I had a Stem Cell Transplant for Progressive Systemic Scleroderma. The Transplant stopped the progression of the disease. That was 2/22/2011. I am now 75 years young. Dr.Richard K. Burt saved my life. He book is great reading, I enjoyed it.
I'm through final chemo here in Puebla, neutraphils were 1500 yesterday morn but should be dropping.. Haven't lost hair yet - weird but I think it'll probably happen and is not an indicator in itself. I felt low yesterday - not bad just tired but after an early night i'm feeling oddly chipper. I would probably say i'm a young 59 - but that's in itself meaningless... I just am wondering why I not balded and feeling more depleted - I not worried per se but look forward to my next hema-consult in a day or so. I am So lucky to be receiving HSCT. I went from edss 2.5 a year ago to 3.5 ish (ppms) diagnosed aug '22 but definately was there forat least 5 years. now (sept '23). I'm intent on being happy and the tail end of the video chat with Brooke and Jodi rings as invaluable. I'll burn that in my mind's eye and return to Toronto as the sax player, flute player, composser, dad, husband, composer cook and more with renewed vigor.
I'm starting a new post because I think it's important. I've already established the fact that "we" aren't first. "We" aren't fifth, tenth or even 20th. I'd link the CNN article, but first they probably will take my post down and two there are so many articles if you look it's easy enough to find. Now, I went to the "best" for healthcare. He actually sits on the board of the MS Society. He said it was complex and I could choose from a number of drugs. He didn't tell me that I was low in Zinc. Not a word about Magnesium. He didn't tell me I was low in my vitamin B's. Nothing. He said I should take a drug and that was it. Then, I saw a Nurse, whoever you are, thank you again, and she told me to check my gut. When I left the country, my own country, not only did they tell me I had hypertrophic cardiomyopathy I also learned, from the Ukraine's, I had intestinal permeability. It is beyond frustrating. At first, I was so mad but now I'm sad. Really sad. There is a cure for MS. There is a cure for a whole lot of "diseases". I guess not in America but where do we rank. I think we should change. It's 2023.
@@demoskunk There isn't? Is Dr. Wahls wrong? Is Matt Embry wrong? Is Dr. Gelenick wrong? If so, I should be dead, but I'm not. Do you know where "we" rank? Look it up.
Honestly, It is now irresponsible to see a myriad of people, experiencing efficacy with HSCT, but the procudure continues to be denied in the US, literally for at least One Decade. Meanwhile, people such as Sandra Blair, simply spend a week or so in Russia, they come back, they begin to return to near normal function, dance on Dancing With The Stars, while the rest of us here in The States, prepare for Wheelchairs and Hospital Beds. Question: Is this truly the 1st World Country you thought it once was... ?? Getting ready to gather the cash I need to have the stem cell procedure in Mexico, and that's that! 😊
Selma Blair was treated at Northwest in Chicago by Dr. Burt. The entire procedure, even in Russia takes at least a month. PT and OT are a definite after. And yes, it should be here now. Transplanted in Puebla, Mexico, December of 2022.
Now, I had HSCT at Clinica Ruiz and then 15 months later I went to the Ukraine for fetal cells. The doctor I went to in the Ukraine told me I had intestinal permeability, a leaky gut. I took care of that I'm back. Now, where do we rank? I read that in 2017, "we" came in 54th. In 2021, "we" ranked 37th. Real studies. Good job, regardless.
And I would say drink bone broth. But that's me. I wish the person that said they have PPMS the best of luck. I found out I had 41 lesions, I'm still stumped by that, once I figured out where we rank, the study from 2017 was shocking, I immediately booked my reservation at Clinica Ruiz because my Wife said she was going with me. I would have preferred Russia, that's where my family is from, but here nor there. Now, Dr. Ruiz was commemorated as one of the Mayo Clinic's greatest doctors of all time, I think he was 62nd, but whatever. There, I found I had hypertrophic cardiomyopathy, which not one of my "doctors" told me about. I had that confirmed by the Mayo Clinic. I'm still shaking my head. Anyways, I waited 15 months to go get fetal cells. There I learned I had intestinal permeability. The reason why I had MS. It's so weird. That's where Dr. Wahls, Dr. Gelenick, Dr. Hyman come in. I eat whole foods. Nothing premade. I wish you my best.
One more thing, the Ukraine's have figured out fetal cells in the mid-90's. They mapped it out in 1987. That's why what Dr. Burt did was so fascinating. He figured out how to do this with just hemopoietic stem cells. And, he did that without any help from the government. They, I think, want people to be sick. That's just my thought, though. Good job Dr. Burt. Actually, great job. I'm saying it again, it's time for a change. I figured when I was 5 I'd be traveling the stars. It's so weird. It's insane really. Anyways, if anyone's reads this, my best to you and know that there is a cure. Now, if we'd stop fighting wars and living like I figured we should the World can be so nice. Amazing really.
Using MSCs, without HSCT first, is like pouring water into a bucket with holes. Fix the holes first. There is not any long term clinical evidence that mscs work long term.
I had a Stem Cell Transplant for Progressive Systemic Scleroderma. The Transplant stopped the progression of the disease. That was 2/22/2011. I am now 75 years young. Dr.Richard K. Burt saved my life. He book is great reading, I enjoyed it.
I'm through final chemo here in Puebla, neutraphils were 1500 yesterday morn but should be dropping.. Haven't lost hair yet - weird but I think it'll probably happen and is not an indicator in itself. I felt low yesterday - not bad just tired but after an early night i'm feeling oddly chipper. I would probably say i'm a young 59 - but that's in itself meaningless... I just am wondering why I not balded and feeling more depleted - I not worried per se but look forward to my next hema-consult in a day or so. I am So lucky to be receiving HSCT. I went from edss 2.5 a year ago to 3.5 ish (ppms) diagnosed aug '22 but definately was there forat least 5 years.
now (sept '23). I'm intent on being happy and the tail end of the video chat with Brooke and Jodi rings as invaluable. I'll burn that in my mind's eye and return to Toronto as the sax player, flute player, composser, dad, husband, composer cook and more with renewed vigor.
I'm starting a new post because I think it's important. I've already established the fact that "we" aren't first. "We" aren't fifth, tenth or even 20th. I'd link the CNN article, but first they probably will take my post down and two there are so many articles if you look it's easy enough to find. Now, I went to the "best" for healthcare. He actually sits on the board of the MS Society. He said it was complex and I could choose from a number of drugs. He didn't tell me that I was low in Zinc. Not a word about Magnesium. He didn't tell me I was low in my vitamin B's. Nothing. He said I should take a drug and that was it. Then, I saw a Nurse, whoever you are, thank you again, and she told me to check my gut. When I left the country, my own country, not only did they tell me I had hypertrophic cardiomyopathy I also learned, from the Ukraine's, I had intestinal permeability. It is beyond frustrating. At first, I was so mad but now I'm sad. Really sad. There is a cure for MS. There is a cure for a whole lot of "diseases". I guess not in America but where do we rank. I think we should change. It's 2023.
There is currently no cure for MS.
@@demoskunk There isn't? Is Dr. Wahls wrong? Is Matt Embry wrong? Is Dr. Gelenick wrong? If so, I should be dead, but I'm not. Do you know where "we" rank? Look it up.
@@demoskunk Is Dr. Hyman wrong? I can go on if you'd like. It is so weird. But, ok, there is no cure.
HSCT is the closest to a cure for MS. American Dr's / BIG PHARMA don't want you to know about it.
Honestly, It is now irresponsible to see a myriad of people, experiencing efficacy with HSCT, but the procudure continues to be denied in the US, literally for at least One Decade. Meanwhile, people such as Sandra Blair, simply spend a week or so in Russia, they come back, they begin to return to near normal function, dance on Dancing With The Stars, while the rest of us here in The States, prepare for Wheelchairs and Hospital Beds. Question: Is this truly the 1st World Country you thought it once was... ??
Getting ready to gather the cash I need to have the stem cell procedure in Mexico, and that's that! 😊
My had it done in Mexico in 2020. Blessed. F""k BIG PHARMA
Selma Blair was treated at Northwest in Chicago by Dr. Burt. The entire procedure, even in Russia takes at least a month. PT and OT are a definite after. And yes, it should be here now. Transplanted in Puebla, Mexico, December of 2022.
Now, I had HSCT at Clinica Ruiz and then 15 months later I went to the Ukraine for fetal cells. The doctor I went to in the Ukraine told me I had intestinal permeability, a leaky gut. I took care of that I'm back. Now, where do we rank? I read that in 2017, "we" came in 54th. In 2021, "we" ranked 37th. Real studies. Good job, regardless.
And Dr. Wahls came up with a protocol. I suggest you look into it if you haven't already. Her, Dr. Hyman, etc...say that diet is key.
And I would say drink bone broth. But that's me. I wish the person that said they have PPMS the best of luck. I found out I had 41 lesions, I'm still stumped by that, once I figured out where we rank, the study from 2017 was shocking, I immediately booked my reservation at Clinica Ruiz because my Wife said she was going with me. I would have preferred Russia, that's where my family is from, but here nor there. Now, Dr. Ruiz was commemorated as one of the Mayo Clinic's greatest doctors of all time, I think he was 62nd, but whatever. There, I found I had hypertrophic cardiomyopathy, which not one of my "doctors" told me about. I had that confirmed by the Mayo Clinic. I'm still shaking my head. Anyways, I waited 15 months to go get fetal cells. There I learned I had intestinal permeability. The reason why I had MS. It's so weird. That's where Dr. Wahls, Dr. Gelenick, Dr. Hyman come in. I eat whole foods. Nothing premade. I wish you my best.
And Dr. Burt is great. One of the few in America. Kudos for having him on.
And, I should say I have the "best" insurance in the US. That is weird. We need to change now. It is so weird.
One more thing, the Ukraine's have figured out fetal cells in the mid-90's. They mapped it out in 1987. That's why what Dr. Burt did was so fascinating. He figured out how to do this with just hemopoietic stem cells. And, he did that without any help from the government. They, I think, want people to be sick. That's just my thought, though. Good job Dr. Burt. Actually, great job. I'm saying it again, it's time for a change. I figured when I was 5 I'd be traveling the stars. It's so weird. It's insane really. Anyways, if anyone's reads this, my best to you and know that there is a cure. Now, if we'd stop fighting wars and living like I figured we should the World can be so nice. Amazing really.
What is your opinion regarding mesenchymal stem cells therapy for multiple sclerosis?
I do not have any personal experience with MSCs, therefore, I cannot provide any insight.
@Ahmed Fowad The Panamians have been using them since 2009. Dr. Riordan. He's great. It's about 25 grand. Best of luck to you.
Using MSCs, without HSCT first, is like pouring water into a bucket with holes. Fix the holes first. There is not any long term clinical evidence that mscs work long term.