Anurag's Success Story: recovery from symptoms of PPPD and MdDS
ฝัง
- เผยแพร่เมื่อ 8 ก.ค. 2024
- It is such an honor to share Anurag's story of recovery from 24/7 sensations of rocking, visual instability, imbalance and more. In this candid and articulate interview, Anurag shares his experience and provides a clear framework for how he has worked toward his recovery. His symptoms began in November 2021 and he found my TH-cam channel and started getting help about 6 months ago. Please enjoy!
Find out more about Anurag on his TikTok page (handle: _thekinderman) - www.tiktok.com/@_thekinderman... or on his Instagram (handle: _thekinderman)
Anurag's coach's information: www.nervoussystemreset.com/
Need help putting together all the information on my channel? Take my free course on Healing Chronic Dizziness at thesteadycoach.com/free-course
00:00:00 Intro
00:02:02 About Anurag and when his dizziness started
00:03:44 Description of the symptoms: 24/7 instability, rocking, floating
00:04:45 The difficulty process of trying to get a diagnosis
00:07:42 VRT for hours a day and the exercises did not help
00:08:16 The medical interventions didn't help either
00:09:17 He had to quit his new job due to symptoms and was living alone without support
00:10:50 Finding this channel and realizing that the symptoms were REAL but brain generated was the first step to recovery
00:13:26 How Anurag's nervous system ended up in a state of hypervigilance in the first place
00:16:41 How childhood experiences were showing up in his adult life; why CBT didn't quite get him there
00:19:41 Nothing specifically stressful set off the symptoms; it was an accumulation of stress
00:20:30 Major weight loss also occurred before the symptoms started
00:24:04 Anurag never considered himself an anxious person and people thought he was calm
00:26:54 After binge watching all my videos, Anurag found a coach to help him work with his nervous system
00:27:51 Anurag describes some of the nervous system exercises that helped him
00:29:50 The focus was NOT on symptoms; it was on getting him to feel safe in his body
00:31:45 When you're feeling strong symptoms, it's not the time to figure out "why" they're stronger
00:33:50 Anurag describes how he structured his recovery while the symptoms were very strong
00:36:00 The TH-cam channel, success stories and his coach got him through the really tough times
00:37:17 Symptoms were at a 10/10 but down to an 8/10 within the first month once he started practicing these techniques
00:38:34 How he changes the habit of checking for the symptoms - using advice from my videos
00:41:00 Telling yourself "I'm safe" doesn't always work
00:41:37 Anurag describes the emotional work he did to help in his recovery
00:43:25 How he "processes" emotions from his childhood
00:48:03 Why he feels "quietly positive" about his dizziness- and how important it is not to bypass our humanity
00:50:22 What life is like now compared to what it was like 6 months ago
00:53:10 The importance of finding his own values in his recovery
00:55:00 Your symptoms did not come out of nowhere, and this is going to take time to resolve DISCLAIMER: Please note that Yonit Arthur, The Steady Coach and any of our other guests are not acting as an audiologist nor offering audiology or medical services services or advice on any public videos or on any other content. This channel provides wellness education and personal opinion only, and are not meant to be a substitute for medical or mental health instruction or intervention. Use any tools discussed at your own risk. - บันเทิง
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I can't say enough about how much these success stories help, I have so much respect for the courage of those who've made it to the other side of this. Not only that, but these testimonials give comfort and hope, which is such an important component of recovery, especially if your NCD is coupled with severe anxiety. Still working on completely accepting that I was sort of "primed" for this long before my symptoms began. Thank you Anurag and Dr. Yo..❤️
Thank you for sharing this, Lunar! I am so glad to hear that these are helping and resonating with you. I cannot wait to hear your success story one day too!
Thank you, I am trying to collect as many of these success stories as I can. More coming!
Very intelligent interview 👌 I love the point at the end that this didnt come out of nowhere and it took years to build up, so it will take some time to fully resolve. Great words of wisdom 👏
I absolutely agree with Anurag. Regulating the nervous system FIRST is important.
Congratulations such an articulated explanation 👏
He is an amazing communicator!
A lot of Anurang's words resonated with me and I ended up crying my eyes out. I watched the entire story hoping to find some ideas of how to deal with my situation. My symptoms have been at 1-2 for many months now, but today I had my first day at work and the symptoms skyrocketed fo a 5-6, especially the headaches. The job is one that I really wanted and that I was very happy to get, but it really depresses me thinking that I might end up quiting after one week like back in 2020 because my symptoms increase very quickly in front of the computer, although when I am at home in my bed it never seems to be this bad. This whole situation is so frustrating it makes me want to die. I am 24 struggling to do a job I like😓
I am very much in the same mindset and situation. I got what I thought was the perfect job, doubled my salary, then moved across the country and bought my "forever home", and then once I started working for this company my symptoms exacerbated ten fold, and I feel disabled at times, and constantly worry about if I will lose my job, then lose my house, and it is a domino effect. I have had this now for over a year, and am only now realizing how extreme my anxiety and PTSD plays such a huge role in my dizziness and how I function daily. I have hope! I will beat this! I refuse to let it ruin my life anymore than it already has.
As you see from Stephanie's compassionate reply, you are so not alone. But please don't give up hope. The entire channel is devoted to people exactly like you who are going through this. There is hope. Getting rid of outside stress like a job is not the only way around this. th-cam.com/video/LodqWgKvUvw/w-d-xo.html
The adult me has got you! 😢 Thank you! That’s the best thing I have ever heard! 😊 powerful! I’ll use that and never forget that! Thank you both ! This helps so much!
such an amazing story and articulate in sharing the emotional component of your journey. Thank you!
AMAZING interview thank you so much you 2 beautiful souls!
You're very welcome, Janine! It truly is our privilege! ❤
This interview hits home on many levels. It’s reassuring to know there are other people going through these challenges, and to hear about the techniques being used ! Thank you!
You're very welcome, Manveer! You are not alone!
I am listening to you and Anurug and inside myself somewhere is the need to come into regulation in my body before I can process what I am feeling in my body then I will be open to feeling any emotions in my body. I just talked to a very famous Dr. who was helpful but cognitively saying mantras to myself is all good but in my body, I feel this fight and flight feeling is the key to my own journey into healing, I really can't bypass my humanness in this neuro circuit dizziness. I look forward to working with my dizziness coach and feel quietly positive as did Anurag. Thank you so much for caring about us all!
That makes sense, Joan. I think a bottom up approach like this one works very well and is the right way for many people.
Absolutely eye opening to hear from his perspective. Finding anyone professional in canada is so hard so hearing free advice is wonderful.
I am so glad that you found us, Christopher!
Wow, resonates totally with me. Excellent description of NCD and how to recover.
So actionable!
thanks for sharing, Anurag has sure developed a very balanced intelligent approach to his pppd symtoms!
Agreed 100%!
Well I have one more success story left to watch. They have been so amazing and inspiring! Definitely keep them coming if possible!
Will do, Andrea! So glad that you are liking them!
Simply amazing and touchy ….
I am so glad that you liked Anurag's story, Vaneeta!
This was such an inspirational recovery story. His symptoms started right around my time frame and I am alittle behind him. He was very articulate and gives me hope I can get there. I'm still going Dr. Yo! :):) Thanks for the wonderful video...yet again.
You're very welcome, Jessica! I am so glad that you liked Anurag's story. You can do this!
This was so very encouraging, thank you dr Yo and Anurag , this has been so helpful , I was feeling so discouraged.... I needed to hear this .
You're very welcome, Denise! I am so glad that this resonated with you!
Your channel is a god send, please do the work you are doing, I found Dan from pain free from you and between the two of you I have so much hope for my future.
Wow, thank you so much, Sweta! Thank you for trusting us with your healing!
♥ Thanks THANKS SO MUCH Anurag and Dr. Yo for this insightful interview, full of little gems of inner wisdom. The idea of allowing us to "be more human" is pure gold, Anurag. I do believe that we are Spiritual Beings living this human experience, and that implies not only living the so bright side of life. 🙏💫 And thanks again Dr. Yo for your energy and help, you are an Angel on Earth... 💞
Es mi privilegio, Mamen. . I COMPLETELY 100% agree with not always living the bright side. So much great insight in this interview.
Thank you Dr yo and Anurag for this
Really strengthening and verifies the fact that with patience, hope and self-belief it is possible to recover
Theres some good days that I almost dont feel a thing ,and theres days when the symptoms decide to reappear.
One thing he said that resonates in my mind that I decided to set for myself through recovery process and for life in general is that IM HUMAN I can let myself feel and I don't have to take control over everything.
Thank you Dr yo for everything you do, and for making me live with much more compassion for myself.
Thank you is an understatement!!!!!!!
You're very welcome, Eden! I love this! I am so glad Anurag's story resonated with you. ❤
Thank you for sharing, Anurag. I'm still in the thick of it and greatly appreciate hearing what you have to say.
I am so glad that Anurag's story has resonated with you, Brian!
So glad you enjoyed this, Brian!
Wonderful video.. Going through the same phase now..
I appreciate you and how you are helping me❤️❤️❤️
It's my privilege, Kelly. Thank you for the acknowledgement- knowing these videos help is what keeps me making them.
I love it! :-) I had ti stop about 2/3 in because his story made me weepy. I've been having the same 24/7 si nce fall of 2020 and I've come a long way - but this gives me hope for some final peace. It's nice to be here and know I'm not alone.
Hi!!! Take medication?
What did you do, I'm still stuck?
Thank you for this video. It helps a lot.
You're very welcome!
Thanks for the inspiration Anurag! I live in Toronto.
I am so glad that Anurag's story resonated with you, Moreen!
You have other friends on my channel from Toronto too!
Great interview!!! So clear!! Thank you both!
You're very welcome, Ingrid!
So interesting that Anurag took a drink before and during talking about abandonment.
I track my symptoms b/c it helped me realize I was getting better...without that record it'd be easy to think I was worse when perhaps I was stable. I went from a 10 every day to an occasional 5,6 or 7, and mostly 2,3, and some zeroes. It's encouraging to realize you're getting better. I find I focus less on my symptoms b/c I have written proof that things have improved which helps me realize what I'm doing is making a difference.
Yes, this can be very powerful!
❤️ Amazing
Totally agree. It's such a privilege for me to get to do this!
@@TheSteadyCoach keep pushing!! You got this.
Congratulations to recovery! I enjoyed the interview a lot. I binge watch your channel since a few weeks, but now came to success stories, which give me certainly hope. Had similar familiar situation, this alone feeling was part of my childhood - its a bit said, that we have to "reparent" our inner kid and make it calm now, cause someone else completely failed doing it when we were little. But thank you for explaining this way, how to do this work!
A question to Yonit - all stories I have seen so far are from people when the symptoms came out of blue, after infection. What about car accidents? I have diziness since a car crash, diagnosed with a wiplash and some doctors say I should not have ANY symptoms, some dont know and keep "repairing" my spine. Do you think it could help anyway to take your course?
Hi Klara, yes absolutely, when the doctors are not really giving you answers that make sense, and there's no clear reason why you should have symptoms, the free course is your first stop. thesteadycoach.com/free-course
So helpful and touching!! I just recently discovered your videos from an interview you did with Jim. I love your perspective and am trying to glean as much info as possible and I’m so thankful for the content you are putting out. I have a question about my particular symptoms. I have been to a regular doctor and they are stumped about my dizziness (a general feeling of not being ok, feeling “drunk” , disassociated) so I haven’t exactly been through the ringer with medical testing but I am told that everything is fine. Everything is normal. I can function normally but the symptoms are interfering with me feeling safe, so that’s what brought me to discovering TMS on my own. Is accepting this a normal attribute that you you see often? In other words I’m having a hard time excepting that everything is fine on one hand but On the other hand I’m having a hard time excepting that there isn’t something else going on. Do you have advice for moving forward on this journey of self healing when there’s a lot of doubt still in play? Struggling and scared. Thank you 😊
Welcome to my channel! Happy to have you here! See my response to your other comment, I talk about doubt as a symptom in and of itself!
Doc I respectfully request assistance with my PPPD symptoms that I've endured since 2017 til today. Maui Doctors continue to act like they're being of some help to but this is 6 going on 7 years. Tkank youfor all you do..
This is an amazing video!
So happy people can share this touching stories!!!
Love this!!!!
Thank you for these kind words, Stephen! I am so glad you liked this video!
Anurag is so articulate and has such a beautiful way of explaining his process!
I think terminology hinders communication and delays getting a correct diagnosis when these issues are present. I was told many years ago when I was was diagnosed with bppv which was episodic and continued to be over a 20 year period, that vertigo is always rotational and that was my personal experience with bppv.... In 2020 when I began experiencing what I referred to as vibrations b/c the floor felt like it was vibrating along with rocking, bobbing, swaying, walking on a trampoline, along with balance issues I replied 'no' when asked if I was experiencing vertigo and dizziness. I was eventually told that any sensation of motion when there was none is vertigo and that imbalance is a form of dizziness. I only considered myself to be dizzy when I had a feeling in my head like I was woozy or was going to pass out. The doctors and I were speaking two different languages so to speak which likely hindered finally getting a diagnosis of vestibular migraine, which I've likely had since childhood based on what I've learned listening to Dr. Michael Teixido.
It’s why on one hand I’m glad they came up with an umbrella term of PPPD for many of these symptoms, but unfortunately it is not treated as a mindbody disorder in the mainstream. Terms are not helpful if they don’t lead someone to helpful treatment.
28:25 he’s describing “orienting” :)
Thanks, Shandy!
I want to participate in this, I’m on my way to Recovery and I’ll like to share my story 💓
Wonderful! Can't wait til you feel confident and ready to share how you recovered!
This is me. No spinning. No classic vertigo. No BPPV.
Very common, most people here do not have spinning.
Dear Dr Yo, i finally get it all. I have seen so much video's and understand why and how. There is only 1 thing still, that keeps me from complete recovery. My deepest fear is: what is the worst thing that can happen to me when i feel much symptoms.
I mean, after burnout i had panic attacks. I was SO afraid for going to faint/ collapse etc UNTILL my doctor said, you can not faint because your hart is pumping so hard then. After hearing that, i was never afraid of panic attacks anymore!
The remaining problem now is, i do all stuff all "normal" people do. But, i have built op pppd anxiety for so many things now.. Before i go to the kids school, the mall, horse riding, walking the dog etc etc and ofcourse these predictions give me LOTS of extra sensations. I try to think NBD about the symptoms...BUT..i still feel i AM afraid for the symptoms!! Now i was thinking, ok...what IS my fear about the symptoms. And i discovered that my fear is, for example: when i go and walk my dog, i get SO dizzy suddenly, i just "collapse" or have a complete error in my brain and cant walk anymore, or just faint or worse....🥺There were some moments these last weeks that i felt like i just felt like i did not really feel normal when walking, like i was not feeling my body like normal, a bit spacy, and at that moment i was terrified for..what if....and THAT is my last problem!!! I am afraid for what if...
So..i was hoping..could you help me disarming my fear?
Is it really possible what i am.all imagining in my head?
So far, i have symptoms for 2 years. Mainly a bit unbalance all they. A lot of dizzy moments are gone already. But the full head/ pressure and unbalance because of this is almost always there. In crowded rooms i get really unbalance/ dizzy..All this, i can think No big deal...its JUST the little moments when it feels more dizzy, i get so scared at once and than my fear of what if it gets REALLY bad gets me in the loop all the time..
Please help me disarm the fear of what might happen to me...🙏🙏🙏🙏🙏
I totally get that and I have a new video coming with a method I like to use with my clients for addressing these reactions of worries and anxiety. It is NOT all in your head- these are real physiological changes that cause symptoms, but they are reversible because they are a result of a nervous system response, not tissue damage.
@@TheSteadyCoach When is that coming?
I hope soon.
I know that is it...i just cant seem to get rid of being afraid when i dont know what to expect all the time.
I can drive! But, sometimes i feel weird when i am driving. And other days its fine. The same in the supermarket or in busy places. It is the feeling i dont know what i will feel and..the MAIN fear, .how worse will it get when i feel stuff..Like in my car, as i feel a bit weird, i can still drive. But my thoughts go racing like: what if it gets worse than this and that ofcourse makes it worse. I just dont know how to act on this...please i would really love your opinion about this...
@@TheSteadyCoach 1 more question; i would so much love you to make a subject about the things we fear might happen.
Like, for me my biggest fear is always to do with our kids.
They are 9 and 10. A lot of stuff i have to do is with them or for them. For example, when i have to pick them up at school the fear that my symptoms get bad/ worse, and another parent will see this...and maybe they would not let there kids play with mine (or go home with us) because they dont trust me as i can feel like this...
I have these thoughts before i go to manege, soccer games, and everywhere i go with them. I dont want the kids to be scared when i feel bad...i just dont know how to overcome the fear for this...I DO go to all these places but i do it the wrong way. I go and feel like i am going to a very dangerouw situation. I do manage to act normal than, although i feel like crap sometimes...but when i go home again, it feels like i survived a very dangerous situation....i know that is not the way...but just dont know how to keep the anxiety about that away...🙏🙏🙏
@@ariannesmakman5639 you sound Dutch! I am too. After my burnout i developed pppd. Exact same symptoms as you. Stress --> pppd --> scared of pppd ---> stress about pppd---> more pppd.
We should let it happen and don't fear it
What did she say after he mentioned hand on the back of his neck?
Like a mother holds a newborn!
What kind of work do you do? I am in training class for a on the phones job and I recently requested an accommodation to also work from home. I have noticed since starting work I am having a few symptoms flare up. I worried this would happen. I hope it doesn't get too bad but I'm trying to remind myself I will be able to work from home fully soon
Hi Mindy, I know Anurag worked in finance but I am not sure about his new job. Please don't be intimidated or worried about your symptoms flaring up from a change in your lifestyle- others have gone through this too and as long as you are able to realize it's just a false alarm, it will not last!
@@TheSteadyCoach thank you this helps a lot
Thank you for this... means and helps a lot to see and feel people recovered and feel alive again. I have a question: i was at cardiologist, neurologist, they did my blood check., also they check my inner ear- everythink was ok. But i admit: i was scared and under a lot of strees. I went also to MRI but i had a panic atteck inside a "mri cabin" cause i was so afraid of resoults. After immy doctor send me to CT scane of my head., and they found nothink! The doctors said that CT was normaln and i do not need to vorry., but i am still dizzy 24/h day... the only time i am not dizzy is when i do sports and forget about my dizzynest. The question is: because i am still not 100% covniced with my doctors saying: ct is enaught. Is it?! Or they missing somethink if i will do MRI? Thanks...
I have weeks that i am better and weeks that i am not ok., and this is going on for 1 year now.
Thanks a lot
Good question I only had a ct scan too, so I’m interested in what the answer is
Hi there, the only person who can answer this question accurately is your physician, unfortunately. There are clinical tests and exams that can rule out other issues along with a CT scan but your physician would need to put them all together for you. That said, physicians like your neurologist know what to look for and if they did not think an MRI was necessary, that is a good indication that it is not needed. I personally would feel perfectly comfortable with the neural circuit dizziness diagnosis having received a CT scan and having had the clinical exams that you have already have.
@@TheSteadyCoach thanks love!
What was the name of your online coach? One which anurag used?
Hi! The website for his coach is in the video description.
Mine started 6 weeks after second covid Pfizer shot. I know it's probably unrelated but it would be interesting to know if there was a pfizer shot prior to the start of this case...
A large number of the people I see do not have a precipitating event of any kind that explains their symptoms. Or they had a minor cold, infection or other illness that the brain responded to in a very extreme way.
It's related ! Mine started 11 days After COVID Pf... shot.
Mine (Plus a bunch of other symptoms) is also being correlated to my second moderna shot. There are a lot of unknowns still, but it's a factor the doctor's are not wanting to just dismiss. I don't think you can blame it all on the shot, but there might be some relation to it.
I need your help. I’ve had MdDS for 7 years, following a week long cruise. I rock, sway, and bob. I am nauseous and have headaches daily. I’ve had so many different diagnoses. I am even had a doctor operate unnecessarily on my ear, which created ear problems I never had before. I’ve tried vestibular therapy and multiple medications, with no help. I am constantly “on a boat”. This has destroyed my life.
I am very sorry to hear you're going through this- you are in the same situation as many of the people on my channel. This video explains more about why this happens. th-cam.com/video/4QDFGvHGURc/w-d-xo.html
What ear problem? Omg 😮
Did he feel ground is bouncing while walking sometimes?
I'm not sure if Anurag did, but others sure do! Common symptom!
Is there a way to connect with Anurag ?
Hi Vishal, you can find his Instagram info in the video description!
can you share the name of the therapist you found online
Hi Miguel, you can find Jessica's website in the video description!
What kind of therapy do you participate in?
Anurag mentioned that he did some CBT and talk therapy prior to becoming dizzy but then worked with a nervous system coach.
@@TheSteadyCoach nervous system couch u means he worked with u now .plz tell
Yes!! Exactly that “ stupid people don’t end up with chronic dizziness “ 🥹😅
Can I have Anurag’s email address ,have few questions for him ! I stay in USA ,north Carolina !
You can contact him via his Instagram- it’s in the video description!
@@TheSteadyCoach thanks 😊