Hey Mark, I've said this before somewhere, but just to back up your experience of ADT for the benefit of others: I have just finished 6 months of ADT. Before I started, I was terrified I was going to end up a flabby muscle-less effeminate mess boasting a fine pair of 36 double D's, so I started doing weights at home and daily brisk 5 mile walk a couple of months beforehand. Like you, I've had next to no side effects - in fact an almost identical profile to yours - the odd hot flush, reduced, but not absent, libido and I could still rise to the occasion. I've actually lost two stone in weight through careful but not fanatical diet and have increased my muscle mass significantly and have even replaced my moobs that had crept up on me over the years with a reasonably taut pair of pecks. I've had no emotional changes whatsoever. Everyone's different of course, and I may be one of the lucky ones, but from my experience, I can't stress how important exercise is. You don't have to train like Arnie, just push yourself to a sensible limit, but you do need to push yourself. Regarding radiotherapy itself, I had no side effects from that either, other than a bit of difficulty emptying my bladder after the first week (easily solved with Tamsulosin). I had VMAT (variable modulated arc therapy) where the machine head rotates around you, as RT allows them to put a margin around the prostate reducing the chance of missing microscopic spread as happened in your case. Full bladder, empty bowel is the mantra of the day. No coffee or fizzy drinks because you'll be desperate to go and your bladder won't be full enough. No beans or other "wind-inducing" food either. Oh, and don't wait until your first treatment to cut that stuff out - start at least a couple of weeks before to get your body into the rhythm of it. So far I've had no lasting side effects from the RT either. Now I'm just hoping it's all done it's job. Relapsing as you've experienced must be devastating and I wish you all the best in beating this thing.🤞🤞
Mark your videos are so helpful. I'm going on my 6th month since surgery and I'm feeling pretty good. The incontinence is getting better slowly but it's part of the game . I'm 58 yrs old and my wife and I are still very Sexually active. It definitely changes your life in certain ways but you definitely have to KEEP KEEPING ON. Thank you for your true support and look forward to your next video. I do appreciate everything you talk about. Good luck with your journey . Thanks again
Thank you for your transparency, im leaning towards surgery, I really dont want to do anything, but I want to live, i will pray for the best. Im 58 yrs old, pretty healthy and active, golf, basketball official. I hope i can continue to be able to do what i love, i was dealt this card in life, i cant let the dealer win, i will get a blackjack and win! Best wishes to us all.
Thank you Mark for every video and all the information you have provided about your experiences. I feel like you have been my biggest source of insight into the while process as I had my prostatectomy in Feb 2024. I am also having a recurrence and what you have been sharing is my biggest source of encouragement and has kept me going .
Mark, I found your videos right before I gave my prostate it's eviction notice..Jan. 2023. I had already decided that I would not let the "toothpaste get out of the tube".... I openly discuss with 50+ friends to get PSA levels checked especially for fellow firefighters. There's no reason for anyone to go undetected....get your own PSA baseline level and watch it. Thanks for your caring and inspirational videos. You are doing Menkind a great service by keeping more of us alive. Stay safe, Tim
Hi Mark. Great video and best of luck with your radiation treatment. I had a radical prostatectomy in 2013 and experienced a biochemical recurrence in 2022. My local cancer centre here in Kelowna, British Columbia is a fantastic facility and I had 29 radiation treatments in a new Varian Ethos machine which was really fast and uses AI to adjust treatment plans within minutes if there is an anatomical change detected in the patient. It was great. Like you I was also on ADT for multiple months, in my case Lupron. I have to say that Lupron is brutal and if there's an alternative offered guys should consider it. On your video you gestured towards your arm when talking about a Lupron injection. Just to note it is a honking big needle which is generally given in the thigh. For me the side effects were difficult. All the ones you indicated, plus two very significant ones I experienced. One was a brief interlude (about 3 weeks) with suicidal thoughts which I had never experienced in my life before. Fortunately I understood immediately they were related to the drug and I was able to cope (particularly important to tell people if this happens). The other side effect was that Lupron accelerated formation of cataracts (not a common side effect but it happens occasionally), and this past April I underwent cataract surgery on both my eyes. However, I'm now a year out after the end of treatment, my testosterone has returned to normal, and my latest PSA test is down to an "undetectable" 0.01, which is the lowest it has been since about two years after my 2013 surgery. Radiation plus ADT for biochemical recurrence is worth it! As you indicated, men have to overcome the fear of the side effects and tackle the challenge head on. There are too many good things in life to give it all up to prostate cancer! Cheers, Reid
Thank you so much, Mark, for sharing your story. I had my radical prostatectomy in 2019 and experienced a biochemical recurrence in 2023. My PSA reached .24. I put off starting treatment, but now I'm at a point where I'm being strongly advised by my oncologist to begin treatment. I was given my first bottle of Orgovyx two weeks ago. I haven't started taking it yet. I met with my radiation oncologist yesterday, and the plan right now is for me to begin 39 sessions of radiation right after the 4th of July Holiday. I'm usually very practical with a "let's do what needs to be done" attitude. But, for some reason, I must admit, I'm extremely nervous and anxious. I'm not sure what I want to do. I had my PET Scan last week, and nothing was picked up, so I don't know if I should wait and let the cancer grow to a point where it's detected on the PET Scan and then begin a more "focused" treatment, or if I should follow my doctor's advice and start treatment now. I'm so glad I found your posting on TH-cam. I'm sure it will provide the necessary "food for thought" I need to my the right decision. Again, thank you so very much for sharing your prostate cancer journey! I'll be following you and praying for the best outcome for you.!
It sounds like you are going through what many of us have. Truth be told, so much about treatment for prostate cancer and recurrence of prostate cancer is still a mystery to even the medical professionals. Their advice is based on decades of studies and data, and yet, when it comes to recurrence they are usually only definitive once cancer has spread to the bones and other places. So, in these earlier stages, the data suggests that you zap the cancer while it is young and unseen in PSMA and other scans. While prostate cancer recurrence can move slowly, why take the chance that it doesnt? For me, dealing with prostate cancer and recurrence was a binary decision. When first diagnosed, it was no question to me that the prostate had to come out. When it now seems almost 9 years later that some of those little guys are still present, it was no question to zap them. I hope this is the end of my journey with prostate cancer, but if not, it's onto the next methods.
Thanks Mark I have followed you for 5 years you are using your cancer to help others and I especially like your definition of Biochemical recurrence and I'll keep it in mind next month when I get my next PSA test.
I had my prostectomy last year and just completed 39 sessions of radiation to the prostate bed. I also had radiation to some minor spots on my spine and pelvis. I’m currently on Orgovyx and Erleada. PSA has been undetectable for the past three months. I want to think I’m close to reaching remission but sometimes I worry it will come back once I stop ADT.
Just completed my radiation and ADT after a reoccurrence. I had to take the 6 month shot due to insurance issues. Hot flashes are beginning to become less intense after a month off of ADT. I found that fatigue was challenging as well. You must stay focused on defeating the cancer and not like yourself become depressed.
Hi Mark, I live in South Africa. The sun is always shining here and there is always the risk of developing skin cancer if you have a light skin. I developed a growth on the lower eye lid of my right eye. I do not know if it is cancer or just a benign growth but I went on a high nutrition diet for about two months and the growth have shrunk noticeably. I would like to share the diet with you. The soup Ingredients: - two handfuls of Chopped broccoli, one chopped onion (purple), two bags of green tea, two pinches of mixed herbs, two sticks of cut celery, Two handfuls of frozen and crushed spinach or kale, half a table spoon of crushed garlic, Three shakes of black pepper, seven shakes of turmeric, two tablespoons full of apple cider vinegar (with the mother), one bag of white onion powder soup for flavour, a hand full of cooked red speckled beans and a handful of cooked mince meat. Just add all the ingredients in a pot, add boiling water and switch the stove on high till the water boils. Then lower the heat until the water simmer, Let the soup simmer for an hour. The soup is now ready. I would only drink water in the morning. At 12h00 I would start eating the soup. There will be about two helpings that you can eat in the 12h00 to 18h00 time frame. I also ate a fruit salad every day in the 12h00 to 18h00 time frame. (Note: Apparently turmeric reduces the effect of some chemotherapy drugs and thus should not be taken during chemotherapy.) During the rest of the week I would also eat food that contains vitamin D like avocado’s, mushrooms, liver and eggs in the 12h00 to 18h00 time frame. It seems to be working for me, maybe it will also work for you. I pray to God the Father in the name of Jesus Christ that you will be healed. Amen. I would also like to share the following six videos with you about salvation and two videos about evolution: Evolution vs. God th-cam.com/video/uc_W9VtzJ0A/w-d-xo.html DESTROYING Evolution In Under 3 Minutes th-cam.com/video/sWecPwrQv2c/w-d-xo.html Watch the Holy Spirit Work in Her Heart (Very Moving) th-cam.com/video/iBEoI2u6kII/w-d-xo.html Fearing The Lord, God’s Discipline & Sharing The Gospel th-cam.com/video/dES5WW66Mro/w-d-xo.html A Clear Gospel Presentation by Pastor Steven Anderson - How to go to Heaven th-cam.com/video/IXEeMWCxyrQ/w-d-xo.html The Plan of Salvation th-cam.com/video/PmkhRMPvt_0/w-d-xo.html How to Get Saved th-cam.com/video/ajWdkuvrT6s/w-d-xo.html The Truth About Hell (Selected Scriptures) th-cam.com/video/AVzbh_dLq3s/w-d-xo.html Best regards Chris “For God so loved the world, that He gave His only begotten Son, that whosoever believeth in Him should not perish, but have everlasting life”. John 3:16 (King James Version Bible) Jesus Christ is the only begotten Son Of God the Father.
Studies show that proton therapy is successful in treating and managing prostate cancer. As with all prostate cancer treatments, how well proton therapy works depends on a number of factors, such as how advanced the cancer is and the combination of treatments that it may be used with. The use of proton therapy in treating prostate cancer is continuing to evolve at any Proton Therapy Center, where most patients are effectively treated in only 28 sessions rather than 44. Most Centers have also begun researching the effectiveness of combining proton therapy with other forms of radiation therapy. The point is , they are making progress to reduce the long term side effects that people are facing today , for the last 10 years they did make real progress
Hi Mark I had my canser removed 16/5/24 and I feel great. Started plaing golf again 6 weeks. Stll have to test psa in 4 weeks. Thanks for your information. Brand Hugo from Pretoria
Mark, I just got done finishing listening to your video. Excellent. Just one thing. And I hate to complain I'm not complaining just giving you some .... Comment. The background music. For me I don't like it it's very annoying. Cuz I'm listening to your words so carefully paying attention and I hear that music. That's all mark. As usual a great presentation. I haven't started treatment yet. I'm waiting for one more PSA test which should be coming up Friday the results. And a .... THIRD (3rd) biopsy ........ "opinion". I am sort of leaning towards proton therapy. I am 70 years old. Been juicing eating alkaline vegetables and fruits trying desperately to avoid anything!!! So two tests will be due Friday I'm thinking so I will be making a decision very soon! Getting extremely concerned.
@@schmingusss PSA is produced solely from prostate cells, and even after surgery there may be some of them left over. The only way to lower PSA permanently is to remove or kill those cells. A temporary way to reduce PSA is to reduce your body's testosterone to almost zero. Meat, cheese and animal fats have been shown to have SOME impact on testosterone, but not enough to slow down the growth of cancer cells.
Orgovyx is very strong…my husband had to pause his Orgovyx due to rising liver count numbers. He had only been on one month. Its taking many weeks and he still has hot flashes
Amen Mark! Hey I'm pretty much on the same path you're traveling, just slightly behind you by a year or so in the time machine. Your treatment & progress I follow very closely & one day soon would like to chat with you in person. God bless you & good luck my friend on your adt & radiation treatments. 🙏🏻
Great video as always. I’m a few months behind you and meeting my radiologist tomorrow to begin the salvage process. My concern about ADT is much less thanks to your perspective.
Thanks. I took my first dose today. Orgovyx is a newish drug in Canada, but for any Canadians wondering… it has been approved but is still being rolled out to each province as they confirm the benefits are worth the cost. My radiologist said I was only the second patient he had prescribed it to and was curious where I had heard of it, right here of course. The drug company is really promoting the drug and is even paying for the pills to help roll it out. My prescription was available in less than 24hrs at the local shoppers drug mart.
Hey Mark. Love and appreciate all you do. I’m 1 year 9 months post prostatectomy and my case was similar to yours. My question is a little off topic but you said in this video your testosterone was at 800. Mine is only at 400 , I’m almost 59 and in decent shape. If you don’t mind are you getting help with your testosterone or is the 800 just your natural score. I would like to raise mine is why I’m asking.
Timmy, I naturally have high testosterone, which is great in some ways, but not ideal when prostate cancer cells are lingering. But, I should resume those levels after my treatment, and hope for the very best.
Mark, your Videos are great, helpful and very encouraging for me to face the future ahead. I’m recently diagnosed a prostate cancer by MRI and biopsy with Gleason Score of 7 (3+4), and PSA of 8.31. I’m about to meet prostate specialists for the options of therapy. You have gone through a journey of your treatment. You have got your prostate removed for cure, obviously an option for my PC treatment. I’m quite anxious and worried about the complications and side effects of the prostatectomy, especially incontinence of urine and impotence of sexual function. Could you please share your experiences of those complications and side effects ? After years of surgery, how are those complications going on ? Do you still wear diapers now, and how many of it per day ?
Chong, there is no easy answer, as each person will have a different experience. With Gleason 3+4 and PSA 8.31, the odds are in your favor that the cancer can be fully removed by surgery. If you elect to have surgery, your doctor should have at least 1000 such operations, plus he should explain to you his technique for preserving the nerves for sexual function and the muscles for urinary function. The techniques have become very sophisticated, and improve each year. Where are you located?
My husband will soon be receiving radiotherapy (HDR brachytherapy + external beam radiation) for a Gleason 9 and T3c prostate cancer. He asked if it would be better to install a SpaceOar type screen to protect the rectum wall and the radiotherapist, who is experienced and works in a university center well reknown for prostate cancer treatment replied that it would be uncomfortable and not so effective if the patient's position is well done with gold pellet before the treatment begin. What's your experience?
Chantal, the SpaceOar is designed to protect the rectum when the prostate is being irradiated by proton or photon radiation. With Brachytherapy, it would not be needed. I do not agree with the comment that relates the SpaceOad to the gold pellets, as one has nothing to do with the other. The SpaceOar is implanted prior to radiation, and remains in place throughout the duration of treatment. With Gleason 9 and T3c, I may recommend a more aggressive approach, which may include both surgery and adjunct radiation, which will assume that the more advanced cancer be targeted more thoroughly.
@@prostatecancerexperience Thank you Mark. I would like to add that my husband will also receive external beam radiation in addition to brachytherapy hence my question for the SpaceOar. Thanks for your great video! Very helpful!
I am 57 and have 4+3 with PSA of 5.5. PSMA PET Scan showed no metastasis. I have have chosen to get brachytherapy at KU med center. I then start on ADT for 6 months and external beam radiation on top of that here locally where I live. I was not sure on which one to do and no one would just flat out say you need to have it removed or Radiation is your best option. I chose radiation? I am praying that I have made the correct choice and pray that all goes well? I am most worried about the ADT part of this? I pray that you are doing well and pray for complete CURE. Thank you for sharing!
I agree 100%,. There are studies that say that you can live 10 years with treatment or 10 years without treatment that there's no difference. Basically there's no cure for this thing. What gets me is they give you this medication and if one doesn't work they give you another one to try. After all these years since 1971 Richard Nixon gave 1.9 billion for cancer research. And nothing has been guaranteed. Unbelievable. I have become totally overwhelmed was trying to come up with a decision to have proton radiation or prostatectomy. In either case I will refuse all hormone treatments. That's just me.
Janet, yes, that is correct. However, my understanding is that 6-12 months of ADT is not a significant amount of time for estrogen levels to rise to any degree.
@@crosschefgreg Greg, without knowing the full details of your case, I would say this is likely not the best advice. You should get a second and third opinion. Reach out to Dr Carducci at the Johns Hopkins Hospital in Baltimore, one of the country's leading experts on the topic.
Hi Robert. Based on your question, are you claustrophobic by any chance? If so, i know someone who has found a way to make scan in enclosed machines bareable. He wears a sleeping mask (cheap from pharmacy) so he cant see anything once he is lying down (before the machine starts), and sometimes takes a valium (really helps), (and listens to some of his favourite music when possible). These work everytime for him and hope this helps (if you are indeed claustrophobic haha) Hope you are doing well mate 👍😊
Robert, I get very nervous in CT or MRI machines. It's both the feeling of claustrophobia as well as the noise. Proton machines are massive, and really not claustrophobic. Still, for some the machine may be daunting enough to cause some anxiety. But, there are no noises. As mentioned below, if you wear a sleep mask during all of your treatments, you will be just fine. And, if that doesnt work, get a 0.5mg Xanax for the first few sessions, then you will be acclimated to them.
Mark ,why don't you try bare-foot walking? I have seen many testimonial cases in youtube whose PSA level drops dramatically by just walking in bare-foot ( grounding) on ground, grass, and wet sands where waves come and retrieve ( but not cement, asphalt, track with coating). Grounding will neutralize free radicals that cause all inflammation in our body. Follow instructions what your doctor says. But concurrently do grounding 2 to three hours everyday , shine or rain ( actually more effective on the rainy day since electricity passes better when it is wet.) The longer and more often you do the better you will be off. Good luck!
You should have never had your prostate removed. Your doctor most likely lied and didn’t tell you all of the facts. The surgeons business is surgery. I know of a half dozen relatives and friends who had seed implantation with radio surgery. All scans and tests reveal cancer removed . They still have their prostates , perfect urine flow, active sex life . No surgery and all of the garbage you are going through. You had terrible advice and this is has been on too long . I am sorry , but this is the truth. The medical profession has been corrupted. My friends and relatives are all living great lives with the MRIs , pet scans , blood tests cancer free. Radio Seed Implantation is the way to go.
You keep on having these broadcasts like this is the greatest thing. You are doing a disservice and it’s about time someone told you. You are not stating how the doctors lied to you . Shame on you.
Marty, my diet is mainly food that does not come out of a box, or is otherwise heavily processed. This keeps a lot of food open for you to eat, but focus on meat, vegetables, nuts, oils, fruits. Be creative. Watch sugar levels. And, the odd drink is ok, Vodka, Gin, Tequila and Red Wine. That's it.
Hey Mark, I've said this before somewhere, but just to back up your experience of ADT for the benefit of others: I have just finished 6 months of ADT. Before I started, I was terrified I was going to end up a flabby muscle-less effeminate mess boasting a fine pair of 36 double D's, so I started doing weights at home and daily brisk 5 mile walk a couple of months beforehand. Like you, I've had next to no side effects - in fact an almost identical profile to yours - the odd hot flush, reduced, but not absent, libido and I could still rise to the occasion. I've actually lost two stone in weight through careful but not fanatical diet and have increased my muscle mass significantly and have even replaced my moobs that had crept up on me over the years with a reasonably taut pair of pecks. I've had no emotional changes whatsoever. Everyone's different of course, and I may be one of the lucky ones, but from my experience, I can't stress how important exercise is. You don't have to train like Arnie, just push yourself to a sensible limit, but you do need to push yourself. Regarding radiotherapy itself, I had no side effects from that either, other than a bit of difficulty emptying my bladder after the first week (easily solved with Tamsulosin). I had VMAT (variable modulated arc therapy) where the machine head rotates around you, as RT allows them to put a margin around the prostate reducing the chance of missing microscopic spread as happened in your case. Full bladder, empty bowel is the mantra of the day. No coffee or fizzy drinks because you'll be desperate to go and your bladder won't be full enough. No beans or other "wind-inducing" food either. Oh, and don't wait until your first treatment to cut that stuff out - start at least a couple of weeks before to get your body into the rhythm of it. So far I've had no lasting side effects from the RT either. Now I'm just hoping it's all done it's job. Relapsing as you've experienced must be devastating and I wish you all the best in beating this thing.🤞🤞
Johnny, that's what I like to hear! You are a role model for others.
Mark, I'm 54.
Going in for surgery in July
Thanks a million for documenting your journey!
You are the MAN!
Mark your videos are so helpful. I'm going on my 6th month since surgery and I'm feeling pretty good. The incontinence is getting better slowly but it's part of the game . I'm 58 yrs old and my wife and I are still very Sexually active. It definitely changes your life in certain ways but you definitely have to KEEP KEEPING ON. Thank you for your true support and look forward to your next video. I do appreciate everything you talk about. Good luck with your journey . Thanks again
Jim, keep that positive attitude.
Thank you for your transparency, im leaning towards surgery, I really dont want to do anything, but I want to live, i will pray for the best. Im 58 yrs old, pretty healthy and active, golf, basketball official. I hope i can continue to be able to do what i love, i was dealt this card in life, i cant let the dealer win, i will get a blackjack and win! Best wishes to us all.
Dr8ke...stay strong...this disease can be fought.
I'm 2yrs post op surgery. My advice is pick the very best surgeon with the most experience. At least 1000 surgeries.
Cybernife is what I have been doing
Great episode, very heartfelt, thank you!
Thank you Mark for every video and all the information you have provided about your experiences. I feel like you have been my biggest source of insight into the while process as I had my prostatectomy in Feb 2024. I am also having a recurrence and what you have been sharing is my biggest source of encouragement and has kept me going .
You are very welcome
Mark, I found your videos right before I gave my prostate it's eviction notice..Jan. 2023. I had already decided that I would not let the "toothpaste get out of the tube".... I openly discuss with 50+ friends to get PSA levels checked especially for fellow firefighters. There's no reason for anyone to go undetected....get your own PSA baseline level and watch it. Thanks for your caring and inspirational videos. You are doing Menkind a great service by keeping more of us alive. Stay safe, Tim
Tim, just as you are keeping others safe.
Hi Mark. Great video and best of luck with your radiation treatment. I had a radical prostatectomy in 2013 and experienced a biochemical recurrence in 2022. My local cancer centre here in Kelowna, British Columbia is a fantastic facility and I had 29 radiation treatments in a new Varian Ethos machine which was really fast and uses AI to adjust treatment plans within minutes if there is an anatomical change detected in the patient. It was great. Like you I was also on ADT for multiple months, in my case Lupron. I have to say that Lupron is brutal and if there's an alternative offered guys should consider it. On your video you gestured towards your arm when talking about a Lupron injection. Just to note it is a honking big needle which is generally given in the thigh. For me the side effects were difficult. All the ones you indicated, plus two very significant ones I experienced. One was a brief interlude (about 3 weeks) with suicidal thoughts which I had never experienced in my life before. Fortunately I understood immediately they were related to the drug and I was able to cope (particularly important to tell people if this happens). The other side effect was that Lupron accelerated formation of cataracts (not a common side effect but it happens occasionally), and this past April I underwent cataract surgery on both my eyes. However, I'm now a year out after the end of treatment, my testosterone has returned to normal, and my latest PSA test is down to an "undetectable" 0.01, which is the lowest it has been since about two years after my 2013 surgery. Radiation plus ADT for biochemical recurrence is worth it! As you indicated, men have to overcome the fear of the side effects and tackle the challenge head on. There are too many good things in life to give it all up to prostate cancer! Cheers, Reid
Reid, thank you for sharing your experience. I wish you well.
Thank you so much, Mark, for sharing your story. I had my radical prostatectomy in 2019 and experienced a biochemical recurrence in 2023. My PSA reached .24. I put off starting treatment, but now I'm at a point where I'm being strongly advised by my oncologist to begin treatment. I was given my first bottle of Orgovyx two weeks ago. I haven't started taking it yet. I met with my radiation oncologist yesterday, and the plan right now is for me to begin 39 sessions of radiation right after the 4th of July Holiday. I'm usually very practical with a "let's do what needs to be done" attitude. But, for some reason, I must admit, I'm extremely nervous and anxious. I'm not sure what I want to do. I had my PET Scan last week, and nothing was picked up, so I don't know if I should wait and let the cancer grow to a point where it's detected on the PET Scan and then begin a more "focused" treatment, or if I should follow my doctor's advice and start treatment now. I'm so glad I found your posting on TH-cam. I'm sure it will provide the necessary "food for thought" I need to my the right decision. Again, thank you so very much for sharing your prostate cancer journey! I'll be following you and praying for the best outcome for you.!
It sounds like you are going through what many of us have. Truth be told, so much about treatment for prostate cancer and recurrence of prostate cancer is still a mystery to even the medical professionals. Their advice is based on decades of studies and data, and yet, when it comes to recurrence they are usually only definitive once cancer has spread to the bones and other places. So, in these earlier stages, the data suggests that you zap the cancer while it is young and unseen in PSMA and other scans. While prostate cancer recurrence can move slowly, why take the chance that it doesnt? For me, dealing with prostate cancer and recurrence was a binary decision. When first diagnosed, it was no question to me that the prostate had to come out. When it now seems almost 9 years later that some of those little guys are still present, it was no question to zap them. I hope this is the end of my journey with prostate cancer, but if not, it's onto the next methods.
Thanks Mark I have followed you for 5 years you are using your cancer to help others and I especially like your definition of Biochemical recurrence and I'll keep it in mind next month when I get my next PSA test.
26:16 hit hard. Thanks for letting us know we aren't alone in these fears!
Mark, thank you for sharing your experience and thoughts.
thank you , Mark
Thanks for sharing your experience. 😊
Thank you Mark, I'm scheduled for July 1, 2024 for surgery.. your videos are very helpful and encouraging 👍😀
Excellent video Mark, I’m your exact position at the moment.
I had my prostectomy last year and just completed 39 sessions of radiation to the prostate bed. I also had radiation to some minor spots on my spine and pelvis. I’m currently on Orgovyx and Erleada. PSA has been undetectable for the past three months. I want to think I’m close to reaching remission but sometimes I worry it will come back once I stop ADT.
I’m in the exact same boat 😮 Thank you for sharing, and good luck 🍀
Just completed my radiation and ADT after a reoccurrence. I had to take the 6 month shot due to insurance issues. Hot flashes are beginning to become less intense after a month off of ADT. I found that fatigue was challenging as well. You must stay focused on defeating the cancer and not like yourself become depressed.
Hi Mark,
I live in South Africa. The sun is always shining here and there is always the risk of developing skin cancer if you have a light skin. I developed a growth on the lower eye lid of my right eye. I do not know if it is cancer or just a benign growth but I went on a high nutrition diet for about two months and the growth have shrunk noticeably.
I would like to share the diet with you.
The soup
Ingredients: - two handfuls of Chopped broccoli, one chopped onion (purple), two bags of green tea, two pinches of mixed herbs, two sticks of cut celery, Two handfuls of frozen and crushed spinach or kale, half a table spoon of crushed garlic, Three shakes of black pepper, seven shakes of turmeric, two tablespoons full of apple cider vinegar (with the mother), one bag of white onion powder soup for flavour, a hand full of cooked red speckled beans and a handful of cooked mince meat.
Just add all the ingredients in a pot, add boiling water and switch the stove on high till the water boils. Then lower the heat until the water simmer, Let the soup simmer for an hour. The soup is now ready.
I would only drink water in the morning. At 12h00 I would start eating the soup. There will be about two helpings that you can eat in the 12h00 to 18h00 time frame. I also ate a fruit salad every day in the 12h00 to 18h00 time frame.
(Note: Apparently turmeric reduces the effect of some chemotherapy drugs and thus should not be taken during chemotherapy.)
During the rest of the week I would also eat food that contains vitamin D like avocado’s, mushrooms, liver and eggs in the 12h00 to 18h00 time frame.
It seems to be working for me, maybe it will also work for you.
I pray to God the Father in the name of Jesus Christ that you will be healed. Amen.
I would also like to share the following six videos with you about salvation and two videos about evolution:
Evolution vs. God
th-cam.com/video/uc_W9VtzJ0A/w-d-xo.html
DESTROYING Evolution In Under 3 Minutes
th-cam.com/video/sWecPwrQv2c/w-d-xo.html
Watch the Holy Spirit Work in Her Heart (Very Moving)
th-cam.com/video/iBEoI2u6kII/w-d-xo.html
Fearing The Lord, God’s Discipline & Sharing The Gospel
th-cam.com/video/dES5WW66Mro/w-d-xo.html
A Clear Gospel Presentation by Pastor Steven Anderson - How to go to Heaven
th-cam.com/video/IXEeMWCxyrQ/w-d-xo.html
The Plan of Salvation
th-cam.com/video/PmkhRMPvt_0/w-d-xo.html
How to Get Saved
th-cam.com/video/ajWdkuvrT6s/w-d-xo.html
The Truth About Hell (Selected Scriptures)
th-cam.com/video/AVzbh_dLq3s/w-d-xo.html
Best regards
Chris
“For God so loved the world, that He gave His only begotten Son, that whosoever believeth in Him should not perish, but have everlasting life”. John 3:16 (King James Version Bible)
Jesus Christ is the only begotten Son Of God the Father.
Studies show that proton therapy is successful in treating and managing prostate cancer. As with all prostate cancer treatments, how well proton therapy works depends on a number of factors, such as how advanced the cancer is and the combination of treatments that it may be used with. The use of proton therapy in treating prostate cancer is continuing to evolve at any Proton Therapy Center, where most patients are effectively treated in only 28 sessions rather than 44. Most Centers have also begun researching the effectiveness of combining proton therapy with other forms of radiation therapy. The point is , they are making progress to reduce the long term side effects that people are facing today , for the last 10 years they did make real progress
Hi Mark I had my canser removed 16/5/24 and I feel great. Started plaing golf again 6 weeks. Stll have to test psa in 4 weeks. Thanks for your information. Brand Hugo from Pretoria
After 6 weeks
Thank you
Mark, I just got done finishing listening to your video. Excellent. Just one thing. And I hate to complain I'm not complaining just giving you some .... Comment. The background music. For me I don't like it it's very annoying. Cuz I'm listening to your words so carefully paying attention and I hear that music. That's all mark. As usual a great presentation. I haven't started treatment yet. I'm waiting for one more PSA test which should be coming up Friday the results. And a .... THIRD (3rd) biopsy ........ "opinion". I am sort of leaning towards proton therapy. I am 70 years old. Been juicing eating alkaline vegetables and fruits trying desperately to avoid anything!!! So two tests will be due Friday I'm thinking so I will be making a decision very soon! Getting extremely concerned.
Rick, I agree. The background music is distracting.
Have you cut out meats, cheeses and animal fats? I'm trying this in a desperate attempt to bring my psa down.
@@schmingusss PSA is produced solely from prostate cells, and even after surgery there may be some of them left over. The only way to lower PSA permanently is to remove or kill those cells. A temporary way to reduce PSA is to reduce your body's testosterone to almost zero. Meat, cheese and animal fats have been shown to have SOME impact on testosterone, but not enough to slow down the growth of cancer cells.
Orgovyx is very strong…my husband had to pause his Orgovyx due to rising liver count numbers. He had only been on one month. Its taking many weeks and he still has hot flashes
Amen Mark!
Hey I'm pretty much on the same path you're traveling, just slightly behind you by a year or so in the time machine.
Your treatment & progress I follow very closely & one day soon would like to chat with you in person.
God bless you & good luck my friend on your adt & radiation treatments. 🙏🏻
Jim, I am happy to help.
Great video as always. I’m a few months behind you and meeting my radiologist tomorrow to begin the salvage process. My concern about ADT is much less thanks to your perspective.
I am always most happy to help wherever I can.
Thanks. I took my first dose today. Orgovyx is a newish drug in Canada, but for any Canadians wondering… it has been approved but is still being rolled out to each province as they confirm the benefits are worth the cost. My radiologist said I was only the second patient he had prescribed it to and was curious where I had heard of it, right here of course. The drug company is really promoting the drug and is even paying for the pills to help roll it out.
My prescription was available in less than 24hrs at the local shoppers drug mart.
On Lupron. Occasionally have hot flashes, interest in the opposite sex is zero. Other than that ADT side effects have been minimal.
Your sharing has been very helpful in my journey. Actually you inspired me making contact with Dr Samadi. Blessings bud.
Testicle shrinkage is definitely real!
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Had 9 weeks, 5 days a week of IMRT. Pretty minimal side effects.
Hey Mark. Love and appreciate all you do. I’m 1 year 9 months post prostatectomy and my case was similar to yours. My question is a little off topic but you said in this video your testosterone was at 800. Mine is only at 400 , I’m almost 59 and in decent shape. If you don’t mind are you getting help with your testosterone or is the 800 just your natural score. I would like to raise mine is why I’m asking.
Timmy, I naturally have high testosterone, which is great in some ways, but not ideal when prostate cancer cells are lingering. But, I should resume those levels after my treatment, and hope for the very best.
Mark, your Videos are great, helpful and very encouraging for me to face the future ahead. I’m recently diagnosed a prostate cancer by MRI and biopsy with Gleason Score of 7 (3+4), and PSA of 8.31. I’m about to meet prostate specialists for the options of therapy. You have gone through a journey of your treatment. You have got your prostate removed for cure, obviously an option for my PC treatment. I’m quite anxious and worried about the complications and side effects of the prostatectomy, especially incontinence of urine and impotence of sexual function. Could you please share your experiences of those complications and side effects ? After years of surgery, how are those complications going on ? Do you still wear diapers now, and how many of it per day ?
Chong, there is no easy answer, as each person will have a different experience. With Gleason 3+4 and PSA 8.31, the odds are in your favor that the cancer can be fully removed by surgery. If you elect to have surgery, your doctor should have at least 1000 such operations, plus he should explain to you his technique for preserving the nerves for sexual function and the muscles for urinary function. The techniques have become very sophisticated, and improve each year. Where are you located?
My husband will soon be receiving radiotherapy (HDR brachytherapy + external beam radiation) for a Gleason 9 and T3c prostate cancer. He asked if it would be better to install a SpaceOar type screen to protect the rectum wall and the radiotherapist, who is experienced and works in a university center well reknown for prostate cancer treatment replied that it would be uncomfortable and not so effective if the patient's position is well done with gold pellet before the treatment begin. What's your experience?
Chantal, the SpaceOar is designed to protect the rectum when the prostate is being irradiated by proton or photon radiation. With Brachytherapy, it would not be needed. I do not agree with the comment that relates the SpaceOad to the gold pellets, as one has nothing to do with the other. The SpaceOar is implanted prior to radiation, and remains in place throughout the duration of treatment. With Gleason 9 and T3c, I may recommend a more aggressive approach, which may include both surgery and adjunct radiation, which will assume that the more advanced cancer be targeted more thoroughly.
@@prostatecancerexperience Thank you Mark. I would like to add that my husband will also receive external beam radiation in addition to brachytherapy hence my question for the SpaceOar. Thanks for your great video! Very helpful!
On ADT for 5 months now. Having a very hard time staying interested in prolonging my miserable life. I have almost all the side effects.Hating life.
William, why are you undergoing 5 months of ADT? What is your situation? I may have some tips and pointers to help you with the ADT side effects.
Mark, the background music is distracting…can you eliminate that in future. Thanks
Absolutely
I am 57 and have 4+3 with PSA of 5.5. PSMA PET Scan showed no metastasis. I have have chosen to get brachytherapy at KU med center. I then start on ADT for 6 months and external beam radiation on top of that here locally where I live. I was not sure on which one to do and no one would just flat out say you need to have it removed or Radiation is your best option. I chose radiation? I am praying that I have made the correct choice and pray that all goes well? I am most worried about the ADT part of this? I pray that you are doing well and pray for complete CURE. Thank you for sharing!
When do you start brachytherapy? I have some concerns.
So what was the point in getting your Prostate removed, only to still have to go through radiation and ADT? Its such a crazy thing this PC. Wow
Getting it removed initially is always the hope that it’s the “cure”. No one anticipates a reoccurrence and needing additional treatment.
I agree 100%,. There are studies that say that you can live 10 years with treatment or 10 years without treatment that there's no difference. Basically there's no cure for this thing. What gets me is they give you this medication and if one doesn't work they give you another one to try. After all these years since 1971 Richard Nixon gave 1.9 billion for cancer research. And nothing has been guaranteed. Unbelievable. I have become totally overwhelmed was trying to come up with a decision to have proton radiation or prostatectomy. In either case I will refuse all hormone treatments. That's just me.
Do those pills raise estrogen levels? If one hormone goes down, other one goes up.
Janet, yes, that is correct. However, my understanding is that 6-12 months of ADT is not a significant amount of time for estrogen levels to rise to any degree.
Did you discontinue cialis/viagra during radiation in combination w ADT treatments?
I am not sure if ADT impacts the effectiveness of Viagra or Cialis. Good question.
If you can afford Orgovyx it’s a good drug.
Mark My PSA starting to rise 2 years after surgery still watching. My urologist talks of ADT therapy but no mention of radiation?
Greg, what is his rationale with ADT therapy? If you have not yet had an actual recurrence, ADT isn't necessarily a cure.
@@prostatecancerexperience not sure go back to check PSA in July she had mentioned ADT would be next step if needed
@@crosschefgreg Greg, without knowing the full details of your case, I would say this is likely not the best advice. You should get a second and third opinion. Reach out to Dr Carducci at the Johns Hopkins Hospital in Baltimore, one of the country's leading experts on the topic.
Is the Proton Machine as enclosed as a closed MRI or is it a bit open?
Hi Robert.
Based on your question, are you claustrophobic by any chance? If so, i know someone who has found a way to make scan in enclosed machines bareable. He wears a sleeping mask (cheap from pharmacy) so he cant see anything once he is lying down (before the machine starts), and sometimes takes a valium (really helps), (and listens to some of his favourite music when possible). These work everytime for him and hope this helps (if you are indeed claustrophobic haha) Hope you are doing well mate 👍😊
Robert, I get very nervous in CT or MRI machines. It's both the feeling of claustrophobia as well as the noise. Proton machines are massive, and really not claustrophobic. Still, for some the machine may be daunting enough to cause some anxiety. But, there are no noises. As mentioned below, if you wear a sleep mask during all of your treatments, you will be just fine. And, if that doesnt work, get a 0.5mg Xanax for the first few sessions, then you will be acclimated to them.
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Hows your diet ?
I posted a video about diet and workouts, have a look!
Mark ,why don't you try bare-foot walking? I have seen many testimonial cases in youtube whose PSA level drops dramatically by just walking in bare-foot ( grounding) on ground, grass, and wet sands where waves come and retrieve ( but not cement, asphalt, track with coating). Grounding will neutralize free radicals that cause all inflammation in our body. Follow instructions what your doctor says. But concurrently do grounding 2 to three hours everyday , shine or rain ( actually more effective on the rainy day since electricity passes better when it is wet.) The longer and more often you do the better you will be off. Good luck!
You are a joke. Stop spreading misinformation
You should have never had your prostate removed. Your doctor most likely lied and didn’t tell you all of the facts. The surgeons business is surgery. I know of a half dozen relatives and friends who had seed implantation with radio surgery. All scans and tests reveal cancer removed . They still have their prostates , perfect urine flow, active sex life . No surgery and all of the garbage you are going through. You had terrible advice and this is has been on too long . I am sorry , but this is the truth. The medical profession has been corrupted. My friends and relatives are all living great lives with the MRIs , pet scans , blood tests cancer free. Radio Seed Implantation is the way to go.
You keep on having these broadcasts like this is the greatest thing. You are doing a disservice and it’s about time someone told you. You are not stating how the doctors lied to you . Shame on you.
David, respectfully, you are not correct in your statements. Plain and simple.
Mark, please talk about your diet, foods and drink . Wish you the best outcome and happiness.
Marty, my diet is mainly food that does not come out of a box, or is otherwise heavily processed. This keeps a lot of food open for you to eat, but focus on meat, vegetables, nuts, oils, fruits. Be creative. Watch sugar levels. And, the odd drink is ok, Vodka, Gin, Tequila and Red Wine. That's it.