My Dad is Dead - The Sick TRUTH of Glioblastoma (Brain Cancer)
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- เผยแพร่เมื่อ 3 มิ.ย. 2024
- If you missed it, here’s my last video explaining my dad’s diagnosis and cancer journey: • Glioblastoma (Brain Ca...
You can support me on my site: AJWriting.com
Warning! This video contains detailed descriptions of caring for my dad, who died from glioblastoma.
0:00 - Introduction
1:00 - The last birthday
3:40 - Two or three months left to live
5:30 - The time my dad fell
7:26 - Lots of lasts
9:12 - Hiring a caregiver
11:19 - The difficulty of caregiving
13:55 - Dehumanizing my dad
14:50 - Terminal lucidity
16:42 - Conclusion - วิทยาศาสตร์และเทคโนโลยี
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As a hospice nurse I have to say what a beautiful son you are. Your story is so emotionally filled with truth. I'm sure you were a hero in his eyes.
I'm sure your dad was proud of you. He raised a good, selfless man.
You must get it from him. Imagine knowing you have a very limited time, and yet you spend hours of that time picking out the perfect gift out of love. That's touching and brings tears to my eyes.
God bless you and your family.
Thank you. I really was so touched that he was that focused on getting me a final birthday gift. I had to re-record that part of the video because it had me in tears.
Yeah that part nearly made me tear up a little bit myself if honest. Rest in peace to his father. No doubt he passed very proud of his beloved son.
I'm so sorry for all you have gone through. I nursed my husband on home hospice, mostly alone, and my once 6'4, athletic, bicyclist, camper, hiker - lean, fit sweetheart became a diaper wearing, emancipated-looking, steroid moon-faced man I hardly knew. Bed bound and 95% mute.
It's sadly, it's all something that has to be "lived" to be "understood" - I believe. NOTHING could have prepared me for watching my husband actively die over MONTHS. And I had been a nurse, so I'd been exposed to a lot.
I'm just so sorry to my core, for anyone going through this. xxx
I’m currently going through it with my husband. He’s finishing radiation, but they think that is not working cause he had another seizure and lost vision on left eye, I do t know what to think. We have four kids and it’s been so hard on them
Mygranddaughterisdyingfrom
Gbmsheis28yearold❤❤❤❤
Sorryaboutyourdad❤❤❤❤
Would you support “death with dignity” laws? Allowing a dying person to die while they can make the decision they are ready to go? I don’t think anyone should be forced to die in such a brutal way if they don’t want to. It should be their choice in my opinion.
I am here because my brother has 3 glioblastoma tumors and I want to know what to expect. He was diagnosed in April 2023, 8 months ago. He was told 2-4 months without treatment, and 12-14 with. He went through chemo, 32 days of radiation, more chemo with Optune device, and now Avastin infusions. His memory is somewhat going, along with peripheral vision. Recently, his scans showed significant improvement. He is still working from home and enjoying family, friends, and some travel. We are told that he will likely have life-changing seizures soon, and to say our goodbyes now while he can respond normally as himself. Our parents, his wife, his kids, my husband and kids, ugh this is so sad. Thanks for sharing this information.
my mother also suffering from this its been 2 years now she cant speak now can stand and its hard for her to eat also
My father lived 21 months after being diagnosed with Glioblastoma honestly he had the will to live so we did everything we could to keep
Him alive. Up until his last month is when he lost his mobility and he stayed coherent till the end. He passed away in peace with his loved ones all around
Every lawmaker in the US should be required to listen to your story and 10 more just like it and then write an detailed explanation why they think physician assisted death should not be legalized.
They won’t do it because they are only politically motivated and they get religious bs from evangelicals. We have to be
louder than they are.
My grandfather died from glioblastoma. He lived 6 months from diagnosis to death. He had radiation, and had surgery. After surgery he was never the same, and this was early on. He died at home. There was no hospice back then so we took care of him in a hospital bed. Bless you.
My mother had the same (only radiation though, no surgery) and also had 6 months from diagnosis, she was 55yr old 😮
i feel your pain. this happened to my dad also
Both my biological father and my adopted father died of GBMs. My biological father actually lived 6 yrs and died of an MI. They did pathology after death and indeed it was a GBM. He had some kind of cobalt implant in Switzerland and I have no idea if he had any other treatment. He did lose his short term memory which was pretty awful for someone with an IQ over 200. My adopted father died in November 2022. He survived 9 months, had everything possible done and died fairly miserably as your father did on home hospice. I had to pronounce him and push his morphine as my mother fired everyone, including the hospice the last week of his life. I have genetic end stage lung disease awaiting bilateral lung transplant and needed to be in the hospital but instead of being in the ICU, I left AMA to care for him in his last few days. I get what you mean about the divide of who he was and who I had to make him be to get through it and take care of him. It is almost unimaginable what you have to go through to care for someone you love in their last journey. You did an amazing job of it. I am so sorry, but glad that you were able to have the acknowledgement of his love for you as well as his appreciation of you as a son and a person who loved him to the end ❤
My Brother was the same. He lived for 18 month after diagnosis.. Had surgery, radiation and chemo.He seemed to really deteriorate after the Radiation.
My brother has this and is not doing well. Diagnosed in October 23….I wouldn’t wish this on my enemy. He decided no chemo or surgery. For the families that have to deal with this, just be patient with love. We have hospice already in January/Febuary. I’m hoping to go fishing 1 more time. Just love.
Sending love to you and your brother ❤
I’m SO glad he let you know how much he loves you before he died ❤
My dad died from brain cancer when I was 14 and he was 39 yrs old. I dropped out of school to take care of him. He was given 6mo-2yrs to live after they tried to remove his tumor. Towards the end of his life 18months later, he did not know who I was and only one side of his body kind of worked . It was too much for a kid. Having bite sticks taped on the walls everywhere, so I could grab and stick it in his mouth when seizures happened. One seizure he had, I went flying through the closet door and dislocated my shoulder. Hospice nurse came and she was changing his catheter. She got it stuck in wrong and he was crying out in pain. I was home and I called the ambulance. They came and took my dad and the hospice nurse to the hospital. I was told that they would be back in a little while. My dad died that day at the hospital. The hospice nurse had given him double the dose of morphine that he normally takes when she was trying to fix the catheter. At the hospital, they gave him a shot of morphine. He died of an OD.
I'm so sorry for your loss.
@@kathybaran2721 thank you. That was the years 1982-1984 . It took me almost 10 years to put the guilt to rest. But I miss him so much. He was the light of my life. I wish I could have known him in my adulthood.
WE GO FORWARD…. That’s our job as survivors. 🌅
@@shayna.e.111It took me ten years to accept that the mistakes which caused my mother to pass prematurely were the result of people just being human. There were lots of mistakes by medical people, but the worst part was that there were people that hid their mistakes which caused moderate encephalopathy from wrong medication dosages.
When my father became ill, my mindset was to always work as a team and be incredibly knowledgeable about every diagnosis and drug given.
For both of my parents I was their caregiver 24/7. I am still grieving the loss of my father; however, I know his death was not due to neglect by people who couldn't care less. Accepting someone knowingly hurt my mother is extremely painful. Making sure that it didn't happen to my father too was the only way I could make sense of how I could still help my late mother.
My dad seized in February 1976 and died that April of a GBM. I was 11 when he seized. I remember the hiccups. He tried to laugh it off so I wouldn't be scared. They were very deep and loud. The last time I saw him he was in a wheelchair at the hospital and was all black and blue from the radiation. This video helped, even after all this time, thank you.
What a terrible end for your dad. He deserved so much better-most everyone does. But you and your family did everything you could to help him. That’s love. 😢
Hi AJ, thank you for sharing your story. My husband died of glioblastoma eight months ago. Whatever you went through I did, but I was the sole caregiver for a long time. Luckily, I had two full-time nurses during his last 4 months and they were amazing. My mother-in-law also helped to care for my husband in his last months. I just want to let you know that for the very first time since my husband's death, I feel somebody completely understands what I went through. You are so articulate, you narrated the journey so well. Thank you! Please know that I am thinking about you and praying that you stay strong.
Hello. I’m so sorry that this happened to your husband as well as you and your family. I will be my sister’s caregiver when the need arrives. She is 75 year old widow and I’m 78. Her diagnosis was 8 months ago and she is following the standard of care. If stats are correct, she’ll be gone before the end of the year. Right now she’s doing well; the tumor has not regrown and she’s doing well on the chemo. I’ll need help from a trained nurse to manage her care. She’s depressed much of the time - knowing “the train” is slowly coming down the track aimed for her is, well, you know. Right now I can’t fathom any of it, but I’ll be there for her.
We all have an inherent will to live. However, my aunt recently died after 2 years of glioblastoma. Now one year after her death, my uncle has it. They spent a lifetime building a family and wealth. All to drain that wealth and having my cousins and family having to go through this again. It isn’t worth it. I will not put myself or my family through this if I ever get it. I will end it before it gets to that point. There’s no greater act of love
That reminds me of a book title I saw at the library long ago. It was called "Common Sense Suicide". I have a Sweatshirt I often wear proudly even though I only half believe it. It says: " Have Faith "..
Its not for everyone. Its for some and you know what is right for yourself alone.
I'm sorry for the loss of your father. Glioblastoma is a horrible disease. My late husband had it. He lasted 14 months from diagnosis to his death. The cancer didn't ultimately cause his death, he had a pulmonary embolism while in orthopedic rehab. At the time, he was preparing for a 3rd surgery and was on Avastin. You did everything you could to help your father through his last days. That's all anyone could ask. I did the best I could and I have no regrets. The last thing I ever said to him was on the phone the night before he died. I said "See you tomorrow. I love you." and he said. "I love you too."
I so appreciate your honesty. I am a nurse and always say caregiving is the hardest thing a family member can do for a loved one. It is exhausting emotionalIy, spiritually and physically. You are a very good son. I am so sorry for your loss.❤
My dad's in his last days or hours of this same illness too. A lot of your father's journey is almost exactly like my dad's right now. As of writing this, he's still just snoring in a deep sleep. He first seized in July, confirmed diagnosis in September, and now it's here. We know it's almost time.
Thank you for sharing this story about your father. He sounds wonderful. I'm so sorry for your loss.
You were an incredible caregiver. INCREDIBLE. I took care of my dad in his final year and found out that I could wipe his hiney without flinching, because he needed it. I miss him terribly. I feel that disconnect too. My dad was a mayor of our town, very dignified. No one knows all of what I did. I was holding his hands when he left this world. Fortunately he never suffered cancer. He was 97 and lived a wonderful life. Your dad had a marvelous son. Thank you for the education of us. (I asked my father if there was something he wanted to tell me, he nodded, and I said what? He whispered I"I love you.")
You are a wonderful son. You should be proud of yourself.
My 13 year old nephew just died from diffuse midline glioma. Brain cancer, all cancer, is heart breaking and dreadful. I'm so sorry for your loss
my father died in 1999 of this. he was diagnosed in feb and died in october. in between he had radiation, chemo and surgeries. in and out of hospital. he swelled up like a toad, didn’t even look like himself. towards the end, he would get so frustrated bc he wanted to form thoughts or simple math and couldn’t. i have empathy for anyone who has experienced this whether personal or family caretaker. God bless.
My dad also died of a Glioblastoma. I was trained as a nurse and I was the child who really took care of him -- at his end. My older siblings would come around to give me some breaks but when it came to medical, I was it. Yes, we did have Hospice. the Hospice Nurse told me how to kill him with the medication provided. I decided to make her MY assistant. I was definitely not her assistant. I even tried to fire her but she would not leave. Oh well. We did find some guys to help us. We needed lifting ability for my dad but at the end, I, and I am a female, I was the one to lift him to a chair and placed him back to his bed. Two guys, individually, dropped my dad. I wouldn't drop him. My rationale for my not dropping him was My dad NEVER dropped me so I could NEVER drop him.
You took care of your dad in ways you would never think you would but you did. You should be very proud of yourself.
We, children, do not remember our parents taking care of us when we couldn't walk, talk or "function properly." They just took care of us because they knew they had to. They loved us because God gave us to them to care for us.
Then many, many years later ... it becomes our turns to take care of them and we do.
Before my mom died, I promised to her I would take care of my dad. I made good on my promise to my mom.
My dad NEVER wanted to be a burden on anyone. In fact, he told me if I ever saw him on a ventilator, he said he would want me to "pull the plug." Well, I saw him on a ventilator. He was extubated (taken off the ventilator) and things turn a turn. In my mind, he started to live out his story of LIFE and I got to be a part of that story.
As did you.
My dad died almost 4 years ago. I miss him every day.
My sister thinks I am crazy when I say that my dad and I had a love story. My dad had love stories with all his children but I was the only one to really know that fact because I was THERE with him.
As were you.
I would tell my dad that it is a pleasure, a privilege and an honor to BE with you ...because it was.
My sister, I know, feels guilty because she couldn't BE with him as I was able. She turns her anger onto me -- even now.
I did what I had to do. I feel no guilt or remorse and neither should you.
Alex, we did good!!! We ARE good!!!
Your dad would want you to know that. He raised a REALLY good man.
Your mom must be SUPER proud of you, too. Take care.
I went through this exact same hell 17 years ago. I'll never forget the utter feeling of complete and total helplessness I felt ..not being able to do a damn thing to help him in the least.... any other problems in life you ever have, you just fix them. There was no fixing my dad. As badly as wanted there to be a way.... as much as I prayed... well. Sometimes I guess God just says no. Not many people can truly understand what you went through....But sadly, I truly do. Blessings. Xo
I’m so sorry. Your Dad loved you so much. It’s OK to feel relieved, angry, and guilty. I just watched your 1st video on this. Know for certain, you did your absolute best (way above whatever ‘the bar’ is!) in caring for your dad, and he (and your mom!) knew that.
EVERYTHING you said about caregiving and caregivers is 100 true. It's almost impossible, it truly is.
My Dad passed 2 days ago with this. He was smiling as I spoke to him 12 hours before. He still recognised my voice😢 Saddest day of my life so far.😢😢
Well done good and faithful Son! My Mother had Glioblastoma in a similar area. She elected to undergo a surgical procedure to remove as much of the tumor as possible, and then Chemo via pill, and targeted radiation. All in all she had about a year post diagnosis... towards the end, her quality of life was not good, with memory, vision, strength and mobility issues. Anyway, in regards to your story and your father, I am sure he loved you very much, and was deeply appreciative for all of your help and support!
I am so sorry for your loss. Nothing prepares you to look after someone you love with glioblastoma. My husband became ill when he was 49 and lived 11 months. He was brilliant and it seemed such an insult that his brain was failing him. Our children were only 12 and 14 and it was very hard on them. It still is. He was such a great dad and husband!! One of the hardest parts was when he couldn’t communicate verbally… you well described the guessing/cueing that we use to figure it all out. Sometimes a light in my room will go on and off and I smile because I know he’s with me. Blessings to you as you carry on.
I am so sorry for your loss. My mother was diagnosed with the same, a Glioblastoma, grade 4. Diagnosis to death was 11 months. It was heartbreaking. It is such a devastating diagnosis. I took a leave of absence from work for the last 6 months of her life. The surgeries, the radiation, chemo, all just pointless until he made the decision no more. My mother was such a vibrant, independent woman and watching how this cancer reduced her to a wheelchair was unbearable. It has been 30 years since I lost my mother but I can still be reduced to tears just talking about her. Again I am so very sorry for your loss.
Please know that the level of care you gave him, although sometimes you reflect on it and don’t feel good about it, it was far better care than what he would have received outside of your home. You gave him the biggest gift.
My husband was diagnosed with GBM in mid-March 2020. I was his caregiver through his first surgery, radiation, several types of chemo including a clinical trial that was in phase 3. Then another resection. And Avastin. He never complained once. He kept trying his best every day. It was extraordinary, and extraordinarily sad, but he was completely stoic. He lived for 17 months after diagnosis. He was 65. I was numb for a very long time, and haven’t completely found my way back, although I am trying.
I lost my dad to this horrible disease and had to do it in a whole other country with horribke health system. The hospice nurse we found was a true angel to us. You put into words exactly how i felt...my dad (who was a horribly difficult person at his best) became an object ibhad to take care of. It feels that creating that separation has made it difficult to grieve. I know he is gone...but ive been grieving my real dad for over a year...now its just the object that is gone. This life can be cruel...thank you for this video...i didnt know i needed it...but man...your words were gold.
Thank you for sharing your story. I lost my mom to cancer. The home hospice was the most exhausting experience of my life. But I’m glad we did it. It gave me time to be with her and she did not have to grapple with strange and scary environments surrounded by strangers. Unfortunately, the following two weeks of funeral and other planning only added to that exhaustion. Of course there was the extreme emptiness, sadness, shock and the guilt of being grateful the ordeal was coming to an end. Allow yourself time to recover, mentally and physically. Please get some comfort in the knowledge you have been an amazingly loyal son for performing the ultimate duty: helping your father cross over. You’ve carried yourself with honor and love. My condolences to your family.
So sorry for your loss, you are very articulate and pleasant to listen to, I lost my mother to glioblastoma when I was 27, she had 3 months to live from diagnosis and lost her ability to speak and make sense upon diagnosis, that was her first and only symptom in the beginning, we couldn't communicate and and she seemed very angry and disgusted with me, it was heartbreaking. She lived exactly 3 months going straight downhill.
Our beautiful daughter in law passed away 3 weeks ago with this horrible disease. This was just 16 days after diagnosis. She was only 42. We are all bereft. It was so quick.
So similar to my Dad's battle with glioblastoma. I feel for you and your mom. It's a miserable, lonely, and thankless experience. The only reward is that it ends and you're left with your guilt and grief.
I hope his passing was as peaceful and beautiful as possible. My deepest of condolences.
What a good son you are! And very sorry for your loss. I lost my mother to lung cancer 4 years ago. I was with her when she died and all the stories about care givers and taking care of a parent really hit home. My mothers death was less traumatic. Only the last month was difficult. So I commend your long haul perseverance. My sister was diagnosed with GBM almost 2 years ago. So far she’s ok. Scans every 2 months and she’s understandably anxious about what might be coming. It’s a horrible illness
Thank you for sharing this. I went through something similar with my mom who passed away last week. Thank you for articulating so well the experience. You have nothing to feel guilty about-your dad wanted to make sure you knew that. Love to you and your family. ❤
I'm sorry for your loss.
My dad nursed my mum until she died of cancer she was 68 then he got diasnoised with glastoma an me and my partner nursed him he went from proud working gardener to a man unable to walk hold his bowels and communicate he was an amazing dad and if there were more in the world like him the world would be a betterplace ❤
My father is diagnosed with Brain Tumor on 22/11/23. MRI report says it is Glioblastoma Multiform . That time, we were not sure whether its Normal Tumor or Glioblast Tumor. Several tests had done(MRI, MRA, MRV, CT-CHEST, Abdomen, blood test) lastly we did Biopsy.
itz Glioblastoma multiform grade 4.
We r now sure its GBM-4, Biopsy report says.
Though we r going for review.
Biopsy Review from different hospital-done.
Its GBM-4 and we have no hope.
My father died on 01-01-2024. He survived for.1.5 months after diagnosed.
I tried, all the best option for him.
But nothing helped.
Please, pray for my Abbu (dad)
Thank you for sharing your experience. I lost my Dad last month at 92 but basically from just old age. So much of your Dad's experience reminded me of him. I live in another state and my Dad, fortunately, took out a good long term insurance policy so he had good care. Still he was depressed, angry and many of the things you described. I'm 67 and have a phobia about death. It scares me. New Hampshire is trying to pass a dignity of death bill and I hope it does pass. If I ever had a terminal disease and it got to an unbearable point I think I would want to end my life. Your video describes in detail what his journey (and you and your Mom's was like). I never want to go through that. Thank you for this honest video series. You were a great son!
My husband’s relative was diagnosed with glioblastoma in his mid-30’s. He used the Optune unit & other treatments and lived for 8 1/2 yrs. He recently passed & his 10 yo child eulogized him at his funeral. He was a sweet, gentle, kind man.
What is optune unit?
I lost my dad in February 2017 to glioblastoma 3 days short of 9 Mos from his diagnosis . He chose surgical debunking of the tumor n radiation in hugher levels vs chemo seeking quality of life over quantity. We were able to keep dad home til the end as per his wishes. Losing someone you love so quickly when they were living life healthy just days to was pre diagnosis. As a nurse it was easier to go into caregiver mode at the expense of being able to be his daughter . Grieving your hero while they are still alive and seeing this disease steal him from us by inches was the most painful and difficult thing I've ever experienced. You did right by your dad n loved him thru it. We do the best we can and it has to be enough. The processing and healing comes much later.. still a work in progress miss him every day . Tell these truths speak his truth and cherish the moments that seemed small at the time as they are huge in the wake of our loss. Hugs
Your father going through the effort of buying you a phone despite being so sick in his last days made even me tear up.
I'm so sorry for your loss - I just lost my wife to a GBM very recently and really, just fuck this disease, it's just awful.
Glioblastoma killed my wife. She had surgery and then 1 and a half courses of chemotherapy. Her cancer mutation didn’t have the vulnerability to the chemo so it was stopped. I feel that I didn’t do enough for her.
My brother died from glioblastoma in 1993. He was diagnosed in 1990 and had surgery, radiation and chemotherapy. He was only 29 years old when he died. 😢
🙏♥️
I lost my older sister ten years ago to Glioblastoma.. a 18 month struggle. your a good son. Thank you.
I am very sorry for your and your family's loss. It is heartwrenching to watch your other video on how you cared for your dad. The only relief is that your dad is no longer in a living hell, but the void is difficult to fill and your pain may last for quite a while. I am truly, truly sorry.
My deepest condolences on the loss of your father, your family have gone through hell, something one wouldn't wish on one's worst enemy. You should be proud of yourself for everything that you did, you're a real hero.
My father also just died from Glioblastoma. But he was warrior till the end. There’s nothing we could do he fought till the very end and passed away in his home around all his loved ones
Sorry for your loss ❤🙏🏾
So very sorry for your loss❤️
Very sorry for what has happened to your dad. My father also passed from Glioblastoma 1 month and 12 days ago. "Fortunately" however he never suffered seizures, his head never ached, the tumor "just" shut down his kidneys via the brain. Rest in Peace. Gone but never forgotten.
I'm sorry for your loss. The seizures really were the most terrifying aspect of his illness - to him as well as us.
Took care of my late husband for 17 months with glioblastoma. Rarely saw a family member. Funny how they all run during this time. I nearly had to put him in a nursing home as it was taking it's toll on me.
I sympathize greatly and understand totally.. My husband had stage 4 GBM and passed Nov 11'th,2022. It was horrible to watch him decline . I'm still reeling from it😢😢😢😢😢😢
First off, I am so sorry for your loss, and wish you all the strength to recover from it.
Having lost my Mum to this brutal disease in 2015, I understand and still feel all the feels that you described.
I have no idea how or why youtube decided to recommend this video, but I'm glad it did.
Though my Mum's journey was much much shorter (we had roughly 3 months from diagnosis to her passing), hearing someone else share their thoughts and experiences about this has been oddly soothing, especially now during the holiday season.
Thank you, and I wish you and yours all the best.
Thank you again for sharing your powerful story.
My grandmother has dementia, which is different than Glioblastoma, but the caregiving you're talking about is very similar. She's in a nursing home,, but my mom and her siblings still have some responsibilities . A lot of what you said resonated with me, especially when you talked about in your previous video about how you might feel when he was gone. Having a loved one with a longterm illness like that, is very difficult.
Thanks for sharing. All the best! Take care.
You did a marvellous job taking care of your Dad.
Never doubt that your dad knew and appreciated all that you were doing for him. I have cared for several family members in the past. It was rewarding but so tiring. Thank you for sharing your story. Very touching.
I am so sorry for your loss. I lost my Dad to the exact same thing, on December 29, 2019. My sister, my daughter, and I were his caretakers. He died 9 months after his initial diagnosis. It was the hardest thing I have ever gone through, absolutely heartbreaking. He was healthier than me when he was diagnosed, and to watch him become bedridden and unable to speak, was devastating. May your beloved Dad rest in peace. God bless you, my deepest condolences to you and your family.
Your dad raised a beautiful person who will continue providing goodness to this world. Carry on!!! And know, when you walk your daughter down the aisle, your parents will be right by your side. Your happiness is their happiness. Your sister, your daughter and you worked as a team -- just like your dad would have wanted. Take care.
@@Sharon-gb5ku Aww thank you so much, what a sweet reply! My Dad let us know that he really appreciated the way we were taking care of him. I’m so glad we were able to do it. My Mom and Dad were wonderful people. We lost our Mom in 2008. Dad was devastated, and though he didn’t want to die, he was looking forward to being reunited with her. Thanks again for your beautiful message. You take care as well! ❤️🤗
Thanks.@@amyb2646
This was so interesting, wow, your dad was something else in his illness.. And thank you so much for being there for him.
On a side note: I love listening to you speak. You’re an excellent communicator!
My deepest sympathy to you and your mom. You are a wonderful son.
thank you for sharing such a personal and intimate story to you. your dad loved you so much
Many of us have been close to this horrific cancer. You are a warrior & I’ve just subscribed :)
I’m sorry for your loss. Watched your video on your dad a couple of days ago. It is of great use in case I need to go through a similar situation someday.
A beautiful and oh so loving eulogy to a father you clearly loved.
I am so sorry to hear about your Dad's passing. I greatly value your honesty about his care and his required care. May you and your Mom have strength to survive without him *hugs*
Your dad was so lucky to have you and your mother by his side till the end
This video touched my heart so deeply. I have no words to describe how I feel. Thank you for sharing.
I'm so sorry for your loss. From what I've seen, from your video, you were a very caring son who did a lot for your dad. I lost my mom to MS. When someone is suffering, it is normal to feel a sense of relief. Both for you and for them. Sending prayers for comfort and peace for you and your family.
I went through the same thing with my brother and the hurt never goes away. Thank you for posting this.
I am so sorry for your loss. And I can’t thank you enough for talking about these private moments with your dad. All of us are destined to be in both the carer’s and the patient’s position at some point of our lives. I also want to commend you for talking about this with the utmost grace in the most articulate, respectable way possible. My worst fear is being incontinent towards the end of life. I wish you and your mom easy recovery over the exhaustion over the last few months and emotional healing over the loss of your loved one. Your video touched a part of me which was lying dormant for years. I lost my dad to cancer years ago and this just took me to that time of my life.
Thank you, I was caregiver for my father for 21 years. I was in shock when he passed but time healed me.
I'm so sorry. My brother died from that brain cancer too. You did great taking care of your Dad.💔
Thank you for sharing this and for not avoiding the hard things you and your father had to endure, while as a relative taking care of a very ill loved one. A lot of people being, or ending up in the same situation can learn and get comfort (as in not being alone with all the weird feelings that comes with it) from it. I am so sorry for your loss.
Bless you, honey,my condolences to you and your Mum ,x
My deepest condolences on the loss of your father. You told this story powerfully. Thank you for sharing your experience.
Thank you for sharing your personal and very moving story of your. dad's last days. You're a good son and took care of him well. ❤
I’m so sorry for your loss. My ex died from this. There is too much cancer in this world.
So sorry for your loss
Thank you very much for explaining this because I needed to know what the last weeks and days will likely be like for my son.
I hope your dad is finally at peace now & also you & your mum. Bless you all, such a terrible disease & im so sorry you lost your dad & you all had to go through that terrible time.
🙏🫂 wanted to leave this early lost my dad in 2022 .. sorry if I can't finish this video .. but thank you for sharing this
Glioblastoma took my dad’s life too. I miss him every day. May your dad RIP
You are an incredible person! Thank you for sharing such an intensely personal story! ❤️
You are an amazingly wonderful son. Thank you for sharing this incredibly transparent view into the painful loss of your father. When we know better, we can do better. May you find a place of peace and comfort with time 🌺
Sorry for your loss 🙏
So sorry your dad endured this horrible cancer that also took my brother-in-law. Just a cruel way to die! You, though, showed him love throughout his ordeal and that is the gift he received at the end…knowing how much his son loved him! Again, so sorry for the loss of your dad!
Your father was a lucky man to have such a loyal and devoted son. Your story really moved me.
Just so emotional, I'm 2 years on from diagnosis and watching your video makes me understand what my family go through. thank you
May his memory be a blessing.
I was diagnosed with Glioblastoma multiforme in September. I'm sorry for your loss.
I’m so sorry and hope you and your Mom were able to have the best holiday possible considering the pain of losing your dad. I lost my dad a couple years ago to esophagus cancer which has its own dreadful impact to those suffering from it. Cancer is horrible.
I'm so sorry you had to go through all this. watching your videos is educational and somewhat terrifying as I am going through leoplastoma terminal cancer with my mom right now. she was just diagnosed 3 months ago but has been having symptoms of this for a little over a year now. I don't know how much time we have left ahead and some of the things you talk abouterrify me. Because I can't imagine having to do this for my mom. Although I will do anything in everything she needs
Hi AJ. Im on this journey right now with my husband. He now battles on in his 13 month. I am a nurse but still baffled by rhis retcious illness. I am sorry for your loos and appreciate your candor and explanation of how it went for you your Mom and Dad. Big hugs. Rest now and heal the wound will always be there but the scar is precious.
Sending loving condolences to you and your family
❤ hugs and loving memories of happier times together ❤️