Brain Tumor Webinar: Living with Optune (Tumor Treating Fields) for Glioblastoma

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  • เผยแพร่เมื่อ 25 เม.ย. 2023
  • Guest Speaker Janice discusses what is it like to live with Optune (Tumor Treating Fields) for glioblastoma. The webinar was hosted by Akanksha Sharma, MD, Neuro-oncologist at the Pacific Brain Tumor Center at Pacific Neuroscience Institute.
    May is Brain Tumor Awareness Month. We “Go Gray in May” and celebrate our patients, their loved ones, and their important journeys. Our brain tumor patients and their loved ones often report that they feel unseen, overshadowed, and isolated. A “rare” or “uncommon” diagnosis of a brain tumor can be challenging in the extreme, but may not be externally visible in its signs or even in its treatment side effects.
    During Go Gray In May, we host a series of educational, informative, and fun events for our community to interact, socialize, express themselves, ask questions, learn about specific topics, and share their own experiences.
    For more information on brain tumors and tools for coping and resilience, contact the Pacific Neuroscience Institute today.
    PacificNeuro.org | PacificBrainTumor.org
    310-829-8265

ความคิดเห็น • 17

  • @janeckrote3958
    @janeckrote3958 9 หลายเดือนก่อน +2

    My husband was diagnosed April 2021. Had surgery and began optune 2021. At this point Sept 2024 my husband is tumor free. Has had 2 surgeries radiation, chemo, one seizure and small stroke. Is weaker than before and uses a walker, cannot drive and cannot do many of the things as before but he is still with us.

  • @Toomanydamnchannels
    @Toomanydamnchannels 8 หลายเดือนก่อน

    My cousin was recently diagnosed with GBM. I’ll make sure she watches this when the time is right. Thank you

  • @rikadyah263
    @rikadyah263 ปีที่แล้ว +2

    ❤ thanks Janice for sharing your story...how you keep your spirit to be tough and survive to go thru all the process ..makes me feel energized to take care my son who had diagnozed Craniopharingioma

  • @juangalvan7008
    @juangalvan7008 11 หลายเดือนก่อน +2

    I'm getting used to it I have the same device ❤❤

  • @lorilanford9247
    @lorilanford9247 6 หลายเดือนก่อน

    Thank you so much for sharing your experience. My husband is about to get on the program and we’re really scared about what to expect and your video has helped us so much. Good luck on your journey. Thank you again for being so open.

  • @user-wf4vy1lt4m
    @user-wf4vy1lt4m 5 หลายเดือนก่อน

    Thank you for the information. I'm hopeful I will get one next week.

  • @robertrockwell7581
    @robertrockwell7581 9 หลายเดือนก่อน

    my sister at 62 was just Diagnosed with two tumors 6 week ago and has chosen Chemo and Radiation.

  • @VB-qn6io
    @VB-qn6io 9 หลายเดือนก่อน +1

    Did you here about Joe Tippens (fenben)

  • @jamilaricc7911
    @jamilaricc7911 ปีที่แล้ว

    أود أن اعرف كيف حصلتي على دالك الجهاز

  • @kamranzaheri3016
    @kamranzaheri3016 3 หลายเดือนก่อน

    I've made a glioblastoma guideline for a friend suffering from grade IV GBM. In addition to standards it includes 60+ relevant supplements, Hydrogen therapy, mushrooms, magnet therapy, Optune therapy, diet, sound wave therapy, educational info and much more. If anyone is interested in a free copy let me know. Thx, Dr. Zaheri

    • @trivedi889
      @trivedi889 หลายเดือนก่อน

      Please let me know. I am interested

  • @janeckrote3958
    @janeckrote3958 9 หลายเดือนก่อน

    Sorry, meant 2023 not 2024.

  • @janeckrote3958
    @janeckrote3958 9 หลายเดือนก่อน +3

    My husband was diagnosed April 2021. Had surgery and began optune 2021. At this point Sept 2024 my husband is tumor free. Has had 2 surgeries radiation, chemo, one seizure and small stroke. Is weaker than before and uses a walker, cannot drive and cannot do many of the things as before but he is still with us.

    • @Sahnequeen
      @Sahnequeen 2 หลายเดือนก่อน

      All the best to you ❤

  • @janeckrote3958
    @janeckrote3958 9 หลายเดือนก่อน

    Sorry, meant 2023 not 2024.

  • @janeckrote3958
    @janeckrote3958 9 หลายเดือนก่อน

    My husband was diagnosed April 2021. Had surgery and began optune 2021. At this point Sept 2024 my husband is tumor free. Has had 2 surgeries radiation, chemo, one seizure and small stroke. Is weaker than before and uses a walker, cannot drive and cannot do many of the things as before but he is still with us.

    • @Cristina-qn2in
      @Cristina-qn2in 6 หลายเดือนก่อน

      Is he still using optune ?