It is not always that easy to just find another doctor. In my area, there are so few Rheumatologists that it took me 8 months to get an appointment. This is after the pre-screening paperwork I had to complete and the bloodwork my Primary Care Physician took. I already have one diagnosed autoimmune disease, Hoshimoto's, that is treated by an endocrinologist. He suggested from my other symptoms, that I had Sjogren's. Now I have found out, through my Gastroenterologist that she is fairly sure I have Autoimmune Hepatitis, which I didn't even know was a thing. My oldest sister had a horrible case of RA that ended up killing her by the age of 54. I have my first appointment with a Rheumatologist tomorrow and I hope it goes well b/c I am getting worse by the day.
I have Sarcoidosis, I was diagnosed 25 years ago and it's gotten worse over the last 6 years. I see many of these Dr's. It's in my lungs, eyes, pancreas, lymp nodes, skin. Now It's become neuro Sarcoidosis.
@@rheumatologistoncall I am from india and respect you whole heartedly for your efforts to educate us about Auto immune diseases thank you Mam and i am sharing these videos with my daughters who have completed mbbs and to my friends .
Thank you so much. I live in Virginia in the VA Beach area and they have some lousy Dr's and the rheumatologist refuse to treat you I lived in Maryland and I had the best rheumatologist and the National Institute of Health offered him a job and he left that practice and is now there working!
Thank you doctor! I have so many symptoms of psoriatic arthritis and I have been referred to rheumatologist. I feel hopeful now.. already have idiopathic chronic pancreatitis.. I feel so frustrated.. ty
Rheumatologist don't care how many symptoms you have had or the actual physical manifestations. All they care about are those bloodwork numbers and if you don't have them you can have enlarged salivary glands, fingers that turn nearly black when you're cold like Reynards syndrome and still not get treated and even be told there's nothing wrong with you go have a good life. I have zero respect for this profession. By the time you meet their criteria you have to have medication's at such high doses that you can develop cancer and a whole host of other side effects. If they would treat patient sooner they could use smaller doses of these serious medication's. Something has to change but it won't be during my lifetime.
I had my first appointment today with a wonderful rheumatologist. First of all, he listened and paid attention to me. I felt so validated. If your experiences have been that bad, you need to shop for a new doctor.
@@annatapl i've been to two of them and I have an appointment for now a third one. Frankly I've just lost hope. They don't seem to care that I've had 37 eye infections in a little over four years and now my submandibular glands and parotid glands are enlarged and when they did the saliva test I have almost none. Not to mention all the other symptoms with skin, joints and a lot of random other things. For doctors it's all about your blood work and I have been on the autoimmune diet for four years so I may never have that blood work and so they don't care how uncomfortable I am around my neck and that my speech is messed up from my dry mouth. I always test negative for Sjogren's syndrome.
@@kdani11307982sorry you are going through this. I was diagnosed with Sjogrens by an Sjogrens expert. I did not have positive antibodies for Sjogrens, but high Ana. She told me you can have Sjogrens without having the Sjogren antibodies.
I have encountered many people who have had a bad experience like that. Always seek a new opinion until you find someone who helps you. It is your right to ask for another opinion.
Thank you for your clear and concise explanation of the curious world of autoimmune diseases. Have SS. ~ diagnosed as fibro and polymyalgia initially. From a cold and windy Cape Town.
Thank you for highlighting Psoriatic Arthritis! I feel like this disease is not well known and often forgotten or pushed aside by the more commonly known RA. I look forward to watching more of your videos!
@@rheumatologistoncall yes Dr. I have been watching your videos all about sjogrens and they are really helpful. Thank you for all your efforts. Appreciate a lot
As someone who has Celiac Disease I feel that Celiac Disease should be included on your list of Autoimmune Diseases. We suffer all the same symptoms you are describing.
Thank you for sharing your perspective on Celiac Disease. It's crucial to raise awareness about the symptoms and challenges faced by those with this condition.
Excellent content, presentation. Have shared in my groups. Appreciate your efforts in proper education to general public. Timely diagnosis and an experienced dr like you is the solution. Seven essentials for good health helps to prevent or cure Lifestyle Disorders. I guide people free
Thanks so much. I suffered skin disease at 73 no one knew why. I thought I would die. Finally dermatologist started me on Dupixent. But this is not whole cure. I think I am allergic to titanium dental implants I got at 71. Finally I am going to get metal testing. I bet if implants are removed my skin and severe walking problems will disappear. I thought I was only person in world with my very painful symptoms so I AM HAPPY there are rheumatologists who find an answer for people who have diseases their patients may not even have heard of before.
I got out of 5 day hospital stay a week ago where they drained over a litre of excess cerebral spinal fluid from me. They plan to place shunt to resolve my Normal Pressure Hydrocephalus which in my case also heightened allergic skin condition. At least I can walk again. Dupixent was harmful for me after my urgent eczema condition was resolved. @@MagicalButterflySpirit
I am a 70 year old woman suffering greatly with joint and muscle pain. I was dx woth SLE and Mixed Connective Disease. My primary doctor doesn't really help me or help me find a doctor for help. I have gone from a walker to a wheel chair just to go to the doctor. I have lost myself. If i could only find a doctor to help me!😢
You are not alone. I miss my old self. I can't stand this trapped body. It's like jail at home. Drs have been zero help. Meds are horrid. R/A fighter, 2nd year, I still have a hard time believing I have this. I force myself to move my lymph system. Take herbs, and vitamins, and try to eat as clean as possible, being that I can no longer open anything like Tupperware, have they gotten tighter? 😂 Drs want me to get on biologics and I don't want to. Trying to save money for my wellness chiropractor, fabulous experience. All goes back to the spine. I've learned more from others than anywhere else. Real people, real results. Light hugs and prayers for all those suffering. Went to a family reunion and found out that a whole side of my cousins have one form of autoimmune disorders. Blew my mind. All across the country, so what is it? Food, water, air? All of the above? I don't know. Just fighting mad. Castor oil is amazing. Grated ginger compress literally helps with inflammation!! As does a grated potato for pain. I guess it gives the section nutrients that aren't making it to the area. Been using castor oil for my bone spurs on my feet and have watched them shrink.
Thank you, I have a niece who they tell has POTS, however she has muscle problems in her legs, has long QT, passes out because her blood pressure is all over the place, has high methane in her body, has heart pain etc...but because she is on her twenties, they disregard all that. Told her to eat more salt. No one seems to take her seriously. I worry about her.
@@reh303 I have been following a carnivore/keto diet I found through Dr Ken Berry on You Tube. In so many ways I feel great but I cannot shake the fatigue.
I have lichen planus for more than a decade. It has spread all over my body now. Never been able to know why it is spreading and coming again and again and affecting my skin badly. No doctors could help me till now. If you can guide in my problem that would be a great help.
Hi doctor , i have pain which is moving all over the body. My hands, arms, legs, calf muscle, knees all ache suddenly. Pain comes and goes. And while walking knee pain and calf pain occurs with burning sensation. I am 32 years old. Hyperactive person, suddenly i have started to develop all this. Can you please help me as what it could be doctor?
Hello mam, I have had rashes for a while now. I’m not sure what I’m facing. Could you please help me out? I did take treatment from a dermatologist, but nothing seems to work.
Thank you doctor! I have so many symptoms of psoriatic arthritis and l have been referred to rheumatologist.I feel hopeful now already have idiopathic chronic pancrea..read more
It's great to hear that you found a lotion that works for you! Managing Sjogrens and Scleroderma can be tough, but sharing tips like this really helps the community.
I have pemphigas volgaris autoimmune disease effect my skin dry mouth and dry eyes from 2017 I used prednisone and Mycophenolate but it does not work could you please tell me if there is any treatment for my case
I'm sorry to hear about your struggles with pemphigus vulgaris. It's important to consult with your healthcare provider for the best treatment options.
@@IkhlasAlkhabaz my husband had pemphigus vulgaris...i dont know what he used but its all gone Its surprising thereafter i have multiple sclerosis, my son mystenia Gravis, my daughter sle....we suffering with these conditions I find it strange
Hello doctor, I have a skin condition called granuloma annulare. It appeared 2 years ago. Would this be related to autoimmune disease? Thank you, from NZ
Hi, I was been dealing with sjogren's for almost 3 years, my ssa antibody levels be up and down, recently my doctor test my subclass blood work and my subclass 1 and 3 was high, is that normal with sjogren's
Thanks for sharing your experience! Fluctuating SSA antibody levels can be common with Sjögren's, but it's always best to discuss your specific results with your doctor for personalized insights.
In urma v. din clasa a opta am făcut sclerodermie localizată. Un coleg a facut cancer osos și nu a apucat sa termine liceul. Mie mi-au descoperit după ce am stat la soare pentru că se observau mai bine, două bubițe și asa am crezut că de la soare i s-a declanșat și colegului cancerul. Deși medicii dermatologi nu au recomandat biopsia, mama mea a hotarât investigarea mai departe pentru că se temea de cancer. La biopsie a iesit sclerodermie localizată, cum au spus trei medici dermatologi, dintre care unul era Prof.Dr. Pe la 31 de ani m-am gândit să fac v. antigripal ca să pot să ingrijesc mai bine de copii, sa nu răcesc, cel mic avea cinci ani si era f. energic. Ghinion, am dezvoltat SLE, la mai putin un an de la v. Inainte cu șase luni fusesem diagnosticatâ cu celiachie, că eram curioasă dacă am, fiind la modâ investigația. Când am avut prima fază acută de SLE, trecuseră 6 luni de când țineam regim fără gluten si am rugat pe dr. dacă tot imi ia sange sa-mi ia și pt. celiachie. Mi-a spus că nu imi ia, că nu are nici un rost ca "acuma toti anticorpii sunt măriti". Și uite-așa mi-am dat seama că nu am nici o celiachie, iar anticorpii aceia nu sunt specifici, cum se susținea pe atunci. De atunci nu am mai ținut regim fara gluten, oricum imi era greu să-l țin. Mama mea a facut v. antigripal la 72 de ani, tot primul si ultimul din viața ei, pentru ca s-a temut de noua boală și nu voia sa facă noile v, și in șase luni a făcut embolie pulmonară si trebuie sa ia tratament pe viață. Hematologul zice că are trombofilie genetică (bine că pâna la 72 de ani nu a avut nimic) și tare s-a mai mirat că are copii pentru că din punctul lor de vedere ar fi trebuit sa fie infertilă. Dar nimeni din familia noastră si inaintașii nostri nu sunt si nu au fost infertili. Toți avem copii si i-am avut fix când ni i-am dorit. Parinții mei nu au boli autoimune, doar bunicii au avut: bunicul din partea mamei psoriazis a facut si artrită psoriazică la batrânețe,, iar bunica din partea tatalui a avut artrita reumatoidă, eu mă gandesc că poate SLE era, pentru că nu a avut modificări ale articulațiilor degetelor de la mâini sau picioare si de câte ori o duceau parintii mei la medic, toți ziceau că nu ii găsesc nimic. Pentru ca să facă exerciții cu degetele, un medic i-a recomandat să tricoteze și ne-a făcut fulare, șosetuțe și veste la toți nepoții.
Din păcate mă tratez singurâ. Am un lupus "ușor", fără afectare organicâ, presupun. În zona în care locuiesc sunt puțini reumatologi și nu mă primesc deși le zic că nu mă pot mișca, primesc programare sa mă vadă peste trei luni, de regulă. O dată totuși am primit peste o lună, când a intervenit cineva. Dar când abia mai poți face un pas, o lună calendaristică e prea mult. De unde să știm câ nu fac chiar o afectare organică la o acutizare, cum sa mă primească peste trei luni? Așa că nu le-am văzut fața niciunuia din cei doi din zona noastră. Așadar iau singură cortizon până imi trece. Am găsit un spital la vreo 70 km, dar mi-e greu și acolo sa ajung, având în vedere că nu conduc pe distanță lungă, iar legatura nu e bună, doar dacă lipsește și soțul de la serviciu pentru mine pot ajunge la spital pentru monitorizare. Așa că nici acolo nu merg din 2019. Ultimii 7-8 ani am luat anual cortizon. Hidroxiclorochină am teamă să iau pentru efecte secundare, când am luat m-am simțit rău și valorile de la ficat n-au ieșit bine. Cortizon iau când ajung să nu mai pot merge. În rest iau ce e natural. Rugați-vă pentru mine!
Im in Jamaica an i would love your advice from the age of 14 yrs my knees were the first thing to hurt then at age 20 pain all over started an at the age at 23 i get pregnant thats when i really go sick cant move or walk my fingers would slip out the joint when i eat my jaw hurts if you touch my wrist i feel a electric shock up my hand to my shoulder i cant go in the sun or take heat i feel pins an needles all over my body or ants biting me all over an it itches an my new symptom now started 2019 an getting worst if anything rest on my skin like my bra or underwear or if i sit anything squeeze me i have wheals (lumps) of reddened, raised and itching skin its my breast , waist my tights an the back of my tights an my legs an it itches very very very badly an creams or Antihistamine dont work what do you think i should tell the doctor to test for please plus i dont sleep for days all my life an if i do i cant sleep more then 4 hrs an i wake 6 to 8 times i have Insomnia please help me
Hi ma'am Iam 42 yrs i have inflammation in my left eye orbit, 2 time biopsy is done My doctor told that this is a high level of WBC problem, they made the samples for testing by pathology in 2 centre s but both pathology s they gave different reports they one is RDD diseases and the other one ECD diseases Now my doctor rheumatologist recommended dr hematologist Now he said and gave few pills that is a steroids , it is also rare diseases so no option u must continue this but in medical field still there is no medicine still found for this, so iam scared to take this steroids , so please suggest me wht to do further, iam frm India.
Hi doctor, my brothers leg fingers turned black and doctor asked us to take ANA test and it suggested SLE and now doctor only gave some medicines but he is in lot of pain
Basically, you can get into a rheumatologist quickly by paying cash. If insured, you could wait months to be seen as insurance has to ok the referral. If not insured, you could wait forever. After all that, if labs come back normal, you are often dismissed.
Some of y'all have clearly seen horrible people who happen to be rheumatologists. For once I am grateful to live in Baltimore because I have access to Hopkins, and my rheumatologist is both a good person and a good doctor.
It is not always that easy to just find another doctor. In my area, there are so few Rheumatologists that it took me 8 months to get an appointment. This is after the pre-screening paperwork I had to complete and the bloodwork my Primary Care Physician took. I already have one diagnosed autoimmune disease, Hoshimoto's, that is treated by an endocrinologist. He suggested from my other symptoms, that I had Sjogren's. Now I have found out, through my Gastroenterologist that she is fairly sure I have Autoimmune Hepatitis, which I didn't even know was a thing. My oldest sister had a horrible case of RA that ended up killing her by the age of 54. I have my first appointment with a Rheumatologist tomorrow and I hope it goes well b/c I am getting worse by the day.
I understand!
Thank you for watching my channel!
I have Sarcoidosis, I was diagnosed 25 years ago and it's gotten worse over the last 6 years. I see many of these Dr's. It's in my lungs, eyes, pancreas, lymp nodes, skin. Now It's become neuro Sarcoidosis.
I love this Rheumatogist she explain well I have PSA TOO SINCE OCT 2022 HE IS GOOD ESPECIALIST
thank you so much for being part of my community!
a video about PsA comes out this month!
@@rheumatologistoncall I am from india and respect you whole heartedly for your efforts to educate us about Auto immune diseases thank you Mam and i am sharing these videos with my daughters who have completed mbbs and to my friends .
Thank you so much. I live in Virginia in the VA Beach area and they have some lousy Dr's and the rheumatologist refuse to treat you
I lived in Maryland and I had the best rheumatologist and the National Institute of Health offered him a job and he left that practice and is now there working!
Thank you so much for watching my channel!
What's his name? Could you try John Hopskins Hospital?
Thank you doctor! I have so many symptoms of psoriatic arthritis and I have been referred to rheumatologist. I feel hopeful now.. already have idiopathic chronic pancreatitis.. I feel so frustrated.. ty
Rheumatologist don't care how many symptoms you have had or the actual physical manifestations. All they care about are those bloodwork numbers and if you don't have them you can have enlarged salivary glands, fingers that turn nearly black when you're cold like Reynards syndrome and still not get treated and even be told there's nothing wrong with you go have a good life. I have zero respect for this profession. By the time you meet their criteria you have to have medication's at such high doses that you can develop cancer and a whole host of other side effects. If they would treat patient sooner they could use smaller doses of these serious medication's. Something has to change but it won't be during my lifetime.
Whoa not all are like that. I have a wonderful rheumatologist.
I had my first appointment today with a wonderful rheumatologist. First of all, he listened and paid attention to me. I felt so validated. If your experiences have been that bad, you need to shop for a new doctor.
@@annatapl i've been to two of them and I have an appointment for now a third one. Frankly I've just lost hope. They don't seem to care that I've had 37 eye infections in a little over four years and now my submandibular glands and parotid glands are enlarged and when they did the saliva test I have almost none. Not to mention all the other symptoms with skin, joints and a lot of random other things. For doctors it's all about your blood work and I have been on the autoimmune diet for four years so I may never have that blood work and so they don't care how uncomfortable I am around my neck and that my speech is messed up from my dry mouth. I always test negative for Sjogren's syndrome.
@@kdani11307982sorry you are going through this. I was diagnosed with Sjogrens by an Sjogrens expert. I did not have positive antibodies for Sjogrens, but high Ana. She told me you can have Sjogrens without having the Sjogren antibodies.
I have encountered many people who have had a bad experience like that. Always seek a new opinion until you find someone who helps you. It is your right to ask for another opinion.
Thank you for your clear and concise explanation of the curious world of autoimmune diseases.
Have SS. ~ diagnosed as fibro and polymyalgia initially.
From a cold and windy Cape Town.
Glad it was helpful!
Thank you for highlighting Psoriatic Arthritis! I feel like this disease is not well known and often forgotten or pushed aside by the more commonly known RA. I look forward to watching more of your videos!
Thank you Dr. I was diagnosed with Sjogrens syndrome since 2019
Thank you for watching,. You have many videos on Sjogren's in my channel. Please enjoy them!
@@rheumatologistoncall yes Dr. I have been watching your videos all about sjogrens and they are really helpful. Thank you for all your efforts. Appreciate a lot
Im also sjogrens syndrome since 2020 it's serious? How can I maintain it?
As someone who has Celiac Disease I feel that Celiac Disease should be included on your list of Autoimmune Diseases. We suffer all the same symptoms you are describing.
Thank you for sharing your perspective on Celiac Disease. It's crucial to raise awareness about the symptoms and challenges faced by those with this condition.
Excellent content, presentation. Have shared in my groups. Appreciate your efforts in proper education to general public. Timely diagnosis and an experienced dr like you is the solution. Seven essentials for good health helps to prevent or cure Lifestyle Disorders. I guide people free
Thank you for sharing and spreading the word!
Thanks so much. I suffered skin disease at 73 no one knew why. I thought I would die. Finally dermatologist started me on Dupixent. But this is not whole cure. I think I am allergic to titanium dental implants I got at 71. Finally I am going to get metal testing. I bet if implants are removed my skin and severe walking problems will disappear. I thought I was only person in world with my very painful symptoms so I AM HAPPY there are rheumatologists who find an answer for people who have diseases their patients may not even have heard of before.
Update on the metal allergy test? I hope you’re doing better.
I got out of 5 day hospital stay a week ago where they drained over a litre of excess cerebral spinal fluid from me. They plan to place shunt to resolve my Normal Pressure Hydrocephalus which in my case also heightened allergic skin condition. At least I can walk again. Dupixent was harmful for me after my urgent eczema condition was resolved. @@MagicalButterflySpirit
Thank you for doing this . God Bless you .
You are so welcome
I am a 70 year old woman suffering greatly with joint and muscle pain. I was dx woth SLE and Mixed Connective Disease. My primary doctor doesn't really help me or help me find a doctor for help. I have gone from a walker to a wheel chair just to go to the doctor. I have lost myself. If i could only find a doctor to help me!😢
I'm 71 years old and I totally understand what you're saying. Especially when you say that you have lost yourself. I feel that way so often
Thank you for watching my channel!
Please share with others to share the knowledge!
You are not alone. I miss my old self. I can't stand this trapped body. It's like jail at home.
Drs have been zero help. Meds are horrid. R/A fighter, 2nd year, I still have a hard time believing I have this. I force myself to move my lymph system. Take herbs, and vitamins, and try to eat as clean as possible, being that I can no longer open anything like Tupperware, have they gotten tighter? 😂
Drs want me to get on biologics and I don't want to.
Trying to save money for my wellness chiropractor, fabulous experience. All goes back to the spine.
I've learned more from others than anywhere else. Real people, real results.
Light hugs and prayers for all those suffering.
Went to a family reunion and found out that a whole side of my cousins have one form of autoimmune disorders. Blew my mind.
All across the country, so what is it? Food, water, air? All of the above? I don't know.
Just fighting mad.
Castor oil is amazing. Grated ginger compress literally helps with inflammation!! As does a grated potato for pain. I guess it gives the section nutrients that aren't making it to the area.
Been using castor oil for my bone spurs on my feet and have watched them shrink.
@@JustJulesAgain I will try the castor oil and ginger. Thanks for sharing that info. I hope you get help soon. 🙏🏼🩷
@@Mari-B it works get cbd oil drops
Thank you, I have a niece who they tell has POTS, however she has muscle problems in her legs, has long QT, passes out because her blood pressure is all over the place, has high methane in her body, has heart pain etc...but because she is on her twenties, they disregard all that. Told her to eat more salt. No one seems to take her seriously. I worry about her.
Thanks!
SIMO. Bad bacteria.
Thank you I have most of these
Thank you for your kind words! I appreciate your support.
Thank you very much for this very important information
Thank you so much
I have undifferentiated connective tissue disease and Sjogren's
Thank you for watching my channel!
Please share with others to share the knowledge!
@@lisamessenger3713 i have Sjogren's
I have myasthenia gravis. The fatigue and muscle pain is awful.
I'm sorry to hear that. Myasthenia gravis can be really challenging to deal with.
@@Teenibash1969 I have Lambert-Eaton myasthenic syndrome, which is very similar, and the fatigue is definitely no joke.
@@reh303 I have been following a carnivore/keto diet I found through Dr Ken Berry on You Tube. In so many ways I feel great but I cannot shake the fatigue.
I have been diagnosed with GPA rare type of Vasculitis.😢
I have lichen planus for more than a decade. It has spread all over my body now. Never been able to know why it is spreading and coming again and again and affecting my skin badly. No doctors could help me till now. If you can guide in my problem that would be a great help.
I'm sorry to hear about your struggle with lichen planus. It must be really tough dealing with it for so long. I am not treating this disease
Me spasm always twisting my. Feet and hands o have lot doctor but my sick is not cure
Thank you for the information
I'm glad you found the information helpful!
Thanks Dr. ❤
Most welcome!
Hi doctor , i have pain which is moving all over the body. My hands, arms, legs, calf muscle, knees all ache suddenly. Pain comes and goes. And while walking knee pain and calf pain occurs with burning sensation. I am 32 years old. Hyperactive person, suddenly i have started to develop all this. Can you please help me as what it could be doctor?
It's important to consult a healthcare professional for an accurate diagnosis and appropriate treatment.
Maybe fibromyalgia minutes or MS?
Hello mam, I have had rashes for a while now. I’m not sure what I’m facing. Could you please help me out? I did take treatment from a dermatologist, but nothing seems to work.
Thank you doctor! I have so many symptoms of psoriatic arthritis and l have been referred to rheumatologist.I feel hopeful now already have idiopathic chronic pancrea..read more
That's great news! Hope you get the right treatment and feel better soon.
@@dhonapangi1272 hello my mother has liver disease and itchy skin all over day and especially night. What or who can she see
Thank you I have most of these.
I have psirriacic only right diet and tremdous excercise have to control my auto immune deases
It's great to hear that you're taking control of your health with the right diet and exercise!
Meningo encephalitis panel negative auto immune. Please explain doctor
Thank you! Please subscribe to my channel!
Thank you doctor for insights!! What about Pemphigus foliaceous ?
I appreciate that!THANK YOU!!!
What about polymyositis? My daughter has been diagnosed 10 years ago.
check my videos, thanks
I have Sjogrens and Scleroderma, my fingers seem to burn lately. It took a little trial and error, I found d a lotion that works.
It's great to hear that you found a lotion that works for you! Managing Sjogrens and Scleroderma can be tough, but sharing tips like this really helps the community.
@@patbowers4180 which cream?
I have pemphigas volgaris autoimmune disease effect my skin dry mouth and dry eyes from 2017 I used prednisone and Mycophenolate but it does not work could you please tell me if there is any treatment for my case
I'm sorry to hear about your struggles with pemphigus vulgaris. It's important to consult with your healthcare provider for the best treatment options.
@@IkhlasAlkhabaz my husband had pemphigus vulgaris...i dont know what he used but its all gone
Its surprising thereafter i have multiple sclerosis, my son mystenia Gravis, my daughter sle....we suffering with these conditions
I find it strange
Hello doctor, I have a skin condition called granuloma annulare. It appeared 2 years ago. Would this be related to autoimmune disease? Thank you, from NZ
It's important to discuss your concerns with your RA specialist and explore all treatment options available to you.
Any recommendations
Madam,I am suffering vitiligo disease since 3years ago, is anything for me please.
check my videos....
What can you do about it?
They can run a blood test and prescribe meds. Doctors…
Hi, I was been dealing with sjogren's for almost 3 years, my ssa antibody levels be up and down, recently my doctor test my subclass blood work and my subclass 1 and 3 was high, is that normal with sjogren's
Thanks for sharing your experience! Fluctuating SSA antibody levels can be common with Sjögren's, but it's always best to discuss your specific results with your doctor for personalized insights.
In urma v. din clasa a opta am făcut sclerodermie localizată. Un coleg a facut cancer osos și nu a apucat sa termine liceul. Mie mi-au descoperit după ce am stat la soare pentru că se observau mai bine, două bubițe și asa am crezut că de la soare i s-a declanșat și colegului cancerul. Deși medicii dermatologi nu au recomandat biopsia, mama mea a hotarât investigarea mai departe pentru că se temea de cancer. La biopsie a iesit sclerodermie localizată, cum au spus trei medici dermatologi, dintre care unul era Prof.Dr. Pe la 31 de ani m-am gândit să fac v. antigripal ca să pot să ingrijesc mai bine de copii, sa nu răcesc, cel mic avea cinci ani si era f. energic. Ghinion, am dezvoltat SLE, la mai putin un an de la v. Inainte cu șase luni fusesem diagnosticatâ cu celiachie, că eram curioasă dacă am, fiind la modâ investigația. Când am avut prima fază acută de SLE, trecuseră 6 luni de când țineam regim fără gluten si am rugat pe dr. dacă tot imi ia sange sa-mi ia și pt. celiachie. Mi-a spus că nu imi ia, că nu are nici un rost ca "acuma toti anticorpii sunt măriti". Și uite-așa mi-am dat seama că nu am nici o celiachie, iar anticorpii aceia nu sunt specifici, cum se susținea pe atunci. De atunci nu am mai ținut regim fara gluten, oricum imi era greu să-l țin. Mama mea a facut v. antigripal la 72 de ani, tot primul si ultimul din viața ei, pentru ca s-a temut de noua boală și nu voia sa facă noile v, și in șase luni a făcut embolie pulmonară si trebuie sa ia tratament pe viață. Hematologul zice că are trombofilie genetică (bine că pâna la 72 de ani nu a avut nimic) și tare s-a mai mirat că are copii pentru că din punctul lor de vedere ar fi trebuit sa fie infertilă. Dar nimeni din familia noastră si inaintașii nostri nu sunt si nu au fost infertili. Toți avem copii si i-am avut fix când ni i-am dorit. Parinții mei nu au boli autoimune, doar bunicii au avut: bunicul din partea mamei psoriazis a facut si artrită psoriazică la batrânețe,, iar bunica din partea tatalui a avut artrita reumatoidă, eu mă gandesc că poate SLE era, pentru că nu a avut modificări ale articulațiilor degetelor de la mâini sau picioare si de câte ori o duceau parintii mei la medic, toți ziceau că nu ii găsesc nimic. Pentru ca să facă exerciții cu degetele, un medic i-a recomandat să tricoteze și ne-a făcut fulare, șosetuțe și veste la toți nepoții.
Din păcate mă tratez singurâ. Am un lupus "ușor", fără afectare organicâ, presupun. În zona în care locuiesc sunt puțini reumatologi și nu mă primesc deși le zic că nu mă pot mișca, primesc programare sa mă vadă peste trei luni, de regulă. O dată totuși am primit peste o lună, când a intervenit cineva. Dar când abia mai poți face un pas, o lună calendaristică e prea mult. De unde să știm câ nu fac chiar o afectare organică la o acutizare, cum sa mă primească peste trei luni? Așa că nu le-am văzut fața niciunuia din cei doi din zona noastră. Așadar iau singură cortizon până imi trece. Am găsit un spital la vreo 70 km, dar mi-e greu și acolo sa ajung, având în vedere că nu conduc pe distanță lungă, iar legatura nu e bună, doar dacă lipsește și soțul de la serviciu pentru mine pot ajunge la spital pentru monitorizare. Așa că nici acolo nu merg din 2019. Ultimii 7-8 ani am luat anual cortizon. Hidroxiclorochină am teamă să iau pentru efecte secundare, când am luat m-am simțit rău și valorile de la ficat n-au ieșit bine. Cortizon iau când ajung să nu mai pot merge. În rest iau ce e natural. Rugați-vă pentru mine!
Imi pare rau!
Im in Jamaica an i would love your advice from the age of 14 yrs my knees were the first thing to hurt then at age 20 pain all over started an at the age at 23 i get pregnant thats when i really go sick cant move or walk my fingers would slip out the joint when i eat my jaw hurts if you touch my wrist i feel a electric shock up my hand to my shoulder i cant go in the sun or take heat i feel pins an needles all over my body or ants biting me all over an it itches an my new symptom now started 2019 an getting worst if anything rest on my skin like my bra or underwear or if i sit anything squeeze me i have wheals (lumps) of reddened, raised and itching skin its my breast , waist my tights an the back of my tights an my legs an it itches very very very badly an creams or Antihistamine dont work what do you think i should tell the doctor to test for please plus i dont sleep for days all my life an if i do i cant sleep more then 4 hrs an i wake 6 to 8 times i have Insomnia please help me
thanks
Thyroid anti body tpo is treatable l have infertility from last 8 years because of tpo can i conceive naturally? 2iui and 2ivf fail
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What about Sarcoidosis please ?
we will talk about that too
About goint cell arthritis
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Dr good morning doctor my name imrana. I am female Dr last 3 Year to survive auto immune hemo latic anima plz help me
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My wife 32 years old she brain cells damaging and nerves are weeked plz tell solutions doctor
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Hi ma'am
Iam 42 yrs i have inflammation in my left eye orbit, 2 time biopsy is done
My doctor told that this is a high level of WBC problem, they made the samples for testing by pathology in 2 centre s but both pathology s they gave different reports they one is RDD diseases and the other one ECD diseases
Now my doctor rheumatologist recommended dr hematologist
Now he said and gave few pills that is a steroids , it is also rare diseases so no option u must continue this but in medical field still there is no medicine still found for this, so iam scared to take this steroids , so please suggest me wht to do further, iam frm India.
i usually do not recommend that diet
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Before 3 months my ANA hep 2 came positive, but before 4 days mine ENA Profile test came negative.... What will be the reason for this
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Hi doctor, my brothers leg fingers turned black and doctor asked us to take ANA test and it suggested SLE and now doctor only gave some medicines but he is in lot of pain
I'm sorry to hear about your brother's condition. It's important to follow the doctor's advice and continue monitoring his symptoms closely.
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I am 44 year old ,i suffering arthritis
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You forget behçet ...
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Know someone who goes to the toilet many times a day he is now diagnosed .
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Basically, you can get into a rheumatologist quickly by paying cash. If insured, you could wait months to be seen as insurance has to ok the referral. If not insured, you could wait forever. After all that, if labs come back normal, you are often dismissed.
Some of y'all have clearly seen horrible people who happen to be rheumatologists. For once I am grateful to live in Baltimore because I have access to Hopkins, and my rheumatologist is both a good person and a good doctor.
@@lisamessenger3713¹ 13:21
Meningo encephalitis panel negative auto immune. Please explain doctor
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