brain just locks up, leaving me useless for the rest of the day. It's incredibly frustrating. I'm as intelligent as I ever was, it's just hard to get it in there. lol
Congrats. Purdue is such a good school.
How do you do it??? I cant read one page and rember what i read?? Irs so frustrating to me.
I have hard time remembering dates and numbers.
Thank you for this video. I had TBI about 4 months ago. That is really hard and stressful, especially for ambitious people. It’s hard to talk and find words sometimes, memory issues, so as amnesia, it’s hard to believe that it happened to me. I try to focus on the positive side, the fact that I’m alive:)
I feel the same as you it has been 15 years.
Hey how u doing ? I had so many plan for my carrer and im so frustrated :(
@@0700083edu hey 👋I would say that I’m doing the same as 3 years ago. Some symptoms disappeared, others appeared and getting worse. But I try to work on my mood and accept it. How’s your recovery been so far?
I have a Brian injury
I can identify with so much in this video. In 1989 I suffered a concussion, fracture and internal bleeding (epidural hematoma) from a vehicle accident. They had to remove about a one inch piece of skull and pick out the Dried blood, that was after being unsuccessful with a bur hole. And I now have a piece of composite filling the larger hole. Well, I didn't really have functioning problems after that injury, I was able to keep working. Fast forward to March 2005 and I came home from a deployment, and had a lot of problems functioning. I ended up being diagnosed with TBI in November 2005 after full cognitive testing. Anyway, thanks for posting this.
I've had to live with Traumatic Brain Injury-(TBI) for 25 years .. The frustrations are still overwhelming....
Thanks for posting this! I had a severe TBI last summer and didn't know anything about my condition. I am just SO happy to be alive and after watching this, I am real thankful to be as functional as I am!
I was shot in the head. I have TBI and I'm blind in my left eye. I struggle every single day and if you don't know you'll look at me and think nothing is wrong. I'm trying to do better but every day is an intense struggle. I don't want this for anyone but knowing there are other people out there that can relate helps. To everyone. God is there for us.
So sorry.
I think it's possible for his old personality to return. My personality changed a great deal after my TBI, but I was able to return to the "old me" personality. But than again I am fairly young so maybe my brain healed faster...I don't know. But I really hope he does come back to his old self!
i bet its frustrating. Can you imagine being a very intelligent person and one day getting a head injury and you know you're intelligent yet your brain don't work.
15 seconds and life will never be normal again! You got it..... very frustration! If there was support around, I could handle things better.
+J o n a t h a n We're no longer intelligent m8. You're brain makes up your intellect, and if it's somehow damaged than it also damages your intelligence. I truly hate it, using a "complex" word in the correct context without knowing what it means. You're still able to form sentences that are completely correct but you don't even know what they mean. The feeling of solving a problem in 3/1 of the time it would normally take you. Not being able to debate with yourself, sigh.
I'm actually experiencing it, and it is super frustrating and depressing... These videos are extremely important.
It's incredibly frustrating. Struggling so hard.
@@JoeyMa me too
I had a tumor on my pineal gland that blocked where spinal fluid exists your brain. I was misdiagnosed three time so I had months of pressure on my brain. During the biopsy the doctor messed up and my brain hemorrhaged and sent me to the ICU for a week. I don't remember any of it except when they had to connect the halo to my head. The cancer also wrecked my thyroid. Multiple life long side effects. That was in 1993 when I was 13. 23 years of struggling with everyday life. If you're reading this and in pain you're not alone. 8 )
Super late comment but that would be a non traumatic brain injury not a traumatic brain injury.
Get better soon🙏🏾
❤
I’ve had six TBI‘s, and I’ve never had a doctor that took interest in rehabilitation even when I asked.
Same here. “Take two aspirin and call me in the morning, drink plenty of fluids and get plenty of rest”
Basically..suck it up and walk it off 5 times as well
I’ve had to relearn more than once and I’m half what I once was
I have found a wide range of things a person can do at home to work thru the cognitive challenges like reading playing braingames of any kind challenge yourself. Very important stay focused, mentally relaxed. Also a lot of great stories to read. Wishing you well
Unfortunately most G.P's are just practising. You need to ask them to refer you to a neurologist. They will then direct you to the professionals who are most likely to be able to help.That is when your battles really begin. God speed mate.
Me too.
I often wish that I died from the brain injury accident I had 22 years ago. You turn into a different person. Parts of my brain are gone but the doctor will not tell me that. The friend I had then was at the scene and told me he saw my brains. Doesn't matter how good you are ALWAYS wear a helmet especially when you're drinking booze and riding.
how terrible to go thru things like this.
Kathy Thureen take it’s slow trust
Thank you. In still struggling with family, work and long term relationships 10.5 years on but I have done lots of wonderful things.
keep on trucking!! just do your best.....
THANK YOU THANK YOU so much for this video!! I have a TBI from a motorcycle accident nearly 9 months ago. I am trying to learn how to be normal, function normal even though I can't remember most of my life prior to my accident. I don't even remember my family or kids or wife. I'm so miserable and I hate that I appear normal. People think because I look normal nothing is wrong but I don't even remember my "normal," my military history, my job as a VP of a major group of auto dealerships, or even where I live. I'm just a shell now. This video mainly helped me to realize I'm not alone in this struggle and I can find new things (I hope).
When she says "I cant trust myself to remember" thats my situation.
Yes, and when you think you remember, you combine memories thinking it was one incident when it was several different ones if that makes sense
I have a mental illness and a traumatic brain injury. Life is hard. Things are getting better lately but still feel sick with headaches and difficulty thinking.
I have a mental disability and people think I'm lazy as they can't see what the problem is. It is hurtful and upsetting.
19:00 27 years after a car wreck. I went from Type A, go-getter, hyper energetic person to not being able to wake up until late in the day. Can't sleep. Getting help is impossible. Kathleen Bell, MD seems to speak from my perspective. I can't initiate activities and KNOW what needs done - just can't giddy-up. Took years to get a diagnosis.
Not sure if you'll see this. But you made a comment 3 years ago about not being motivated after your brain injury. I'm currently a full time caregiver to my fiance of 20 yrs. He has no motivation. He was a jack of all trades. A very motivated person. Now he's content with sitting infront of a t.v. all day. I was wondering if you have any advice.
@@kimberlyedmonds3035 hi Kimberly. Just checking in with you, see how you are, as well as your husband. Had a stbi twelve years ago. I was the same as your husband, a leader of people at my job before. Lost all that from my tbi. Hard enough leading myself day to day. I don't know if you are living in a city, or the country. To me and my well being, it made a difference. Went from subdivision living to the country.
I SLIPPED AND FELL ON ICE AT WORK AND BANG MY HEAD A COUPLE OF TIMES ON MY WAY TO THE GROUND AND BECAUSE THE INJURIES AREN'T NOTICEABLE TO THE NAKED EYE, EVEYONE THINKS I'M OK. I HAVE A SPEECH PROBLEM, SEVERE MIGRAINES, DIZZINESS AND WEAKNESS IN MY LIMBS.
I describe my brain injury as just bit lost at moment finding my way after all I died 26minutes hypoxia spent weeks months in coma rehab hospital learning talk walk again secret is never give up on yourself many will never yourselves never doctors said I will never talk walk again been a recovery massive discovery never ever give up sending love from headway Nottingham UK takecare xxx
I've had my brain injury since 1999, no day is the same
Yes, same here. Variety is the spice of life, bull....
2010 here
Brian is so sweet, he reminds me of my son, my son is in a vegatative state with TBI, he's still in oxygen 24 hours a day to help him breath, I know my my son is aware of what's going around him just can't talk or move but when I walk in his room and I talk to him he wakes up by listening to my voice I know my son will have difficulties with his speech once he starts to recover, I know how people are going thru with TBI I'm going thru it with my son
Shirley Salas Good luck and best wishes to you and your son in his recovery.
He's hanging on laura Lopez bueno
Stay strong Shirley
+Shirley Salas so is he still alive or did he turn into a vegetable?
+Guille Ducati He is in a vegatative state but aware of my voice when I talk to him and alert
I have had multiple injuries and im lucky im still alive. If i told my story people would think it is made up.
I could rite a book.
I needed this video this morning. Thank you all for sharing
If only people with out disabilities new how it feels
i have mild brain damage i find it hard to think sometimes.
You said that very well.
@@LouMontana-wc7nr what?
I got knocked off my motorbike 11 months ago by a deer and hit my head. Contustion, bleeding and brain shear is what I'm told. My wife did some research afterword and was shocked to see that after gaining consciousness, with a shear I was to start therapy right away. Now I am on a 3 year wait list to see a neuropychologist. 11 months later, in a blow up of insane proportions caused by my anxiety (a new thing since the accident) she told me she had been trying to tell me for the last year that I need to find help, I disregarded and denied that I needed help beyond what I would get when I see the specialist. And this pushed her out of my life yesterday, now that I'm aware I need more help than I thought, it's a shame what it took to show me, but I am seeking it now. I can't believe the level of denial that I had, to blind me of what an ass I had become in stressful situations.
Don't blame yourself!
Marriage is suppose to be for better and for worse.
It's easy for her to point the finger at you as she walks. But what truly does she know about what you're dealing with? Nothing! It's easy to just blame you and walk. She simply wants the easy road, and so much for Marriage, and so easy to blame you for it.
Just as much I can see she took the easy road. I can also see how she places the blame on you, points the finger at you, as if it's all your fault for why she's leaving.
NO! It was all her choice to take the easy road, NOT your choice.
Yeah right- and is she telling people you twisted her arm and made her do it?
Please! Come on what modern feminist society programmed Bull!
And the U.S. population has been eating it all up like a Turkey for far too many decades now (should mention that it has now been more a Century now since they started the whole plan), and our western societies programmed to think like it's some kind of good, positive, thing.
You can start to accept your new self but others don't,even your close family that's a real bummer
As a TBI survivor, I'm reminded everyday how blessed I am. I'm beyond fortunate that I can do everything I did before my injury. I used to be angry, didn't understand why this happened to me, but I see all the time that I had no real reason to be angry
I can relate.. some days are extremely frustrating but other days I feel blessed for what I have and actually can do ..
Same here
TBI survivor here, twelve years ago. I can not do everything as I once did before, but I've made peace with myself over that. Just fortunate to be alive, attempt to make each day better than the last. There's no going back to correct things, it is what it is, the TBI happened, deal with it. Coming out of a coma, I didn't know who I was before the TBI, no clue. Memory wiped clean of events, and of most people. Monetarily, lost my job, my place to live, and most friends because I didn't know who they were to me. Like someone pushed the reset button for me, on me. Was in a wheelchair for six months, had to learn how to walk, talk, write. You name it I had to relearn it. But i was always positive, I'm not much for negativity. I share Toms thought here, some days can be completely frustrating, headaches are awful. But I know I could be in a much darker place, just by meeting people and seeing people worse off than me in my rehabilitation days. So that's a quick story of me. Just thought I would share that with you Bob, Tom, and Nancy. Be well all of you 😀💕🙏
@@bruceradz 🙏🙏🙏🙏
@@Nancy-ow9wy thank you Nancy 💜 🦋 🙏 for you
"It doesn't take much pressure to make my mind go blank" hits really close to home for me, though it doesn't fall under specifically tbi, I do have a brain injury because of getting encephaliti as a child, after around 10 years I'm finally starting to accept it and the long term effects of it, these videos help me a lot
Be helping and supporting each other, we give opportunities for joy and a dignified life.
Bless you 😃
hi--i'm having a brain aureurism clamped on june 9th. i am very afraid. i worry--i have my teenage kids but noone that really understands what is about to happen--they are like-- you'll be fine--i don't say anything, don't want to worry them--being alone is hard. i live on disability after 20+ years as a nurse. i dont know how your supposed to live on less than 1000/month. please pray for me--thanks, kathy
I want to give him the biggest healing hug. I know how he feels.
Are you recovering from a tbi Tanya?
The angriest and most frustrated TBI survivors I've met were very high functioning before the injury. They kept saying they were going back to the same job, even though that was not true. Realistic goals are extremely important.
So true I wish i would have died. I don’t care what others think. This my living hell. For over a decade and a half. I have ben begging god to take me home. Tired of ime doctors lying saying i am fine. Paid professional whores. So i have had more brain problems due to seizures. I just lay in bed with my dog. I was told i am not productive in society i am a burden. So just let me go.......
@@doemydear9651 no you're not a burden. We all love you ❤️
disagree.......you must have false expectations and keep trying to get better. The day will come when you realize that that is it but until then never stop trying to get better, never.
I have a mild TBI from an auto accident, I was hit my a person who was DUI. Anyway that was three years ago. Initially I had some improvement during the first year. After that I seem to have reached a plateau where things have been the same for two years.
This video showed me exactly what I going on, gave me language to explain how I feel and gave me new understanding of things that I could not understand. I am in therapy now and from this video I can now understand what my therapist is doing.
I've had incidents at former employers that show how how my executive functioning is affected by my TBI...
Living with TBI is a nightmare.
Agreed
Exactly!!
yes it is.. 1 yr and 1 month and its having a toll on my life, relationships etc
@@nagelmotox284 Its tough, the first year I was running in circles. I hope you have support.
@@aarongarcia1101 ive met some friends whom have been down this road and raced pro dirt bikes which has helped a lot. its been super hard with nobody really understanding what im going through.. especcialu my gf since I foret everything, depression, its just hard. I cant imagine anyone doing this alone.. thats who I really feel for.
I had a TBI when i was 18 months old and I had a hard childhood from it. Never connected with my parents much or friends growing up because of my chaotic behavior. I never understood why i did the things i did as a kid. No rhyme or reason to being such an angry and crazy kid. I am 19 now and things are getting better but sometimes i wonder what my life would be like if i hadn’t had my fall. I get so angry :( and i always regret it.
Severe Penetrating TBI
Diffuse Axonal Injury
Subdural Hematoma
Looking at me you would be hard pressed to see any of these things having happened to me, but every day life and depression are so much harder. I’ve been trying to find a way to feel useful again, but it’s been hard
Talk with someone, talk to somebody. I have a psychologist, and it helps talking with them. Because of my tbi, friends and family aren't around much for me to talk with, and they don't understand what im saying anyway
I've also survived my brain injury but im coming out of the other side now!!!
How are you doing now? Lotsa peace & blessings! 🙏
Are you ok
@@heatherhartman6474 I'm far better than what the pros originally told my family and I also came top of my business management class and while being given an award the following year my teacher told me and the crowd if the insurer had of let me go back that year that I could have easily taught the highest degree!!
@@heatherhartman6474 I'm far better than what the pros originally told my family and I also came top of my business management class and while being given an award the following year my teacher told me and the crowd if the insurer had of let me go back that year that I could have easily taught the highest degree!!
@@Hitajdonahelai I'm far better than what the pros originally told my family and I also came top of my business management class and while being given an award the following year my teacher told me and the crowd if the insurer had of let me go back that year that I could have easily taught the highest degree!!
8 years ago I was in a motorcycle wreck I went down at 80 mph head first no helmet
Total death of right front lobe the difficulty I deal with is unbelievable I remember what I was like before the wreak compared to how I am now is night and day I really breKs me some days
Sending you positive vibes brotha
Don't worry you'll heal eventually
Same here
How are you doing now??
Well yesterday marked the 10-year anniversary from the accident the biggest thing that I deal with on a day-to-day basis is Nero fatigue or neurological fatigue. I also suffer from a consistent headache that hasn't gone away in 10 years and some other minor executive dysfunction issues. other than that I'm fairly well capable independent have a good job I have friends try not to self isolate other than that I'm doing about as good as could be expected thank you all for asking and the kind words I appreciate it!
I hope your healing Mikey and will recover to 100%. Hang in there, I'll keep you in my thoughts. Teresa
13yrs ago, I suffered a TBI, and today, I deal with Dycristic seizures. I was struck in the left side of my head. This injury happened after I had already a temporal lobectomy for epilepsy 20yrs earlier. I now have a VNS implant. My activities while at home on disability is building wood toys for hospitalized children.
this makes me not wanna do boxing anymore
Wonderful uplifting video based on the reality of life after TBI.. enjoyed watching it!
Been wondering if there's programs that would help when my uncle got in a car accident it was like Hospital rehabilitation center and he was very violent nobody could handle him he got way better and I feel like all the medication that he's on make some sleep a lot yeah I just need help and directions on where to go what to do ...
i wish i could snap out of this -- i can't get out to this for even one second. its been almost 3 year and nothing feels the same. i hate being awake
+vst129 would you be willing to explain a little more about what happened?
The knockout game look it up if you don't know
I too hate being awake now :( thinking it's hard it hurts I'm so slow
We know how you feel. I would do anything do snap out of "it."
I don't actually feel awake and alert anymore. I just feel... kind of "high" all the time.
You said it so perfectly! Thank you. I am now at 2 years 8 months.
Thanks for sharing and gives me inspiration! I had a bike accident and have TBI... Still searching for more understandings and knowledge online. Waking up everyday and fighting hard to survive thru the day is my weakness...
This brings more problems than people realize, and what is the hardest is the lack of mercy from those who are closest to us. I hear "I admire you", and it helps. I would love to hear this from my immediate family. It's wearisome to get in trouble, although no one means it to come off that way. Education softens what is said to our loved ones. I feel lonely, but I know that is part of the emotional aspect of TBI. I learn or do something new.... and it's not looked at as a great milestone! 13 years. There is no way to explain, no way to mimic, we just rely on kindness and understanding. Family is our greatest love, and when they aren't around, it's very difficult. One gets tired of answering "why do you do this, or that, or this way or that way." I would, if I only I only knew how!:)
Developing 3d modelling skills and learning to draw really helped me heal from my brain injuries. Also eating 8 half boiled eggs everyday for months really help me recover. It's not the same brain but it's functional for the most part! :p
I finally starting drawing and I can do stick figures. It was interesting to see how I saw myself and the emotions that came out of the pictures. It's good to keep so that there can been seen an improvement. It helped me heal emotionally.
Cathy Turner it's amazing really. It's like the brain is speaking to itself in very positive ways that normal language can't comprehend. Also I'm now aiming for 12 eggs a day! :D
Let me know how the eggs go. lol. I hope you don't start squawking! :)
3d and other drawings that aren't too personal.... if you want, I'd be interested to see. I'll see if I can get my "masterpiece" on here! :) I know about the eggs, but why 1/2 boiled? I'm interested in that, although I think I'd gag! Just checking in to see how things are going.
I was involved in a bad motorcycle accident April 4th 2020. I have severe TBI. I can't drive or work and have right side weakness. I'm fortunate to survive the crash, I was in a coma for 5 days and in hospital for 6 weeks. I want to drive again and get back to work so everything is normal. I DON'T WISH TBI on ANYBODY, this SUCKS
Hope you are doing better Mac, it's been a year. I get migraines now from my tbi
@@bruceradz well things got better, then basically I hit a "plateau" not getting any worse or better. I can drive again but not work. I just turned 39 and on long-term disability. You're having migraines, I didn't get that.. I hope meds can help with that.. my goal is to go back to work someday, being "retired" so young is SOOO BORING
@@macwiller2105 my tbi was twelve years ago, motor vehicle accident, rollover. Was in a coma two weeks. Rehab eight months after my hospital stay. Two years later, tried going back to work on my old job that lasted four months. Went to more rehab, got another job, lasted one month. I can't work forty hours a week. Tried half that, nope, failed that. Now, I volunteer when I can, gets me out of the house and gives me something to look forward to. My advice is to try volunteering first, get you into a schedule of "work". Many places love volunteer workers. I volunteered at my local animal shelters, and, two different hospitals in my area. Friends didn't understand my hospital volunteering, but I spent so much time in them as a patient, it felt comfortable to me haha
I have twenty years on you now, but I was only 47 when I got my TBI. Yes, I am not retired either, but now at my age I can say that lol
@@bruceradz well from where I was to now, I'm improved alot, my right side is still and probably always will be messed up.. I still get the odd dizzy spell but no where near as bad as before.. biggest problem is when I woke up from the coma I pulled the tubes out of my throat and wrecked my vocal cords.. so when I talk it's "breathy" and that drives me crazy when trying to order something and people are like "what?"
I can totally relate to the man in the video. i remember scooting around my house in a wheelchair, bumping holes in the hallway
How are you doing now Tara? I was in a wheelchair for six months after my tbi, then, relearned to walk again. Still have my moments
I worked in this for about 2 years and I learned so much in challenging the patients and see life a different way I really Thank Centre for Nuero skills for teaching me a lot.
I also was fortunate to go to center for Neuro skills. it’s a great place.
I agree it is best for us TBIers to take things one day at a time....
I got jumped by 5 guys. It it was in 2012 I was knocked out from a punch behind my ear then had my head stomped so hard I had 7 Basel skull fractures i woke up to a man sitting on my chest holding me up by my shirt and repeatedly punching my face. I suffer headaches and constant tinnitus,I received a broken nose and eye socket. My c spine is now crooked and causes me all sorts of nerve issues. I was only unconscious for 1 minute, so it is deemed a mild tbi. I had no follow-up on leaving the hospital, and the insurance company says I'm fine, so they're not paying. Not long after that, I had a major back surgery with multiple fusions. This has left me with chronic nerve pain and a lack of mobility that has severely affected my perceptions of strength and safety and i am now unable to do the things that gave me joy. I feel constantly vulnerable to another assault, I'm convinced another blow to the head would kill me. This has left me unable to provide for my family and with a feeling that I can't protect them either. This leaves me feeling weak and pathetic, useless just a burden. I suffer from PTSD and all the other associated disorders like depression anxiety and chronic pain. social anxiety is debilitating and I'm never at ease . Frustration, anger, and hopelessness are my companions now. Since my head injury, I have pulled away from my family and friends and isolated myself. My partner of ten years, ten years of support and love, the only person who gave me a reason has just left me and taken my kids, my home and any safety I felt I had. She can no longer accept my constant anger, frustration and the physical abuse. I lash out and relive my trauma at any slightly aroused emotion. I'm alone and scared it hardly seems worth it anymore. I hurt the ones I love and have no control over my life or myself.
My life has no joy left and I wish it had of killed me sometimes.
I'm really sorry to hear all of this, and I'm sorry that it happened to you. I want you to know that I read all of what you have to say and that I am rooting for you. I want you to still be alive and I am glad you are. I don't know you and I don't need to. It's better that you are here. I would rather have you here than not.
I don't have anything to offer you and I wish I did, I've never experienced anything like what you've described. All I have is the knowledge, at least for my own life, that things can change for the better, but I don't want to preach that at you, I have a feeling you've heard enough sermons from people who know your story.
Please stay strong, please keep coming back to the world every morning, please keep fighting to have a better life than you did yesterday.
Post TBI I attempted several carrers and failed due to my TBI-( Special Education Teacher,Car Salesman,911 Radio Dispatcher)... This led to increased Depression,Anxiety and Suicidal thoughts... I now have a somewhat decent quality of life through SSDI-( Social Security Disability Income),my part time job driving for a Car Dealership and my Model Car Building hobby... ( I am having issues with the model car building hobby and hoping a med adjustment can help me continue the model building and control my intense Anger and Depression brought on by my TBI)..
This is for youDad! I love you!
Inspiration is fine and it brings in donations but truth is what we survivors need.
I can relate to a lot of this since I've had two TBIs-( 1 from childhood traumas and 1 from a bad motor vehicle accident..)
I feel guilty as so many people are not the cause of there brain trauma, where im to blame for mine i was in a realy bad place and it seemed to be the only way out it was actually a suicide attempt by drug overdose I stoped breathing for a while and was found unresponsive and the lack of oxygen to my brain caused hypoxia a type of brain injury but to everyone else I look and seem normal but I seize up and go all stiff and fall, my body completely locks up especially if I'm in crowded places or im about to be attacked wich means I cant defend myself or my family it worries me alot I just dont feel safe anywhere. There must be somthing I can do
Yes, there is, stop feeling guilty about it, or you can take my guilt from a self-induced car accident, my fault, and I'll take your feeling that life wasn't worth living
I'm VERY thankful to be alive after my motorcycle accident but having a T.B.I. definatly is causing me to experance a whole new life, a very challenging one! The largest and most obvious symptom from my bain injury is my complete loss of balance, loss of the ability to WALK! I'm thinking that now that I'm able to is to start learning about T.B.I.s I'll learn about diffent healing tatics and how to retrain our big badly bruised bloody brains! I'm hoping to be a positive influence and offer support to people that are showingtheir love and support to their loved one who's got a B.I.! It's a whole new life for me, it's given me the excuse to work on carring through with my life-long dream, helping others live a more fullfilling life! I'll start by learning about other brain injured peoples dreams (present and future)! I've had to redevelop my beliefs, opinions and my atitude towards eveything! To cut my new religion short I now realize and fully belive in the power of LOVE, CARE and UNDERSTANDING! I like feeling good and I've noticed how others pick-up on ones vibe and it effects the way that things happen so it's my goal to always feel good and be supportive, intrested and curious about others ideas! Of course I won't be supportive of ALL ideas especially ones that cause other life harm but I'm supportive of ALL ideas that show support for the less privaledged people! With my new belief system I'm hoping to be an example of how you're able to carry-on living and how positivity is the key to fining happiness no matter how injured, life-stye change limitations your injuries have on you! LOVE, HEALTH and UNDERSTANDING are what my new self is focussing on!
One thing I haven't noticed mentioned is the permanent, complete loss of the sense of smell. I have to have gas sensing alarm which can be purchased at the bigger hardware stores. I can't smell that "burning plastic smell" which precedes a lot of fires where smoke is not visible. Living with other people raises the paranoia of someone else accidentally starting a fire on their way out the door, or when they go to bed. Also the fear of my delayed response time to save others in the house.
Its been twelve years since my stbi still can't smell or taste a thing...
Comments listed above by Tyler Butz who is my grandson and I am on his computer My name is Wayne Shaw. My concussions, mood swings memory lose had a lot too do with a divorce years ago and and had a lot to do with ending many good relationships over years. They also contributed to some significant business loses over the years. I was remeniscing with an old teammate centre recently and he remember an incident where I was playing guard [i was a starting linebacker for 12 years]& pulled the wrong way to collide with my brother Cliff, He started to call us dumb &dumber for a while which upset me very much. I showed him my Sask Education record of my Grade 12 marks which in those days [1956]were used all over the province and sent to Regina for uniform marking. I still have the record and I had average marks of 91.4% which led the class of 40 some students at Notre Dame College.and told my teammate if he could show me his records for Gr. 12 marks and they were better than mine he could call us dumb & dumber. He never showed his marks and never called us that again.
It is funny odd & irritating that I can remember things 40 or 50 some years ago but can't remember many things that happened today or yesterday. There are other things that bother me about the concussion but memory lose, mood swings, migrane headaches are the worst and I suppose memory lose the worst since I had such a good memory at 17 when I could read a book or listen to a lecture and remember 91.4 % of what I read or heard. Now I would be lucky to remember 5 -10% of what I read or hear. There are many other things I would like to say about this but can't remember right now, maybe later Wayne Shaw. ps. I would be glad to answer anyones question on this subject that I could answer.
Hi Mr. Shaw,
I'm the same way. I can clearly remember things from when I was young and struggle with things that happen currently. Your comment was posted a number of years ago and I was curious to know if you had found any ways of managing your situation that I could use as well. I'm hoping to return to college and get a good job but need to find ways of dealing with my current state. If you have any advice I would really appreciate it.
Sincerely,
May
P.S. Say hi to your grandson Tyler for me. He's very sweet to let you use his account.
In 2021 I was hit head on by a military transport truck heading home from work. My battery was pushed through my face at the nose. It broke a 4 by 6 inch price of my skull off and embedded a sliver of steel in the brain also. Most of the tope part of my brain was a wreck. I couldn't understand what was work s long time I was told I broke 68 bones and was waiting to die but I did not feel nothing wrong with me outside the physical. I was told If never heal enough to ever walk age. Which to me was nuts it became my goal to walk to the point I could work I locked in on being able to walking gained 100 pounds in a nursing home with not help up put the bed it was to big a risk. I got home 16, months after and was hell bent on being able to walk cause that ment work. I was sure if I could do that I would be good. In my push to walk I did not notice the brain was not the same. I have now walked 166 miles since April 2033. My body is read and I have a new way of seeing the world but you can tell there is something off talking to me. I'm just to happy and asure of everything and I don't attempt to hid it it's just who I am. I am able to do just bout everything I believe but something in the way I hand socal interaction is holding me back I just noticed this brain is not ready but I'm going to give my son every second of my life cause he has went through all this with me. Until April 2023 when him mom picked him up and has kept him from me he is my rehab buddy at almost 4 we worked all day everyday. Since I was in the nursing home she moved on and there is no custody agreement sice we was not married this loss if my son is out of my hands and the added stress is way worse. They said it would take 3 years to help and that is 9 months away but this stress is trying to kill me and it is harder then it has to be on him also
Also if you forget anything I tell myself it's not worth remembering giving up isn't a option keep going keep positive hidden disability people don't see that I tell myself they have the problem not you we are survivors sent back for a purpose live for today all amazing x
I also have a traumatic brain injury. Any questions please feel free to contact me.
I got knocked down for 5 sec hit by a cricket bat in between my chin and neck. I am feeling pressure in my head. What to do. Is it severe
I can relate to the lack of a sieve for my anger.. Trying to get my TH-cam channel feeds my frustrations a bit!!
Stay strong keep going doing amazing things bravo well done stay safe stay positive its time all in good time you got this sending love from headway Nottingham UK we are survivors fighters sending you all luck love good luck were the winners xxx
Good for you, Brian!! Earning that diploma! Go go Brian!
Brian, you are Superman, very lovable sweet, too.
Bless you.
I can't even whatch this.. these poor victims
I would would know why....its hell on earth
And so many people have clue....multiple rear end car accidents within weeks
Struggle everyday
if you need I would tell my story of how I got my brain injury and how I am dealing with it . work accident
I feel for Brian god bless him I had a tbi in 2021 but mine was a car accident god bless
I have TBI as I got hit by a car on 1st September 2022 I was in a coma and on life support one my left rib broke my nose broke
My issue is insomnia and mood changes, I can't complete an application to find work. Everything seems like a mountain. Reworking my resume seems like a huge task.
thank you for posting this i have a brain injury and am looking for ways to help myself as there is no assistance available to me .
I have found support groups helpful because they "get it" more than family,friends and employers....
I got off pretty good just forgot 6 months of my life and now I have some trouble with remembering but I learn pretty good and can maintain my life, excel at my job but yea I do struggle with remembering some things
I got beat up by three thugs they had me on the ground punching me in the head and when they were done they started kicking me in the head I was in a coma for two weeks it's been 4 years now I'm still going to the doctor's
Brother iam sorry to hear this. How are you doing now
I got jumped by 5 guys. It it was in 2012 I was knocked out from a punch behind my ear then had my head stomped so hard I had 7 Basel skull fractures i woke up to a man sitting on my chest holding me up by my shirt and repeatedly punching my face. I received a broken nose and eye socket. My c spine is now crooked and causes me all sorts of nerve issues. I was only unconscious for 1 minute, so it is deemed a mild tbi. I had no follow-up on leaving the hospital, and the insurance company says I'm fine, so they're not paying. Not long after that, I had a major back surgery with multiple fusions. This has left me with chronic nerve pain and a lack of mobility that has severely affected my perceptions of strength and safety I feel constantly vulnerable to another assault, I'm convinced another blow to the head would kill me. This has left me unable to provide for my family and with a feeling that I can't protect them either. This leaves me feeling weak and pathetic, useless just a burden. I suffer from PTSD and all the other associated disorders like depression anxiety and chronic pain. Frustration, anger, and hopelessness are my companions now. Since my head injury, I have pulled away from my family and friends and isolated myself. My partner of ten years, ten years of support and love, the only person who gave me a reason has just left me and taken my kids my home and any safety I felt I had. She can no longer accept my anger frustration and physical abuse when I relive my trauma at any slightly aroused emotion. I'm alone and scared it hardly seems worth it anymore. I hurt the ones I love and have no control over my life or myself.
My life has no joy left.
I have improved a lot over the past few years but my memory and executive function still are not great. My communication has improved significantly! For a while I couldn’t communicate very well. I struggled with reading and writing. At times I was able to write something down but then later I couldn’t read it. Or I thought I was writing something down but later it was a jumbled mess of letters that had no meaning and sometimes you couldn’t even figure what letter it was supposed to be. And I couldn’t remember! There were times when I was told to put my shoes on because we had to leave soon for my appointment. I would put one shoe on and sit up to catch my breath and then I wasn’t sure if I was putting my shoes on or taking them off. It was overwhelmingly stressful and at times I felt like I wish I would have died. And I didn’t understand why everyone who supposedly loves me was yelling at me all the time and seemingly hated me! And then someone said to me one day you know everything isn’t always about you! And I realized that because I was unable to be who I was before that I was not able to be supportive like I once was, and I was not as self sufficient as I used to be, not only has my world flipped upside down but so has everyone else’s lives! And sometimes it is difficult to see that when you are struggling to get a grip on yourself. I have improved immensely and I have apologized to everyone in my family because I said that even though it was beyond my control and I don’t remember a lot, I also realize that it has been a major stress on you and that you have to take care of yourself first because it’s not fair for anyone to have to devote all their time and attention to me. A major factor in my recovery is that I was finally diagnosed with temporal lobe seizures which really affected my perception of reality and my memory. With medication I have improved so much I feel like a completely different person. I have throughout this journey felt like I have morphed into different versions of myself. It’s hard to explain. I’m not the me I used to be and I’m not quite sure who I am now but I feel like I’m becoming someone stronger than I ever imagined I could be! And it’s not a straight line! It’s a dance and your never sure when the music is going to change but slowly you learn how to shift the dance as you go
I can relate with the feeling you wish you were dead.. but if I was dead I would miss out on the things I do that help my TBI issues improve such as model car building and playing Scrabble on my phone...
My dad had a car accident april of 2011. He has a traumatic brain injury an has a different personality. Im only 17 and I need my dad back.. Please help?
Is he ok now
I can relate to being hard on yourself... before and after my TBI..
Could I have a brain injury and don't even know
No. I had many concussions. None of them had any effect until I drove my face into a concrete barrier at 20mph. That was the nail in the coffin for me.
When it becomes a problem, you will know. Believe me.
Yes . You will know there is a huge difference but sometimes it does not completely wreck your vocabulary so you can still comunicates and therefore you are not properly diagnosed.
Yes
if you think you can or think you cant, your probably right, I'm a TBI survivor, I have recovered from left sided hemiplegia, and apraxia of speech. I got hit by a car when I was 3 in 1994, neuroscience was in its infancy back then so I was told that I could recover up until the age of about 6 when the critical period ends. That's basically a load of crap, because after i read a book called "the brain that changes it's self" after reading that book i Started to recover again in my mid-late 20s. My philosophy is to take everything you ever hear from anyone with a pinch of salt and to listen to what your brain and body are telling you rather than a bunch of idiot who know what they want people to believe
Ive had 4 brain injuries and everyone was a different part of the brain
Omg, how are you feeling after all that
@@bruceradz relatively well considering.I do several things to heal and function
@@Maggot1077 that's great, happy to hear that you are doing well considering. Hope you have some help. You must have been playing sports, to injure your brain four different times. Me, was a rollover car accident, and just one time
I also think TBI being such an invisible disability makes it more difficult to get SSDI and or public assistance because it is,suck an invisible disability.... After 10 years of unsuccessfully pursuing careers after my TBI it took me 15 years ...through 4 appeals... And 3 attorneys to FINALLY get approved for SSDI!!
Yes, it is so hard. Had to get a lawyer, and after two different court hearings, I finally was approved
@@bruceradz I finally got after fighting for 15 years...4 appeals .and 3 different attorneys..
@@RoadRunnergarage8570 well, at least you got it eventually. I forgot to mention, they initially denied mine, first time around. I think they do that with everybody. Yes, had to get a lawyer myself too. But she was very knowledgeable. It was definitely a learning experience for me. Congratulations to you tho Tom, such a shame you had to go thru all of that
By the way, I wish the government gad a formal wallet card that states we are on SSDI, just have something to show people easily. I used to carry the piece of paper that I got from Social Security stating I was getting SSDI, but I haven't done that in a long time. I had a friend even tell me that I couldn't collect Medicare, I wasn't old enough yet, tried explaining to him my situation many times haha
@@bruceradzI agree!!
brian is a legend
and his story show the importance of family. When something bad happens to you (specifically) can loose everything but not good family. We can often especially in this modern world constantly explained by science reduce ourselves to the material a brain injury thus fundamentally changing us even in the deep personal and emotional level, but having family reminds us that we are intrinsically valuable and offers a reminder that we are not simply material but also a soul.
😢 I’m so sorry 😢
I dont know if I have had a tbi l, I don't rmeber geting hit on the head. But I do have symptoms that are similar to what they described, supposedly from Lymes disease. And hearing this made me cry. Because unlike people with tbi who can have diagnosis and support and medication under insurance etc, I don't have all the things I need and have been barely surviving. The support part especially made me cry. My mom sent me this because she recently is going through this. And I bet she was thinking I needed to understand what it's like, for empathy, but instead I cried because I know all too well what going through so many of those symptoms are like and worse I had no help for it and am still going through them. While it's gotten better it isn't better by much and I feel quite alone in this. And it's pointless to explain to my family because they never hear me when I try to explain. They jsut don't understand. It's not liek I have any proof about how similar it is. She thinks "it's worse, and you have no idea how worse etc" but she has no idea what it's been like for me the last 10 years. And she never will no matter how much I try to explain. I gave up. So I cried. And prayed it will get better one day and I'll have the support I deserve from someone better than my family one day. 💔
We are sorry you are experiencing that stress with no support. Changes in cognitive processes and neurofatigue or brain fog can be caused by many things. If you know it is Lyme Disease, there are online resources and a support group: www.lymedisease.org/lyme-disease-support-groups/
You may want to look up narcissistic personality disorder. It sounds like you make have some people in your family who have it. No shade intended, just trying to say you're not alone and if you're feeling like this it's for a reason.
@mayhill6210 I'm aware of that diagnosis, I took a lot of psychology classes before I couldn't continue college due to my disabilities, health, and being homeless at the time. So im aware of what it entails. But that's actually not the case for my family, tho I know a family friend that it may apply too. Thanks tho.
@brainline thank you. I'm not actually sure the first diagnosis of lymes was correct. So I woudlnt say I agree. I am gonna get a through check in the future to consider all possibilities. But thanks I appreciate it
@@gabek1120 I'm very happy to hear that's not the case. I hope I didn't offend you. I wouldn't have felt right if I didn't say anything but that not being the case for most of your family makes me very happy. My best wishes to you!
as another person... yes.
Very insightful. Thank you for sharing this, especially to those of us who have just reluctantly joined the TBI community. Brain fungus is a hard one to avoid let me tell you.
My boyfriend was in a motorcycle accident while racing in pikes peak this June (just over a month ago) He crashed, injuring his neck and head. Contusions and bleeding. He was born with a Chiari malformation which aggravated his condition. I don't know which parts of the brain he has damaged as being on the other side of the world and only 19 years old, everyone has decided I am not worth telling these sorts of things. He seems to have little trouble communicating besides slower response times. I've not had a lot of time to talk to him yet as, like I said, I'm in a different country so I don't know how else he has been affected. All I know is he has constant, debilitating migraines that painkillers can barely even affect. I wish there were something I could do to help him. At least he's finally coming back to Scotland this week, but even then I'll be completely helpless. I just want him to be happy and healthy and not in pain. It's scary thinking he might never fully have that.
+Watermelon Patrick he's 22. Since writing this he's shown a lot of improvement. The chronic pain is still there as to be expected from such a recent injury but mentally he's his same old self, thank god. His injuries were to the front and back of his brain & his scans showed he had the malformation just as a coincidence. Luckily it was caught and treated - the treatment of which also brought blood clots at the back of his brain to his surgeon's notice which could potentially have saved his life - had they burst before discovery he'd likely have died. He got very lucky. I'm sorry to hear you've suffered this injury and I hope your recovery is going well.
Watermelon Patrick It's hard to tell this early on, as some things could be related to medication, and some things might go away. His memory and communication skills appear to be unharmed, and his motor skills are improving, though he is still quickly exhausted and sluggish. His sex drive is diminshed significantly and he is in constant, chronic pain (which is probably why he's never in the mood lol) but the pain has been projected to subside by around christmas.
Watermelon Patrick while his life isn't quite back to normal yet - I think he'll be going back to work and university after christmas.
Be patient and don't add to much pressure to his daily struggle. If you can stick with him, I had a motorcycle accident too, severe TBI, broken back, neck injuries, eye damage, severed optical nerve, torn and severed nerves in my spine, lost sense of smell, collapsed lungs from blood, brain fluid and spinal fluid filling them, over 70 facial fractures and 40 skull fractures, and other broken bones and had was in Vietnam where a police truck picked me up off the road after I had hit a large tree head first which exploded my helmut, folded my handle bars forward from the force of my grip as I plunged forward over the bike as it folded in half. The police threw me in the truck and took me to a local terrible hospital where I was given no first aid, nor cleaned up, treated in any way and was left to die on a metal table in the morgue with several other dead bodies (25 I was told later) where I lay unconscious for the next 48 hours till I was found by staff and friend who fought with the hospital to move me out into a private space which ended up being a small room that was normally used for storage! Still with no medical care and only a iv stuck in my arm improperly that later a nurse from a private clinic replaced once my friends remembered I told them if they needed medical care to go to the SOS international clinic and never go to a Vietnamese hospital. I was taken there and air evacuated to Bangkok within 24 hours of being moved to a highly respected hospital that many foreigner from around the world go to for surgeries of all kinds, or I would have definitely died. Even after several 25 and 28 hour surgeries they still expected me to die but I fought and a month later came out of my coma.
My girl friend had come to Bangkok and was there when I woke, my first words were I loved her and still wanted to marry her, which I don't remember or even know how I could have those as my first words. I was a mess and couldn't really walk, barely speak, had lost use of my hands and was in the most excruciating pain imaginable, especially when I left the hospital without therapy due to the extreme cost which was already well over $250,000.00 which I was forced to pay as my insurance company failed to pay but having my girlfriend near kept me going until she had to leave but days later I was planning to get assistance to return to Vietnam as I had a house there since I lived there part time for business and was completely unable to travel any further. Even the hour flight nearly killed me. This was the worst experience I ever had and beyond comprehension for anyone, I wouldn't have ever understood pain like that if I hadn't experienced it, all I wanted was my girlfriend to be even near and to know she cares and to know my daughter was safe and that I'll live to take care of her. When I got to Vietnam all I wanted was for my girlfriend to come, stay with me, be close and help by being strong until I could recover. She was quite a lot younger than I which had never been a problem but I realized my situation could end up where maybe I'd loose my business and not be able to care the way I hoped for her and perhaps she worried she would have to nurse me for years and years or even to some degree for life! What ever she truly thought I'll never know but she left me a few days later. I suffered a lot but the fact she left me in a time when I was in need and almost confined to a bed for the next 4 months hurt me more than all the pain. She did try to return once she saw I was beating the injuries but the fact she left stuck in my mind even with the brain injuries which I still deal with 8 years later. She never tried to understand the TBI even when she came back and was sorry for leaving. She did love me I'm sure but she never loved me enough to understand that I had my life changed and it was going to be a on going struggle for years.
If you can learn, understand and make him feel safe, secure, encourage but not obviously and give joy, warmth and show him you'll be there without having to tell him you'll help him, I hope.
Your already part way by trying to learn now, but it will also depend on how he is and if he has strong feelings for you.
Best of luck
Yes still, been trying to get into to see a doctor who has done a lot of work with TBI , he's in LA and works with athletes, vets, and accident victims but because I'm in Canada has been a slow process. Took some digging to find this message so I apologize for the delay. Not to active on TH-cam or any type of group discussions.
From my experience it is pretty much a problem not many doctors deal with, at least with any results that help much. After a while you just learn to deal with things on your own. Guess since there isn't a expensive operation or treatment doctors can profit from and for the most part TBI victims can go about life without needing wheelchairs or special attention from government there isn't much being done.
Maybe as more connection to unproductive or costs to government from work related TBI has a larger effect it can go on as the invisible injury.
It kind of is a difficult one for most to recognize or even acknowledge, effects people in different ways so how can it be defined.
I'm sure insurance companies would like to have a way to measure its effect on the people getting benefits and could claim that someone is recovered or healed so they could return to work or at least be cut off benifits.