Wow - very very impressive. I have spent countless hours researching RLS. I have also suffered through misinformation and lack of knowledge from otherwise competent physicians. It took me years to get to my current understanding and knowledge level. You are to be commended for the amount of very accurate information that you squeezed into this presentation. Biggest challenge is to find physicians and facilities that will follow this roadmap.
Thank you for the kind words! I'm glad you found my video informative. I hope you've found some relief after the years of not getting proper treatment x
Thank you for this incredibly insightful video, Jill. I don't suffer from RLS myself, but am really grateful to better understand the condition and the implications of trying to medicate for it.
Thanks Lisa. I'm glad my video could increase awareness of this condition and that caring people like yourself want to understand it better, even though you don't suffer from it yourself x
Hello Jill, Thank-you for your posting. I am 63 and have delt with RLS since my early teens. I have augmented on DAs and only lasted 30 days on Gabapentin. I was finally able to get an Rx for Codeine about 4 years ago (50MG) and not looked back. It has transformed my life. my dosage has not changed. I can tell my RLS has increased in severity through the years. The one question I have not been able to get an answer for is: will it continue to get worse until I die? Which is a horrible thought. Thanks for the info, your an angel !!!!!
Hi Craig, I'm so glad to hear the codeine has helped you so much. About your question... RLS does tend to get more severe as we age due to the downregulation of D2 receptors, but from what I have read, it might not be a constant or severe worsening. It may just hit a plateau, at which point your codeine dosage may need to be increased. Try not to worry about it. Just keep up the exercise, keep your iron high and work on things that promote good quality sleep x
Mate, thanks for the background work you have done putting this stuff together. I'm not sure if TENS treatment has been covered for RLS? I've had some recent success with it. Now experimenting with kinesiology tape. Bilateral knee replacement some weeks ago. Minor RLS prior...one panadol osteo before bed would see it off. Now, full blown RLS all night. Don't know if nerve damage from surgery or the prescribed opioids. Also on meds for ME and Fibromyalgia...plaquenil, lyrica and sertraline. Too much going on at once!
Thanks Chris. Yeah it's tough managing multiple medical issues and many medications. I hope you get relief from your RLS. TENS sounds interesting. I haven't heard of it being used for RLS before, but it's worth a shot. I've got a tens machine lying around somewhere, I might give it a go.
@@chronicjillness332 G'day Jill, There is definitely something going on with the TENS as I found last night. Previous modest results had pad placed behind and below knee, the other on top of the foot. Trying to get the current to flow diagonally through the tissue. But the big one was a pad either side of the calf slightly below half way. The 'felt' application was very different in each leg... don't know what that means. Resulted in RLS confined to just above ankle in left leg and none in the right for most of the night. Hardly conclusive but worth persevering with. Regards C.
I take carbidopa/levidopa. It is the only thing that has helped. But I think maybe I have augmentation now. I'm almost 87. Have other issues. It's all very discouraging.
![SAFEPLANET - ดาวเคราะห์ [ THE PLANET ]](http://i.ytimg.com/vi/4X1XL3I_k3c/mqdefault.jpg)
Very fluent and soothing. No aaas and umms at all. Excellent presentation. Bravo🌹
Wow - very very impressive. I have spent countless hours researching RLS. I have also suffered through misinformation and lack of knowledge from otherwise competent physicians. It took me years to get to my current understanding and knowledge level. You are to be commended for the amount of very accurate information that you squeezed into this presentation. Biggest challenge is to find physicians and facilities that will follow this roadmap.
Thank you for the kind words! I'm glad you found my video informative. I hope you've found some relief after the years of not getting proper treatment x
Thank you for this incredibly insightful video, Jill. I don't suffer from RLS myself, but am really grateful to better understand the condition and the implications of trying to medicate for it.
Thanks Lisa. I'm glad my video could increase awareness of this condition and that caring people like yourself want to understand it better, even though you don't suffer from it yourself x
Cool and educational video on this insidious disease, also feel you on the epilepsy & chronic pain front. Definitely share with other sufferers.
thank you very much for your efforts. It is a huge contribution and great help for patients and also doctors. Thank you very much
Thank you so much! I hope this video will be a good resource for anyone who wants to understand this topic.
Hello Jill, Thank-you for your posting. I am 63 and have delt with RLS since my early teens. I have augmented on DAs and only lasted 30 days on Gabapentin. I was finally able to get an Rx for Codeine about 4 years ago (50MG) and not looked back. It has transformed my life. my dosage has not changed. I can tell my RLS has increased in severity through the years. The one question I have not been able to get an answer for is: will it continue to get worse until I die? Which is a horrible thought. Thanks for the info, your an angel !!!!!
Hi Craig, I'm so glad to hear the codeine has helped you so much. About your question... RLS does tend to get more severe as we age due to the downregulation of D2 receptors, but from what I have read, it might not be a constant or severe worsening. It may just hit a plateau, at which point your codeine dosage may need to be increased. Try not to worry about it. Just keep up the exercise, keep your iron high and work on things that promote good quality sleep x
Totally agree with your views about Opioid crisis
Excellent
Thank you great information
Mate, thanks for the background work you have done putting this stuff together.
I'm not sure if TENS treatment has been covered for RLS? I've had some recent success with it. Now experimenting with kinesiology tape.
Bilateral knee replacement some weeks ago. Minor RLS prior...one panadol osteo before bed would see it off. Now, full blown RLS all night.
Don't know if nerve damage from surgery or the prescribed opioids.
Also on meds for ME and Fibromyalgia...plaquenil, lyrica and sertraline. Too much going on at once!
Thanks Chris. Yeah it's tough managing multiple medical issues and many medications. I hope you get relief from your RLS.
TENS sounds interesting. I haven't heard of it being used for RLS before, but it's worth a shot. I've got a tens machine lying around somewhere, I might give it a go.
@@chronicjillness332 G'day Jill,
There is definitely something going on with the TENS as I found last night.
Previous modest results had pad placed behind and below knee, the other on top of the foot. Trying to get the current to flow diagonally through the tissue.
But the big one was a pad either side of the calf slightly below half way.
The 'felt' application was very different in each leg... don't know what that means.
Resulted in RLS confined to just above ankle in left leg and none in the right for most of the night.
Hardly conclusive but worth persevering with. Regards C.
I take carbidopa/levidopa. It is the only thing that has helped. But I think maybe I have augmentation now. I'm almost 87. Have other issues. It's all very discouraging.
Yeah it's such a tricky condition to manage. I hope my videos can help you get the best out of your treatment x
I get restless legs when i take paracetamol