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A similar thing happened to me I didn’t even know I had pots until I got Covid and it put me in a wheelchair pretty much indefinitely

Thanks, I'm a fourth year Ph.D. student at UCLA.. Good luck!

Brown buddy with cerebral palsy. I have never seen a video like this. It’s pretty cool! I think white activists are awesome. I appreciate the time you took to film this! Thanks again

Again. Not relevant but your background is so beautiful

This may be a bit controversial. I feel that myself and other wheelchair users who are born disabled are the most judgmental. I’m a brown buddy in a chair who was born with cerebral palsy. I’m 29 now but in my early 20’s I would be confused and skeptical of ambulatory wheelchair users but through checking myself before I wreck myself .. It’s none of my business of why someone uses whatever mobility aid. My issue was my own frustrations that I didn’t have choice so I chose to get pissy when others had choice. That’s my own problem that I worked on. Now I want to encourage folks in the paralyzed community and other born disabled folks to really. Really reconsider our bias. It’s not fair and is so much worse coming from fellow disabled folks. I do not want to hurt or invalidate anyone. The huge change in my view was from pippa Stacey. She has ME , she is a huge advocate for all disabled folk. I think ambulatory wheelchair users are the most outspoken advocates for all of us. I don’t have the courage or bravery. I support ambulatory wheelchair users with all my might now because I understand they are the true pioneers to help the general public be less ignorant about disability in general. Thank you for being brave and speaking so honestly. You’re very eloquent and I love hearing your perspective. Beside other wheelchair users being judgmental I was curious how doctors treat you as an ambulatory wheelchair user I hope you have a lovely day week year! And I send you all the positive vibes I can muster. Take care chica. Wonderful video.

Absolutely not relevant but I love your background and lighting and it looks so pretty! I have cerebral palsy and I love my chair so much. Being disabled from birth almost feels like a privilege because I didn’t have any feelings about using mobility aids. I’m so glad to hear you like your chair now!

I tried to find myself housing in my area but even the government housing is way beyond what disability and SSI pay me. I've been in a place that had no handicapped parking for the people who lived there and no ramps to get up to the sidewalk. It's crazy

With the topic you were talking about with the head halter, you could try an e collar!! We use one and it’s great especially because you can teach off leash which is helpful for wheelchair use

This was a great video! I really enjoyed it. I just had my first appointment with my occupational therapist and she is working on prescribing a wheelchair for me! I have Hypermobility Spectrum Disorder and although on a good day I can walk 7-10 miles on others I can barely walk 10 feet. I'm so looking forward to my independence being increased and being less tired at the end of the day. You seem like such a fun vibrant person <3

Just a clarification of fact: The ADA was signed into law in *1990* -- it just didn't go into effect until January 1, 1991. I also remember the push for the use of Person-first language; it was a reaction to doctors and other clinicians ("experts") habitually saying: "And here is a cerebral palsy," or "John is our Downs Syndrome," etc. 🤦🏽‍♀ It was definitely needed, back in the day. Now, when I hear person-first language, it makes me cringe a little inside. It sounds a bit like "Person with blackness" instead of a Black person. There's also nuance with this, depending on which specific community you're interacting with. Nearly every autistic person I've met prefers identity-first language, for example.

Gurl, I feel for you. I’m also an ambulatory wheelchair user, and I sold my farm two years ago and decided to take my caretaker and my service dog and move to the city. Even though I’m substantially more affluent that the average handicapped person, I had to fight for my rights to ADA compliance even in my brand new and very upper-class apartment building! Get in touch with your local state Handicapped Advocacy program and let them fight those battles FOR you - I have found a letter from the state listing the concessions I require to be HIGHLY effective! Best of luck!

Would someone be kind enough to provide me with a company to look at for wheelchairs. I was recently in a car accident, and I'm not sure where to look. And to be honest, I'm a bit overwhelmed.

Love it! Thank you for making this. <3

Dig your style

Thanks

Great content ☺️

Thanks so much for talking about Queer Liberation Library, needless to say what they're doing is so important (as is having access to Libby period). Just joined and can't wait to check out their collections. I really cannot recommend Witch Hat Atelier enough (though it just barely qualifies in the queer side, tho I would say its just because gender and sexuality are not a huge focus). Such an incredible Eisner award winning manga fantasy series that incorporates difficult, nuanced, and engaging stories of disabled characters and disability within the very foundations of its worldbuilding and magic system. There's a diverse range of disabilities and perspectives of disabled characters explored within it, and they play pivotal roles in the story. If you are up for horror (as well as SFF) and really tough reads, I recommend anything by Rivers Solomon, because their work frequently features queer, disabled, and intersex characters. Their prose is gorgeous and write some queer intimacy like little I've seen in legit romances lol. I recently finished and LOVED The Jasmine Throne by Tasha Suri, another sapphic fantasy about anti-colonialism but adult. Im not sure how the disability aspect pans out in the other books but I enjoyed what was there in the first book. Dense theory is not for everyone but Ugly Laws by Susan M. Schweik is such a cathartic read as painful as it is (not just academic writing but yk the content). Bless the Blood by Walela Nehanda is a good cancer memoir that came out this year if you enjoy poetry and essays. Would love to see more recs of whatever medium in the future! (also need to read Gideon ASAP)

Thank you for this💞I have Sixten of Crows and Gideon in my audible library but haven’t yet heard them but will start tonight😁 Greetings from Sweden and happy Pride🌈❤️🌈

I’M not tired of hearing about it……DO YOU HAVE OTHER FRIENDS??!!!?!😜

I love books with LGBTQ representation and disability representation

I love the color of ur frame (｡♥‿♥｡)

Great video !!! 😃

this is a great video

Thank you for this❤️ Greetings from Sweden

Love Izzy Wheels! I'm waiting for my first custom titanium wheelchair (7 ish weeks?!). The first accessory I'll be getting is a Lapstacker. It's from New Zealand and designed by a wheelchair user. Kind of like two retractable seat belts that go over your legs and attach with a magnetic hook. It keeps everything from a piece of paper to a shopping basket to a stack of books steady and hands free for wheeling around. Gem Hubbard of WheelsNoHeels did a review on her channel. It's designed both for those of us with hand function and those without like quads. There's a version for power chair users as well.

Not whining at ALL! Train every staff member, in every accessibility feature. Would they hire a crew member who was uncomfortable speaking to kids? Or the elderly? You're being so generously kind to them here. I respect you for the balanced opinion, but also... It's not the job of a client, paying full price, to play disability consultant, or have a less excellent time because many people, at many steps, failed you.

That is unacceptable with how they treated you as an adult in a wheelchair. Honestly I understand that the Disney line is more designed to deal with younger people who can't/don't/won't speak for themselves but it's a total lack of professionalism in my opinion. Sorry but I think the Mouse failed you miserably and I find that ridiculous! Also, elevators should be a universally accessible size regardless of where it is located! Sorry this experience alone shows me that they don't really care/know how to "handle" a person in a wheelchair, much less an adult in a chair who can/would be able to speak for themselves and not having a parent/representative with them to avoid needing to learn to speak to someone with a disability in such an unprofessional manner. I find RCL to do a pretty decent job, at least compared to honestly how it sounds like the "poo" show thet you had while onboard the Wish...

Let’s definitely deconstruct some white supremacy. Here is an example of some white supremacy written by one of the white people falsely masquerading as “bipoc” who you cited as a resource: From the March 2000 issue of Fireweed Title: “ammachi stories: excerpt from the last boat, biomythography in progress” Author: Leah Lillith Albrecht is writing here as Leah Piepzna-Samarasinha (pen name) Prior to this Leah had written under several other names including Leah Lilith Albrecht-Samarasinha (LLAS), as Leah Lillith, as Leah Albrecht, and as Leah or LL, with the last names completely omitted. But at the time of this March 2000 essay, Leah had changed it again to Leah Piepzna-Samarasinha. Note: Leah was not yet using the name Lakshmi. That was added a few years later. Leah was one of several white riot grrrls who were frustrated at being rejected by some mainstream presses so they made the unfortunate decision to “work the [publishing] system” by taking on self-bestowed ethnic sounding names with the explicit intent of defrauding small bipoc presses. Essay text: “Ammachi stories Excerpt from the last boat, biomythography in progress” By Leah Piepzna-Samarasinha 5 years I think after she died & I barely noticed, my grandmother starts talking to me from just under the bedroom ceiling. Things I don’t even want to hear about the father I don’t talk to. 1943, Kuala Lumpur It was almost too late when we got to the Singapore boat. *Buddhu amme*, the bombs coming down, one time two time everywhere all around the house, Ayah Nancy screaming, Jeremy, God-rest-his-soul screaming, all I can think about is Christabel and G and Renee. How they didn’t move away. They didn’t move to Malaya because of any damn engineer job, or to start the labor revolution someplace that wouldn’t kill them. Wild Alvis girls settle down quite nicely, thank you. I’m seven months heavy with Christian, the belly sticks out of my skinny body. I feel every bomb hitting like a fist pounding my womb, & I think, *stupid*, *superstition*, *is that what the nuns taught you*. Maybe this is the Almighty’s punishment. For how I made this baby, even though Ellis still pat my belly and smiles, clueless. Maybe I’ll lose it & it’ll be all for the good. All that pregnancy, ay-o, I’m in dread. Who know what colour the baby will come out? I pray every night for him to be light, anyway, even if not blonde, like Frederick. Then while I’m trying to sleep I think no, damn them all, no! Let him be dark as his father, dark, and bitter as tamarind pulp, with great black eyes like Roshan’s. Then Ellis will leave me, all the aunties will cluck in trembling disgust and smack their lips over me. I don’t care! All this going through my head as- boom- the window glass crashing out of the frame- boom- the almyrah tips over- boom- Ellis is going red and brown, in and out, like a puffed up balloon and then like a hollow man. There’s no rickshaw, no, nothing. The servants have fled or are hiding under the house with the kingsnakes. I grab the two photograph albums before Ellis grabs my arm and I grab Jeremy and we are running through the streets. There we see a few rickshaw but even for a rich Burgher family with a 7-month gone wife and Ellis, waving a fist of money and screaming, and a little screaming blonde boy, maybe especially for us, they don’t stop. The last boat comes when we have been standing for hours. I’m shaking all over, flying glass has cut my scalp & we are all plastered to the knees with red brown mud. I grip the albums under my armpit, and as we get onto the last boat out, going back to the family I spent all of me fleeing from, they are the only thing I take back. I clutch them to my mud-streaked breasts, the home I’ve spent all my life running away from. [this is only part one of Leah’s essay but I can only address so many lies at once]

Also, Alice Wong is a vicious enabler of many narcissistic abusers including Leah. Alice is fully aware of the egregious abuse that is occurring and has participated in erasing reports of harm smearing survivors who try to address the harm and aiding abusers in financially exploiting disabled people on ssi. Alice has stonewalled all attempts at accountability and has viciously attacked survivors and endangered lives by condoning and endorsing dangerous narcissistic abusers. She is actively colluding in abuse and harm.

Care Work is not a resource it is written by a white person named Leah Lillith Albrecht who is a fraud and is actively abusing disabled people (and animals) in multiple cities states and in at least two countries. Leah has a very long history of harm spanning decades that has dodged accountability for since at least the mid-90s. Speaking of lies, Leah’s ancestors are European. Leah did not grow up poor or working class either. And Leah has told egregious lies about their education and background. Leah falsely claimed status as a first generation student to steal thousands in resources designated specifically for first generation students. Her parents actually both have undergrad and graduate degrees and postgraduate education. Leah is a fraud and has no business speaking for or representing any of the communities she is defrauding and exploiting

Whenever I think of disability, I picture a PHYSICALLY disabled person but I'm getting the feeling more and more that disability advocacy includes (and may actually be a majority) MENTALLY disabled persons. Is there friction between the two groups? And I also get the feeling that those who identify or have been diagnosed as neurodivergent/autistic make up a large portion of the mentally disabled group. Do those with other mental health diagnoses like, for example, schizotypal or bipolar disorder or schizophrenia feel heard in the disability advocacy community?

I want to take my dad who has mobility problems. Does disney have wheelchairs we can rent in the ship? Im flying from california to florida and dont want to take the wheelchair.

It breaks my hart to hear all this as a wheelchair user I understand where you’re coming from especially when minutes add up to hours I think it would be easier for imagers to spend the day in a chair thinking of designing something for easy accessibility

I am shocked because the first thing you learn in traditions is to one get on that person‘s level and talk to them directly. It’s called inclusion it’s called courtesy and show.

It's time for Disability Advocates to go beyond requiring ramps to businesses and so forth. It's now a matter of broad cultural representation and personal psychology. It's time to move into the gray areas...

Thank you for the resource list!

Given how ashamed you seem to be of being white and the fact that you feel the need to apologize, I'll take what you say to heart. I've chosen not to listen to anything you've said, because you're a white woman. Sorry about your mitochondria or whatever lol

"It individualizes us to the point where we can't identify or empathize with other people" is such a brilliantly succinct explanation, thank you for that and for this whole video.

I'm assuming you are in america, and can everyone just use the disabled parking space? I'm in germany and here you only can park there if you have a plag, if not you get a parking ticket and have to pay a fine. Which is good on one side so non disabled people dont abuse it. But on the other side, you aren't abled to decide if you are disabled "enough" but the state does and also only people that are serverly disabled (schwerbehinderter) are able to use this accommodation.

At some point it will need to be acknowledged that European culture was far more sophisticated then any other culture. The reason "white people" are drawn to European culture is because it has a higher standard. American culture use to be closer to the European model which was more difficult. In turn created more resilient and intelligent people. It would be better to hold everyone up to the same high standard. Then you can truly judge accomplishments instead of people getting handouts and pity.

thank you

HI! I'm a Neurodivergent BIPOC Queer person and I deeply appreciate the clarity of your points (and your call-out from inside "white culture")! It's TRUE, the erasure LAYERS! The angles of marginalization push people further and further from stability and inclusion. In terms of disability advocacy, it requires all the more "spoons" on-top, just to reach the same conversations when dehumanized for additional identity factors. Trying to be one of those voices out here and I thoroughly enjoyed your video! I have a series on my @spookyjthebard channel called "Neuro Spicy Jam" that aims to reframe BPIOC-ND experiences through music. It's all about telling OUR bigger story together! Subbed and liked! Blessings in your work and life, Kindred!

With respect, the Disabled community comes in all shapes and colors... we are just people. PLEASE dont "color" us

I live in the UK. I don't know what it's like where you live but what you're saying has already been disproved. Btw, one of my diagnoses is also a mitochondrial problem...and it ain't no fun, right? Opportunity is about class and filial background, not about race/colour. What "guilt" should I have as a white working class woman? Under your criteria I'm calling YOU out for hurting ME. What would you like to do about that? Certainly you're proving in your reactions that being disabled doesn't automatically allow you to understand other people's troubles. Thank you for that exhibition. I have NEVER had the privilege of ebbing assumed "innocent". Perhaps you're just lacking imagination that you can't see other realities? I suggest that YOU just listen and "hold space" for the working class people who are disabled. "White fragility". What cool-aid are you drinking? To use your own words you're "doing something wrong".

I’m really enjoyed everything you had to say on the matter- please bear with me, I have a solid 7 minute +/- 90 second attention span, and from there I sacrifice either understanding or information. So I’ve been fascinated by this very concept of Lies 1- blurring into Lie 2 ever since I had my first ‘real’ (not small/superficial) talk with white non-NJ people. This matters as the most shocking takeaway for me was that they legitimately did not see ignorance as a fault or deficit of the ignorant which was SHOCKING and very VERY WTF to me as the Court of Law is VERY blatant when it comes to addressing accountability even when ignorant. So, ever since then, I have come to define very strict distinctions as I do feel it is my duty to educate ignorance (I have benefited more than most exploiting my ‘passing’ demeanor and relishing in white privilege) since the least I could do is be a voice for the systemic voiceless. So, I have just come to emphasize, the overall structure of the system when it comes to white supremacy literally existing in every corner of our society. As in, many cultures would address and emphasize land in their Laws whereas Western governments never did that and since they were the ‘colonizers’ deciding who was a person or not- obviously those laws and their supporting structure designed by colonizers were white-centric because those were the only humans and everything else were merely resources, not to be factored into law only as property when needed. So, I know you began with good/bad- but any discussion I have I explicitly state that is not a valid argument and if that’s your only position, you do not have one to provide. If they try deviations, but not really- then, I immediately switch to how good/bad can be replaced with ignorance. They eventually concede and so begins my dismantling of why at the core of their ignorance is an unconscious support for white supremacy- usually by emphasizing how if land was not considered and up to 1865 only ‘white men’ were people, then obviously the overwhelmingly white male government in USA (60% vs general USA population of white men is like ~half that) is going to keep pushing a system their literal grandfathers supported (because average government elected is like retirement age of 68/70s vs general population being like mid/late 40s or so). Turns out, many of the ‘ist/ism’ supporters struggle with using ‘logic’ and ‘research’ to argue their points when you impose on them strict timelines w/ the points you addressed about ‘advocacy’ and the constant push for a ‘sob’ story- which by the by, is a hugely CONDESCENDING element to consider- we mostly feel’ bad’ because we think the sob story stems from a ‘lost’ or ‘hopeless’ situation and therefore ‘not like us’ perspective. If the story of disability was meant to make us all feel ‘relatable’ there would not be a need for the pity element. So dehumanizing, I do not have the clay to highlight it anymore.

We learned heaps about mobility on our last cruise, our first with my husband in a power chair. I agree with you about people being inconsiderate - staff guiding through restaurants either rushing ahead too quickly (if my husband was using his cane), or not being aware of chairs and such in the way (when using the power chair). It was a good eye opening experience.

Lütfen tekerlekli sandalye de giyinme videosu çek buna ihtiyacım var ❤bu arada çok tatlısın ❤

Omg! The response that some people feel uncomfortable is OUTRAGEOUS!

Prayers