I am a special needs parent. Nothing made me feel better than going into an appt for my son and have the dr look at me with the “oh crap it’s her” look on his face. I knew he knew I was well informed and nothing but the best was acceptable. You are Sebastian’s best advocate. No one knows him better than you. Carry on Mama Bear!
I agree with you ..if that Drs' eye looked like that for months and months I'm sure it would bother him ! That sling needs to come out and give his eyelid a chance to heal and rest. I believe mom knows best...you are with him everyday.... they see him for 15 minutes. Stand your ground mom, I know you will make the right decision for your son.
You did not overreact. How many times do you have to say " its been going on for months & months"? When the Dr. later said " and its getting better" I spit my coffee out. For crying out loud! I agree with you that he needs surgery & totally feel your exasperation & doubts. You go with your gut Mama bear. Praying for you all.
Oh mama, I felt this episode I have a son with a serious medical condition and really felt this appointment. I’ve been there. This doctor frustrated me because I felt he wasn’t listening to you but rather talking over…… he should have picked up on your body language, your facial expressions and your frustration. If only my voice could carry through a screen. lol thank you for sharing and taking us with you in this journey. While our children’s conditions may be very different. It gives me strength seeing another mom navigating the system and advocating for their child……and great to see Aunty back as always!!
@@stephaniegeorge and he should’ve listened to what you had to say as a mom. You spend every day with this precious child you know him inside and out if you say something is wrong, something is wrong. I was ignored by my child specialist as well and my concerns sluffed off, and he almost died.. I tell you I was beyond mama bear mode activated , I wish I would’ve put my foot down when my gut was telling me too, in the first place. but you live and learn it taught me that while doctors are educated, they are not gods, and no education can overpower our mothers intuition So very grateful he’s still here and we seem to be doing well. Praying for peace and resolution for you and May 2024 bring along stretches of good health for Sebastian ! Keep up mama are you doing great!
You were very informed about Sebastian's eye and treatment plan. I'm not in that doctor's position but his bedside manner wouldn't put a mom at ease. You are justified in how you feel. At one point he said the procedure technique is more advanced now, so maybe that is a good thing? I understand it must be unsettling to take a doctor's word when you don't feel as if he listened to you. Wishing the best for Sebastian and family ❤
Stephanie, I applaud you for being that Mama Bear for your baby Sebastian.👏🏻👏🏻👏🏻 Nobody knows what it’s like unless you are walking in your shoes. The people that will say “ do it like this” “ you don’t know” have never been in your situation. You are first Sebastian mommy but also his caregiver for the rest of his life or yours. There’s no breaks, this is a 23/7 journey. I can speak because I was a full time caregiver for my husband 24/7 for his last 4years. I can’t even compare it to our precious little Sebastian. It’s hard ass work but your find all this strength and energy you never imagine having. If I lived close to you and I would gain your trust and friendship I would help you with him, but I know he has his awesome Manina. Love the girl too. I support you all the way. Only you knows what’s best for baby boy. This documentary you recorded was from the heart of a wonderful woman who wants the best for her child…..👏🏻👏🏻👏🏻👏🏻Hugs and love and admiration from Bradenton,Florida Que Dios Los Bendiga siempre. ❤😊
A mom's gut instinct is laser focused. Especially when she's with her child almost 24/7. You are Sebastian's best advocate and having a medical background certainly doesn't hurt. Stand your ground, you're the best mom ever❤ hugs.
How is it possible that that little boy just keeps getting cuter?? I love him. Of course it’s always wonderful to see you too Stephanie and Manina too. ❤❤
The mama bear in you is amazing!! I loooved how you went in with a plan, and spoke your wishes loud and clear. I love how you are speaking up and advocating for your sweet sweet Sebastian. You're one bada** mama. He's lucky to have you as a mom. He is just such a sweet boy. I am keeping you guys in my thoughts. I hope his eye gets sorted out, poor lil guy..
You’re an amazing mom for standing up for Sebastian and trusting your gut instead of letting fear of judgement or backlash keep you silent. I was also born with medical complexities due to genetic differences and without going into too much detail, letting doctors have the final say in my care/not speaking up when she had concerns is one of my mom’s biggest regrets as I am still affected by some of the consequences today. Like you said, you are his mother and you know him and his needs better than any doctor could ever hope to. It’s not like you’re ignoring the professionals by any means-I can tell that you are very meticulous in selecting each member of his medical team, listen actively and ask questions during his appointments, and consider all the information that they give you before making decisions about Sebastian’s care. But expecting you to blindly follow other people’s advice just because they have a degree is ridiculous. You have nothing to apologize for. Sebastian is happy, thriving, and achieving so much. If that’s not proof that you know what you’re doing an excellent job raising him (as well as what a sweet, smart, and strong kid he is) I don’t know what is. Also, I may not be a doctor, but letting an infection go on for that long without fixing to the root of the problem-especially when it’s causing him so much pain and discomfort-does not sit right with me either. If I was in your position I would’ve stood my ground too.
Doctors are always supposed to offer ALL options including doing nothing if it's viable. It may not be what you choose, but it's an option nonetheless. It sounded like he is wiling to drain the stye and get a better look at what's under the eye so he has a clearer picture of what's going on. Sounds like a good plan.
Absolutely. There are many factors and options. After having a swollen eyelid for almost a year though, I do believe doing ‘nothing’ and ‘monitoring progress’ shouldn’t be an option at this point is the only thing I was trying to communicate in this video. 🩵
The Dr's don't like whenever you know too much. Lol... They feel challenged. But you're the best advocate for yourself and your son. Good job, mom! Bless Sebastian ❤ I've had 4 eye surgeries (retina detachment) within these last 10 months & a cataract surgery coming up in June. I must say, eye stuff is uncomfortable. So I can imagine the pain Sebastian is feeling without being able to tell you his pain level. 😢 Material in the eye is definitely not comfortable. I also have material holding my retina attached ( Scalar buckle) I tell my eye specialist all the time that I can feel the buckle, and it's uncomfortable, but he doesn't think it's a problem. Smh! I totally understand you Steph!!! 💯
Stephanie, you are Sebastian’s advocate and you know what’s going on with your son. He has had a red eye for a very long time. The redness means it is an infection or else it would not be red. Mother usually knows best and you know what your son needs better than anyone don’t forget that. you are an amazing mother to a beautiful son, that lights up the the world with his smile and melts hearts everywhere. He really is a warrior. Your Poor little boy has been through so much. Thank you for sharing him with everybody.❤❤❤
Awww Steph! I get how stressful this must be. Especially when you feel you are not being heard! In the meantime, it doesn't hurt to get a second opinion. I encourage you to do so, because I too am not convinced it's just a stye. You have seen bumps in different places on his eye lid...so something isn't adding up. Try not to stress too much... It'll all get worked out. Sending love and hugs🤗
Now days, we all need a medical advocate. Not one that is employed by the hospital or specialized clinic. Most of us do not have any medical knowledge outside of the medicine cabinet. We don't understand what is wrong, we just know the symptoms are of something just not normal. Especially with our children or spouse. We have to do our own research. Make a consultation appointment before exams just to talk face to face. Navigating the medical community is difficult at best. But, the most important thing upfront is DO NOT let them intimidate you. You are doing great. You and your husband are on a tough journey, but a rewarding one. Y'all are doing fine. 🙏❤
Yummmmm…that breakfast looks delicious!!! ❤️ I had cancer many years ago and I fired my doctor because I didn’t like what he told me…I went home feeling hopeless and sooooo depressed. The best advice I was ever given in life was from my sister in law after my first son was born. She told me that everyone was going to advise me…do this…don’t do that, etc. She said, “Listen to all of it, and then go home and do what you think is best!!!” The same goes for you Stephanie…you are Sebastian’s mama and in your heart you know what’s best for Sebastian. ❤️❤️❤️
I think you're ABSOLUTELY right. You DO know your son better than anyone else. Don't second guess yourself, no-one could do it better than you do. Love and prayers! 😊❤
You are his mother and know him better than anyone else. You know how long he has dealt with this and i felt the doctor kept pushing his opinion but im so glad you kept pushing back and kept advocating for Sebastian. That is what a wonderful attentive mother does for their child. Good for you! You are an amazing mother!❤
As mothers, we always have to go with our gut and you most definitely are doing that!! You are smart and well informed about Sebastian and his needs Stephanie. Whether someone disagrees or not, in the long run it is your and Gio's decision, period. Not all physicians are going to meet the needs of patients and that's ok 😊 that's why there are second opinions. I pray that God will have His hand in giving you and Gio guidance 🙏
Thank you!!! It’s hard sometimes because I KNOW I’m not smarter than a doctor. I know that. But I also KNOW Sebastian more than they do. And that means something. At least to me.
Dear Stephanie, I absolutely understand your frustration, you are right. You are the person who knows your son best but I think this doc is really good. I wish you a lot of rest and good time, I guess you have a lot of stress every day this time. Best wishes!
You and Gio will make the right decision for Sebastian. I’ll keep all of you in my thoughts and prayers. Sebastian just makes my heart smile. I love how he lights up with Cindy they have such a special bond. Love you guys
Stay strong Momma and make your point. So glad surgery is being planned. He did hear you. Information needs to settle on your heart and in your mind. You will do what is best.
I felt encouraged that the Dr. was confident and willing to do the surgery if you choose to go that path. You are his main doctor so trust your gut! Really proud of you. I raised a special needs son and it can be exhausting and scary at times but you are an incredible mother to Sebastian. Also, can we discuss how stinking cute he was at breakfast. He was in food Heaven 😂❤
You said it perfectly...YOU know Sebastian the best! You always do your best advocating for your sweet boy! Go with your gut and keep loving that precious boy!!!
Sebastian, you eat so good. I like it when you hit your hand on your tray. Like I want more mom and dad. That is so cute and I love to see you smile. You are getting so big and strong. You amaze me. With the things that you can do on your own.It is so cool.
I'm so happy I got to spend so much time with Sebastian this week. I miss you guys when it's a while between videos. Steph yours and Gio's decision will be the right one. Because no one has his best interest like you two. I do agree and trust your judgement about his eye. There is something going on. So hang on Steph we have your family's back. We love Sebastian so much. He was so adorable sitting on your lap while the doctor was talking. ❤❤❤❤
You’re totally right! You are a great mom and advocating for your son is something a great mom would do. I am praying for y’all and God is holding you in His hands. Love you guys so much. It’s like you’re a part of my family. 🙏🏻💙🙏🏻
Nobody knows & loves that beautiful little man more than mama! I feel like doctors always think they know more than you or I & in my case that is prob 100% true but they sure as hell dont know more about my child! You guys are such amazing parents so PLEASE dont doubt yourself & ALWAYS trust your gut!❤❤❤❤❤❤❤
I get your point Stephanie. Stand up for your child because nobody else will stand up better for him than his mom. I was lucky with the dr's my son had. I was heard, there is no better feeling than that, when it comes down to it.❤❤.
I think you're the best best best mom for this super cutie pie. I'd give u a million 👍 (and that won't be enough) for what you do every single day for your son. I admire you for your spiritual and mental strength and that endless and unconditional love for your son. Huge Huge respect. Hugs from Europe. P.S: It's lovely to watch what LOVE really looks and feels like when everything works in the family
You are such an informed mum and great that you capture the appointment to go back on. We HAVE to question drs opinions if we feel so. Drs are not always right and the moment he said we can just leave it, I said to myself “but it’s irritating him! Does that not count?”. You’re a super intelligent and caring person and Sebastian couldn’t have asked for a better mum. And Geo can also watch the appointment. ❤❤❤
What i see in this video is a mum who is an advocate for her son, who loves her son dearly and wants only the best for him! ❤❤❤ Btw you look so great steph! I need to have some motivation for dieting too but can t seem to have any it s so hard! God bless your family you are all very sweet ❤❤❤
They would care if things were happening to them.. Doctors are all like that. Hugs to you and your sweet family ❤❤❤. He doesn't seem like a very tell it like it is person and that's what a doctor needs to be. It's like when you go and they say... "what can I do for you?" uhhhhh..... You tell me! Lol
You are his strongest advocate and he's lucky to have you. I see your point and I wish the best for him in whatever you decide. You're with him the most and know what's best. Love you Sébastien and Stephanie!!! I'll pray for him
Glad Cindy was there with you! You got this!! Know you all are Sebastian’s Best advocates!! Prayers continuing for Precious Sebastian and You! Oceans of Love.. ENJOY YOUR TRIP!!
I'm a Granny, and I am so proud of you! Keep speaking for your child. I had to get a second opinion more than once, and my instintinctes were right every time. You are the MOMMA, now get some rest and know you are heard and loved.
Stephanie, you are a mama bear who knows her cub better than anyone. Keep doing what you're doing. It's hard when you're not being heard by your doctor. And it's frustrating. I'm glad you are listening to yourself as you try and get the best care for Sebastian. You've gotten him through a very shaky start to his life. He is one lucky guy to have you and Gio as parents. And on another note, I watched Freya watching Sebastian having fun at the park with you and Cindy. She was smiling ear to ear! Hang in there girl. You got it.
I'm so sorry you are dealing with this. It is extremely frustrating when doctors don't listen. I pray you are able to get this resolved quickly. Love watching your videos. Sebastian is such a sweetie! 🥰 Keep fighting for him. Everythign will work out.
But you know what’s going on with your son better than anyone and you’ll make the best decisions based on that. Having a doctor who will listen to your concerns is very important, I like a doctor like that for myself.
I had Styes at the same exact age as Sebastian. Trust me. I had antibiotic off and on for months. Finally a Doctor decided to do the surgery (because I had it in both eyes) . You’re sooooo right that you know your Baby better than anyone else. Never feel bad about your opinion and concerns. ❤
Only you, as his mom, knows what's best for Sebastian. My son has epilepsy and I don't always agree with his neurologist. Don't ever feel like you have to defend yourself for your thoughts. We love you and your family ❤❤❤❤
You have a LOT to take in and think about. Go with your gut feeling. In your heart, you know what is best for your son. Stay strong and hang in there, Steph...God will wrap his arms around Sebastian and God will give the surgeon wisdom and guidance. You are in my prayers.
You’re the best advocate for Sebastian. You do know him best. So much to think about and no doubt you’ll make the best and most informed decision. You’re the one God blessed Sebastian with to be his voice. I will be praying for clarity for you as you’re weighing the options. Big hug for you Mama Bear! You did great and even when you were mentally checked out for a moment (Paraphrasing here from your screen written comment) you were so present and that was a lot to take in. But you did and you pushed through for your boy! Nothing but love for you and your family!!
Your judgment is always good. You know your sweet boy better than anyone. I agree with making things better for him wherever you can You are an excellent mother Love to all of you
I think you are so right. Just watch it is not an answer to solve the problem or it would have gone away. If it was on my eye or my child’s would want it resolved. There has to be a reason why it’s staying swollen and irritated. You’re a great mom and do not want your son hurt or ill.
Of, Stephanie! 😢 I was watching you when the Dr. was explaining all the options. I was thinking... Stephanie looks emotionally drained! Then you wrote...black-out! I just want to reach in and give you a BIG 🫂! He is such a trooper...watching him chillin' on you just melted my heart! I am glad you feel vulnerable to share with us your emotions! I FEEL for your feelings! I know this is long...❤ Gio is working hard, but THERE always! Hi Gio! Nobody has the right to judge walking in your "Hey Dudes"...😉😍...had to insert a little humour😊! I will pray earnestly for peace and strength as you and Gio make this decision. Love from Minnesota!🙋♀️🫂❤️🩹🙏🏼
Saying Prayers for you and Gio and the Dr as well for wisdom,guidance and a peace in your spirit in knowing you are doing what is right and good for Sebastian. Thanks for sharing your journey with all of us and giving us the opportunity to pray, and to learn about CDLS. ❤🙏☀️
It may be a bit better because of the antibiotic.But that still doesn’t explain why it keeps happening. Or what the underlining cause is. It seems the only way is to put him under and see. I’m praying for answers 💜💜💜💜Also Stephanie, Drs are human and some are confident about their ability and some are intimidated with special-needs kids . I’m not sure why ,I have a special-needs daughter and we’ve dealt with that our whole life until the parent says I want something to be done or checked out or whatever they’re really almost afraid to make a commitment and that Dr talked in circles like I have never heard. With that said surgeons for the most part can be very good , just not a good bed said manor .🙏🏽🙏🏽🙏🏽
I'm getting the same vibes as you Stephanie...This Dr. seems to be addressing symptoms and not a permanent or long term cure. Your goal for Sebastian is clear - correct the eye issue(s) on a permanent basis so Sebastian has the best long-term outcome. Ironically, I was thinking that you really do have the experience of a Doctor and the hands on experience of a Psysician. Don't doubt your instincts - it's obvious when we see how far Sebastian has come! Oh...by the way, Sebastian is beginning to imitate what you're saying 💓 keep on Mama! You and yours are doing great! Love you guys so much!!
Thanks for taking us along on Sebastian’s appointment. I could feel your anxiety and Sebastian’s too! I can relate I have white coat syndrome, doesn’t matter if it’s the Drs or Optometrist! The Dr should have listened to you, why would you want a little fella to suffer, if a surgery can make him more comfortable 🤷♀️ Thinking of you guys 🤗☺️😌
Hi Stephanie. I don’t often comment but felt compelled to today. You know your son better than anyone, even a Dr. Bravo to you for following your intuition and being Sebastian’s advocate. Thank God he has you! Follow your gut, you’re a GREAT Momma. Get well soon Sebastian! ❤
Stephanie, you are an awesome mother and you’re right, no one knows sweet Sebastian as well as you and Gio. I don’t blame you for feeling anxious. I was anxious for you and could sense your anxiety. Prayers that God will bring complete healing of Sebastian’s eye/eyes. You will make the right decision. I know you will.❤Hugs for you and precious Sebastian.
Steph use caution in using cortisone because children with Cdls have delicate kidneys! Steroids are hard on the kidneys! Wishing Sebastian the best and healthiest outcome❤️🙏
Poor Little Guy .... Always something, Try to ease his inflammation by soaking his eye with warm green tea ... is also good for pink eye, itchy eye, minor eye irritations, ask Gio's Mom or Abuela. Home remedies are good. Tons of Bechitos Sebastian 😘 Steff you're a Good Mama to your Son and a Good Inspiration to others Mamas as well ❤
As a parent. My son has no issues. When he was young I spent 1-2 days every week at the pediatrician office he had a chronic ear infections.Doctor said he will out grow them well then we kept getting strep. I said enough is enough. Took him to a ent got his tonsils and adenoids out the left tonsils was nothing but puss. You know him better than anyone. If you need to go get a second opinion no harm no fowl do what you feel is right for Sebastian. Never stop fighting for him. ♥️♥️🥰
Probanly should see another dr just for your own satisfaction. Obviously its bothering him. And you aren't crazy ...you are his main advocate, literately his voice. I was blacking out just watching the visit cant imagine how you felt. Just want Mr S to feel better....❤❤❤
I totally agree with you. You know Sebastian better than any doctor and have seen his eye issue daily. I would have thought a doctor would have taken care to resolve this issue before now. Especially since it's has been at least a year of being swollen and red. If it was you or I with this issue, it would have been treated and healed long ago. Sebastian deserves the best of the best. You have the right as his parent to make sure he has the best doctors and treatment. You and Gio are awesome parents, so follow your gut feelings. And by the way...there's nothing better than a Sebastian smile❤❤❤❤❤❤❤❤❤❤
You are NOT overreacting. Only you can speak for him. I would not be so calm. You handle it so well. If you really want that out, tell him. He's your child, you have to go with your gut. Mommy intuition counts🥰Thanks for sharing your sweet boy with us. God Bless you 💕
I am a special needs parent. Nothing made me feel better than going into an appt for my son and have the dr look at me with the “oh crap it’s her” look on his face. I knew he knew I was well informed and nothing but the best was acceptable. You are Sebastian’s best advocate. No one knows him better than you. Carry on Mama Bear!
One of your best qualities is you are Sebastian’s number one advocate! 💕❤️
Yes yes this right here! She is doing incredible.
What matters is Sebastian's comfort and mom and dad's peace of mind.
I agree with you ..if that Drs' eye looked like that for months and months I'm sure it would bother him ! That sling needs to come out and give his eyelid a chance to heal and rest. I believe mom knows best...you are with him everyday.... they see him for 15 minutes. Stand your ground mom, I know you will make the right decision for your son.
You are his momma ❤you and Gio are the ones who make the call.. he’s your baby.
Shut out the noise, and do what’s best.
You guys are the best!!!⭐️⭐️⭐️
You know your son better than anyone, Stephanie.My prayer's and love is with you all.❤
Little sweetheart. ❤ He brightens our world.
You did not overreact.
How many times do you have to say " its been going on for months & months"?
When the Dr. later said " and its getting better" I spit my coffee out.
For crying out loud!
I agree with you that he needs surgery & totally feel your exasperation & doubts.
You go with your gut Mama bear.
Praying for you all.
Oh mama, I felt this episode I have a son with a serious medical condition and really felt this appointment. I’ve been there. This doctor frustrated me because I felt he wasn’t listening to you but rather talking over…… he should have picked up on your body language, your facial expressions and your frustration. If only my voice could carry through a screen. lol thank you for sharing and taking us with you in this journey. While our children’s conditions may be very different. It gives me strength seeing another mom navigating the system and advocating for their child……and great to see Aunty back as always!!
Ugh. I felt the same way. Hes one of those doctors who just love to speak and not even listen to anyone else unfortunately lol
@@stephaniegeorge and he should’ve listened to what you had to say as a mom. You spend every day with this precious child you know him inside and out if you say something is wrong, something is wrong. I was ignored by my child specialist as well and my concerns sluffed off, and he almost died.. I tell you I was beyond mama bear mode activated , I wish I would’ve put my foot down when my gut was telling me too, in the first place. but you live and learn it taught me that while doctors are educated, they are not gods, and no education can overpower our mothers intuition So very grateful he’s still here and we seem to be doing well. Praying for peace and resolution for you and May 2024 bring along stretches of good health for Sebastian ! Keep up mama are you doing great!
@@canadianbrit I’m so sorry for what you went through but I also thank you for your comment. I feel so seen right now. Thank you 😭🩵
@@stephaniegeorge anytime! United we stand !🫶🏻
You were very informed about Sebastian's eye and treatment plan. I'm not in that doctor's position but his bedside manner wouldn't put a mom at ease. You are justified in how you feel. At one point he said the procedure technique is more advanced now, so maybe that is a good thing? I understand it must be unsettling to take a doctor's word when you don't feel as if he listened to you. Wishing the best for Sebastian and family ❤
Stephanie, I applaud you for being that Mama Bear for your baby Sebastian.👏🏻👏🏻👏🏻 Nobody knows what it’s like unless you are walking in your shoes. The people that will say “ do it like this” “ you don’t know” have never been in your situation. You are first Sebastian mommy but also his caregiver for the rest of his life or yours. There’s no breaks, this is a 23/7 journey. I can speak because I was a full time caregiver for my husband 24/7 for his last 4years. I can’t even compare it to our precious little Sebastian. It’s hard ass work but your find all this strength and energy you never imagine having. If I lived close to you and I would gain your trust and friendship I would help you with him, but I know he has his awesome Manina. Love the girl too. I support you all the way. Only you knows what’s best for baby boy. This documentary you recorded was from the heart of a wonderful woman who wants the best for her child…..👏🏻👏🏻👏🏻👏🏻Hugs and love and admiration from Bradenton,Florida
Que Dios Los Bendiga siempre. ❤😊
A mom's gut instinct is laser focused. Especially when she's with her child almost 24/7. You are Sebastian's best advocate and having a medical background certainly doesn't hurt. Stand your ground, you're the best mom ever❤ hugs.
How is it possible that that little boy just keeps getting cuter?? I love him. Of course it’s always wonderful to see you too Stephanie and Manina too. ❤❤
Prayers for sweet Sebastian, hope everything goes well with him and his eye. Keep standing your ground momma, you are absolutely phenomenal 💖💖
You know your child better than anyone else and I admire you greatly.
The mama bear in you is amazing!! I loooved how you went in with a plan, and spoke your wishes loud and clear. I love how you are speaking up and advocating for your sweet sweet Sebastian. You're one bada** mama. He's lucky to have you as a mom. He is just such a sweet boy. I am keeping you guys in my thoughts. I hope his eye gets sorted out, poor lil guy..
Coming from a special needs mom. You are doing the right thing, never stop advocating for him! ❤😊
You’re an amazing mom for standing up for Sebastian and trusting your gut instead of letting fear of judgement or backlash keep you silent. I was also born with medical complexities due to genetic differences and without going into too much detail, letting doctors have the final say in my care/not speaking up when she had concerns is one of my mom’s biggest regrets as I am still affected by some of the consequences today. Like you said, you are his mother and you know him and his needs better than any doctor could ever hope to. It’s not like you’re ignoring the professionals by any means-I can tell that you are very meticulous in selecting each member of his medical team, listen actively and ask questions during his appointments, and consider all the information that they give you before making decisions about Sebastian’s care. But expecting you to blindly follow other people’s advice just because they have a degree is ridiculous. You have nothing to apologize for. Sebastian is happy, thriving, and achieving so much. If that’s not proof that you know what you’re doing an excellent job raising him (as well as what a sweet, smart, and strong kid he is) I don’t know what is. Also, I may not be a doctor, but letting an infection go on for that long without fixing to the root of the problem-especially when it’s causing him so much pain and discomfort-does not sit right with me either. If I was in your position I would’ve stood my ground too.
Doctors are always supposed to offer ALL options including doing nothing if it's viable. It may not be what you choose, but it's an option nonetheless. It sounded like he is wiling to drain the stye and get a better look at what's under the eye so he has a clearer picture of what's going on. Sounds like a good plan.
Absolutely. There are many factors and options. After having a swollen eyelid for almost a year though, I do believe doing ‘nothing’ and ‘monitoring progress’ shouldn’t be an option at this point is the only thing I was trying to communicate in this video. 🩵
Always remember you know him best, and your his best advocate. ❤
The Dr's don't like whenever you know too much. Lol... They feel challenged. But you're the best advocate for yourself and your son. Good job, mom! Bless Sebastian ❤ I've had 4 eye surgeries (retina detachment) within these last 10 months & a cataract surgery coming up in June. I must say, eye stuff is uncomfortable. So I can imagine the pain Sebastian is feeling without being able to tell you his pain level. 😢 Material in the eye is definitely not comfortable. I also have material holding my retina attached ( Scalar buckle) I tell my eye specialist all the time that I can feel the buckle, and it's uncomfortable, but he doesn't think it's a problem. Smh! I totally understand you Steph!!! 💯
You are such an amazing mom. I don’t know how you do it all and you do it all with grace.
Mom you’re doing a great job as advocate. Don’t let the doctors make you think you’re wrong, stick to your opinion. Prayers for you and Sebastian ❤
I am amazed at how much Sebastian's head control has improved and he is really trying to look directly at things. xxx
Stephanie, you are Sebastian’s advocate and you know what’s going on with your son. He has had a red eye for a very long time. The redness means it is an infection or else it would not be red. Mother usually knows best and you know what your son needs better than anyone don’t forget that. you are an amazing mother to a beautiful son, that lights up the the world with his smile and melts hearts everywhere. He really is a warrior. Your Poor little boy has been through so much. Thank you for sharing him with everybody.❤❤❤
Awww Steph! I get how stressful this must be. Especially when you feel you are not being heard! In the meantime, it doesn't hurt to get a second opinion. I encourage you to do so, because I too am not convinced it's just a stye. You have seen bumps in different places on his eye lid...so something isn't adding up. Try not to stress too much... It'll all get worked out. Sending love and hugs🤗
Now days, we all need a medical advocate. Not one that is employed by the hospital or specialized clinic. Most of us do not have any medical knowledge outside of the medicine cabinet. We don't understand what is wrong, we just know the symptoms are of something just not normal. Especially with our children or spouse. We have to do our own research. Make a consultation appointment before exams just to talk face to face. Navigating the medical community is difficult at best. But, the most important thing upfront is DO NOT let them intimidate you. You are doing great. You and your husband are on a tough journey, but a rewarding one. Y'all are doing fine. 🙏❤
Yummmmm…that breakfast looks delicious!!! ❤️ I had cancer many years ago and I fired my doctor because I didn’t like what he told me…I went home feeling hopeless and sooooo depressed. The best advice I was ever given in life was from my sister in law after my first son was born. She told me that everyone was going to advise me…do this…don’t do that, etc. She said, “Listen to all of it, and then go home and do what you think is best!!!” The same goes for you Stephanie…you are Sebastian’s mama and in your heart you know what’s best for Sebastian. ❤️❤️❤️
He IS sitting up himself. So cool, and hes gaberring a lot. I love hearing him try to talk😮😮😂😂❤❤
I get the "not heard" thing when it is your chil and doctors. I'm glad you pushed for him to listen to you. Go, mom!!!
I love seeing him sitting in the big boy high chair!, so adorable! And that breakfast looks so yummy that you made him!
I think you're ABSOLUTELY right. You DO know your son better than anyone else. Don't second guess yourself, no-one could do it better than you do. Love and prayers! 😊❤
YOU are one AWESOME mom!!!!! Don't ever forget how wonderful you are, Sebastian is such a sweetheart!!! God bless you all🙏
You are his mother and know him better than anyone else. You know how long he has dealt with this and i felt the doctor kept pushing his opinion but im so glad you kept pushing back and kept advocating for Sebastian. That is what a wonderful attentive mother does for their child. Good for you! You are an amazing mother!❤
He is so cute I just love him. He is just a tough little guy. I'm always praying for u guys. U are a great mom to him
As mothers, we always have to go with our gut and you most definitely are doing that!! You are smart and well informed about Sebastian and his needs Stephanie. Whether someone disagrees or not, in the long run it is your and Gio's decision, period. Not all physicians are going to meet the needs of patients and that's ok 😊 that's why there are second opinions. I pray that God will have His hand in giving you and Gio guidance 🙏
Good luck and great job for speaking up
Thank you!!! It’s hard sometimes because I KNOW I’m not smarter than a doctor. I know that. But I also KNOW Sebastian more than they do. And that means something. At least to me.
I totally agree. ❤❤❤❤❤
Dear Stephanie, I absolutely understand your frustration, you are right. You are the person who knows your son best but I think this doc is really good. I wish you a lot of rest and good time, I guess you have a lot of stress every day this time. Best wishes!
You and Gio will make the right decision for Sebastian. I’ll keep all of you in my thoughts and prayers. Sebastian just makes my heart smile. I love how he lights up with Cindy they have such a special bond. Love you guys
I send love and light to the right answers, Maybe a childrens hospital could help find the right Dr. just a thought.
Bananas are good for dogs too.
I pray everything goes well with your eye little warrior. ❤
I love his little mixer, it's so cute and fits Sebastians personality❤❤❤
Sebastian your mom makes you the best food! I hope you are doing well ❤❤Love you ❤
Stay strong Momma and make your point. So glad surgery is being planned. He did hear you. Information needs to settle on your heart and in your mind. You will do what is best.
I felt encouraged that the Dr. was confident and willing to do the surgery if you choose to go that path. You are his main doctor so trust your gut! Really proud of you. I raised a special needs son and it can be exhausting and scary at times but you are an incredible mother to Sebastian. Also, can we discuss how stinking cute he was at breakfast. He was in food Heaven 😂❤
You said it perfectly...YOU know Sebastian the best! You always do your best advocating for your sweet boy! Go with your gut and keep loving that precious boy!!!
I can't believe they are making you wait till June! Your a great mom and advocate for your baby!
Sebastian, you eat so good. I like it when you hit your hand on your tray. Like I want more mom and dad. That is so cute and I love to see you smile. You are getting so big and strong. You amaze me. With the things that you can do on your own.It is so cool.
Stephanie knows what is best for Sebastian!❤
I'm so happy I got to spend so much time with Sebastian this week. I miss you guys when it's a while between videos. Steph yours and Gio's decision will be the right one. Because no one has his best interest like you two. I do agree and trust your judgement about his eye. There is something going on. So hang on Steph we have your family's back. We love Sebastian so much. He was so adorable sitting on your lap while the doctor was talking. ❤❤❤❤
You’re totally right! You are a great mom and advocating for your son is something a great mom would do. I am praying for y’all and God is holding you in His hands. Love you guys so much. It’s like you’re a part of my family. 🙏🏻💙🙏🏻
I think you're doing exactly what any concerned and loving mom would do! Oh and btw, i absolutely LOVE to see him smile!
Whatever you and Geo decide will be the right decision no matter what!! Love that little guy. He is so precious!
I felt your frustration. You’re not an idiot. you’re a great mama bear and advocate for Sebastian. ❤
Chin up mama. You will always know what is best for your son.
Nobody knows & loves that beautiful little man more than mama! I feel like doctors always think they know more than you or I & in my case that is prob 100% true but they sure as hell dont know more about my child! You guys are such amazing parents so PLEASE dont doubt yourself & ALWAYS trust your gut!❤❤❤❤❤❤❤
I get your point Stephanie. Stand up for your child because nobody else will stand up better for him than his mom. I was lucky with the dr's my son had. I was heard, there is no better feeling than that, when it comes down to it.❤❤.
I think you're the best best best mom for this super cutie pie. I'd give u a million 👍 (and that won't be enough) for what you do every single day for your son. I admire you for your spiritual and mental strength and that endless and unconditional love for your son. Huge Huge respect. Hugs from Europe. P.S: It's lovely to watch what LOVE really looks and feels like when everything works in the family
You are such an informed mum and great that you capture the appointment to go back on. We HAVE to question drs opinions if we feel so. Drs are not always right and the moment he said we can just leave it, I said to myself “but it’s irritating him! Does that not count?”. You’re a super intelligent and caring person and Sebastian couldn’t have asked for a better mum. And Geo can also watch the appointment. ❤❤❤
What i see in this video is a mum who is an advocate for her son, who loves her son dearly and wants only the best for him! ❤❤❤ Btw you look so great steph! I need to have some motivation for dieting too but can t seem to have any it s so hard! God bless your family you are all very sweet ❤❤❤
They would care if things were happening to them.. Doctors are all like that. Hugs to you and your sweet family ❤❤❤. He doesn't seem like a very tell it like it is person and that's what a doctor needs to be. It's like when you go and they say... "what can I do for you?" uhhhhh..... You tell me! Lol
Praying for Sebastian, Mom & Dad. You will do what’s best for your sweet boy. 🙏 💙 🤗🥰
You are his strongest advocate and he's lucky to have you. I see your point and I wish the best for him in whatever you decide. You're with him the most and know what's best. Love you Sébastien and Stephanie!!! I'll pray for him
Praying for God to give you wisdom to determine how to go about taking care of Sébastien eyes
This is your son and you know him the best!! And you want what is the best for your son!!! Sebastian has wonderful parents.
Glad Cindy was there with you! You got this!! Know you all are Sebastian’s Best advocates!! Prayers continuing for Precious Sebastian and You! Oceans of Love.. ENJOY YOUR TRIP!!
I'm a Granny, and I am so proud of you! Keep speaking for your child. I had to get a second opinion more than once, and my instintinctes were right every time. You are the MOMMA, now get some rest and know you are heard and loved.
Hi Steph,Sabastian is sooo cute! When you said "can't be giving out any shows for free" I almost choked on my pepsi.
Stephanie, you are a mama bear who knows her cub better than anyone. Keep doing what you're doing. It's hard when you're not being heard by your doctor. And it's frustrating. I'm glad you are listening to yourself as you try and get the best care for Sebastian. You've gotten him through a very shaky start to his life. He is one lucky guy to have you and Gio as parents.
And on another note, I watched Freya watching Sebastian having fun at the park with you and Cindy. She was smiling ear to ear!
Hang in there girl. You got it.
I'm so sorry you are dealing with this. It is extremely frustrating when doctors don't listen. I pray you are able to get this resolved quickly. Love watching your videos. Sebastian is such a sweetie! 🥰 Keep fighting for him. Everythign will work out.
But you know what’s going on with your son better than anyone and you’ll make the best decisions based on that. Having a doctor who will listen to your concerns is very important, I like a doctor like that for myself.
I had Styes at the same exact age as Sebastian. Trust me. I had antibiotic off and on for months. Finally a Doctor decided to do the surgery (because I had it in both eyes) . You’re sooooo right that you know your Baby better than anyone else. Never feel bad about your opinion and concerns. ❤
Only you, as his mom, knows what's best for Sebastian. My son has epilepsy and I don't always agree with his neurologist. Don't ever feel like you have to defend yourself for your thoughts. We love you and your family ❤❤❤❤
You have a LOT to take in and think about. Go with your gut feeling. In your heart, you know what is best for your son. Stay strong and hang in there, Steph...God will wrap his arms around Sebastian and God will give the surgeon wisdom and guidance. You are in my prayers.
Sebastians smile ❤❤❤❤❤ you do whatever it takes for your son. You know him the best. Love hugs and kisses your way ❤❤
You’re the best advocate for Sebastian. You do know him best. So much to think about and no doubt you’ll make the best and most informed decision.
You’re the one God blessed Sebastian with to be his voice. I will be praying for clarity for you as you’re weighing the options.
Big hug for you Mama Bear! You did great and even when you were mentally checked out for a moment (Paraphrasing here from your screen written comment) you were so present and that was a lot to take in. But you did and you pushed through for your boy!
Nothing but love for you and your family!!
Go with what your feelings are telling you. You know what it best for your child. God bless ❤
Your judgment is always good. You know your sweet boy better than anyone. I agree with making things better for him wherever you can
You are an excellent mother
Love to all of you
Love y’all bunches 💙🩷💙🐶🦜
It’s you and Geo’s decision momma ❤
I think you are so right. Just watch it is not an answer to solve the problem or it would have gone away. If it was on my eye or my child’s would want it resolved. There has to be a reason why it’s staying swollen and irritated. You’re a great mom and do not want your son hurt or ill.
Thank you for sharing. It's hard being a mom but you do an awesome job God bless you and your sweet family.😊
Of, Stephanie! 😢 I was watching you when the Dr. was explaining all the options. I was thinking... Stephanie looks emotionally drained! Then you wrote...black-out! I just want to reach in and give you a BIG 🫂! He is such a trooper...watching him chillin' on you just melted my heart! I am glad you feel vulnerable to share with us your emotions! I FEEL for your feelings! I know this is long...❤
Gio is working hard, but THERE always! Hi Gio! Nobody has the right to judge walking in your "Hey Dudes"...😉😍...had to insert a little humour😊! I will pray earnestly for peace and strength as you and Gio make this decision. Love from Minnesota!🙋♀️🫂❤️🩹🙏🏼
Thank you so much for your comment. I felt seen here! Lol. It was a long day 😭
Saying Prayers for you and Gio and the Dr as well for wisdom,guidance and a peace in your spirit in knowing you are doing what is right and good for Sebastian. Thanks for sharing your journey with all of us and giving us the opportunity to pray, and to learn about CDLS. ❤🙏☀️
You are a great advocate. Prayers surgery goes well.
You are a wonderful Mommy and you know him best. And you are right it’s been going on to long. ❤❤❤❤❤❤
It may be a bit better because of the antibiotic.But that still doesn’t explain why it keeps happening. Or what the underlining cause is. It seems the only way is to put him under and see. I’m praying for answers 💜💜💜💜Also Stephanie, Drs are human and some are confident about their ability and some are intimidated with special-needs kids .
I’m not sure why ,I have a special-needs daughter and we’ve dealt with that our whole life until the parent says I want something to be done or checked out or whatever they’re really almost afraid to make a commitment and that Dr talked in circles like I have never heard. With that said surgeons for the most part can be very good , just not a good bed said manor .🙏🏽🙏🏽🙏🏽
I'm getting the same vibes as you Stephanie...This Dr. seems to be addressing symptoms and not a permanent or long term cure. Your goal for Sebastian is clear - correct the eye issue(s) on a permanent basis so Sebastian has the best long-term outcome. Ironically, I was thinking that you really do have the experience of a Doctor and the hands on experience of a Psysician. Don't doubt your instincts - it's obvious when we see how far Sebastian has come! Oh...by the way, Sebastian is beginning to imitate what you're saying 💓 keep on Mama! You and yours are doing great! Love you guys so much!!
Thanks for taking us along on Sebastian’s appointment. I could feel your anxiety and Sebastian’s too! I can relate I have white coat syndrome, doesn’t matter if it’s the Drs or Optometrist! The Dr should have listened to you, why would you want a little fella to suffer, if a surgery can make him more comfortable 🤷♀️ Thinking of you guys 🤗☺️😌
Hi Stephanie. I don’t often comment but felt compelled to today. You know your son better than anyone, even a Dr. Bravo to you for following your intuition and being Sebastian’s advocate. Thank God he has you! Follow your gut, you’re a GREAT Momma. Get well soon Sebastian! ❤
Thank you so much for your comment 😭🩵
He sits up so much straighter!! Wow! What a sweet boy. ❤
Stephanie, you are an awesome mother and you’re right, no one knows sweet Sebastian as well as you and Gio. I don’t blame you for feeling anxious. I was anxious for you and could sense your anxiety. Prayers that God will bring complete healing of Sebastian’s eye/eyes. You will make the right decision. I know you will.❤Hugs for you and precious Sebastian.
Steph use caution in using cortisone because children with Cdls have delicate kidneys! Steroids are hard on the kidneys!
Wishing Sebastian the best and healthiest outcome❤️🙏
Poor Little Guy .... Always something, Try to ease his inflammation by soaking his eye with warm green tea ... is also good for pink eye, itchy eye, minor eye irritations, ask Gio's Mom or Abuela. Home remedies are good. Tons of Bechitos Sebastian 😘 Steff you're a Good Mama to your Son and a Good Inspiration to others Mamas as well ❤
As a parent. My son has no issues. When he was young I spent 1-2 days every week at the pediatrician office he had a chronic ear infections.Doctor said he will out grow them well then we kept getting strep. I said enough is enough. Took him to a ent got his tonsils and adenoids out the left tonsils was nothing but puss. You know him better than anyone. If you need to go get a second opinion no harm no fowl do what you feel is right for Sebastian. Never stop fighting for him. ♥️♥️🥰
Poor kid... well done
Probanly should see another dr just for your own satisfaction. Obviously its bothering him. And you aren't crazy ...you are his main advocate, literately his voice. I was blacking out just watching the visit cant imagine how you felt. Just want Mr S to feel better....❤❤❤
I have several thoughts but they don’t matter. Yours do. Please just have complete confidence in the doctor. Much, much love ❤️
Shows for free..you crack me up! Lol
I totally agree with you. You know Sebastian better than any doctor and have seen his eye issue daily. I would have thought a doctor would have taken care to resolve this issue before now. Especially since it's has been at least a year of being swollen and red. If it was you or I with this issue, it would have been treated and healed long ago. Sebastian deserves the best of the best. You have the right as his parent to make sure he has the best doctors and treatment. You and Gio are awesome parents, so follow your gut feelings. And by the way...there's nothing better than a Sebastian smile❤❤❤❤❤❤❤❤❤❤
You are just Sebastian's Mama and his advocate...a fierce Mama bear...you go girl❤❤very proud of you
You are NOT overreacting. Only you can speak for him. I would not be so calm. You handle it so well. If you really want that out, tell him. He's your child, you have to go with your gut. Mommy intuition counts🥰Thanks for sharing your sweet boy with us. God Bless you 💕