Prostate Cancer Recurrence - Knock It Out with Proton Radiation
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- เผยแพร่เมื่อ 6 ต.ค. 2024
- This is a new series of Mark's Prostate Cancer Experience. Seven years after my original surgery, we suspect that there's a little bit that got away...and has been sitting in one of my ribs for the past few years. Well, the battle isn't over as I seek out the ultimate weapon...Proton Radiation. This highly-sophisticated newer radiation technology target the area it needs to clobber but has a reduced affect on surrounding tissue and organ (unlike other forms of radiation). This video is Day 1 of my 5 day treatment plan. Let's get rid of this nuisance once and for all.
Mark all I can say is thank you from all of us that are about to go through this process. It’s brave Guys like you who are willing to share their experience to help others that’s makes the journey so much easier. Saying thank you isn’t enough for the help you have given out to all of us!! You’re an amazing human being!!
Hello Mark, I'm 4 months post radical prostatectomy. Thank you for your transparency and honesty. Praying for a full recovery for you...
I am a viewer from China. I am very sorry to hear this news.Because my friend's family got prostate cancer. I noticed you on TH-cam ,and I have been following your prostate cancer treatment ， You are a brave and optimistic person, great! Don't worry, be optimistic and be brave! Your family and people in the comment area believe that you can beat the disease and recover like last time! No big deal, come on!🙏✊✊
Thank you thank you thank you!
I was diagnosed with T2 stage 2 prostate cancer.
I am meeting with my surgeon next week to discuss and schedule my prostate removal.
You have helped me so much giving me hope !!
I’m 53 and a new grandpa!
And because of your videos I feel like I will see my grandson grow up !
You have a much better attitude than I. I was just diagnosed and dealing with removal or radiation at this point. I am in Tampa and have great resources here. Mentally I am struggling though. Your attitude is an inspiration and thanks!
Joe, what kind of feedback would you need to help you make a decision as to the type of treatment?
@@prostatecancerexperience I think I am good. I met with the rad onc at Moffitt and he spent 90 minutes going over all my options the other day.
I just contacted the center today. Will be having my first consult in the near future.
Mark , keep it up man , we're all rooting for you
Hi Mark, Don't give up, Summer's coming. Thanks for all your videos. They have shown me the road ahead and what I have to go through on the first of March when I get to meet the Robot.
God bless you Mark. I watched your videos prior to my DaVinci surgery in April 2022. Coming up on my 1 year anniversary of it. Thank you for sharing and I hope this treatment takes care of it for you.
My father was diagnosed with metastatic prostate cancer in 2020 even though he had regular PSA checks, so he must have gotten an unusually faster growing cancer. I tell him that his diagnosis saved my life because I am 54. My post surgery pathology stated that it abutted the wall. So far no recurrence but will stay vigilant.
Take care of yourself.
Thank you Mark, you are above WONDERFUL! I've gone through that and I stayed at 0.01 for the longest time, I'm now at 0.02. It's been about 2 years now. I'm 72 and not willing to give in. Just need to let you know how much it means to me that you share your story with the rest of us. You, me and other men going through this, just know we have each other, so your not alone in this Journey. Again, Thank you Mark. Frank.😀😃
Thanks a lot Mark, praying for your health. 4 days out from RPa and watching your experiences.
Mark, just starting down this road myself and found your video both informative and reassuring. Thank you. You are the man!
Thanks Mark, your honesty and candour on this journey is remarkable. I just stumbled on your channel. I am 2 weeks post surgery. Incidentally, i had my radical prostatectomy on the 9th of November as well. i have been binged watching your videos. Thanks for doing what you do. I wish you complete healing. You are an amazing human.
Thank you for your courage to speak out about your experiences. You are truly helping others. Prayers for a good outcome.
Mark, I am 6 month post surgery. You have been a great help. My prayers are with you and your family to get through this.
Very positive...I love it. Look at it as a challenge, what a refreshing approach. Thanks for including us in you journey.
Glad I found your post, our diagnosis are amazingly similar. I am a little frustrated because my oncologist decided to radiate the prostate bed even though I had a suspicious spot on 5th rib left and right after PSMA scan. I had very high Gleason and after radical prostatectomy no lymph nodes but some cancer in seminal vesicles. 2 years with zero PSA and 3 months ago PSA went to .15, month later .17 and second test .20. 37 radiation treatments of prostate bed and I just finished 4 of them. I am 60 years old, was diagnosed at 57 with no symptoms. PSA big jump during annual physical to 8 from 2, lump felt, biopsy, high gleasons, surgery. Thanks for sharing your journey.
Don't say "you got this".....say " God got this"!!!!! Good luck Mark! My husband has his surgery in two weeks!
'Bon courage' Mark and thank you for your fine TH-cam work 7 years ago and now
Thank you for sharing your experience.
Thank you so much for documenting your journey. You have helped me understand and walk through this journey with my husband. I will keep you in my prayers.
Kudo's and Many Thanks for sharing! Prayers to you for a speedy and successful treatment cycle. I'm 5 months post-op Nerve Sparing/RP and cheering for you.
Thank you for all of the info you're sharing. I appreciate it. I'm having a DaVinci prostatectomy next month, so your experience has relieved some anxiety I've had about what to expect post-surgery. I'm sorry you had a recurrence and my wife and I will be praying for a complete healing and recovery, as I'm pretty sure God wants you to stay!
Praying for you 🙏🏽
Hello Mark, what can I say that everybody else haven't. Thanks for the journey and outstanding information to help us what to expect during the up coming months and years. THX YOU
Thanks! Having surgery next week. Your positive attitude is very inspiring!
Will follow your next chapter of your journey with interest Mark. Thank you for sharing. In South Africa we have a saying in Afrikaans language "Boer maak 'n plan" which means, "Farmer makes a plan". You have the right mindset and making a plan.... We wish you all the best with help from above and persevering to get over this hurdle.
Sorry to hear of the recurrence. Glad to see you again. thanks for taking us along with you.
I am just shy of 64 and just received a disgnosis for prostate cancer. I am folloeing you here and love your candid and positive outlook, i will have the DaVinci removal in May and am hoping for clear sailing...however your vids keep things real and grounding....thanks so much.
Mark. I am 7 weeks post prostate cancer surgery here in the UK and things to date have gone well. I have taken great interest and comfort watching your videos and have found them very informative and helpful on my own journey. This video popped up on my uTube feed today and it stopped me in my tracks. I felt quite emotional and shocked. In fact I stopped what I was doing and took myself to a quiet place away from my family to watch it. I have not even considered the risk that post surgery the cancer can return. I really feel for you. I know you will beat this. Thinking of you with everything crossed. I love your positivity. Martin .
Yup same for me. I am 1 week post op and feeling good, but this just shook me a bit thinking I can never feel safe.
Good luck Mark and thanks for sharing your experience, helped me through this a lot.
Good luck with your Treatments! Hopefully this will take care of your rib! 🙏🙏
Hello Mark, wishing you all the best I just been diagnosed with prostate cancer and surfing for informational, and ran across your channel. Thank you for sharing your journey and praying for you in Jesus name amen.
Thanks for you videos. They really help. I wish nothing the best
Mark, I'm so sorry that you're dealing with recurrence. I've been watching your series because I recently had a close call with prostate cancer. Based on an MRI, my doctor said it was 60% likely I had it. But then a biopsy that sampled 16 sites didn’t find anything.
My father had prostate cancer. In fact, his was treated with proton beam therapy rather than surgery (at Loma Linda, when the treatment was very new). That was at least 15 years ago and he has not had a recurrence. He’s now almost 90.
Given that both he and I began having BPH symptoms in our thirties, I assume I’ll eventually have prostate cancer and, unlike my dad, I plan to just have the darn thing removed. Your series has been super helpful in addressing the unknown and the fear that goes with it. Ironic that, just as I was finishing a binge watch of all your episodes, this final one pops up. Literally within 30 minutes of that moment. Was planning to write you anyway, but of course this news changes the content of my comment.
Since I received so much hope from your cancer journey, I’m probably sharing some of your complex feelings around its recurrence. If it can happen to someone as optimistic and mindful as you, it can happen to anyone.
Will continue to watch your channel for updates. Will be praying for your success in completely eliminating prostate cancer from your life. Godspeed, my friend.
Hello! I pray & hope that u don't have Prostate Cancer. Since you are very knowledge person in this matter. I wanted to ask you few questions that my father has been suffering from Prostate Cancer as well. He had surgery as first step of treatment & results was good after surgery. But few yrs Cancer reoccured. Then he was put under Androgen Therapy to shrink & control it. Finally, he undergone Conventional Radio Therapy since there wasn't Proton Radio Therapy in our country that time & also it wasn't affordable. After Conventional RT, his PSA has been decreasing for a couple of years. Hoping & praying that he's completely cured.
So, my questions are whether there chances of me getting this disease. Currently, my age is 30. What measures/ tests should I undergone to keep a check on it. Also, How can an outsider take Proton Beam Radio Therapy in USA ?
@@contemplator1993 Hi Chethan. I'm not a doctor. I don't know enough for you to ask my opinion. I'll pass along some advice my father gave to me when I was your age. He said, "Every man past a certain age should be on a first name basis with a good urologist". I've followed that advice since I was in my mid-thirties.
What was your PSA initially
I don't remember. Fortunately, it's looking more like it might not be cancer. My PSA came down in response to other treatment but not enough. So we're still figuring it out.
@@Midnitexowboy
Was the Biopsy guided bye the MRI results (I think it's called Fusion Biopsy). I've just been through this. They took 51 samples, of which 8 were guided by the MRI and the others on a basic pattern. The MRI guided ones told a much worse story than the others that barely found anything.
first watchd your videos when i had my prostrate removed , very informative now im in the same boat as you again lookn at radiation
Good luck to you.
Mark, I’m so sorry to hear, that said “you got this”. My robotic radical prostatectomy is at Massachusetts General Hospital in March. Your positivity is inspiring. Tom
Thank you for sharing your experiences!
God bless you Mark. ❤
Mark, I've just received my Prostate cancer diagnosis on the 7th January 2023. I'm 61 have a PSA of 13.6 with a Gleason of 3+4. My Biopsy had 5 positive cores of 6 on the right hand side. I've spent a week trying to decide which treatment to have, RP or SBRT. I only binge watched your videos yesterday which made me decide on surgery. Sorry to here your journey moves on again, wishing you the best. Lewis, Birmingham, United Kingdom.
You are choosing wisely.
God bless you... thanks for sharing... I'll pray for your fast recover
Mark, sorry to hear about your recurrence. You are certainly an inspiration. I am 15 months post prostatectomy. What you are doing is a great help.
May God continue to bless. I know through God's help you will beat this too.
Blessings
Thank you for sharing. I have RP surgery scheduled but seriously rethinking that.
It is crap that it can come back after surgery but good to know what can be done if this reoccurs. Big thanks to you for your insights.
One of the unique aspects of prostrate cancer is that it can be hit with curative treatment after a recurrence. And it is not unusual to do so.
The stable and low PSA and singular site of spread tells me you'll be successful in eradicating this.
It is unfortunately very common as I can attest to it personally. 40% of men have a recurrence after surgery.
Hi Mark, wishing you a successful treatment and an early recovery, praying for you. You are an inspiration.
Hi Mark. Thx for doc your journey(s). You are an inspiration in your fight. I had RP surgery 8 weeks ago with 1 positive margin and first PSA of .02 at 4 weeks. I am preparing for possible SBRT down the road. I am surprised of your reocurrence at 7 yrs. I keep telling myself that so many people have bigger problems than me (very true of course). We just have to face the battles ahead of us. Thx.
Don, did you get a score after surgery of 0.02 or 0.20. It makes a huge difference.
@@prostatecancerexperience sorry, it was 0.02 at 4 weeks.
0.02 at just 4 weeks may become
@@robertmonroe3678 my 2nd test at 12 weeks was
@@dgre334 That is terrific news. I just finished week 4 post RP and had a PSA timing discussion with my doc just yesterday which is why I replied the way I did. Like you, I've mentally run through various possibilities and contingencies as I want to stay on top of this.
I was just like diagnosed with prostate cancer, Gleason score of 4 + 7 doctor wants me to get a bone density test and CT scan on abdomen and pelvis area. Looks like I'll be getting the proton therapy. I liked your video very informative.
Thanks for the information you going to be in my prayers have a great day
Hi Mark, sorry to hear of your recurrence. My PSA remained undetectable for the first 4-years after my prostatectomy but is now starting to slowly rise. Therefore, I'm keeping a close eye on it every 3 months. I wish you a successful secondary treatment, and thank you for recording your experience. And I love your positive attitude. It gives us all hope in the event we face a recurrence.
Hi, what numbers indicates PSA start rising,.01 and up, thank you
Good luck Mark .
Thank you for sharing your experience, I’m 57 and got surgery 3 weeks ago
What is the Incontinence like 4 weeks post surgery?
Thank you for sharing, I’m getting the PET/CT PHYLAIR results on Monday.🙏🙏🙏
I was diagnosed on 5/24/2023. Got to get complete body bone scan. Then I will buckle up for the ride.
Stay strong and keep fighting🌹
Wow I live in Knoxville. I was diagnosed late 2019 and had the robotic surgery at University of Tennessee Medical Center Feb 2020. Last PSA is demonstrating an increase and more than likely need the same treatment as you in the future. If I had know you were in the area I would have bought you lunch. I follow you on TH-cam and your journey. Thank you for your willingness to share with all of us. It has been so encouraging to follow you and learn from you. God bless and the prayers will continue for your complete healing.
Can I ask you a question , after surgery in 2020 did you have zero PSA ? you say you're PSA is increasing and you are likely going to need radiation treatment like Mark , have you had PSMA cat scan and are you being told treatment should be started sooner rather than later ?
@@mikescott6519 Great questions Mike. Post surgery psa was 0.02. The past year psa seems to have stabilized at 0.10. No treatment is presently planned. Surveillance is the plan to determine if psa continues to increase or remains stable. My understanding is the PSMA CT scan generally will not detect under a psa of 0.2. So it is a wait and see approach. Medical advances in prostate cancer diagnoses and treatments has been amazing the past three years.
Very nice guy.
Hope everything turned out Mark cuz I do watch all your videos but if I was you I'd probably would have done ... Nothing. I would have waited a little longer it's such a slow grower. Just saying Mark Hope everything is well Right now it's 2024 August. I'm about to take PHOTON radiation and I am going to REFUSE ADT treatments. The proton facility is ONLY 35 minutes away so it was a very very difficult decision. Between both facilities.
I’m 24 and I’m enjoying my final hours love your videos tho
There are quite a few RARP videos on TH-cam, but I must say, Mark, yours is the best. Not only super informative but the way you present the information is superb. By the way, was CyberKnife ever an option offered by your doctor? An reason why you chose Proton Therapy over CyberKnife?
Amen Mark!
I wish you the best brother. I'm on day 25 of 39 for salvage IMRT having failed surgery two years ago. This disease is a bitch. The mainstream portrayal of it is completely inaccurate.
I wonder if this recurrence was caused by your initial prostate biopsies Mark? Thank you most sincerely for all your videos…..I am now 10 months post op and you have helped me enormously. I wish you a full and speedy recovery Sir.
2 1/2 tears ago I had advanced Prostate cancer, found 1 area outside that had it. Extensive radiation and lupron injections for 18 months. PSA has been steady at 0.014 for the whole time until today read 0.038. See Dr. next week, very worried. Thanks for video.
I treated my cancer in 2017 with Proton Theropy in Hampton Va. No side effects or pain. ED: Can not help as that has been gone a while. Now in 2024 it is back. Proton people want nothing to do with me. Did not know all the after treatment rules. Seeing Dr. Freeze soon.🦇
Technology is amazing 🙏🌹
The PSMA scan - I am on the clinic study for it in Alberta.
Me too. In Montreal. I'm signing up for a trial, as well. The publicly funded PMSA PET scan will be used before surgery, if I get it (50/50).
Hi Mark Following your ct/pt PSMA scan. Did you then have a bone scan or MRI chest scan to confirm that there is prostate cancer in the bone.As I have recently been diagnosed with Gleason 9 prostate cancer had a ct/pt PSMA scan showed a bright spot on the rib I then had a bone scan which was clear.I’m now having this week MRI chest scan to further confirm if there is any prostate cancer on the bone.
I have also just started 18 months of Hormone treatment.
Thank you for sharing your prostate cancer journey.
Oh just remembered before choosing SBRT radiation treatment did they do a DNA cheek swab to establish your toxicity level and your tolerance to SBRT vs lower dose more treatments This is done to minimise after effects.
WOW! I am so sorry. Hope all goes well.
You should take a look at the Heidelberg Ion Beam Therapy Centre (HIT) in Germany. Pure madness. Gantry: First in Europe with heavy ions, first in the world with 360° rotatable beam exit (diameter: 13m, length: 25m, weight: 670t); Purpose: Designed for clinical radiotherapy, not for physical research; Capacity: Approx. 1,300 patients per year; Construction costs: 119 million euros, financed in equal parts by Heidelberg University and the German government
Hi Mark, I just watched your catheter video from 7 years ago....I had mine in for 3 weeks......then 39 factions of radiation....back in 2010/11.....so 12 years later I am flighting fit.....and 77 years old (young).....I am sure that you will be fine. Regards, James.
PSMA “PET” scan uses a radioactive dye to “light up” prostate cancer (head to toe). I had it recently and confirmed CA was confined to prostate. Bad news it showed an unrelated AROTIC ANEURYSM in my ascending (major) aorta. Actually that was good news because it was a ticking time bomb that could have killed me within a year or too. Had aortic repair/replacement surgery 5 weeks ago and am good to go. I start proton beam therapy he prostate CA in 2 weeks. So getting prostate CA literally saved my life (cardiac wise).
Proton radiation therapy was initially introduced mid 1990's at Loma Linda Chiledren's Hospital to treat brain cancer in children. Proton radiation is much different than conventional radiation. Please review online background comparing the several radiation treatments. Normally, proton radiation is done with small localized prostate cancer. Good luck..
JR, yes, you are correct. I am fortunate to have one of Loma Linda's specialists working on my treatment. While proton radiation is an exceptional form of radiation for spot-treating cancer, they have since developed a method to create a "cloud" of radiation in a broad area, such as the pelvic region and lymph nodes, to maximize coverage. Because of the Bernoulli effect of proton radiation (where the strength of the dose intensifies at the target location), this "cloud" will be at full strength, and the surrounding bones, muscles and tissue receive a considerably lower dose.
That's a bit rough, having it re-appear after getting chopped. I just got diagnosed last week. So now have to decide to chop early or try and delay the inevitable
Hello Mark. I’ve recently been diagnosed with a Gleason 7 (3+4). I still can’t believe it as I have no symptoms. I’ve been asked to choose between surgery and radiotherapy. You have had surgery, and now doing radiotherapy. Knowing what you know now, would you have chosen radiotherapy instead of surgery back in 2015 ? Wish you all the best.
Surgery should always go first, because you can not go the other way around.
Thanks
David, it's taken me 8 months to say thank you...but thank you.
MARK! Thank You. I was just diagnosed by my Urologist with "Possible ReCurrent". 8 years ago at .2-.3 and recently hit 2.7 suddenly. I go in for my PSMA PET Scan this Wednesday. Thanks for the Proton insights... Did you have a Biopsy confirmation? Was Cryo considered....? What insurance covered this/ Medicare? So many questions I have. Thank you again!
Considering Proton Radiation to treat my Prostate cancer instread of surgery. Only thing afraid of is the Lupron therapy side effects (hot flashes) , which takes away your testosterone which the prostate cancer feeds on. The Lupron weakens and shrinks the prostate cancer prior to Proton radiation.
Hi Mark, what was your Gleason score before the surgery? I did proton (28 treatments-70Gy) last year at Procure Proton in NJ. Good luck and thanks for sharing your Prostate Cancer Experience.
Hi Mark. I just had my robotic radical prostatectomy yesterday. But late last year I was watching your videos already when I learned I had this cancer. I am sorry to hear about the recurrence but am comforted by how you handle the situation. I asked my surgeon before I had my surgery as to what will be the next move if my PSA started increasing again, and he told me it will be hormonal therapy or anti-androgen treatment of that sort. I threw the question to him, why not radiation? He said NO. Did your oncologist discuss with you anything about hormonal treatment? I will include you in my prayers for healing.
I just finished radiotherapy!
What's going to happen next 🤔
Hi Mark from Canada. I received my biopsy results yesterday Jan 19, 2023 and the results came back as mid grade prostate cancer. I have another meeting with my specialist in two weeks to discuss next steps! Did you have any pain in your ribs prior to the possible re-currence? I only ask as I have had some pain in my lower rib area for a long time. I was recently sent for a Nuclear Medicine bone scan which didn't show anything in the rib area, so I'm just hoping that they didn't miss reading anything.
Have you heard of melatonin for killing cancer? Or fenbendazole? I’ve heard nothing but great things about these 2 treatments for killing cancer! They both have a Facebook group! Amazing stuff! God bless and I’m praying for you!!❤
An added query from me :
1. What was your Gleason score of the Prostate gland removed ( pathology report) .
2. Why didn't you go for SBRT radiation which is again for 5 days only and a recent trend - as I see from presentation of Dr Eugene Kwon of Mayo clinic
Gopal
India
I am interested in this also. My husband was just diagnosed with pc, gleeson score 6, psa 9.45 (or close). He was 100% ready to do the radical surgery after the diagnoses but 4 days later thinking about just doing observance. This scares me to death. His father passed at age 56 from prostate cancer. But his mother lived to a few days shy of her 93 birthday. He is an otherwise healthy man.
if it’s really Gleason 6 - Id do active surveillance
Mark, the PSMA Pet Scan is certainly a game changer and you’re going to zap the now-identified PSMA-avid PC spot on your ribs.
In my case (RP scheduled in three weeks) my doc used it as part of staging. While I’m not sure if it is sensitive enough to completely rule out any extra-capsular extension (ECE) that might lead to positive margins, that is the dream. It does apparently rule in/out other initial staging concerns such as distant spread, SVI, or lymph node involvement.
My surgeon hasn’t raised the idea of salvage/adjuvant radiation following RP (immediately or down the road) I suppose that depends on post -RP pathology.
You are so right regarding medical advances, etc.
Best of luck, no doubt you’ll zap this site!
Deus é misericordioso
Hello how are you doing my name Russell Jackson I just had my prostate removed three months ago I haven’t had my PSA done yet what I am looking forward to yes my PFA is down where It post to be do I have to go through any treatment Thank you Mark
Hey Mark, what do they do to appropriately protect your soft tissue behind the rib being irradiated? Is lung possibly falling into the radiation field a concern? I'd appreciate your input on this. Thank you for your post.
Deus.abencoe
Hai Mark
I am 74 , had a Robotic prostatctony in 2018. My PSA is rising - but Ga PSMA PET CT is not able to identify . I will repeat the scan after 3 months
I have been following your 2015 videos.
The fact that the scan shows in rib and not in Prostate bed indicates Metastatis .
Have u taken Harmone ( ADT) before the radiation .
GOPAL
INDIA
Did
Hi Mark, wouldvyou have had the prostate out if the latest radiology techniques were available st the time? Still trying to decide.
Hi Mark, I had my prostate removed in Aug 2019 with a 9 Gleason score that was downgraded to 8 post surgery. 6 months later PSA was rising so 38 radiation treatments. Fast forward to Friday my PSA was .03. I did a follow up independent lab test and it yielded .22. My oncologist wants to wait 3 months and get another reading before discussing treatment options. What made you decide on Proton therapy, it seems like a no brainer but there are so many dang options available. What was your decision journey like?
Ken, Proton therapy is less damaging to the areas around the prostate bed, so is a preferred method of treatment. However, many insurance companies will only approve IMRT, which is the more traditional photon radiation (still very effective).
thank you thank you i just got diagnosed have to meet with urologist monday to see what needs to be done, I am very sad and scared ofcourse wondering should i do radiation if thats an option of just have it removed. Praying its nothing worse but this is bad enough for me to handle I dont no if I can do it. And how to I find the best place to do it. I am in Buffalo NY we have rosewell but i hear both good and bad about them I guess I need to start researching. Also get very tired dont know if its from the cancer of just me but that neem happening for months now. Thank you for your videos I need them right now
I stayed local, I'm 57 years old living in Rochester and I had my Prostate removed 1 1/2 yrs ago at U of R Strong . The cancer got outside of the prostate a little they told me and it was an aggressive form Gleason score of 4+4 (8) PSA was 8. In my case removal was the best option because it's harder to remove tissues if warranted after you've had radiation the doctors said. Turned out after prostate removal my PSA went from 8 to .08 (they'd like it around .02 or lower). PSA started climbing over the months .08, .12, .14, .19, .27, .32 and .44. I had CT scans, MRI, nuclear scan test, 2 pet scans during the PSA increasing levels. I did 38 sessions of radiation (wasn't too bad) and hormone therapy that consists of 3 shots total over 6 months (side effects I have so far hot flashes, no sex drive, itchy patches, swelling of my right foot). I just did a PSA blood draw today and it was .02! Whahoo! You may be lucky and only have to do the seed type radiation... Either way, hang in there. Your mental state has a big effect on your healing. I'm religious so my faith and family was my biggest help along with my sense of humor. I get my last hormone (lupron) shot in 2 days! Good luck brother! God bless.
thank you I am sorry after removal you still had to do radiation but I am glad your almost done with it all and I wish you a long happy healthy life, I am going to roswell in 2 weeks for the surgery I am very scared hope I make it and I hope its done and gone after that 4+3 aggressive but they say right now its all contained fingers crossed best to both of us
@@MrKitty-zv3dl
What does proton treatment cost assuming no insurance?
It's horrifically expensive, and insurance companies will often deny it, and suggest other type of radiation. But, you doctor can coax them into a approval, if they try hard enough.
Wow, that’s very low psa to be getting radiation!
It's not.
How does one get that type of cancer? Is it hereditary?
So you sit on a possible reoccurrence a possible reoccurrence but not 100% reoccurrence OK man well I don’t know that I will just go and have proton therapy on a possible reoccurrence
Everyone is different and the types of treatment they choose to get or not should be respected. Mental health is a big part of cancer. Some women decide to remove the entire breast instead of a lumpectomy...personal choice.
Nothing wrong with proton therapy but, 1. It isn't new 2. It hasn't been proven to be superior to photon therapy either in terms of efficacy or lessened toxicity. In fact, some studies have shown IMRT to have less toxicity. The outcomes are the same. Proton therapy was one of those therapies that looked awesome on paper but real world clinical evidence has not supported that initial hypothesis that it would be a superior form of radiation.
Thank you so much for this comment of yours I really needed it right now! Because I am debating on photon or proton for my prostate cancer. I chose photon. The proton facility is only 40 minutes away versus 20 minutes. I just would rather like the convenience of being close. The winter months are coming in Florida is notorious for traffic. So I'd rather be closer to the treatment facilities. And I liked the oncologist and nurses and whole atmosphere a little better at the photon place in Boca Raton Florida. Very tough decision. But your comment really encourages me that I did choose correctly. And I certainly did very much research.
Mark did you get the ... "space oar"inserted? If so locally or general. And if you did how uncomfortable was it.
@@ricknowak4582 SpaceOAR is for primary treatment when one has a prostate. He is in the salvage phase so no. (He had surgery to remove his prostate as his first line treatment).
Did they put you on ADT?
❤😁
Come on Mark , when the Doctors removed your cancerous prostate they also left cancer cells in your body that obviously spread to another part of your body. . This is a common occurrence when dealing with cancer surgery. Just ask any oncologist it’s as simple as two plus two. Your recommending surgery yet all surgery has done was complicate your cancer diagnosis.
David, I have a lot of compassion for anyone who has to go through this process. The anger should be directed at the medical care received, and not at the proven medical science. This is why I tell everyone who is about to get treatment for prostate cancer to do their research and speak to multiple doctors for a consensus.
Did we contributed to your healing sir business man? From the poor money that sended to you and to your company. You're so much concerned about your lives but keep destroying others lives.
I would rather try that first than get a prostatectomy. No really guarantees cancer free cause chance of recurrence down the road