@@engineeredtruths8935if the doctor hasn’t come to these determinations on their own accord, they’re already so out of touch and useless. They spend 5 minutes with each patient. They would never spend the time researching the content in this video
Omg after four years and so many doctors and negative scans later this video hit the nail on the head for all my boyfriend’s symptoms. Hoping I finally diagnosed him and we can start the right treatment. This was incredibly helpful and finally gave some hope back!
I love yellow too. It is the color of illumination and wisdom. It helps your aura to wear bright colors. Some say the reason women live longer than men is that men are usually dressed in dark, non vibrant colors, and women wear more color. I admire your creativity and joyous boldness as you wear those bright colors. It is clever and inspiring!
This is by far one of the most thorough, informative, easy to understand videos about idiopathic intracranial pressure. This confirms the convo I had with a friend about cervical neck issues behind his headache and dizziness. I'm currently 4 months post VP shunt and was wondering about the reasoning behind the cause of excess CSF fluid. Thank you so much. Wonderful video! I've taken some good notes and will be mentioning to my neurologist and chiropractor.
Was diagnosed with pseudo tumor, they were wrong. I have issues with my neck due to trauma from boxing. It could also happen from a car accident or degenerative disk disease. When I moved the wrong way the inflammation put pressure on the nerves in my neck and blocked the CSF causing pseudo tumor like symptoms. It affected my eyes, pain in my shoulder and my CSF levels were up as well. The neurologist told me I had several problems. Please get a second and third opinion. Meloxicam took the inflammation away and my eyesight almost returned to normal. It helped immensely when I took 4 Motrin for three days out of seven. I’m not a doctor and I’m not giving medical advice, just telling my story and hopefully this helps someone.
This is so interesting! My daughter, now 25, was diagnosed with IH at 13, she had the headache that wouldn’t go away and her CSF pressure was double what it should have been. She had previously been misdiagnosed and went through so many unnecessary treatments. A shunt or draining CSF through an LP were the only treatments that we were recommended. Nobody ever talked about her neck. Her head finally balanced out, but still has many digestive issues.
My boyfriend has the same problem we live in north bc and the doctors didn’t even diagnose him with anything first he had an MRI and Ct done both came back negative, blood work xrays etc everything came back negative or inconclusive. Then he started thinking he has migraines with no obvious cause and is currently on 3 different meds from migraine meds to strong antidepressants as pain management and they don’t even work. They never even bothered to mention his pressure. After years of google research this is the first time I came across this condition and finally the puzzle seems to fit. So I’m hoping this is it now
I have all these symptoms. Recent MRI shows IIH and will have a LP in 2 weeks. The brain fog scares me because it is affecting my everyday thinking. I have to think for the right word and it takes me a while and I feel so dumb. I also feel my neck hurting and feel that I have the fatigue for many years. Thank you doctor for explaining.
I was just having a conversation with my 21-year old son last night and you said the very words that he said about him feeling better lying down) than when he stands up and touched on a lot of the other issues he is having, as well. Confirmation, yet once again, listening to your videos and reading your research. Thank you.
My 18 year old sister was diagnosed with this about 3 years ago and is getting a VP shunt put in tomorrow. One of the scariest things I’ve had to see her go through. Thank you for all the work you’ve done to explain this mysterious condition to us.
Pleaseeeeee consider opening another office on the West Coast. There are a slew of people here too sick to travel that far that could use your knowledge and services.
I have IIH, and haven't been treated for years because I can't find a Dr in my area who actually knows anything about it. I was fine for about 4 years and now I have papilledema and my vision sucks. 😭 I also have cervical spinal stenosis. Thanks for the video!
I also have cervical stenosis and it’s debilitating on my life. I have I guess I would call it flare up where I’ll go as long as 2 weeks in excruciating pain, and then after that I’m someone normal but the pain is still there. I also go to the gym 4 days a week so I’m sure that’s not good but I do stray away from anything too strenuous. Idk what to do at this point,
Wow. All of this is spot on. I've been diagnosed with this for almost 10 years and it's been rough. I also have trigeminal neuralgia. It wasn't until a year ago that I finally got neck x-rays and it shows I have "military neck" so the cervical curve is messed-up. Unfortunately, I work a tech job so my posture is abysmal, but I've been working on it! I need to look into some of those other imaging methods.
I'm so sorry to hear what you've been going through. I've had debilitating symptoms now for three years plus Trigeminal Neuralgia too (and Ehlers Danlos Syndrome, a disability he mentions). I've been convinced it's all related and this video seems to point at that. It's hell. It has totally ruined my life/have no life. I would also go and see this guy if I had the means to. I'm going to save these videos and try to show someone. I'm also going to look up Prolotherapy here in the UK. Best wishes to you 😢 x
@@MegaLeoben so, I'm actually doing okay! or at least to the point where my papilledema is gone and my diamox dosage is lower. I can't really say what exactly helped. I'm getting an MRV soon to see if I have stenosis in the brain or neck which may be leading to my migraines and the increased cranial pressure. I do pay more attention to my posture and ergonomics. I use a standing desk at work and do neck stretches, take walks, etc. Physical therapy is also nice.
@@mariaaastarr3032 yes, planes aren't an issue for me. most people with IH can do okay in the air, but everyone's different. high elevations and barometric pressure changes can increase symptoms.
You are best doctor❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤best doctor. Who give many people lives safe.❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤ respect from hear.
Im so greatful of your videos! Did my first prolotherapy in sweden with glucose on my neck yesterday. Feels like my neck posture getting better by automatik
I'm literally crying, I've had scary symptoms since 2020, and my doctor says I'm fine. My symptoms come and go, and it's really frustrating to feel my brain getting unplugged out of nowhere, but by the time I get tests done, it's back to "normal". I want to quit my job and march straight into urgent care to get my tests done while I'm actually debilitated, not when I'm coping with it. I just want them to know I'm not an attention seeker, I'm not making it up, and that it has to be addressed before it gets worse(and it is slowly getting worse) Update: I've been much more conscious of my neck lately, and my symptoms have eased slightly from posture checks, or rather, the severe episodes are about 30% less frequent. (I'm also finding that my workplace is a terrible environment for good posture) Additionally, I'm becoming aware of some other health issues, such as my beaten and battered mitochondria due to my poor diet and environment. I think both cervical instability, and mitochondria damage are working in tandem to put me in an early grave. If I remember to, I will update again after making some more changes.
Look at EAgle Syndrom check styloid compression you really have to push these jerky doctors i had it now for 4 years MVA - and 22 doctors all denying it - finally saw a Vascular neurologist for a CVR CT and they found the neck injury
@@sheilakeller5141 I looked at Dr Ross's video about Eagle Syndrome, and found a little bit of relatability. My right jaw cracks every single time I open my mouth normally, I have to open my jaw off track to make it not snap loudly. Also, it isn't sore in the area all the time, but it's always tight around my eustachian tubes, and when I massage them, I get a coughing reflex, tingles, and movement in my throat. My jaw never relaxes, I just can't find a position it will sit still without creaking/rumbling in my ears. Is that Eagle syndrome? I finally got my doctor to refer me to get an MRI, its booked for August. But he called the motion Xray imaginary, so I think it's just not a thing in Canada... I'll see if he thinks a vascular neurologist is real. Thank you for the suggestion, I'll take all the knowledge I can get.
I think I have this. I have pounding pressure filled headaches everyday, and I hear swooshing noises in ear every night especially. It started in 2021. I'm still waiting on a spinal tap. It's definitely affected my quality of life. I don't feel that great nowadays.
We are so sorry to hear this Alesha, we know how frustrating it can be to deal with these symptoms but know that you are not alone! We would love to help you get your life back, please give us a call at 239-308-4773 and someone from our clinical team (they are fabulous) can get to know more about your case! Don't give up hope, God has a plan for you!
@@WM84629 Honestly at this point I've learned to live with it, and I go to chronic illness spaces that are compassionate and understanding. Most of the people in my life were very judgmental, and most family members don't get it. It's exhausting explaining your pain to people that are wanting to misunderstand you. And thank goodness this video and comment section exists.
I suffered a concussion in 2019 at my job. Ive had constant migraines since and my eye pressure has been high at every visit to my eye doctor for glasses. I had an CT scan on the 31. They called me 4 hours later with the diagnosis of IIH. I'm terrfied especially of the lumbar puncture and shunt options. I'm scared in general to he honest. I see my neurologist tomorrow morning. The migraines have increased and my vision is decreasing. It did it yesterday while driving to work.
So sorry to hear about your post-concussion syndrome and we hope your appointment went well with your neurologist and they gave you some treatment options. If you ever feel that you'd like our team to help on your case here in our center, you're welcome to reach out to us directly. In the meantime, you may want to check out our video on post-concussion syndrome to better understand the possible solutions. There is hope! Hang in there. Wishing you all the best in healing! th-cam.com/video/QQZGde7pcik/w-d-xo.html
I wish more people knew about ICH. I was diagnosed in 05' when i was 16 and it was so bad I was told if I had not gotten the spinal tap i would have been blind in 24 hours. The dr. at the er had to go look up the symptoms, but i was lucky and another dr walking by heard my screaming and checked on me, he had heard of ICH and a few hours later i was recieving a spinal tap, with a pressure of 50. I still have memory problems and brain fog.
I am dealing with a lot of symptoms since 2012 and after all these years I was finally diagnosed by Dr. Hepworth in Denver with special cat scans with contrast. I will have surgeries next year to fix those issues, surgeries are called “Styloidectomy and bilateral jugular veins decompression “. It’s highly misdiagnosed and unrecognized by specialists
My neck has a bulge and pulsing throbbing, I had an ultrasound and I was told my vein was tortus. Can the bad circulation from vein in your neck cause the IIH symptoms? I have eye pressure that feels like someone is pushing on the back of my eyes, I have a huge bulge on the top of my head that the doctor said is under my scalp but it is always tender and she said it is not important, vision problem, I always feel foggy, headache every day, occasionally I wake up shaky, I get occasional nausea. I always feel like my head wants to explode, especially when I bend over.
@@lizagarcia2117 you need to get to a neurologist, & neurosurgeon you can lose your eyesight! Also, if the cerebral spinal fluid is high, it acts like a tumor & can essentially cause the same thing a tumor can. I have this IIH, also known as Pseudotumor cerebri. They will do a spinal tap to check the pressure, this is what gives the diagnosis.
I just want to know why our medical insurance doesn't pay for real knowledge to help people. It's like they prefer all other obstacles and ignore other possibilities. Most people can't afford help because insurance won't cover it. Everything you say makes so much sense and it needs to be really out there. So many years and I now need to go search for someone like you that really put everything together from all ends. Usually the Dr asks what problem is most important because I can only see you for one. HORRIBLE
If you can't afford it in America, make a list of the specialists you want to see and procedures you want to do, turn on google translate English to Russian, and search for these things in Kiev, Ukraine. You can see directly the neurosurgeon there, no need to wait after some lame GP
I have looked everywhere for an answer. Thank you! I have had this weird head pressure and pulsitile tinnitus and I have forward head posture. I constantly feel like I have so much heaviness in my neck and I kept thinking it has to be posture.
Why would the neurologist I had to see ignore the hydrocephalus? It was clearly seen and I complained about my neck many times. All they looked for on mri was tumour why?
went through this and the doctors couldnt figure it out until i was going blind, i have a stent now and doing much better. i believe my spinal fluid pressure was around 45-50
i got hit on top of the head with a large plank more than 3 months ago, diagnosed with concussion and I think the issue I am having is cerebral autoregulation dysfunction. Thank you for the info.
The strange thing is that my daughter was asking me about her friend having symptoms of intracranial hypertension and was asking about a doctor to see her, few moments later I find this video in front of me. Thank you for this explanation of the case
I just came across your videos. Thank You for explaining this so much better. I have; Adhesive Arachnoiditis, IIH, Daft Fistula, Transverse Stenosis, disc degenerative disease.my neurosurgeon truly believes the AA caused the Idopathic Intracranial Hypertension. My neck hurts all the time and yes the brain fog is crazy. I wanted to add now their are many people with Adhesive Arachnoiditis that have Idopathic Intracranial Hypertension. I guess it would be secondary. I wish you were in Michigan . Thank you for going into detail. I always knew it was much more to this. Thank you again, Lisa
I live in Michigan also and have severe daily non stop head pain like my head will explode I see a neurologist and the scans show nothing they tell me. I’m always in so much pain for over a year now I can’t take the pain anymore my life is completely different than it used to be. I want my life back. Do you mind telling me who helped you in Michigan maybe I can go see them since I live here too thank you and god bless you I hope your not in too much pain today
I forgot to say my neck always hurts also and spine. My eyes always hurt and feel like they will pop out of my head also. The née urologist only treats me with migraine meds when they don’t work I keep telling them it doesn’t take away my pain. I can’t ever escape the pain it’s there all day and night. I didn’t just wake up one day and have non stop migraines I’ve never even had them before.
I was diagnosed in 2009 after suffering terrible headaches, vomiting, extreme nausea, etc. I had a c4-c-5 fusion in 2006, it did not help the pain or swelling I was experiencing. I went 3 more yrs misdiagnosed until 2009. I had a Dr look into my eyes & said he thought I had a dangerous amount of fluid behind my eyes. He sent me to OSU. They did a lumbar puncture & my pressure was super high. I was scheduled the next morning for Eye Fenestration, as I was going blind in my left eye from the pressure on my optic nerve. I had a shunt placed as well. I had a revision of the shunt in 2016. I am still currently suffering from major symptoms, especially after nearly dying from Covid in 2021. I had a heart attack, blood clots, Covid Pneumonia, Sepsis, necrotic tissue (Covid Toes) on my left hand & arm, & underwent amputation of my fingertips. Dr’s gave me a 3% chance of survival. I was intubated for 45 days,& hospitalized for 5 months. To date I have 31 diagnosis.’ I feel like my neck is broken, & I’m experiencing so much pressure it’s unreal, but GP sends me to Ophthalmologist, who explains that he can not see pressure in my eyes bc of the Eye Fenestration surgery he gave me. Then I’m sent to my neurologist who, does CT’s, MRI’s, then just treats me for migraines. I’m so frustrated with the lack of info. It seems like a no brainer, (no pun intended) but you’ve explained this the best. I was diagnosed in my early 30’s, & although I’ve had those 2 procedures, I am still plagued. I am going to show this video to my GP, Neurologist, Neurosurgeon, & or every other specialist I see, until I get answers & relief. I’ve been disabled from this for about 10 yrs. now. If there was any way possible I could get to you, I’d be there ASAP. Ty for educating us. You’re compassion & expertise is amazing. This is a horribly debilitating disease.
I'm so sorry to hear you describe your suffering, firstly from COVID and also this. I've had debilitating symptoms that fit most if this description now for three years plus Trigeminal Neuralgia - where it feels like your face is being electrocuted - and I have Ehlers Danlos Syndrome, (a disability he mentions). It's hell. It has totally ruined my life/have no life. I would also go and see this guy if I had the means to. I'm going to save these videos and try to show someone. I'm also going to look up Prolotherapy here in the UK. Best wishes to you, I hope you get help 😢 x
@@AngelaEllaMusic sending you blessings & well wishes from Ohio USA. We are strong, 🙏for a cure, ty for sharing your story. I hope for better days my friend.
Thank you doc. I wish you had an onsite rehab center. I'd take the first flight. My face gets so much fluid so I drink black coffee. My sleep I s so awful I use a blanket to hold my head. I checked almost all the boxes! My eyes are the most annoying symptom eith insufferable convergence but I called a vision therapist while I'm still seeking c1 , c5 stenosis.
Ugh, so sorry to hear this. Unfortunately, medication can make the problem worsen as the underlying cause is something different like CCI. We would love to get her in for diagnostic testing!
I would like to know or see a video on what you do with someone who has had a neck fusion like a cervical fusion ACDF since I’ve had C5 and six and six and seven fused… Therefore I do not have the ability to correct my curve at those levels And I have so many symptoms and would like to live a long life, God has blessed me with wonderful grandchildren and children.
Hi, I thought that the surgery correct the curve. The way they place the plate and spacers are supposed to correct the curve. Am I wrong? Hope you are doing better!
I just found out Saturday (October 1, 2022) that I may have IH. I’ve been having migraines from 2019 and it gets worst without me knowing it was this bad. I’m trying hard not to think about it too much because when I worry, my pressure goes up 😢
Don't be afraid, Dr's are extremely skilled. Talk with your neurologist, a lp or spinal tap, and perhaps a cisterogram.The exiting pressure is extremely helpful in determining if, in fact your pressure is elevated. Try to stop bending over, and don't lay down without being elevated, At least 30 to 35 degrees 2 pillows and keep your head straight, try not to cough. I have been dealing with this for 14 years, finally getting the correct dx, and treatment. It's not a simple task to diagnose these problems.. The more you can make note of, this .. will help your dr alot. Also, consider seeing and optomoligist, as well. Just as an extra measure. Could be in the eyes, without your knowledge. Answers for your condition is out there. You are your best advocate. Take lots of notes to help the Dr's access the best course for you. Best wishes, I hope you feel better.
Jeane Greene. Thanks so very much for the advice and yes I do feel the pain my my eyes but only one side. Sometimes the pain just comes on sudden, causing the eye to jump and starts hurting, it’s unbearable. I was recommended to see a neurologist too. Haven’t had time to go as yet.
@@crystalallen9588 I have my lumbar puncture and cisterogram Tues.Mine is only my right eye. The neuro is really a dead end and your wasting valuable time in case there is pressure causing it. Please....call them opthomology first, then if they see concern they'll refer you to neuro opthomology. Your neuro unfortunately is limited in what they can recommend. I hope you get there soon. Thoughts and prayers your way
I say a dead end..meaning they are likely to advice the eye dr first. Then back to neuro and depending on that outcome your neuro can get the tests needed to treat you Iin their most effective manner. I trust my Dr's wholeheartedly. It's been 14 years as it worsens,but theses Dr's...are the ppl passionate and determined to figure it out...we are on our way
Could all of this be caused by a bad chiropractor session? Does it have a cure/treatment? Does the brain repair itself if this pressure damaged some tissue? Tks.
I have to sleep upright too, it's so frustrating, I also have to just tired myself out and fall asleep because I can't get comfortable due to feeling pressure. I go Tuesday for my lumbar appointment.
@tasha9650 how are you doing now if I may ask? What meds did they give you? My pressure was 25, I am obese and have read that losing 20% of body fat can really help, so now I am on a 1600 calorie a day diet..I don't see my neuro till Dec 5th so I'm just feeling anxious...hope you are doing well ❤
@@jennifermurray4387 Literally as soon as the did ky lumbar puncture I instantly felt better! It was also weird because everything seemed "lighter" this condition makes things a bit darker so it was like someone turned the lights on. They confirmed it with the spinal-tap and also my MRI did align with it being IIH as well so they diagnosed me and placed me on diamox. Diamox is a VERY hard medication to take though it gets off the extra fluid around my brain its causing me to have breathing issues...I have this nagging cough when I take it, my skin is dry which it never has been in my life to the point I didn't even wear lotion because my skin was moisturized but now its so dry, I still get off balanced/ dizzy at times and the extreme tiredness is still there. My doctor did write me asking if I wanted to switch to another medication but when I looked those side effects plus the fact it interacts with other meds such as even ibuprofen and allergy meds which I take...Im not sold on changing despite her telling me "usually" the interactions are minimal... Meanwhile being unalived is listed as a possible. Sorry, this was so long. I've heard weight-loss can help but I believe my issue are related to sinuses. Mine started about 3-4yrs ago with what I believe was a sinus infection and my ears being filled with fluid to the point it sounded like I was underwater, especially my right ear... They gave me antibiotics which cleared up some of it but the feeling of "fullness" never went away so Id just keep going to the doctor's and they think it was another infection until I went to get new glasses because my eyesight diminished so quickly and that's when I was referred to the neurologist who sent me to the spinal-tap & I finally got answers.
@@jennifermurray4387 Also, During the time of them testing my eye's my pressure in my eyes went from 30 to 26 in a week. I was taking Bilberry & A-C carbamide...
I’ve been having issue for the past 3 months at first it started with high blood pressure got put on medication but still I have all this pressure in my head and I get dizzy, laying down is really the only thing that makes it feel better. Also I feel like I got all this tightness in my neck, I’ve had ct scan done and an mri scan done on my brain and all came back clear also had a carotid Doppler check done and it came back clear. I just want answers so I can live a normal life again
We are so sorry to hear this - we know how brutal some symptoms can be. We would love to help you get those answers! When you come in for your first visit, you receive a cone beam, DMX and ultrasound - after going over your result, Dr. Hauser is able to provide a diagnosis and treatment plan. Contact us directly - we’d love to set up an appointment!
Very interesting, I feel I have some symptoms but still not sure. Sometimes I think I have the opposite a loss of csf fluid. So low pressure. I get pressure headaches loss of appetite, but my eyes feel fine. I also felt drainage down my throat. Symptoms better once I laid down. Upon standing I’ll get vertigo head pressure racing heart, kinda like pots or anxiety. My ears felt clogged too. Not sure if this is low or high pressure?
This is fascinating! I would like to be evaluated for this. I’m in California though . Can you make a recommendation of a physician in my state that might be able to do this in the same way you test for it?
Hi @laceyr.2642 - We cannot give referrals for outside of our office, especially if we have not seen someone for an exam and to thoroughly review their case, imaging, etc. We simply do not know everyone who practices or what types of cases their office accepts, etc. Our office tends to take on a lot of referred cases that other offices cannot handle, especially with regard to the upper cervical spine. We recommend that you search for a Prolotherapy provider in your area who could see you for a thorough exam and consultation and start there. Wishing you all the best in your healing!
I was just diagnosed with this. My ct in the er said this, among so many more things. I’ve said for years I thought I had ‘chronic meningitis’ because I feel like I have too much csf fluid. It’s because I have a leak in my csf in my sinus area. I could smell and taste metal for 6 years!
@@CaringmedicalProlotherapy I figured out WHY I have it. I have polycythemia Vera, and it’s a known side issue from my cancer. Thank you for the educational video and support. ❤️
Hi abby m, Thanks for asking. We do not do venograms in our office. We do cone beam CT scanning which is very fast and great for seeing styloids and structural reasons for intracranial hypertension, and we can refer out for venograms locally if it is necessary for the patient. Hope you will soon get to the bottom of what is happening in your neck and find a treatment to resolve the issue. If you want our team to take a look at your case and possibly see you here in our center, you are always welcome to reach out directly. Wish you all the best in healing!
I was just diagnosed with IIH. My issue is I have horrible headaches when I wake up. The veins on the left side of my head are narrow I have a C 5-6 protrusion that’s sitting on my cord. Hard to know if your treatment will help since I don’t feel better lying down.
My daughter has had several spinal taps for this. Is this a real thing? It does help! She is supposed to take medication but can’t afford it. Constant headaches and horrific fatigue.
Im not asking for medical advise however im just asking your thoughts on my symptoms? Intracranial hypertension with only 50% oxygen in my carotid artery in my neck going to the brain!
I had a large meningioma tumor removed on February 1 of this year. I am experiencing a lot of the symptoms associated with pseudotumor cerebra, feeling the pressure in my head when going from ceded to standing and hearing like a whooshing sound in my head I can’t even feel on top of my head in the area where the tumor was removed and feel a throbbing. Also when I bend over to tie my shoe or to pick something up in a come back upright it increases the pressure. Is this normal after surgery and will this eventually go away on its own or do I have to have some sort of intervention? I also will get some accompanied blurred or fuzzy vision when there’s pressure kicks up.
What about if I get an increase in unusual symptoms when lying down but not when I’m sitting or standing? A recent head and neck MRI showed nothing but there was indication of cervical disk degeneration and a bulge. Can lying down make the instability worse??
I'm sleeping in randomly waking up in a state of adrenaline feeling like I can't breathe and then I turn over and I'm going back to sleep. I've had a pressurized brain feeling for 2 years permanent
Yes, cervical spondylosis is a non-specific degeneration of the cervical spine, meaning it could be causing all these symptoms DUE TO cervical instability. Physical therapy can help alleviate symptoms and can slow down the degeneration process however degeneration is a disease that happens over time. Meaning if nothing is done about it it will continue to worsen and regeneration needs to happen!
Hi Yvette- Glad to hear you were finally able to get this diagnosed and sorry to hear you've been having symptoms for years. Hope you have a treatment plan in place to get it resolved. If you feel that you'd like our team to potentially see you here in our Fort Myers, FL center, you're welcome to reach out to us directly. We wish you all the best in healing!
My daughter was recently diagnosed with.. she barely can move due to the pain.. it debilitating.. she doesn’t want to eat, drink or move.. she wants to lay down 23 hours a day.. and cry. Spinal tap her spine pressure was 37 they took 10cc.. put her on meds now at 15. She feels like she’s being bit and squeezed on chest, neck, head and stomach.. she’s also Down syndrome
Lori, we are so sorry to hear about your daughter, we understand how debilitating this can be. We would absolutely love to help your daughter get her life back, if you find that you can travel to our office, please contact us directly and someone from our clinical team (they are wonderful) can learn more about her case! We are praying for her complete healing :)
I have iih and had LP and VP shunt and still have white matter and vescal loop in MRI and still bad headache and also tortuosity in the optic nerve also the pictures of eyes still shows papilledema
Hi Nisreen - we are so sorry to hear that you are suffering. We would love to help you although there is not much we can do unless you are in our office. We are accepting new patients and would love to see you, please reach out to our office directly and we can learn more about your case. It sounds like you have instability and this is something that can be addressed with lifestyle changes and prolotherapy!
hello @lyonsailing7520 there are a lot of great resources on our website like this article written by Dr.Hauser on compression causing internal jugular vein stenosis www.caringmedical.com/prolotherapy-news/internal-jugular-vein-stenosis-missing-diagnosis-headaches-tinnitus-vision-problems-neck-pain-insomnia/
I had a meningioma removed almost 2 months ago. I have throbbing in my head that I can see on top where the tumor was located. Is intracranial pressure normal and expected after surgery? And when should i be worried. I told my neurosurgeon about this and he says it’s normal. What is not normal and when should i be concerned? Thanks
Yes most seizures started out in sleep for me now it’s like syncopal symptoms then seizure Sheila awake. For the last few years my symptoms and seizure even decreased from steroids I think or antibiotics. But now feel like might be trying to come back and waking after sleeping on head isn’t nice…. Should I have more steroids? Should I get a scan again? I want both.
We like to get to the root cause of the issue here at Caring Medical - meaning not adding on more steroids and determine what is causing all of this to happen. We would recommend getting another scan.
@@CaringmedicalProlotherapy Should I try to get chiari or obstruction or hydrocephalus ruled out? I can go see a chiropractor with X-ray on site. I just called the neuro specialists a city or two over from me still haven’t heard back. I just don’t trust the neurologists I’ve had so I’ve switched . I just feel like playing games with my brain isn’t smart but they could care less what physics are going on inside my brain. Very scary. Disappointing. This all started young neck irritation age 14 seizure age 21. My mom has arthritis and scoliosis. I asked my past neuro in Toronto to rule such things out my ear fullness my neck what the steroids calmed down but nope just epilepsy monitoring unit. I’m happy I don’t pay much for taxes since I’m not working because this tax and country system with unfair healthcare isn’t right.
Hi from Turkey, İstanbul, after having skull fracture on right occipital side, one year later, I had extreme burning legs and hips ( also sacrum fracture) it has been almost 2 years after my accident but still kinda feeling my skull is remodeling itself sometimes moving, also I have IIH in new brain MRI documents. But I had this when I lie down. Every morning I wake up with red eyes. Turkish norologyst cannot help me. I wish I was there 😭
@@azimlikz3431 benim hastalığım çok kötü bir giriş ile başladı ne yazık ki çok gürültülü başladı gürültülü devam ediyor. Basinc çok yüksekti sanırım. Beyin zarım yırtıldı basta onu tamir ettiler ama hastalığın teşhisini geç koydular 3 ameliyat oldum o arada. Şu an ilaç kullanıyorum ama doğru doktoru bulmak konusunda talihsizlik yaşadım. Büyük bir hastaneye geldim. Iyi bir nörolog ile görüşeceğim. Siz nasıl bir tedavi aldınız. Instagramdan konuşabilir miyiz? Sizin adınıza çok sevindim 🙏🏻
Can someone tell me how I can find a dr to help with this? I’ve had this going on since after having my twins 5 yrs ago. Symptoms were off and on then. But the past year symptoms are awful and scary! 😪
Hi O.Pondo, Good question, and it would be up to the provider reviewing your entire medical case to determine whether or not Prolotherapy, or any treatment for that matter, would be appropriate. We do have patients who have CFS leaks, but that is only one finding in a person's case, so everything else needs to be considered as well.
Thank you for this video, I have that, and it makes sense. It's been getting worse over the years, I tried everything. I get migraines that are bordering on the stroke, and only Kombucha and alcohol tend to help
I also have this and you are correct, when I have kombucha I feel decompressed. I never related it . With alcohol I feel foggy and heavy not an improvement like it is with kombucha. Good catch!
Hi Malisa, I live in Montgomery, AL and I have been seeing my neurologist here, Dr. Lipscomb. He discovered my pseudo tumor cerebri, and I've had 2 lumbar punctures to assess opening and closing pressure, which was high, and am on meds to drain (fluid pills), as well as MRI to monitor. He also referred me to Dr. Vaphiaades in Birmingham at the Callahan Eye Institute to monitor my vision, as he is a neuro opthalmologist to monitor pressure behind the eyes to prevent potential blindness. Hope this helps!
Hi, I am hoping you will reply please I am being diagnosed with this currently but ophthalmologist are not sure what is causing it. I had mri brain didn’t show much they are ordering for lumber puncture. Which I am hesitant about. Ophthalmologist DRs told me my treatment options will be diuretic medication such as ( diamox). Once LP confirm is IIH Until I lose 5-10% of my weight. They think it’s caused by my weight which doesn’t make sense because I am fit and healthy. I workout 4-5 times a week. I just don’t want to be diagnose incorrectly. So far the only symptoms I get is blurry vision. This happened when I work out or bend. My eyes are also sensitive to light…if expose to light, all I see is white it takes few seconds for my eyes to adjust and see. Please I am hoping someone can replay.
Hello @btele5359 - we are so sorry to hear that you are going through this. It is great that you are doing research for alternative treatment options. We have a lot of great resources on our website (I attached the link below) and are accepting new patients. We would love to help you on your road to healing, you can contact our office directly to schedule a consult. www.caringmedical.com/?s=intracranial+hypertension
Great question! It is possible! Scoliosis can have an effect on the rest of the joints in the body, causing ligament laxity in the neck which could very well lead to IIH.
I hope for everyone endlessly.. Medical science is lacking... I'm not a doctor, I wouldn't wanna doctor anyone; I hope folks seek God. I have faith this life isn't the end and, trust no man lest ye be deceived. I tried praying and reading The Word. I didn't have physical ailments to any great degree; God gave me peace though.. Even in the worst situations, idk. God is good. We cause most of our ailments, knowingly or unknowingly. God can save our souls, at least. There's a clip from "Da Ali G show" where he is speaking to a doctor. The doctor says "Everybody dies; it's a biological fact!" and Cohen says "I like to think, 3 outa 5 make it." And the doctor is dumbfounded and annoyed! Da Ali G show was nice. Jesus is way cooler than anything I've seen in my 3 decades in this world. Jesus Christ is the light of man; I won't rant beyond my understanding.. It's easier to love everyone now, and I've only been into The Word and prayer a short time. Try it out folks!
You seem to be the only MD on the planet who knows about this disease! Everything you said makes so much sense!
have you tried showing your doctor this? what did he say
@@engineeredtruths8935if the doctor hasn’t come to these determinations on their own accord, they’re already so out of touch and useless. They spend 5 minutes with each patient. They would never spend the time researching the content in this video
Omg after four years and so many doctors and negative scans later this video hit the nail on the head for all my boyfriend’s symptoms. Hoping I finally diagnosed him and we can start the right treatment. This was incredibly helpful and finally gave some hope back!
We are so glad we could help provide you with answers! We are praying for complete healing for your boyfriend!
Right, I’ve been going back N Forth to the Dr for the Last 2yrs trying to figure out what’s going on with My Head😮
I love yellow too. It is the color of illumination and wisdom. It helps your aura to wear bright colors. Some say the reason women live longer than men is that men are usually dressed in dark, non vibrant colors, and women wear more color. I admire your creativity and joyous boldness as you wear those bright colors. It is clever and inspiring!
Thank you for the kind words, Shannon! Appreciate your uplifting message. :) Wishing you all the best in health!
This is by far one of the most thorough, informative, easy to understand videos about idiopathic intracranial pressure. This confirms the convo I had with a friend about cervical neck issues behind his headache and dizziness. I'm currently 4 months post VP shunt and was wondering about the reasoning behind the cause of excess CSF fluid. Thank you so much. Wonderful video! I've taken some good notes and will be mentioning to my neurologist and chiropractor.
Was diagnosed with pseudo tumor, they were wrong. I have issues with my neck due to trauma from boxing. It could also happen from a car accident or degenerative disk disease. When I moved the wrong way the inflammation put pressure on the nerves in my neck and blocked the CSF causing pseudo tumor like symptoms. It affected my eyes, pain in my shoulder and my CSF levels were up as well. The neurologist told me I had several problems. Please get a second and third opinion. Meloxicam took the inflammation away and my eyesight almost returned to normal. It helped immensely when I took 4 Motrin for three days out of seven. I’m not a doctor and I’m not giving medical advice, just telling my story and hopefully this helps someone.
Because of your videos I saw a chiropractor and feel 60% better with my IIH. THANK YOU
Thats amazing! We are so glad we could help you find some relief!
how are you now?
I was diagnosed with IIH 5yrs ago. There are only handful of Neurologists with any knowledge of this disease and it makes it so hard to find a doctor.
How are you handling it? How are u feeling now?
Hi. I have it to. Do you fly on an airplane?
This is so interesting! My daughter, now 25, was diagnosed with IH at 13, she had the headache that wouldn’t go away and her CSF pressure was double what it should have been. She had previously been misdiagnosed and went through so many unnecessary treatments.
A shunt or draining CSF through an LP were the only treatments that we were recommended.
Nobody ever talked about her neck. Her head finally balanced out, but still has many digestive issues.
My boyfriend has the same problem we live in north bc and the doctors didn’t even diagnose him with anything first he had an MRI and Ct done both came back negative, blood work xrays etc everything came back negative or inconclusive. Then he started thinking he has migraines with no obvious cause and is currently on 3 different meds from migraine meds to strong antidepressants as pain management and they don’t even work. They never even bothered to mention his pressure. After years of google research this is the first time I came across this condition and finally the puzzle seems to fit. So I’m hoping this is it now
I have all these symptoms. Recent MRI shows IIH and will have a LP in 2 weeks. The brain fog scares me because it is affecting my everyday thinking. I have to think for the right word and it takes me a while and I feel so dumb. I also feel my neck hurting and feel that I have the fatigue for many years. Thank you doctor for explaining.
MRI would be unremarkable. MRI cannot show if a patient has or does not have "IIH".
I'm experiencing the same. I was recently diagnosed with IIH. It's scary.
IIH is diagnosed by LP and lack of any findings on an MRI. MRI that is normal with LP that is bad means IIH. Smh.
Can't MRI show empty sella?
@@kristiekris3401 mines did
I was just having a conversation with my 21-year old son last night and you said the very words that he said about him feeling better lying down) than when he stands up and touched on a lot of the other issues he is having, as well. Confirmation, yet once again, listening to your videos and reading your research. Thank you.
Your son had a lumbar puncture?
@@lindapandinha no
My 18 year old sister was diagnosed with this about 3 years ago and is getting a VP shunt put in tomorrow. One of the scariest things I’ve had to see her go through. Thank you for all the work you’ve done to explain this mysterious condition to us.
@keishatorres1567 praying for healing for your sister!
Absolutely the BEST VIDEO ON TH-cam ON THIS MATTER. THANK YOU 😊 SO MUCH.
Pleaseeeeee consider opening another office on the West Coast. There are a slew of people here too sick to travel that far that could use your knowledge and services.
I have IIH, and haven't been treated for years because I can't find a Dr in my area who actually knows anything about it. I was fine for about 4 years and now I have papilledema and my vision sucks. 😭 I also have cervical spinal stenosis. Thanks for the video!
See a Orthogonal Chiropractor changed my life.
I also have cervical stenosis and it’s debilitating on my life. I have I guess I would call it flare up where I’ll go as long as 2 weeks in excruciating pain, and then after that I’m someone normal but the pain is still there. I also go to the gym 4 days a week so I’m sure that’s not good but I do stray away from anything too strenuous. Idk what to do at this point,
Wow. All of this is spot on. I've been diagnosed with this for almost 10 years and it's been rough. I also have trigeminal neuralgia. It wasn't until a year ago that I finally got neck x-rays and it shows I have "military neck" so the cervical curve is messed-up. Unfortunately, I work a tech job so my posture is abysmal, but I've been working on it! I need to look into some of those other imaging methods.
Are you able to fly on a plane?
anything finally work for you?
I'm so sorry to hear what you've been going through. I've had debilitating symptoms now for three years plus Trigeminal Neuralgia too (and Ehlers Danlos Syndrome, a disability he mentions). I've been convinced it's all related and this video seems to point at that. It's hell. It has totally ruined my life/have no life. I would also go and see this guy if I had the means to. I'm going to save these videos and try to show someone. I'm also going to look up Prolotherapy here in the UK. Best wishes to you 😢 x
@@MegaLeoben so, I'm actually doing okay! or at least to the point where my papilledema is gone and my diamox dosage is lower. I can't really say what exactly helped. I'm getting an MRV soon to see if I have stenosis in the brain or neck which may be leading to my migraines and the increased cranial pressure. I do pay more attention to my posture and ergonomics. I use a standing desk at work and do neck stretches, take walks, etc. Physical therapy is also nice.
@@mariaaastarr3032 yes, planes aren't an issue for me. most people with IH can do okay in the air, but everyone's different. high elevations and barometric pressure changes can increase symptoms.
You are best doctor❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤best doctor. Who give many people lives safe.❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤ respect from hear.
Im so greatful of your videos! Did my first prolotherapy in sweden with glucose on my neck yesterday. Feels like my neck posture getting better by automatik
Tjenare! Prolo finns väll inte i Sverige? ❤️
Can you mention the clinic that does this in Sweden?
Are you in remission?
I'm just so glad I finally found you 💖. I was feeling doom because I really feel I'm not going to last long with everything going on.
Thank you
I'm literally crying, I've had scary symptoms since 2020, and my doctor says I'm fine. My symptoms come and go, and it's really frustrating to feel my brain getting unplugged out of nowhere, but by the time I get tests done, it's back to "normal". I want to quit my job and march straight into urgent care to get my tests done while I'm actually debilitated, not when I'm coping with it. I just want them to know I'm not an attention seeker, I'm not making it up, and that it has to be addressed before it gets worse(and it is slowly getting worse)
Update:
I've been much more conscious of my neck lately, and my symptoms have eased slightly from posture checks, or rather, the severe episodes are about 30% less frequent. (I'm also finding that my workplace is a terrible environment for good posture) Additionally, I'm becoming aware of some other health issues, such as my beaten and battered mitochondria due to my poor diet and environment. I think both cervical instability, and mitochondria damage are working in tandem to put me in an early grave. If I remember to, I will update again after making some more changes.
Get a MRI ASAP
Look at EAgle Syndrom check styloid compression you really have to push these jerky doctors i had it now for 4 years MVA - and 22 doctors all denying it - finally saw a Vascular neurologist for a CVR CT and they found the neck injury
CT veinagrahm
@@sheilakeller5141 I looked at Dr Ross's video about Eagle Syndrome, and found a little bit of relatability. My right jaw cracks every single time I open my mouth normally, I have to open my jaw off track to make it not snap loudly. Also, it isn't sore in the area all the time, but it's always tight around my eustachian tubes, and when I massage them, I get a coughing reflex, tingles, and movement in my throat. My jaw never relaxes, I just can't find a position it will sit still without creaking/rumbling in my ears. Is that Eagle syndrome? I finally got my doctor to refer me to get an MRI, its booked for August. But he called the motion Xray imaginary, so I think it's just not a thing in Canada... I'll see if he thinks a vascular neurologist is real.
Thank you for the suggestion, I'll take all the knowledge I can get.
How did you correct it through change in neck position.please reply.
I have learned so much from you. I refer so many people to your channel. Thank you for all your knowledge.
I think I have this. I have pounding pressure filled headaches everyday, and I hear swooshing noises in ear every night especially. It started in 2021. I'm still waiting on a spinal tap. It's definitely affected my quality of life. I don't feel that great nowadays.
We are so sorry to hear this Alesha, we know how frustrating it can be to deal with these symptoms but know that you are not alone! We would love to help you get your life back, please give us a call at 239-308-4773 and someone from our clinical team (they are fabulous) can get to know more about your case! Don't give up hope, God has a plan for you!
@@CaringmedicalProlotherapy Thanks a ton! I'm just happy this video is here, it's a great reference.
@@aleshapeters I have the same, how are you getting on?
@@WM84629 Honestly at this point I've learned to live with it, and I go to chronic illness spaces that are compassionate and understanding. Most of the people in my life were very judgmental, and most family members don't get it. It's exhausting explaining your pain to people that are wanting to misunderstand you. And thank goodness this video and comment section exists.
I suffered a concussion in 2019 at my job. Ive had constant migraines since and my eye pressure has been high at every visit to my eye doctor for glasses. I had an CT scan on the 31. They called me 4 hours later with the diagnosis of IIH. I'm terrfied especially of the lumbar puncture and shunt options. I'm scared in general to he honest. I see my neurologist tomorrow morning. The migraines have increased and my vision is decreasing. It did it yesterday while driving to work.
So sorry to hear about your post-concussion syndrome and we hope your appointment went well with your neurologist and they gave you some treatment options. If you ever feel that you'd like our team to help on your case here in our center, you're welcome to reach out to us directly. In the meantime, you may want to check out our video on post-concussion syndrome to better understand the possible solutions. There is hope! Hang in there. Wishing you all the best in healing! th-cam.com/video/QQZGde7pcik/w-d-xo.html
You’re really good doctor! 👍🏻
So i thought i might have this but Ai told me i have cervical spondylosis. Anxiously awaiting an MRI for my brain and cervical spine
I wish more people knew about ICH. I was diagnosed in 05' when i was 16 and it was so bad I was told if I had not gotten the spinal tap i would have been blind in 24 hours. The dr. at the er had to go look up the symptoms, but i was lucky and another dr walking by heard my screaming and checked on me, he had heard of ICH and a few hours later i was recieving a spinal tap, with a pressure of 50. I still have memory problems and brain fog.
I am dealing with a lot of symptoms since 2012 and after all these years I was finally diagnosed by Dr. Hepworth in Denver with special cat scans with contrast.
I will have surgeries next year to fix those issues, surgeries are called
“Styloidectomy and bilateral jugular veins decompression “.
It’s highly misdiagnosed and unrecognized by specialists
Does it give you high pressure headaches especially in the back of the head and is it worst upright?
My neck has a bulge and pulsing throbbing, I had an ultrasound and I was told my vein was tortus. Can the bad circulation from vein in your neck cause the IIH symptoms? I have eye pressure that feels like someone is pushing on the back of my eyes, I have a huge bulge on the top of my head that the doctor said is under my scalp but it is always tender and she said it is not important, vision problem, I always feel foggy, headache every day, occasionally I wake up shaky, I get occasional nausea. I always feel like my head wants to explode, especially when I bend over.
Dr H is a great guy. Prayers for your procedure.
@@lizagarcia2117 you need to get to a neurologist, & neurosurgeon you can lose your eyesight! Also, if the cerebral spinal fluid is high, it acts like a tumor & can essentially cause the same thing a tumor can. I have this IIH, also known as Pseudotumor cerebri. They will do a spinal tap to check the pressure, this is what gives the diagnosis.
I just want to know why our medical insurance doesn't pay for real knowledge to help people. It's like they prefer all other obstacles and ignore other possibilities.
Most people can't afford help because insurance won't cover it. Everything you say makes so much sense and it needs to be really out there. So many years and I now need to go search for someone like you that really put everything together from all ends. Usually the Dr asks what problem is most important because I can only see you for one.
HORRIBLE
If you can't afford it in America, make a list of the specialists you want to see and procedures you want to do, turn on google translate English to Russian, and search for these things in Kiev, Ukraine. You can see directly the neurosurgeon there, no need to wait after some lame GP
I have looked everywhere for an answer. Thank you! I have had this weird head pressure and pulsitile tinnitus and I have forward head posture. I constantly feel like I have so much heaviness in my neck and I kept thinking it has to be posture.
We are happy that you could get some answers @shawnacoopie - we are praying for your healing!
Why would the neurologist I had to see ignore the hydrocephalus? It was clearly seen and I complained about my neck many times. All they looked for on mri was tumour why?
This is something you would need to address with your provider!
Thank you so much, this has been very helpful
Can you guy's take a look at scans if we can send them over from the UK?
Thanks so much for your expertise. Does weightlifting help with the flow ?
I had an LP and after it made my pressure go up within days higher than ever
very interesting, thank you Dr!
Great info, thanks doc!
went through this and the doctors couldnt figure it out until i was going blind, i have a stent now and doing much better. i believe my spinal fluid pressure was around 45-50
Majima
i got hit on top of the head with a large plank more than 3 months ago, diagnosed with concussion
and I think the issue I am having is cerebral autoregulation dysfunction. Thank you for the info.
The strange thing is that my daughter was asking me about her friend having symptoms of intracranial hypertension and was asking about a doctor to see her, few moments later I find this video in front of me. Thank you for this explanation of the case
I just came across your videos. Thank You for explaining this so much better. I have; Adhesive Arachnoiditis, IIH, Daft Fistula, Transverse Stenosis, disc degenerative disease.my neurosurgeon truly believes the AA caused the Idopathic Intracranial Hypertension. My neck hurts all the time and yes the brain fog is crazy. I wanted to add now their are many people with Adhesive Arachnoiditis that have Idopathic Intracranial Hypertension. I guess it would be secondary. I wish you were in Michigan . Thank you for going into detail. I always knew it was much more to this. Thank you again,
Lisa
I live in Michigan also and have severe daily non stop head pain like my head will explode I see a neurologist and the scans show nothing they tell me. I’m always in so much pain for over a year now I can’t take the pain anymore my life is completely different than it used to be. I want my life back. Do you mind telling me who helped you in Michigan maybe I can go see them since I live here too thank you and god bless you I hope your not in too much pain today
I forgot to say my neck always hurts also and spine. My eyes always hurt and feel like they will pop out of my head also. The née urologist only treats me with migraine meds when they don’t work I keep telling them it doesn’t take away my pain. I can’t ever escape the pain it’s there all day and night. I didn’t just wake up one day and have non stop migraines I’ve never even had them before.
@Jen-lw9hw my neurosurgeon has saved my life with my shunt.
DR Hazem Eltahawy. He use to train Residents at DMC in Detroit, MI.
I was diagnosed in 2009 after suffering terrible headaches, vomiting, extreme nausea, etc. I had a c4-c-5 fusion in 2006, it did not help the pain or swelling I was experiencing. I went 3 more yrs misdiagnosed until 2009. I had a Dr look into my eyes & said he thought I had a dangerous amount of fluid behind my eyes. He sent me to OSU. They did a lumbar puncture & my pressure was super high. I was scheduled the next morning for Eye Fenestration, as I was going blind in my left eye from the pressure on my optic nerve. I had a shunt placed as well. I had a revision of the shunt in 2016. I am still currently suffering from major symptoms, especially after nearly dying from Covid in 2021. I had a heart attack, blood clots, Covid Pneumonia, Sepsis, necrotic tissue (Covid Toes) on my left hand & arm, & underwent amputation of my fingertips. Dr’s gave me a 3% chance of survival. I was intubated for 45 days,& hospitalized for 5 months. To date I have 31 diagnosis.’ I feel like my neck is broken, & I’m experiencing so much pressure it’s unreal, but GP sends me to Ophthalmologist, who explains that he can not see pressure in my eyes bc of the Eye Fenestration surgery he gave me. Then I’m sent to my neurologist who, does CT’s, MRI’s, then just treats me for migraines. I’m so frustrated with the lack of info. It seems like a no brainer, (no pun intended) but you’ve explained this the best. I was diagnosed in my early 30’s, & although I’ve had those 2 procedures, I am still plagued. I am going to show this video to my GP, Neurologist, Neurosurgeon, & or every other specialist I see, until I get answers & relief. I’ve been disabled from this for about 10 yrs. now. If there was any way possible I could get to you, I’d be there ASAP. Ty for educating us. You’re compassion & expertise is amazing. This is a horribly debilitating disease.
I'm so sorry to hear you describe your suffering, firstly from COVID and also this. I've had debilitating symptoms that fit most if this description now for three years plus Trigeminal Neuralgia - where it feels like your face is being electrocuted - and I have Ehlers Danlos Syndrome, (a disability he mentions). It's hell. It has totally ruined my life/have no life. I would also go and see this guy if I had the means to. I'm going to save these videos and try to show someone. I'm also going to look up Prolotherapy here in the UK. Best wishes to you, I hope you get help 😢 x
@@AngelaEllaMusic sending you blessings & well wishes from Ohio USA. We are strong, 🙏for a cure, ty for sharing your story. I hope for better days my friend.
@@AngelaEllaMusicI'm in UK too let me know how it goes. I'm 24 and have no job right now so bit hard to get
Thank you doc. I wish you had an onsite rehab center. I'd take the first flight. My face gets so much fluid so I drink black coffee. My sleep I s so awful I use a blanket to hold my head. I checked almost all the boxes! My eyes are the most annoying symptom eith insufferable convergence but I called a vision therapist while I'm still seeking c1 , c5 stenosis.
Do you fly on the airplane with pseudotumor cerebri?
Are these services covered by Medicare or Medical? You make these diagnoses sound so simple I would love to get some treatment
Do you need to be supine, flat to drain? What about if you have CHF and have to use 2 pillows or sleep in a recliner?
My mother is diagnosed with IIH . She is taking diamox for 10 months now but her situation is worsening day by day .
Ugh, so sorry to hear this. Unfortunately, medication can make the problem worsen as the underlying cause is something different like CCI. We would love to get her in for diagnostic testing!
How can i take an online appointment with you ?
How do you fix cervical instability, cervical distracter????!!!!!
How do you fix it all?!!
I would like to know or see a video on what you do with someone who has had a neck fusion like a cervical fusion ACDF since I’ve had C5 and six and six and seven fused… Therefore I do not have the ability to correct my curve at those levels And I have so many symptoms and would like to live a long life, God has blessed me with wonderful grandchildren and children.
Hi, I thought that the surgery correct the curve. The way they place the plate and spacers are supposed to correct the curve. Am I wrong? Hope you are doing better!
This is great information but if we can't see you what practice should we look up to try and have this treated?
I just found out Saturday (October 1, 2022) that I may have IH. I’ve been having migraines from 2019 and it gets worst without me knowing it was this bad. I’m trying hard not to think about it too much because when I worry, my pressure goes up 😢
Don't be afraid, Dr's are extremely skilled. Talk with your neurologist, a lp or spinal tap, and perhaps a cisterogram.The exiting pressure is extremely helpful in determining if, in fact your pressure is elevated. Try to stop bending over, and don't lay down without being elevated, At least 30 to 35 degrees 2 pillows and keep your head straight, try not to cough. I have been dealing with this for 14 years, finally getting the correct dx, and treatment. It's not a simple task to diagnose these problems.. The more you can make note of, this .. will help your dr alot. Also, consider seeing and optomoligist, as well. Just as an extra measure. Could be in the eyes, without your knowledge. Answers for your condition is out there. You are your best advocate. Take lots of notes to help the Dr's access the best course for you. Best wishes, I hope you feel better.
Jeane Greene. Thanks so very much for the advice and yes I do feel the pain my my eyes but only one side. Sometimes the pain just comes on sudden, causing the eye to jump and starts hurting, it’s unbearable. I was recommended to see a neurologist too. Haven’t had time to go as yet.
@@crystalallen9588 I have my lumbar puncture and cisterogram Tues.Mine is only my right eye. The neuro is really a dead end and your wasting valuable time in case there is pressure causing it. Please....call them opthomology first, then if they see concern they'll refer you to neuro opthomology. Your neuro unfortunately is limited in what they can recommend. I hope you get there soon. Thoughts and prayers your way
I say a dead end..meaning they are likely to advice the eye dr first. Then back to neuro and depending on that outcome your neuro can get the tests needed to treat you Iin their most effective manner. I trust my Dr's wholeheartedly. It's been 14 years as it worsens,but theses Dr's...are the ppl passionate and determined to figure it out...we are on our way
@@jeannegreene5104can you please explain that how are you dealing with it.
Could all of this be caused by a bad chiropractor session?
Does it have a cure/treatment?
Does the brain repair itself if this pressure damaged some tissue?
Tks.
can you please tell me how much exactly cost in an average?for prolotheraphy
If you go on the caring medical website it has pricing for the prolotherapy.
I have to sleep upright too, it's so frustrating, I also have to just tired myself out and fall asleep because I can't get comfortable due to feeling pressure. I go Tuesday for my lumbar appointment.
Update: I do have IIH. My opening pressure was 31.
@tasha9650 how are you doing now if I may ask? What meds did they give you? My pressure was 25, I am obese and have read that losing 20% of body fat can really help, so now I am on a 1600 calorie a day diet..I don't see my neuro till Dec 5th so I'm just feeling anxious...hope you are doing well ❤
@@jennifermurray4387 Literally as soon as the did ky lumbar puncture I instantly felt better! It was also weird because everything seemed "lighter" this condition makes things a bit darker so it was like someone turned the lights on. They confirmed it with the spinal-tap and also my MRI did align with it being IIH as well so they diagnosed me and placed me on diamox. Diamox is a VERY hard medication to take though it gets off the extra fluid around my brain its causing me to have breathing issues...I have this nagging cough when I take it, my skin is dry which it never has been in my life to the point I didn't even wear lotion because my skin was moisturized but now its so dry, I still get off balanced/ dizzy at times and the extreme tiredness is still there. My doctor did write me asking if I wanted to switch to another medication but when I looked those side effects plus the fact it interacts with other meds such as even ibuprofen and allergy meds which I take...Im not sold on changing despite her telling me "usually" the interactions are minimal... Meanwhile being unalived is listed as a possible.
Sorry, this was so long. I've heard weight-loss can help but I believe my issue are related to sinuses. Mine started about 3-4yrs ago with what I believe was a sinus infection and my ears being filled with fluid to the point it sounded like I was underwater, especially my right ear... They gave me antibiotics which cleared up some of it but the feeling of "fullness" never went away so Id just keep going to the doctor's and they think it was another infection until I went to get new glasses because my eyesight diminished so quickly and that's when I was referred to the neurologist who sent me to the spinal-tap & I finally got answers.
@@jennifermurray4387 Also, During the time of them testing my eye's my pressure in my eyes went from 30 to 26 in a week. I was taking Bilberry & A-C carbamide...
My daughter has this, we’ve taken her to dozens of Drs. Where do we get help? And how?
Go to a neurologist near you
I’ve been having issue for the past 3 months at first it started with high blood pressure got put on medication but still I have all this pressure in my head and I get dizzy, laying down is really the only thing that makes it feel better. Also I feel like I got all this tightness in my neck, I’ve had ct scan done and an mri scan done on my brain and all came back clear also had a carotid Doppler check done and it came back clear. I just want answers so I can live a normal life again
We are so sorry to hear this - we know how brutal some symptoms can be. We would love to help you get those answers! When you come in for your first visit, you receive a cone beam, DMX and ultrasound - after going over your result, Dr. Hauser is able to provide a diagnosis and treatment plan. Contact us directly - we’d love to set up an appointment!
I wish you could help but your clear in Florida and I’m in Indiana
Thank you . You are a fantastic Dr
Thank you for your kind feedback. Wish you all the best in health!
Very interesting, I feel I have some symptoms but still not sure. Sometimes I think I have the opposite a loss of csf fluid. So low pressure. I get pressure headaches loss of appetite, but my eyes feel fine. I also felt drainage down my throat. Symptoms better once I laid down. Upon standing I’ll get vertigo head pressure racing heart, kinda like pots or anxiety. My ears felt clogged too. Not sure if this is low or high pressure?
My wife have this problem how can I get the best help for her?
Hi, I pray you found help. Take her to nuero-opthamologist, and neurologist. Start there.❤
would hyperextension of the neck (backwards) while sleeping on a sofa cause this as well??
This is fascinating! I would like to be evaluated for this. I’m in California though . Can you make a recommendation of a physician in my state that might be able to do this in the same way you test for it?
Hi @laceyr.2642 - We cannot give referrals for outside of our office, especially if we have not seen someone for an exam and to thoroughly review their case, imaging, etc. We simply do not know everyone who practices or what types of cases their office accepts, etc. Our office tends to take on a lot of referred cases that other offices cannot handle, especially with regard to the upper cervical spine.
We recommend that you search for a Prolotherapy provider in your area who could see you for a thorough exam and consultation and start there. Wishing you all the best in your healing!
I was just diagnosed on Friday
I was just diagnosed with this. My ct in the er said this, among so many more things. I’ve said for years I thought I had ‘chronic meningitis’ because I feel like I have too much csf fluid. It’s because I have a leak in my csf in my sinus area. I could smell and taste metal for 6 years!
So sorry to hear it went on for so long but glad that you were able to find an answer! We are praying for your complete healing ☺️
@@CaringmedicalProlotherapy I figured out WHY I have it. I have polycythemia Vera, and it’s a known side issue from my cancer. Thank you for the educational video and support. ❤️
Could also be the same symptoms of a cranial spinal fluid leak.
Thought so too. Do you know what tests one should take to check if it's it? What/where to start with? Thanks a lot for any help.
Is this IIH Considered to be Somewhat similar to 2. empty Cella? I have the empty cella. I do not have Papaladima. What would you recommend for that??
Do you guys do venograms in Florida. I’ve been experiencing a lot of symptoms since I pinched something in my neck in January.
Hi abby m, Thanks for asking. We do not do venograms in our office. We do cone beam CT scanning which is very fast and great for seeing styloids and structural reasons for intracranial hypertension, and we can refer out for venograms locally if it is necessary for the patient. Hope you will soon get to the bottom of what is happening in your neck and find a treatment to resolve the issue. If you want our team to take a look at your case and possibly see you here in our center, you are always welcome to reach out directly. Wish you all the best in healing!
I was just diagnosed with IIH. My issue is I have horrible headaches when I wake up. The veins on the left side of my head are narrow I have a C 5-6 protrusion that’s sitting on my cord. Hard to know if your treatment will help since I don’t feel better lying down.
My daughter has had several spinal taps for this. Is this a real thing? It does help! She is supposed to take medication but can’t afford it. Constant headaches and horrific fatigue.
Im not asking for medical advise however im just asking your thoughts on my symptoms? Intracranial hypertension with only 50% oxygen in my carotid artery in my neck going to the brain!
I have every symptom thank you for your information... How can we contact you?
I had a large meningioma tumor removed on February 1 of this year. I am experiencing a lot of the symptoms associated with pseudotumor cerebra, feeling the pressure in my head when going from ceded to standing and hearing like a whooshing sound in my head I can’t even feel on top of my head in the area where the tumor was removed and feel a throbbing. Also when I bend over to tie my shoe or to pick something up in a come back upright it increases the pressure. Is this normal after surgery and will this eventually go away on its own or do I have to have some sort of intervention? I also will get some accompanied blurred or fuzzy vision when there’s pressure kicks up.
What about if I get an increase in unusual symptoms when lying down but not when I’m sitting or standing? A recent head and neck MRI showed nothing but there was indication of cervical disk degeneration and a bulge. Can lying down make the instability worse??
How are you now? Even my symptoms get worse when lying down and MRI shows disc bulge at c3 and c4
Same!!! My symptoms are worst when lying
I'm sleeping in randomly waking up in a state of adrenaline feeling like I can't breathe and then I turn over and I'm going back to sleep. I've had a pressurized brain feeling for 2 years permanent
Wouldn't cervical spondylosis be another cause? I'm experiencing all these symptoms. Trying to figure out if physical therapy exercises can help
Yes, cervical spondylosis is a non-specific degeneration of the cervical spine, meaning it could be causing all these symptoms DUE TO cervical instability. Physical therapy can help alleviate symptoms and can slow down the degeneration process however degeneration is a disease that happens over time. Meaning if nothing is done about it it will continue to worsen and regeneration needs to happen!
I have depression stressed and anxiety don't know what wrong with me
Me too
I just got diagnosed with this I been having this for years undiagnosed
Hi Yvette- Glad to hear you were finally able to get this diagnosed and sorry to hear you've been having symptoms for years. Hope you have a treatment plan in place to get it resolved. If you feel that you'd like our team to potentially see you here in our Fort Myers, FL center, you're welcome to reach out to us directly. We wish you all the best in healing!
Has there been any significant changes by shifting diets?
Since the brain is connected to the gut, sure can help release toxins but still if the problem is on the neck , it will be hard to make this flow…
My daughter was recently diagnosed with.. she barely can move due to the pain..
it debilitating.. she doesn’t want to eat, drink or move..
she wants to lay down 23 hours a day.. and cry.
Spinal tap her spine pressure was 37 they took 10cc.. put her on meds now at 15. She feels like she’s being bit and squeezed on chest, neck, head and stomach.. she’s also Down syndrome
Lori, we are so sorry to hear about your daughter, we understand how debilitating this can be. We would absolutely love to help your daughter get her life back, if you find that you can travel to our office, please contact us directly and someone from our clinical team (they are wonderful) can learn more about her case! We are praying for her complete healing :)
I have iih and had LP and VP shunt and still have white matter and vescal loop in MRI and still bad headache and also tortuosity in the optic nerve also the pictures of eyes still shows papilledema
Please help l am suffering 😢
Hi Nisreen - we are so sorry to hear that you are suffering. We would love to help you although there is not much we can do unless you are in our office. We are accepting new patients and would love to see you, please reach out to our office directly and we can learn more about your case. It sounds like you have instability and this is something that can be addressed with lifestyle changes and prolotherapy!
What is your evidence that styloid elongation compresses jugular blood flow?
hello @lyonsailing7520 there are a lot of great resources on our website like this article written by Dr.Hauser on compression causing internal jugular vein stenosis www.caringmedical.com/prolotherapy-news/internal-jugular-vein-stenosis-missing-diagnosis-headaches-tinnitus-vision-problems-neck-pain-insomnia/
So, what is the treatment?
My daughter has this. So scary!
Can you tell me about vestibal migraine causeing fits sickness wobbly walking UK docs have no idea why this happens
Can intracranial hypertension also be a cause of bilateral hemifacial spasm?
Dr. Hauser I really need your help please
Please contact our office directly, we’d love to help you get scheduled for an exam and consult!
What about weight gain can that cause it?
Obesity is a risk factor
Is there any home remedies for a mild case?
I was just diagnosed . Reducing vitamin A intake, drinking water and dark rooms and taking breaks during the day helps me
I had a meningioma removed almost 2 months ago. I have throbbing in my head that I can see on top where the tumor was located. Is intracranial pressure normal and expected after surgery? And when should i be worried. I told my neurosurgeon about this and he says it’s normal. What is not normal and when should i be concerned? Thanks
are your problem cured or you got some help ?
@@cherrytrees7289 i still have it, not as bad as before but its there
@@mattscott6591 oh , take care .
Yes most seizures started out in sleep for me now it’s like syncopal symptoms then seizure Sheila awake. For the last few years my symptoms and seizure even decreased from steroids I think or antibiotics. But now feel like might be trying to come back and waking after sleeping on head isn’t nice…. Should I have more steroids? Should I get a scan again? I want both.
We like to get to the root cause of the issue here at Caring Medical - meaning not adding on more steroids and determine what is causing all of this to happen. We would recommend getting another scan.
@@CaringmedicalProlotherapy Should I try to get chiari or obstruction or hydrocephalus ruled out? I can go see a chiropractor with
X-ray on site. I just called the neuro specialists a city or two over from me still haven’t heard back. I just don’t trust the neurologists I’ve had so I’ve switched . I just feel like playing games with my brain isn’t smart but they could care less what physics are going on inside my brain. Very scary. Disappointing. This all started young neck irritation age 14 seizure age 21. My mom has arthritis and scoliosis. I asked my past neuro in Toronto to rule such things out my ear fullness my neck what the steroids calmed down but nope just epilepsy monitoring unit. I’m happy I don’t pay much for taxes since I’m not working because this tax and country system with unfair healthcare isn’t right.
I have Chiari malformation as well as IIH 😢
We’d love to get you in for an exam and consult Angela!
Hi from Turkey, İstanbul, after having skull fracture on right occipital side, one year later, I had extreme burning legs and hips ( also sacrum fracture) it has been almost 2 years after my accident but still kinda feeling my skull is remodeling itself sometimes moving, also I have IIH in new brain MRI documents. But I had this when I lie down. Every morning I wake up with red eyes. Turkish norologyst cannot help me. I wish I was there 😭
Merhaba çok geçmiş olsun . Kaç yaşındasınız acaba ? Ben de iih teşhisi aldım 1 yıl önce :/
@@ebrusagmis4041 merhaba, teşekkürler uzun zamandır ilac kullanmıyorum iyiyim çok şükür eskiye göre . Siz nasılsınız? Süreç iyi gidiyordur umarım
@@azimlikz3431 benim hastalığım çok kötü bir giriş ile başladı ne yazık ki çok gürültülü başladı gürültülü devam ediyor. Basinc çok yüksekti sanırım. Beyin zarım yırtıldı basta onu tamir ettiler ama hastalığın teşhisini geç koydular 3 ameliyat oldum o arada. Şu an ilaç kullanıyorum ama doğru doktoru bulmak konusunda talihsizlik yaşadım. Büyük bir hastaneye geldim. Iyi bir nörolog ile görüşeceğim. Siz nasıl bir tedavi aldınız. Instagramdan konuşabilir miyiz? Sizin adınıza çok sevindim 🙏🏻
@@ebrusagmis4041 :/
Tabii ki konuşabiliriz kullanıcı adiniz nedir
Can someone tell me how I can find a dr to help with this? I’ve had this going on since after having my twins 5 yrs ago. Symptoms were off and on then. But the past year symptoms are awful and scary! 😪
I’m 6 hrs away from caringmedical Florida and my insurance doesn’t cover there or I would go there 😢
Have you found any help ?
Wow...
Can I have prolotherapy If I suspect that I have CFS leak?
Hi O.Pondo, Good question, and it would be up to the provider reviewing your entire medical case to determine whether or not Prolotherapy, or any treatment for that matter, would be appropriate. We do have patients who have CFS leaks, but that is only one finding in a person's case, so everything else needs to be considered as well.
Thank you for this video, I have that, and it makes sense.
It's been getting worse over the years, I tried everything.
I get migraines that are bordering on the stroke, and only Kombucha and alcohol tend to help
I also have this and you are correct, when I have kombucha I feel decompressed. I never related it . With alcohol I feel foggy and heavy not an improvement like it is with kombucha. Good catch!
hi dr, can you explain or research about visual snow please??!!!
Where can I go in BIrmingham, alabama to get help with this?
Hi Malisa, I live in Montgomery, AL and I have been seeing my neurologist here, Dr. Lipscomb. He discovered my pseudo tumor cerebri, and I've had 2 lumbar punctures to assess opening and closing pressure, which was high, and am on meds to drain (fluid pills), as well as MRI to monitor. He also referred me to Dr. Vaphiaades in Birmingham at the Callahan Eye Institute to monitor my vision, as he is a neuro opthalmologist to monitor pressure behind the eyes to prevent potential blindness. Hope this helps!
I'm in Alabama, I would like to know where in Birmingham... if you find out can you please let me know thank you so much
Hi, I am hoping you will reply please
I am being diagnosed with this currently but ophthalmologist are not sure what is causing it. I had mri brain didn’t show much they are ordering for lumber puncture. Which I am hesitant about. Ophthalmologist DRs told me my treatment options will be diuretic medication such as ( diamox). Once LP confirm is IIH Until I lose 5-10% of my weight. They think it’s caused by my weight which doesn’t make sense because I am fit and healthy. I workout 4-5 times a week. I just don’t want to be diagnose incorrectly. So far the only symptoms I get is blurry vision. This happened when I work out or bend. My eyes are also sensitive to light…if expose to light, all I see is white it takes few seconds for my eyes to adjust and see. Please I am hoping someone can replay.
Hello @btele5359 - we are so sorry to hear that you are going through this. It is great that you are doing research for alternative treatment options. We have a lot of great resources on our website (I attached the link below) and are accepting new patients. We would love to help you on your road to healing, you can contact our office directly to schedule a consult.
www.caringmedical.com/?s=intracranial+hypertension
This is me. I’m so miserable
Does anyone know of someone who treats this sort of thing in the UK? I need to find someone who can help but I'm based in the UK.
Apparently there's a Dr in Stoke called Dr Ellis.
@@roboquaid Thank you!
Would scoliosis have something to do with iih?
Great question! It is possible! Scoliosis can have an effect on the rest of the joints in the body, causing ligament laxity in the neck which could very well lead to IIH.
I hope for everyone endlessly.. Medical science is lacking... I'm not a doctor, I wouldn't wanna doctor anyone; I hope folks seek God. I have faith this life isn't the end and, trust no man lest ye be deceived.
I tried praying and reading The Word. I didn't have physical ailments to any great degree; God gave me peace though.. Even in the worst situations, idk. God is good. We cause most of our ailments, knowingly or unknowingly. God can save our souls, at least. There's a clip from "Da Ali G show" where he is speaking to a doctor. The doctor says "Everybody dies; it's a biological fact!" and Cohen says "I like to think, 3 outa 5 make it." And the doctor is dumbfounded and annoyed! Da Ali G show was nice. Jesus is way cooler than anything I've seen in my 3 decades in this world. Jesus Christ is the light of man; I won't rant beyond my understanding.. It's easier to love everyone now, and I've only been into The Word and prayer a short time. Try it out folks!
can of come from arthritis of the cl c2