วีดีโอ

The problem with iron it is a radical oxidant so not good for the body. One of the first discoveries in anti aging research was that borderline anemia is associated with life extension. Food for thought. NAD+ and CoQ10 are great for energy. B12 shots rock! My next door neighbour and good friend is a Registered Nurse RN who gives me regular shots. Folic acid is great for CFS too.

Re: Dopamine Agonist th-cam.com/video/h5Hyhmxli54/w-d-xo.html th-cam.com/video/EMm33HkP4DI/w-d-xo.html 2024 Clinical Practices Guidelines

Please translate in hindi language for indian patients

So sorry that you are going through all of your challenges with chronic illness. I have suffered with RLS and have generally been down the same road as you with numerous drugs, augmentation, drug withdrawal etc etc. i eventually was able to consult with one of the leading RLS specialist in the US, which led me to having an iron infusion. RLS patients are often found to have low level of Iron IN THE BRAIN, even when the blood levels may even be in the normal range. The infusion takes 6-8 weeks to kick in but it has made a significant improvement in my Rls symptoms. Be advised that dopamine agonists are no longer recommended for RLS and the opinion of some specialist are that they should be taken off the market. Dopamine agonists cause inevitable augmentation.

Hello, Thanks for your video. I am 63 and have had RLS since my early teens. I did not know what it was until my 50s. My doctored started me on a couple dopamine agonists. Which I augmented on. After a few months I took myself off both, one after the other. I did not know what Augmentation was until I joined Restless Legs Syndrome Foundation and started reading their Literature. So far they have been my best source of help, including my Doctor. I find a regular GP has very little knowledge or experience with RLS, at least here in Canada. Eventually I was referred to a high quality and reputable sleep clinic. I was put on Gabapentin. It was a disaster. 30 days later I took myself off. I was then put on low dose Codeine. It has been amazing for me. Right from day one, it has transformed my life. I have been taking one 50mg. tablet twice a day for almost 5 years now. I can sleep at night, enjoy a meal with my family, watch a movie, I have a desk job now, that would have been impossible before. I can read a book, study documents and reports for work. I have picked up an old hobby of building models. The clouds have gone away and the sun is shining in my life. My only side effect of the Codeine is constipation and I handle that mostly through diet (lots of prunes) and from time to time with Senokot. Thank-you for sharing.

Don't confuse Palmitoylethanolamide with Phenylalanine an essential amino acid, both are called PEA

What is your instagram ?

PEA cut my pain in half. A few times I have stopped and I ended up feeling like I was 200 years old. Now I will never stop again. Before I acquired CFS/ME I had Fibromyalgia, and I was in enormous all-body pain. I started on PEA and suddenly I could walk with my dog again and one day while walking I was brought to tears of joy that I could walk again pain free with my best friend. I take 800mgs twice a day. I buy it from a compounding pharmacy.

The feeling you experience during a crash or flare-up from chronic fatigue syndrome (CFS) is like a profound moment of emotional surrender, where there's a sense of despair or hopelessness, feeling as though life is temporarily "over" or that nothing has meaning. In psychology, this might align with concepts like existential surrender, emotional burnout, or despair fatigue, though these are general terms rather than specific to CFS. However, this type of temporary emotional collapse is uniquely termed crash surrender or flare-induced surrender in the context of CFS. It's a moment where the overwhelming fatigue and cognitive fog make it seem as though long-term goals, hobbies, and even meaning itself are unattainable, and there’s a need to let go, similar to the sentiment "You just have to let it all go." I spent three years in bed before I started to improve. My favourite helper is my fitness watch which has been an enormous help. I makes me get up and take some steps... like walk to the front door and back, helping undo the muscla atrophy that has occurred laying in bed all these years. I was severe and now am 'moderate'. My advice, never give up... it may take four years, it may take more, but you will improve to some degree. Never give up. Sending out love and good feelings from a fellow survivor.

Thank you, so much for sharing your grace and journey. And the toxic mentality from the new age community. So empowering to hear.

I think you’re great! Thank you! I’ve watched several videos and have heard the same things over and over. You’ve given me a lot of great ideas! My family doesn’t understand why I’m so tired, and none of them have issues with sleep. This my fourth year living with this insane fatigue all day, while finding impossible to sleep!

Thank you for sharing this video? So much baluable information its my husband who has RLS! Medications are no longer working and he has been told there is no 27 other meds! So he needs to give her this information!

Compare that to HIGH FAT CARNIVORE DIET which has TONS of "PEA" naturally... No prescription needed.

❤Hi, I take about 3 ounces of magnesium citrate for restless leg. Works in about 30 minutes. Sometimes I take calcium with D3. I also take an iron pill and a multivitamin that has high B vitamins.

Thank you again for such informative ,open, and entertaining videos. It’s just so good to hear someone who actually knows what they are talking about and the pain being acknowledged. Please can you tell me what kind of marijuana you use? I live in New York and it’s legal although I had a card for it I used, something years ago and it did nothing for me . Thank you for all your help and for all you do!

You deserve a medal from the American Meducal Association and all like organizations in the World! You have covered it all and you understand so much more than most Doctors. I live in NY and you would think the Neurologists would be up to date on RLS. I have been suffering from augmentation from five years of Mirapex. I am allergic to gabapentin. I was put on IV Iron and due to a Hemachromatosis trait my ferritin went up to 800. I was put on opiates but they do not prescribe it anymore. I am allergic to Tramadal . I told the Dr I have considered suicide - my life and my husbands life is so affected . The pain - day- night - days of no sleep- messing up all my other medicines - Dr does NOT know what I go through- I have had four different Neuros in ten years- I was thankful for years as the Mirapex worked but augmentation is deadly. Now they are sending me to a movement disorder specialist ( in Jamuary) meanwhile everyday and night I have to pray the Neupro will work . They prescribed LDN and it took six weeks to come. The Dr told me to join a gym. They do not understand I cannot make plans - I can’t go for rides I. Car - RLS in my arms - I make sounds of agony - no one wants to put up with it and I don’t blame them, Thank You so much! I will get the print out.

Drs treat rls like a red headed step child.

Ive had it horribly for 34 years im 63. Im planning a exit.

I been extreme fatigued for years. Drs. Just prescribe me antidepressant and say depression can do that. The last dr. Got me blood work and came back defitiance in b12 and iron. So far got only one b12 injection and slow release iron pill. Im hoping this is my answer cause i never had one day of energy in years. So far onky one injection and 2 weeks of iron pills. Im still super tired so far. Hoping that will change soon. I get a b12 injection evrry week the first month and then once a month from there.

Is trazadone bad for restless legs? Taken for years for insomnia

Weirdly, in the evenings I find knitting helps to alleviate the RLS. Clearly no help when I go to bed😊

Cool and educational video on this insidious disease, also feel you on the epilepsy & chronic pain front. Definitely share with other sufferers.

Excellent presentation on RLS. I have suffered with RLS since 2018 when I was going through very stressful time in my life. It came back two years later and my RLS is triggered by stress and genetics. I have tried many different treatment options that are more on the natural side. I did try gabapentin. Initially it worked and then I had to keep increasing the dosage till I was up to 700 mg’s. I think I was experiencing augmentation because symptoms became even worse. I still take it occasionally. I have been going to acupuncture for the last year and a half. It does help. I’ve tried various forms of THC, but they were from a local dispensary. It did work in the beginning, but then I had to keep increasing the dosage. My husband passed away a few months ago, so it’s definitely triggered by my stress and grief. I was really glad that you mentioned in your video about medicinal marijuana. I made an appointment to see my doctor to explore this option. I really don’t want to take the other drugs for RLS. I am going to look at some of your other suggestions. Some I’ve already tried and I still use magnesium. I occasionally take gabapentin. I just can’t stay on it consistently because it will stop working. My heart goes out to anyone who suffers with RLS. I so appreciate the time that you put into your education of RLS and treatment options.

I get restless legs when i take paracetamol

Had to stop my over the counter sleep aid which made it a lot worse.

I have had Rls For a long time with fibro. At the beginning of the year symptoms started moving up my body. Now i have the same spastic movements in my upper abdomen. Do you have any insight into this?

Thank you so very much. There’s so much information. I’m so grateful. I was put on pramipexole 2 years ago.

Thank you. Great information. Have you put your meds video out yet ? I’m on meds for last 2 years but put up so much weight.

Ou

Thank you great information

I have always had it. V Caused me so much suffering over the years i would go as far to say that the lack of sleep was a direct cause of bad decisions and costing me a better education better jobs .even relationshops . Self medicating when at witts end . Now just turning 60 its became a monster ive been to so many drs tried the medications.the couple that actually worked only lasted short time before turning on me making them unbearable at new levels lasting 3 or 4 days with out any relief to the point i was ready to end it but i couldnt think long enough to carry out anything im suffering now no sleep between 11pm untill 9 am usally sleep after 9am but sometimes if i dont get up and get busy doing something i atill will lay there tryi g to fall askeep . My life was robbed the drs. Just never have helped

I take carbidopa/levidopa. It is the only thing that has helped. But I think maybe I have augmentation now. I'm almost 87. Have other issues. It's all very discouraging.

Totally agree with your views about Opioid crisis

Very fluent and soothing. No aaas and umms at all. Excellent presentation. Bravo🌹

High quality content. Excellent effort. So cute so smart and well informative. So soothing

Very smartly done and very arteculated

What kind of doctor can help?

Excellent

Fabulous breadown of the available meds and as someone that is still migrating away from the brutal effects of augmentation I can say that you are spot-on in your advice of titrating slowly. I'm about 9 months in and while it's going reasonably well it has also been agonizing at times.If you are suffering from RLS I highly recommend watching these videos.

I will try these tonight. My dr actually said just 10:49 take 2 prescription meds! I am so OVER the medical profession! I AM taking L-Theanine, Mag Threonate, Mag Taurine, 5HTP w Ashwaganda. Much happier taking natural path vs pharmaceuticals!

To control it naturally: magnesium helps a lot, so does controlling your blood sugar. Oregon grapefruit with meals helps a lot and so does doing a keto diet. Vitamin B may help you burn up carbs faster.

One of the worst things about the medicines is after time you cannot sleep if you don’t take your meds that night. I also use medical Marijuana (legal in Illinois), Indica, with better relief than my meds.

Try Nordic Walking Poles. I have used them with relief for about an hour.

This is is most informative session I have heard. As a RLS sufferer for 40 years I have had symptoms during the daytime and even rarely in the morning.

This video showed up for me as I often watch reviews of pre workout drinks and PEA is in some to elevate mood and apparently reduce pain for harder workouts. Many claim it makes them very happy. I'm sure reducing chronic pain increases mood but curious if you felt happier on this and more focused?

Rolling eyes really works for me. I imagine I am rolling my eyes when they are closed around a clock. I make sure to follow the circle. make a circle with my eyes Sometimes I loose my focus but it works

What brand is ur water bottle ?

thank you very much for your efforts. It is a huge contribution and great help for patients and also doctors. Thank you very much

Great summary! Thanks!!

Brilliant video. Thank you!