Understanding dysautonomia and POTS
ฝัง
- เผยแพร่เมื่อ 16 มิ.ย. 2024
- Today I want to talk about a poorly condition called POTS which causes a lot of young patients (children and women mainly between the ages of 14-45) a lot of debilitating symptoms and distress and because POTS is a relatively newly recognised condition, many doctors don’t know very much about it and attribute symptoms to anxiety or psychological issues and therefore the poor patient’s distress is compounded by having to find a doctor and support system that takes their symptoms seriously.
Basically what happens in POTS is that the patient develops Orthostatic intolerance which means that they don’t tolerate standing up for any prolonged period very well and therefore have to sit down and the reason for this is that their heart speeds up excessively when they stand up and that feels very uncomfortable and they get palpitations, dizziness, sometimes headache and feel worn out.
POTS is thought to be a disturbance of the autonomic nervous system which s that part of our nervous system that regulates body functions such as our heart rate, respiratory rate, pupillary response, digestion and urination.
The way the autonomic nervous system works is by 2 contrasting systems… The parasympathetic system which controls our body processes during ordinary situations and the sympathetic system which prepares our bodies for stressful situations.
So for example, if we are suddenly scared, the sympathetic system is activated and immediately our heart rate goes up, we start breathing harder, our pupils dilate and blood starts going to our muscles rather than our gut and therefore any digestion slows down and we recognise this as an ‘adrenaline rush’
However after the initial stressor has been taken away, slowly our body slowly returns back to normal and this is done via the parasympathetic system and the autonomic system comes back to achieve an equilibrium.
An analogy I think which may help explain what happens in POTs is that of a see saw with the pivot point in the middle. A stressor is like pressing down on one side of the see saw and this activates the sympathetic system which causes all these changes within the body to prepare you for flight or fright. Now what happens in POTS is that the pivot has been moved so only a small stressor causes an exaggerated rise in sympathetic activation and therefore the patient notices this florid flight or fight response which feels really strange and uncomfortanble because it is happening when the patient is not really doing anything to trigger such a reaction.
SO lets see what happens when we stand up from a lying position. As we stand up gravity starts taking effect and therefore because our blood vessels are stretchy, Immediately blood starts getting sucked down by gravity and if nothing were to happen then our brain which is the furthest away from ground will be drained of blood and we would collapse. - ภาพยนตร์และแอนิเมชัน
This is actually a real doctor. Not that ''health bureaucrats'' who only talk about anxiety when they do not know what the hell is going on. Thank you very much Dr. Gupta!!
That's all I have been getting from Drs...everything is depression/anxiety. From 1 Dr to the next. Guess it's on my health record for all Drs to take note. I have no life anymore. Too sick to socialize, and find it hard to drive & even go to the grocery.
Agreed 🙏🙏🙏
@dianebauman1749 you are so right. I'm the same.
Life with this thing IS no life at all. It sucks! 😢 xo
I'm someone with POTS, and my friend sent me a link to this video. It really means a lot that the people I care about now have a way to understand what I go through every day. Thank you for making it easier for them to understand it and for me to explain it
Hannah Rothwell I totally agree! I just sent it to my mom and each one of my children to give them a clearer understanding as well. I have a hard time sitting in church for hours, or standing abruptly to sing hymns, and walking to get my granddaughter off the bus, or standing in line in the convenient store if I can even make it in......
Goddess Love Ahh ...HYMNS! I hate it when I have to stand up for songs and prayers. I mean, I literally dread it. And the second it’s over, I drop to the pew like I just ran a marathon! Thank goodness I saw your comment.
Goddess Love No ...waiting in lines too? Haha, you’re hitting it out of the park for me!
Watch Elliott Overton B1 thiamine videos. POTS is a simple fix using the right supplements. It's a nutritonal deficiency
@@JYAN2852 POTS describes the patient’s experience, not the cause. Thiamine deficiency is one possible cause of POTS, but not the only one.
17 years ive been waiting for this explanation, 17 years of telling people I am ill and i have no idea why!
So frustrating and debilitating for you! 😞
Let's not forget being attacked with adrenal rushes from doing to much during the day and stressing out your nervous system. And by doing to much I mean walking 1/4 mile..........
Yes!
..and massive amounts of cortisol. I’ll be on steroids for the rest of my life due to my adrenals’ inability to produce enough cortisol anymore. Steroids suck.
How do you last 1/4 mile ;)
Yesssss. I'm go glad other people experience this. For years I didnt know what it was and thought it was all in my head and I'm just being a pussy like why all of a sudden I cant walk to the store with out going blind
Unfortunately this is correct! The days my son tries to just go to the store with me or over to a friends, he feels the worst the next day!
Dear Doctor you cannot imagine what it is like to have pots it ruins your life we will be very glad that you tell us something about it because you are the only Doctor we should have hope in you are a real pearl in your proffession may you be blessed along your path
Anna
This is the first time I found someone clearly describe my Mystery Illness, it almost made me cry! Sudden onset dyspnea and tachycardia upon standing for the past ~15 months. It's very frustrating, sometimes when I describe my symptoms a medical professional's eyes light up with recognition--have you heard of POTS? have you had a tilt table test?--and sometimes... nothing. A blank stare. Or worse, a suggestion I might be imagining my symptoms entirely. I wish I could show this video to my cardiologist.
I have been watching it many times to understand the triggering mechanism. Fascinating!
I am so unbelievably grateful for this video and you Dr Gupta. The amount of times I have tried to explain my condition to people with no comprehension... only to then send them this short video for them to finally get it... Thank you. The ONLY medic I've seen/heard speak who understands and believes in this condition - people like me. 🥺♥️
Thank you so, so much. It's so important to have a cardiologist who understands and educates others about POTS.
Thanks for posting up these videos! It’s very helpful for sharing with friends and family! I have hEDS and have dysautonomia/POTS due to it. It’s frustrating and scary but I’m getting a handle on it thanks to videos and info like this.
Oh my freaking god. I never even knew there was a name for this!!! Thank you Jesus.
No, Thanks Dr Gupta, Jesus tried to confuse you!
My daughter has POTS and EDS and this is truly a horrible disease and I very much look forward to your ongoing videos of his rather poorly understood disease - we are fortunate that she was finally diagnosed but the lack of clear treatment options makes dealing with the ups and downs very difficult - thanks very much for bringing this to the attention of a wider audience
I know people with EDS have POTS.. but certainly not everyone with POTS has
EDS ..
I have both as well
The balance analogy is a perfect analogy. I always say that my baseline stress level is elevated and that it doesnt take much to spill over. The smallest stressors cause a full-blown episode of many symptoms that in healthy persons only appears with intense stressors. My brother, being a medicine student in his final year, and other people, like to tell me that stress is cumultive over time and that you really have fight it by getting rid of all sorts of stressors.
Thank you for taking the time to put this out there, very helpful and accessible information. Cheers!!
Thank you so much, Dr. G, for researching dysautonomia and sharing this with us. You’ve helped me and so many others. You’re truly an angel.
Thank you for bringing some understanding to POTS and Dysautonomia. I look forward to the remaining videos.
Excellent description! Thanks for making the video.
Thank you. Thank you. From the bottom of my dysautonomic heart, thank you. This is SO hard for so many people in my life to understand. Maybe they'll take 10 minutes to watch this and it will help.
Thank you so much for devoting your time to POTS! I was just diagnosed after 6 years.
so glad to see someone spread awareness ! my daughter has POTS since she was 10 and no almost 20 still has major symptoms which have pretty much disabled her and most drs don't get it
Excellent explanation - thank you so much for that. It doesn't change the symptoms but at least it helps understand what and why it's happening. Thank you.
You have no idea how much I appreciate this.
Thank you so much for making this video. I have POTS and even though i have been diagnosed i cant seem to find treatment. My cardiologist never was able to explain what you just explained and learns from me at every visit, i learn from facebook support groups interventions to help manage. With the little help i have gotten it is very difficult to manage my symptoms. So, thnak you for taking the time to research and explain this!
I just wanted to say thank you this is such an easy way to explain POTS to my family
I’ve just discovered your video and it’s absolutely brilliant! I have had ME/CFS for 15 years, followed by diagnosis of Fibromyalgia 5 years ago. Recently I’ve been having problems with a racing heart, dizziness upon standing, getting overly hot and started really shaking. It’s on a much higher scale than ever before so I went to see my GP, and now awaiting a cardiologist appt. I really REALLY hope I get someone who understands as well as you obviously do! Wish you were my local consultant 😔 really great explanation!
I was a nurse and had never heard of this - what an eye opener!
Thank you so much for your clear explanations! What a gift you have! There is a Universal Law that "whatever is shared is strengthened". Thank you for sharing your knowledge, experience and insight!
I had a stroke in January and found and subscribed to your You tube channel while I was still in the hospital. I am so grateful to you for providing information that I could understand about what I was experiencing. It was a very "minuscule" clot on the right side and affected my left leg and arm. The doctors said I should 100% recover. I am going through physical therapy and having had extensive ballet and dance training and teaching a lot of movement work, I understand a lot about reconnecting those motor conections! I am 73 and before this event wasn't taking any prescriptions although my doctor wanted me on the "usual pills 73 year olds are taking". Statin and high blood pressure medicine. We tried several but I had side effects that I kept reporting to her and she tried different ones. After the stroke they put me on Plavix, blood thinner( I am allergic to aspirin) and Metaprolol, a beta blocker for the Blood pressure and Crestor for cholesterol.
Your explanations of the purposes of these pills gave me the best understanding of the "why's. I couldn't tolerate the joint pains and aching muscles especially trying to do the physical therapy I needed so have stopped that one and she said perhaps I can try a smaller dose. I am very focused on the nutritional and lifestyle choices like you have also focused on in your recommendations. I also have added Magnesium to my regimen.
I also appreciate greatly that you are NOT pushing products or selling any programs! You are genuine and helping so many people in an understandable and applicable way!
I just saw one of the videos you have just done regarding the Covid virus and it is also very helpful and timely with so much misinformation around.
My questions in that regard have to do with taking a beta blocker and also the blood thinner. You discussed the Ace inhibitors and I am wondering about the other Meds. My husband takes Thyroxin for hypothyroid. He had a heart attack over a year ago and had a stent put in. He is strong and active BUT smoked until the heart attack. Thank goodness it made him stop.
I have a feeling that smoking will be found to be a huge contributor to the high mortality rate from the Covid Virus. Both Chinese and Italians, especially the men, are known for being heavy smokers and men seem to be being hit pretty hard.
Please stay safe and healthy and continue the excellent work you are doing.
Trent Vendiola
Dr Gupta thank you. You are refreshing and I learn so much from you. I have POTS, Dysautonomia, CIDP, neurongenic bowel and bladder. Gastroperisis and dumping syndrome, small fiber neuropothy, autonomic siezures, severe Postrandial Hypotension....
I have a cousin with dysautonomia and no one has explained it so well to me. Thank you!
Just had my daughter direct me here so I could understand her condition. Thank you for the video - it was easy to comprehend.
Thank you, Dr Gupta! That was by far the best explanation of POTS that I have ever heard. I will definitely share this with my friends and family to help them understand how debilitating and disabling this condition is on a daily basis.
I also have RA, OA, Fibromyalgia, and hEDS, but I realized a few months ago that POTS is more debilitating than all the others put together, and the most difficult to cope with/manage. I believe a large part of the problem is the lack of awareness and education, even in the medical community. Thank you for working towards changing this!!!!
Thank you, Dr. Gupta. I’ve suffered with POTS for many years, and just explaining it to others so that I can accommodate myself while we are together is one of the biggest difficulties. This video will help!
Amazing video! 👌 Thank you 🙏 so much for the information, I’ve just discovered that I have it and trying to learn as much as I can.
Your an angel sent down to give great info about all these matters! Well done my friend!
Thank you for this information. I will watch your videos on this matter.
Makes perfect sense , thanks doc
Watching your videos is great. I was diagnosed with POTS early this year. I am still trying to understand my condition and triggers. Your videos are very helpful. I live in Switzerland and would like to get a cardiologist who actually undertsands pots( not the kitchen ones with pans 😅) Thank you for your videos that make me undertsand my condition and also help my family and friends understand me better. 🙏🏽
Thank you, very helpful for friends and family to understand.
Brilliant explanation. Thank you so much.
Really interesting video. I have POTS and you explained it really well and I learnt more about the syndrome too. Thanks for raising awareness 😊
Cont...We are seen by differ specialist who dont put the pieces together..I have connected these diseases and kept logs...The cognitive impairment is so bad that my face freezes at tunes and my brain flat lines...I wish I could see you. Your the 1st doc Ive seen so interested and caring.
Thank you. I had 6 episodes of near fainting spells in 4 yrs after my mitrValve change. Mostly transient and be very brief. Recently, I had a serious spell lasting about 10min after being awaken from a nap. After I manage to walk to toilet, with my bloated tummy, the big qty GV relief. 911 brought me to ER where the reason is vesovagle. Thank you for the POTs message
Hi, have just been diagnosed with POTS. I'm 60 year old female and live in Australia. Loving your videos. They are so helpful.
This is the best explanation. Thank you 🙏🏼
You explain so well and clear. I’m like how you tell them s the medical term and then explain it both.
It's very exhausting but im optimistic because you explain it so clearly. Thank You
You are so dead on about these symptoms! I’ve been suffering for a while, and was just diagnosed in September. I was first diagnosed with vertigo, until I started feeling faint, with shortness of breath. My blood pressure has always been low, and it wasn’t my type I diabetes or CMT1A. I asked for a second opinion because I have so many other complex health issues going on. The second physician ordered a tilt table and Q-something test, and that’s when he found it. Your review was very useful and informative. Thank you for taking the time to explain.
thank you!
Wow what an amazingly clear concise explanation
Will be sharing this many fold
thanks doc
Thank you so much, this condition is so poorly understood. And so hard to live with.
I've had these undiagnosed symptoms since I got Lyme 9 years ago. I've even had the tilt table test but it didn't detect anything. It is helpful to understand what is physiologically happening.
Thank you so much. I wish I had a POTS dr as good as you. I go to a dysautonomia/MVP Ctr but they’re not that creative and have never explained it as clearly as you do here. They just say consume more water and salt, and read books on POTS. I am older than the typical patient but I think I have been dealing with it for a long long time. Estrogen prolonged it perhaps, but I weaned off and am not much better.
Thank you for your effort. This means a lot to me as a person struggling with this for over 6 years. Hopefully others doctors follow your example
Thank you so much for your comment and for watching the video. Please join me for live free chats on my Facebook page (type yorkcardiology@gmail.com in Facebook search) - I will be able to answer your questions there
You are amazing!! I have severe ME which caused PoTs and later orthostatic Hypotension. I am unable to keep an upright position at all... The smallest noise causes a stress response and my HR jumps up. 150 when the phone rings... I'm struggling so much. Even looking after my kids is becoming impossible... I am becoming desperate for answers. Even explaining my condition to others through this video is fantastic.
I've subscribed and look forward to your series on PoTs x
Julie Cody low adrenals. Been there! Jabber POTS cfs...
Pls go to an autonomic center for testing. There are only a handful bc it’s a newer field in neurology. Some cardiologists like dr Gupta are knowledgeable and able to dx this as well.
Thanks for this video. My sister has been having trouble getting this diagnosed but she definitely has pots. She’s not very vocal so I don’t really know what’s going on with her a lot but this helps me to understand her a lot. Thanks you!!
Covid-19 caused this condition for me. Very common.
I have been learning so much from your videos! Have have been struggling for about four years now with thinking I was just getting lazy and having a hard time pushing threw but now I am able to connect the dots. Sudden drop in blood pressure I was always 120/60 but about 4 years ago while working in a very stressful job and long days I got sick from the stress and notice heart palpitations and GI problems, started to have trouble with hitt workouts ( light headness felt I would pass out and seeing spots). I have always been fit 5'5 ft and 120pds very athletic. Next thing I noticed, was when I was donating blood. My blood pressure was 94/60 not my normal and it was constantly low when I would give blood, my workouts keep getting harder to where I just stopped all together. At my new job about a year into it I almost passed out will emptying a Foley bag squating was hard and standing was really difficult, that was when I started to think something was going on but then I felt ok other days. Months later I was talking to my neighbors and felt like I was gonna pass out just standing thier. And that was what made me go to the doctors. She noticed the difference in bp and started to look into it. I had labs they came back beautiful. I go back in August and am gonna request the tilt table test! I thankyou so much for this video and all the others you have put out thier it has been such a help and I truly believe this is pointing me in the right direction!!!! Also at work they had me where a heart monitor for the day and walking my heart rate would go up to 130 sitting in the 50s just raising my arm in the air I would go from 50s to 90s.
Thank you so much Dr. Gupta! I learn so much listening to your videos. It would be so nice if all doctors would explain things so we could understand as apposed to saying the least possible. God Bless you ! Appreciate you!
Thanks so much for these videos I have all the symptoms of POTS I just need a Dr to listen!
Dr. Gupta, what you're describing sounds like the definition of hyperadrenergic POTS, but there are also neuropathic and secondary POTS as well. Even though they are pretty similar, they can show up somewhat differently and, naturally, their treatments slightly vary as well. Thank you so much for making this video! It's wonderful to have more talented docs discussing this topic.
Thanks Danielle!
Thank you so much for your comment and for watching the video. Please join me for live free chats on my Facebook page (type yorkcardiology@gmail.com in Facebook search) - I will be able to answer your questions there
Where can I find out more about the different types? I was just told I have pots. That’s it.
Busy & Birdie I’m so sorry that I just saw this. Dysautonomia International has a lot of information for free on their site! A lot of the information I have I found in medical journals/case studies. Hoping you’re feeling well!
@@busybirdie178 also I will add: the different types are not mutually exclusive. Some people only have one type, but many have two or more overlapping types of POTS. They should be considered descriptors, not categories. 😊
As someone with POTS who struggled for years getting diagnosed... thank you
I''m a nurse who's been diagnosed with POTS and this has really helped explain my symptoms (even while on meds) in a way that makes sense! Thank you!
What type of meds do you take for this?
Jamie Land a ton. I take 18 different prescriptions, some of them up to 4 times a day. But also have MCAS and EDS and my body has been a bit treatment resistant. I actually am at the point where I can’t work anymore.
To answer your question about meds to treat POTS, they have to look at your cause to make sure they properly manage it. Usually there is some sort of medication to lower your heart rate (there are different types to choose from) and some sort of medication to elevate your blood pressure, usually midodrine or fludrocortisone to start. I personally reacted very poorly to beta blockers and had plummeting blood pressures even when on both midodrine and fludrocortisone. This was because my EDS makes my blood vessels stretchier and the beta blocker caused greater blood pooling for me as it dilated my blood vessels, hence making my symptoms worse. So not every one’s dysautonomia journey looks the same; some people are quite well managed on a beta blocker and fludrocortisone or midodrine. And then there are some people like me who are on 18 meds. Regardless, you get to really know how to be in tune with your body and to read when it’s trying to tell you that a flare is coming.
Thank you so much for this video
Thanks for the podcast.
Do make a video on orthostatic hypotension.
Thank you so much! This video is extremely helpful! God bless
Thank you for another informative video :)
I am really so grateful to you.My son has this condition and has suffered a great deal.He at one time had a heart monitor fitted, doctors decided to remove it.He is extremely tired all the time, not a ordinary tiredness but extreme tiredness.He is six foot tall and at times he has a lot of difficulty when this is prolonged.He is doing yoga to allievete this.He has had the tilt test.It has altered his life immensely and has stressed me and his wife. Thank you for video,Doctor Sanjay.I do so appreciate and will look forward to your next video. Thank you for video and blessings and greetings and hugs.xxx
Rebecah Clifton Many Thanks, I do so appreciate your information.I am so grateful and will give him this information.This is helpful and I am grateful to you.Many good wishes and blessings for you.xx
80% of people with pots do NOT have EFS
Thank you for this.
Nicely explained
My Wife was diagnosed by a wonderful neurologist two weeks ago in the hospital. She has had symptoms for many years and was told it was Fibromyalgia but the symptoms were infrequent. Our neurologist said he does not think she has fibromyalgia but rather Dysautonomia and POTS.
Patti became much more symptomatic after her second dose of the Covid 19 vaccine. We have no idea if that could have triggered this response? Your wonderful videos have made it so easy to understand and have taken so much anxiety away from both of us. We thank you from the bottom of our hearts, Eric & Patti Cohen💕💕💕🙏
I don't know if the shots can cause it, but very likely. I had the shots, didn't get it from that, but still have POTS from Omicron after many months. It is slowly getting better but it's so hard to do the mild exercise that my cardiologist recommended. I do what I can.
Thank you so much for this.
thank you!!!
I now am on Instagram as Yorkcardiology and will be doing a regular whatsapp broadcast.. Please send me your whatsapp number on yorkcardiology@gmail.com if you would like me to add you. I also have lots of interesting patient stories on my website:www.drsanjayguptacardiologist.com
I have Hyperadrenergic POTS. It took 10 long years to get a proper diagnosis. We need more docs who recognize it and more that now how to treat it. I get saline IV infusions 3x a week right now and this is the most normal I have felt in a decade. Apparently, the higher blood volume I gain fools my kidneys and the renin, aldosterone and angiotensin system and the end result is many of my POTS symptoms are resolved. I also take 4000mg of sodium plus a gallon (2.5 liters) of water each day. I know it's unsustainable because of cost and the scarring of my veins but, I'm in heaven, right now, enjoying the moment ;-) I haven't been able to walk whilst I shop, for many years. I usually use the electric scooters. So, I am just getting used to being able to do more things right now! Keep-up the good work of your videos!
Do you wake up from sleep due to tachycardia?
Great information to know, thanks for posting.
Thank you , it helps a lot
Thank you so much for this series. I am new to this condition and it's nice to someone give these easy to understand explanations.
Thank you!! I wish you were in the US!
Great video! My friend with pots sent it to me
I have been greatly helped by your videos! I am 62, have had symptoms since my 20's and only dx'd 3 years. I have Hyperadrenergic POTS and trying to understand why this is a different animal than regular pots. One thing I read recently is that our ADH is low (my ADH
Last week, I assisted some British doctors and understood that "a consultant" in the UK refers to "a Specialist doctor." Before, when I heard the words "a consultant cardiologist," I thought Dr. Gupta was not clinically practicing😀🙃 I was surprised by the young British plastic surgeons' professional and respectful attitudes towards us, the "lower-class" health workers. 😇
Thank you. I have shared with severe ME group on Facebook. I hope that’s ok
I love the pen seesaw analogy. It describes POTS so well. It's also great to see more mainstream medical interest in this illness, but it's also good to remind people that while prescription meds work for some there are also a lot of self help strategies and natural products that can help too. For those interested in the natural approach to POTS come over and say hi at 'Natural Treatment for POTS' support group on Facebook. facebook.com/groups/NaturalTreatmentforPOTS/
Thank you so much for your comment and for watching the video. Please join me for live free chats on my Facebook page (type yorkcardiology@gmail.com in Facebook search) - I will be able to answer your questions there
Thank you for the video from a dysautonomia patient. I’m also a Chiari patient. We find that most of us with Chiari have dysautonomia/POTS and Ehlers-Danlos. Would you do a video discussing the correlation or impact of Chiari and Dysautonomia on one another? Us Chiarians would be so grateful.
Thank you so much for your comment and for watching the video. Please join me for live free chats on my Facebook page (type yorkcardiology@gmail.com in Facebook search) - I will be able to answer your questions there
I've had PoTS since I had omicron three months ago. I discovered it myself, because I wear a fitbit and my heart rate started going absolutely crazy when I would stand up. The cardiologist said he sees this all the time, and that if I continue yoga that's the best thing I can do for it. I agree, and still do yoga, but feel like I'm going to fall over in the standing positions. It has gotten somewhat better, but I'm not back to normal. And the temptation to lie in bed is really a problem, because I don't want to do much at all, slowing this healing process. I used to walk in the afternoons, and rarely make myself do it now. I don't even want to do housework and hired a housekeeper to do most of it.
I found a doctor who specializes, and he just diagnosed me with Orthostatic Intolerance, Syncope, and a couple other things, but *told me I have POTS, and an Autonomic Failure.
It's now making my disability hard to keep. People really don't understand how hard it is to be a functional human with this. Smh It's very sad.
39 yr old male here. Just started having these symptoms in March. Absolutely sucks.
Good to know that people with chronic fatigue syndrome may have this condition. Good way of describing it☺ so how do you treat your PODS then?
Thank you, I’ve had this all my life and I also have Mast Cell Activation Disorder. I have Hyperadrenergic POTS. I was diagnosed at Vanderbilt Autonomic center. I’m also suppose to see a rheumatologist to check for Ehlers Dyers Syndrome. I’ve had mono and Epstein Barr which stays in the body forever. I can no longer work, I was a personal trainer and group exercise instructor which triggered me POTS and I almost arrested after teaching a class. Exercise really triggers my pots, now my exercise is very mild, swimming pool and Pilates (because I can lay down)
I will be emailing you!!!!
THANK YOU AGAIN......
Madeline who do you see for your MCAD and POTS?
thank you
My son has this they came about after Covid long haulers and is bed bound! He just started on midodrine and has been taking Metoprolol for 2-3 years off and on! I don’t know what to do! Thank you fir addressed this!
A group of croation doctors investigating epilepsy triallled a vagus nerve implant pacemaker and it cured both sets of patients , sorry I meant the pots patients. I questioned that yrs ago that was part of problem really good that they've found this works
Shoot. I have extras too. It is situations like this is why I have 3-4 "Coupon Buddies" in my town. Sometimes when this happens, we trade or help each other out! Good luck! 👍
I wish you were in the US for all my Doctors are stumped. I hear we are specialist but not that special..go to mayo.they dont take my ins...I will keep watching you and sharing your videos...my ivig nurse watched sleeping with the enemy together...again thank you and God bless you. If you ever do face time appointments or what's app. I would love to chat with you...Im a Sister so I cant watch face book..you are a b look blessing. God bless you Dr Gupta...From Sr Carmen
Thank you
Thanks for all the info.
I have Ehlers Danlos Syndrome - Hypermobility type and am waiting to see the only POTS doctors in Ontario, Canada. I was referred 2 years ago, but the normal wait is over 3 years. I have a type Dysautonomia (sweating, extreme cold, dehydration, nerve pain, chronic fatigue, skin colour changes, digestive issues, sudden drop in blood pressure and Adrenaline....for no understandable reason), but I am not clear if it’s POTS or another kind of dysautonomia.
I’d love if you would do a video about the links between POTS and Ehlers Danlos Syndrome.
Liza Butcher I have EDS/hyper mobility and the same in Alberta. Seeing a cardiologist, endocrinologist but seen very quickly. Working with functional medicine doc as well. Lots to be done!
@@Whitewillow221 I’m in BC - and have been told there are no POTS experts in BC - that the closest is in AB. Can you tell me more about how you are and where/ from whom you are getting most help? I’ve struggled severely for years. Diagnosed in 2020 but not doing much better yet.
My 20 yo granddaughter has POTS and autonomic dysfunction. She passes out at least once a day for 3-5 minutes in and out and yesterday stopped breathing. She is on 3 meds to lower her heart rate and another raises BP. She has long Covid. MRI and MRA negative and she will have video EEG next. Thank you for your information.
No just can tell you have many natural talents and obviously have an integral thirst for knowledgeThat comes through in the way you describe things and present yourself. Either you had a very good teacherOr you are just a natural and are able to think outside the box when describing things. You most likely have a veryCompetent creative brain but if I give you any more compliments it will go to your brain so just keep up the good work doctor. I'm only joking you don't seem the egotistical type. You would be good on television. Michael Mosley I think his name is on television has similar attributes to you
Hi Dr Gupta thanks for the video. Is inappropriate sinus tachycardia considered Dysautonomia like pots and also could shortened qt intervals on an ekg be a part of dysautonomia is it possible for the nervous system to cause the ventricular chamber of the heart to contract prematurely. In your opinion I know there is no sure answer or magic crystal ball for such a question but is it even possible . basically is the av node and sinus node part of the nervous system or do they work independently.
I did not have a tilt table test. I went to Kings College London and had autonomic function testing and was diagnosed that way.
Busy & birdie did you get cured I mean are you better now and what treatment did you receive?
Very informative videos, one question though. When I stand up my heart beats drops and I feel a little pressure or rush going through chest into my head for few seconds and then goes away. I don't feel dizzy though. Could this be POTS?
Can you do a video on the difference between POTS and IST. I have both and sometimes it's hard to distinguish what symptoms are coming from what disorder
In IST you do not have to be upright (standing up) to have a racing heart. In POTS when laying down the heart rate is lower than when standing .. in IST you can also get a high heart rate when lying down.. position often does not matter..Its like the name says. INAPPROPRIATE Sinus Tachycardia.
I’m diagnosed with CRPS - FIBRO - POTS and have more and more allergy and digestive issues as time goes on. I’m in Australia and we have such little understanding of all three conditions and not many treatments either it’s been 3 ish years of treatment and there’s just no managing it ... it takes over your life 😔
YES i have been undiagnosed for over 7 years. I also have been diagnosed with a movement disorder and cramp disorder. I really am very ill constantly.
Is this serious
Hey buddy do you feel that your body is involuntary shaking and trembling?
Same.
you're awesome
I feel a fast heart rate! It's very heart to not feel worried about it!