So I have like no fat or muscle on my butt so when I sit down it feels like I'm sitting directly on bone and it hurts. Is there any surgery to give me a little cushion when I sit.
I saw this surgery on Dr. Osborne's channel. She did not leave it so long because she was afraid it was attached to the spine, that was once a fear that doctors told her about years eat. The real reason she did not have the surgery was because of her mother's anxiety over the surgery and fear of doctors. Once it got to the point of it strangling her, she told her mum that she was doing it no matter what mum said. Incidentally, she could not have chosen a better doctor than Dr. Ryan Osborne. He is a world-class head and neck surgeon with a crack team who performs surgery all over the world. He also performs surgeries free of charge for patients who cannot afford it.
That does add a lot of context, thank you. As a woman who had to hear some anxiety BS prior to my endometriosis surgery from family members who didn't openly stop me, but still were clearly not on board: You don't damn love someone when your HYPOCRITICAL future fear of YOUR HYPOTHETICALLY hurting emotions are more important to you, than the very real, existent suffering of said someone. You're just being an egocentric poor excuse of "related" or "supposedly close". 🤨 Just as abusive as putting HYPOTHETICAL future babies (maybe, if minds change, if it doesn't kill you, if you maybe process the trauma, if lack of resources doesn't ruin you) over alive people with bodily autonomy. Same as withholding freedom from people for what if they dare to make supposedly "terrible choices", according to you and only you. Those parents might aswell have beaten her physically, as this emotional abuse was negligent and physically abusive. Makes my blood boil! Same sort of abuse based problems that are just way beyond acceptable in 2025, you'd think!
So sad that she was so dependent on her mother, sounds like the mom has some issues herself that she projected on her daughter. So glad she stood up for herself in the end, even when it took her longer to get to that moment.
A woman who i went to high school with she has NF ( along with numerous co morbidity), and she sadly lost her father from complications of NF. i think he was in his early 50s when he passed .when you first meet her, you dont notice her condition she has a few nodules on her face and hands that look like flesh coloured moles, but she is covered from head to toe in them and are very painful for her she is an amazing person and and an incredible mother to her children and she trys her best at not letting people see how she struggles with the condition. She has said herself that she doesn't mind the people who stare at her if they see her NF" bumps." its the ones that start pitying her or talking to her like she is mentally impaired when they find out that piss her off.
I have Neurofibromatosis that was brought on by 6 years of aggressive cranial radiation to cure ALL. I'm 50 now. I had a crainiotomy in 2023 to remove a big tumor on my cerebellum and I still have an additional 21 tumors on my brain. My heart goes out to this woman for dealing with it for so long. ❤️💕
I have NF1, had two plexiform neurofibromas removed a couple of years ago, one was 100% no issues with it. The other was about 90% removed and lost some feeling around the area. It’s such a fascinating condition but it’s also so unpredictable
I was able to watch her amazing story on cable !!! More doctors need to network and help with special, unique cases !!! I am so happy for her and kudos to the surgeons and staff that gave her the help she needed !!!! Never give up !!!! Best wishes for a new life for the young lady !!! ❤❤❤❤❤🤗💛👏👍👍 !!!!!
I'm most confused by this woman's case. I don't watch the show, so I don't know if they take international cases. But judging by her accent, this woman is German. Germany has obligatory public health insurance and I seriously can't imagine that she wasn't able to find a clinic with a surgeon who was willing to remove those huge tumours. If you live in Germany, you don't have to let things get this abysmally bad before you get health care options.
I’m so grateful to live in a country with free and excellent medical care. No one here would ever get to this stage! We go to the doctor for every little bump 😂
Well I have surprises for you, because yes indeed even in our country of mandatory health care that is quite accessible but still not always, people go for that long. My surgeon told me how he removed a tumor from the belly of a woman they had to lift with several ppl. She'd be thin as heck but had a belly like there's multiples in there. - some people are neglected and cannot get themselves help. Initiating help can actually be impossible when you're ill and unsupported in our bureaucracy hell 🤦🏻♀️ - some people are on the streets - some people are abused by the ppl around them whilst being severely neglected Aka what you said was an ableistic "No person with sufficient physical and mental health and support that enables them to access medical help (!!!) would let it get this far, in a country like mine" That's a big difference and I invite you to account for that, because otherwise it turns into a survivor shaming "If the access is there (for able people) then it's their mess up for waiting so long" statement instead, which is actively damaging to people in those situations!
I have seen so many cases of people waiting for years, suffering with extreme fixable deformities instead of dealing with them early on. A real mystery. This young woman has had NO life so far !
Omg! Dr Youn, please if you can answer this question I would be forever grateful. Can these grow just under the skin as well? My daughter has lumps under her skin on her abdomen and they're painful. She's had them for over 2 years and we still don't know what they are!😢
I had 3 children with NF1. I lost one to the cancer that can develop from that. My (now ex husband) was the carrier. Sad thing is, his parents knew about the genetic condition and never discussed it with their children. Only my one son had the tumor, it was in his abdomen, just under his left kidney, looped around his spine (causing scoliosis) and went down past his left thigh and filled in his left thigh area. He had surgery to remove the tumor in his left thigh twice and a separate surgery to insert a rod in his spine to correct the scoliosis. He wore a TLSO brace for 7 years, from kindergarten through 6th grade before the scoliosis wasn't controlled by the brace.
Well life is rough, access to help can be limited and resources can be incredibly hard to come by for some. Especially in abusive systems. It's not a question of what you can or cannot bear, but what you do or don't survive in terms of circumstances.
Those masses don't look like they are even attached to her. She had a great surgeon, I have watched him on TH-cam. Dr. Youn, I just wanted to let you know how much I enjoyed your TikTok videos. They were both educational and entertaining.
Amazing! I’m glad she got help. I saw the video about the tumor on the guy’s face. Glad they had them removed. 😊 That amount of weight especially sounds awful to carry around!
My kids and I have a similar genetic malfunction, that is supposed to block tumors from growing. So far my older kids and myself only know about it because of genetic tests. My youngest got choroid plexus carcinoma from it. We had an exhausting few years before she died.
And would they also send the removed tissue and tumors to pathology for testing to ensure that there are no secondary health issues associated with them?
The presentation of her diagnosis is uncommon and, odds are, they weren't sure how to correct it without possibly damaging her spine, hitting an artery, etc.
Seen a lot of tumors, but man that is the most unusual I’ve ever seen! I don’t understand how Doctors years ago didn’t do some kind of imaging to find out if it was connected to her spine!
For those of you in the comment section, she is absolutely from Germany. When it was smaller, she decided not to have it removed. You people need to stop being lazy and actually watch the video.
What 4 supplements/vitamins (if any) would you recommend to women, aged 25-30yrs. Especially for those who are picky eaters. Also, how and when must they be taken.
My son had NF2, gene mutation. He didn’t have the skin tumors, but he had brain tumors, optic nerve tumor, spinal cord tumors and auditory nerve tumors. He was diagnosed at 11 and the brain tumors couldn’t be stopped, surgeries were no longer an option and he passed away at 26. His forehead was the only outward indication that something eas different because he had so many tumors that his skull was thinning and expanding to accommodate his brain. This girl was very lucky she could be helped. My son fought the good fight, but since there’s no cure, he lost his war with NF2.
Dr Youn woukd you be prepared to talk about Ehlers Danlos Syndrome and Hypermobility Spectrum Disorder and the problem with collagen in paitents with these conditions?
I have a complaint. Star Trek brought us flip cell phones, and video conferencing. What we really need is those beds in the sick bay that automatically take measurements and tests the moment to lay your patient on it. That's why they only needed one doctor. LOL. It seems like we would be CLOSER to bringing that to reality. All those seperate tracking machines with seperate wires....built into the ER bed. It SHOULD be possible to begin. A single line; by voice control that applies meds as the doctor calls for them, in the amounts that they prescribe. I have a dream......
I don’t get why Dr Youn kept harping on about “hope he got imaging”. When asked why the tumour wasn’t dealt with sooner, she said “we didn’t know that it wasn’t attached to the spine”, which would mean they already had imaging before seeing the surgeon - I’m guessing by the time the imaging was done, the tumour was already too large for her previous doctor to handle.
There's a young guy that has those on his face.They are big and his face is quite misshapen I would imagine it would be too challenging for any doctor to attempt to remove.
There is no way that her psychology isn't permanently altered due to this growth. Too bad her parents couldn't get it removed earlier. This would affect her personality and self-esteem so much that it would take decades of therapy and meds to recover. I can't imagine this poor child leaving the house often. This would affect her social and emotional intelligence growth. This probably means that most of her life is lived online and in her imagination. I can understand her to a tiny degree. So glad this young lady got it romoved. Now the work begins of getting out of the toxic mindset of inferiority and self isolation.
Enjoy this video? WATCH THIS NEXT:
HUGE Facial Tumor Removal! th-cam.com/video/cPhfPMe9aOg/w-d-xo.html
Hi Doctor how are you
I have this kind of things in my neck
A cape? A cape is the very first thing that came to mind, my guy?
I am just wondering why people.wait so long to treat these conditions
So I have like no fat or muscle on my butt so when I sit down it feels like I'm sitting directly on bone and it hurts. Is there any surgery to give me a little cushion when I sit.
I saw this surgery on Dr. Osborne's channel. She did not leave it so long because she was afraid it was attached to the spine, that was once a fear that doctors told her about years eat. The real reason she did not have the surgery was because of her mother's anxiety over the surgery and fear of doctors. Once it got to the point of it strangling her, she told her mum that she was doing it no matter what mum said. Incidentally, she could not have chosen a better doctor than Dr. Ryan Osborne. He is a world-class head and neck surgeon with a crack team who performs surgery all over the world. He also performs surgeries free of charge for patients who cannot afford it.
That does add a lot of context, thank you.
As a woman who had to hear some anxiety BS prior to my endometriosis surgery from family members who didn't openly stop me, but still were clearly not on board: You don't damn love someone when your HYPOCRITICAL future fear of YOUR HYPOTHETICALLY hurting emotions are more important to you, than the very real, existent suffering of said someone. You're just being an egocentric poor excuse of "related" or "supposedly close". 🤨
Just as abusive as putting HYPOTHETICAL future babies (maybe, if minds change, if it doesn't kill you, if you maybe process the trauma, if lack of resources doesn't ruin you) over alive people with bodily autonomy.
Same as withholding freedom from people for what if they dare to make supposedly "terrible choices", according to you and only you.
Those parents might aswell have beaten her physically, as this emotional abuse was negligent and physically abusive. Makes my blood boil!
Same sort of abuse based problems that are just way beyond acceptable in 2025, you'd think!
So sad that she was so dependent on her mother, sounds like the mom has some issues herself that she projected on her daughter. So glad she stood up for herself in the end, even when it took her longer to get to that moment.
That poor girl. She must have been in horrible pain from that! I'm so happy she found a surgeon to remove it all.
A cape was not the first thing that came to my mind lmao
Yeah! Same for me.
😂😂😂😂🤭
Hate to say this because I genuinely feel bad.. but yea.. thought the same as y'all
Same here
I know! I can't imagine being in her shoes... it's NUTS!! 😵💫
Poor woman. She had to suffer so many years. I hope she is now living her best life
This made me tear up. That's a new lease on life... so happy for her!!
He looks like Lee jung jae
I'm so happy for her! The doctor did a wonderful job of helping her get her life back!
💖💜💙💚💛🧡❤️
So glad that was removed!! God bless her & the medical professionals that performed the surgery!!❤
A woman who i went to high school with she has NF ( along with numerous co morbidity), and she sadly lost her father from complications of NF. i think he was in his early 50s when he passed .when you first meet her, you dont notice her condition she has a few nodules on her face and hands that look like flesh coloured moles, but she is covered from head to toe in them and are very painful for her she is an amazing person and and an incredible mother to her children and she trys her best at not letting people see how she struggles with the condition. She has said herself that she doesn't mind the people who stare at her if they see her NF" bumps." its the ones that start pitying her or talking to her like she is mentally impaired when they find out that piss her off.
As a disabled person I totally agree with her on that last part!! I cannot stand being pitied!!
That surgeon and his team did a great job - I imagine her quality of life has improved so much.
Absolutely admire this surgeon, he does amazing work , what a blessing to the world he is .
I have Neurofibromatosis that was brought on by 6 years of aggressive cranial radiation to cure ALL.
I'm 50 now.
I had a crainiotomy in 2023 to remove a big tumor on my cerebellum and I still have an additional 21 tumors on my brain.
My heart goes out to this woman for dealing with it for so long. ❤️💕
Bless her and thank goodness for those competent physicians. ❤
Dr. Osborne is fantastic. I love that surgeon. He’s a marvel.❤
That doctor is Gond sent. I have seen numerous surgeries by him and it is airways a miracle.
What is ‘Gond’?
@ I meant God sent….. horrible email corrector .
I have NF1, had two plexiform neurofibromas removed a couple of years ago, one was 100% no issues with it. The other was about 90% removed and lost some feeling around the area. It’s such a fascinating condition but it’s also so unpredictable
Am happy for you to be able to have your tumors removed.
I was able to watch her amazing story on cable !!! More doctors need to network and help with special, unique cases !!! I am so happy for her and kudos to the surgeons and staff that gave her the help she needed !!!! Never give up !!!! Best wishes for a new life for the young lady !!! ❤❤❤❤❤🤗💛👏👍👍 !!!!!
I saw the full video here on YT. I forgot what country she was from. But, it was amazing.
0:08 Yeah a cape shaped in the form of a ballsack😅
We all know he was thinking that 😂
@@NastyaCoilnaHow can you not think that?!
So, can you not be an insensitive rude person, or...... must you wave your red flag around in public? 🤦🏻♀️
@@sharonlefebure3892 How can you be thinking that, actually? Really sounds like you lots have growing to do and empathy to develop from scratch.
@@KxNOxUTA stay mad
Dr Osborne and his team are amazing!!
I watched Dr Osborne do this surgery. It was amazing. He and his team are wonderful.
YOURE MY FAVORITE DOCTOR
😮 Thank God 🙏🏽the surgeon was able to help her❣️
I'm most confused by this woman's case. I don't watch the show, so I don't know if they take international cases. But judging by her accent, this woman is German. Germany has obligatory public health insurance and I seriously can't imagine that she wasn't able to find a clinic with a surgeon who was willing to remove those huge tumours. If you live in Germany, you don't have to let things get this abysmally bad before you get health care options.
She cannot be German. They will never have let it go this bad.
Definitely not German
@@cicadaonthewall She says on the first second, read the subtitles, She is from Gopingen Germany.
So, because she sounds German to you, she could only be in Germany? Impeccable logic, that.😐
Thought the same. But maybe she is living in the US permanently since years. Then she as no typical German health insurance. But it's weird, I agree.
I’m so grateful to live in a country with free and excellent medical care. No one here would ever get to this stage! We go to the doctor for every little bump 😂
Well I have surprises for you, because yes indeed even in our country of mandatory health care that is quite accessible but still not always, people go for that long.
My surgeon told me how he removed a tumor from the belly of a woman they had to lift with several ppl. She'd be thin as heck but had a belly like there's multiples in there.
- some people are neglected and cannot get themselves help. Initiating help can actually be impossible when you're ill and unsupported in our bureaucracy hell 🤦🏻♀️
- some people are on the streets
- some people are abused by the ppl around them whilst being severely neglected
Aka what you said was an ableistic "No person with sufficient physical and mental health and support that enables them to access medical help (!!!) would let it get this far, in a country like mine"
That's a big difference and I invite you to account for that, because otherwise it turns into a survivor shaming "If the access is there (for able people) then it's their mess up for waiting so long" statement instead, which is actively damaging to people in those situations!
@ 😂. Now you’re offended? Or just jealous? Maybe change the system! Care about others more? No, you Americans get offended by anything…. Get help!
What a difference! So happy for her! ❤
I'm so happy for her! You can't even tell she had surgery. ❤An amazing and skilled doctor, thank you.
I have seen so many cases of people waiting for years, suffering with extreme fixable deformities instead of dealing with them early on. A real mystery. This young woman has had NO life so far !
Omg! Dr Youn, please if you can answer this question I would be forever grateful. Can these grow just under the skin as well? My daughter has lumps under her skin on her abdomen and they're painful. She's had them for over 2 years and we still don't know what they are!😢
I have NF 1 and have a small tumor under my skin on my right hip.
All the very best to you young lady!🌹
Wow I legit got a Dr. Youn ad on a Dr. Youn video!
Ad was for micro-infusions
The ad I got was for Dr. Youn's eye cream.
I got both @@batya7lol
I had 3 children with NF1. I lost one to the cancer that can develop from that.
My (now ex husband) was the carrier.
Sad thing is, his parents knew about the genetic condition and never discussed it with their children.
Only my one son had the tumor, it was in his abdomen, just under his left kidney, looped around his spine (causing scoliosis) and went down past his left thigh and filled in his left thigh area.
He had surgery to remove the tumor in his left thigh twice and a separate surgery to insert a rod in his spine to correct the scoliosis.
He wore a TLSO brace for 7 years, from kindergarten through 6th grade before the scoliosis wasn't controlled by the brace.
I am sorry for how you and your family have suffered due to NF1. My condolences on the loss of your child.
Its disgusting that so called doctors and insurance wouldnt cover this..? What kind of monster would deny her medical care?
As the doctors in the vid points out, her presentation of her diagnosis is uncommon, so other doctors prolly didn't really know what they could do.
United Healthcare
This is why if we had healthcare for all, like CANADA AND EUROPE THIS WOULD NOT BE DENIED CARE.
@@christinamessina4705 it's a crime..
Like a cape? I was thinking of something else
Okay, can we talk about that transition between damaging this woman's spinal cord 3:18 and 'The ideal eye cream should be...' 3:20? I was so confused!
That was hilarious😂😂😂
@@tessltaekook8501the self promo sections are always kinda odd😅
But the transition usually doesn’t happen like that
I'll second that. I can live with self-promo but this editing didn't quite get the job done as intend. 😅
Can’t imagine not having this removed years ago.
Well life is rough, access to help can be limited and resources can be incredibly hard to come by for some. Especially in abusive systems.
It's not a question of what you can or cannot bear, but what you do or don't survive in terms of circumstances.
Praise God for the awesome work the surgical staff did in giving this young lady much needed relief! ❤
Awesome result
Those masses don't look like they are even attached to her. She had a great surgeon, I have watched him on TH-cam.
Dr. Youn, I just wanted to let you know how much I enjoyed your TikTok videos. They were both educational and entertaining.
Such a beautiful outcome!
That doctor seems so excited 😆
Amazing! I’m glad she got help. I saw the video about the tumor on the guy’s face. Glad they had them removed. 😊 That amount of weight especially sounds awful to carry around!
Ear muffs … so pleased for this wonderful woman ❤
SO glad she healed so well! Surgery is hard enough on its own to heal from.
You are a good doctor I like you thank you sir❤❤❤❤
I’m so sorry this sweet woman had to wait so long to have this removed! She must feel like she has a whole new life!
My kids and I have a similar genetic malfunction, that is supposed to block tumors from growing. So far my older kids and myself only know about it because of genetic tests. My youngest got choroid plexus carcinoma from it. We had an exhausting few years before she died.
That was amazing.
7:27 how she looks afterwards.
And would they also send the removed tissue and tumors to pathology for testing to ensure that there are no secondary health issues associated with them?
Osborne clinic is the best drs in the world
Does it come back? Congrats!!!
But why didn’t they do any imaging in the first place?
Insane this wasnt addressed years ago...
That must of been rough to live like that for awhile. The surgery made a big difference! I'm so happy for her!
How wasn't she able to get those masses removed in Germany (where she is obviously from)?
I wondered the same.
The presentation of her diagnosis is uncommon and, odds are, they weren't sure how to correct it without possibly damaging her spine, hitting an artery, etc.
Seen a lot of tumors, but man that is the most unusual I’ve ever seen! I don’t understand how Doctors years ago didn’t do some kind of imaging to find out if it was connected to her spine!
WOW I am so Happy for Her,,, Nightmare having to live with that,,,
How could doctors in her home country let her suffer like that for so long? That's awful.
For those of you in the comment section, she is absolutely from Germany. When it was smaller, she decided not to have it removed. You people need to stop being lazy and actually watch the video.
What 4 supplements/vitamins (if any) would you recommend to women, aged 25-30yrs. Especially for those who are picky eaters.
Also, how and when must they be taken.
Good story for once bless you dear
My son had NF2, gene mutation. He didn’t have the skin tumors, but he had brain tumors, optic nerve tumor, spinal cord tumors and auditory nerve tumors. He was diagnosed at 11 and the brain tumors couldn’t be stopped, surgeries were no longer an option and he passed away at 26. His forehead was the only outward indication that something eas different because he had so many tumors that his skull was thinning and expanding to accommodate his brain. This girl was very lucky she could be helped. My son fought the good fight, but since there’s no cure, he lost his war with NF2.
I know a mother and daughter that have that. They don't have it that bad.
She needs to be tested for mold and see Dr Osborne .
I have nf 1 and have a small tumor on my right hip.
Dr Youn woukd you be prepared to talk about Ehlers Danlos Syndrome and Hypermobility Spectrum Disorder and the problem with collagen in paitents with these conditions?
Definitely took a lot of balls to get that thing removed.
I'm confused, in the after picture, I can't see any incision scars. How is that possible?
I just watched this episode today.
That surgery must have taken hours to meticulously tie off each vessel and artery feeding the tumor.
Poor woman. It breaks my heart watching her suffer from that... 😢💔🙏🏻
I have NF1 also.
Hello Dr. Youn, o have a question, can i order your products in Europe or do you ship to EU 🇪🇺
Best regards from 🇦🇹 chrissy
I fall asleep to these videos 😭😭😭
Very nice 👍👍👍☺️🙂🤠💯🌹
....Balls....😥
The editor has a dark sense of humor 💀 But anyway, I’m glad the lady is at a better state. 💯
What are the chances of the tumors growing back?
Is it just me or is it that you look so similar to Seong from Squid game like the facial cheekbones? 😅
I think Dr. Osborne is fantastic!
I have a complaint. Star Trek brought us flip cell phones, and video conferencing. What we really need is those beds in the sick bay that automatically take measurements and tests the moment to lay your patient on it. That's why they only needed one doctor. LOL. It seems like we would be CLOSER to bringing that to reality. All those seperate tracking machines with seperate wires....built into the ER bed. It SHOULD be possible to begin. A single line; by voice control that applies meds as the doctor calls for them, in the amounts that they prescribe. I have a dream......
I don’t get why Dr Youn kept harping on about “hope he got imaging”. When asked why the tumour wasn’t dealt with sooner, she said “we didn’t know that it wasn’t attached to the spine”, which would mean they already had imaging before seeing the surgeon - I’m guessing by the time the imaging was done, the tumour was already too large for her previous doctor to handle.
Why on earth would this not be removed when it was the sixe of an apple not this horror??????
Wow
Awesome
The stock video inserts are killing me. I need a doctor.
I wnt to say something but idk if I have the strength to say it
Why didn’t they do the scans, sonar, MRI and cat-scan when it was a size of a hazelnut??????????? Hope they won’t regrow. So happy for her.
I PLAYED THESE GAMES BEFORE
There's a young guy that has those on his face.They are big and his face is quite misshapen I would imagine it would be too challenging for any doctor to attempt to remove.
If Dr, Youn grits his teeth, ya' know there is a challenge.
well, that puts the game Sky Children of the Light into a whole new perspective... dang..
CT scan would be good
Why wait so long 😮
🍒
There is no way that her psychology isn't permanently altered due to this growth.
Too bad her parents couldn't get it removed earlier. This would affect her personality and self-esteem so much that it would take decades of therapy and meds to recover.
I can't imagine this poor child leaving the house often. This would affect her social and emotional intelligence growth. This probably means that most of her life is lived online and in her imagination.
I can understand her to a tiny degree. So glad this young lady got it romoved. Now the work begins of getting out of the toxic mindset of inferiority and self isolation.
I wonder if she has phantom pain?
Balls
What ????
I feel like the film clips of people reacting to huge things were a bit disrespectful to the patient