She seems so sweet and like someone who would've been a wonderful teacher. I'm sorry that didn't happen for her. I'm glad to see she's doing well under the circumstances and keeping a great perspective on all of it.
I agree, I was happy in my job for six years despite mornings being rough and lots of nausea and afternoon vomiting issues , I was given an MRI looking for possible MS but incidentally found a tumor , I have had no biopsy , they won't do one because they said that because of the shape and size of my tumor they think it's benign so I am on watch and wait program for a year. The tumor was found in December but no one called me with results so I assumed everything was ok with respect to MS so then two months later while at my doctors office I just decided to ask him " hey I had an MRI in December before Xmas ordered by an online doctor service they never called me back would you mind telling me how that MRI went cause I am having so many short term memory issues and accidents falling down and losing balance and still so sick to my stomach as if I were pregnant mornings are hell", My doctor looked to see if he received a copy of that report and he said to me " omg you have a brain tumor, but don't worry they are saying it's not to large and it's likely benign maybe a harmless Meningioma or Schwannoma is what their report says. He then said we will repeat the MRI in December or January 2024. I forgot my point so I had to come back to edit my comment. I was fired from my six year position as soon as I disclosed about my tumor, even though people say to me they can't legally do that to you, well they can and they did because it's not like they are ever going to admit that is why they let me go.
Hey, tumor sister! I'm grade 2 astrocytoma IDH1 mutation, too! I had surgery at UCLA on 2/27/23, four hours awake, and 85%-90% resected. If you ever want to talk, let me know. I truly understand you! Mine was left temporal lobe, too, btw.
@@sarahalbers5555 Believe it or not, a lot of us have awake surgery. That being said, I was awake for four hours of an eight hour surgery, and I only remember somewhere around 30 seconds to about one minute of the whole thing!
Hey Ashley I just finished watching this video and it hit me. I, too, was diagnosed this august 2023 with a stage 3 oligodendroglioma. It all started in July when I had a seizure, and we ended up in the hospital and they took a CT scan and they found a mass growing in my left frontal lobe. This past few months have been the scariest of my life 😢. I will start temodar this week and I’m so scared of taking that pill. I wouldn’t wish brain cancer on anyone. Its nice to hear a story of a person being through the same journey. I wish the best on you, and your gorgeous son 🤗.
Hello! Im ok! Actually almost a year after im on my last cycle of chemo. Its all been good. My Hair hasn’t fallen. And the best of all is that the remaining of what had been left of the tumor after the surgery is all gone. Just to give you guys some good news. 🙃 and thank you!!
My 8yr old got diagnosed with high grade glioma in June 2023 ,he went through craniotomy surgery successfully but developed Hydrocephalus after the surgery and was taken back to theatre for a shunt,we went through radiation and chemotherapy but it’s stressful he doesn’t eat well makes everything hard just taking it one day at a time..
You are young Ashley. Hearing you speak, I feel you are a humble fighter. I hope you will incorporate creative prayer as part of your daily regimen of self support. In fact, could you visualize the whole video you did here could in itself be a prayer. ? Like having your greatest audience as God. Even as you keep your human supporters updated, keep God ahead of your trials/tribulations. 🌷❤️
Just home from having stereotactic radiosurgery for my second brain tumour. I feel amazing but am on steroids which tend to make me feel invincible. Last tumour surgically resected 3 years ago. It is surely amazing modern medicine can do and in the UK it is all free more or less!
@@ashley2bell thanks Ashley and same here if you want to offload. My focus now is to be in the best health to enjoy my grandchildren. In fact my grandson lives in Sisters Oregon and we try to go as often as possible.
my both sisters 16y(1995 died) and 30y(2018 died) died of glioblastom brain cancer.. and a nephew just died(July 2023) due to same brain tumour cancer at age 13..
Oh my gosh, that is awful! Is there a test other family members can do that would show if they're at risk, similar to the test they have for breast cancer? And is there anything that can be done to possibly prevent it?
Wondering if anyone has heard of Dr. Thomas Seyfried and his work on glioblastoma. Press-pulse: a novel therapeutic strategy for the metabolic management of cancer
You are such a beautiful and inspirational person! I wish you and your son all the best now and in the future ! I have just been diagnosed with a benign meningioma which is inoperable because of its location very close to the optic nerve and brain stem. Even though it is a benign brain tumor ,it is still dangerous because it is growing bigger and that can press on or compress nearĺby important organs ,like my optic nerve and affect my vision so l have to have radiation only ,to try and keep it from getting any bigger. Watching your video has given me hope , thankyou so much for sharing your story, l am so scared and just your positivity made me feel so much better. I wish you the best possible outcome always in dealing with this!
God bless 🙏🏼 I had the same type of seizure and found I had a brain tumor on my left frontal lobe August 2021. I had brain surgery to remove what they could it was a grade II oligodendroglioma. I opted for radiation & chemotherapy since it was so large and could grow back without it. I finished chemotherapy this April. I do have memory issues and especially short term. Especially switching my words and I’m stuck with a right hand tremor. Your story reminds me so much of myself I’m literally crying. 😔 my symptoms were years of sharp shooting headaches and I brushed it off. I’ve just gone back to work in the medical field and finding it so hard 😢. Keep going never give up. Your story is inspiring ❤️🙏🏼
I have the same mindset like I was never going to die and I have lived 30 years plus non-Hodgkin's lymphoma and lung cancer and I feel the exact same way that you feel I've never met anyone like me or thinks like us
It is easy to stay positive, when treatment and family is going well. Most people stay positive with their cancer as long as the can live witout much pain and having a strong family in the back.
I wouldn’t say it’s “easy” for me. I’ve just learned over the years that being positive can help my day to day life. Right now my chemo isn’t going how we thought… It is slowing the tumor growth but unfortunately it hasn’t stopped it. I’ve also been struggling with reading, writing and speech yet doing my best to work on it and make changes in my life to cope with it. I do feel blessed having my son and parents by my side. Although I am a single mom and went through a lot of issues with that (my ex husband is not in our lives). Then just 2 years ago I lost my little brother. I’m just telling you this because social media only has a little bit to share. I hope you are doing okay and I’m here if you would like to talk more. Life is short for every, some more than others… We all need to embrace it while we can.
Ashley, I admire positivity. I also had a grand mal seizure in 2016, which led me to having stage two brain cancer as well. I also did on my steroids I was in the hospital a week. And had my whole body scan so they can make sure it started in the brain and didn’t come from somewhere else so I did steroids and I also did chemotherapy with radiation the same procedure you went then I had my brain surgery in July 2016. My neurologist feels I can go every year now for my MRI but I choose to have one every six months because of the fear of the brain cancer coming back so far it’s staying stable but I also had to have him three years of maintenance Chemo where I would take. The timid are the first day of the month for a week right now it’s just monitoring that but if it wasn’t for that grand mal seizure I don’t know what would’ve happened? Your story sounds just like mine. I had to learn how to walk, hold a spoon feed myself. I did rehab in the hospital for a month. I had to learn how to speak. I still have memory loss to this day. Want to say I hate it when you want to say Coke but it but the word won’t come out you know what you want to say, but it’s just not gonna happen so and I still have neuropathy, but I’m still here, and beating the odds I just pray to God that it never comes back a horrible thing to go through. I mean any cancer and then right after that in 2021. I was diagnosed with melanoma skin cancer so I had to have three nose surgeries. I definitely do not want to have to have another brain surgery and where is I was cut my hair has never grown back and I just hate it. I hate having a spa spot on the right side of my head and it’s a big bald spot in my incision is huge, but anyways I’m just rattling on. I will keep you in my prayers and God be with you.🙏🏻🙏🏻❤️😊
Wow, Thank you for sharing! I feel like the many people fighting brain cancer are hard to find. I know it doesn’t have the best overall outlook but I do believe having a strong mindset can overcome it. Prayers, positively and believing in yourself ❤
Thank you for sharing your story and spreading a positive view and mindset. I was diagnosed with a glioma in December 2020 and have been stable since the surgery. Being positive and living life in the moment is the best strategy for us physically and mentally and your smile definitely portrays that.
@@Prayers_and_Perspective I’m really sorry you had to go through all of that. I am going through something similar, I have no idea what is going on but so far they have done a CT and a CT with contrast and those have showed nothing.
Take care Ashley and thank you so much for sharing your story , you are an inspiration to me and a beautiful young lady inside and out , take care xxxx
I talk about each stage on this video! But here is a small look: In 2011 I was taken to the hospital after having a seizure, followed by surgery #1 to find out what it was. I did chemo/radiation in 2015 and I’m currently on a different type of chemo now. (Both types of chemo are oral and taken by mouth)
I do struggle with reading/written which is why it might make more sense on the TH-cam video. I’m also planning to make another video on my page for any questions or anyone that what’s to hear more 🤗
I just lost my mama seven days ago to glioblastoma. I’m going to keep you in my prayers girl. Kick its butt 🙌🏼🙏🏼♥️
She seems so sweet and like someone who would've been a wonderful teacher. I'm sorry that didn't happen for her.
I'm glad to see she's doing well under the circumstances and keeping a great perspective on all of it.
Thank you so much! ❤ That truly means a lot.
I agree, I was happy in my job for six years despite mornings being rough and lots of nausea and afternoon vomiting issues , I was given an MRI looking for possible MS but incidentally found a tumor , I have had no biopsy , they won't do one because they said that because of the shape and size of my tumor they think it's benign so I am on watch and wait program for a year. The tumor was found in December but no one called me with results so I assumed everything was ok with respect to MS so then two months later while at my doctors office I just decided to ask him " hey I had an MRI in December before Xmas ordered by an online doctor service they never called me back would you mind telling me how that MRI went cause I am having so many short term memory issues and accidents falling down and losing balance and still so sick to my stomach as if I were pregnant mornings are hell", My doctor looked to see if he received a copy of that report and he said to me " omg you have a brain tumor, but don't worry they are saying it's not to large and it's likely benign maybe a harmless Meningioma or Schwannoma is what their report says. He then said we will repeat the MRI in December or January 2024. I forgot my point so I had to come back to edit my comment. I was fired from my six year position as soon as I disclosed about my tumor, even though people say to me they can't legally do that to you, well they can and they did because it's not like they are ever going to admit that is why they let me go.
My husband had his first surgery done by Dr. Spetzler at Barrow in 1996. Years later he did his 35 radiation treatments there. It is an amazing place!
Hey, tumor sister! I'm grade 2 astrocytoma IDH1 mutation, too! I had surgery at UCLA on 2/27/23, four hours awake, and 85%-90% resected. If you ever want to talk, let me know. I truly understand you! Mine was left temporal lobe, too, btw.
Hi my husband is also having grade 1 astrocytoma IDH1 wildtype its been 1 year now he is on active watch process and the tumor is is stable
Wait-you were awake? You are amazingly brave. Sending you healing wishes❤
@@sarahalbers5555 Believe it or not, a lot of us have awake surgery. That being said, I was awake for four hours of an eight hour surgery, and I only remember somewhere around 30 seconds to about one minute of the whole thing!
I’m praying for you Ashley 🙏🏿🙏🏿
Admire your strength Ashley
Thank you ❤
Hey Ashley
I just finished watching this video and it hit me. I, too, was diagnosed this august 2023 with a stage 3 oligodendroglioma. It all started in July when I had a seizure, and we ended up in the hospital and they took a CT scan and they found a mass growing in my left frontal lobe. This past few months have been the scariest of my life 😢. I will start temodar this week and I’m so scared of taking that pill. I wouldn’t wish brain cancer on anyone. Its nice to hear a story of a person being through the same journey. I wish the best on you, and your gorgeous son 🤗.
are you okay now ... pls respond if u are
Sending you love and healing.
Hello! Im ok! Actually almost a year after im on my last cycle of chemo. Its all been good. My Hair hasn’t fallen. And the best of all is that the remaining of what had been left of the tumor after the surgery is all gone. Just to give you guys some good news. 🙃 and thank you!!
You are an absolutely amazing young girl. Best, best wishes, my dear, from Lima Peru 💕💕🇵🇪
Thank you 🤗 that means a lot!
I got diagnosed a month ago with 3. I’m getting 1 operated on in 2 days. I’m absolutely terrified 😢
Rest up and I wish you speedy recovery.. 💐🙏
Thanks for sharing your story. Is it possible to talk to you
I hard read and text
@SilverSeeker232
What a strange question you ask!
My 8yr old got diagnosed with high grade glioma in June 2023 ,he went through craniotomy surgery successfully but developed Hydrocephalus after the surgery and was taken back to theatre for a shunt,we went through radiation and chemotherapy but it’s stressful he doesn’t eat well makes everything hard just taking it one day at a time..
You are young Ashley. Hearing you speak, I feel you are a humble fighter. I hope you will incorporate creative prayer as part of your daily regimen of self support. In fact, could you visualize the whole video you did here could in itself be a prayer. ? Like having your greatest audience as God. Even as you keep your human supporters updated, keep God ahead of your trials/tribulations. 🌷❤️
Thank you so much! God is always with me and helping me along the way ❤
@@ashley2bell🙌🙏❤️!
Just home from having stereotactic radiosurgery for my second brain tumour. I feel amazing but am on steroids which tend to make me feel invincible. Last tumour surgically resected 3 years ago. It is surely amazing modern medicine can do and in the UK it is all free more or less!
God bless and protect you ❤
@@Macy-hg2or thank you
I’m sorry you’re going through this too! If you ever want to talk just know I’m here 🤗
@@ashley2bell thanks Ashley and same here if you want to offload. My focus now is to be in the best health to enjoy my grandchildren. In fact my grandson lives in Sisters
Oregon and we try to go as often as possible.
Hi there please watch my childs rare brain cancer story on my channel azmarel molina etmr survivor ❤
my both sisters 16y(1995 died) and 30y(2018 died) died of glioblastom brain cancer..
and a nephew just died(July 2023) due to same brain tumour cancer at age 13..
Oh my gosh, that is awful!
Is there a test other family members can do that would show if they're at risk, similar to the test they have for breast cancer? And is there anything that can be done to possibly prevent it?
Im very sorry. How sad to have lost so many family members to this aggressive
cancer.
My Goodness all so young with such aggressive cancer. That is truly very very tragic.
😢😢😭😭😭😔😔🙏🙏🫶🫶🙏🙏🫶🫶🙏
I’m so sorry that happened 😢 I hope you are doing okay ❤
Ashley, thank you so much for doing this video!! I am fighting a different kind of cancer, and seeing how strong and brave you are is so inspiring!! ❤
Aww thank you! That is so sweet!
Despite what you’re going through being positive and having a good overall mindset can truly be helpful!
You radiate positivity and optimism. May you live a long and full life.
What a Sweetheart you are! Hope you beat the Heck out of this Beast! Prayers going up for you! 🙏🫶🙏🫶🥰❤️💙💛
Thank you so much ❤🤗💪🏽
Wondering if anyone has heard of Dr. Thomas Seyfried and his work on glioblastoma.
Press-pulse: a novel therapeutic strategy for the metabolic management of cancer
You are such a beautiful and inspirational person! I wish you and your son all the best now and in the future ! I have just been diagnosed with a benign meningioma which is inoperable because of its location very close to the optic nerve and brain stem. Even though it is a benign brain tumor ,it is still dangerous because it is growing bigger and that can press on or compress nearĺby important organs ,like my optic nerve and affect my vision so l have to have radiation only ,to try and keep it from getting any bigger. Watching your video has given me hope , thankyou so much for sharing your story, l am so scared and just your positivity made me feel so much better. I wish you the best possible outcome always in dealing with this!
So so happy your doin better kiddo keep growin fighting and livin ur best life! God bless you and your family!
-DG
aka Spiidey lol
Aww thanks spiidey! 🤗 I miss you! We need to FaceTime and catch up!
Most def 🤞🏾🤙🏾
God bless 🙏🏼 I had the same type of seizure and found I had a brain tumor on my left frontal lobe August 2021. I had brain surgery to remove what they could it was a grade II oligodendroglioma. I opted for radiation & chemotherapy since it was so large and could grow back without it. I finished chemotherapy this April. I do have memory issues and especially short term. Especially switching my words and I’m stuck with a right hand tremor. Your story reminds me so much of myself I’m literally crying. 😔 my symptoms were years of sharp shooting headaches and I brushed it off. I’ve just gone back to work in the medical field and finding it so hard 😢. Keep going never give up. Your story is inspiring ❤️🙏🏼
Good Lord. I get migraines but your type of headache must be the worst. Wishing you love and peace
@@sarahalbers5555hi
@@sarahalbers5555are u facing other symptoms
You are a very positive person. Your love for your son is boundless.
Sending love and prayers.
Ma'am you are such a positive person with such good energy. I truly wish you well & hope you keep on thriving. Thank you for sharing your story.
Thank You! 😊 I truly believe my positive outlook has helped me get where I am and where I’ll be in the future!
I have the same mindset like I was never going to die and I have lived 30 years plus non-Hodgkin's lymphoma and lung cancer and I feel the exact same way that you feel I've never met anyone like me or thinks like us
It is easy to stay positive, when treatment and family is going well. Most people stay positive with their cancer as long as the can live witout much pain and having a strong family in the back.
I wouldn’t say it’s “easy” for me. I’ve just learned over the years that being positive can help my day to day life. Right now my chemo isn’t going how we thought… It is slowing the tumor growth but unfortunately it hasn’t stopped it. I’ve also been struggling with reading, writing and speech yet doing my best to work on it and make changes in my life to cope with it.
I do feel blessed having my son and parents by my side. Although I am a single mom and went through a lot of issues with that (my ex husband is not in our lives). Then just 2 years ago I lost my little brother. I’m just telling you this because social media only has a little bit to share.
I hope you are doing okay and I’m here if you would like to talk more. Life is short for every, some more than others… We all need to embrace it while we can.
Ashley, I admire positivity. I also had a grand mal seizure in 2016, which led me to having stage two brain cancer as well. I also did on my steroids I was in the hospital a week. And had my whole body scan so they can make sure it started in the brain and didn’t come from somewhere else so I did steroids and I also did chemotherapy with radiation the same procedure you went then I had my brain surgery in July 2016. My neurologist feels I can go every year now for my MRI but I choose to have one every six months because of the fear of the brain cancer coming back so far it’s staying stable but I also had to have him three years of maintenance Chemo where I would take. The timid are the first day of the month for a week right now it’s just monitoring that but if it wasn’t for that grand mal seizure I don’t know what would’ve happened? Your story sounds just like mine. I had to learn how to walk, hold a spoon feed myself. I did rehab in the hospital for a month. I had to learn how to speak. I still have memory loss to this day. Want to say I hate it when you want to say Coke but it but the word won’t come out you know what you want to say, but it’s just not gonna happen so and I still have neuropathy, but I’m still here, and beating the odds I just pray to God that it never comes back a horrible thing to go through. I mean any cancer and then right after that in 2021. I was diagnosed with melanoma skin cancer so I had to have three nose surgeries. I definitely do not want to have to have another brain surgery and where is I was cut my hair has never grown back and I just hate it. I hate having a spa spot on the right side of my head and it’s a big bald spot in my incision is huge, but anyways I’m just rattling on. I will keep you in my prayers and God be with you.🙏🏻🙏🏻❤️😊
I forgot to mention I also had to do three years of maintenance Chemo
Wow, Thank you for sharing! I feel like the many people fighting brain cancer are hard to find. I know it doesn’t have the best overall outlook but I do believe having a strong mindset can overcome it. Prayers, positively and believing in yourself ❤
Ps. If you ever want to talk more please let me know! 🤗
I will send love and light you way right now. 🤗🎉❤
I don't have a brain tumor but get bad headaches and seizures I got a ct scan but it was normal
Oh I’m so sorry I hope you get better soon you’ve got this your so brave
Blessings to you you're amazing person❤
I admire your attitude. And your son is adorable! I wish you all the good in the world.
Thank you so much!🤗🤍
you are so strong and I always admire your strength to stay positive! I love you!!
Love you so much ❤❤❤
She’s awesome ! Wishing her the best
God Is holding your hand.
Prayers n healing 🙏
❤❤❤
Ashley, I admire your strength!💜 Prayers for your healing!🙏🙏🙏🙏
Thank you so much 🤍
I’m
🙏♥️♥️♥️🌸
So positive! There is 3rd surgery
Thank you for sharing your story and spreading a positive view and mindset. I was diagnosed with a glioma in December 2020 and have been stable since the surgery. Being positive and living life in the moment is the best strategy for us physically and mentally and your smile definitely portrays that.
Hi good to know you are stable which grade you have ?
I husband is having grade 1 astrocytoma
@@nikkishukla1771 Stage II oligodendroglioma with IDH mutation and 1p19q codeletion.
Sweet and gorgeous girl best wishes
Thank you 😊
I am curious for anyone that have had a brain tumor that had a CT that the tumor was missed on the CT??
Just was diagnosed with. They did not see it on CT they saw it with MRI W/ contrast
@@Prayers_and_Perspective did you have a ct first?
@@RachelHannanyes
@@RachelHannanI had to push for a MRI
@@Prayers_and_Perspective I’m really sorry you had to go through all of that. I am going through something similar, I have no idea what is going on but so far they have done a CT and a CT with contrast and those have showed nothing.
Take care Ashley and thank you so much for sharing your story , you are an inspiration to me and a beautiful young lady inside and out , take care xxxx
Thank you so much 🥰 xxx
Was this diagnosed, Pre or Post... trial injection program ?
I talk about each stage on this video! But here is a small look: In 2011 I was taken to the hospital after having a seizure, followed by surgery #1 to find out what it was. I did chemo/radiation in 2015 and I’m currently on a different type of chemo now. (Both types of chemo are oral and taken by mouth)
I do struggle with reading/written which is why it might make more sense on the TH-cam video. I’m also planning to make another video on my page for any questions or anyone that what’s to hear more 🤗
Best of Luck Ashley. Your Positive attitude is working!