IIH + No More Brain Pressure Medication // My pseudotumor cerebri story continues...

Welcome back, it's been a minute! Last we talked, I was doing well because of a medication. Well, not anymore! But on the bright side, you can finally see my CSF leak on camera! Or at least, what we suspect is a CSF leak, secondary to my high cranial pressure.
I have a condition called idiopathic intracranial hypertension (IIH), or pseudotumor cerebri, which means I have high cranial pressure. I was able to manage my cranial pressure with diamox, so without diamox. I had to discontinue diamox due to side effects. Now, my pressure is high again, so my nasal CSF leak is back (again, all technically conjecture until we are able to test a sample of the nasal fluid drainage).
As far as POTS goes, it's still dramatically improved. I'm managing symptoms of POTS without salt loading! I'm on supplements and lifestyle changes to manage my POTS, no prescriptions. POTS no longer controls my life thanks to Dr. Driscoll at the POTS Care Clinic.
If you're interested in POTS Care for yourself:
○ POTSCare.com - You get $200 off your Individualized POTS treatment if you mention me when you call to book.
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My link: potscarepackag...
○ Supplements: 10% off by using my code, MOMMING
My link: vagusnervesupp...
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NEW HERE? The LATEST: My Spinal CSF Leak Evaluation (late 2022)
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SNIPPETS FROM MY PSEUDOTUMOR CEREBRI STORY (2021)
○ Am I Misdiagnosed?: • Am I MISDIAGNOSED?! //...
○ 48-hour Flat Test Vlog: • VLOG + TIPS: The 48-ho...
○ My NEW IIH Diagnosis: • I was MISDIAGNOSED // ...
○ IIH Symptoms my Neurologists Missed: • Pseudotumor Cerebri SY...
○ Diagnosis Story Update: • Diagnosis Story UPDATE...
○ Diamox for IIH: • Prescription DIAMOX fo...
○ Passing the Tilt Table Test: • PROGRESS CHECK // At-H...
SOME POTS VIDEOS…
○ At-home Tilt Table Test: • Doing an at-home TILT ...
○ My POTS Episode Explained: • Play-by-Play of a POTS...
○ POTS & Spinal CSF Leaks: • POTS and Spinal CSF Le...
○ Buddy’s POTS Tasks: • POTS SERVICE DOG // 4 ...
○ Service Dog POTS Task- DPT: • Our #1 Service Dog TAS...
○ Fainting Caught on Camera: • Neurocardiogenic Synco...
○ What Fainting Feels Like: • What Does FAINTING Fee...
○ IIH Symptoms that were Missed: • Pseudotumor Cerebri SY...
○ POTS Care Package Unboxing: • Full POTS Care Package...
○ POTS Care Q&A- part 1:: • POTS CARE Q & A // Dys...
WELCOME TO THE SICK SIDE
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NOTE: Though I talk about medical topics, nothing on my channel is meant as medical advice (for all statements, past or future). I am a patient sharing my personal experiences, but I am not a doctor nor am I medically trained. My channel is for entertainment and community only.
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