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Thank you. I’m currently on venlafaxine, gabapentin, clonozopam, propranolol, nortryptaline. I have not tried cefaly. I did use my tens unit and stuck it to my forehead and did that for a few days but ultimately stopped bc it was painful even on the lowest setting. And honestly i wouldnt be afraid to try gabapentin. I’ve taken gabapentin in the past for another issue and it worked wonders for that.. for VM it has done nothing and i was on a pretty high dose. Im coming off it now bc i noticed nothing at all from it, good or bad

However don’t let that disuade you from trying it, it could totally fix you. Everyone is different

it is beautiful, thank you.. still going up and down since then -_-

I cant do mmj, it makes everything way worse! I do have xanax but i havent taken it for years. Maybe ill try it some time 👍 yesterday was better in the evening and today is better. I still feel disoriented when i walk around. And today i keep getting stabbing pains in my left ear 😑

Ugh, so sorry! Sounds terrible. Next time you feel extremely dizzy and are in the situation where you can take Xanax, give it a try. It works wonders for me as a rescue. When I get to the point of being soo dizzy and unable to walk comfortably, the Xanax helps tremendously for the time it stays in my system. It doesn’t even mess me up, my body just sucks it right up and leaves no room for the relaxed feeling, but I’m ok with that! Let me know if it helps you.

I HATE the disconnected feeling 😒

hah no feeling guilty, I have days off too lol

Ya, its hard to push past the symptoms, sometimes i get really faint feeling but.. have to try to push on. I tell myself it can only help me

Thanks Jennifer, me too! :)

Thanks so much. Just upped my dose tonight.. like 5min ago actually so hopefully the next few days go well! I’ll be updating

I wouldn’t be afraid of medications. I’ve had some side effects from some but like i’ve said in the past. You never know whats the next thing that could totally change it all for you. For you maybe its nortryptaline 🤷🏻‍♂️ you’ll never know unless you try. I still get symptoms as soon as i walk into a tight space which i do often at work unfortunately.. but im experiencing a lot less all day symptoms when i walk.. i suppose that would be the pppd. So thats encouraging. Please try that med. I dont think it did anything for me but i also didn’t have any side effects from it. Try it, could really turn things around for you 🤷🏻‍♂️. Glad i’m able to provide some encouragement. We all gotta stick together

@@andysdizzyvlog6586 thanks, I appreciate that! I think I will give the Botox a bit more of a chance first. If that doesn’t work, then I will try the nort….reluctantly.. 😝

@@sarac2691 ha alright, keep me updated!

@@andysdizzyvlog6586 I definitely will! I felt a bit better the past week. I will wait for this round of Botox to run out then maybe I will have a better idea of how effective it’s been. I’m behind on a few of your videos, will catch up this week. Hope you’re doing great, chin up if you’re not!

there's my mother lol

What are you doing medication wise or supplement? Doing any vrt? Have you been diagnosed with vm or pppd?

Chiropractor has helped me tremendously and explained a lot of about the nervous system through my head! Only gone twice and feel like I’m out of the woods on the vertigo and the panic attacks it was causing 😳

😀 best of luck!

@@andysdizzyvlog6586 thank you! Nice haircut btw, lol

@@sarac2691 hah thank you, got a wedding coming up 🙂

You really think its subconscious fear? I don’t. I think its certain environments, the proximity of yourself to things that dont allow you to ground yourself. Environments that make it difficult for your eyes and your brain to communicate to yourself where you are in 3 dimensional space and your brain gets confused and just goes “ughhhh” and freaks out. Of course if you’re saying its subconscience then theres really now at to prove or know that. I personally do not have fear or anxiety when going in these places. Its not even a thought in my mind. If im at work and i have to go into a tight place to get a tool im actively thinking “where is the 3/4 studs” and i can feel my body start to feel “dizzy”… its possible its subconscience. I personally think its patterns, proximity to things like me in my kitchen with the cupboards or tight connexes or porta pottys where my brain is trying to figure out where im at in 3 dimensional space and is having a hard time bc the close walls are blocking my brain from having a ground to ground me to. Same with dark areas, im more off when entering a dark area from a light area. But.. who knows 🤷🏻‍♂️

Oh… and the question : are you feeling better ? It’s really overwhelming.

ooooh Argentina!!! Que bueno :) Estoy de los estados unidos. He estado aprendiendo español con un aplicación de mi celular. Practico cada día en la mañana en el autobús. Pero, Yo solo hago una clase por día. Yo trabajo con mucha gente de Texas, México, Guatemala, Costa Rica y incluso Argentina :) Tu ingles is muy bien... es mejor que mi español :p En fin... Espero que lo estás haciendo bien I have to continue in english.. but thanks for watching and I hope thing get better for you. I have heard of this "rock steady" from a few people. Maybe i should buy it. My hope was that my channel would serve as a venue for others to also not feel so alone. By the way, I hope to visit Argentina one day. I want to become fluent in spanish but... I'm so busy that I barley have time to do 1 lesson per day and I don't actually talk to anyone anymore in spanish and I'm not around it. I have been doing at LEAST 1 lesson a day for 780 days in a row now and I also listen to lots of latin music (used to) and I've tried watching spanish tv shows. I really would need to be in a spanish speaking country. I bet with the base knowledge I have of spanish.. if I was around people that ONLY spoke spanish for like 6 months, I would be fluent or very close to it. I'd like to do that in the future but... I can't travel at all until I get better -_- Please keep following my channel. I upload regularly, you aren't alone

@@andysdizzyvlog6586 Your spanish is very good ! Same problem here , I would like to practice english but I can’t travel for now. My problem appeared after traveling ! Yes, your channel is helpful ! that’s the reason I am following you, a lot of things you said sounds familiar to me. I hope things get better for you too !

@@maguidu94 gracias :) Your english is very good! I too am afraid to travel. But I had a really good day today at work, first day i've really had where I felt normal. Y tambien... mi problema aparecio despues de viajar. Yo fue a Miami y cuando regrese.. it got really bad. I had a few symptoms before but on the way there the we hit really bad turbulence and it scared me and the plane dropped like 50 feet down. Then every time I rode the elevator I felt like I would be bouncing down the hallway -_-

@@andysdizzyvlog6586 que bien ! It’s good to hear that you have a good day ! A light ! And also I travelled by plane and turbulences scared me . My brain have not been the same since that , but I think step by step I am getting better … Que mundo raro ! Espero que continúen los días buenos !!

haha ya.. just think positive. I do try to maintain a positive attitude and I try to laugh a lot throughout the day and just be happy but when you're in the swing of bad symptoms it's hard to fake a smile. What have you been diagnosed with and for how long and have you found anything that helped?

thank you very much! We will find a solution, hang in there. I'm trying to regularly upload as often as I can if I have any updates or anything meaningful to add

I need to, my mom sent me a link to her stuff. I def need to. I work 60 hours a week, not including my commute and whatnot, i barley have any free time.. which im sure isn’t helping my issue. But i’m glad you reminded me of her. I did watch one of her videos. What is your story? And where are you with your journey, have you overcome this?

@@andysdizzyvlog6586 I have been dealing with vestibular issues for 15 years, It started with a sudden hearing loss in my left ear and progressed to tinnitus, ear pressure and vertigo which I was told it was probably Menieres and would have to live with it. In 2015 I had a vertigo attack that evolved into the PPPD type symptoms but there wasn’t any name for it at that point and I had an ENT that mentioned it might be VM which I had already suspected, I finally stopped having vertigo and just experienced the woozy, imbalanced feelings often, I stopped all treatments and have been living with it, it comes & goes, I have bad pressure mostly in my face when I get a flare up but there’s always some kind of head discomfort and balance issues even on better days. I started seeing an upper cervical chiropractor this year in May and I was having a lot of wooziness that persisted after a few treatments so he checked me for BPPV and I definitely was dealing with that so he treated that and afterwards I have still been woozy a lot and he finally said that he thinks it’s VM and PPPD and he referred me to Dr. Beh, I have an appointment with him in mid October. I’d never heard of PPPD so I started researching and that’s when I discovered the Steady Coach, just listening to her videos and following some of her suggestions has helped me feel more grounded. I’ve been doing some of the parasympathetic breathing she suggests, you can do that anywhere even on your job, it works to calm down the fight or flight that our brains get stuck in. I hope you will find some time to listen to her videos. I signed up for her free course a couple of days ago but I haven’t looked at it yet, I have pretty bad photosensitivity so I have to pick a time that I can look at my computer screen and have time afterwards to rest and get my head settled. I definitely have hope that I’m finally on the right track to get this thing under control. There’s always hope. Never give up.

@@elainelucas527 likewise. Keep pushing. So sorry to see youve been dealing with this for so long. I pray we can both find solutions

@@elainelucas527 uploading some videos tonight/tomorrow. Check out my video about the vestibular exercises, there are these exercises you do with just your hands that really helped my clogged ears and tinnitus many times. it's not a 100% thing.. but it has helped me. Certainly something that's easy enough to do and won't hurt to try. Also I posted the 2 links to the mans videos I found the exercises from. check it out :)

@@andysdizzyvlog6586 Thank you for the suggestion, I will check out the videos. My left ear is so full tonight it’s painful.

Thank you! What is your story? Do you have VM and PPPD? And if so what have you done/taken that has helped you? Are you still figuring it out or are you good now?

@@andysdizzyvlog6586 Hi! Yes I do have both VM and PPPD. I’ve had VM for 11 years and was doing really well until January 2021 when it went into overdrive big time (my whole VM saga is a loooong story lol). I have been a big chicken when it comes to meds because I also have a heart issue and my heart can react poorly to many meds, but I have been prescribed a few different things. I take magnesium daily and ibuprofen frequently. I see Dr. Beh again in September and may opt to try gabapentin, will see if I work up the courage lol.

@@jen-k-1 i took gabpentin YEAAARS ago for a stabbing pain in my leg after i herniated a disc and my back and it aggrivated a nerve. But it fixed that issue. And stopped taking it. So when dr beh suggested gabapentin i wasn’t afraid to try it bc ive already taken it but honestly dont think its done anything

It is very strange my friend. And i wish i knew. I NEVER had headaches ever growing up. Until this all happened. I too am in good health, all tests and blood work, ct scans, mri scans, eeg scans, all the weird ENT tests, all the other strange tests they did to me. I’m still trying to figure it out too buddy. Just don’t give up. At some point you might want to consider taking some meds. I was hesitant at a lot of meds but at some point.. you either accept living like this… or we take a minor risk to potentially feel normal again ya know? Hang in there, we’ll get better

Mine is almost always constant. I have PPPD 24/7 and it gets worse with certain environmental factors. I dont ever get spinning vertigo. Its non specific dizziness that i just feel unbalanced and a very strange sensation where it feels im being pushed and pulled in all directions. Sometimes i get the feeling that i’m bouncing or falling. I could lean against a counter and it feels like im falling through the counter slowly. All sorts of weird phantom sensations. But the most common symptoms are pppd, so… a 24/7 unspecified dizziness or light headedness, on and off headaches and anxiety and mild dissociative feels like im not grounded in my body. Take a peak at my newer videos about starting venlafaxine. It seems to be really helping which im excited about. Basically been like this for.. 2.5 years-ish and this is the first med i’ve tried (and there have been dozens) that has felt like it was starting to do something. I’m uploading a video now but it’s being very slow uploading for some reason.

@@andysdizzyvlog6586 same, all day feeling like in boat

@@maxsl2678 what meds have you tried or supplements? Are you doing any diet or VRT?

@@andysdizzyvlog6586 there was an improvement when taking the dietary supplement Cortisol Support from Now Foods, and magnesium. I haven’t tried antidepressants and so on, although they prescribed them to me, although this may be my mistake

@@maxsl2678 what is your mistake. That you haven’t taken them or the reason you have this issue?

thanks for the comment. I still drink organic milk in small quantities. I'm still following the HYH (dizzy cook) diet to a T... I also had a good day this past saturday at work and all day for the most part and i didn't get a rush of anxiety when i took my 2nd dose of venlafaxine as i had been so... that's potentially positive. Hope it keeps trending that way. I called an allergist but backed out from making an appointment bc I no longer had time with my work schedule. I might reconsider depending on how the next few weeks go.

Thanks brother 🙏

So glad! Stay tuned i will be upping my dose on tuesday so im excited/nervous for the day and the days following to see what happens. Praying i start to feel a big improvement 🙏 i will be updating my videos as that takes place

It does feel like forever, im around two years now. Stay updated for my new videos. Started a new med (venlafaxine)

Thanks.. i’m tryin my best

thanks for the comment. Hope you're finding some solutions/answers

@@andysdizzyvlog6586 no problem! Thank you for sharing your videos. I really appreciate the way you describe your symptoms and what you are going through. I am always nodding my head, thinking Yup. You have a knack for articulating this monster of a thing. I recently was feeling better and making some progress (first time in two years of daily hell..felt like I won the lottery!) The past few days I've felt some symptoms creeping back, but I'm trying to ignore it and not let it steal my happiness. Praying that my sypmtoms will stay at bay👃Hoping that you will be on your way to prime health soon.

@@sarac2691 i’ve had similar experiences where one day i felt totally normal and the next day was hell. Gives you hope then takes it away. But keep your head up. What meds/supplements/diets/vrt etc are you doing or have you tried?

@@andysdizzyvlog6586 Thanks, I am definitely trying to keep my attitude positive, but it feels impossible when you feel like shit. I think that going through the cycles of ups and downs (mostly downs, to be honest) has been a total mind fuck for me. The physical stuff is hard enough to go through and then for me it leads to an unhealthy mental state grasping for hope where it doesn't seem to exist. I have been taking the recommended supplements from Dr. Beh's book, and also trying to modify my diet by avoiding the triggers. I want to try the anti inflammation diet. It seems to overlap a bit with the migraine diets. They recommend the tart cherry juice, etc. I saw the juice in one of your videos, and I bought some today :) I also use xanax as a rescue med. My ENT prescribed me Nortryptaline, but I am holding off on taking it, because one of the side effects is blurry vision. I was diagnosed with a vision disorder two years ago (Binocular Vision Dysfunction/Vertical Heterophoria) and my eye Dr. gave me these prism glasses, which turned my life even more upside down and I believe that it set my vestibular system on fire. I am on my 4th pair of these glasses, they never work because my VM causes my vision to get messier, and then my vision (I'm 20/20 by the way...how fucked is that??) clashes with my prism glasses and I go into the worst cycle of nausea, anxiety, puking, trouble balancing while walking, etc etc. I can't see with the glasses, but then without them I can't see well, but they flare up my VM...sorry, I'm totally venting and bitching now, this should be a private message, lol! But, my point is I guess, is that my BVD and VM play off of each other. I was terrified of the Nortryptaline...so, I recently tried Botox. I had it injected in my forehead. It seems to have calmed my 24/7 dizziness and I haven't thrown up in about 2 weeks, my appetite is back.. which feels like a possible miracle, but I am not going to get excited about it yet. My ENT said that it is possible that the botox relaxed my ocular muscles which potentially helps with both of my issues. I had a period of about a month of feeling good in the past 1.7 years, and when that period of feeling good ended, I hit one of the biggest lows of my life. SO....I want to remain hopeful that mabye the Botox is gradually helping. I've only had it twice now. I got more yesterday because I'm worried that it wore off and that's why my symptoms are creeping up to punch me in the face again. If the botox doesn't work, I will try the Nort. Have you tried botox for VM? I've heard a lot of success stories, and I'm trying to hold onto that hope. Sorry for this extremely long response, lol. I don't get to talk to a lot of people going through the same thing, so I just word vomitted all over you! SORRY

@@sarac2691 absolutely don’t apologize. This is why I made this because i know how isolating it feels. Especially when your life doesn’t stop, your bills don’t stop, everything in your life keeps going on but you are stuck in this internal silent, unseen hell of invisible demons tormenting you. I totally get it. I have not tried botox but i asked dr beh about it. He said it can help but takes up to 6 months to see full results. I was on many drugs before seeing dr beh about 1 year into my ordeal. Once i saw him i was already on several things that weren’t working. He put me on nortryptaline. I can tell you that i did not have any adverse side effects.. i was very nervous about taking it also bc of some bad experiences with anti depressants for a long time ago. But nortryptaline honestly didn’t have any side effects but it also did do that much either positively. I reacted really well to venlafaxine esp the first 2 weeks i noticed a pretty big difference. I had almost 3 days that were mostly normal where i felt more grounded and less dizzy and lightheaded. But.. i had a few days recently that were not as great so i understand the ups and downs. Feel free to vent all you like on here, seriously thats why i made this channel bc it’s very lonley and isolating especially when it feels like nobody truly understands bc its so hard to describe this horrid condition. But keep your head up. Keep following along with me. We’ll get better together. We just gotta keep trying till we’re thriving :)

Thank you. Had a bit of a set back tonight which im going to upload a video about. I want to remain as candid as possible and not pretend like its all unicorns and rainbows.. im not out of the woods yet and i want to be honest and not put on a show pretending like everything is fine bc im able to do these exercises. But glad to have you. Hopefully i will be giving updates at the end of the week as to how my first week back went and hopefully i can report happy updates! 🙏 and ill do some videos on supplements and diets. I also just bought a nice vacuum sealer to allow me to follow the HYH diet and not eating any left overs older than 3 days. But i work 60 hours a week so i have to food prep on Sunday for the whole week so hopefully i can find a routine that works

@@andysdizzyvlog6586 bulk food prep is a lot of work but future me always appreciates it ♥

@@SailorAstera i bought a vacuum sealer to avoid the whole not eating things older than 3 days. Should be making a video on that this weekend for my first food prep (probably if i have time)

Thank you Karen 🙏 means a lot! WE got this :) i had a bit of a set back the past few days. I got a massage and i didnt take it easy that day. I did all my exercises and didnt drink enough water. Ive never had a massage but apparently it releases a lot of toxins and that may have triggered another episode, im not sure. And then i went to a concert.. not super fun walking through crowds -_- and it all just sort of threw me off my mission this 2nd half of this week. But i should be heading back to work starting Tuesday. We shall see