Sometimes my MS sisters and brothers don't speak up because the community they are in only has a single MS specialist. So they have to go with the flow or not get treated. What can they do about that? Like you, I want to share and support. Knowledge is power. Thanks for all you do.
Great question! Only one close to me. I like her because she’s very blunt and doesn’t speak to me like I’m an idiot but know a few people in my locale who don’t appreciate her bluntness and technical speak. Wish they had another option because I want them to feel as comfortable as I do with their specialist.
🟪 Thank you for this video, Dr Boster. It helped me realize that the phantom smoke smells I was experiencing several years ago could have been among my 1st MS symptoms back when I had no clue I was getting MS. I was diagnosed with RRMS in March of 2021. These phantom smells disappeared over time and have not returned recently but I’m glad to know it’s a real symptom of MS and I wasn’t just crazy for smelling something no one else around me could ever smell. 👍
I was smelling smoke to but my neighbor smokes. Lol! I've just been sick with hives and feel like I have a hungover had GERD before that so I want to make sure it's not MS
I enjoy the filter. Makes me smile. I have issues w feeling & lack of feeling down there. Husband was no longer interested in intimacy. Have been diagnosed w lupus, sjogrens, osteoarthritis, rheumatoid arthritis, ddd , etc. Had surgery on both hands carpal tunnel, & also had surgery on my neck to remove a disc bc i had an impingement that was causing constant nerve pain. Now I'm having trouble walking & I'm unstable on my feet.
I have all these neurological symptoms but there are a few that stand out to me: I had tremors in my left arm last year around this time and sometimes in my right but it was mostly in my left. Then a few weeks later I got up from my desk to walk out of my department and I got a few steps in and down I went. I was so confused as to why I tripped and fell. I just thought I was being my clumsy self. I hurt myself from the fall but then I got up and brushed myself off. I fell again a day later and realized my left foot wasn’t working right. I googled what this was and it said foot drop. I fell a few more times and then was sent to a doctor who sent me to get an AFO. I wore that for a few weeks and foot drop went away. Haven’t had it since. But my muscles are sooo weak. Another time - happened a year before this - I was waking and it was maybe 80-85 degrees outside and this was something I did regularly and i was about to walk up a hill to my apartment and my hands, arms, legs and feet started tingling. I started feeling dizzy and nauseous and faint. My legs felt like spaghetti and I needed to pee sooo bad. I forced myself to walk up this hill and I wanted to pass out. I finally got somewhat to the top but I knew I was gonna fall so I fell in the grass on the side and laid there and I lose bladder control and peed myself. I blacked out visually but was still conscious. Weirdest thing to ever happen to me!
Wow crazy. That second paragraph is what I'm getting with hives. I don't have MS but I get tingly feeling its so weird. I have had Gerd a week before this now hives, now I feel so damn hungover and haven't drank. I feel like I'm getting COvid again or something it's so weird. I'm just here to know more about MS because my cousin has it and I wanted to rule it out.
This was great! I agree about the whole med cost. Its insane and we need to be able to receive proper care. The lack of knowledge in the overall public and also the doctors. Most People literally have never heard of MS and the ones that have dont understand Even neurologists lack education. My first neuro looked at me as if i was crazy when I asked if i could get MRI on my thoracic- that it only affects neck & brain. That shows the true lack of education.
i am a former boxer i saw legs just quit i worked extra hard to build legs and i was cutting the grass in my back yard and my legs just quit like a light switch shut off. 3 hrs later i could walk again. now not so good gotton much worse after time
cmon it’s a bit of fun and he said it was fun for him … this is an amazing opportunity not many doctors out there let alone ones specialising in a certain area because you do get an overwhelming amount of msgs and questions on top of your day to day life. What Dr Boster is doing for MS patients and cares/family like myself is absolutely PRICELESS.
The filters were too distracting for me but I enjoy your enthusiasm and all the info. I have yet to meet a Dr. smart enough to figure out what all my symptoms amount to. Im tired of my dizzy spells, waking up with an earache from my tmj, bladder issues, stiffness, flu like body aches, fatigue on top of arthritic knees n back and trying to hold a job while falling apart and not having a Dr. that does me much good or tries to come up with a diagnosis.
Thank you doctor for this information. We’re soo lucky to live in the age of information where a professionals life work is available to average people at a moment’s notice.
The fact that you listed agoraphobia - 7:58 - is freaking me out! I have only recently begun to take that seriously in myself. Wow. Fan for life, Dr. Boster.
In fact, I’ve spent all these years with MS thinking, “it’s not so bad”. But I have experienced so many of these things. I just assumed everyone did. Honestly. I figured this was just primarily the sorrow of getting older, or having CPTSD, or your run of the mill regrets or maybe just because I didn’t care for myself very well because I was lazy. Honestly. Sigh. This list is blowing my mind.
It would be most helpful if you would do a video talking about the mental attacks with ms..every attack I suffer is literally hell..my family is terrorized with fear when I have a ms episode
M.S. affects my gut … incontinence and only you kind Dr.have helped address it and explain to the degree I hoped to hear! Thought the slowdown,then urgency without warning was gastroparesis! Am a very frustrated former Nurse!
Awesome video, wished I could’ve been on chat when you went live. I didn’t hear you touch on the symptom of tremors. While working a couple of weeks ago I was flashing a light inside a hole, and with my supervisor present looking inside the hole as well he noticed the light was moving. He asked if that was me doing that. I didn’t even realize that my hand was shaking. Now I’ve caught it a few times and notice when holding a flashlight, shining it into a dark area I notice the light moving, even if I don’t sense it with other senses. Can you do a video on tremors and ms?
Same. I have called them olfactory hallucinations. Sometimes if watching a movie I can smell things! (Plus, I remember experiencing this way back in the early 90s! When my MS was hardly bugging me!)
Symptoms neck spasticity difficulty breathing difficulty getting pars planitis/intermediate uveitis eye twitching difficulty moving legs … like walking in molasses, mud, in the pool
Thanks Dr. Boster. I really appreciate the time sink of learning and implementation of new software. It’s not trivial to learn on your own . It’s all great and as always learn something new about my disease.
Thank you for all your helpful information. I was newly diagnosed at the beginning of January so this MS thing is all new to me. Not only are you helpful but funny 😂. I love the Snapchat filters. Makes it more entertaining.
This was a very interesting presentation! I wish I had known of your channel a year ago so I could have been here for this live. My first symptom of MS was 20 years ago, it was trigeminal neuralgia, and no one knew why it was happening. I didn't know that that's what it was called, lol I was newly pregnant and therefore couldn't have an MRI! The condition eased a few months later and I basically forgot about it. Until a year later and I had a three month old baby and all kinds of MS symptoms that were dreadful. At this point I had an MRI and was diagnosed😢. (As I said, this was all 20 years ago :-) now I'm an old throw at having MS😅 thank you for sharing all your information in your videos :-)
Nice to see a lighthearted yet informative video. The snapchat filters are a fun visual, but until you learn the program, they do interrupt the flow. Thanks for all you do Dr. B!
hi aaron. i’ve been an incomplete C3 quad (victim of a multiple stabbing attack 35 yrs ago). the older i get (75 now), i’m experiencing a definite and disturbing change of symptoms;increased trigeminal neuralga, extreme mentallus you seem to and muscular fatigue, increase cognitive impairment, urinary tract pain and half a dozen other symptoms of MS you’ve mentioned so far. could i ALSO have developed MS? Should I see my neurologist? are there tests that he could run to explain my deterioration? PS, i’m impressed with your extremely Unusual TH-cam presentation. plus, you seem to be having such FUN! THREE CHEERS!
I have been diagnosed recently with occipital neuralgia my neurologist did a nerve block the neck pain and headaches are horrible. Its been a little over 3 weeks and the pain is coming back. My next one is not till September doing pain patches in the meantime. Neurologist wanted me to see if I have lupus. Went to a Rheumatologist who said I have incomplete lupus. Just a positive ANA doesn't qualify one for a SLE diagnosis. Started Hydroxychloroquine though, don't know if doc will keep me on it because x-rays came back Osteoarthritis she said they treat that with different medications. My neurologist is curious to see how I do on Hydroxychloroquine I am very sensitive to taking medication. We know something autoimmune is going on with me. My neurologist sent me to the Vanderbilt MS clinic where she treats me for Occipital neuralgia. I hope I'm not on the path of a MS diagnosis. I have a awesome neurologist just like you sure she's going to get to the bottom of what's really going on. Many years ago a neurologist did a spinal tap because they suspected MS but at that time I was not diagnosed with MS.
Very informative. Snap chat very funny but not over used. Nice you tried to get dog to say hello. Makes watching feel friendly not scary or intimidating.
I suffered with TN for 34 yrs ,,, 3 yrs ago had a procedure by a nurlogist surgeon called ga mma. Knife it’s were they put a steel cage on your head screw it in your head go in a gamma knife mri thing they sap the nerve with radiation ,,,,, it took 8 months before pain stopped but have had no pain for 3yrs they did say it might come back had it done at Toronto western hospital if u want to talk to me about I’m willing if u have to you will do anything for the pain to stop
Thank you. I see. To have most,of,these symptoms which are all ascribed to fibromyalgia. Hmmm. Please don’t use those horrible lights coming out of,your eyes. Lights are a trigger for my vertigo and for fits
My fatigue is so severe I feel like I’m sleeping myself to death!
So many of these symptoms my Ms neurologist has told me is not possible to have 😭. I knew I wasn’t crazy 😭. Thank you for sharing.
well it started after my first covid. 1st covd.its actually driving me ccrazy..
My brain and my eyes cannot handle the filters and the moving borders.
This was a good talk but I had to not look at the screen
Sometimes my MS sisters and brothers don't speak up because the community they are in only has a single MS specialist. So they have to go with the flow or not get treated. What can they do about that? Like you, I want to share and support. Knowledge is power. Thanks for all you do.
Great question! Only one close to me. I like her because she’s very blunt and doesn’t speak to me like I’m an idiot but know a few people in my locale who don’t appreciate her bluntness and technical speak. Wish they had another option because I want them to feel as comfortable as I do with their specialist.
Not liking the snap chat feature- Distracting
🟪 Thank you for this video, Dr Boster. It helped me realize that the phantom smoke smells I was experiencing several years ago could have been among my 1st MS symptoms back when I had no clue I was getting MS. I was diagnosed with RRMS in March of 2021. These phantom smells disappeared over time and have not returned recently but I’m glad to know it’s a real symptom of MS and I wasn’t just crazy for smelling something no one else around me could ever smell. 👍
Yeah! I was wondering if my house was haunted!
I was smelling smoke to but my neighbor smokes. Lol! I've just been sick with hives and feel like I have a hungover had GERD before that so I want to make sure it's not MS
I have a ton of symptoms 🔥
I enjoy the filter. Makes me smile.
I have issues w feeling & lack of feeling down there. Husband was no longer interested in intimacy. Have been diagnosed w lupus, sjogrens, osteoarthritis, rheumatoid arthritis, ddd , etc. Had surgery on both hands carpal tunnel, & also had surgery on my neck to remove a disc bc i had an impingement that was causing constant nerve pain. Now I'm having trouble walking & I'm unstable on my feet.
Sudden seizure Activity very nasty
Neil from the UK, awaiting MRI results
Did you get results & what did you find out?
I have all these neurological symptoms but there are a few that stand out to me: I had tremors in my left arm last year around this time and sometimes in my right but it was mostly in my left. Then a few weeks later I got up from my desk to walk out of my department and I got a few steps in and down I went. I was so confused as to why I tripped and fell. I just thought I was being my clumsy self. I hurt myself from the fall but then I got up and brushed myself off. I fell again a day later and realized my left foot wasn’t working right. I googled what this was and it said foot drop. I fell a few more times and then was sent to a doctor who sent me to get an AFO. I wore that for a few weeks and foot drop went away. Haven’t had it since. But my muscles are sooo weak.
Another time - happened a year before this - I was waking and it was maybe 80-85 degrees outside and this was something I did regularly and i was about to walk up a hill to my apartment and my hands, arms, legs and feet started tingling. I started feeling dizzy and nauseous and faint. My legs felt like spaghetti and I needed to pee sooo bad. I forced myself to walk up this hill and I wanted to pass out. I finally got somewhat to the top but I knew I was gonna fall so I fell in the grass on the side and laid there and I lose bladder control and peed myself. I blacked out visually but was still conscious. Weirdest thing to ever happen to me!
😢
I can relate! It's scary
Wow crazy. That second paragraph is what I'm getting with hives. I don't have MS but I get tingly feeling its so weird. I have had Gerd a week before this now hives, now I feel so damn hungover and haven't drank. I feel like I'm getting COvid again or something it's so weird. I'm just here to know more about MS because my cousin has it and I wanted to rule it out.
@time stamp
11:36
wow dr. B that cartoon character really has your likeness.. it’s crazy it really really looks like u..
God bless
Cynthia :)
This was great!
I agree about the whole med cost. Its insane and we need to be able to receive proper care.
The lack of knowledge in the overall public and also the doctors.
Most People literally have never heard of MS and the ones that have dont understand
Even neurologists lack education. My first neuro looked at me as if i was crazy when I asked if i could get MRI on my thoracic- that it only affects neck & brain. That shows the true lack of education.
My spinal lesion is located in my thoracic spine.
Just wanted to say thanks for explaining so much about MS. I have learned so much about my disease from you.
You have given me hope, and have explained so many things that put my anxiety and being overwhelmed to calm....I thank you !
Icy cold hands that feel like they will shatter if they hit something?
Keep going we need you I don't know if you know this
I’m from Texas an just got MRI results.
??? And??? WHAT???
Pain in throat, neck and chest
i am a former boxer i saw legs just quit i worked extra hard to build legs and i was cutting the grass in my back yard and my legs just quit like a light switch shut off.
3 hrs later i could walk again. now not so good gotton much worse after time
I am not a fan of snap shot filters. I enjoy your background . I also like the view of you at the table.
It's to serious of our condition to be trying to be funny with snap chat . I'd prefer a more professional approach.
cmon it’s a bit of fun and he said it was fun for him … this is an amazing opportunity not many doctors out there let alone ones specialising in a certain area because you do get an overwhelming amount of msgs and questions on top of your day to day life. What Dr Boster is doing for MS patients and cares/family like myself is absolutely PRICELESS.
🔥
I could listen to you all day … you explain things well and you are funny and entertaining at the same time … I love that :)
Thank you so much 💙
Judy Franklin MA love your shows
Flames
The filters were too distracting for me but I enjoy your enthusiasm and all the info. I have yet to meet a Dr. smart enough to figure out what all my symptoms amount to. Im tired of my dizzy spells, waking up with an earache from my tmj, bladder issues, stiffness, flu like body aches, fatigue on top of arthritic knees n back and trying to hold a job while falling apart and not having a Dr. that does me much good or tries to come up with a diagnosis.
Thank you doctor for this information. We’re soo lucky to live in the age of information where a professionals life work is available to average people at a moment’s notice.
The fact that you listed agoraphobia - 7:58 - is freaking me out! I have only recently begun to take that seriously in myself. Wow. Fan for life, Dr. Boster.
In fact, I’ve spent all these years with MS thinking, “it’s not so bad”. But I have experienced so many of these things. I just assumed everyone did. Honestly. I figured this was just primarily the sorrow of getting older, or having CPTSD, or your run of the mill regrets or maybe just because I didn’t care for myself very well because I was lazy. Honestly. Sigh. This list is blowing my mind.
Faby from California
🔥
It would be most helpful if you would do a video talking about the mental attacks with ms..every attack I suffer is literally hell..my family is terrorized with fear when I have a ms episode
Love seeing the pets!! As always, appreciate your videos.
Hi,I'm Amal from Jordan
Hi this is Deb Salari from Southern California (Rancho Cucamonga) you are amazing 🤩 and I truly appreciate you 🤍🙏🏼
Oh how I wished you was UK…I still haven’t found some one as clever and caring as you.
I had tongue pain and a droopy face. M.S. sucks. Thank you for these videos!
No one ever checked further than seizure thsts ehere the ball drops now I’m 70 I hsve two doctors looking further that is too many years to not know
nope on the filters
You are a m a z e b a l l s. Thankyou so much x
Also pins and needles, numbness, cramps, restless leg, leg pain, itching
Do u take anything for the pins and needles? It's a terrible feeling!!
Same
Hate it
I get all of these too!
very valuable information. I wish my family would listen.
I completely agree, from the perspective of an MRI tech with MS!
Multi talented Dr Boster
Sadly missed the live. Love your sense of humour.
Thank you for your videos. I have used them to educate doctors that are clueless when it comes to ms.
Columbus Ohio... GO BUCKS! DR BOSTER ROCKS
Replay.. love watching your videos. Love from Scotland 🏴🏴
I love your humor. Thanks for listing all the possible symptoms.
I love the filters! It gives me a chuckle and sometimes it is just what I need! Ty
Thankyou for doing this🥰
Thank you for doing this. Your knowledge and personality is greatly needed on this topic! 🧡🕊🥗
Thank you Dr Boster 🔥🔥🔥🔥🔥 Looks like you had fun with the filters 😁
Georgia
That kitty is adorable!!! I bet you are also a talented animal whisperer.
Thank you! 😊
HOUDIE 😊Dana from Romania, currently in Libya
Awww, just noticed ur cat on the table ❤
M.S. affects my gut … incontinence and only you kind Dr.have helped address it and explain to the degree I hoped to hear! Thought the slowdown,then urgency without warning was gastroparesis! Am a very frustrated former Nurse!
Awesome video, wished I could’ve been on chat when you went live. I didn’t hear you touch on the symptom of tremors. While working a couple of weeks ago I was flashing a light inside a hole, and with my supervisor present looking inside the hole as well he noticed the light was moving. He asked if that was me doing that. I didn’t even realize that my hand was shaking. Now I’ve caught it a few times and notice when holding a flashlight, shining it into a dark area I notice the light moving, even if I don’t sense it with other senses. Can you do a video on tremors and ms?
Hi Aaron! I'm hailing from Anchorage, Alaska! I have SPMS diagnosed in 2003.
Loved the smap chat filters, I think they're great fun.
Also glad you mentioned INO as it isn't often referred to.
Rachel from the UK
I smell things that aren't there quite often. I did not know it was MS related.
Same. I have called them olfactory hallucinations. Sometimes if watching a movie I can smell things! (Plus, I remember experiencing this way back in the early 90s! When my MS was hardly bugging me!)
You are describing everything I’ve been going through my neck pain starting last night .
Symptoms
neck spasticity
difficulty breathing
difficulty getting
pars planitis/intermediate uveitis
eye twitching
difficulty moving legs … like walking in molasses, mud, in the pool
thanks, filter caused discomfort, no shaking head with glow eyes. :(
Thanks Dr. Boster. I really appreciate the time sink of learning and implementation of new software. It’s not trivial to learn on your own . It’s all great and as always learn something new about my disease.
Thank you for all your helpful information. I was newly diagnosed at the beginning of January so this MS thing is all new to me. Not only are you helpful but funny 😂. I love the Snapchat filters. Makes it more entertaining.
Hi from Jude in the Upper Peninsula of Michigan! ❄️☃️❄️
Hi. My son who is now 40 has quite a few of these symptoms. Good to know that it is his MS that is causing them.😢
Listening from Ireland
Yes I’ve been having drunk walk as well
This was a very interesting presentation! I wish I had known of your channel a year ago so I could have been here for this live. My first symptom of MS was 20 years ago, it was trigeminal neuralgia, and no one knew why it was happening. I didn't know that that's what it was called, lol I was newly pregnant and therefore couldn't have an MRI! The condition eased a few months later and I basically forgot about it. Until a year later and I had a three month old baby and all kinds of MS symptoms that were dreadful. At this point I had an MRI and was diagnosed😢. (As I said, this was all 20 years ago :-) now I'm an old throw at having MS😅 thank you for sharing all your information in your videos :-)
thought it was a ZZ top video from the thumbnail lol 🤪🤪
Can you be hot or warm? I have a tendency to be warm with burning feet. Night sweats
I get burning feet too
Love this especially the snap chat addition.. 🥰
you explain it all so well 🤗😊
Wish I could watch you but I am at the post office overnighting you my MRI film. WI watch this later!!!❤❤❤❤
Nice to see a lighthearted yet informative video. The snapchat filters are a fun visual, but until you learn the program, they do interrupt the flow. Thanks for all you do Dr. B!
hi aaron. i’ve been an incomplete C3 quad (victim of a multiple stabbing attack 35 yrs ago). the older i get (75 now), i’m experiencing a definite and disturbing change of symptoms;increased trigeminal neuralga, extreme mentallus you seem to and muscular fatigue, increase cognitive impairment, urinary tract pain and half a dozen other symptoms of MS you’ve mentioned so far. could i ALSO have developed MS? Should I see my neurologist? are there tests that he could run to explain my deterioration?
PS, i’m impressed with your extremely Unusual TH-cam presentation. plus, you seem to be having such FUN! THREE CHEERS!
I have been diagnosed recently with occipital neuralgia my neurologist did a nerve block the neck pain and headaches are horrible. Its been a little over 3 weeks and the pain is coming back. My next one is not till September doing pain patches in the meantime. Neurologist wanted me to see if I have lupus.
Went to a Rheumatologist who said I have incomplete lupus. Just a positive ANA doesn't qualify one for a SLE diagnosis. Started Hydroxychloroquine though, don't know if doc will keep me on it because x-rays came back Osteoarthritis she said they treat that with different medications. My neurologist is curious to see how I do on Hydroxychloroquine I am very sensitive to taking medication. We know something autoimmune is going on with me. My neurologist sent me to the Vanderbilt MS clinic where she treats me for Occipital neuralgia. I hope I'm not on the path of a MS diagnosis. I have a awesome neurologist just like you sure she's going to get to the bottom of what's really going on. Many years ago a neurologist did a spinal tap because they suspected MS but at that time I was not diagnosed with MS.
I am from Klamath Falls, Oregon, and I am learning a lot. Thank you for making these videos.
Great software. Good info. Kept up with your water challenge. Pets adorable too!
Very informative. Snap chat very funny but not over used. Nice you tried to get dog to say hello. Makes watching feel friendly not scary or intimidating.
Hi from norway
Lately I been itching in the center of my back between the shoulder blades
South Carolina here
Big Boster-Vision Fan here!!!
I really like the snap shot at 24 minutes 👍😀
❤looking forward to live broadcast🔥🔥🔥
The weirdest thing I have experienced is the sensitivity to certain fabrics.
That is annoying as hell for sure!
I'd like to see the Mastiff:)
I hate the ice picks feeling in my head it sudden snd highly psinfull
I have 26 symptoms
Why is trigeminal neuralgia part of ms and what is the best treatment for it ??😊
I suffered with TN for 34 yrs ,,, 3 yrs ago had a procedure by a nurlogist surgeon called ga mma. Knife it’s were they put a steel cage on your head screw it in your head go in a gamma knife mri thing they sap the nerve with radiation ,,,,, it took 8 months before pain stopped but have had no pain for 3yrs they did say it might come back had it done at Toronto western hospital if u want to talk to me about I’m willing if u have to you will do anything for the pain to stop
Thank you. I see. To have most,of,these symptoms which are all ascribed to fibromyalgia. Hmmm. Please don’t use those horrible lights coming out of,your eyes. Lights are a trigger for my vertigo and for fits
Cat on desk
I have PBA. It is so hard to deal with in some situations.
My hair hurts. Been told it was from MS.
Thankyou for all you do. I have learned so much about my diseases from you. I wish you had a practice in Las Vegas!
Again, Thankyou!
Missed this one too... feeling sad...
hey there from New Hampshire!
48 yo M. They won’t give me next steps or any timeline to diagnosis. What can I expect??
I too not a fan of the filters....just want the real Dr. B! :)
Hi from the UK x
Would you recommend not drinking coffee in the morning?
This was a great video
Hi from merritt bc