For infants and children who demonstrated very early “soft” signs- I’d love to know what happens when you do similar studies but with mice who are pregnant and an inflammatory response is induced. I believe (based on my experience) what happens when moms are in an inflammatory state or autoimmune themselves, and how is this directly impacting the early immune system. I believe there is also research to be done on breastfeeding and mitigating or slowing the progression. Can you replicate this study with yeast, and other common causes of gut mircobiome disturbances? I believe that untreated yeast (candida) and dysbiosis could be one of the things that is not yet getting enough attention- particularly vulnerable to the immune system at an early age. With changes in food production, isn’t it likely part of the problem with “identifying one trigger”. It’s actually a cascade of factors, many of them psychosocial and historical changes in practices. I’m sure there was a point when scarlet fever was prevalent and doctors were more concerned about strep. There is a really barrier to any disease that doesn’t have obvious visible tells, and the movement disorders were just easier to diagnose.. However there are motor tells if you understand development and know where to look. To me the only differentiation is one, SC has the volume turned up on the mobility changes, while another has the volume turned up on behavior and psychological changes. Both are present in both syndromes. I wonder how many small viral hits P/P kids silently get, and perhaps fought but greatly taxed their immune system leaving them vulnerable for some time after. In short, I think it matters how many times and how close together our kids are getting immune system “hits”. Including STREsS-, which kids and mothers have experienced at higher and higher levels. Changes in food production have impacted the gut microbiome. We are farming less and outside less leading to less helminths and more mold exposure. It’s lifestyle factors beyond infection. What happens if one infected mouse is infected/exposed but has a healthy autoimmune friendly diet? How does the disease progress if given a poor diet? It’s important to link the gut since it’s so significant in strengthening the immune system!! We need research around stressed mice mothers and their autoimmune pathology would be useful. Dispelling the myth that it’s a “sudden” onset and knowing the early signs and risk factors is really going to help us not get to the point of severe psychological distress and trauma. Good on you for doing this research for advanced disease. I think we owe it to them to figure out why they are getting so sick so early in the first place.
When one has had Autoimmune Encephalitis, is Immunosuppressive Therapy typically needed for the rest of one’s life? I think my Brain and Immune System and Brain never fully became “friends” after my AE induced coma at age 13 in 2001. It literally feels like part of my brain is shut down. But all Lab Tests now come back normal. So I’m only offered psychiatric treatments that have only made my condition more severe. My situation has become dire.
Have you looked into high dose Thiamine? It may be helpful. Take at look at TTFD and benfotamine. They use it to help with diseases in the basal ganglia. I'm researching it myself due to my own health issues.
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For infants and children who demonstrated very early “soft” signs- I’d love to know what happens when you do similar studies but with mice who are pregnant and an inflammatory response is induced. I believe (based on my experience) what happens when moms are in an inflammatory state or autoimmune themselves, and how is this directly impacting the early immune system. I believe there is also research to be done on breastfeeding and mitigating or slowing the progression. Can you replicate this study with yeast, and other common causes of gut mircobiome disturbances? I believe that untreated yeast (candida) and dysbiosis could be one of the things that is not yet getting enough attention- particularly vulnerable to the immune system at an early age. With changes in food production, isn’t it likely part of the problem with “identifying one trigger”. It’s actually a cascade of factors, many of them psychosocial and historical changes in practices. I’m sure there was a point when scarlet fever was prevalent and doctors were more concerned about strep. There is a really barrier to any disease that doesn’t have obvious visible tells, and the movement disorders were just easier to diagnose.. However there are motor tells if you understand development and know where to look. To me the only differentiation is one, SC has the volume turned up on the mobility changes, while another has the volume turned up on behavior and psychological changes. Both are present in both syndromes.
I wonder how many small viral hits P/P kids silently get, and perhaps fought but greatly taxed their immune system leaving them vulnerable for some time after. In short, I think it matters how many times and how close together our kids are getting immune system “hits”. Including STREsS-, which kids and mothers have experienced at higher and higher levels. Changes in food production have impacted the gut microbiome. We are farming less and outside less leading to less helminths and more mold exposure. It’s lifestyle factors beyond infection. What happens if one infected mouse is infected/exposed but has a healthy autoimmune friendly diet? How does the disease progress if given a poor diet? It’s important to link the gut since it’s so significant in strengthening the immune system!! We need research around stressed mice mothers and their autoimmune pathology would be useful. Dispelling the myth that it’s a “sudden” onset and knowing the early signs and risk factors is really going to help us not get to the point of severe psychological distress and trauma. Good on you for doing this research for advanced disease. I think we owe it to them to figure out why they are getting so sick so early in the first place.
When one has had Autoimmune Encephalitis, is Immunosuppressive Therapy typically needed for the rest of one’s life?
I think my Brain and Immune System and Brain never fully became “friends” after my AE induced coma at age 13 in 2001. It literally feels like part of my brain is shut down. But all Lab Tests now come back normal. So I’m only offered psychiatric treatments that have only made my condition more severe. My situation has become dire.
Have you looked into high dose Thiamine? It may be helpful. Take at look at TTFD and benfotamine. They use it to help with diseases in the basal ganglia. I'm researching it myself due to my own health issues.
💪
could nasal polyps cause pandas?
What makes you ask this?