The Reality of Migraine: RAW FOOTAGE & my Real Reaction to Seeing a Migraine for the First Time
ฝัง
- เผยแพร่เมื่อ 7 ก.ย. 2024
- Showing the truth behind migraines by sharing real, raw footage of a complex migraine or vestibular migraine attack. My most VULNERABLE video yet - the truth about migraine is it's so much more than a headache! This is my real reaction to seeing one of my own migraine attacks for the first time. It is embarrassing, but I cut none of it out! With this video, I aim to spread awareness of the reality of living with chronic migraine disease by sharing raw footage of a migraine attack! I have vestibular migraine and complex migraine with basilar aura or brainstem aura.
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○ CranioCradle: amzn.to/2FIbjvn and deep tissue: amzn.to/3l2UrzD
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This was my most vulnerable video yet, and probably will be the most open I get for a while. It is so emotionally draining to put yourself out there, but I know firsthand what a huge difference it can make. I appreciate your support guys!
Any time there is the sound of a racing heart beat in a film or a video game it triggers me.
Love the honesty
People need to see that it is a REAL THING! You have given me alot of confirmation of my own migraines.
I am 59 & have had mine scence 10-11 years old.
I have Chrome Auric migraines and have episodes or Nastagmis-eye movements with & without migraines as i also have MS & have active episodes this past 4 months. I however don't have the memory loss everything else tho...
Blessings to you and your family for health, wellbeing & your relationship with your husband ❤ Thank you for giving me support in my life as a fellow Mother with a child and husband with migraines ❤
I know we are special sensitive souls having physical experiences in life.
It is a part of our lives. Thank you again for your support.
I also have a service dog as well...how did you train yours for migraines? My SD is trained for aiding my multible disabilities: walking, PTSD, & DPT- deep pressure therapy &other things too.
That must have been hard to watch. It is hard to watch as a fellow sufferers. Must have been so much harder for you. Thank you for being brave enough to share it.
I started having migraines really young too. 8 yrs old was my first ER visit, took scans of my brain and they couldn’t tell my parents what was up. I had thrown up at least 10 times that day, including the sedatives they tried to give me for the scan machine. (I just remember being excited about riding in an ambulance when they transported me from the ER to the other medical building.)
I don’t have memory loss (or do I?) or know how I present during migraines, but I sound like her when I try to talk during a migraine (I hear myself forgetting words, halting in my speech, unable to press past a sentence).. I have had auras ususlly 2-6 hours before the pain hits, and have had to be picked up from work by my mom in my 20’s because I couldn’t stand or walk. (Very embarrassing to lay on the floor of your office in front of your coworkers when you’re already the youngest person there and looks like a teenager.) I get strong light/smell sensitivities, and to a lesser degree noise and touch sensitivity. Usually also have heavy nausea and hunger/not hungry confusion.
I have had to keep a headache journal for a neurologist about 10 yrs ago, and I had a headache or a migraine about 20 days out of the month. But none of the migraine meds worked with me. I felt like I was being choked from the inside of my throat, which makes no sense and sounds crazy.
I’ve had auras before my migraines since the start, which I appreciated because then in some cases I can prepare to go down for 12-48 hours. But recently I had a new type visual disturbance in the bottom right quadrant of my right eye, and I couldn’t look at a computer screen or see. The type and duration of my migraines have fluctuated since they began nearly 3 decades ago, but I think it’s played a huge part in my becoming a more isolated person (as well as other chronic pain/functional diagnosis I’ve had since I was 11).
No one wants to deal with my shit, and I feel bad subjecting anyone to it. So I suffer alone.
Even tho I don’t have the same severity or symptoms as Jen, it was interesting to see. I would never be able to film myself, because light feels like daggers into my skull when I have my migraines, so it was interesting to see her clips and recognize some of what I think I go through.
I am a nurse. Our medical schools and nursing schools need to watch this. You are a hero doing this for others. 💕
So happy to help 💜
I agree and thank you Jen for posting. I’m a nurse and this was so helpful for me to see your migraine experience.
@@MommingwithMigraine I have to epically applaud you for this. I have migraines (often accompanied with seizure-like symptoms, but no memory loss) and when you started talking in that clip all I could think was, OMG she sounds like I do! THANK YOU for posting this.
Thank you so much for posting this , I suffer so much with migraines and everyone thinks it’s just a headache I just had a two day long migraine my longest has lasted one month and I ended up in hospital for extra help . The eye stigma you get I also get that , the pain in so overwhelming the slow speech and not making sense makes you really think over what did I just say .
I have never recorded my self during an episode but you did and that exactly how I try to describe it and no one understands .
It’s so hard coming out of a migraine is like running a marathon takes a while to get back to normal , my poor husband feels so bad everyone and it happens so often that I stay nome now and no longer go out to work .
I thank you for this post .
It's similar to a TIA happening. Although essentially it's the same I suppose. Incredible
Does anyone else feel like they have a "hangover" after their migraines? Sometimes I feel groggy/foggy, exhausted and slow even after the pain is under control...
YES!! The day after a migraine I definitely have the migraine hangover. It’s a miserable feeling that lasts the entire day (for me). My husband gets migraines as well and he too experiences the migraine hangover. So it’s not just you.
@@chiberjuberdourado2487 I'm actually relieved that I'm not the only one. I kind of assumed that others experienced it too. I've just never seen it talked about anywhere really.
Yes!! The day after I am so wiped out and my head actually hurts. Brushing my hair isn't an option, because is is so intensely painful. My entire head aches like the bones have been moved. I cannot adequately describe it. My body aches too but mostly because of the tension. I tend to tense up all my muscles even when I'm able to sleep. The next day is never fun.
@@lp7862 that last part. "That's a lot of lost life." That's the part most people don't understand. How much you lose when you have chronic migraines. I started getting migraines at 8. I will never forget the first one. That was 23 years ago. If you add up all the time I lost to migraine pain I'm surr it would be years of my life...
@@lp7862 I can definitely relate. Between migraines, endometriosis and lyme pain has become almost a constant companion. It's weird because you learn to function with it but functioning isn't the same. But when I have a good day I really appreciate it and make the most of it. It's strange though. I broke my back when I was 15 (the vertebrae not the spinal cord thank God) and got up and walked around for 2 months before my grandmother insisted on me seeing a chiropractor. The pain from that was mild in comparison to one of my migraines or one of my endo flares. It's strange what you learn to tolerate.
I had NO idea that this is what bad migraines can do to someone. It was absolutely eye opening and educational.
I just showed a few clips to my fiance because I thought it was fascinating that a migraine acts differently for every single person and also that yours look completely different than mine. He then just looked at me and said that I almost look the same (I don't have these eye movements) and that he could tell that you were having a migraine from just taking a quick glance. This really took me by surprise. I have been having migraines my entire life and I never realized just how I must look to others. I am now officially crying my eyes out. Thanks for uploading this video and raising awareness!!
You're so welcome, this is why I post these things 😭
Ha I just did the same thing! I sent this to my son and asked if this is how bad I get. My short term memory is the first thing that goes out the window.
I just had a similar conversation myself. It’s strange to realize how much i forget during those.
I cried when I watched it. I'm 52 have had migraines ever since I can remember. Been tokd so many times that I fake the stuttering, absent mindedness and weakness of them. Seeing you go through it gave me back some sanity. Thank you!
@Habitnunangel. I am right there with you. I'll be 50 in a few months and I've had them since I was very little. My family always said. "you're to little to be having headaches" And as I've gotten older they have become more frequent and intense and also new symptoms or side effects. Love and prayers to you!!
I feel that. I get headaches a lot and I've been told a ton of stuff by different doctors. One said it was "just stress". One time, I had nausea and could barely walk and couldn't open my eyes and the doctor was like hey, that's a migraine.
But I have the symptoms you mentioned with my fatigue(undiagnosed). I stutter, get hazy, lose track of what I'm thinking/saying, and I fall asleep no matter what I'm doing. And it's something most people around me don't see, so they don't understand how bad it is when I tell them. It's so frustrating to have people not understand what you're going through. I'm so sorry you have suffered for so long and have had people invalidate your experiences. Sending you lots of love and I hope you're having a lovely day💜
@@cre-k8-ive I also got the "just stress" line! They even did a brain scan and didn't find anything, so the diagnosis was "I dunno, you're stressed about the paper you have due tomorrow." For the longest time I thought it was something I did to myself, somehow!
I have struggled with being ignored my whole life when it comes to my physical health and I will give you some advice. If you are wondering if you’re faking or exaggerating something, you aren’t. Am I really fatigued or am I just lazy? If you’re asking yourself this question you’re not lazy. Don’t let anybody tell you what YOU feel because they aren’t in your body and they don’t have to live every day with your symptoms.
@@GeeklingNo1 That was a wonderful reminder that I think everyone needs sometimes. It's definitely something I struggle with.Thank you for pointing that out!💜
Wow, I didn't realize how much I needed to watch this. I grew up with all the women in my family having migraines and I grew up having basilar migraines (aura, nausea, pain, numbness, sensitivity to my senses, mind fog, all of it) but, NO ONE has ever said what you did-
"This is my disability"
It made all the times where I was stuck at school crying in pain not seeing and school nurses refusing to call my parents, coworkers rolling their eyes in my stuttering, and even family members and friends just telling me to sleep it off just rush through.
Even today when I was getting established with my new physician I could tell that my nurse and my doctor didn't only not understand when I meant migraines or know about the medication I take for them, but THEY DIDN'T EVEN BELIEVE ME.
The doctor asked me if I'd ever tried taking an ibuprofen.
This made me cry. Yes, this is effecting my life and taking an ibuprofen or taking a nap isn't going to make them stop.
Thank you.
Find a new doctor! That's extremely dismissive and hurtful and downright stupid! My doctors are truly life saving. I'm doing Telehealth appts because I'm high risk but they are amazing. You don't need this kind of negativity in your life! ❤️
Have you been to a neurologist? perhaps who specializes in migraines? They exist and they’re wonderful. Regular doctors don’t get it. I had the same problem until I saw a neurologist who specializes in migraines. She’s amazing. I’d you haven’t tried seeing one, I beg you to do it. For you. You won’t regret it once you find the right one. It can change your life to talk to a doctor who understands and is an expert in that subject. I’d you’re just seeing a general practitioner, have them refer you to a neurologist ASAP. Good luck, I’m sending good vibes your way
🍀👍🏼🥰😊
@@ASHl33164 I have in the past and they have proscribed me meds that help! I just moved though and my physician during the appointment she said she will make a referral next time I see her as I should try out pain killers first. Luckily this physician will still refill my medication. Just during the establishing appointment she and the nurse didn't know the medications and what they are used for. Then they proceeded to ask what a basilar migraine is and throughout the appointment referred my condition as "bad headaches"
Thank you for the good vibes!
I hear you. I have a neurological disorder and get the same or similar ignorance from all angles. You’re not alone. Stay strong in yourself that you are not to blame and doing your best. And fight for better care! ❤️
No one believed me either. Eventually after years of daily severe migraines (I had already been researching for new things to help me) I found lots of information on having a daith piercing. And it took me at least 6 or more months to decide if I was going to try it or not. But my migraines were so bad I didn’t feel I had anything to lose except £30 tbh! And I chose to have both ears done, I was ‘all in’ for this, even knowing that it doesn’t work for everyone? I was desperate and felt I had to give it a shot.
Of course I had to research and talk to piercers in my area to find out who knew what I was talking about and knew ‘exactly’ where the pressure point was, and had lots of experience in doing these types of piercings specifically for migraines.
I was lucky enough to find a lady who was well versed and experienced in this particular and very specific piercing.
Anyone can have a daith piercing for decoration, and anyone trained in piercing can do them, but it’s very important to be specific to the very acupressure point when doing the daith piercing for migraines or it definitely will not work if you miss the mark! So it was very important I found someone with that specific knowledge and experience.
It doesn’t help everyone. I was very lucky and woke up the next morning without a migraine and I’ve only had a handful of tension headaches from when neck and upper back muscles would tighten due to emotional and or physical stress, in the last few years since I had the daith piercings.
Xoxo
As an ER nurse what you have captured is so valuable, not only for the person going through it but for the people who are going through it with them. Oh so very important is showing people they are not alone.
Thank you for your bravery for posting something that was difficult for you to share.
Wow, I expected moaning pain, maybe vomiting and resting in a dark room but nothing remotely like this. Turns out chronic migrains really are completely different to the episodic ones, that I‘m used to. This was so eye opening and interesting. Thank you!
agreed mine are stress and hormone induced.. they were the worst growing up as when my puberty came on i would get them severe enough that one time my vision completely conked out for around an hour.. usually though as a kid when i got them i would throw up and somehow relieve whatever was causing it as after throwing up it would often die down enough for me to not be in agony.. though i'd still be dead tired afterwards.. now it's just a severe feeling of someone smacking me over the head with a hammer whenever i get them.. usually i notice them quick enough that i'll lie down and rest.. and if i don't then it would most likely become worse
@@litchtheshinigami8936 exactly like mine remember sitting in a dark room wearing sunshades while my boyfriend now husband was visiting feeling sick and just wanting to crawl into bed and close my eyes not move thinking was painfull never mind talking xx
Chronic migraines don't all look like this...they absolutely can entail being in bed, dark room, vomiting etc. I know this because that's how mine present.
Yeah, theyre actually so different from the episodic ones, i thought chronic migraines were the same except they lasted a majority of each month. While my episodic migraines are painful and i cant speak/think/see clearly or do normal tasks, hers are soooo different on many levels
I would like to pipe in and mention the difference isnt episodic vs. chronic. The difference is more akim to "regular" migrain vs those with aura. Chronic is simply a measurement of hownoften the migraines occure. You can have chronic "regular" migraines or chronic "aura" migraines. Same with episodic.
This is intense. I don't know ANYTHING about migraines. I always thought that they are just really intense headaches. Thank you so much for your vulnerability. I'm trying to educate about different conditions for my job as paramedic and these real life experiences and clips are soooo helpful!
Headaches are a symptom of migraines, the most "classic" one, but I was shocked to learn that some of the worst ones aren't necessarily painful! Such a strange disease. It makes me SO happy that I was able to help spread awareness about the odd sides of it, especially to a paramedic. You could really make a difference with the above-and-beyond research you're doing by watching things like this on youtube!
@@MommingwithMigraine I really hope I can make a difference! We learn a lot about the "typical illnesses" and the "typical symptoms" but I think that's not enough...every human is so different and even a "typical illness" can present different in different people so education about all symptoms and different experiences, especially told from the patients themselves is important to me.
Think of migraines as the brain attacking the brain and the body...
Curious if you’ve faced vision loss or throwing up. These are two things that consistently happen to me with a migraine. Thankfully they don’t happen often but the vision loss is very scary...
@@mamastormdrd149 same
I’m so glad you posted this. When I get migraines I can’t speak and basically just space out. So many people think you’re faking it but not being able to communicate as to what’s going on is just the worst feeling. My husband and parents finally picked up on my cues and now know when I’m getting one.
People truly don’t understand migraines and everyone should watch this. Thank you for putting this out there!
This has recently happened to me 4 times. I’m so scared don’t know what causes them
Completely makes me understand why they say that severe migraines are like strokes. The confusion, the eye movements, and the speech issues. Thanks for being brave enough to post this, makes me curious to what I am like during my migraines. Definitely not as severe as yours, but would be interesting.
Migraines aren’t like strokes they ARE literally mini strokes. I’ve been suffering with migraines since I was 3 years old and I used to think I was dying until 3 yrs ago. Doctors really need to find a way to educate younger people about what migraines are because I used to get so scared of dying I would run away from people bc I thought my head was about to blow up :(
@@kendrawoodward8943 you have hemiplegic migraines too?!
@@kendrawoodward8943 They're not strokes because they don't cause cell death in your brain, but they can be very similar to strokes. The first time I had a hemiplegic migraine I thought I was having a stroke, it was truly terrifying. I was very lucky that I was with my boyfriend who is a medical resident and he was able to pretty quickly confirm that I wasn't having a stroke.
not only that you can go temporarily blind during a migraine.. i've actually had it once before when i was a bit younger... i was sitting in class and all of a sudden black spots appeared in my vision wich quickly turned to being unable to see anything.. now i was basically still a kid when this happened (luckily my migraines are less severe now as an adult.. still annoying but they don't make me throw up anymore..) however it's odd because as soon as i'd throw up the pain would go away and though i'd be dead tired (like someone having a severe hyperventilation attack) it would stop relatively quickly after throwing up..
@@litchtheshinigami8936 My son (he's 8) had this happen a couple of weeks ago, minus the blind spots. He was very droopy and said his head hurt. We could tell he wasn't feeling quite right. We had him go into his room so it could be darker (my husband has migraines and what my son was describing seemed like a migraine to him). A little later, he threw up.... And it was almost magic about how much he said he felt better after that. Before that point though, he said that his stomach wasn't even upset.
I have a chronic migraine disorder and I really needed this. I feel like no one can relate to me but helped so much!
Great idea!
Embarrassment should be reserved for things you have control of, you do a good job of taking care of yourself considering your circumstances.
I actually had no clue that people go through this with migrains.
I agree. I never knew this is what true migraines are like. Thank you for being so brave and posting this. You are a hero, and an inspiration!
I don’t think you should be embarrassed about it. You are so brave!
I have had migraines. I can't tell you how many times I have been told "It just a headache", "why are you using sick leave for a headache?".
This is so helpful. I am so tired of hearing "can you just take some tylenol and suck it up". No. I can not. Thank you for showing people who don't suffer from migraines what it is really like for those of us that do.
Oh my gosh!!! Yes!!! I hate when I tell people sorry I have a migraine and they still question stupid things "why are you wearing sunglasses?" "Why are you making that face?" Or like you said "why don't you take some Tylenol?" Or "i have advil".
I know these questions and things people say aren’t helpfull. But just because it’s not helpfull doesn’t mean it’s not intended to be helpfull. I am sure there are people who think you should just suck it up and move on. But there are also people who genuinely want to help but don’t know how. If you don’t experience migraines, you don’t know what it’s like although you would want to help. That’s also why this is important and why I think it’s a good idea if maybe her husband can share some tips.
@@imkelucius7862 true! Just because something isn't meant to be annoying doesn't mean its not though. I try to be patient with people but when folks who have been in your life for a while doubt things or claim you're just trying to get out of something it really brings down all the folks.
@@LemonScentedSquid I get what you mean. There are always two sides to every story. That’s why we need something like this. So we can educate ourselves and maybe start to see where the other person is coming from.
I get that from people all the time too
As someone with episodic migraine, and a spouse with PTSD, I recognize myself in both you and your husband. That feeling of "yup, this is a thing that looks scary, but is our life" is one I have regularly. I had a migraine at work this past summer and was shocked when my coworker told me he had noticed that I could not read as my aura came on. I suspect I also get that look of really trying to concentrate and do the thing or say the words, and it just not happening. Thank you for sharing, it does help to know we're not alone.
I worked in ems if I had been called to your house without knowing you have migraines my first thought would lean towards this woman is having a stroke
Terry Thomas yes you wouldn't be the only one, when I first having migraines I was rushed to hospital with suspected stroke, twice I had lumbar puncture tests. That was fun, not. But thank you for confirming the look. X
I have migraines...I've had strokes. My migraines scare me because they do have such an overlap of symptoms that I'm not sure if it's 'just' a migraine or if I'm having another stroke.
My mind blanks and I get frustrated with difficulty with word retrieval. It can continue for 24-48 hrs after the migraine ends. My migraine specialist said when you have a migraine your brain is short circuiting and continues through the hangover. Thank you for sharing. You are amazingly strong! This has made me seriously consider recording a horrible migraine so I can see what it feels like vs. Looks like. Thanks again!
I went to the ER twice because my husband and I thought I was having a stroke, and both were migraines. So crazy.
@@BusyBeeStitchery I refuse to go in for mine now after the one time my husband finally talked me into going. It was so bad I was barely breathing shallow because even breathing made my head feel like it was about to explode from pressure and the pain was ridiculous. I couldn't finish a coherent sentence ect. So finally I went in but ended up being in a small group that reacts very very badly to their new protocol. They now give a combination of tramedol < couldn't take it because I'm allergic to it, benadryl and IV Reglan (usually used orally for reflux). Well they are supposed to give the benadryl first so that if you do react to the Reglan you will be too tired and relaxed to care or do anything crazy. They failed to give the benadryl and only gave me Reglan. It was the most scary night of my life not only did I rip out my own IV, never in my life have I ever even thought of doing something like that and left it running on the ground (even though I do know how to shut one off) I also left the hospital and then ended up driving around all night. Cognitively you can tell yourself, this isn't right I shouldn't do this or that but it's like you have zero control over anything. It was terrifying. My heart felt like it was going a million miles a min and come to find out i was actually tachycardic. I went to my doctor as soon as they opened and the doc said i was very close to having a stroke my heart was racing. He gave a huge injection of benadryl and since then I have now been DX with an arythmia because of that medication. Now I'm terrified to go in for my migraines and just suffer through them.
Ive had quite a few migraines but nothing like this. This is like boss level migraine. Definitely not something to be embarrassed about.
When I had my first basilar migraine I thought I was having a stroke so I recorded myself to show the doctor later. I was describing the symptoms, the paralysis, etc. When I watched the video later I was shocked and horrified...I was just speaking gibberish with a couple words in between. It was like "blahblahblah can't see blahblah."
I showed my neurologist and he knew right away that it was a basilar migraine (since my MRI had ruled out a stroke). Basilar migraines are no joke.
Thanks for sharing this video - I don't know if I would have the courage to share mine. Your video really helped me. Your migraine looks a lot like my typical basilars, and I don't know anyone else IRL with this condition. No one ever understands how hard they are.
This illustrates perfectly why so many of us with chronic migraines end up on epilepsy meds. I know I scare my husband sometimes with mine.
it seems like epilepsy to me too. what is the difference between them?
@@bangturden7070 there is some links between the two and certainly a cross over in some of the drugs.
@@bangturden7070 I'm not a doctor but I have both and there's a lot of similarities. My understanding is that epilepsy is caused by certain types of abnormal brain waves that cause seizures. I'm not really sure what causes migraines but it must not be the same types of brainwaves otherwise it would get categorized as a type of seizure. But there's still medically a lot of unknowns about both so I wouldn't be surprised if we end up discovering that they are more related than we currently know.
I hope that made sense. Let me know if you have anymore questions.
I used to take care of a family member who got seizures regularly due to a brain tumor and this was incredibly similar
My husband gets occasional migraines, and he's on bloodthinners bc he says migraines involve reduced blood flow/compression (or swelling?) on blood vessels in the brain on a certain side.
I've never seen a migraine like this. This is wild. Mine just hurt so bad. I can't handle sound, light, smell. So much vomiting. Then I sleep for 20 hours.
@@ansnfbsknanssshshbsnsndnd5438 she's looking so in and out, confused. It looks like seizures to me. I have epilepsy (generalized, complex partial and myoclonic) and get really confused with struggling to find words. This is really concerning to see her battle with this.
@@mcshortnfat8099 Someone (medical professional) said that migraines and epilepsy are related, but I didn't have a chance to ask how. However, my brother had severe epilepsy, my father has mild epilepsy and migraines and I have migraines and a few mild & short epilepsy attacks (a minute or two lost looking like I was daydreaming, but to the time me was lost) my observations ofmy father and my brother and personally experiencing the confusion I tend to believe that statement. My brother's epilepsy attacks always ended in a heavy sleep, he rarely snored otherwise, yet feeling tired hours afterwards. My migraines also always ended with a sleep yet feeling exhausted for the rest of the day.
@@oakstrong1 migraines tend to go hand in hand with seizures, and seizures can be misdiagnosed for awhile. Sounds like you and your family are familiar with array of signs, symptoms and aftermath of epilepsy. Hope you are not struggling too much.
@@ansnfbsknanssshshbsnsndnd5438 Brains are very complex and migraines can take many different forms. You can even just scroll the comments section here to see testimonials of different kinds. This honestly feels like concern trolling
@@ansnfbsknanssshshbsnsndnd5438 she hasn't been mis-diagnosed at all. This is very common infact
"Hey, btw you're not dying" Has to be my favorite quote ever! I know it sounds weird to the general public but it's so normal to me to have blackouts, lack of breath, etc. Usually when I get migraines I only know I'm pissed off and totally confused until the pain hits and I start to feel like I'm about to pass out but nauseous and heavy headed. That's when my mom (if I'm home) realices I'm getting a migraine and gives me a pill. After that is just me sleeping for a few hours and waking up with such a bad feeling of everything which makes me go back to sleep. Depending of what time I got the migraine I can go back to being productive. Usually over 24h
Oh gosh! I get irritable and confused before them as well. I also yawn a lot. It's just the worst when they sneak up on you ☹ The nausea and exhaustion can just be unbearable. Best of luck with continuing to improve on your treatment!
Yes! I needed to hear that. Because I was alone, scared, and thought I was dying.
What about after? I had the pre drone, the aura, and no head pain, but feel like I’m in the postdrome. However, I had the aura last Friday and I still feel slight pressure on the left side, irritable, and slight difficulty speaking. Is it “normal” to feel this way after? Or what’s going on?
I get these too migraines suck
I don't know why TH-cam recommended this today but it was very beneficial. I've been having a rough day because I want to communicate thoughts and feelings but I've been having to type them because I can't get the sentences out. I have a Neurology appointment tomorrow and was even hesitating to talk to him about it because these things seem so minor as someone who lives with these issues, while my friends are freaking out about my symptoms. Side note, my dog alerted the other day when I was feeling fine and I was really confused until that evening when I couldn't remember almost anything from earlier that day.
As has been noted other places, by other people on here, these symptoms are NOT minor, and also could be a stroke, among other things. I'd get to an ER in order to rule those things out.
Just realized your response was 6 days ago... How are you doing?
I'm doing okay. Neurologist isn't optimistic we will find anything but it has been a while since I've had an MRI, never one of my C-spine, and because my left side is going weak more we are going to do nerve testing on that side. Once we do those he would like to refer me to a neurologist more familiar with my current diagnosises. I've been to the ER several times for various issues and CT has ruled out strokes on multiple occasions so Neuro agrees that unless symptoms are significantly different to ones I've had in the past, than ER isn't going to do much. I do always check HR/BP if I'm having issues just in case it's obviously tied to that or I'm having a BP spike that makes risk of stroke higher.
This is incredibly brave. Be proud of yourself!
Many thanks
My SD is almost 3 now.
The first migraine I had, my dad thought I was having a stroke and took me to the hospital. I was fine after a few hours, but the doctors didn't really know what was up--just that it wasn't a stroke. We did finally figure it out a few years later, but it was so scary getting all those classic stroke symptoms as a kid and not knowing what was going on. I had the same aphasia issue too, and I remember feeling so frustrated that my words weren't coming out right. I know this was really hard for you to post, I can't imagine posting footage of myself during an episode, but it really is hugely helpful. If I'd had this video when I was a kid, it would have helped me put the pieces together and help the doctors diagnose me. I know there are a bunch of other folks out there with undiagnosed migraines, so I know this video will do that for other people. Thank you so much for sharing this!
Hey, Jen! I want to applaud you for your vulnerability for the benefit of others, truly altruistic. I am a medical student, and reading about symptoms of complex migraines and seeing them are two completely different experiences. With your permission I would like to share this vid with some of my classmates to make them a bit more aware of the variability of complex migraines. Thanks for putting yourself out there! Be well, Meg
I completely get what you mean. I'm so humbled you found it helpful - it makes the risk of opening up so worth it. You're absolutely welcome to share the video! Thank you for reaching out 💜
“Keep your heart kind”
I love that so much. Don’t be embarrassed
I don’t suffer from migraines, but I know some people who on occasion do. I would love a video with your husband. So he can explain what to do and what not to do
So, most of my migraines are not like this, however, I have had a few. Most of the times I try to go into a migraine coma. I can't concentrate, I have horrible nausea, and I feel like I can feel sounds... Thank you for doing this.
My migraines are just like you explained yours. I couldn't even try to sit up with the lights on. Or talk. When I talk with a migraine it is similar to Jenn though.
"Feel sounds".
That may be one of the best descriptions I've ever read. I definitely understand what ypu mean because that's exactly like what I experience.
Ma'am, medically retired United States Marine here. I do not have migraines so I can only empathize with you on that, but I can directly relate to the emotions that come with "processing" the disability in hindsight (i.e. after a migraine or panic attack for me). Chronic/severe PTSD here and I'm about to get my service dog shortly after the turn of the year. Thank you so much for being so brave for what you did. I consider myself pretty "hard core", but I was in tears watching this. MUCH respect.
@William Clark Thank you for your service, and I hope that your service dog is of immense help to you in the future.
@@esalenchik thank you Ma'am.
Thank you, Sir, for your service! Praying for you as you get your service dog.
I have complex migraines, and they now mimic strokes... I'm training a service dog to alert and found your videos through that. This was an AMAZING video to come across, 1 seeing other people go through it, like, you never really look at yourself mid migraine, but 2 how well you describe it for people who might have never had a migraine. Thank you!!
You have no idea how much less alone I feel after watching what I have been struggling with for the past almost year! I can usually remember mine... I think... thank you thank you thank you!!!!
Aw yay I'm so glad! Not glad that you're suffering of course... but so happy that I could help in this way. Cheers
I didn’t know a migraine could look like that, you didn’t seem like you were in pain which is good. When I think of migraine I think pain- like need to be in darkness quiet and laying down. This was very eye opening!
It's hard to explain. As she mentioned about the sound causing a thunderstorm in her head. This type of migraine (stage of migraine, as pain stage can accompany the sensory stage you see here), you definitely experience extreme discomfort from stimulation like sound. It still makes you beg to hide in a dark and quiet room. They are almost to be described as painful without the pain. Like you have a semi truck with his headlights hard wired into your optic nerve and his horn hard wired into your ear-nerve and the driver has both on full blast high heam amd you cant shut it off. It hurts so much, but not in a traditional pain kind of way. Oftentimes when in a "sensory runaway" I would trade it for a pain migraine if I had the choice. But when in a pain migraine, i just want to stab a spoon through my skull and scoop out the part of my brain that hurts... so i really don't prefer either, lol.
I’m so sorry you’re dealing with this. My sister used to have intense episodes like this. She also used to faint a lot. She ended up seeing an upper cervical chiropractor. Who was insanely specialized and re-balanced her head on her Atlas plate through adjustments. That made a life changing difference. Her fainting episodes stopped and so did her intense migraine episodes. She also couldn’t talk. I think there’s only a handful of upper cervical chiropractors on the planet. She had to travel 400 miles to see one.
This brought memories back from my very early childhood...No wonder it was little traumatic, because I remember seeing my mum being "out if it" and me helping her when I was 4. She was a single parent so it was very stressful when your only adult can not function properly. And later she did not even remember what happened 😕😕😕 and did not want to believe it when I told her. And of course, there was no other adults around explaining to me what was happening to her.
Thank you! This helps in so many levels!
(Now I know where my anxiety comes from and how my own migraine might look like. )
These videos are priceless and extremely valuable information to everybody!!!
I experience a lot of what you go through. My husband calls me tippy canoe, because I get off balance and drunk sounding. I have been diagnosed with chronic migraines, and with my youngest dealt with a lot of low blood pressure and passing out. Which lead to a lot of anxiety. This is a powerful video that everyone needs to see. Thank you for sharing this!
Thank you so much for sharing 🙏🏼 I’m studying to be a certified rehabilitation counselor - the only type of mental health counselor specifically certified to work with people who have a disability. I knew almost nothing about migraines, certainly not that they can look like this. Thank you for being so willing to share.
I think you are absolutely adorable, even with the migraine! Don’t ever be embarrassed! Thanks for sharing! 🤍
This not only validated my own migraine Rollercoaster trips but it also made me realize my husband is a trooper for everything I put him through. Thank you for being such an advocate for yourself and others suffering from migraines!
I see the wheels turning. I get frustrated when I have clear thoughts but they won't come out.This really makes me wonder how I look during my migraines,
It's SO annoying!! The thought is RIGHT. THERE! If you do film one of your migraines, be prepared it may be more emotional than you think. I learned that lesson this week =P
I'm amazed that you can still talk with a migraine attack. When my migraine hits me, I'm not able to talk, no even able to sit or stand. Only lying in bed helps and a few packs of ice on my head, freezing my brain until I can't feel anything anymore or fall asleep. Takes me 48h to have my energy back again.
My husband says i get really confused when I have a migraine and I will say the wrong words for stuff like if im asking for an ice pack ill tell him i need a freezer, like i know thats where the ice pack is but i can't make myself say ice pack so i say whatever thing i can get out that is close to it
I once called a rescue dog (as in one that needed a new home) a secondhand dog during a regular headache if that makes you feel any better.
@@Zuraneve I forgot the worth teeth and called them mouth rocks :S
Yall this helps so much
I do this all the time! My sister and I have joked about filling a notebook with all the odd words I've used to try to replace the word I cant find in my head. Like for sweatshirt i once said "it's like sweatpants but for your arms!" And for escalator i once said "the down-stairs that go up". Wish i could remember more of them. The worst was one day at work I was talking to customers and attempted to say "your table will be ready in a few minutes" and instead what I said was "yosuandnfk fnrj yocuvhsnavr flrhub" I attempted the sentence 3 more times with no luck, I gave up and just walked away from them. 😆
Some are really funny and I appreciate being able to find humor in something that sucks as much as migraines.
I can be talking and in my head know the word I want to say but can’t get it out
As someone with a chronic illness, I think you are incredibly brave!!! It makes me want to cry! I know how hard it is to share stuff with “outsiders”. Even when we can talk openly about our illness it’s different from letting people see it.
I’ve had chronic migraine since I was a little kid and also have a aura.
One thing that some people don’t understand about migraines is that it effects every person differently.
Thanks for educating! There needs to be more videos like this.
Im 12 and i have had these types of migraines since i can remember. I am really glad you were able to educate people on the reality of migraines.
i was diagnosed with familial hemiplegic migraines when i was 8 years old (i'm 28 now) and until i started a new medication about 2 years ago i got multiple migraines per week. when it was at its worst when i was in college, i was having them every day. luckily they're not usually this bad, and if i can catch the aura in time with caffeine sometimes i can make them go away before the actual migraine hits, but my worst migraine was a few years ago and was almost exactly like this, and i was at work. i had a few barely coherent conversations via instant message with my partner and a coworker, and when i came out of the migraine i legitimately thought that everything we had talked about had happened in a dream because it seemed so distant, vague, and unreal. i didn't realize i had actually talked to anyone about any of it until my partner brought up something we had talked about, and it honestly really shook me that i was having entire conversations i could barely remember. it's such a struggle to find anyone who understands, a job that will accommodate, etc. but it helps a lot to know that i'm not alone, as much as it sucks that others have to go through this.
As another chronic migraine sufferer I wish I could give you the biggest hug right now. During the very depths of hell that is the pain of bad migraine days, we do and say a lot of things that shouldn't held against us. I have been on my knees with my head between them to stop the pain before (it did for a minute). The pain we suffer from is just something that can't be explained. Honestly, you need to show this footage to your neurologist and/or specialist taking care of your migraines
I've had migraine episodically for 35 years since I was in college. At first I usually became extremely sensitive to light and sound, very nauseated, and with severe throbbing pain. I would also become very cold and have shaking chills. Discovering imitrex and maxalt in the 90s and 2000s was a miracle. Over the years I've had 3 episodes that acted like strokes, with numbness and paralysis. Ended up in the hospital each time. I'm pleased that you are willing to post this because many people who are fortunate not to have migraines do have difficulty understanding when we do have them. I don't have the memory problems very often...in the video you are managing better than I do, actually!
Wow! When my mom had a migraine; her’s made it to where she was sensitive to light. She would stay in her room with the lights off and the curtains closed.
But your’s open my eyes to a different experience.
I'm what they call a "classic" migraine sufferer, and I think you are amazing to go through what you go through. When I get mine I don't know if I get like this or not, have to ask my family. Do know that they send me to bed, and I spend a lot of time running to the bathroom throwing up. Mine are mostly on one side of my head, and some senses are heightened, sometimes it's sound, sometimes smells, sometimes touch. Thank goodness the hormonal triggers are over so don't get those anymore, but still get triggers from barometric pressure changes(weather related), and food triggers...ah, the struggle is real.
I called my migraines "stupid migraines" or "pain migraines" or "sick migraines". Sometimes I can't talk or think, but it's just a regular headache level. Sometimes it's intense pain/agony with extreme sensitivity to light/sound/smells. And sometimes I get dizzy and throw up over and over again with the intense pain. Sumatriptan was God's gift to me and other's like me. I remember when all they had was to go to the ER and get shots of Demerol that would knock you out for 24 hours or so until it went away. Sometimes it would take 2 shots. I love triptans! Mine got better, didn't go away, just better, after menopause. Hang in there!
Sumatriptan is the only fix for me
I haven’t found anything that would work for me yet. I had preventative medication for it too but it gave me so bad tachycardia that it needed to be replaced with a new one that is still being tested.
Oh, Jen! I’m so sorry! Please don’t be ashamed! I can’t imagine the pain you’re in! Hugs!
As a friend of someone with chronic migraines: this was very helpful and informative. Thanks for being so open and vulnerable!
I am seeing you for the first time, but when my grandaughter has these eye movements we know she is starting a seizure. I hope you have fought the medical community to get all answers. Second third and fourth opinions can sometimes make a chronic situation liveable. You are beautiful, strong, and loved best of luck♡
I just went to the ER yesterday for an horrible migraine. This really showed me how many different symptoms people can have, because I have an aura, vomiting, and sometimes my body gets numb. But I’ve never seen it like this before. I’m praying to you 🙏 and I hope that one day we will never have to deal with these ever again ❤️.
Oh my! Thank you for the candid look into ur personal life. I'm a nurse with a client who has nystagmas. It's difficult to watch his eyes dart back and forth so rapidly. I'm so sorry ur life is filled with these issues. Thank goodness u have a great support system. I've never witnessed the sensory issues u have during a migraine. You look like a totally different person during the attack. This is so sad for me that I started crying. I feel so badly for ur issues and how negatively it impacts ur lifestyle. I hope you have a blessed Christmas. Today is 12-11-20.
I know this comment is quite late but your video just popped up on my suggestions. I only have the occasional migraine, but a couple of weeks ago had what I thought might be one because of issues with my vision (which is common for my migraines). I also experienced memory loss for the first time which absolutely freaked me out because I hadn’t had that as a symptom before. Whilst I am obviously sorry you have to go through this and suffer from chronic migraines, I am so grateful for this video and to see that memory loss can be part of having a migraine. When I went and saw my doctor about it (and mentioned I thought the vision issue may have been a migraine), he just told me to get my eyes checked and the memory loss was from lack of sleep (when I hadn’t been sleep deprived).
I never ever knew what migraines could entail. This really opened my eyes to what they actually are, and the many different things involved. I felt for you during this whole video, absolute props to you for being so raw on the internet.
I had chronic migraine for most of my 20's and 30's. This was way back before people filmed themselves and I'm kind of glad for that. It was such a misery.
My cousin is now disabled with chronic migraines as they make him temporarily blind.
Thank-you for doing this - people really need to see what it's like.
Thank you for being so brave. I can't imagine recording myself during a migraine and watching it back - I would be shocked.
I have felt that fear of "I am dying" or "I am having a stroke". Those atypical symptoms are terrifying! Now, I know there is nothing to be afraid of but wow...you are absolutely correct that doctors need to educate us when we are diagnosed with these complex or vestibular migraines.
You are a strong person. I have had migraines before and can’t imagine going through a lot of them. Mine were about once a month from 5 years old to high school and only three in 10 years since then .I want to cry seeing you trying to find your words because I have experienced those moments too. My mom use to get migraines alot more. She started taking COq10. It has helped. I know you have probably tried everything imaginable but I can’t help but to mention it. I don’t like seeing people in that much pain. Hope and pray it gets better.
As a fellow migraine sufferer I thank you for this 🙏☮💜
This is absolutely amazing. I've always known migraines aren't your typical bad headaches, but wow. Thank you so much for educating on this.
My mom suffers from really bad migraines...she has the ones that mimic a stroke (can't remember the name) but it's very scary and emotional to see. Her last one paralyzed her left side for almost 6 months. She still hasn't regained her full abilities with her memory. More people should be educated on just how bad migraines can be.....it's waaaay more than just a bad headache!! Thank you for sharing your vulnerable side so others can learn!
What was it like growing up seeing your mom go through that? Was it hard or scary for you? Did you help care for her?
She didn't start suffering from the really bad ones til I was older...but even as an adult, watching your mom, who has always been sharp as a tac suddenly forget her words as she talks, looking at you to finish her sentences, stumbling to walk down the hall has been a major wake up to what a migraine is really capable of.
I'm blown away by this self documentary. I was diagnosed with severe chronic migraines years ago. I experience very similar "episodes," and nearly no one other than my wife and I really know the extent of the problem. Thank you so much for sharing this, hopefully more people see and understand the condition better by seeing what really happens.
I have Chronic Migraines, I know some of what you’re going through. I have seizures with mine at times. Hearing your story makes me notice I’m not alone. Thank you for sharing your story.
I have some close friends that have migraines and this was some INCREDIBLY powerful insight into their lives. I'm sure everyone's migraines look a little different, but I have MAD respect for everyone with these struggles. Thanks for posting!
I legitimately thought I was the only one that got like this and that I need to get better at acting normal. Thank you for this.
A lot of us start out feeling like we're just crazy, and that's the precise reason I thought the internet needed this video. You aren't alone! Not even close to it! Thank you for the comment, too... makes me feel less crazy for posting it 😋
Thank you so much for putting this out there. So many people don't understand just how severe and debilitating migraines really are. Thank you so much for sharing such a personal and vulnerable part of your life with all of us. I hope you're having a wonderful day!
This is validating me because I have different invisible disabilit(ies) and sometimes it's really hard and I wonder if I'm making it up.
I have been dealing with this since I was 12. I was told it's because I'm overweight, everyone faints, and anxiety. Seeing you in an attack and out of one, makes me feel seen. Thank you for posting this.
You were so worried about the hate in the comments and I’ve seen so much love!!!! That makes me so happy! Look at all the support. I never ever ever knew migraines could do this! I thought it was just a gnarly headache! I’ve had horrible headaches with major sensitivity to light and sound, vomited, felt really out of it, but nothing to this extent. This is no joke! You are badass!
Thank you so much! Atypical chronic migraine sufferer here (probably vestibular) for 24 years. Videos like yours help me so much to understand the brain fog and the pre-syncope (not so bad any more...I hope yours will improve too) and sleepiness and all the other incompacitating symptoms. People don't understand what they can't actually see. You are blessed to have such support around you. I have subscribed to your channel. Thank you for being so brave and sharing. I feel so much better finally figuring this stuff out. Makes it less scary. Wishing you all the best for you and baby and getting through this.
I suffer from migraines. Have done for 45 years. Left side of my faceand eyebrows are numb now. Lyrica has been a God send.
OMG, I have been hospitalized twice in the last to weeks only for the doctors to tell me all my tests came back normal. I think that your videos have explained my experience. I was diagonised with chronic migraine 26 years ago. But I just expericened my first one with paralysis. I was scared to death. I completely understand your fustration, knowing in your head what you want to say and the voice in your head being normal but you body won't cooperate. You have given my hope and a direction to discuss with my neurologist. I can't thank you enough.
Tearful while watching this. For what you go through but also because I see so many things that I do, but can't fully explain to my neurologist or my family. Thank you for your bravery.
Speechless. Hugs 💜
My migraine has never been this bad, but I have had chronic migraine for most of my life (I’m 16), I have struggled with migraine for about 11 years total, and it’s been chronic for about 7 years now, and my mom has had chronic migraine for many many years now, i just need to thank you for being you, and tell you how awesome you are! Thank you so much for making this video, and spreading awareness for migraine! You are awesome! Keep on going, you are so strong! 💕
It wasn't until seeing this video that I was aware that my "forgetfulness" could be a symptom of my migraines, and I see two different doctors plus a pain management specialist about it.
I was even so concerned about it that I had a brain MRI to rule out other diseases such as MS or early onset alz.
Now I have new questions to ask these professionals.
Wow Jenn, thank you for sharing this. Three years ago I was diagnosed with (and as I’m writing this I have to google it because I’ve forgotten the name - typical, right??!!) hemiplegic migraines. I have had two full episodes of “stroke” symptoms where I was treated for a stroke. Finally they did a MRI and figured out I was having a migraine episode. Scared? Relieved? Not sure which one. I’ve blacked out, forgotten how to talk, talked in different languages (I only speak English) , and have numbness on one part of my body or another at least once a day. Can’t say that I know how you’re feeling, but I can totally understand your anxiety and fear over your migraines.
Thank you so much for sharing, this video has been extremely valuable to a fellow migraine sufferer. Interested in knowing what your triggers are.
Keep posting, you are not alone - I predict that your community and support will grow once people who suffer from migraines see your channel. Love how you are helping to educate our community through your experiences - it is very brave and unselfish of you to let us into your lives!! For that I am truly thankful. ❤️
As someone with a rare chronic condition, I commend you for putting this out there. It's not easy letting people in on our struggles especially when it's so hard emotionally for us.
Thank You for being so brave in sharing this with us. I do suffer with chronic migraines as well and it just continue to get worse as the years go on.. Its extremely debilitating and frustrating.
Mine are completely different. I can’t eat, talk, see, bear the smell or sound of anything. I get dizzy and nauseous and need to sleep. I need darkness and complete quiet. Botox helps but I still get them even with Botox.
I am on the autistic spectrum, have migraines on top of it and it's very much a problems. I have headaches, dizziness, photophobia, nausea... I was diagnosed with migraines a year ago. I hate it. It's awfull.
I feel the same as you. I feel like I want to die because the pain is so bad. When people talk to me its really hard for me to concentrate on what they are saying. I haven't tried Botox. I do throw up sometimes because the pain can get so bad so I try to fall asleep .
As an ER nurse EVERYONE needs to be educated there are different kind of migraines besides headaches
I have the almost exact same thing, except smelling things doesn't bother me. I usually can't sleep because the pain is so intense and I have to sit by the toilet in darkness. Mine are episodic so they're not that regular, my heart goes out to all of you with chronic migraine!
I have the same type. I was just about to look up types of migraines because i was curious how she manages to sit there with her bf. Every migraine is awful, and im heavily bothered when people call it a heavy headache. Im the same. I cant sit up, i cant talk, i cant understand people or tv or anything, i cant bear noise, or smell or light and every slight stimuli makes me throw up (or at least feeling like im about to). the whole world is spinning and spinning, even if i lay down. I cant focus on one item, i dont know if my eyes move, but i cant get a focus point. I also relate to saying the wrong words when trying to speak. Actually, i feel vonurable like a child because everything seems overwhelming.
the most awful thing is when you feel a migraine hitting you, and you know you will end up utterly miserable, and you also know you can somewhat linder the symptoms if you lay down asap - but you have to stay at your work because you didnt yet see a specialist and people wont let you go home because of a "headache" which you regularly have.
And it takes forever especially with corona to see any specialist, yet alone one for migraines. I only get migraines like once per month, or when i overwhelm myself luckily. And i feel like if i catch them on time i can get away with just sleeping a few hours instead of days. I cant imagine chronic migraines, they must be just so incredibly awful.
Honestly trying to explain migrains is so difficult. I get EXTREME pain. My vision goes, my hearing intensifies, I honestly feel like I'm going to die. I forget what it's like to live without a migraine. I vomit. I sweat, the light INTENSLY hurts, noises HURT. I honestly cannot explain how horrific it is to suffer this often.
Love your vulnerability and thank you for sharing! 🥰 More people need to see the raw and real times of when chronic illness is the hardest. Keep being brave! You’re inspiring people.
They absolutely do! I'm happy to hear other others are seeing the value in this. Thank you for your feedback, let's keep spreading awareness!
I always thought a migraine was just a bad headache that made you stay home. Always learning 😁
For many of us we wish it was just a bad headache. For me it's extreme sensitivity to light, sounds, smells, I get dizzy and I vomit until my stomach is empty. All I can do is lie down in a cold dark room with my weighted blanket, snack on some saltine crackers and sip ginger ale. The migraines that are just the "bad headaches" are usually accompanied by sensitivity to light and sounds. Nothing really helps so I just relax as much as possible, stay hydrated and make sure I'm eating enough to get through the day. Speech aphasia is a very real thing... you forget words while you're talking, you freeze in the middle of a sentence because you have no idea what you were about to say, and sometimes your words come out completely unintelligible.
Hi, I am going to be honest. I just binge watched all your videos and I want to let you know that I appreciate how raw your videos are. I also suffer from migraines but, I thought that these symptoms were normal and anyone who suffers with migraines had these symptoms as well. I also wanted to add that I can see and feel those gears turning.
I'll be honest too... you made me a little nervous for a second there with "I'm going to be honest" haha! I'm so sorry to hear you also suffer from these beasts. I'm glad I could shed some light on your unusual symptoms. That means everything to me! You may be interested in the migraine aura series I'm coming out with soon - if you get strange sensations, some of them may be atypical, non-visual auras. There are 4 types, so those 4 videos are coming out in the next couple of weeks. I appreciate you taking the time to comment, and ease my mind about the gears turning =)
A few years ago I was diagnosed with Chronic Complex Migraines. I have a lot of moments when I am so out of it that I kind of end up doing a lot of what you were going through, but while I can remember bits and pieces I don't remember the full extent. I had daily migraines for 2 1/2 years before having a couple months break and semiregular migraines thereafter. They've picked up again as my other health issues have gotten worse, and I have regular stroke symptoms that freak me out. The only real consolation is that my doctors have confirmed that I don't have any indicators of an actual stroke and that it is just the severity of my migraines. I am having a migraine today and can type much better than I can write, though my hands feel kinda weird to move.
Thank you so much for making these videos, you have helped me feel seen and less alone in this. I wish you luck and happiness in the coming years. This video has honestly inspired me to try to record my severe migraine and mobility struggle days so that I can see from an outer perspective.
Late to this video but I want to say, you are so so so brave. so so so soo brave. Thank you for sharing. I pray that you have more pain-free days!
Please don’t be embarrassed! This is so helpful and educational. I would never know your condition even existed if it wasn’t for you and your highly helpful videos x
I appreciate it thank youuuuuuu
I just want to tell you that I think you are a very brave young woman who is helping others while exposing your most vulnerable times. My thoughts and prayers are with you!!!
I'm glad you are raising awareness of what chronic migraine looks like as it frustrates me how many people flippantly use the word migraine. I was diagnosed with chronic migraine at 11 and later diagnosed with hemiplegic migraines after starting to get one sided weakness with a migraine. Anti convulsant meds have significantly improved pain and episodes but my memory is getting worse by the day and I struggle with speech constantly like I just can't find the words to say or I know what to say or my brain just wont let me get them out it's so frustrating. I empathise so much with you watching that video, a too have nystagmus and I find it so tiresome especially when I what to sleep but my eyes won't stop moving. Migraine is so more than just a bad headache and I appreciate you putting yourself out there during a vulnerable time for the help of others. I'm glad you have the support of your husband and your service dog. 😊
To me this was SO eye opening!!! I have multiple chronic ilnesses myself, and almost every one has presented weirdly, so I totally get the feeling of being afraid, and that really starts with doctors not wanting to take my word as truth!!
The other day I saw a Dr. Mike video where he talked about ‘when you hear hoof beats think horses not zebras’ - and I get that!! But sometimes I would love a doctor that would look for the zebras first!!
Hey Jen. I'm Jen as well. This is a really helpful video so thank you for putting yourself out there! It never occurred to me to actually look at real footage of a migraine until I stumbled on your channel. Migraines are horrible and I don't wish them on anyone!
I've had episodic migraines in the past and I've actually been at home alone each time, except for one time. I was staying at a close friend's place and she nursed me while I had my migraine in bed. She's a registered nurse and knew exactly how to help me (gave me several meds, ice pack on head, took my pulse and stayed with me while I slept it off). This video makes me wonder if this is similar to what she saw because, wow, that's confronting.
I remember bits of that particular migraine like intense pain down the right side of my head, dizziness, brain fog, confusion, blank stare/cognitively just "not there", trying to speak, drunk feeling etc. My friend said I could only follow basic commands and I slurred all my words when I asked her a question (it came out like "why...(long pause)...why...water taste funny?"). I was drinking dissolvable aspirin. Her partner was apparently in the room for some of the time and I had no memory of him being there.
During my worst, most painful migraine I had a kaleidoscope looking visual aura, lost balance and vision and kept smacking into the hallway walls like a pinball while on my way to bed. To anyone who says a migraine is a bad headache, they have no idea.
That is so crazy, I didn’t know things like that could happen during a migraine. I have episodic migraine, but mine can last up to 3 days during which I can’t eat, talk, move without getting dizzy, and I have to be in complete darkness. I also get delirious if it lasts more than a day. Thankfully going to a chiropractor regularly has helped me a lot!
when I have a migraine, this is what happens to me too. 3 days is so long, I hate when that happens.
have had them since I was 10 😐
Honestly, this made me really grateful that my migraines and headaches aren't this bad. I only get migraines a few times a year but I have headaches almost daily (ranging in severity). I hope one day the world of science can find a cure for these issues so you and everyone else doesn't have to suffer behind closed doors anymore. Thank you so much for sharing
I’ve only had a migraine once in my life, and I thought I was actually dying because I had no idea what was happening. I wanted to throw up, but couldn’t, and light physically hurt. I can’t imagine having to go through that on a regular basis. Thank you for sharing this!
Spent a week in hospital cause of it, they started giving my cortisone treatments cause the regular pain killers didn't work anymore. best part, I'm 22, have it since 6th grade (migraines, severe headaches since I was in kindergarten) and no one knows why I'm having it
It's not embarrassing... you are so brave for sharing your stories. You are def helping so many people!