Mark H.'s Success Story: healing from PPPD, vestibular migraine, labrynthitis (neuritis) & more
ฝัง
- เผยแพร่เมื่อ 20 ก.ค. 2024
- *For more sensitive viewers, there is mention of sexual abuse in this interview, so it is not appropriate for children.*
It is such a privilege to bring Mark's incredible story to you. Mark suffered from debilitating vestibular symptoms for nearly 3 years after a bad bout of labyrthitis that not only destroyed vestibular function in one ear but also destroyed his hearing. Mark received a cochlear implant to help restore some hearing, but no such implant exists for vestibular weakness, and he suffered terribly for years before finally getting the diagnosis of PPPD earlier this year. His neurologist referred him to me, and Mark made a remarkably fast recovery once he understood how to get better. I am so grateful to Mark for candidly sharing not just his story of recovery, but also openly discussing some of the childhood trauma that contributed to his nervous system sensitivity.
00:00:00 Intro and about Mark
00:05:26 Dr. Yo and Mark nerd out about Mark's cochlear implant
00:08:00 Mark explains how his deficit in hearing made the dizziness issues worse
00:10:36 Mark describes having months of 24/7 rotational vertigo after the labrynthitis
00:12:56 Debilitating light sensitivity, visual vertigo, general dizziness kicked in after a few months (unrelenting for a year and a half!)
00:17:54 Mark describes also having issues with sensing his feet- he couldn't feel them at all- and blaringly loud tinnitus
00:20:21 There were odd inconsistencies as he started to improve- some activities were ok, others weren't
00:22:30 His previous experience with mindfulness and healing from childhood trauma gave him powerful tools to start to address the symptoms
00:24:43 Having a major medical event like vestibular labyrinthitis can trigger earlier emotional wounds that have nothing to do with the vestibular system
00:27:00 The first turning point seemed to occur after he applied mindful awareness to symptoms and received medical support
00:30:20 Dr. Yo shares her view on dietary changes and why people have food triggers (they are an additional symptom of "danger mode," not a cause)
00:35:20 Mark discusses the dietary changes he made to help support his body in recovery
00:36:45 How medical support helped but then going off the SNRI made things worse again
00:38:22 Summary of the first 15 months of Mark's experiences
00:39:17 Mark finally gets the correct diagnosis from Dr. Patel & the how hard it is to get a correct diagnosis
00:42:06 Everything changed when Mark started getting the correct information from my resources
00:43:57 The impact of Mark’s early traumatic experiences on his nervous system & skills
00:44:49 shocking change in symptoms in 10-14 days after watching the videos and joining the community (NO VRT)
00:45:03 the mindset shift away from trying to fight the symptoms was a big part of healing
00:49:33 Dr. Yo explains that neuroplaticity isn’t about trying to get rid of the dizzy circuits
00:52:01 The lightbulb moment & WELCOMING sensations with joy!!!
00:59:10 Dr. Yo talks about how indifference toward symptoms may not be enough
01:03:01 Mark describes the challenges he still faces
01:04:16 “Bring it on” and meeting wounded parts of ourselves
01:05:51 What Mark’s working on nowadays (no more limitations)
01:12:42 Don’t give up on getting help
01:13:40 There ARE doctors who understand what you are going through and why
01:17:40 why early difficult experiences and trauma can make someone more vulnerable to chronic symptoms
01:21:11 Mark describes how he found his feet again DISCLAIMER: Please note that Yonit Arthur, The Steady Coach and any of our other guests are not acting as an audiologist nor offering audiology or medical services services or advice on any public videos or on any other content. This channel provides wellness education and personal opinion only, and are not meant to be a substitute for medical or mental health instruction or intervention. Use any tools discussed at your own risk. - บันเทิง
This gives hope to all of us suffering from vestibular conditions.
You will get better
I know this is hard, Alex, but have faith! ❤
I certainly hope it does. That's the entire reason I did the interview. Wishing you the best my friend.
Amen
@@markhinesI was so glad to hear this. Cause I've got the Menieres diagnosis and my doctor says I am going to be more and more deaf. I think that it is a horrible thought. So I got hope again now. From listening to your experiences! Thanks for sharing!
Listening to this at work while having a pretty bad day of dizzy symptoms. This is calming and gives me hope! I need to be reminded that my symptoms aren't my enemy. It's hard to let go of the fear that comes with chronic dizziness
I know that this is hard, Katie, but I believe you can do it!
So glad it helps.
Mark thank you for sharing. This is so helpful. I also appreciate your honesty about yiur childhood. You are a. Strong and good man. These videos help so many of us. We are taking our lives back. Thanks again.
Firstly, thank you to Dr. Yo for having this platform available. Secondly, thank you to Mark for your transparent authenticity! June 2022 - PPPD diagnosis. I intend to keep my comments brief, but as someone working through PPPD with a winding road ahead of me, I have soooo many similarities as Mark. Male, health conscious, articulate, educated, same age, & similar traumas. I'm not sure what's next for me in this 'journey', but the understanding and acceptance of these symptoms through Dr. Yo's platform may have literally saved my life! 🙏
Robert, I have complete faith in you. Mark made a remarkably fast recovery. Some people take longer, but you will get there.
Robert, I'm really glad and humbled that my story could help in some way.
Laughed when Mark said some symptoms felt like an acid trip because when I go to the grocery store or have a conversation with someone wearing a striped shirt, I feel like I’ve been smoking something. I will do my best to remember my symptoms are not my enemy. Thank you both for this enjoyable and inspiring interview!
Right?? People have no idea that carpets can be such an emotional event!!!
What a long strange trip it's been. So glad this chat was of value.
Mark's video is another great one! This past week I've noticed a huge shift in less dizzy spells because I've befriended my symptoms vs fighting them. I'm talking to them and reminding myself that the dizziness is my friend and part of helping protect me. Then I kindly remind myself that I'm okay - thank you dizziness for caring about me! Seems to helping :-) Thank you for sharing these stories Dr. Yo!
Fantastic!
Mark hitbthe nail on the head saying its how we approach this. I have PPPD and after just over a month of finding your channel and changing my mindset, Im now healing faster than ever.
Well done Mark and thankyou Dr Yonit
YES!!!!!!!
Dr. Yo is the bomb. Cherieleigh, I'm thrilled for you.
Mark’s story is phenomenal. Gives me soooo much hope ❤
Yes it is! He's an amazing guy.
Thank you so much Mark and Dr. Yo for sharing this with us 🥹 You both are giving all of us so much hope ❤️
You're very welcome, Sarah! Thank you for trusting us ❤
Really glad you found it of value.
So insightful- I truly cherish these healing stories. Thank you to both of you!! Thank you so so much ♥️ 🙏🏼🙏🏼🙏🏼 and for making us feel that we are not alone. Your work is a blessing. Thank you! Onwards & upwards
It is our privilege ❤
Wow…..this interview was so amazing and it resonates so much with my experiences. Thank you, Thank you 🙏 😊
You're very welcome, Rachel! I am so glad that Mark's story resonated with you!
Rachel, I feel very blessed that sharing my story could help you in some way.
Mark's story and strength is incredible. He gives us all hope!
He's awesome!
That's so very kind of you to say. I'm humbled.
@@markhines Ever since watching, I've been treating the symptoms as a part of me that loves me deeply, and just needs love and safety back. I've been really leaning in. It's caused a huge spike in symptoms so that must mean I'm on to something ^_^
Mark Hines and Dr. Yo, thank you for sharing this informative, uplifting and honest conversation. Lots of helpful ideas to think about, especially when one can feel stuck, during the healing process. Learning to persevere without raising the danger signal is key and the challenge! Great interview.
Thank you so very much
It was awesome to get to know him and there was so much packed into this interview, thank you so much for these kinds words, Elizabeth.
@@TheSteadyCoach Your very kind
All these testimony/story videos are so helpful and that we are not alone! Things will get better, we will heal...one day at a time.
Yes! One day at a time! You are not alone ❤
So very true. It would have meant the world to me the first year or two to know I wasn't alone. It would have meant just as much to have Dr Yo.
You are an Angel dr yo ❤ I will forever be thankful for you. We never coached together but youve helped me heal
Thank you so much, Mindy. You, in turn, help people by posting about your improvement ❤️
She's the best
@@markhines she truly is
@@TheSteadyCoach I meant you helped me heal sorry. ❤️
I have had deafness in my right ear since I was 10 due to nerve damage when I had mumps. I have been told a hearing aid may help to a minor amount...so I understand his frustration as I have been dealing with this for 50 years! Many people don't know that I have it unless they try and whisper in my right ear. Thanks for the interview Dr. Yo and to Mark Hines for telling his success story.
Thank you
You're so welcome, Moreen!
My diagnosis is vestibular migraine...my journey, the VM journey, is like traveling without a map, not knowing where you're supposed to go let alone how to get there, and along the way finding pieces of a map that when put together show you the next step and step by step you eventually get to the right place.
It is so hard. You’re not alone.
Thank you for sharing this and being so open and honest ❤I’m 8 months in and am crying because I relate to all of what you’re saying. So glad you are well I’m hoping to be recovered soon but it’s really slow at the moment
I know that this is hard, but I believe in you Charlotte!
Thank you 🙏
Char, I'm really touched that you'd say that. It warms my heart to know my journey might mean something to you.
@@markhines Hey Mark, your experience deeply resonates with me. Thank you for sharing. Would you say you made even more progress after this conversation 10 months ago?
@@markhines thanks mark :)
Hey, Mark! I am in the Kansas City area as well! I think we have the same neurologist (Dr. Patel). It's wild to know someone so close has gone through the same thing!
There are more of you out there, too. You are definitely not alone!
I thought I put a comment on here and I can't find it. But this interview gives me hope. I've been having symptoms for 4 years. They started mild but gradually got worse. They started with a feeling of heaviness, slightly off balance, a feeling that I am going to fall (I froze at work with this feeling and they didn't want me there as a liability. I understood.), double vision from time to time and now I'm walking to the bathroom with a roll aider walker. I use a wheelchair doing pretty much anything else because I have no balance and my eyesight is compromised with a bilateral nystagmus and the double vision turned into a motion type of dizziness like I'm on a boat. I also have a slight difference in how my left side of my body and my right feels. Almost like I had a mini stroke. I've seen a lot of doctors and lots of tests including MRIs. Nothing. I still see a couple of doctors and just finished with physical and occupational therapy. I also did some water therapy. I haven't seen any difference. But they said I was done. I don't think so. I just got glasses to help with my eyesight. I may get prism glasses. I'm too independent for this crap. I found out I had ovarian cancer about a year after my symptoms started. I've had doctors told me yes and some said no to it being related (paraneoplastic syndrome). I'm at my wits end. If you can direct me somewhere to get help I will be so grateful. I'm on disability and live in Indiana. I just want my life back. Thank you for doing videos.
Hi Jackie, I am so sorry that you are experiencing this, but please know you are not alone. If you haven't already, I would highly recommend checking out my free course on healing chronic dizziness. All of my techniques and recommendations are condensed within this course and it is 100% free. thesteadycoach.com/free-course
Awesome 👍
Thank you
I am so scared that it will never end and I have to live with it forever. Im watching so many videos, but no improvement. What am I missing?
Sometimes what we need is not more information and videos, but the evidence we get from slowly and consistently implementing the things we talk about. The free course is a good idea thesteadycoach.com/free-course
When you talk about welcoming and being friends are you focusing more on your symptoms or the emotions behind them? I mean I bet it's probably both, but is there a better place to start? Are you just trying to self talk nicely to them? I guess I'm looking for more details on to actually approach this type of work. I've done a lot of somatic tracking and have the apathy towards my symptoms down (on most days) but it's not resolving for me and it's been over a year and half. Do you discuss this more in your membership group Dr. Yo? or maybe a video on this in the future? Thanks :)
Hi Darcee, have you checked out my free course yet? I lay out all of my techniques and recommendations in this course. thesteadycoach.com/free-course. I do offer further support as well and you can learn more about these options on my website thesteadycoach.com/services/
@@TheSteadyCoach Yup, I took the first iteration and am now redoing the newer version right now.
How can I best get your help? I’ve been chronically off balance 10 yrs now. Really digging deep into neuroplasticity and seeking additional support. Thank you
Hi Deanna, I am sorry you are going through this, but I would be happy to help you get additional support. I would recommend checking out the services that we offer through the steady coach here: thesteadycoach.com/services/
Gives me hope lm struggling at the moment with the symptoms
I know. It's awful. But you're not alone and there is hope.
Your in the best place to help you through this. Be kind to youself. This is the worst thing i have been through. But these videos are the key. Dr Yo is my all time hero. You got this.
Thank you David @@davidcammilleri5526
Hello Dear Mark, can you kindly help and explain what it means that the symptoms are your best friend. Though consciously I tell myself that I'm safe. The moment the symptoms increase I subconsciously feel afraid.
Hi Parinaaz, that makes a lot of sense and it takes time to develop it. this is something that somatic tracking can help you develop. th-cam.com/video/bcCcsNxftq4/w-d-xo.html
It's a way of ending the struggle against them. And, those sensations really are exactly the distortions our brains need to reprogram in order to heal. By welcoming them, we can enter a more peace state and turn off our alarm state. Hope that helps.
So mark simply had overactive CNS and once calmed down his brain stopped sending signals and manifesting into physical symptoms and that was that.
He basically needlessly suffered for untold years and a few months focus on parasympathetic nervous system would have solved him all these issues
I think you have the right idea, but my point of view it’s not just about getting into parasympathetic mode- it’s about the nervous system flexibility to get in and out of each mode as required by the circumstances. I think often this is a psychological and spiritual task as much as it is a physical one. The body and nervous system are not a rote biological system with no influence from the emotional health of the person who is suffering.
@@TheSteadyCoach ofcourse u are fully right. I meant in the core issues come from being stuck in fight or flight mode. And like ubsay how we do that is by understanding our emotions so we dont trigger fight state and remain chilled
The problem is with all these symptoms how does someone continue to go to work in order to provide food and shelter for their family? 😔 issues affect my quality of life but I’m afraid it is going to affect the necessities I need in life.
Hi Jason, I understand and I think you can see from the other comments that you're not alone. It's incredibly debilitating and sometimes people have had to make drastic changes to their lifestyles while they're recovering. I cannot deny this reality but it is different for each person, and the more social support, less stress and better tools for managing anxiety/working through anxiety during this phase, the shorter and less drastic it tends to be.
Hii dr yonit I Dont know my symptoms get worse while travelling in car flights why this happened is this permanent symptoms??
This is a common question that comes up and I have done a video on this topic that you may be interested in. th-cam.com/video/6mPKiOa7VQ8/w-d-xo.html
I feel like DeJaVu here.. I can swear I've heard this man's story before. I wonder if he was interviewed before... Really hard to listen too. Lots of triggers. I had to skip around some.. Thx for sharing
If you're in Yonit's group, you might have seen a homily I gave a few weeks ago that she posted.
@@markhinesi was in her group...so that's where I heard
@@janiceince1965 I was in her forum thing for a while.
Didnt anyone send you for vestibular testing , eg rotary chair, vng etc?..
Great question, we didn't get into those details- but his symptoms indicated significant vestibular damage, not a surprise given the labyrinthitis.
I was tested a couple of times in the chair. I totally passed. After my cochlea was damaged, I can't get motion sickness it seems. I have zero rotational vertigo. That's why they thought it was migraine, not labrythitis.
I wasn't, however sent to therapy which I think would have helped a good bit. The best thing would have been to get to Dr. Yo 6 month into this instead of 32 months into it.
What book is he talking about that helped him? I would love to check it out
Hi there! I think he was talking about No Bad Parts by Richard Schwartz
@@TheSteadyCoach thank you
I also lost my hearing from labyrinthitis. I'm trying to decide if I should get a cochlear implant
Really cool technology! I nerded out a bit here :)
@The Steady Coach would it be a bad idea to get the surgery even though I haven't full recovered yet from my dizzy? I don't want to do anything to hinder my progress
I'm trying to work on my mindset ...swaying and rocking is not so great
I hear you. It's miserable.
Did Mark have therapy to deal with his trauma during this this time? If so, did that help his healing from this?
He had therapy for many years prior to dizziness to help him work through childhood trauma. He did not have therapy once he had dizziness. He used the tools he learned in his prior therapy to get better once he realized they were connected.
@@TheSteadyCoach thank you ! This actually helps me because I too went through years of therapy for childhood trauma. I believe for me the now trauma is what is affecting me more so than childhood, and I believe the now trauma is scaring and retraumatizing my inner child. I can’t explain it well here so I hope that made sense.
I'd done years of work before the virus hit. That toolset made a huge difference. I continue to make my mental well-being a priority. Two of my favorite acronyms are EMDR and IFS.
@@markhines Hi Mark. Do you definitely suffer from Vestibular migraine or would you say it's purely PPPD ?
@@axmmusic3129 I don't think it's purely either one. My view is that it doesn't fit neatly in either box.
I listened to this whole interview but I’m still confused as to exactly what he did to heal? My brain 🥴
The main thing he did was change his mindset of the symptoms....
It's a fair question, because our conversation was very general. The two exercises I did nearly every day were Somatic Tracking and Graded Motor Imagery. I'd do them after every walk. You can find them both on Yonit's TH-cam Channel. But they are very much about welcoming those sensations rather than treating them as the opponent. Hope that that helps a bit.
@@markhines thank you for replying!! I also use the somatic tracking every morning when I wake up, but I’m wondering if I should do it instead when symptoms increase with activity? Also, how did you use the graded Motor imagery? Thank you for sharing your story!!
@@shandymonte That's when I find it most helpful, when the sensations were the most intense. Welcome those things.
@@markhines hi Mark. You mentioned your brain didn’t know what were your feet. May I ask have you had the feeling of walking on a boat and floor moving? How long you’ve had it? And what would you tell yourself every time you wanted to walk and you had this sensations without improvement? Thank you
What is IFS any video?
Hi Zahra, it was originally developed as a therapeutic technique and often is used as one, but it's a philosophical approach that I have found tremendously helpful both in my own life and with my clients. It's short for Internal Family Systems. I don't have a video on it yet, but No Bad Parts by Richard Schwartz and Self Therapy Vol 1 by Jay Earley are both good overviews.
To follow on to what Dr Yo said, search for Richard Schwartz and Internal Family Systems here on TH-cam. There's a ton of good information. It's one of the best things I've ever done.
❤
3 years? Too long to put up with this.
Agreed. It's awful.
The reason topiramate (Topamax) helped him is because it stimulates gaba and reduces glutamate activity, which calms the nervous system. Thats also why trying to discontinue the drug didn't go very well. This is all nervous system based. Steady Coach is right - if we can teach our nervous system's how to become calm, and feel safe, symptoms will go away in time. This applies to dizziness, anxiety, most chronic pain, and so much more. It's unfortunate that this reality will not be embraced by the allopathic medical system quickly, because you can't monetize it like you can pills. Keeping a balanced, stress-resilient nervous system is the key to health.
💯 TRUTH!