What You Need to Know About Glioblastoma

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  • เผยแพร่เมื่อ 20 ก.ค. 2024
  • Join for an in-depth conversation about glioblastoma, a type of cancer that can occur in the brain or spinal cord. We discuss the complex diagnosis and the new treatments and approaches being used to treat this disease. CSC President Elizabeth Franklin is joined by Jennifer Serventi from the University of Rochester Wilmot Cancer Institute.
    Sponsored by Novocure.
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ความคิดเห็น • 25

  • @johnhamilton2680
    @johnhamilton2680 2 ปีที่แล้ว +5

    You are doing a great service to people with GBM. Thank you.

  • @chrismedeiros2424
    @chrismedeiros2424 2 ปีที่แล้ว +8

    I keep hearing how rare it is, my mom passed away from GBM 4 years ago this Oct.. 8/08/17 Rip.. I asked her "should I have my kids checked?" her response was "oh no they said it is not hereditary" well about 2 weeks ago my 21 year old son was diagnosed with a GBM, so clearly the research is lacking in this department, I only mention it because I don't wish this upon any family.. as of now my son is doing well the Neurosurgeon at Dana-Farber Cancer Institute, did a full resection 2 1/2 days ago he is healing well

    • @elisabethmulder4315
      @elisabethmulder4315 2 ปีที่แล้ว +3

      Both my brother and sister were diagnosed with GBM. My brother was 46 at the time and now 10 years on he is still alive. They say it is the radiation, no traces of the tumor so far anymore, that is slowly but surely breaking down his brain cells.
      My sister who was diagnosed recently, aged 63, will have surgery tomorrow.

    • @chrismedeiros2424
      @chrismedeiros2424 2 ปีที่แล้ว +3

      @@elisabethmulder4315 omg... THAT IS AMAZING I'M SO HAPPY TO READ THAT!!! as it turns out the biopsy revealed that the tumor was not gbm it was a rare pediatric cancer called germinoma which as we were told is "exquisitely sensitive to radiation" and I am ABSOLUTELY THRILLED TO UPDATE THAT HE HAS FINISHED THE TREATMENT PHASE, now he is being closely monitored and preparing for physical therapy, this was the greatest news I've heard in many years, among the best of my life for sure

  • @annrogers356
    @annrogers356 ปีที่แล้ว +3

    Thank you for this helpful info! Your explanations made it easier to understand GBM. I'm 17 months into this diagnosis and treatment and expect to live many years! 💪

  • @roberthortin5357
    @roberthortin5357 ปีที่แล้ว +3

    This has been especially useful. A week ago, I had not heard of GBM. Since then, my life has been turned inside out. I commence chemo and radio next week. A wonderful and compassionate presentation. Thank you so very much. 🦘♥️

    • @roberthortin5357
      @roberthortin5357 7 หลายเดือนก่อน

      A very helpful presentation . Thank you!

  • @KishoreSherchand
    @KishoreSherchand 2 ปีที่แล้ว +2

    My wife is facing this problem since Feb 2021. Thank you so much for your great service.

  • @josemarino4270
    @josemarino4270 10 หลายเดือนก่อน

    Informative and compassionate presentation. The standard of care for GBM has not changed for the last 10 to 15 years, regardless of the mutation. Sometimes I wonder if those who were "cured" had astrocytomas grade 2 or 3 but not GBM. It also seems to me that the younger you are and the earlier the tumor is found the better the prognosis. I believe that it is not possible to debulk the tumor completely because these are mutated astrocytes. The problem with cancer, and GBM which I think is the most terrible one, is that we do not have enough resources to really takle this.

  • @Karla-yi5ld
    @Karla-yi5ld ปีที่แล้ว +2

    I hate cancer. My husband of 38 years had bad luck. He passed away 3 months ago from GBM.

  • @margaret-annaquaro2374
    @margaret-annaquaro2374 ปีที่แล้ว

    Very informative
    Gives me a whole different out look on my gbm. I have a positive outlook on my treatment and out come

  • @ebonygaston1868
    @ebonygaston1868 4 หลายเดือนก่อน

    So helpfull

  • @scottcaines6737
    @scottcaines6737 ปีที่แล้ว

    Do you recommend a special diet like ketogenic for gbm patients and if you don’t please explain why?

  • @gchicklet
    @gchicklet 7 หลายเดือนก่อน

    I have a GBM diagnosis. I tried TTF and couldn't deal with it. My neuro oncologist through a major hospital has said that if my scans start coming back badly I'm a great candidate for trials. I am at peace with the fact that this will probably just buy me time, but if my being a lab rat allows someone else a cure I only have one thing to say: "squeek squeek sucker!"

    • @516kadee
      @516kadee 4 หลายเดือนก่อน

      What couldn’t you stand with TTF?

    • @gchicklet
      @gchicklet 4 หลายเดือนก่อน

      @@516kadee my scalp got way too irritated. I turned my head wrong in bed one night and screamed. Pulled it off, never put it back on

  • @catsanddogs8983
    @catsanddogs8983 10 หลายเดือนก่อน +1

    Not hereditary? My great grandmother, grandmother, and mother all died from it, that's one heck of a coincidence I'd say.

  • @Pookiegmaw1958
    @Pookiegmaw1958 2 ปีที่แล้ว +2

    I have two sisters that had and have Glioblastoma. One of them past away and now I have a second sister that is going through this. How come my two sisters have Glioblastoma and they say it’s not hereditary. I also lost a mother to Colon cancer and father with lung cancer.

    • @chrismedeiros2424
      @chrismedeiros2424 2 ปีที่แล้ว +3

      I am so sorry for your loss as i am intimately aware of the role it takes on the entire family my best wishes for your living fighting relatives and my deepest condolences for your lost family..

    • @Pookiegmaw1958
      @Pookiegmaw1958 2 ปีที่แล้ว

      @@chrismedeiros2424 thank you

    • @edensereke7721
      @edensereke7721 ปีที่แล้ว +1

      am so sorry for your lost

    • @Pookiegmaw1958
      @Pookiegmaw1958 ปีที่แล้ว

      @@edensereke7721 thank you

  • @lvnaloria8548
    @lvnaloria8548 ปีที่แล้ว

    SYMPTOMPS:
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