The easiest but most impactful things I've done in my home was putting a shower stool in my shower and getting a barstool that I can sit on while cooking and doing dishes. But I think the most important thing is giving yourself permission to not be ok, and to need some extra help. For far too long I felt like I had to keep pushing myself beyond where I should have simply because I was still young and mobility aids were for "old people" or people who are "sicker than me". They're not. Give yourself permission to use what you need to use.
Dr. Gupta is an exceptional Dr. He actually listens to patients and offers the much needed support in validating the fact that the patient is actually debilitated,, even though they "look good." As a person with both POTS and ME/CFS (Canadian definition) I found that using a power wheelchair and stairclimber in my home was essential to my improving. My MD didn't even like hearing that I used a walker with a seat. So many MD's don't listen to their patients and definitely don't understand the concept of "conserve to preserve." In my case, conserving energy using power wheelchair allowed me to participate in life more and gave me additional "good days" each month. Eventually I my functionality improved so that I was able to discontinue use of the power chair when at home. And years later I could leave the house without needing mobility assistance (on a very limited basis.) Post Exertions Malaise, however, causes setbacks and relapses, so caution must be used at all times.
Your humility endears you to us POTSies! Sometimes all we wish to hear from a doctor is an honest, "I don't know, but I believe you." You can't even imagine how heartbreaking it is to go through this, not know what it is, reach out to a professional, and hear, "Have you talked to a psychiatrist?" So many doctors have an attitude of, "I don't know what's wrong with you; therefore, I think you're making it up." So devastating!
Feeling for YOU sweet pea !! I can relate to your words xx my EX Cardiologist totally ignored me in my consultation speaking Directly to my daughter.. WITH the words she as he read her my results after several time of been ignoredby him i Said out loud its me you shold be talking to WITH THAT he pulledhis chair closer to me pointed to my heart and said YOU MITE WANTTO CONSIDER ITS PSYCHOLOGICAL, there's nothing wrong with your heart ... I was shocked & I made a complaint and he basically denied it .. Arrogant springs to mind.. I was later diagnosed with hEDS and my b12 was as low as 11 . I'm now fighting for A Dysautonomia diagnoses as that's what's over taking my life I'm sorry to hear so many are having the same issues with DR'S whom can't just say " I don't know " Much love sent to you ❤
Thank you! I have POTS since 2016. It took me 3 years to get a diagnose. My doctor doesn't know alot about it. I'm vegan, drink water, never touched alcohol. Trying to walk 10 minutes/day. I used to be a dancer, worked full time, always on the go. Took care of our house, cooked, baked, ran with our dog. Took care of my nephews. Now my body is letting me down. My husband have to do everything. I never wear makeup, just comfy clothes, my hair in a bun. Used to read 5-6 books/week. Can't read anymore. I miss myself, my old me. I never watch tv before POTS. So I don't miss that. Only the news.
Olivia...please turn off the news...it doesn't do anything except bring you down. How about Netflix watching comedies...listening to music with no words. It really helps in meditation . please take the doctor's suggestion and go within. I can so relate with you as I am in same boat only I haven't watched tv in 2 decades...sunshine is great...maybe take a lawn chair outside if you can and back in the sunlight...we need to surround ourselves with love and beauty and take in whatever spiritual gifts are available to us. It's grief...not being who we were before...but you have an opportunity to reinvent yourself...I know it's challenging...take one day at a time...one moment at a time!! Blessings to you...(((hug)))
@@goldie3602 Thank you for your kind and true words. I will not watch the news. Yes my husband can help me out in the garden. Not much sun yet here in Sweden. I'm happy when I can stand up and brush my teeth without fainting. I sit on the floor in our shower washing my long hair and skinny body. The thing is that my mother, my sunshine and friend died very suddenly in may 2017. I got even more sick and fatigue by grief. {Hugs}.
@@olivia6063 Oh Sweetheart! So much stuff to deal with!! thank God you have a husband who can help you out. So very sorry for your loss...My Mom died in 2005 so I totally understand. Do you use a walker to help you stabilize yourself while standing and brushing your teeth. I use a cane while I walk for balance. That is helpful. God bless you and keep you sale in His Arms!! Much Love Dear One...!!
@@goldie3602 Thank you sweetie. I'm so sorry about the loss of your mother. It's horrible to lose a parent. I use a walker when I have really bad days. I sit on it if I have to while brushing my teeth. When I have to go to my doctor or hospital I use a wheelchair. My husband is my rock, the love of my life. We have been married for 20+ years. He knows how I used to be, always on the go. Our love is so deep. He's the most caring and loving man I know. Blessings from Sweden sweet soul 🙏
Oh my goodness. I literally googled York Cardiology fatigue POTS yesterday trying to see if you have another video and you put this video up today. Thank you Sanjay so so so much!!! I got long covid in Dec. 2021 and watched all your videos on palipitations. They provided so much comfort for me when I didn't know why my heart was pounding so hard all day and night long. Last month I got diagnosed with POTS and watched all your videos on that too. Thank you for all you do. Doctors in America still don't really acknowledge POTS. I have a doctor who believed me when others didn't. She tries her best but it is difficult at the same time. I have plenty of prescriptions for anxiety pills different doctors gave me, which I do not need because I'm not depressed, POTS is real, it's not in my head. I just wanted to thank you for your kind words and understanding, and for believing your patients. My fatigue is not well managed at all. I had to move back in with parents and I'm in bed most of the day. At 5pm I get up and go sit in the recliner. I do light excercises from bed and I'm just waiting till I can get up and continue my life where it stopped 3 months ago. I know things will be different but would love to work again. I wish I lived in England. I'd pick you as my doctor no doubt about it.
You may want to search for info on Heart Rate Variability and ME/CFS. It is so important that you don't push yourself too hard at the beginning. It could have lifelong consequences. A Heart Rate Variabilty monitor and keeping your heart rate under your anaerobic threshold while exercising in bed can help you make progress without causing permanent damage. I wish you all the best.
What a treasure you are to humanity! I wish all doctors were as kind and deep and caring as you are. Such a blessing!! And thanks do much...I haven't been diagnosed but have very similar symptoms so it helps a lot. Thank you both...lovely people!
Having familial dysautonomia and naturally compensating for my symptoms through out childhood, never really knowing something was wrong. I just figured everyone must feel the same things. Being an adult and having events/episodes and being told I have anxiety...well I knew better and didnt buy into the misdiagnosis. Major life change 4 years ago when I was floored, unable to move, barely toilet myself, shower, dress, it was all I could do to just breathe. Existing in a shell of a body, losing my career, social connections, family, my life. POTS! I found you then and watch you now. I speak of you to others seeking information, even to other medical providers. YOU ARE A HERO! Validation is everything. Unfortunately with Covid and many new Covid related cases of POTS being diagnosed, I feel even more hopeful of knowledge and awareness. Hope that dysautonomia is studied, explored and a reset is discovered for the autonomic nervous system. I have no doubt I was floored due to lack of self care. Being a nurse, caring for others and rarely myself. POTS has been my wakeup and a hard one to manage but I'm making progress. I pray for all in the struggle to show themselves grace and practice self care. I also hope they find you! You gave me hope when I thought my life was at its end. 4 years into this, at 57, I am hopeful. I focus on myself, my 2 teenage children and 2 grandchildren (from my 1 eldest daughter) and I pray each day that am able to make progress and regain my life, while taking time to smell the roses and appreciate it all without being floored. Thank you! YOU ARE A HERO!
Brilliant video, I got diagnosed 2007 by Mr Sainsbury a heart specialist in Bradford and even then I was just told to add more salt to my diet but now I have arthritis pains in back, knees and heels but was diagnosed in 1996 with degenerative disc disease so that doesn’t help, it’s great to hear of so many others with similar issues.
What you say at the end about finding something beautiful touched my soul. I can honestly say my ME has made me a spiritual person however it took lockdown and shielding to absolutely understand that we are far more than our actions (I've had ME since '95, im a slow learner 😊).
I wish I had a doctor that understood. I already dealt with chronic illness years ago with ankylosing spondylitis & fibro, changed my life and became an herbalist and massage therapist. The greatest event of personal transformation was getting sick, this time around I don’t understand any benefit I can gain as aside from pots that my DR had to google and doesn’t understand, I also have arthritis, several disc herniations and fibro again all after getting COVID in 2020. I know healing is possible but im tired of fighting.
I've been on modafinil. It was life changing. I had tried everything...rest, healthy eating, yoga, exercise.. my mental exhaustion was unbearable. I was able to write my Masters thesis once I began modafinil...and I graduated.
Watched some of both your videos, they helped a lot when I first had POTs and didn't know what was happening to me. I have researched since and know a lot more, modified my diet and lifestyle and slowly getting better though still cannot walk, this was uplifting to watch.
Hi doctor! please make a video about vitamin B1 deficiency and beri beri. Many people don’t realise how common it is and how it can mimic many heart conditions!
Having an understanding doctor is so important, I have been struggling for some time to figure out things for myself it is extremely frustrating and exhausting, I have under gone quite a few tests lately, and hopefully I am getting to a place where I can accept and understand my health problems with the help of a pain specialist.
Never heard more relatable words in my life “it felt like a superhuman act to actually go through the entire day” it’s hard always acting like you’re fine like an average person when underneath it all you’re exhausssssted. That’s why I have to laugh when people ask my future plans. Hunny my future plan is to get through the day best I can.
Hi Doc. Could you talk about isolated diastolic hypotension? Everywhere I read says that it is a risk factor for heart failure. Im 20 and my blood pressure is often 115/57
If I indulge in resting so much I have so much less energy. So I push myself to the point I just can't anymore and I find I can get at least some things done most days. The brain fog drives me nuts but I think there are times we have to push ourselves. If I sit down and rest, then I know for a fact I'm not getting back up.
2) another theory which may be responsible for the rapid heart beat is the autonomic system is stuck in the sympathetic part, ( as if we are constantly going to be attacked by the tiger in the analogy used). This leads to research on the vagus nerve from Brain to Gut. Breathing techniques can be used to reduce heart rate. A gastroenterologist could help. (Prof Epstein at Royal Free) I am 4 months Long Covid myself, with POTS or IST (inappropriate sinus tachycardia) , fatigue and brain fog. Researching for myself . 65 yr old female. UK
In my case I was not overworking when I got POTS. I was already on Disability. So it took more than 10 years to be diagnosed. I am glad I finally got diagnosed but I am not sure what it is teaching me.
@@rosannadana2922 I was reading the comment section under an autism video. Someone was talking about an illness that was more common in autistic people. They listed 10 symptoms. I had them all. I didn't usually Google illnesses but I thought that it was strange that I had all of them. So I looked it up. It fit all my symptoms. I saw a video about the poor man's tilt table test. I bought a pulse oximeter and did the test. My pulse jumped more than 30 beats. I went to my primary care doctor and told her that I had all these symptoms and that my heart rate went up when I did the test. She referred me to a cardiologist.
@@rosannadana2922 The cardiologist did a bunch of tests. More serious heart problems were ruled out and then I was sent to a POTS specialist who diagnosed me with POTS.
Dysautonomia and hEDS has been a slow dis-ease thats has now taken over my body .. i done too much been a single parent while trying to cope with my physical challenges.. And now im basically BUM bound and i live alone.. Im currently fighting the NHS to acknowledge my symptoms for Dysautonomia as a diagnosis is my goal for mental peace of mind. Only was diagnosedwith hEDS Januaryand fibromyalgia last November.. . AND yes Periods are when my symptoms are crazy .. cold weather and led lights are a huge trigger too.. I'm currently using a mobility scooter at the age of 44.. Meditation is so helpful alongside sound therapy from crystal singing bowls to tuning forks and listening to birds and water .. vegan diet and huge water intake also helps .. I highly recommend anyone with Dysautonomia to aviod Tramadol and Morphine as theses drugs reacts badly with the body and can cause near heart attack, speaking from experience. ❣️. much love to all whom have physical challenges ❣️ I see you !!
Every little part of the day needs managing. Medication first thing, brush hair and maybe do makeup in bed while it’s kicking in (cleansing wipes!). Baby wipe ‘shower’ as well if im too tired for a real shower. Clothes that are easy. A flop/rest after putting on compression socks. An office chair in the kitchen that I scoot around on, and sit while waiting for kettle. On a better day, make and Freezie meals to microwave on other days. Medication kept upstairs and down to avoid stairs. Sitting on floor while brushing teeth. Kneeling while hoovering. Doing 5 minutes of housework then resting for ten. Attempt to do recumbent bike. Driving to the supermarket, sitting in car before going in, wobbling my way round, then rest longer in car after shopping to recover enough from lightheadedness to drive home. Nap or rest in the afternoon, longer if I have seen anyone or had a zoom meeting. Microwave dinner, or have a meal replacement shake. Sofa after dinner, then bed at 8.30pm
Hi I’m 19 your an excellent doctor I love your videos. Heart disease runs in my family hard. I was wondering if you could inform us on how you keep your heart healthy. Like maybe exercise, supplements, sleep etc. I would love to hear from the best cardiac doctor himself.
Evidence suggests that fatigue in neurological and autoinflammatory illnesses is tied to suppressed dopamine transduction in the prefrontal cortex. Medications that target that have been found to be helpful in cohorts of POTS and CFS patients although can worsen tachycardia in a minority.
I have IST, OH, POTS, but I have major breathing attack that those patients dont get and everything else has been ruled out. And Also I can’t eat because 6-24 hours later my heart rate spikes until I 💩. After I 💩 my heart rate reduced. So Gastric cardiac conditions you talk about is with the stomach but mine is in the lower intestines most definitely. My spine gets super stiff and even my testicles get tight until I pass a stool.
Can you do videos on the different types of POTS and what helps them specifically? I have hyperPOTS and some of the treatments are counterproductive. How can I exercise? Water and salt intake? Blood pressure increase upon standing? Would love to hear your insights!
I have felt this way for so long especially since having covid.. I’m on beta blocker which I feel slows me down but have learned to get thru that but now can’t do much of anything without just feeling drained all day.. I take vitamins, diet, not sure how to get thru life now…I have brain fog, dizzy, weak am I long haul covid or pots or both?
yes my symtoms and tachycardia mostly has improved . i manage mine by shooting for 100 fl oz of water a day, in mornings i have to drink 32 fl oz in order to not have tachycardia , i have hypo volemic pots and currently take propranolol 10 mg as needed mostly in mornings, my main symtoms are tremor left hand, weakness fatigue. some days are better than others i usually have a good day then not so good day.
My problem is that the things that give me energy, also take it away. I need very strong coffee and 5 mgs of Adderall to even function. But after a couple weeks doing that, I feel worse than before I started. :(. I feel like I can’t win. It’s just so distressing that there is no progress made with this condition, or too little. We shouldn’t be at this point. We should, at least, understand how POTS is caused; by what mechanism. It’s just discouraging.
Hi sir Pls help me out to understand , I have gone for CT abdomen while contrast istarted feeling Bee is biting and I woke up and fainted, docter given me CPR as they were saying u had low pulse and bp, after waking up I am ok, my all votes ok 2d echo, stress test all ok. Pls help to understand what happend to me it was syncope or other thing, is there any life threat in future. I feel like I am in post trumic stress. Feeling very scared. Thank you if any one help. God bless
After I got COVId my heart rate would change by about 40bpm just from getting out of bed. My Dr just put me on a beta blocker because the tests are expensive and my insurance sucks. Sense then my energy level has gotten even worse than it was before. I have said for the last 15 years that I have CFS, now it's even worse.
I wanted to give some thorough feedback on this video as a fellow POTS sufferer. Other specialists may turn to this video for advice on how to help their POTS patients - to advise them that they can get better if they manage their lives in a certain way. We are always told “you have to learn to live with it,” so this is nothing new. However, you also state that medication should be used as a bridge to get to a place of self-management and self-compassion, love etc, and I find this a potentially damaging statement to make, as not every POTS patient can or should go without medication, especially given that many of us suffer from other comorbidities and have other risk factors when it comes to managing illness. Managing life in a certain way or relinquishing all or most responsibility, and only doing what we enjoy, is just not realistic. Saying medication should only be used while people are “getting their lives together” places the onus on the patient to get better on their own.. All this does is inflicts a sense of guilt onto patients who stilly rely on medication; patients think they are not doing enough, or it’s their fault that they still rely on medication (they are not trying hard enough, organising their lives well enough, or as you say it is “too difficult for them to visualise” how to delegate responsibility). I have been suffering with POTS secondary to Ehlers Danlos Syndrome now for 10 years. During that time, I have quit medication on my own terms several times thinking I would be able to “manage on my own,” only to become very unwell again because of course my symptoms returned with vengeance. It is not possible to say, “I am going to do less and own less” and have my symptoms/ fatigue just disappear. Wouldn’t that be great, though! I am still going to faint if I stand up too quickly. Doing less is not going to stop that from happening. Without medication, I am going to run my body down to the point of having no energy to lift my head off a pillow, even if I had no responsibility, stress, belongings/ pets/ people to look after. Being alive, standing up, walking, eating, taking a shower, getting dressed is going to be enough to run my body down over time with POTS and debilitate me with fatigue for long lengths of time. And the response of doctors then is going to be that I need to do more and be more active or I won’t get better. How confusing is this! There is nothing magical and wonderful about being ill, missing out on education, family, career etc, and living with the guilt that I haven’t done enough to fix myself, and it is my fault that I am achieving less than others. For me, this video reinforces those negative feelings I have and only strengthens my feelings of failure in that I have failed every time I have tried to self-manage my condition and will probably always fail because it is not possible to cure an illness by just being compassionate to yourself and “self-managing.” So, I’d like to suggest other ways for doctors to help. Doctors can help patients more by advocating to other less knowledgeable health professionals and specialists. Medical gaslighting is extremely prevalent and is causing serious stress and even PTSD to patients, especially those who meet a certain criteria (female and young). You talk about relieving stress, but stress caused by medical professionals is a stress that patients cannot alleviate or delegate to someone else. Advocating for research funding and a cure, rather than expecting patients to liberate themselves from life would be a much better approach for a doctor to make. Putting time and energy into educating health professionals and advocating for more research and treatment options, links between genetic conditions such as EDS and its other comorbidities (etc etc), I feel would be a much more rewarding path to take as a doctor, and would give much more hope to patients.
They are not saying any of this to make you feel guilty. They are just listing things that help. And no one ever said you are some kind of failure if you have to stay on medication. They just state that it is another small goal if you can manage it. If you can’t then you can’t, but, blaming them is not helpful. There are no other known treatments that can alleviate constant fatigue. She is only recommending what can be done or, what is possible. It is only a 24 minute video, and the goal is to help viewers understand what changes they can make to alleviate stressors, not to fix every doctor and all medical establishments. The title of this piece is accurate in terms of the depth and scope of what was covered.
Beta Blockers major side effect is fatigue! Beta Blockers should never be the 1st medications used for any kind of dysautonomia. Invabradine should be. But also looking for the cause. I suggest a referral to an Interventional Radiologists to look for vascular compressions shunting blood return to the heart or Pre-load failure..
as value as this information might be to some it’s just not practical for someone with young children. I wish there was a way for me to combat the fatigue while not letting impact my job as a mother, partner, and home keeper. I hope one day the research will give us a way to heal.
Does anybody dies from POTS? Cuz sometimes i think my Breathlessness is gonna kill me. I thought propranolol would put a final dot in this, however, it hasnt. And its very random. Sometimes i cant do the minimal exercise cuz i will have shortness of breath, some othertimes i could go to a concert and stay 3 hour straight standing on my feet and feel nothing.
Hello Sir Iam from india, I thank you for educating us about all these thing❤. Iam suffering from heart palpitations for about a year now and Iam recently came to watch your videos about all these stuffs and magnesium. Does heart palpitations due to anxiety or stress can be cured completely? Does any people cured from it completely with zero palpitations please reply me sir Iam suffering a lot 🙏🙏🙏🙏🙏🙏🙏
@@becksbitofblue Thank you ❤. I didn't start to take any supplement still now. Many people only suggest magnesium but does really Pottasium helps in palpitations? Do it makes me completely get rid of my palpitations?
@@lilyrose2811 watch dr berg I learned from him potassium is very important we need minimum 4700 MG but like me I jabe stress so I suck up more. I needed 9000mg an day. Now I go between 5 and 7. I use potassium citrate. Also drink water dehydration will cause same issues
You are trying to understand your patients instead of reading the numbers! Today I just told to my doctor that my BP was okay but I am experiencing severe fatigue. She said then there is no reason to feel fatigued and she just directed me to psychiatrist 😢
Thiamine is the missing link … take 400 -600 mg a day and the fatigue will disappear. Thiamine deficiency is under diagnosed. It is the powerhouse of the mitochondria in the cells.
@@carmella88 Did your doctor bring it up? This TH-camr has a lot of stuff about ectopic beats. Speaking from my own situation, they wouldn't do anything because I have such a low heart rate. The medicines they normally give like calcium channel blockers (and I can't remember if it's alpha or beta blockers) will lower heart rate. To my understanding ectopics are not really considered a concern unless the threshold is heading towards 10% which I guess would be like averaging six ectopic beats every minute on a person with a 60 beat per minute heart rate. This York cardiology guy says as long as your heart's structure is okay ectopic shouldn't be anything to worry about. I brought up the post exercise ectopics because I had read somewhere that there is a correlation between cardiac arrest and having PVCs or other kinds of ectopic beats while cooling off from exercise.
Wondered why you were putting on the act - now I get it! You're not picky, are you, Sanjay? I was joking about a "Pots Nut" but I was dead on, wasn't I? Two peas in a POD!
The brain fog 🤔🤔🤔 loosing everything, the words in your mind is not what comes out your mouth. Getting lost going to the PO 5 minutes from home. You’ve lived there a long time.
I would be curious if anyone could explain if they know why their POTS started or if they suspect any triggers? I started developing POTS symptoms along with many stomach issues after ivf meds, but no one can tell me if it's related.
i got psoriasis after strep and i read pots can be triggered by a virus, so that's possible. i've read a lot about covid triggering pots or pots symptoms. i'm honestly not sure how long i've had it, but i've had symptoms i can remember since 2006. when i read about long haul symptoms i thought that sounded like me and attributed most of them to autoimmune disorders.
Hi I’m 19 your an excellent doctor I love your videos. Heart disease runs in my family hard. I was wondering if you could inform us on how you keep your heart healthy. Like maybe exercise, supplements, sleep etc. I would love to hear from the best cardiac doctor himself.
The easiest but most impactful things I've done in my home was putting a shower stool in my shower and getting a barstool that I can sit on while cooking and doing dishes. But I think the most important thing is giving yourself permission to not be ok, and to need some extra help. For far too long I felt like I had to keep pushing myself beyond where I should have simply because I was still young and mobility aids were for "old people" or people who are "sicker than me". They're not. Give yourself permission to use what you need to use.
Very wise Anna...
Great for you!
Dr. Gupta is an exceptional Dr. He actually listens to patients and offers the much needed support in validating the fact that the patient is actually debilitated,, even though they "look good."
As a person with both POTS and ME/CFS (Canadian definition) I found that using a power wheelchair and stairclimber in my home was essential to my improving.
My MD didn't even like hearing that I used a walker with a seat. So many MD's don't listen to their patients and definitely don't understand the concept of "conserve to preserve."
In my case, conserving energy using power wheelchair allowed me to participate in life more and gave me additional "good days" each month. Eventually I my functionality improved so that I was able to discontinue use of the power chair when at home.
And years later I could leave the house without needing mobility assistance (on a very limited basis.) Post Exertions Malaise, however, causes setbacks and relapses, so caution must be used at all times.
See dr eric berg channel "hidden deficiencies in pots".
@@cherylallis2458 You may find some solutions...see dr eric berg channel "hidden deficiencies in pots".
Your humility endears you to us POTSies! Sometimes all we wish to hear from a doctor is an honest, "I don't know, but I believe you." You can't even imagine how heartbreaking it is to go through this, not know what it is, reach out to a professional, and hear, "Have you talked to a psychiatrist?" So many doctors have an attitude of, "I don't know what's wrong with you; therefore, I think you're making it up." So devastating!
Feeling for YOU sweet pea !! I can relate to your words xx
my EX Cardiologist totally ignored me in my consultation speaking Directly to my daughter.. WITH the words she as he read her my results after several time of been ignoredby him i Said out loud its me you shold be talking to WITH THAT he pulledhis chair closer to me pointed to my heart and said YOU MITE WANTTO CONSIDER ITS PSYCHOLOGICAL, there's nothing wrong with your heart ... I was shocked & I made a complaint and he basically denied it .. Arrogant springs to mind..
I was later diagnosed with hEDS and my b12 was as low as 11 . I'm now fighting for A Dysautonomia diagnoses as that's what's over taking my life
I'm sorry to hear so many are having the same issues with DR'S whom can't just say " I don't know "
Much love sent to you ❤
🥰❣️🥰
Thank you! I have POTS since 2016. It took me 3 years to get a diagnose.
My doctor doesn't know alot about it. I'm vegan, drink water, never touched alcohol. Trying to walk 10 minutes/day. I used to be a dancer, worked full time, always on the go. Took care of our house, cooked, baked, ran with our dog. Took care of my nephews. Now my body is letting me down. My husband have to do everything. I never wear makeup, just comfy clothes, my hair in a bun. Used to read 5-6 books/week. Can't read anymore. I miss myself, my old me. I never watch tv before POTS. So I don't miss that. Only the news.
Olivia...please turn off the news...it doesn't do anything except bring you down. How about Netflix watching comedies...listening to music with no words. It really helps in meditation . please take the doctor's suggestion and go within. I can so relate with you as I am in same boat only I haven't watched tv in 2 decades...sunshine is great...maybe take a lawn chair outside if you can and back in the sunlight...we need to surround ourselves with love and beauty and take in whatever spiritual gifts are available to us. It's grief...not being who we were before...but you have an opportunity to reinvent yourself...I know it's challenging...take one day at a time...one moment at a time!! Blessings to you...(((hug)))
@@goldie3602 Thank you for your kind and true words. I will not watch the news. Yes my husband can help me out in the garden. Not much sun yet here in Sweden. I'm happy when I can stand up and brush my teeth without fainting. I sit on the floor in our shower washing my long hair and skinny body. The thing is that my mother, my sunshine and friend died very suddenly in may 2017. I got even more sick and fatigue by grief. {Hugs}.
@@olivia6063 Oh Sweetheart! So much stuff to deal with!! thank God you have a husband who can help you out. So very sorry for your loss...My Mom died in 2005 so I totally understand. Do you use a walker to help you stabilize yourself while standing and brushing your teeth. I use a cane while I walk for balance. That is helpful. God bless you and keep you sale in His Arms!! Much Love Dear One...!!
@@goldie3602 Thank you sweetie. I'm so sorry about the loss of your mother. It's horrible to lose a parent. I use a walker when I have really bad days. I sit on it if I have to while brushing my teeth. When I have to go to my doctor or hospital I use a wheelchair. My husband is my rock, the love of my life. We have been married for 20+ years. He knows how I used to be, always on the go. Our love is so deep. He's the most caring and loving man I know. Blessings from Sweden sweet soul 🙏
May I ask why you can't read anymore ? I may experience the same thing
Oh my goodness. I literally googled York Cardiology fatigue POTS yesterday trying to see if you have another video and you put this video up today. Thank you Sanjay so so so much!!! I got long covid in Dec. 2021 and watched all your videos on palipitations. They provided so much comfort for me when I didn't know why my heart was pounding so hard all day and night long. Last month I got diagnosed with POTS and watched all your videos on that too. Thank you for all you do. Doctors in America still don't really acknowledge POTS. I have a doctor who believed me when others didn't. She tries her best but it is difficult at the same time. I have plenty of prescriptions for anxiety pills different doctors gave me, which I do not need because I'm not depressed, POTS is real, it's not in my head. I just wanted to thank you for your kind words and understanding, and for believing your patients. My fatigue is not well managed at all. I had to move back in with parents and I'm in bed most of the day. At 5pm I get up and go sit in the recliner. I do light excercises from bed and I'm just waiting till I can get up and continue my life where it stopped 3 months ago. I know things will be different but would love to work again. I wish I lived in England. I'd pick you as my doctor no doubt about it.
You may want to search for info on Heart Rate Variability and ME/CFS. It is so important that you don't push yourself too hard at the beginning. It could have lifelong consequences.
A Heart Rate Variabilty monitor and keeping your heart rate under your anaerobic threshold while exercising in bed can help you make progress without causing permanent damage.
I wish you all the best.
I don't generally trust doctors, but I have highest respect for this doctor
What a treasure you are to humanity! I wish all doctors were as kind and deep and caring as you are. Such a blessing!! And thanks do much...I haven't been diagnosed but have very similar symptoms so it helps a lot. Thank you both...lovely people!
This is such an important topic, so thank you for having me on to chat about this!
Two Fakes!
Having familial dysautonomia and naturally compensating for my symptoms through out childhood, never really knowing something was wrong. I just figured everyone must feel the same things. Being an adult and having events/episodes and being told I have anxiety...well I knew better and didnt buy into the misdiagnosis. Major life change 4 years ago when I was floored, unable to move, barely toilet myself, shower, dress, it was all I could do to just breathe. Existing in a shell of a body, losing my career, social connections, family, my life. POTS! I found you then and watch you now. I speak of you to others seeking information, even to other medical providers. YOU ARE A HERO! Validation is everything. Unfortunately with Covid and many new Covid related cases of POTS being diagnosed, I feel even more hopeful of knowledge and awareness. Hope that dysautonomia is studied, explored and a reset is discovered for the autonomic nervous system. I have no doubt I was floored due to lack of self care. Being a nurse, caring for others and rarely myself. POTS has been my wakeup and a hard one to manage but I'm making progress. I pray for all in the struggle to show themselves grace and practice self care. I also hope they find you! You gave me hope when I thought my life was at its end. 4 years into this, at 57, I am hopeful. I focus on myself, my 2 teenage children and 2 grandchildren (from my 1 eldest daughter) and I pray each day that am able to make progress and regain my life, while taking time to smell the roses and appreciate it all without being floored. Thank you! YOU ARE A HERO!
Thank you for being so thoughtful about what you have to offer POTS patients. Being believed, validated, supported, and respected is worth everything.
Very insightful and educational video. The human body is more fragile and more complicated than we can only imagine.
I like this Dr Sanjay Gupta more than the other one.
Brilliant video, I got diagnosed 2007 by Mr Sainsbury a heart specialist in Bradford and even then I was just told to add more salt to my diet but now I have arthritis pains in back, knees and heels but was diagnosed in 1996 with degenerative disc disease so that doesn’t help, it’s great to hear of so many others with similar issues.
What you say at the end about finding something beautiful touched my soul. I can honestly say my ME has made me a spiritual person however it took lockdown and shielding to absolutely understand that we are far more than our actions (I've had ME since '95, im a slow learner 😊).
What a wonderful Doctor ❤
This video has been such a blessing to me ❤️ you have verbalized so many things I have not beeen able to.
Thank you so much for this video, Sanjay. POTS patient here.
I wish I had a doctor that understood. I already dealt with chronic illness years ago with ankylosing spondylitis & fibro, changed my life and became an herbalist and massage therapist. The greatest event of personal transformation was getting sick, this time around I don’t understand any benefit I can gain as aside from pots that my DR had to google and doesn’t understand, I also have arthritis, several disc herniations and fibro again all after getting COVID in 2020. I know healing is possible but im tired of fighting.
I want to thank you for your videos and caring about people with PITS!
I wish I had a doctor like him.
this video is gold for POTS/CFS patients
I've been on modafinil. It was life changing. I had tried everything...rest, healthy eating, yoga, exercise.. my mental exhaustion was unbearable. I was able to write my Masters thesis once I began modafinil...and I graduated.
This is so encouraging and just exactly what I needed to hear today. Thank you, and God bless you.
Watched some of both your videos, they helped a lot when I first had POTs and didn't know what was happening to me. I have researched since and know a lot more, modified my diet and lifestyle and slowly getting better though still cannot walk, this was uplifting to watch.
Hi doctor! please make a video about vitamin B1 deficiency and beri beri. Many people don’t realise how common it is and how it can mimic many heart conditions!
Having an understanding doctor is so important, I have been struggling for some time to figure out things for myself it is extremely frustrating and exhausting, I have under gone quite a few tests lately, and hopefully I am getting to a place where I can accept and understand my health problems with the help of a pain specialist.
Never heard more relatable words in my life “it felt like a superhuman act to actually go through the entire day” it’s hard always acting like you’re fine like an average person when underneath it all you’re exhausssssted. That’s why I have to laugh when people ask my future plans. Hunny my future plan is to get through the day best I can.
Hi Doc. Could you talk about isolated diastolic hypotension? Everywhere I read says that it is a risk factor for heart failure. Im 20 and my blood pressure is often 115/57
Add more sodium to your diet
If I indulge in resting so much I have so much less energy. So I push myself to the point I just can't anymore and I find I can get at least some things done most days. The brain fog drives me nuts but I think there are times we have to push ourselves. If I sit down and rest, then I know for a fact I'm not getting back up.
2) another theory which may be responsible for the rapid heart beat is the autonomic system is stuck in the sympathetic part, ( as if we are constantly going to be attacked by the tiger in the analogy used). This leads to research on the vagus nerve from Brain to Gut. Breathing techniques can be used to reduce heart rate. A gastroenterologist could help. (Prof Epstein at Royal Free)
I am 4 months Long Covid myself, with POTS or IST (inappropriate sinus tachycardia) , fatigue and brain fog. Researching for myself . 65 yr old female. UK
In my case I was not overworking when I got POTS. I was already on Disability. So it took more than 10 years to be diagnosed. I am glad I finally got diagnosed but I am not sure what it is teaching me.
How did you finally get your final diagnosis after that many yrs?
@@rosannadana2922 I was reading the comment section under an autism video. Someone was talking about an illness that was more common in autistic people. They listed 10 symptoms. I had them all. I didn't usually Google illnesses but I thought that it was strange that I had all of them. So I looked it up. It fit all my symptoms. I saw a video about the poor man's tilt table test. I bought a pulse oximeter and did the test. My pulse jumped more than 30 beats. I went to my primary care doctor and told her that I had all these symptoms and that my heart rate went up when I did the test. She referred me to a cardiologist.
@@rosannadana2922 The cardiologist did a bunch of tests. More serious heart problems were ruled out and then I was sent to a POTS specialist who diagnosed me with POTS.
Dysautonomia and hEDS has been a slow dis-ease thats has now taken over my body .. i done too much been a single parent while trying to cope with my physical challenges.. And now im basically BUM bound and i live alone.. Im currently fighting the NHS to acknowledge my symptoms for Dysautonomia as a diagnosis is my goal for mental peace of mind. Only was diagnosedwith hEDS Januaryand fibromyalgia last November..
. AND yes Periods are when my symptoms are crazy .. cold weather and led lights are a huge trigger too.. I'm currently using a mobility scooter at the age of 44..
Meditation is so helpful alongside sound therapy from crystal singing bowls to tuning forks and listening to birds and water .. vegan diet and huge water intake also helps ..
I highly recommend anyone with Dysautonomia to aviod Tramadol and Morphine as theses drugs reacts badly with the body and can cause near heart attack, speaking from experience.
❣️. much love to all whom have physical challenges ❣️
I see you !!
Every little part of the day needs managing. Medication first thing, brush hair and maybe do makeup in bed while it’s kicking in (cleansing wipes!). Baby wipe ‘shower’ as well if im too tired for a real shower. Clothes that are easy. A flop/rest after putting on compression socks. An office chair in the kitchen that I scoot around on, and sit while waiting for kettle. On a better day, make and Freezie meals to microwave on other days. Medication kept upstairs and down to avoid stairs. Sitting on floor while brushing teeth. Kneeling while hoovering. Doing 5 minutes of housework then resting for ten. Attempt to do recumbent bike. Driving to the supermarket, sitting in car before going in, wobbling my way round, then rest longer in car after shopping to recover enough from lightheadedness to drive home. Nap or rest in the afternoon, longer if I have seen anyone or had a zoom meeting. Microwave dinner, or have a meal replacement shake. Sofa after dinner, then bed at 8.30pm
I feel like you just described my average day. Everything needs managing. It's all about the pacing.
Hi I’m 19 your an excellent doctor I love your videos. Heart disease runs in my family hard. I was wondering if you could inform us on how you keep your heart healthy. Like maybe exercise, supplements, sleep etc. I would love to hear from the best cardiac doctor himself.
Hi! Could you please give a list of the medicines so I can research more please and raise them with my doctor? Thanks so much
How do I keep a job!?!? And drive!?!? I don’t want a life that’s house/bed bound!!!! Help!!!!!
Evidence suggests that fatigue in neurological and autoinflammatory illnesses is tied to suppressed dopamine transduction in the prefrontal cortex. Medications that target that have been found to be helpful in cohorts of POTS and CFS patients although can worsen tachycardia in a minority.
I have IST, OH, POTS, but I have major breathing attack that those patients dont get and everything else has been ruled out. And Also I can’t eat because 6-24 hours later my heart rate spikes until I 💩. After I 💩 my heart rate reduced. So Gastric cardiac conditions you talk about is with the stomach but mine is in the lower intestines most definitely. My spine gets super stiff and even my testicles get tight until I pass a stool.
I take zenzedi 30mg 3x a day. It has helped so much with my POTS. I tried modafinil and it didn't really work all that well for me.
Can you do videos on the different types of POTS and what helps them specifically? I have hyperPOTS and some of the treatments are counterproductive. How can I exercise? Water and salt intake? Blood pressure increase upon standing? Would love to hear your insights!
Hi do you have this every day ?
I think I have pots
@@carmella88yes everyday game.
I have felt this way for so long especially since having covid.. I’m on beta blocker which I feel slows me down but have learned to get thru that but now can’t do much of anything without just feeling drained all day.. I take vitamins, diet, not sure how to get thru life now…I have brain fog, dizzy, weak am I long haul covid or pots or both?
He has a video about long Covid.
is it ok to take magnesium glycinate for POTS ? Also will it create kidney stones after regular use?
yes my symtoms and tachycardia mostly has improved . i manage mine by shooting for 100 fl oz of water a day, in mornings i have to drink 32 fl oz in order to not have tachycardia , i have hypo volemic pots and currently take propranolol 10 mg as needed mostly in mornings, my main symtoms are tremor left hand, weakness fatigue. some days are better than others i usually have a good day then not so good day.
Any side effects from the medication?
@@carmella88 not for me
Modafinil affected my tachycardia/AF.
I've taken Modafinil. It's ok. It's no substitute for real rest. If I'm tired, it might help a little nut it feels like a mask.
Thank you 🙌
My problem is that the things that give me energy, also take it away. I need very strong coffee and 5 mgs of Adderall to even function. But after a couple weeks doing that, I feel worse than before I started. :(. I feel like I can’t win.
It’s just so distressing that there is no progress made with this condition, or too little. We shouldn’t be at this point. We should, at least, understand how POTS is caused; by what mechanism. It’s just discouraging.
Hi sir
Pls help me out to understand , I have gone for CT abdomen while contrast istarted feeling Bee is biting and I woke up and fainted, docter given me CPR as they were saying u had low pulse and bp, after waking up I am ok, my all votes ok 2d echo, stress test all ok. Pls help to understand what happend to me it was syncope or other thing, is there any life threat in future. I feel like I am in post trumic stress. Feeling very scared. Thank you if any one help. God bless
After I got COVId my heart rate would change by about 40bpm just from getting out of bed. My Dr just put me on a beta blocker because the tests are expensive and my insurance sucks. Sense then my energy level has gotten even worse than it was before. I have said for the last 15 years that I have CFS, now it's even worse.
I push myself to do what my family expects and or likes and then I feel awful and exhausted! I wake up day at 3 am and I’m wide awake !
I wanted to give some thorough feedback on this video as a fellow POTS sufferer. Other specialists may turn to this video for advice on how to help their POTS patients - to advise them that they can get better if they manage their lives in a certain way. We are always told “you have to learn to live with it,” so this is nothing new. However, you also state that medication should be used as a bridge to get to a place of self-management and self-compassion, love etc, and I find this a potentially damaging statement to make, as not every POTS patient can or should go without medication, especially given that many of us suffer from other comorbidities and have other risk factors when it comes to managing illness.
Managing life in a certain way or relinquishing all or most responsibility, and only doing what we enjoy, is just not realistic.
Saying medication should only be used while people are “getting their lives together” places the onus on the patient to get better on their own.. All this does is inflicts a sense of guilt onto patients who stilly rely on medication; patients think they are not doing enough, or it’s their fault that they still rely on medication (they are not trying hard enough, organising their lives well enough, or as you say it is “too difficult for them to visualise” how to delegate responsibility).
I have been suffering with POTS secondary to Ehlers Danlos Syndrome now for 10 years. During that time, I have quit medication on my own terms several times thinking I would be able to “manage on my own,” only to become very unwell again because of course my symptoms returned with vengeance. It is not possible to say, “I am going to do less and own less” and have my symptoms/ fatigue just disappear. Wouldn’t that be great, though! I am still going to faint if I stand up too quickly. Doing less is not going to stop that from happening.
Without medication, I am going to run my body down to the point of having no energy to lift my head off a pillow, even if I had no responsibility, stress, belongings/ pets/ people to look after. Being alive, standing up, walking, eating, taking a shower, getting dressed is going to be enough to run my body down over time with POTS and debilitate me with fatigue for long lengths of time. And the response of doctors then is going to be that I need to do more and be more active or I won’t get better. How confusing is this!
There is nothing magical and wonderful about being ill, missing out on education, family, career etc, and living with the guilt that I haven’t done enough to fix myself, and it is my fault that I am achieving less than others. For me, this video reinforces those negative feelings I have and only strengthens my feelings of failure in that I have failed every time I have tried to self-manage my condition and will probably always fail because it is not possible to cure an illness by just being compassionate to yourself and “self-managing.”
So, I’d like to suggest other ways for doctors to help. Doctors can help patients more by advocating to other less knowledgeable health professionals and specialists. Medical gaslighting is extremely prevalent and is causing serious stress and even PTSD to patients, especially those who meet a certain criteria (female and young). You talk about relieving stress, but stress caused by medical professionals is a stress that patients cannot alleviate or delegate to someone else. Advocating for research funding and a cure, rather than expecting patients to liberate themselves from life would be a much better approach for a doctor to make. Putting time and energy into educating health professionals and advocating for more research and treatment options, links between genetic conditions such as EDS and its other comorbidities (etc etc), I feel would be a much more rewarding path to take as a doctor, and would give much more hope to patients.
They are not saying any of this to make you feel guilty. They are just listing things that help. And no one ever said you are some kind of failure if you have to stay on medication. They just state that it is another small goal if you can manage it.
If you can’t then you can’t, but, blaming them is not helpful. There are no other known treatments that can alleviate constant fatigue. She is only recommending what can be done or, what is possible.
It is only a 24 minute video, and the goal is to help viewers understand what changes they can make to alleviate stressors, not to fix every doctor and all medical establishments.
The title of this piece is accurate in terms of the depth and scope of what was covered.
Beta Blockers major side effect is fatigue! Beta Blockers should never be the 1st medications used for any kind of dysautonomia. Invabradine should be. But also looking for the cause. I suggest a referral to an Interventional Radiologists to look for vascular compressions shunting blood return to the heart or Pre-load failure..
as value as this information might be to some it’s just not practical for someone with young children. I wish there was a way for me to combat the fatigue while not letting impact my job as a mother, partner, and home keeper. I hope one day the research will give us a way to heal.
I have POTS, but this is unbearable i feel fatigue easily. I am not sure if this fatigue is truly related to POTS because i can barely do other tasks.
I have bp of 140/65 is that a problem at a age of 30 with bicuspid
Does anybody dies from POTS? Cuz sometimes i think my Breathlessness is gonna kill me. I thought propranolol would put a final dot in this, however, it hasnt. And its very random. Sometimes i cant do the minimal exercise cuz i will have shortness of breath, some othertimes i could go to a concert and stay 3 hour straight standing on my feet and feel nothing.
Hello Sir Iam from india,
I thank you for educating us about all these thing❤. Iam suffering from heart palpitations for about a year now and Iam recently came to watch your videos about all these stuffs and magnesium. Does heart palpitations due to anxiety or stress can be cured completely? Does any people cured from it completely with zero palpitations please reply me sir Iam suffering a lot 🙏🙏🙏🙏🙏🙏🙏
Potassium citrate and drinking more water. Stress will drain your Potassium and dehydration will cause it . Don't take to much magnesium.
@@becksbitofblue Thank you ❤. I didn't start to take any supplement still now. Many people only suggest magnesium but does really Pottasium helps in palpitations? Do it makes me completely get rid of my palpitations?
@@becksbitofblue my serum potassium level was 3.6 it's normal but in border. Do I need any potassium supplement? Please kindly reply me.
@@becksbitofblue for me also the same please explain us in detal about this potassium and your experience in it 🙏🙏🙏🙏
@@lilyrose2811 watch dr berg I learned from him potassium is very important we need minimum 4700 MG but like me I jabe stress so I suck up more. I needed 9000mg an day. Now I go between 5 and 7. I use potassium citrate. Also drink water dehydration will cause same issues
how can i contact you please i have coronary slow blood its killing me everyday
You are trying to understand your patients instead of reading the numbers! Today I just told to my doctor that my BP was okay but I am experiencing severe fatigue. She said then there is no reason to feel fatigued and she just directed me to psychiatrist 😢
Thiamine is the missing link … take 400 -600 mg a day and the fatigue will disappear. Thiamine deficiency is under diagnosed. It is the powerhouse of the mitochondria in the cells.
Would you consider doing a video on post workout recovery ectopic beats? I have read that these can be serious.
I had ectopic beats on my holster monitor. Do you have any more information
@@carmella88 on post workout ectopics?
@@bluestorm9651 i guess i dont know the difference. My holster monitor said something about ectopic beats
@@carmella88 Did your doctor bring it up? This TH-camr has a lot of stuff about ectopic beats. Speaking from my own situation, they wouldn't do anything because I have such a low heart rate. The medicines they normally give like calcium channel blockers (and I can't remember if it's alpha or beta blockers) will lower heart rate.
To my understanding ectopics are not really considered a concern unless the threshold is heading towards 10% which I guess would be like averaging six ectopic beats every minute on a person with a 60 beat per minute heart rate.
This York cardiology guy says as long as your heart's structure is okay ectopic shouldn't be anything to worry about.
I brought up the post exercise ectopics because I had read somewhere that there is a correlation between cardiac arrest and having PVCs or other kinds of ectopic beats while cooling off from exercise.
@@bluestorm9651 thank you for that explanation. I have so many unanswered questions. I dont see a cardiologist for another month. 😭
Wondered why you were putting on the act - now I get it! You're not picky, are you, Sanjay? I was joking about a "Pots Nut" but I was dead on, wasn't I? Two peas in a POD!
The brain fog 🤔🤔🤔 loosing everything, the words in your mind is not what comes out your mouth. Getting lost going to the PO 5 minutes from home. You’ve lived there a long time.
I would be curious if anyone could explain if they know why their POTS started or if they suspect any triggers? I started developing POTS symptoms along with many stomach issues after ivf meds, but no one can tell me if it's related.
Yes it’s related . Lack of appetite and bloating are symptoms of POTS
I started having POTS symptoms a few weeks after contracting COVID one year ago today.
@@kimmaddin4714 I've heard that from a lot of people. You're not alone.
@@kimmaddin4714 covid for me too. December 2021
i got psoriasis after strep and i read pots can be triggered by a virus, so that's possible. i've read a lot about covid triggering pots or pots symptoms. i'm honestly not sure how long i've had it, but i've had symptoms i can remember since 2006. when i read about long haul symptoms i thought that sounded like me and attributed most of them to autoimmune disorders.
🙏🙏🙏
Sir please my am feeling electricity in my heart
Someone should do a sleep study on us
Anyone also fet brain zaps like there brain vibrates for a dew seconds
👑💝
🙂
can't understand what this woman is saying.
Resting more and lying around is not a good idea.
◄ Acts 16:31
They replied, “Believe in the Lord Jesus, and you will be saved-you and your household.”
Hi I’m 19 your an excellent doctor I love your videos. Heart disease runs in my family hard. I was wondering if you could inform us on how you keep your heart healthy. Like maybe exercise, supplements, sleep etc. I would love to hear from the best cardiac doctor himself.