Jaquie, I love your calm disposition. When you describe an illness, or go through a crisis, your demeanor is straight forward, no drama, get er done! I'm riddled with chronic illnesses (hashimoto's thyroiditis, chronic kidney disease, poly-cystic ovarian syndrome, fibromyalgia, malnutrition, daily digestive issues, hypoglycemia, mental impairments, low iron, extreme lethargy and a host of other endocrine problems) but while I'm not comparing, you have so many treatments and interventions that are daily life and you never complain!!! I watch your vids and am filled with empathy and compassion for you, but also admire your strength and draw from it to empower my own. You're a good example, Jaquie. I hope you understand that you are helping others. Jenny
I love the way Jaquie explains what's going on...precise and easy to understand. It's so hard to keep calm during reactions but I react to emotion too!
Jenny White hi!! I just found her channel and seeing how inspiring she is/was and meeting all these amazing people in this community of chronic Illness. I have hashimotos amongst a host of other things too so I thought I’d introduce myself ❤️
My allergist said to always shower at night so that all the pollutants won't go all over your sheets and then you rub your face in them. It helps with reducing sinus inflammation etc
fa_capolino028 I am Being Tested next week at The Royal London Hospital due to an unknown Foot problem ....I can't Even Stand on my Feet At the moment ....the pain is unbearable .... Hope you get Diagnosis soon 😉
Jaquie, you are absolutely correct! It is NOT possible, in the midst of an anaphylaxis crisis, to draw meds from a vial. This is why it was important for us to get a generic Epi pen available. Some people said that we could just draw up a dose of Epi from a vial when needed. But it's NOT feasible. That was my fear for you as you described your treatment protocol. You will have to carry pre-filled syringes so you can just get it down. Hard cases are a great idea for this. OR, another option is to use your liquid or chewable Benadryl at the first sign to get the process going. THEN take the rest of your protocol and use the IV Benadryl if needed. But in any case, you will need pre-filled syringes. Great job arresting the Ana crisis in Target team!!
As far as the used syringes while you are out and about....You can simply recap them and place them back in your pouch. Then put them in a sharps container when you get home. That way you don't have to carry 'one more thing' with you.
You are right, no way we can do something like that during a reaction! Thankfully I have figured out how to cap the medication syringes without needles!
There are devices called needle clippers that you can carry around with you or use at home, depending on the size of your needles you use. They are really small, about the size of a pack of gum. www.bd.com/us/diabetes/page.aspx?cat=7002&id=7416
I'm so happy you were able to stop it so quickly. I'm so sensitive to meds. When I have benadryl through iv, it made me trip like being on shrooms. First time it happened, I panicked and asked the nurse if the curtains were actually blowing. She laughed and said it could happen, like being on shrooms (which I tried in my youth) and I couldn't stop giggling at the room breathing. Still happens every time I get iv benadryl.
I'm watching old videos because I just found your channel. Happy to see that the IV Benadryl treatment plan worked. I'm also happy you have a great medical team treating you based on test results and your experiences. I have been fortunate to find great Drs for my medical issues (Asthma Antiphospholipid Antibody Syndrome and severe Osteoarthritis in both knees). knowing that your Dr is listening and treating the person as well as the illness helps so much. My prayers are with you as you travel this journey. May God give you peace, comfort and understanding. Ps I noticed your backpack. in pretty sure that's a Vera Bradley. I have the same style back pack. It's also Vera Bradley but the quilting is Mickey heads and its the dusty blue color. it really is an amazing back pack. So big inside and it fits well on the back of my wheel chair. Although I drive my hubby and son nuts about not getting anything on it or crush the shape in any way. lol. We are big Disney nuts. as a matter of fact we just came back from spending a month in Disney World. hope you are feeling well today. :) Hugs Jamie
I am so glad to know that I am not the only one who has Tinitnus!! Tell Judd that he could buy a noise fan machine it's called "Sleep Easy" it doesn't use a recording it uses a real fan that is inside the machine. It also has other noises that it could make!
Depending on the source of your allergies, I'm not totally surprised there were triggers in Target--with the amount of off-gassing of new products (e.g., electronics and that rug!) and dust/particles from packaging in there -- although it still totally sucks and must be super isolating. It's good to keep pushing yourself and trying to visit spaces -- and glad that you felt control. Cute dog, btw.
Judd to the rescue! That's so great you have this in your toolbox now and can avoid the ER more often hopefully! I'm a morning shower person, by the way. :)
So glad you got out and the benedryl worked! What my grandma does with her needles is keeps a old plastic water bottle in the car/purse and uses that. I think she puts the cover back on but I'm not sure. I've also known people who use a small laundry detergent bottle!
Just thinking, you could also put the predrawn needles in a travel toothbrush case and put that in a normal case with the rest of your stuff, so then nothing else could bump into it inside the case. Hope that made sense
You are so sweet and adorable.....I am transfixed while watching your videos, I so appreciate your honesty and how you share the life of chronic pain and the limitations it causes. I too have my own disorders and people can never tell just by looking at me that I am battling a silent battle. I admire your courage and ability to share your story. I think you and your family are beautiful and I am praying for you that your journey together is a blessed one.
your dog is so adorable! to help your poll question...def a night shower unless i work out in the morning then i shower after. sorry you had an attack. Happy youve got an amazing support crew!
Also, they do have small sharps containers you could keep on the car. I use an old RX bottle. The big ones are best, but the normal medium size is great size to just toss in your bag
I know you probably solved your bag storage issues. I was thinking the cosmetic/toiletry bags in the makeup section. So many cute things plus some can hang and have plastic/mesh interiors.
Hey Jaquie, thanks for this videos, i'm working at my university to make unseen disabilities matter too. This helps me show people the reality of them, the importance of awareness and how service dogs help so much.. And you being so strong and positive is amazing. All my best and thank you again!
I'm so glad you have a Judd. You are amazing and he is amazing too. Also, I have an evening shower because I hate having water in my face first thing in the morning!
Way to go Judd the Stud!! Jaquie, I'm so glad he was there with you today and was able to keep you out of the hospital!! Its good that you are getting the feel of how its going to go and figure out how to alter it! Hope your able to get some rest this evening!
There are some 'caps' for the screw part of the syringe bit that would prevent the medicine 'escaping', and you just need to put the needles on the syringe (if you have the separate syringe and needle thing!). There can also be super tiny personal sharps container (or just get another hard case for storing the sharps until you get back to the car/home with the sharps container and do that as a 'post time out of the house routine'). If you need pouches, maybe try the 'travel wash bag' or 'makeup bag' aisle. Soft pencilcases are also useful! It would be a good idea to colour code the pouches/hardcases/whatever, so if you are with someone who isn't familiar with what you need you can communicate what pouch you need first. Pick your three fave colours, or colours that you feel connected to, or colours you associate with your various conditions/symptoms. You could buy a pouch/hard case that was close to that colour, and maybe go and find a coloured tape and then everything for whatever has that colour. For instance if neon orange and/or neon yellow was for the drawn up IV emergency medications including the flushes etc, if there isn't a neon orange hard case you could buy an orange or yellow (whichever looks best!) hard case or pouch, and then put neon orange/neon yellow tape (for added oomph and usefulness maybe get a glow in the dark version of the tapes) on it in various places! You could then have a black hard case (maybe with red and whatever colour striped tape, and maybe have a locking mechanism on it so it doesn't open up on it's own!) as the 'for the moment' sharps/old medical syringes and vials container. If you have a memory like mine, you might want to have a place that you would check daily (like I sort my purse/handbag out after each time I go out, so I'd put a small pouch or use a small compartment to put the used medication wrappers, vials/vial labels, swab packets, alcohol wipes etc), and so you can 'restock' the ready IV meds bag for next time. When you get home and do this, you can always set something up so that Judd can check that you have the right dosage drawn if you are groggy and not 100% with it from the attack earlier. You could also maybe have a colour such as blue and without any tape, that has two compartments, one that you've additionally padded for the medication vials, and the other for alcohol wipes, swabs, spare needles and spare syringes in the amount you require etc. Then you can just keep the blue one as a back up, or if you are away from the house for a couple of days etc. Just remember to go through this and change it every 3 to 6 months to make sure that the spare stuff and alcohol wipes, swabs, vials, sterile water etc is safe to use and at least 3 months left until the expiry date. That way you can make sure you have some backup supply for general, and for when out! (Sent with intentions of kindness. I want to assist to attempt to make things easier for you. I have chronic conditions of different sorts, and I know it is so very easy to overlook the simplest of things! Please note, I do not travel with needles on me unless from the pharmacy, and I do not carry prefilled ones. Check that my advice works before relying on it!).
Sometimes I need to explain something more full than a text message length will allow me. Although, that technically isn't necessarily a piece of fiction, more of a suggestion for something that might help someone else. Sometimes being too close to something makes you struggle to find strategies that would be more beneficial than current ones. Other times you are too exhausted/brain foggy to think of words, let alone what your name is, or a potential improvement to a system that semi works. However, if you don't consider everything carefully enough it could mean something mostly minor (it's not, but she has said her attacks happened regularly so overtime it might seem 'normal' and 'not a big deal' to her, just like passing out from pain and blood loss on the toilet for over an hour became to me!) could become life threatening and at least urgent care if not emergency care and higher than ICU status.
I know it's probably super weird to have noticed this, but I've noticed that when you have an allergic episode your eyes show it. They get kind of puffy and you look extremely tired and disoriented. I'm so happy you finally have more control over this all. Stay strong!!
I totally plan out future furniture plans at Target too... I'd LOVE to be one of those people that gets to design the Target homeware sections, they have such cute stuff!
I just came across your videos. bless your heart for being such a trooper having to go through everything you do. You are very inspirational. it reminds me people go through ten times more troubles than myself and gives me the strength to get through each day and problem. I pray for your health and pray for complete positivity to come to you. :) love your videos!💜
I'm so glad you got to go out despite the reaction! You're progressing so much! So proud of you! I'm a night shower person because I sleep better! Love you Jaquie!
I'm sure someone mentioned this already, I draw up my meds and then cap it. I usually use the caps from a flush, but I also get some caps on some of my pre-drawn meds I get from ThriveRx. I cannot even begin to wonder how many needles, viles, etc etc are in my bags and car. Haha.
Just had an idea for your slippers. You could bunch up one and stuff it into the other so that when Harlow goes and gets it, it will be faster and she won't have to make two trips :)
I wanted to let you know I think you and Judd are beautiful couple and Harlo is beautiful and smart! I think your incredibly strong person for fighting through everyday all of everything your going through with a positive attitude! Keep kicking a** your an inspiration!!!
empty Gatorade bottle in the bag is hande for needles. large enough opening to dump into your sharps container at home. but not to large to put in your bag
I am definitely an evening shower person 🚿 💤 I also feel the need to “wash the day off”, so to speak, but I also shower in the evening because my hair has a mind of it’s own. If I shower in the morning it sticks out in every possible direction.
I subbed because you're really inspiring to me honestly. I go through tough times in my life because i have a lot of stress currently going on and when i see how harder it is for you, it gives me hope to never stop trying. :)
Jackie at Wal-Mart they have a needle clipper and the needle stays inside the clipper and then you can throw the syringe away. I use it with my syringes for insulin. Let me know if you could find it at your Wal-Mart in Florida. I'm so glad that your ok and Jud stayed calm and was able to help you. Love and my prayers sent your way.
I noticed your beautiful dog had breakfast sometimes I think you're giving Harlow dinner:) I've always had confusion with feeding. Does Harlow get breakfast lunch and supper or just breakfast and supper? How often do you provide free access to water? I like to learn, thanks !
😭😭 hate that this happened, no one should have to deal with any of this. At least it worked effectively and you were able to go home with out going to the ER. Prayers with you ✨😇🙏🐾
I am a evening shower person! What an interesting time at Target....but I'm so glad you guys were able to stop the reaction! Have a good, relaxing night and stay strong💪❤
Were you able to identify what caused the reaction? I do understand that you needed the IV first... But do you also need to flee the locale to avoid the source that caused it? Not judging, just curious.
The heparin could probably wait until you were safe...I can't use heparin at all so I actually have a Groshong port...the valve prevents blood reflux into the catheter and allows for saline only. If I weren't accessed all the time, I'd also only have to flush it every three months!
First time I have seen your feed, your dog is so pretty, and I am in love with your pill pack. I too have a mini pharmacy and several times during the day have to take meds so I love your time slots. I also am curious now about the otc med your take for migraines. Will have to see if it can work for my chronic migraines. Total side note, not sure what all you have going in (need to watch the intro video you suggested) but I saw a mask like yours today. First time I had ever seen one like that. Made me curious about it. Why do you use yours?
I used to work for target, and I have reason to believe that the bathrooms should have a sharps disposal container ... but I could be mistaken. Just a thought!
sometimes it depends on my mood like if i feel like a spy/rebel i take a shower in the middle of the night while everyone is asleep trying not to wake them up😂😂😂
Hi there! I was just curious of what it is you're allergic to! You may have said it in the video, and I just missed it, but I just wanted to know :) best of luck.
if you put the rolls in a tin , squished all together and cover with tinfoil they stay moist. Let them cool for 5*10 minutes then put the frosting on it wont melt as much. I like to add raisins or other dried fruit to them. it softens as it bakes. Tin foil
I found it so cute when Harlow got excited to go out, it's like she knew how happy you were to be outta the house😊 and according to my bro I'm a 'spontaneous' shower person😆 meaning I shower day or night no matter how late or early it is😅😂
This might be a dumb question in my part, but what causes your reactions? I'm new to your channel (love you and Harlow!) and I've never really figured it out
You may have this posted elsewhere...but I'm wondering where you buy your face masks. I saw 1 gal with one over a year ago in Winco grocery, but haven't seen another since. I currently own 3 from Breathe Healthy because they have antimicrobial in the fabric and are also washable. Thanks! :)
I'm glad the IV Benadryl did the trick! Good job to Jud and Har for being your awesome team 👍🏻 I'm a night shower taker as well! I love washing the day away and I feel like the steam is just refreshing/relaxing for my skin and muscles. I wanted to ask about your migraine headaches. I also suffer from them a lot, I've been seeing a neuro for about 6 years and my migraines have changed as I've aged (I'm almost 20) I've tried lots of different meds, and my doc is recommending Botox but I'd like to try more stuff before making that big leap. Do you know what triggers your migraines? So far we only have environmental causes, no brain abnormalities at all. What do you use if you don't mind sharing? ☺️
My migraines come from my Ehlers Danlos Syndrome. My neck is very hypermobile due to my EDS, which causes nerve pain, inflammation and tension. All my migraines come from that. My EDS doctor at Mayo will be giving me Botox with a hypermobility protocol in March!
I get headaches/migraines constantly and I have disc degeneration and cervical stenosis and I have been diagnosed with all that in 4 months and I’ve had headaches for 6 minths
Jaquie, I love your calm disposition. When you describe an illness, or go through a crisis, your demeanor is straight forward, no drama, get er done! I'm riddled with chronic illnesses (hashimoto's thyroiditis, chronic kidney disease, poly-cystic ovarian syndrome, fibromyalgia, malnutrition, daily digestive issues, hypoglycemia, mental impairments, low iron, extreme lethargy and a host of other endocrine problems) but while I'm not comparing, you have so many treatments and interventions that are daily life and you never complain!!!
I watch your vids and am filled with empathy and compassion for you, but also admire your strength and draw from it to empower my own. You're a good example, Jaquie. I hope you understand that you are helping others. Jenny
I love the way Jaquie explains what's going on...precise and easy to understand. It's so hard to keep calm during reactions but I react to emotion too!
Jenny White hi!! I just found her channel and seeing how inspiring she is/was and meeting all these amazing people in this community of chronic Illness. I have hashimotos amongst a host of other things too so I thought I’d introduce myself ❤️
My allergist said to always shower at night so that all the pollutants won't go all over your sheets and then you rub your face in them. It helps with reducing sinus inflammation etc
We neeed to get her channel to 100k cuz she so uplifting and positive despite her Chronic illnesses not being fun to handle or easy
I can NOT go to bed without a shower!
Same it feels better to sleep clean but I have an unknown issue with my feet and they feel weird
fa_capolino028 I am Being Tested next week at The Royal London Hospital due to an unknown Foot problem ....I can't Even Stand on my Feet At the moment ....the pain is unbearable .... Hope you get Diagnosis soon 😉
Evening shower for sure!! Don't wanna rub the day's dirt into my bedsheets haha
Same!
Erika E i simply can't feel dirty and go to sleep peacefully unless im extremely tired
Erika E - same here. But on some days I need both. On some mornings I need a cold shower to be able to wake up.
Jaquie, you are absolutely correct! It is NOT possible, in the midst of an anaphylaxis crisis, to draw meds from a vial. This is why it was important for us to get a generic Epi pen available. Some people said that we could just draw up a dose of Epi from a vial when needed. But it's NOT feasible. That was my fear for you as you described your treatment protocol. You will have to carry pre-filled syringes so you can just get it down. Hard cases are a great idea for this. OR, another option is to use your liquid or chewable Benadryl at the first sign to get the process going. THEN take the rest of your protocol and use the IV Benadryl if needed. But in any case, you will need pre-filled syringes. Great job arresting the Ana crisis in Target team!!
As far as the used syringes while you are out and about....You can simply recap them and place them back in your pouch. Then put them in a sharps container when you get home. That way you don't have to carry 'one more thing' with you.
You are right, no way we can do something like that during a reaction! Thankfully I have figured out how to cap the medication syringes without needles!
There are devices called needle clippers that you can carry around with you or use at home, depending on the size of your needles you use. They are really small, about the size of a pack of gum.
www.bd.com/us/diabetes/page.aspx?cat=7002&id=7416
I have no idea what you just said... LOL😂😂
Kelley Hornberger
Transport your pre drawn syringes in a travel toothbrush case....works perfectly!
I'm so happy you were able to stop it so quickly. I'm so sensitive to meds. When I have benadryl through iv, it made me trip like being on shrooms. First time it happened, I panicked and asked the nurse if the curtains were actually blowing. She laughed and said it could happen, like being on shrooms (which I tried in my youth) and I couldn't stop giggling at the room breathing. Still happens every time I get iv benadryl.
I'm watching old videos because I just found your channel. Happy to see that the IV Benadryl treatment plan worked. I'm also happy you have a great medical team treating you based on test results and your experiences. I have been fortunate to find great Drs for my medical issues (Asthma Antiphospholipid Antibody Syndrome and severe Osteoarthritis in both knees). knowing that your Dr is listening and treating the person as well as the illness helps so much.
My prayers are with you as you travel this journey. May God give you peace, comfort and understanding.
Ps I noticed your backpack. in pretty sure that's a Vera Bradley. I have the same style back pack. It's also Vera Bradley but the quilting is Mickey heads and its the dusty blue color. it really is an amazing back pack. So big inside and it fits well on the back of my wheel chair. Although I drive my hubby and son nuts about not getting anything on it or crush the shape in any way. lol. We are big Disney nuts. as a matter of fact we just came back from spending a month in Disney World.
hope you are feeling well today. :)
Hugs
Jamie
I am so glad to know that I am not the only one who has Tinitnus!! Tell Judd that he could buy a noise fan machine it's called "Sleep Easy" it doesn't use a recording it uses a real fan that is inside the machine. It also has other noises that it could make!
Depending on the source of your allergies, I'm not totally surprised there were triggers in Target--with the amount of off-gassing of new products (e.g., electronics and that rug!) and dust/particles from packaging in there -- although it still totally sucks and must be super isolating. It's good to keep pushing yourself and trying to visit spaces -- and glad that you felt control. Cute dog, btw.
You have a heavenly light around you! Harlow and Judd are also protected by your light. Blessings!!
Really hope she pulls through this. She is so positive despite what she's going through. Wonderful personality
I'm so glad you like your blanket and that the IV Benadryl worked!!
Yes, it's great! Did I pronounce your name correctly?
Jaquie Blake yes you did!
Judd to the rescue! That's so great you have this in your toolbox now and can avoid the ER more often hopefully! I'm a morning shower person, by the way. :)
So glad you got out and the benedryl worked! What my grandma does with her needles is keeps a old plastic water bottle in the car/purse and uses that. I think she puts the cover back on but I'm not sure. I've also known people who use a small laundry detergent bottle!
Just thinking, you could also put the predrawn needles in a travel toothbrush case and put that in a normal case with the rest of your stuff, so then nothing else could bump into it inside the case. Hope that made sense
You are so sweet and adorable.....I am transfixed while watching your videos, I so appreciate your honesty and how you share the life of chronic pain and the limitations it causes. I too have my own disorders and people can never tell just by looking at me that I am battling a silent battle. I admire your courage and ability to share your story. I think you and your family are beautiful and I am praying for you that your journey together is a blessed one.
Evening!! I'm usually way too cold to shower in the morning
Same here! If I ever do shower in the morning I never want to get out haha
your dog is so adorable! to help your poll question...def a night shower unless i work out in the morning then i shower after. sorry you had an attack. Happy youve got an amazing support crew!
Also, they do have small sharps containers you could keep on the car. I use an old RX bottle. The big ones are best, but the normal medium size is great size to just toss in your bag
I know you probably solved your bag storage issues. I was thinking the cosmetic/toiletry bags in the makeup section. So many cute things plus some can hang and have plastic/mesh interiors.
Hey Jaquie, thanks for this videos, i'm working at my university to make unseen disabilities matter too. This helps me show people the reality of them, the importance of awareness and how service dogs help so much.. And you being so strong and positive is amazing. All my best and thank you again!
I'm so glad you have a Judd. You are amazing and he is amazing too. Also, I have an evening shower because I hate having water in my face first thing in the morning!
Way to go Judd the Stud!! Jaquie, I'm so glad he was there with you today and was able to keep you out of the hospital!! Its good that you are getting the feel of how its going to go and figure out how to alter it! Hope your able to get some rest this evening!
There are some 'caps' for the screw part of the syringe bit that would prevent the medicine 'escaping', and you just need to put the needles on the syringe (if you have the separate syringe and needle thing!). There can also be super tiny personal sharps container (or just get another hard case for storing the sharps until you get back to the car/home with the sharps container and do that as a 'post time out of the house routine'). If you need pouches, maybe try the 'travel wash bag' or 'makeup bag' aisle. Soft pencilcases are also useful!
It would be a good idea to colour code the pouches/hardcases/whatever, so if you are with someone who isn't familiar with what you need you can communicate what pouch you need first. Pick your three fave colours, or colours that you feel connected to, or colours you associate with your various conditions/symptoms. You could buy a pouch/hard case that was close to that colour, and maybe go and find a coloured tape and then everything for whatever has that colour. For instance if neon orange and/or neon yellow was for the drawn up IV emergency medications including the flushes etc, if there isn't a neon orange hard case you could buy an orange or yellow (whichever looks best!) hard case or pouch, and then put neon orange/neon yellow tape (for added oomph and usefulness maybe get a glow in the dark version of the tapes) on it in various places! You could then have a black hard case (maybe with red and whatever colour striped tape, and maybe have a locking mechanism on it so it doesn't open up on it's own!) as the 'for the moment' sharps/old medical syringes and vials container. If you have a memory like mine, you might want to have a place that you would check daily (like I sort my purse/handbag out after each time I go out, so I'd put a small pouch or use a small compartment to put the used medication wrappers, vials/vial labels, swab packets, alcohol wipes etc), and so you can 'restock' the ready IV meds bag for next time. When you get home and do this, you can always set something up so that Judd can check that you have the right dosage drawn if you are groggy and not 100% with it from the attack earlier. You could also maybe have a colour such as blue and without any tape, that has two compartments, one that you've additionally padded for the medication vials, and the other for alcohol wipes, swabs, spare needles and spare syringes in the amount you require etc. Then you can just keep the blue one as a back up, or if you are away from the house for a couple of days etc. Just remember to go through this and change it every 3 to 6 months to make sure that the spare stuff and alcohol wipes, swabs, vials, sterile water etc is safe to use and at least 3 months left until the expiry date. That way you can make sure you have some backup supply for general, and for when out!
(Sent with intentions of kindness. I want to assist to attempt to make things easier for you. I have chronic conditions of different sorts, and I know it is so very easy to overlook the simplest of things! Please note, I do not travel with needles on me unless from the pharmacy, and I do not carry prefilled ones. Check that my advice works before relying on it!).
Phoenix Moon wow you just put a story on youtube
Sometimes I need to explain something more full than a text message length will allow me. Although, that technically isn't necessarily a piece of fiction, more of a suggestion for something that might help someone else. Sometimes being too close to something makes you struggle to find strategies that would be more beneficial than current ones. Other times you are too exhausted/brain foggy to think of words, let alone what your name is, or a potential improvement to a system that semi works. However, if you don't consider everything carefully enough it could mean something mostly minor (it's not, but she has said her attacks happened regularly so overtime it might seem 'normal' and 'not a big deal' to her, just like passing out from pain and blood loss on the toilet for over an hour became to me!) could become life threatening and at least urgent care if not emergency care and higher than ICU status.
I know it's probably super weird to have noticed this, but I've noticed that when you have an allergic episode your eyes show it. They get kind of puffy and you look extremely tired and disoriented. I'm so happy you finally have more control over this all. Stay strong!!
Not weird at all, I have had a lot of people (friends/family) tell me that they can see it in my eyes!
I'm definitely an evening shower person... I like to wash the filth of the day off too! And I feel like it keeps my sheets nice for more time :)
I totally plan out future furniture plans at Target too... I'd LOVE to be one of those people that gets to design the Target homeware sections, they have such cute stuff!
I'm so happy y'all were able to deal with that reaction so smoothly, that was really great
Thank you! I think so too. I was pretty useless, but Judd was spot on.
Keep up the great work your videos are amazing thank you for creating REAL content that is not altered for the media ❤️❤️
I’m so sorry y’all have to go through this man y’all are awesome and beautiful.
I just came across your videos. bless your heart for being such a trooper having to go through everything you do. You are very inspirational. it reminds me people go through ten times more troubles than myself and gives me the strength to get through each day and problem. I pray for your health and pray for complete positivity to come to you. :) love your videos!💜
I'm so glad you got to go out despite the reaction! You're progressing so much! So proud of you! I'm a night shower person because I sleep better! Love you Jaquie!
Me too! Plus showers take a lot out of me, so I like to go to sleep after them haha.
Jaquie Blake I pray you find an answer for these reactions! Judd is killing it at awesomeness!
I'm sure someone mentioned this already, I draw up my meds and then cap it. I usually use the caps from a flush, but I also get some caps on some of my pre-drawn meds I get from ThriveRx.
I cannot even begin to wonder how many needles, viles, etc etc are in my bags and car. Haha.
You, Judd, and Harlow make an AWESOME team! THANK YOU VERY MUCH for sharing these adventures.
Just had an idea for your slippers. You could bunch up one and stuff it into the other so that when Harlow goes and gets it, it will be faster and she won't have to make two trips :)
I wanted to let you know I think you and Judd are beautiful couple and Harlo is beautiful and smart! I think your incredibly strong person for fighting through everyday all of everything your going through with a positive attitude! Keep kicking a** your an inspiration!!!
I think that shops should have a box of epi pens etc if needed for customers
lulu I could you not show a note etc to prove that you need it
lulu I ah right, I don't know much about the topic but I thought it might work
also you can use the old epi case
empty Gatorade bottle in the bag is hande for needles. large enough opening to dump into your sharps container at home. but not to large to put in your bag
Those are excellent ideas! I can use those until I get back home to put them in my actual sharps container. Thank you!
I am definitely an evening shower person 🚿 💤 I also feel the need to “wash the day off”, so to speak, but I also shower in the evening because my hair has a mind of it’s own. If I shower in the morning it sticks out in every possible direction.
Love the puzzle blanket omg
Forever 21 has fantastic makeup bags on their website if you're still looking for containers!
I'll remember that! But I found everything I needed on Etsy (I am a bit addicted to Etsy!).
Chronically Jaquie I'm addicted to esty too
you may be able to ask the pharmacy if they have a sharps container, if you're out at like a Target or another place that has a pharmacy.
Harlow is the BEST doggy..I'm happy you found each other
I subbed because you're really inspiring to me honestly. I go through tough times in my life because i have a lot of stress currently going on and when i see how harder it is for you, it gives me hope to never stop trying. :)
Jackie at Wal-Mart they have a needle clipper and the needle stays inside the clipper and then you can throw the syringe away. I use it with my syringes for insulin. Let me know if you could find it at your Wal-Mart in Florida. I'm so glad that your ok and Jud stayed calm and was able to help you. Love and my prayers sent your way.
For cinnamon rolls I feel the same, so I add the frosting to cream cheese!!it may look off, but tastes delicoius!!!!
dior_ i make my own glaze like mini lenon cookie base type
I'm a CNA and we were taught that you NEVER cap a needle. I'm so glad that y'all are okay
I noticed your beautiful dog had breakfast sometimes I think you're giving Harlow dinner:)
I've always had confusion with feeding.
Does Harlow get breakfast lunch and supper or just breakfast and supper?
How often do you provide free access to water?
I like to learn, thanks !
I love your vlogs you inspire me to get back up and try again and keep moving forward we all have a hero and you are mine🤗🤗🤗
I'm a morning shower person, and my roommate is an evening shower person, also, hope you're feeling better!
😭😭 hate that this happened, no one should have to deal with any of this. At least it worked effectively and you were able to go home with out going to the ER. Prayers with you ✨😇🙏🐾
Omg the 'back' was so cute. My dog just steps back or scoots back on her butt XD
I am a evening shower person! What an interesting time at Target....but I'm so glad you guys were able to stop the reaction! Have a good, relaxing night and stay strong💪❤
Were you able to identify what caused the reaction? I do understand that you needed the IV first... But do you also need to flee the locale to avoid the source that caused it? Not judging, just curious.
R.I.P Jaqicky
I am a morning shower person. I love your spirit!!
The heparin could probably wait until you were safe...I can't use heparin at all so I actually have a Groshong port...the valve prevents blood reflux into the catheter and allows for saline only. If I weren't accessed all the time, I'd also only have to flush it every three months!
2:07 Your "play" was not intended as a command, right?
Well done, Judd!
11:41 VOLUME SPIKE!
If you have saline flushes keep the white cap. Use the white cap on the Syringe (needless). Work as a paramedic use this trick all the time
First time I have seen your feed, your dog is so pretty, and I am in love with your pill pack. I too have a mini pharmacy and several times during the day have to take meds so I love your time slots. I also am curious now about the otc med your take for migraines. Will have to see if it can work for my chronic migraines. Total side note, not sure what all you have going in (need to watch the intro video you suggested) but I saw a mask like yours today. First time I had ever seen one like that. Made me curious about it. Why do you use yours?
judd is so amazing to you!! ❤️
I used to work for target, and I have reason to believe that the bathrooms should have a sharps disposal container ... but I could be mistaken. Just a thought!
CloverStar 24 Do you know how many addicts would be breaking them things up?
I'm an In The Evening Showerer. Lol
Oh, and those cinnamon rolls are making my mouth water!!!!
I am always the last person to shower at night, but its partially because I dont feel temperature and unintentionally use up all the hot water.
sometimes it depends on my mood like if i feel like a spy/rebel i take a shower in the middle of the night while everyone is asleep trying not to wake them up😂😂😂
Hi there! I was just curious of what it is you're allergic to! You may have said it in the video, and I just missed it, but I just wanted to know :) best of luck.
i carry liquid zyrtec and inhaler as well as having an emergency prednisone in my pill box.
"This is not a thing. No." I'm the same way.. 😂
if you put the rolls in a tin , squished all together and cover with tinfoil they stay moist. Let them cool for 5*10 minutes then put the frosting on it wont melt as much. I like to add raisins or other dried fruit to them. it softens as it bakes. Tin foil
The both of us together makes a great live partner team😁😘
I ment the both of u...lol🤣
Such a pretty young lady & she doesn't deserve this. I have PTSD & POTS & hate it.
i wash in the morning, at night and in between if i need to go somewhere
I found it so cute when Harlow got excited to go out, it's like she knew how happy you were to be outta the house😊 and according to my bro I'm a 'spontaneous' shower person😆 meaning I shower day or night no matter how late or early it is😅😂
Evening shower, morning hair-washing because I sometimes have night sweats and my hair is filthy when I wake up.
Im kind of late on this, but they do sell actual syringe carrying cases for around $6-8
Don’t you have to get your port reaccessed every week if you leave it in 24/7? To prevent infection
Wouldn’t it be a concern transporting around drawn up meds as they could get contaminated?
I have awful headaches and can't stand most days and dizzy so showers very
Bless you guys
No double door policy at the dog park???
This might be a dumb question in my part, but what causes your reactions? I'm new to your channel (love you and Harlow!) and I've never really figured it out
I react sometimes to fireworks smoke and always to food cooked in aluminum foil. Plus other stuff.
Q 10 is also good for the heart. I just wonder if you have tried acupuncture, it has help me for a lot of things. Blessings to you both.
is there a video on how they met?
I have a lung condition, so colds hit me worse as well due to it can get more difficult to breathe.
I shower in the evening mainly because I have a 4 month old baby and my husband goes to work early so I never have time to shower until he gets home!
You may have this posted elsewhere...but I'm wondering where you buy your face masks. I saw 1 gal with one over a year ago in Winco grocery, but haven't seen another since. I currently own 3 from Breathe Healthy because they have antimicrobial in the fabric and are also washable. Thanks! :)
She gets them from VogMask :)
Thanks!!
I'm glad the IV Benadryl did the trick! Good job to Jud and Har for being your awesome team 👍🏻 I'm a night shower taker as well! I love washing the day away and I feel like the steam is just refreshing/relaxing for my skin and muscles. I wanted to ask about your migraine headaches. I also suffer from them a lot, I've been seeing a neuro for about 6 years and my migraines have changed as I've aged (I'm almost 20) I've tried lots of different meds, and my doc is recommending Botox but I'd like to try more stuff before making that big leap. Do you know what triggers your migraines? So far we only have environmental causes, no brain abnormalities at all. What do you use if you don't mind sharing? ☺️
Forgot to mention my other trigger is neck tension, hence her pushing the Botox. 😅
My migraines come from my Ehlers Danlos Syndrome. My neck is very hypermobile due to my EDS, which causes nerve pain, inflammation and tension. All my migraines come from that. My EDS doctor at Mayo will be giving me Botox with a hypermobility protocol in March!
Jaquie Blake I wonder what else would cause tension. 🤔 I only see my neuro, so not many other opinions to choose from. 😩
I get headaches/migraines constantly and I have disc degeneration and cervical stenosis and I have been diagnosed with all that in 4 months and I’ve had headaches for 6 minths
I shower both in the morning and in the evening. Does that make me weird?
I always switch it up. Depending on how I feel.
my diabetic friend said an empty water bottle works ok for a sharps container if you are in a pinch
I have been having the hardest time finding a face mask that works for me. What type do you use and where can i get one?
During a school week i shower at night but on a weekend i shower in the mornings because about 95% of the time i go out with friends
Is it possible for you to do a video about your filming??? Camera, editing, lighting, etc ???
It upsets me that zofran doesnt work for me because it's always the first thing they want to give.
what are you allergic to?
Curious but when alone and you get a attack does Harlow bring your meds? Or can you never be alone?
Im a mid day / night shower-er because i get home from school at 3:30pm usually
so i can take a mid day shower if i'm feeling stressed from food.
Morning shower person. It wakes me up and plus my hair gets oily if I dont take it in the morning.
What is Harlow for?