As someone who struggled with chronic illness since I was sixteen and learned that I had better take charge for my own health, that no doctor or love one could care as much as I do. I accepted my fate and my own healing as much as possible. Indeed Your words reflected some of my journey. I am grateful each day I had the realization to become responsible for my health, and yes, this is a miracle even if it means I had to cry so much, work hard to get here even against naysayers and experts. I really like the part of not letting our emotions get the best of us, balance of emotions and perseverance are the key.
You bring me to tears! You are the hope the world needs so desperately right now. Your story changed my life and the way I think. As a nurse by profession I understand the deep rooted grounding in science blended with spiritual and emotional health but never made the connections in my own life and thinking. I thank God you.
Thank you for sharing that, Justin! I have a speech tomorrow and because of the audience and topic I was debating whether to zoom in on authentic hope and its power. I will now that I've read your comment. Best to you, Doug
You are awesome! I had to diagnose my Dysautonomia/POTs too. Had to find drs to do my tests to confirm what I found to be the cause of my Dysautonomia and then I had to design my own treatment protocols for my 10hr infusions each month. I have Myasthenia Gravis of the Autonomic system and I have gone from wheelchair to able to stand and exercise again. I understand your frustration at trying to get dysautonomia diagnosed and treated, it is a massive failure among drs to dismiss us. I'm sorry you went through all of that but so happy you figured it out!
Wow Diane W it sounds as though you're just as creative and persistent as this guy! Congratulations, and do keep at it - keep doing your own thinking. From what I see it's the best way to an amazing life.
YOU are such an INSPIRATION. The power of the Mind.. I read this on CNN today and was amazed. that something like this can ever happen. The Mind can make things happen. RESPECT .
You are amazing. Your perseverance to find an answer...hope, science and FAITH. God creates outcomes. I am so glad you looked beyond the norms, and believed that God is with you. I watched your other video on u tube and am amazed. Thank you you have given people hope especially when they don't fit in a box.😃
This is a great speech because it's just completely honest and not making things sound too easy or too difficult. Thank you so much!! This is a real roadmap on how to do the "impossible"
Thank you for sharing your story. Doug, you are a remarkable human being and I commend you in your continual hope, faith, research, and perseverance to survive going through that! And innovation! Inspiring. The human spirit is amazing. Writing this from bed...here again. Got ill at 14. Partial remission 17-almost 22. Knocked down again at 22 w/ full relapse of ME/CFS and POTS (also EDS hypermobility). Now 27. Was less bedbound until late May. Seems the "chronic migraine and occipital neuralgia" that kicked up after whiplash in Jan '17 is probablyyy CCI and/or AAI...b/c tongue numbness, more tachycardia than usual, and other pesky symptoms more as of late that worsen when upright aren't appropriate for idiopathic migraine & occipital neuralgia. I knew Jen Brea's story from pre-Unrest doc to current and that a thyroid surgery seemed to really kick off the CCI & AAI. Hoping that was a surgical/anesthesiologist mistake in overstretching her neck, I had a thyroid biopsy May 15. I had to hang my head backwards off a wedge pillow (which I wasn't aware of beforehand) and had pain after for a few days...that was just the pre-biopsy ultrasound. B/c they weren't super clear on no NSAIDS and I was recovering from a surg...and remembered they said no diet restrictions...I had to come back for biopsy. They didn't make me hang my head as precariously but the biopsy was very painful (this coming from a person who insisted on being awake for 4 wisdom teeth removal at once w/ 2 fully impacted & 2 partially impacted and I only took Ibuprofen after, no narcotics which they insisted I have on hand)...10 needles total & they can't really numb the thyroid well. Thankfully the nodule is benign thus far. But after the biopsy my overall health took a hit, I could tell in the days afterwards. I had bounced back from a laparoscopic abdominal surg 5 wks prev just fine. But after thyroid biopsy, really increased neck pain & headaches. Idk if you've followed Jen's story, its in detail on Medium (and some on Health Rising blog) incld her after thyroid surgery experience w/ CCI/AAI. I again knew her experience but it was a biopsy for me and I hoped it was a fluke to her biology specifically. Unfortunately it seemingly is my case also...that I was at a tipping point & now neck jacked. Those 3 tennants of hope, faith, and science are how what have gotten me through. Faith that all things work together for good in His will, He carries me through, directs my paths and makes them straight and that He will redeem me from this current pit. Hope I will find help, I will do much better and I will reach goals and make a difference in the world. Science to help me understand my body, intellectualize things so I stay sane, and find answers. Again 👏👍 Bless you in your current health and facing any of those challenges! And may things ever be in your favor w/ doctor dealings. My goodness there's some psychologizing whackadoos out there!! And I've run across several. THEY may be crazy when they refuse to see objective physical evidence of illness (tilt table test done at a hospital, staph aureus throat infection culture results b/c of how utterly run down I was) and instead say you need a psychiatrist and seeing Drs to try to improve my health is a waste of my parents $. Lol. I'm sure he'd say that if HIS kid was bedbound & physically ill, NOT. Saw your tweet to Jen re her tweet about Drs basically needing to do better b/c too many slip through the cracks, and some being, well, 🤬-inducing. Ended up here.
So impressed by you and hoping you know how uniquely impressive you are! Love your definitions and humor. As a nurse and a person with a communications degree...I can say this is a well-delivered speech and informative in an easy to understand way. Kudos!
Wow! As a fellow Catholic (aka Christian), I could retell your story as: God gave you the brains for science/biology (and other things); God wants to make sure you study a very specific area in the medical field (without the need to graduate/get a university degree); therefore God allowed you to have this health problem (to concentrate your life to this research)... And the results are your amazing Healing, Inspiration and Encouragement to all who hear your story...AND show proof that God will do the rest if we do our best...Praise Be To The Lord Jesus!
This is quite possibly the most inspiring story I’ve ever heard. This is a man who never gave up, who never quit. Someone who was told time and again that the problems he had didn’t exist by medical professionals. But he never gave up. He never stopped reading. He never stopped questioning and experimenting and searching. And he succeeded.
I really wish someone could help diagnose me. I've been suffering since I came home from Iraq in 2008. Ever since I've came home my health has never been the same.
4 years post-posting, we are now post-Covid and thousands if not millions are burdened with fatigue. Whether constant or remitting-relapsing, Chronic Fatigue has debilitated many, many people.
This makes me teary eyed. Because although I have not had anything nearly as bad, all my symptoms are so close. I went from being so normal and active and a gym goer, to being so scared of walking out of my apartment because my heart rate got so fast. I would break down. It's gotten better over the 1.5 years since I got "sick". But I still cannot go to gym.
I had a left adrenal gland tumor found in 2006; I have also been diagnosed with Lupus. My extreme exhaustion has completely changed my life. I recently saw my endocrinologist & he recommended having the tumor removed due to it’s increase in size since first found. It’s over an inch now; and did the Cortisol, Aldosterone, and Renin 24 hour UA, & bloodwork. He says the surgery benefits out-way the risks. I am very worried about It because of my Lupus; recently had two torn meniscus surgeries in last 8 months & had huge inflammation & took much longer to heal than it should have. Thankfully, I am seeing a Surgeon in Rochester, Mayo Clinic; and am hoping for the laparoscopic surgery to work. I am terrified though. But, it’s been a long road to get to the diagnosis of Lupus, as well as to this Adrenal Tumor and it’s symptoms it’s causing me to endure. I am praying i fell somewhat better after the surgery. I wish there was more information I could research about it!
There are some auto-stemcell therapies (not in US), not well proven yet). Nutritional approaches can be useful. And of course, homeopathy (person-based, not specific to the disease, consult a homeopath).
I have ME/chronic fatique that can be related to adrenal and/of thyroid glands. As an administrative person in a basic science dept whom 4 faculty taught 3 of the basic sciences to medical students. Medical students are not taught a lot about the endocrine system, only if they specialize in endocrinology. I found a clinic in Englan called the Optimum Heath Clinic which specialuzes in ME/chronic fatigue. I am sharing this infor mation with my pcp and psychiztrist. The clinic also treats fibromyalgia anx other forms of autoimmine disease.
In the last 3 minutes he crushed life determination, self help books, loooooong speeches of being vulnerable or whatever... Stay positive, trust the science and have faith in what you do.
This story is incredible! My Mom and I have saw Dr Coghlan in Birmingham. Alabama for years. Although I have mostly recovered from this condition, my Mom has not and still suffers with terrible symptoms daily. Does anyone know how to contact Doug Lindsay?
Amazing what GOD ALMIGHTY does for the good of those who trust and Love Him. With Faith nothing is impossible. Hope, is not a wish, it is knowing if our heart’s desire match up with GOD’S Will, He will give us everything we need to succeed.
I had adrenal Cushings Radical right adrenalectomy Sick for 7 years with slow symptoms I’m better I hope Always scared I’m going to have another tumor in the left adrenal Demons
Yes, I’m shocked what he experienced. But on the other hand I’m not surprised....I’m going in 2 days for surgery , removal of a adrenal tumor 3 cm . 6 yrs ago , it was an incidental founding on CT scan for some abdominal pain to rule out gallstones. It was a small 2mm nodule and my doctor at the time told me it’s nothing, my complaints were dismissed as menopausal symptoms . Lucky for me, I’m a registered nurse and I didn’t let that go . I stopped asking endocrinologists about it , no doctor knew ay about it...one gave me script for follow up ultrasound- laughable, the other one told me that if it gets bigger, I could get biopsy- another nonsense. Finally I understood that if I don’t find a surgeon, who operates only adrenal glands , no one can heal me, certainly not one who performs this surgery once a year or less...adrenal tumors are very rare. So , last year I found the right doctor.
"Saw everyone, talked with everyone, no one knew...etc." What utter and complete nonsense. I doubt that there is any active internist who doesn't assess at least one pt. every day or 2 for peripheral sympathetic dysfunction, adrenal (cortical and medullary) insufficiency OR hyperfunction. It's common enough that there are simple numerical ICD codes for the tests...we don't even have to write out the names!! Do no harm? So we don't risk giving pts. serious problems in an effort to help other problems? Yes, every hour of every day when prescribing medications or recommending operations that will lead to changes in the pts.' lives .
Holy cow. As someone with mild ehlers danlos syndrome, (my mom has more severe) we find no help or answers and get written off alot. EHlers is so diverse with a slew of potential comorbidities. Alot of people with ehlers have dysautonomia (and pots; and chronic fatigue, fibro, auto immune disorders etc etc). Lately I've felt prompted in really researching & pondering how my body behaves to look at my adrenal gland. I stay skinny without trying. While i like that...i know that can't be normal. I have many symptoms of hormonal imbalance.. I've wondered if herbs or supplements can calm a hyperactive Adrenal gland. Ive wondered if 1 day doctors will find a cancerous tumor too late Because i haven't had scans. (I had a Friend die after years of issues set no root cause found in her 30s and an autopsy revealed she had a huge tumor on her adrenal gland that based on size was growing there for a very long time. But Because she was functional with only random severe issues no one looked through her whole body for issues.) Because my ehlers is mild I try to ignore my mild symptoms and take control by being relatively healthy in being active & eating decent (im good at adding super health stuff....bad at cutting junk though ive had bouts i cut out for a while). What else can i do when doctors don't see a functional woman who claims it feels like blood pressure is going to rupture in my neck, there's such great pressure there. That i have bizarre vascular issues. In my 30s with disregulated hormones for 20 years now. Im over sensitive to alot of things & mildly allergic. I have subluxation all over randomly but luckily manageable. When i came down with severe salmonella that tried to kill me in 2020 doctors wouldn't help me in the er cuz they didn't believe me because i could talk. I was secretly behind my back diagnosed with anxiety and I'm lucky... anxiety is not an issue I deal with. I have such little trust for doctors to really look into things or even believe me when I say , I know something is really wrong inside. So I've given up. I rarely go. It's very common for people with ehlers, I'm on a support group... doctors constantly refuse to look harder on us for root causes and potential help, and many are misdiagnosed with mental disorders or hypochondria. I just apply your advice of hope and faith. Hopefully I won't end up disabled like my mom and many with ehlers. Hopefully my little efforts to be healthier are doing some repair somewhere in me. And faith that I won't die younger Because I ignored the signals and alarms inside me something is wrong. Or if I do that I can somehow make peace with that but to not worry about something that hasn't happened and currently isn't happening. I think having it mild makes it hard to push the way you did. You were so severe you had to have answers to ever get quality of life back. But to be that sick and maintain that drive and finally find answers...I mean. You are incredible. I'm floored. It makes me a little ashamed of how easily I have given up on asking doctors to look harder. Run scans for the things i too have felt fit what I see going on. While ehlers danlos (a missing protein in collagen) is thought to be the core answer , root answer of many issues related to it.....I wonder if it too is a symptom of hypothalamus or adrenal issues...or at least part of it. I just Google adrenals and your video came up. So fascinating. You really are a miracle and amazing (and you were guided, faith led you places some people don't have the faith to follow).
He had two choices (1) to let a “doctor or doctors” to have the final say on his destiny (2) or he, himself take the lead for the final outcome of his destiny. He is a simba
Incredible story. Incredible person. Just heard your story on a science podcast. I’m sorry it took so many years of your life to get the medical help you needed, but grateful you have devoted your life to helping others navigate the medical system.
💖💗💖💗💖💗💖💗a soul brother! I'm researching my medical issues as well. And survived what drs.wanted to surgically alter. Now new challenges. But I have hope and science..
Genius is a miracle you can explain. But if that's true can you expliain the genius of Doug Lindsay? Sometimes seemingly impossible situations unleash creative genius.
Hello sir.. I have a mass in my right adrenal gland. What should I do for it.. I'm very much scared now.. Plz give right suggestion to do. Doctor suggested to operate it
Amazing story, I have something opposite from you, my addrenal cortex is not producing cortisol. No surgery is necessary, Prednisone helps but it took my doctor's 5 years to figure out that I have Addison's. I already knew that I had Addison's desease but I had no idea that is what is making me sick. Great job on your persistence. 11 years is a long time.
came from CNN article. Your story is an ultimate blow to all the people who lament about life even after having perfect health.. all they have to do is work harder to get whatever they want..
You are amazing! You should be given an honorary doctorate
As someone who struggled with chronic illness since I was sixteen and learned that I had better take charge for my own health, that no doctor or love one could care as much as I do. I accepted my fate and my own healing as much as possible. Indeed Your words reflected some of my journey. I am grateful each day I had the realization to become responsible for my health, and yes, this is a miracle even if it means I had to cry so much, work hard to get here even against naysayers and experts. I really like the part of not letting our emotions get the best of us, balance of emotions and perseverance are the key.
You bring me to tears! You are the hope the world needs so desperately right now. Your story changed my life and the way I think. As a nurse by profession I understand the deep rooted grounding in science blended with spiritual and emotional health but never made the connections in my own life and thinking. I thank God you.
Me too, so inspiring.
Thank you for sharing that, Justin! I have a speech tomorrow and because of the audience and topic I was debating whether to zoom in on authentic hope and its power. I will now that I've read your comment. Best to you, Doug
You are awesome! I had to diagnose my Dysautonomia/POTs too. Had to find drs to do my tests to confirm what I found to be the cause of my Dysautonomia and then I had to design my own treatment protocols for my 10hr infusions each month.
I have Myasthenia Gravis of the Autonomic system and I have gone from wheelchair to able to stand and exercise again. I understand your frustration at trying to get dysautonomia diagnosed and treated, it is a massive failure among drs to dismiss us. I'm sorry you went through all of that but so happy you figured it out!
What helped you recover??????😭
Wow Diane W it sounds as though you're just as creative and persistent as this guy! Congratulations, and do keep at it - keep doing your own thinking. From what I see it's the best way to an amazing life.
Are you taking cholinesterase inhibitors? Glad to hear you worked it out! Please comment back your protocol, so we can benefit from your experience.
My guess would be some immunosuppresants and cholinesterase inhibitors :)
YOU are such an INSPIRATION. The power of the Mind.. I read this on CNN today and was amazed. that something like this can ever happen. The Mind can make things happen. RESPECT .
Just read the article on CNN too and came looking for the video
Me too.
I just read the article in an online brazilian newspaper and came r´direct here. Wonderful, wonderful!!!
You are amazing. Your perseverance to find an answer...hope, science and FAITH. God creates outcomes. I am so glad you looked beyond the norms, and believed that God is with you. I watched your other video on u tube and am amazed. Thank you you have given people hope especially when they don't fit in a box.😃
This is a great speech because it's just completely honest and not making things sound too easy or too difficult. Thank you so much!! This is a real roadmap on how to do the "impossible"
Thank you for sharing your story. Doug, you are a remarkable human being and I commend you in your continual hope, faith, research, and perseverance to survive going through that! And innovation! Inspiring. The human spirit is amazing. Writing this from bed...here again. Got ill at 14. Partial remission 17-almost 22. Knocked down again at 22 w/ full relapse of ME/CFS and POTS (also EDS hypermobility). Now 27. Was less bedbound until late May. Seems the "chronic migraine and occipital neuralgia" that kicked up after whiplash in Jan '17 is probablyyy CCI and/or AAI...b/c tongue numbness, more tachycardia than usual, and other pesky symptoms more as of late that worsen when upright aren't appropriate for idiopathic migraine & occipital neuralgia. I knew Jen Brea's story from pre-Unrest doc to current and that a thyroid surgery seemed to really kick off the CCI & AAI. Hoping that was a surgical/anesthesiologist mistake in overstretching her neck, I had a thyroid biopsy May 15. I had to hang my head backwards off a wedge pillow (which I wasn't aware of beforehand) and had pain after for a few days...that was just the pre-biopsy ultrasound. B/c they weren't super clear on no NSAIDS and I was recovering from a surg...and remembered they said no diet restrictions...I had to come back for biopsy. They didn't make me hang my head as precariously but the biopsy was very painful (this coming from a person who insisted on being awake for 4 wisdom teeth removal at once w/ 2 fully impacted & 2 partially impacted and I only took Ibuprofen after, no narcotics which they insisted I have on hand)...10 needles total & they can't really numb the thyroid well. Thankfully the nodule is benign thus far. But after the biopsy my overall health took a hit, I could tell in the days afterwards. I had bounced back from a laparoscopic abdominal surg 5 wks prev just fine. But after thyroid biopsy, really increased neck pain & headaches. Idk if you've followed Jen's story, its in detail on Medium (and some on Health Rising blog) incld her after thyroid surgery experience w/ CCI/AAI. I again knew her experience but it was a biopsy for me and I hoped it was a fluke to her biology specifically. Unfortunately it seemingly is my case also...that I was at a tipping point & now neck jacked. Those 3 tennants of hope, faith, and science are how what have gotten me through. Faith that all things work together for good in His will, He carries me through, directs my paths and makes them straight and that He will redeem me from this current pit. Hope I will find help, I will do much better and I will reach goals and make a difference in the world. Science to help me understand my body, intellectualize things so I stay sane, and find answers. Again 👏👍 Bless you in your current health and facing any of those challenges! And may things ever be in your favor w/ doctor dealings. My goodness there's some psychologizing whackadoos out there!! And I've run across several. THEY may be crazy when they refuse to see objective physical evidence of illness (tilt table test done at a hospital, staph aureus throat infection culture results b/c of how utterly run down I was) and instead say you need a psychiatrist and seeing Drs to try to improve my health is a waste of my parents $. Lol. I'm sure he'd say that if HIS kid was bedbound & physically ill, NOT. Saw your tweet to Jen re her tweet about Drs basically needing to do better b/c too many slip through the cracks, and some being, well, 🤬-inducing. Ended up here.
eat the paleomedicina carnivore diet look them up online
So impressed by you and hoping you know how uniquely impressive you are! Love your definitions and humor. As a nurse and a person with a communications degree...I can say this is a well-delivered speech and informative in an easy to understand way. Kudos!
You are literally a "walking miracle"! 😊
Reaching out to you Doug. My adrenal gland was destroyed in my current cancer battle. Would love to talk.
What a beautiful story! Never give up hope there is alot to learn from this man!
Wow! As a fellow Catholic (aka Christian), I could retell your story as: God gave you the brains for science/biology (and other things); God wants to make sure you study a very specific area in the medical field (without the need to graduate/get a university degree); therefore God allowed you to have this health problem (to concentrate your life to this research)... And the results are your amazing Healing, Inspiration and Encouragement to all who hear your story...AND show proof that God will do the rest if we do our best...Praise Be To The Lord Jesus!
This is quite possibly the most inspiring story I’ve ever heard. This is a man who never gave up, who never quit. Someone who was told time and again that the problems he had didn’t exist by medical professionals. But he never gave up. He never stopped reading. He never stopped questioning and experimenting and searching. And he succeeded.
This was an incredible story of perseverance!
I’ve read your story in People recently and was very impressed. You’re a wonderful human being, Doug. May you live a long and happy life!
Ice blue suit is on point!!
I really wish someone could help diagnose me. I've been suffering since I came home from Iraq in 2008. Ever since I've came home my health has never been the same.
This was just amazing! You're such an inspiration.
Awesome story of resilience and perseverance. I just read Doug's story on CNN. Very inspiring!!
Amazing, God bless you, all glory to God.
"Hope is the thing with feathers"
This couldn’t have came at a better time in my life. Hope Science & Faith.
4 years post-posting, we are now post-Covid and thousands if not millions are burdened with fatigue. Whether constant or remitting-relapsing, Chronic Fatigue has debilitated many, many people.
This makes me teary eyed. Because although I have not had anything nearly as bad, all my symptoms are so close. I went from being so normal and active and a gym goer, to being so scared of walking out of my apartment because my heart rate got so fast. I would break down. It's gotten better over the 1.5 years since I got "sick". But I still cannot go to gym.
I had a left adrenal gland tumor found in 2006; I have also been diagnosed with Lupus. My extreme exhaustion has completely changed my life. I recently saw my endocrinologist & he recommended having the tumor removed due to it’s increase in size since first found. It’s over an inch now; and did the Cortisol, Aldosterone, and Renin 24 hour UA, & bloodwork. He says the surgery benefits out-way the risks. I am very worried about It because of my Lupus; recently had two torn meniscus surgeries in last 8 months & had huge inflammation & took much longer to heal than it should have. Thankfully, I am seeing a Surgeon in Rochester, Mayo Clinic; and am hoping for the laparoscopic surgery to work. I am terrified though. But, it’s been a long road to get to the diagnosis of Lupus, as well as to this Adrenal Tumor and it’s symptoms it’s causing me to endure. I am praying i fell somewhat better after the surgery. I wish there was more information I could research about it!
Indeed a miracle!
respect this and who read all this books
This man is amazing. What an inspirational story.
Amazing! can u fix rheumatoid arthritis next? Love your spirit and your work!
Google the Coimbra protocol: it cures most auto-immune diseases, RA included.
There are some auto-stemcell therapies (not in US), not well proven yet). Nutritional approaches can be useful. And of course, homeopathy (person-based, not specific to the disease, consult a homeopath).
Uncomfortably wide stance. But wow, what an incredible story! You are incredible, sir.
Phenomenal! A great and inspiring accomplishment.
Respect
I have ME/chronic fatique that can be related to adrenal and/of thyroid glands. As an administrative person in a basic science dept whom 4 faculty taught 3 of the basic sciences to medical students. Medical students are not taught a lot about the endocrine system, only if they specialize in endocrinology. I found a clinic in Englan called the Optimum Heath Clinic which specialuzes in ME/chronic fatigue. I am sharing this infor mation with my pcp and psychiztrist. The clinic also treats fibromyalgia anx other forms of autoimmine disease.
Hugs ♥️♥️♥️
What a remarkable human
I’ve been in search of a cure for PCOS. I need to get a hold of Doug Lindsay. I believe he can help me! I too have researched for years!
My son has dysautonomia and pots. Thank you.
Great video! Inspirational!
In the last 3 minutes he crushed life determination, self help books, loooooong speeches of being vulnerable or whatever... Stay positive, trust the science and have faith in what you do.
Hope, Science, Faith. Truth.
Ooooh! That sounds as if Science is a religion. Does it have high priests in white robes?
Nah just science.
God, you are very very inspiring, thank you!
This story is incredible! My Mom and I have saw Dr Coghlan in Birmingham. Alabama for years. Although I have mostly recovered from this condition, my Mom has not and still suffers with terrible symptoms daily.
Does anyone know how to contact Doug Lindsay?
Did you find help?
Suffering from same from past 6yrs
awesome and inspiring story! how can we read your unpublished book?
Amazing ☺️
it always seems impossible until it's done
What exames/tests he did to discovery the issue? I not able to find this.
This guy looks like a young al Bundy.
Still an incredible story btw.
What a invention 👌
SAME
Thats what Im told. I have groths on adrenals and tests nit normal but no answer. Im so weak Icant stand being in bed two years. I cant find help
where is the beginning of the talk?
That's just the way he structured it.
Amazing what GOD ALMIGHTY does for the good of those who trust and Love Him.
With Faith nothing is impossible.
Hope, is not a wish, it is knowing if our heart’s desire match up with GOD’S Will, He will give us everything we need to succeed.
What about those who never made it to the TedEx
I had adrenal Cushings
Radical right adrenalectomy
Sick for 7 years with slow symptoms
I’m better
I hope
Always scared I’m going to have another tumor in the left adrenal
Demons
Por favor letreros en español
Why he didn't remove all the adrenal glands from one kidney to balance it
Пожалуйста помогите мне с ним связаться, я умираю, у меня что-то похожее ,диагноз никто не может поставить, Помогите мне с ним Связаться пожалуйста
This somewhat sounds like a pheochromocytoma.
Yes, I’m shocked what he experienced. But on the other hand I’m not surprised....I’m going in 2 days for surgery , removal of a adrenal tumor 3 cm . 6 yrs ago , it was an incidental founding on CT scan for some abdominal pain to rule out gallstones. It was a small 2mm nodule and my doctor at the time told me it’s nothing, my complaints were dismissed as menopausal symptoms . Lucky for me, I’m a registered nurse and I didn’t let that go . I stopped asking endocrinologists about it , no doctor knew ay about it...one gave me script for follow up ultrasound- laughable, the other one told me that if it gets bigger, I could get biopsy- another nonsense. Finally I understood that if I don’t find a surgeon, who operates only adrenal glands , no one can heal me, certainly not one who performs this surgery once a year or less...adrenal tumors are very rare. So , last year I found the right doctor.
"Saw everyone, talked with everyone, no one knew...etc." What utter and complete nonsense. I doubt that there is any active internist who doesn't assess at least one pt. every day or 2 for peripheral sympathetic dysfunction, adrenal (cortical and medullary) insufficiency OR hyperfunction. It's common enough that there are simple numerical ICD codes for the tests...we don't even have to write out the names!! Do no harm? So we don't risk giving pts. serious problems in an effort to help other problems? Yes, every hour of every day when prescribing medications or recommending operations that will lead to changes in the pts.' lives .
This college graduate can’t even tell me what’s wrong with him jeez man
You are a classic example of the saying "Impossible is nothing". I am so inspired
read this on CNN and just had to Czech u out.. Wow. Inspiring
Wow! Makes you wonder why most of us cant appreciate life for the little things we are able to do everyday.
How can anyone hit the thumbs down! WTF!
You're a hero!
this needed a bigger ted talk stage.
That's the truth
Here from the CNN article, too. Amazing story. Congratulations on your perserverance.
me too.
Holy cow. As someone with mild ehlers danlos syndrome, (my mom has more severe) we find no help or answers and get written off alot. EHlers is so diverse with a slew of potential comorbidities. Alot of people with ehlers have dysautonomia (and pots; and chronic fatigue, fibro, auto immune disorders etc etc). Lately I've felt prompted in really researching & pondering how my body behaves to look at my adrenal gland. I stay skinny without trying. While i like that...i know that can't be normal. I have many symptoms of hormonal imbalance.. I've wondered if herbs or supplements can calm a hyperactive Adrenal gland. Ive wondered if 1 day doctors will find a cancerous tumor too late Because i haven't had scans. (I had a Friend die after years of issues set no root cause found in her 30s and an autopsy revealed she had a huge tumor on her adrenal gland that based on size was growing there for a very long time. But Because she was functional with only random severe issues no one looked through her whole body for issues.)
Because my ehlers is mild I try to ignore my mild symptoms and take control by being relatively healthy in being active & eating decent (im good at adding super health stuff....bad at cutting junk though ive had bouts i cut out for a while). What else can i do when doctors don't see a functional woman who claims it feels like blood pressure is going to rupture in my neck, there's such great pressure there. That i have bizarre vascular issues. In my 30s with disregulated hormones for 20 years now. Im over sensitive to alot of things & mildly allergic. I have subluxation all over randomly but luckily manageable. When i came down with severe salmonella that tried to kill me in 2020 doctors wouldn't help me in the er cuz they didn't believe me because i could talk. I was secretly behind my back diagnosed with anxiety and I'm lucky... anxiety is not an issue I deal with. I have such little trust for doctors to really look into things or even believe me when I say , I know something is really wrong inside. So I've given up. I rarely go. It's very common for people with ehlers, I'm on a support group... doctors constantly refuse to look harder on us for root causes and potential help, and many are misdiagnosed with mental disorders or hypochondria. I just apply your advice of hope and faith. Hopefully I won't end up disabled like my mom and many with ehlers. Hopefully my little efforts to be healthier are doing some repair somewhere in me. And faith that I won't die younger Because I ignored the signals and alarms inside me something is wrong. Or if I do that I can somehow make peace with that but to not worry about something that hasn't happened and currently isn't happening.
I think having it mild makes it hard to push the way you did. You were so severe you had to have answers to ever get quality of life back. But to be that sick and maintain that drive and finally find answers...I mean. You are incredible. I'm floored. It makes me a little ashamed of how easily I have given up on asking doctors to look harder. Run scans for the things i too have felt fit what I see going on. While ehlers danlos (a missing protein in collagen) is thought to be the core answer , root answer of many issues related to it.....I wonder if it too is a symptom of hypothalamus or adrenal issues...or at least part of it. I just Google adrenals and your video came up. So fascinating. You really are a miracle and amazing (and you were guided, faith led you places some people don't have the faith to follow).
Sorry I didn't read this to edit grammar and get my sentences fixed or complete. I wrote it quickly
He had two choices (1) to let a “doctor or doctors” to have the final say on his destiny (2) or he, himself take the lead for the final outcome of his destiny.
He is a simba
Incredible story. Incredible person. Just heard your story on a science podcast. I’m sorry it took so many years of your life to get the medical help you needed, but grateful you have devoted your life to helping others navigate the medical system.
💖💗💖💗💖💗💖💗a soul brother!
I'm researching my medical issues as well. And survived what drs.wanted to surgically alter.
Now new challenges. But I have hope and science..
Wow! I wish I could talk to you! This sounds like something I need! That surgery.
Faith saved you
Trust the science
How do I contact Doug Lindsey?? I suspect I have the same condition.
eat paleomedicina carnivore diet
Genius is a miracle you can explain. But if that's true can you expliain the genius of Doug Lindsay? Sometimes seemingly impossible situations unleash creative genius.
Hello sir.. I have a mass in my right adrenal gland. What should I do for it.. I'm very much scared now.. Plz give right suggestion to do. Doctor suggested to operate it
Amazing story, I have something opposite from you, my addrenal cortex is not producing cortisol. No surgery is necessary, Prednisone helps but it took my doctor's 5 years to figure out that I have Addison's. I already knew that I had Addison's desease but I had no idea that is what is making me sick. Great job on your persistence. 11 years is a long time.
Wow! Wow! Wow! You are my hero. You are an inspiration and one of the best Ted talks I have listened to. I thank you
came from CNN article. Your story is an ultimate blow to all the people who lament about life even after having perfect health.. all they have to do is work harder to get whatever they want..
Man you are impressive! Proud of you and happy for you
Well this showes also the power of Internet
This is immensely amazing!
He took his life into his own hands so much respect