Another rare diagnosis...Feeling discouraged...

แชร์
ฝัง
  • เผยแพร่เมื่อ 11 พ.ย. 2024

ความคิดเห็น • 27

  • @jenm473
    @jenm473 2 ปีที่แล้ว +3

    Bless you! That has been my life. Constantly "trying" to get better from something, but I am so grateful for people like you that share their experiences and I finally, in my late 40's know that I am not alone. I have sometimes, jokingly thought my mom signed a paper before I was born that I could be a secret medical experiemtn (she was in her 40's and people kept saying she was too old, so in my head I can make up a whole story for this). Speaking about God, I don't personally think He gives us troubles, but He may allow them to happen if we are trying to handle it all ourselves. I have a HUGE problem doing this. I never fully give it to him. I take it on and want everything to be perfect (including perfect weight which is so out of my control anymore, and I am a control freak). I have been told so many times by Drs that they can;t believe I am walking around, still here, and I know its only because of God, but then i wonder why when I feel so useless, but I think MAYBE (I don't know God's mind) its a lesson to show others what God can do, and to teach me to fully lean on Him instead of myself. That is the only Idea i have been able to grasp. I won't name all my diseases unless you want, but just wanted you to know I am so grateful for you and I pray for things to get better for you. Bless you! PS: I wrote before end of video. Thankyou for that scripture reminder. I needed that, and am again so grateful.

    • @JessicaHearsey
      @JessicaHearsey  2 ปีที่แล้ว +1

      well said.
      I also feel like a science experiment gone wrong.
      I agree that God doesn't give us troubles but does use them. It was hard for me to come to that place though. A place where I was okay with an all powerful God not using his power to "fix" me. I do not understand but I have to trust that he knows better than my tunnel vision view of the world. Eternity is more important to him than me having an easy life.
      I too am a control freak and deliberately put myself in situation where I have to let go. God knows this too and maybe that is why he uses my "problems" to help solve a bigger problem of my pride and stubbornness and just to fully trust him.
      I am also reading through the book of James chapter 1
      "2 Dear brothers and sisters,[a] when troubles of any kind come your way, consider it an opportunity for great joy. 3 For you know that when your faith is tested, your endurance has a chance to grow. 4 So let it grow, for when your endurance is fully developed, you will be perfect and complete, needing nothing.
      5 If you need wisdom, ask our generous God, and he will give it to you. He will not rebuke you for asking. 6 But when you ask him, be sure that your faith is in God alone. Do not waver, for a person with divided loyalty is as unsettled as a wave of the sea that is blown and tossed by the wind. 7 Such people should not expect to receive anything from the Lord. 8 Their loyalty is divided between God and the world, and they are unstable in everything they do.
      9 Believers who are[b] poor have something to boast about, for God has honored them. 10 And those who are rich should boast that God has humbled them. They will fade away like a little flower in the field. 11 The hot sun rises and the grass withers; the little flower droops and falls, and its beauty fades away. In the same way, the rich will fade away with all of their achievements.
      12 God blesses those who patiently endure testing and temptation. Afterward they will receive the crown of life that God has promised to those who love him. 13 And remember, when you are being tempted, do not say, “God is tempting me.” God is never tempted to do wrong,[c] and he never tempts anyone else. 14 Temptation comes from our own desires, which entice us and drag us away. 15 These desires give birth to sinful actions. And when sin is allowed to grow, it gives birth to death.
      16 So don’t be misled, my dear brothers and sisters. 17 Whatever is good and perfect is a gift coming down to us from God our Father, who created all the lights in the heavens.[d] He never changes or casts a shifting shadow.[e] 18 He chose to give birth to us by giving us his true word. And we, out of all creation, became his prized possession.[f]"
      I pray that you and others find these verses an encouragement.
      All the best.

    • @jenm473
      @jenm473 2 ปีที่แล้ว

      @@JessicaHearsey Amen!! Bless you. I needed to read that again. Thankyou so much for your kind words and your posts. they are such a blessing 💜💙

  • @evangalineupton8377
    @evangalineupton8377 2 ปีที่แล้ว +1

    This video was super helpful, I really personally appreciate you sharing you’re experiences as hard as it is to do so especially online to so many strangers. As it helps out so many other people in trying to figure out what’s actually wrong because it’s not as common. My grandmas in the hospital right now and has been for weeks now and the doctors can’t figure out what’s wrong with her and our family has gotten together and we’ve all found that we’ve all had the same issues as her at various periods through our family starting after age 20. Were all getting tested now and hopefully we can help get my grandma back on the mend as she isn’t even that old either. She’s losing muscle mass being bed ridden which isn’t helping, either. Again thank you, it gives my family more hope too knowing there’s more we can ask her doctors and all of our doctors about.
    My prayers go out to you! ❤❤❤

  • @jillthedesigner
    @jillthedesigner 2 ปีที่แล้ว +3

    Stay in the fight! God is getting the glory through you and and every person you share your story with. Thank you for taking the time to bring awareness to people all over. I have SAI and hypothyroidism, my mother had her thyroid removed over 30 years ago due to Graves' disease. She does still take meds to manage her not having one. Overall she is doing well and you will also! Let me know if there are any questions you would like me to ask her.

    • @JessicaHearsey
      @JessicaHearsey  2 ปีที่แล้ว +1

      Thank you for your encouragement. We must have very similar genetics I think. I would love to know your mums story. What she struggled with after surgery and now. Did she have the option for radioactive iodine? I have heard it is better long term to do surgery. Does she regret getting the thyroid removed? Does she struggle with impossible weight gain? Does it mess up any other functions? Will I be able to exercise?

    • @JessicaHearsey
      @JessicaHearsey  2 ปีที่แล้ว

      Also does she have a rough voice after surgery? I love singing and I am terrified to lose my voice.

    • @jillthedesigner
      @jillthedesigner 2 ปีที่แล้ว

      @@JessicaHearsey Hi Jessica, so sorry for the delay. Here are my mom’s answers regarding her thyroid experience. Hope this helps.
      I started with the radioactive iodine after having my third child. It didn’t lower the overactivity enough so I then had the surgery. In terms of recovery, it was fine. I was pretty much back to taking care of babies after a couple of weeks without assistance. Heart rate returned to normal within a few days as I recall and energy level leveled off. Although I had initial trepidation with having surgery, I’ve had absolutely no regrets having it. I did gain weight as my metabolic rate slowed down but I also didn’t have the best eating habits. No change in function except I think my skin became a little dryer over time. Yes, you will be able to exercise. No, my voice remained the same. And I too love to sing and led kids joyfully in worship for many years.
      God bless,
      The Cartwright Family

  • @its.midgie
    @its.midgie 2 ปีที่แล้ว

    I hear you and I am standing with you and praying. 🙏

  • @nilminikodikara5159
    @nilminikodikara5159 2 ปีที่แล้ว

    Stay strong Jess. 🤗🤗🤗

  • @weebee606
    @weebee606 2 ปีที่แล้ว

    Thank you for making this video. It's good to talk about it, and to reach out to others for understanding. I have addisson's(primary), hashimoto's hypothyroidism, and ptsd. I've met someone who has 'thyroid storm', though Im not sure if that is the same as oscilating. While it's not a nice diagnosis, I think you will get better with medication and possible thyroidectomy. At least if it's removed you will only have to deal with low thyroid issues which you can medicate for. It has taken a year on levothyroxine to start to feel normal again. Don't push yourself! Know your limit, play within it~
    You are incredibly beautiful, and Im glad you post about rare health topics and Life on the Mend 😊.
    Perhaps you could try looking up local or online thyroid support groups? I wish you all the best ❤

    • @JessicaHearsey
      @JessicaHearsey  2 ปีที่แล้ว +1

      Thank you for your kind words and encouragement. I believe that I was very close to a thyroid storm when I made this video. All my symptoms were pointing to that and my endo was worried.
      I am looking at getting my thyroid removed so I only have to deal with one side of it. I just need to do a bit more research first. I didn’t think of support group. I will have a look. I feel like I would need a lot of support groups for all my problems though :)

    • @weebee606
      @weebee606 2 ปีที่แล้ว

      @@JessicaHearsey How are things? Have you had any luck finding a support group?
      I hope you're feeling better ❤
      Do you have twitter?

  • @OLPH1979
    @OLPH1979 2 ปีที่แล้ว +1

    I am sorry to hear of your health struggles, thank you for your encouragement.
    I have found a huge difference with my adrenaline glad issues with getting rid of caffeine, very low carb diet, no or low sugar, healthy fats, no junk food.
    Also add sea kelp/ whole thallus, B vit., high vit D 10,000 IU's and vit. C. Watch Dr. BERG....HE IS amazing!!!! God bless you 🙏

  • @sfn-life
    @sfn-life ปีที่แล้ว

    Can you clarify what the thyroid antibodies are that you mention? TPI? TPO? Other?

  • @kadercevikcan8028
    @kadercevikcan8028 2 ปีที่แล้ว

    Hallo dear, İ can relate to your situation so much. Since 2019 i ve been dealing with so many health issues. Fırst i was diagnosed with a huge pitiitary adenoma that had to be operated immediately. Since then my thyroids do not work properly, my adrenal system is only partially working, i am depended on stereoids. İn 2020 İ was diagnosed 1 stage breast cancer that was luckily operated and treated successfully. Now i take medications hoping it will never come back. The stereoids i take are not good for the bones on the long run, as bones become brittle prone to break easily.
    İndeed i fell recently and seroiusly injured mu shoulder. health issues have been piling up in those recent yesrs. İ feel desperate at times dealing on top of all with daily Side effects of all the medications İ ve to take. Someetimes i want to let go but then think of my 8 year old princess who needs her momy to be brave and strong so that life will go on. So i am gradially getting used to not yield to whatever health problem happens, i try to derive power from within myself as much as i can. Because i ve a lovely little family that needs me. İ see that you have such a lovely family too. And i see you are a very brave and strong woman. Right now, i send all my best wishes, and positive feelings to you. May all the positive energy surround you. Stat strong

    • @JessicaHearsey
      @JessicaHearsey  2 ปีที่แล้ว

      Wow. You have been through it all and yet you are still standing.
      It is easy to let go but you sound like a fighter to me. You are the strong one here.
      Your 8 year old is blessed to have you. You are showing her how to never give up not matter what life dishes out. Thank you for sharing your story.

  • @CoachDChapman
    @CoachDChapman 2 ปีที่แล้ว

    How are you doing now? I also have autoimmune disease - hashimotos - but so far not graves. They tend to travel in packs. As part of your over all quest for optimal health for you - I would encourage you to watch super juice me documentary here on youtube. The test subjects all had chronic health issues and all improved. When I was doing this regime fairly strictly I felt my absolute best and I have a host of chronic health issues.

  • @Hansen23900
    @Hansen23900 2 ปีที่แล้ว +1

    I was 1st to comment and I don’t see it here. I don’t know why it would be removed? Did you even get to read it? I mentioned that some with chronic illness have a gene mutation cluster called RCCX if you’d like to look into it.
    Good luck.

    • @JessicaHearsey
      @JessicaHearsey  2 ปีที่แล้ว

      No sorry. I didn’t get to see it. Thanks. I’ll have a look. :)

    • @JessicaHearsey
      @JessicaHearsey  2 ปีที่แล้ว

      I had a look at the RCCX mutation cluster. very interesting. Maybe they can help us out in the near future.

  • @mondardaman2973
    @mondardaman2973 2 ปีที่แล้ว +1

    God only tests those he Loves!

  • @anothercampervanchannel
    @anothercampervanchannel ปีที่แล้ว +1

    Just curious if you speak up in life? Do you say no when you need to? Some believe that throat issues (thyroid issues) are related to communication and expressing ourselves. If we don't speak up, we can store the anger/resentment in our bodies (our throat being one part of our body). Also, autoimmune conditions can be seen as a rejection of the self as it's the body essentially turning against itself. I know this everyone's way of looking at things but it's food for thought. Only you know if it resonates. I can see how disheartened you feel. I can understand this. I've had chronic health issues more years of my life than not and it wears me down trying to help and heal myself without any help from the medical profession🤷‍♀😕. You are helping others by making videos, but remember you need to come first 💜

    • @JessicaHearsey
      @JessicaHearsey  ปีที่แล้ว +2

      You are right in one sense I think. I am one to not speak up. It makes sense but I wouldn’t say it is the main reason for these diseases.
      I believe there is a huge genetic component and to say that it is because we harbour these feelings inside means it is our fault that we have these diseases, which I don’t think is right.
      Definitely doesn’t help to hold negative feelings inside though.

    • @anothercampervanchannel
      @anothercampervanchannel ปีที่แล้ว

      @Life on the mend I prefer the word responsibility rather than fault. Fault seems negative and a way to attack ourselves. And there's nothing to say that it being genetic isn't part of the whole spiritual picture of what you need to learn in this life 🤷‍♀️. It all depends on your spiritual beliefs, if you have any. Anyway, I was only wanting to give a different perspective. If it's not how you see it, that's fine 🙂.

    • @batman2547
      @batman2547 ปีที่แล้ว

      ​@@JessicaHearseyNobody's fault to be born with certain genetic predispositions and potentially a personality type like INFJ or other highly sensitive, agreeable and/or emphatic traits that would match the activation (e.g. due to less resilience to stress) of those genes but understanding that via epigenetics we can control which genes are active can be very empowering.
      True, you can't change your genetic predisposition but you can alter your environment and your behaviour (including emotional states and how one reacts to stress) and that way overdrive and switch off those genes. (Check Dr Bruce Lipton and Joe Dispenza books or lectures). I struggled with plenty of health issues (heart, thyroid, adrenal insufficiency plus dysautonomia and more) since I was a child and in my late 30s it all got so bad that I almost died. When I was preparing myself, getting "ready" and accepting the fact I was dying, I done intense life review and that lead me to intense inner work (shadow work or parts work etc) that created huge realisations and release of energy plus shift in perspective and dissolution of old beliefs that caused change in my personality and my body started healing slowly itself.
      This, I think refers to what the other person meant, by suggesting throat issues due to holding the truth ( not speaking up) or repressing anger etc.
      So yeah, it is nobody's fault. We sometimes don't even know ourselves what drives our emotional inhibitions or behaviour untill we start digging into our unconscious.
      My body slow recovery process took 2 years but now I feel better than ever before and still growing stronger. Hope this helps. I never write comments but felt like making an exemption this time, thinking this might actually help you to look in other direction than medications and just accepting disease as permanent state.
      Good luck and hope you'll get better ✌🏻