Chronic Dizziness Stories Episode 3: Interview with Melissa (recovering from PPPD, BPPV and VN)
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- เผยแพร่เมื่อ 2 ส.ค. 2022
- Tune in to hear Melissa's story. Melissa wrote me a beautiful email after taking the Healing Chronic Dizziness Course. Melissa has suffered from PPPD, BPPV and probable vestibular neuritis. She wanted to share her story since it has helped her so much to hear others' stories.
In this series, you will hear from people who are recovering from symptoms of MdDS, PPPD and other forms of neural circuit dizziness using the techniques discussed here on my channel and in my free course!
Free Healing Chronic Dizziness course: thesteadycoach.com/free-course
Membership community: community.thesteadycoach.com
More about me and my work: thesteadycoach.com
Link to form if you'd like to share your story: forms.gle/tMNZbKZ693VQ9pMj9 DISCLAIMER: Please note that Yonit Arthur, The Steady Coach and any of our other guests are not acting as an audiologist nor offering audiology or medical services services or advice on any public videos or on any other content. This channel provides wellness education and personal opinion only, and are not meant to be a substitute for medical or mental health instruction or intervention. Use any tools discussed at your own risk. - บันเทิง
I've said it before, and I'll say it again: Success Stories are amazingly helpful. Thank you. Thank you. Thank you. I so appreciate the insight, the shared struggle, the knowledge seeking, the overcoming challenges, learning new and different techniques, discovering the variety of symptoms and the variety of original causes (but also the common glue that holds this PPPD situation together)... all of it is so helpful. I paid for specialists (ENT/VT/Opthomologists, etc) and can honestly say I received literally nothing helpful and quite a bit hurtful :-(. I know that (some in) the medical community try, but until they can devote their time to the specialty of Vestibular disorders, they just don't get it. Dr. Yonit Arthur-- you have made the quality of my life infinitely better and I get emotional thinking about how things could have gone if I didn't discover you. I was one of those with a massive, out-of-nowhere, violent episode of BPPV that literally threw my life upside down. The after effects of the original episode were astonishingly surreal and difficult. Months later, I had a lovely (several month) bout of labrynthitis, and between the two--- had I not found you--- I would have thought I was going mad. Life was not worth living--- and I say this while having an incredible partner of 17 years, two beautiful cat babies and an overall great situation with an enourmous number of things I'm incredibly grateful for. I've gone from the lowest of lows (unable to find a comfortable position sitting, sleeping or standing, unable to read or look at computer screens or televsion, walking with a sway that made it seem like the earth was rising up while the houses and mountains were bobbing, constant and severe nausea, etc) to getting back to about 95%. And, it's you (and your wholistic approach, from parasympathetic breathing to VTR to your neuroplasticity knowledge and huge scope of the issues and solutions) and the people who you engage with that have been the reason. When I recover from the financial situation this has caused (I am an American so, you know, healcare)-- I will be making as much of a donation to you and this cause as possible. I can't imagine going through this without knowledge. I feel for the generations (even current ones) that have gone through this horror without understanding what's happening.
I can't even adequately express how grateful I am to hear this. My wish for you and for anyone else who ends up on this channel in the lowest of lows is for you to live fully and get back out into the world. It is wonderful to hear that you are doing just that. If you'd be interested in doing an interview like this one, just let me know (you can email me at info@thesteadycoach.com)
Yes, we would all love to listen to your story!
Another amazing successstory. Melissa is so articulate. Well done ladies. Once i got the stress factor it changed everything. These videos change lives. Stress is getting all of us. Stay strong folks. You will get better. We can do this together.
This is the first time I've heard another person see that they're physically swaying by seeing their shadow move. I thought I was the only one with physical swaying. I'm so glad you're recovering and close to 100%, but I'm relieved to see someone else with the physical symptoms. I'm excited to try this program! Thank you so much for all you do and for sharing these stories, they truly give hope in such a scary and isolating time!
You're in the right place! I do need to catch up with Melissa and see how she's doing!
Thank you for this interview. It’s nice to hear from someone else who suffered with tinnitus alongside the NCD and got better 👍🏼❤️
Thank you for sharing your story, especially about the tinnitus-which is one of my symptoms with hearing loss. It really increases my fear and I’m learning the nervous system is contributing to this, too. You give me encouragement to keep going!
The guest, Melissa, NAILED IT on sooooo many levels, that it could have easily been me in her seat.
Her experience with her personal vestibular issues and stressful life experiences rang true to mine, to a 'T'.
I'm currently facing my CPTSD as we speak, and now understand how my past traumas brought me here, in part, to where I am today.
Thank you for a salient, much needed video on a topic that is so misunderstood, misdiagnosed, and information surrounding the part that stress and neuroplasticity play in this, just plain missed altogether!
A worthy watch!
Regards, Leslie
Also from Canada 🇨🇦😄
Yes!! I hope Melissa sees your words of encouragement, Leslie! She wanted to share her story so others will feel seen, and it really helps.
Thank you so much for sharing! I can really relate and feel hopeful!
You’re so welcome Michelle!
Melissa - I'm from Ontario too...Toronto. Thanks so much and congratulations - you inspire me. I'm getting so much from Dr. Yonit too! I am also seeing a wonderful vestibular therapist at Cornerstone - Cole...I've just started my journey to recovery as of July. Thank you so much Dr. Yonit - I have even told my therapist about you and he is very interested.
Moreen, that is lovely, and I'm sure Melissa will see your comment and appreciate the kind words! You are so very welcome. Your therapist is more than welcome to reach out to me if he/she has any feedback or wants to chat :).
Was great to hear that writing down how you feel each day and score it is a no no - thank goodness! I have tried to tell those who treat
Me and family that all this does is bring attention to my symptoms and sensations and I have train my brain to not react or focus on them… thanks for sharing! Very helpful
You're very welcome, Charissa! I am so glad this resonated with you!
Sometimes I find myself holding my head funny or looking at my computer with eyes at a funny angle 😄. Good to hear I'm not the only one. But Dr Yo, WHY? You are always so good at explaining things. And HOW do I correct this?
You don't correct it by doing anything to it directly, Susan! It's due to a brain mistake that typically self corrects once you are no longer in danger mode.
I am another that has constant swaying. I have experienced this the last four years. I used a cane and recently had to trade it in for a walker. Its a horrible way to try and live.
I had swaying as well for a long time. Most of her story was very similar to mine.
Hey there, is it possible to have an episode of true vertigo with PPPD? I've had every test under the sun and that is the only thing I can think of that I could have. (long history/family history of Generalized Anxiety Disorder)
It doesn't fit the official "definition" of PPPD but I have seen that many times. I believe it is part of the constellation of neural circuit dizziness symptoms.
believe I have pppd caused from vm. So I had covid this year symptoms all began. VNG test showed 33percent damage two months later got another one they say they saw nothing which I thought was weird because therapist had always told me the existing damage should always appear just looking for more
I had horrible migraines for two months. Do t get them much anymore. I for sure think I have pppd. Been 7 months total maybe two months with pppd.
Eyes for sure are off feels like they skip in the sun everything is much worse balance. Head pressure. Sway. And just feel off. Boating sensation is gone. Don’t wear a hat or glasses anymore. Laying down ok. I always have that fuzz in the head but noticing it’s fading. Hope these are good songs. Bobble head the worst.
Will get better that I know. Takes time. Everyone is different
Thanks
See my comment on your other comment, Tim! Glad to have you here!
Your story is so much like mine.
❤️❤️❤️
Is there ever a point in this journey that you don't have to worry about these things and not worry every time you have anxiety or fear that you're going to have dizziness that's going to last for months
Yes I think that is the most important part of the recovery process. It's not just about the symptoms themselves. It's about the anticipation and fear of the symptoms. From my experience, both get better.
my concern is ive had it for 4 months now and I have an interview next week and I just feel swaying all the time when moving... two things I contribute to it are stress/anxiety, headphone useage
This is very common among my viewers, unfortunately. You may want to watch this video because it explains why. th-cam.com/video/4QDFGvHGURc/w-d-xo.html
Oh my l can totally relate to Melissa's story. I was told l had reflux.
How is she doing now?
Great question! I will email her!
@@TheSteadyCoach Thank you so much
Is light sensitivity a symptom of pppd or is it vestibular migraine for sure? Because I’m doing VRT for the last 2 months and I’m seeing improvements, especially during the day, but as soon as the sunset comes and the glare of light is strong and then there are artificial light I start to feel confused and tired
Light sensitivity can absolutely be PPPD related. Your body is in a state of hypervigilance and that has the effect of "sharpening" your senses (your brain is not doing as good of a job of filtering out unnecessary information).
@@TheSteadyCoach thanks! My oto neurologist gave me cinnarizine now because I’m having an headache for the last few days.. do you think it’s effective?
I had the same problem with lights, specifically at sunset and with artificial lights. As my symptoms calmed down, this went away.
@@monkey0tube I’m very happy to hear that! Did you do something about it?
The doctor I want to thought it was vestibular migraines though he said you don't have to have pain to have them is this true and can this modality be helped with vascular problems or any kind of migraine related issues
Very true you don't need to have pain for migraines. I talk about this in the video on migraines th-cam.com/video/CPE6rcDZQ0k/w-d-xo.html
How do I learn the breathing I have noticed my stress and anxiety can almost talk myself into an episode
Best way is via the course! members.thesteadycoach.com it's completely free and that's where Melissa learned it!
I would like to watch the video Melissa referred to...about the vestibular system being like a cake?
th-cam.com/video/MsWYyDWuu_s/w-d-xo.html
Is this considered dysautonomia
Dysautonomia is an umbrella term for your nervous system being in a not-normal state. This is part of neural circuit dizziness.