Im on my first week of a nj tube.i have the kangaroo joey pump as well. Its nice to know there are other people going threw the same process i am. And always good to see how others go threw out there daily functions connected to a tube. Lol. Thank you.
Good job I feel like most people with this feel upset most of the time but you took your condition to TH-cam to show the world how brave you are about this try not to make this take over your life being upset👏🏾👏🏾👏🏾😀😁
Hello Hanna I was wondering if the feeding tube pump would work with a vibedration or kandypack hydration backpacks? I have several packs for my infusions so I just put the tubing through where the bladder used to be basically. I use the 3 L for going out because it’s a lot more space and the two leaders for home use mostly.
I live in Ohio too! And I’m 12 years old and I’m currently in the hospital at rainbow babies and children’s hospital, I also have an ng tube and am getting a formula switch.
I just got my NJ tube yesterday and I feel gaggy . Does this get better? And do you have any tips. Thank you for your video it made me more comfortable going into this. 💕
I know just how to do it my sister has a similar condidtion but slightly different and she is only 5 years old and almost died at birth but I hope you can get better and may God bless you 🤗❤️
Ik u might not see this but can u try to answer, i am about to have an nj (maybe) and im wondering how do u feel when u wake up and how long does it take for you to get energy back cus im rlly weak and im getting it because i keep vomiting so if u can answer then thanks
i also have an NJ tube and you can’t really feel anything unless it’s cold, then it just kind feels like something cold is going in your nose and throat, i hope that makes sense lol, there’s not really another way to explain it😂
Hi Hannah! Are you able to choose what type of formula you receive? Do they work with your diet if you are vegetarian or vegan? Interesting vlog! Thank you for teaching us how to set up an NJ tube for feeds. :) Your backpack is SOOOOO cute by the way!!
I personally wasn't able to choose which formula but I'm sure if you bring it up to the doctors or dietician they'd work with you and find something! Awh thank you so much!!
Keep up the fight. I'm wondering how long they will wait, before they will put you on a permanent tube? I'm going to try out a a NJ soon. If it helps me, then we put the permanent on. If not I'm going to TPN. I wonder how long they will leave a the NJ in before they place the permanent Jtube.
Usually they're a short term thing but I've had a lot of complications and finally just got my permanent tube placed (over 2 years later). I did not have an NJ tube that entire time though, it was on and off over the years. Sorry I don't have a better answer for you, sending good thoughts your way 💗
@@SimplyHannah98 This is the 1st time I have had one. But it is only because I have left it until I have no choice. They will do a NJ tube 1st. My Stomach was helped by the GPoem, so it went through it quickly but my Intestines aren't working well. It took 175min to go through my Intestines. So it may not help me at all. I will have to get TPN.
Taylor Starks with gastroparesis it’s not really the lack of hunger that’s the problem, it’s the fact that the body won’t digest the food after it has been eaten and when you eat there’s lots of pain, vomiting, etc after you have eaten.
![[ TEASER ] เงาะป่า - วงL.กฮ. | TMG RECORD](http://i.ytimg.com/vi/M4ObdFfcPww/mqdefault.jpg)
Wow! Setting that up takes as much time and energy as fixing a full on dinner haha 😃😃 Glad to see how well you are doing!!
Im on my first week of a nj tube.i have the kangaroo joey pump as well. Its nice to know there are other people going threw the same process i am. And always good to see how others go threw out there daily functions connected to a tube. Lol. Thank you.
I think your are so strong and brave you go girl !!
Love you hannah. You are a huge inspiration to me. Keep up the hard work.
God bless u. You inspire me everyday
Good job I feel like most people with this feel upset most of the time but you took your condition to TH-cam to show the world how brave you are about this try not to make this take over your life being upset👏🏾👏🏾👏🏾😀😁
Hello Hanna I was wondering if the feeding tube pump would work with a vibedration or kandypack hydration backpacks? I have several packs for my infusions so I just put the tubing through where the bladder used to be basically. I use the 3 L for going out because it’s a lot more space and the two leaders for home use mostly.
I'm not sure, I'll have to look into it!!
God bless you
I'm about to get one of these put in so nervous
I live in Ohio too! And I’m 12 years old and I’m currently in the hospital at rainbow babies and children’s hospital, I also have an ng tube and am getting a formula switch.
I couldn't do it girl 🙏 stay strong
Stay strong Hannah
God bless you hope u feel better
Go girl I hope you fight it!
God will be on your side when something happens wrong
I just got my NJ tube yesterday and I feel gaggy . Does this get better? And do you have any tips. Thank you for your video it made me more comfortable going into this. 💕
It took about a week for me to get used to it and not feel gaggy. Hope things get better for you soon!
I know just how to do it my sister has a similar condidtion but slightly different and she is only 5 years old and almost died at birth but I hope you can get better and may God bless you 🤗❤️
U are strong dont let anyone say that you are not strong ♥️♥️♥️♥️
I know your not goin to see this but I luve your videos and your a very strong ladie 🥰❤️but I want to know if you can feel it go up your nose
U go girl god is on your side and so am i
What's like having a feeding tube I may have to to get one I am nervous
Stay strong :-)
so can you take that during the day or is it best to take it when you are sleeping.
Maybe u could try to eat a smoothie with a spoon or babby for or apple sauce love u
Ik u might not see this but can u try to answer, i am about to have an nj (maybe) and im wondering how do u feel when u wake up and how long does it take for you to get energy back cus im rlly weak and im getting it because i keep vomiting so if u can answer then thanks
Does it remove excessive gas?
I love in Ohio also and go to the cleveland clinic. Who is your doctor,
Real shame I couldn’t listen to this video the music was way too loud :(
💙💙💙
Nothin is stoping you follow youre Dreamstime
you should come to Michigan we have great medical
You are doing a great job! Keep up the good work! How many siblings do you have?
Thank you so much! I have 3 younger sisters!
Simply Hannah Thanks!
Do you ever feel the formula going in you like in your nose.
What does it feel like.
?
that’s a good question
i also have an NJ tube and you can’t really feel anything unless it’s cold, then it just kind feels like something cold is going in your nose and throat, i hope that makes sense lol, there’s not really another way to explain it😂
If you didn’t know you can do auto prime so you don’t have to prime it your self
Hi Hannah! Are you able to choose what type of formula you receive? Do they work with your diet if you are vegetarian or vegan? Interesting vlog! Thank you for teaching us how to set up an NJ tube for feeds. :) Your backpack is SOOOOO cute by the way!!
I personally wasn't able to choose which formula but I'm sure if you bring it up to the doctors or dietician they'd work with you and find something! Awh thank you so much!!
Keep up the fight. I'm wondering how long they will wait, before they will put you on a permanent tube? I'm going to try out a a NJ soon. If it helps me, then we put the permanent on. If not I'm going to TPN. I wonder how long they will leave a the NJ in before they place the permanent Jtube.
Usually they're a short term thing but I've had a lot of complications and finally just got my permanent tube placed (over 2 years later). I did not have an NJ tube that entire time though, it was on and off over the years. Sorry I don't have a better answer for you, sending good thoughts your way 💗
@@SimplyHannah98 This is the 1st time I have had one. But it is only because I have left it until I have no choice. They will do a NJ tube 1st. My Stomach was helped by the GPoem, so it went through it quickly but my Intestines aren't working well. It took 175min to go through my Intestines. So it may not help me at all. I will have to get TPN.
You don’t look disgusting. You are very very beautiful 😍
I have just seen your videos stay strong sister hello from Kosovo Albania love you
I feel bad for hannah she cart eat
I have to wear a brace and i hate it! 😭
God bless you 💖💞
Stay strong
does it huert
Were do you live in Ohio???
If I were you I wouldn't be surviving right now :P
Does it taste good?
I don't drink it, it goes through my tube so I can't taste it.
What dose the formula actually taste like 🤔
Hmmm
It’s maybe the same thing as Diet Coke This time it’s Diet Formula
hey just to let you know your background music is too loud and its hard to concentrate in what your saying over the music
Your stronger than me
Did you buy a special backpack or make one to hold your feeds?
I bought a Vera Bradley backpack and then my grandma sewed a clip at the top to hold my feed! I'm making a video about it soon!
You beautiful you are not ugly
if you ever need 5 cc s of chorizo call me please
Who
Is here from inside edition
Hey! Just wanna say I feel bad for you you are very pretty
At least you can walk and you don’t have to use a diaper like my cousin that lives with me
She has the same disease as Hannah does
I wonder if medical marijuana would help you eat? Just a thought lol
Taylor Starks with gastroparesis it’s not really the lack of hunger that’s the problem, it’s the fact that the body won’t digest the food after it has been eaten and when you eat there’s lots of pain, vomiting, etc after you have eaten.