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How are You?

Very enlightening yet informative. I just got diagnosed with Prostate Cancer at the age of 51, and so worried about sexual dysfunction as a result. Your podcast eases some of my significant concerns. Thank you!

Very thought provoking . I got mine 2009 . 9 Gleason score .2016 when to bones .

Thanks Mark for your detailed explanation of your experience. I’m lucky to live only 10 miles from MD Anderson in Phoenix, Arizona and have had excellent care during the past year. My PSA was initially very high.I had the biopsies, started on Lupron 3 month infusion and pills, PSA down to non detectable, radiation treatments, etc. I’ve had all of the side effects you mentioned and will continue for another year of 3 month follow-ups with blood tests, pills and Lupron infusions. I’m 82 years old and it’s so important to a great support group, positive attitude and remain active.

If you think your testosterone recovers as soon as you stop Orgovyx, you are dreaming And Lupron type injections keep your testosterone low for years, and permanently for up to twenty percent of older men After 18 months or more of ADT, 75 percent of all men WILL NOT RECOVER THEIR TESTOSTERONE LEVELS EVEN AFTER A MEDIAN TIME OF FIVE YEARS. Orgovyx is reported to have a faster recovery, but men report low levels for many many months or more. Cross your fingers and hope you are one of the few lucky men who recover their testosterone

Thanks Mark for sharing the video. I am 67 years of age. I had my robotic prostatectomy carried out early Saturday morning at Ross Hall hospital Glasgow by Dr Imran Ahmad and it is now early Wednesday morning. So far everything has gone exactly to plan. The surgery has been a success and I was discharged home after two days with my catheter in place. I will return to hospital 10 days after the op to have my catheter removed. Like yourself I have a great consultant who filled me with confidence from the moment I met him. I basically had all options open to me to treat my cancer but decided on the robotic prostatectomy route with Dr Ahmad and I'm so glad I did. So far so good. Good luck with the rest of your journey Mark. God bless you Dr Ahmad and everyone who looked after me. Patrick🍀

Hi Mark, thanks for sharing and wish you all this is a thing of the past from now on. I may soon need radiation therapy, after my prostatectomy 1.5 years ago. My urologist is absolute that radiation causes impotence for sure (and more). I would really appreciate if you could inform me if that is true. Thanks so much for everything!

You are Blessed to be able to afford and have access to good health care, many are not as fortunate.

The effects of radiation therapy takes time to notice.

Thanks for the video. I’m 70 and just had prostate biopsy & rotator cuff surgery two days apart. ( Had to be off blood thinners for both) I do have prostate cancer and will soon have surgery. Your video gave me comfort. Thank you for sharing.

Congratulations

Hi I'm 49 I have to make a decision to have an operation or not. Now this guy is encouraging but all the negative comments are off putting. I have major anxiety about the op this guy encountered me you guys have put me off with your comments. I may just not have the op and let the cancer do it's thing

Hey Mark, glad to hear you are doing well after ADT and radiation. Very happy for you as you look towards a healthy future. Thank you for sharing your story, and keep up that positive attitude! (I am 5 months post surgery, GG4, GS 8, and pT3aN1from the path report. 1 clean PSA so far, next one coming up soon)

Congratulations Mark!! Thanks for sharing your experience. I’m currently taking Lupron and will start my radiation treatment in early October. I hope my treatments go as smoothly as yours did!!!

Good luck Mark….blessings thanks for sharing…I really hope you’re cured😊

My husband had a prostatectomy on the 3rd of March in Athens Greece where we live. Unfortunately we are struggling with urethral stenosis that is destroying us. He had an optical urethrectomy on the 26Th of July the benefits of which only lasted for 2 weeks and now we are back to square zero. It’s so discouraging and despairing. It could have been caused by the catheter. I really don’t know. I wonder if anyone knows about urethral stricture. So glad to read that you are doing well Mark. God bless you.

Thanks, Mark! I'm 77 and pretty active with workouts and sports activities, and sexually as much as possible. I have a fairly high PSA and one prostate doc says we need to go in and take it out surgically. He has done (thousands) of these. I'm concerned, that if I do that, first it will be the urinary problems, and in addition, if the doc severs or removes the nerves that control urinary and sexual/erections, my sex life may be over. When you had yours removed, did they take it all out including the nerves? or did they do a nerve-sparing surgery?

Thanks a lot, Mark, and congrats. Your comprehensive report helped me a lot!

I've watched all of your videos Mark and some...TWICE!! I am going for my simulation in 3 days and treatment starts maybe in 2 weeks (radiation photon)! I just hope I don't have any regrets taking photon over proton Mark. Since I been diagnosed I have researched and I chose PHOTON radiation BUT PROTON was my number one choice. . Here near Boca Raton Florida. I guess the reasons why I chose photon was convenience. I liked the oncologist, too..Proton was not THAT much further away. That is the reason why I'm saying I hope I don't have any regrets! But I refused ADT. I did a lot of research and as you say... " Lowering testosterone is not proven". I am considered ( almost). " Unfavorable" . Gleason 7 in 5 cores. Only in capsule. I had two biopsy opinions on the original biopsy and both came back ... DIFFERENT!! One has low volume (5%) on the 3 + 4 and the other one ( John Hopkins) came back 40%!! Made things very stressful for me. One question Mark : did you have the spac-oar inserted? If so was it a general or was it done local. Can you please tell me if it was painful etc. oh wait! You had a prosectomy so maybe you didn't need it! I'm eating extremely healthy (no cereal no sugar no milk etc.) Play tennis almost everyday! Lost 15 lb.

Mark you are the best. Better than a doctor. I’m from pa. I had my prostate removed. And love your pod cast

Very informative!

My boy Mark so glad you are doing well.

Hi I am a Gleason 8 T 3 A and choosing surgery in hindsight would you have chosen adt and radiation over surgery Paul

Thank you for hope!!!

Congrats on where you're at, Mark, and congrats on the last Orgovyx. My PSA was 525, which was terrifying at the time, so I went on Orgovyx, Nubeqa (both ADT's), and Lutetium (liquid targeted radiation) (6 sessions 6 weeks apart). I didn't have prostetectomy. Now, 18 months later, PSA is .1, cancer, which had metasticized, has gone, and I'll continue on ADT's for a while longer. I NEVER lost libido at all and haven't had much sexual dysfunction, either. Gained no weight. Have exercised like a maniac, eaten extremely well and carefully, and supplement with a few things. Thanks for sharing YOUR story.

Congrats

Welcome back!!!! All the best going forward

Hi Mark, firstly congratulations on completing your radiation treatment and hopefully now you can move on with your life. I am embarking on my own prostate cancer journey. I'm 52 so I'd imagine our ages are not to far apart. I was diagnosed with gleason 7 (3 +4).so I'm being lined up for radical prostatectomy ( da vinci style) in the coming weeks. I have followed your journey and I just wanted to say thanks for sharing your experience with us. I'm heading into the unknown and I guess that is quiet scary but your journey has given me a great insight into the road ahead and while every patient of course is different the doctors nowadays have so many ways to treat this disease and for those even who aren't cured they can keep the disease in check for many years so there is a lot to be optimistic about. I sincerely wish you Mark and your family many more years of health and happiness.God bless you.

Thanks for your video. It gives me peace of mind.

Great stuff Mark. I finished my radiotherapy in July using a Varian Truebeam machine. Another awesome bit of kit. Just 20 sessions for me. ADT is in it's 2nd round and I'm hoping to move to 3 month shots in January. It's true the end is bittersweet and I do miss the support from our excellent NHS staff here in the UK. Still, up and onwards. I'd show you may bell ringing video but not sure how to attach it here. Be safe. David

Great to hear where you are, Mark. Here's to a long and little c free life!

God bless you Mark!! Thank you for all your help from all of us!!

I completed 40 treatments in 20 visits of Proton Beam surgery, earlier this year at Loma Linda Hospital in SoCal. This was done with No ADT or other meds or injections. There is some debate as whether hormone therapy is necessary with Proton Beam therapy. I guess time will tell how this goes but so far so good.

Thank you mark for all your advice and positivity for those of us going through prostate cancer!

Hi Mark, it's great to hear your good news! Best of luck! As someone who went through surgery, it has been very worthwhile to watch your podcasts, which are thoughtful, careful about correct information, and interesting.

Congrats Mark, god bless you.

Congrats! Thanks for sharing your experience.

Hi Mark , Congratulations ! 3 bell rings... 😅. I have my radiantion treatment was completed also. I've been on Endrolin as quarterly injection and 2nd Generation Apalutamide [Erleada] for daily take, however, the PSA still rising. Btw, I underwent RP last 2020 and since then I've been your your follower. Did you have the PET Scan before the Radiation? I have mine and seen the recurrence in the urethra , where the connection was done... What is your PSA Level now?

Damn.

Mark did you radiate the pelvic lymph nodes ?

5 years undetectable psa post RRP, but did your pathology show any positive margins? Wishing you remission and successful outcome from salvage radiation and adt!

Thanks for sharing. I wish you the best. I appreciate all of your videos. I had the prostatectomy 2 years ago.

Mark when you had your RRP did your pathology report any positive margins?

Mark, Best of luck always. I so admire your tenacity and care for others.

Dear Mark, many thanks to you. Please, kindly let us know why have you opted for PSA to reach 0,4 and then started ADT+Proton radiation, and not earlier at around 0,2.

Wow I’m impressed your an inspiration to everyone im fixing to have my operation to remove prostate sep16 found your video thank god!!

Mark. Thank you. Very informative content. I was just diagnosed yesterday and to say the least it was tough to hear. After watching your videos I am encouraged and determined to best this. I’m 68 years old and have a 10 year old Grandson that needs as nd depends on me. I’m going into this fight to WIN. Thank you. Fred L

Afternoon/morning, I undergo radical prostectomy in September 2022 and upto date there's no erection but can manage orgasm, there's still urine incontinence,I have tried to use erectile medicine but nothing,what can you advise please

Thanks Mark. I'm going through the process. Next step is Petscan. At some point I will have to make a choice; Radiation or Removal. I'm 72 and in great shape. No problem with erection or sex. I value my quality of life. Any suggestions?

A wonderful presentation, I under wen brachytherapy 14 years ago. The cancer is in remission, my PSA indicates I have no cancer. But lou and behold my sex life died after the brachytherapy (14 years ago) I had a wonderful sex life before the procedure , but now it's gone. That's left me very depressed 😢😢😢 Help.