Hug for you. What helped me was aggressive rest. Resting longer then you think you need. Knowing that every minute you are relaxing, you are slowly recovering. Ldn and ivabradine for pots was also helpful. I meditate a lot. Letting go of everything. The future is unknown, for everyone. Take care. You are not alone
Hugs. Feels like no one understands the anxiety when you get to that level. I'm struggling with that too. Teetering on the edge of oblivion, anything can push us over. ❤❤❤
I came to your channel because of your helpful paint pouring videos. I have subscribed and hope you find the root cause of this horrible illness. God bless you and do all you can to rest - I pray you will find peace in your heart that what will be will be, which will aid peace in your body. Take care and do art when you can not for public but just for yourself my love x
Hi! i am so sorry to hear about your struggles. I can totally see myself in you. I checked you out, because i was watching one of your pouring videos,, one of your last ones actually, and i reconized your shaking at once. I shake like that too, from exhaustion. I feel like a duracell rabbit. and it is so tiring, it takes all the energy., especially if you are very exhausted. I was very ill. I had four years where i isolated myself and couldn't stand anything. I don't have the diagnose ME, because i have a whole lot of other diagnosis that gives exhaustion too, so they blame it on those, but i think my other diagnosis came because of ME. It is the exact same as you describe, and i was very ill, with panick attacks, some kind of epileptic seizures, exhaustion to the point where i couldn't even take a shower without ending up really sick for weeks, and in the end I got a horrible headache (it was so bad, i was lying in fetal position and whimpered, because screaming was painful.) And i was shaking all the time, when ever i used my musles for anything, as if i had been exerzising too hard. My husband couldn't take it in the end, and i don't blame him, he didn't see much of me those four years, and i felt bad about it constantly, so it was a reliefe to us both when we finally separated. I got scared to be alone, like you, and i also have a son, and i was scared to death that he would experience to find me dead one day, so I got scared to be here alone with him. You know all the thoughts that comes up when your life becomes all about the symphtoms and how to get better. I felt like i was a liability and that i didn't measure up. It just takes over your life completely. The last year i also had joint pains and swellings. Then one day, i had another seazure where I was sweating, had sky high pulse, shaking and something new. My throat started swelling. Not much, but enough for me to get completely panicked. The paramedic told me that i should try to cut out gluten and sweets. He told about his wife who had the same thing, and it was like a intolerance to gluten. I was desperate, so i did. I got a lot better, after i changed my diet. It didn't happen over night, but i got better, slowly but surely. My joint swellings dissappeared, so did my migraine, my exhaustion, and my panick attacks. I am still recovering, slowly, and i realize that i might not be completely healty again. but now at least, i can choose whether i was to go to a party or to spend time with my son, and i shower every day, imagine that! 😅🤣 I 'm still shaking, but I am so much better. I have gotten much of my life back, and i am so grateful to that paramedic. I really regret i didn't try to change my diet years ago. I blew it off for many years, as nonsense, but when i cut out gluten and sugar from my diet, things started to happen. Some can have the same reaction to milk products too, so eliminate and eat safe (vegetables, meat salads, and make your food from scratch) for about six months. And remember vitamins. Then try to eat some of it again, one and one thing at the time, and see what happens. If you get worse, you know what to do. I hope someone can find this useful. I wish you all the best and i will pray for your recovery💕
This video made me feel some comfort. I have had many of the exact same problems with my ME. I told myself to prepare for it because I always struggle in the winter. I have a lot of bacteria in my lungs that I’m trying to get rid of, but it makes breathing difficult. I also have a heart condition where my heart beats super fast and very hard so that’s painful. Of course these things, plus my other symptoms make me have symptoms of panic attacks. I recently got a wheelchair to go out in, but have struggled because whenever I go out and try to walk to work my muscles, my body seizes up and I can hardly move. This worries me because I am not that old, and I fear that my body is just going to keep decaying to the point of being very severe. I’ve been going to a holistic doctor to help me,I thought that she could hopefully heal my ME, but now I’m not so sure, so I’m a bit scared. Before I got sick, when I was a toddler I would have seizures. I think it actually ended up being a sign of my ME. I will be praying for you.💗 stay strong your not alone in this horrible fight against ME!💗
See my post on this video. I had two babies in diapers when I was infected 1991 GWI, my whole family was effected, as Nicolson reported. In 2015, I was dying of pneumonia the end stage of the scourge patented weapon. Doctors didn’t know what was killing me because there is no test “code” available for what I was infected with, patented by head scientist Army Biowarfare lab, back in the day. Our government/science bad behavior has a long, long history.
I was infected before they had any “names”, and the condition is progressive, as it was designed. Also, I was pregnant with the youngest when I was infected. She has seizures when her brain is attacked by neurological viruses, especially the patented Enterovurus-69. (the one crippling children in the U.S.) She also can’t take any drugs (like ADHD meds) without causing seizures, my middle child was 18 months and directly injected through military base MMR to become the 1st Aspergers Syndrome child to go through our large metropolitan school district and our oldest 8, developed ADD within a year. Semper Fi
You are not alone. Never. Maybe you could try some meditation to stay calm. In your condition even concentrating for a meditation is hard. But once you get used to it it will be a lot easier. Or try to think about something special. For example try to think of maybe 5 things of which you are really thankful for. And do this every day with different things or maybe even the same things, when you really feel it. This could help to remember the positive things in your life :) I really hope you find a way. Stay strong!
I hear you, dear, and I'm cheering on you. Cheering on myself and all of us that are on this journey with longtime unbalanced bodies and brains. I know the darkness amd fear also of being in thia landscape. I feel I'm also in a special challenging time now, with change and worsening of symptoms. What helps you? What words do you need to hear, what makes you feel safer in the midst of it all? (No pressure to answer...it can be as a slow reflection) For me help is in: to give space for grief for my situation for so many years, try to let go of future. Go from my spinning brain down in my body, let myself have some distractions when there is much pain. I work with a therapist that is all about how can i create a feeling of more safety in myself. Even if just a tiny step towards it. I really like that. And it makes sence, allthoug easier said than done. When the nervous system feels more safe, it doesn't need to ramp up all these systems..
Hi there. Don’t know if this could help with the anxiety? I have horrible anxiety attacks. I started doing the Wim Hof breathing when I get them. Just LU on you tube. You can just do what you areable to, not all of it… I’ve been crashed too and lately before the crash getting much worse symptoms. I had to go to a doctor to be evaluated for disability which is why I crashed. I like your shorts about pain, btw. Hilarious and true. Hope you climb out of your crash.
Check out Penny Kelly on TH-cam - The videos on Tea AND Consciousness where people ask for a body scan where she offers non medical advice and often dietary advice. Wishing you good health.
You are getting symptoms phobia, which mean your are frightened about your body sensations. And that IS the perfecto context for trauma and for activate your nervous system (fight flight Freezer response) and make It worst, as your autonomic nervous system is allready altered due to me/sfc and trigger. Polyvagal therapy can help you a lot and many fisiotherapists are trained in applying polyvagal therapy, somatic experiencing and help your mundo coping with the relapses and not enter in a survival and trauma response. Check a doctor Who tales care of the body with supplements and all that...and if you can afford It , choose a psycotherapist trained in body work and about all in polyvagal and somatic experiencing/trauma therapy. A fisiotherapists with the above knowdledge is worth too. In trauma, too much is too much. And too much body sensations as symptoms from relapses can overwhelmed your nervous system and your mind. Take care of yourself and try to check when your are safe eventhought the overwhelming sensations. Bless you
@@frkk6933 It seem you are not the person suffering from me/sfc and that you have very little and awry information and knowdledge about this illness. I reckon that if you dont suffer It youcan mistake It from depression, deconditioning and lack of motivation. But real me/sfc is any of this. Is a real and very debilitating illness.
Hug for you. What helped me was aggressive rest. Resting longer then you think you need. Knowing that every minute you are relaxing, you are slowly recovering. Ldn and ivabradine for pots was also helpful. I meditate a lot. Letting go of everything. The future is unknown, for everyone. Take care. You are not alone
Yes! Thank you!
Hugs. Feels like no one understands the anxiety when you get to that level. I'm struggling with that too. Teetering on the edge of oblivion, anything can push us over. ❤❤❤
I came to your channel because of your helpful paint pouring videos. I have subscribed and hope you find the root cause of this horrible illness. God bless you and do all you can to rest - I pray you will find peace in your heart that what will be will be, which will aid peace in your body. Take care and do art when you can not for public but just for yourself my love x
You are not alone. I feel absolutely awful just now. X
Hi! i am so sorry to hear about your struggles. I can totally see myself in you. I checked you out, because i was watching one of your pouring videos,, one of your last ones actually, and i reconized your shaking at once. I shake like that too, from exhaustion. I feel like a duracell rabbit. and it is so tiring, it takes all the energy., especially if you are very exhausted. I was very ill. I had four years where i isolated myself and couldn't stand anything. I don't have the diagnose ME, because i have a whole lot of other diagnosis that gives exhaustion too, so they blame it on those, but i think my other diagnosis came because of ME. It is the exact same as you describe, and i was very ill, with panick attacks, some kind of epileptic seizures, exhaustion to the point where i couldn't even take a shower without ending up really sick for weeks, and in the end I got a horrible headache (it was so bad, i was lying in fetal position and whimpered, because screaming was painful.) And i was shaking all the time, when ever i used my musles for anything, as if i had been exerzising too hard. My husband couldn't take it in the end, and i don't blame him, he didn't see much of me those four years, and i felt bad about it constantly, so it was a reliefe to us both when we finally separated.
I got scared to be alone, like you, and i also have a son, and i was scared to death that he would experience to find me dead one day, so I got scared to be here alone with him. You know all the thoughts that comes up when your life becomes all about the symphtoms and how to get better. I felt like i was a liability and that i didn't measure up. It just takes over your life completely. The last year i also had joint pains and swellings. Then one day, i had another seazure where I was sweating, had sky high pulse, shaking and something new. My throat started swelling. Not much, but enough for me to get completely panicked. The paramedic told me that i should try to cut out gluten and sweets. He told about his wife who had the same thing, and it was like a intolerance to gluten. I was desperate, so i did. I got a lot better, after i changed my diet. It didn't happen over night, but i got better, slowly but surely. My joint swellings dissappeared, so did my migraine, my exhaustion, and my panick attacks. I am still recovering, slowly, and i realize that i might not be completely healty again. but now at least, i can choose whether i was to go to a party or to spend time with my son, and i shower every day, imagine that! 😅🤣
I 'm still shaking, but I am so much better. I have gotten much of my life back, and i am so grateful to that paramedic. I really regret i didn't try to change my diet years ago. I blew it off for many years, as nonsense, but when i cut out gluten and sugar from my diet, things started to happen. Some can have the same reaction to milk products too, so eliminate and eat safe (vegetables, meat salads, and make your food from scratch) for about six months. And remember vitamins. Then try to eat some of it again, one and one thing at the time, and see what happens. If you get worse, you know what to do. I hope someone can find this useful. I wish you all the best and i will pray for your recovery💕
This video made me feel some comfort. I have had many of the exact same problems with my ME. I told myself to prepare for it because I always struggle in the winter. I have a lot of bacteria in my lungs that I’m trying to get rid of, but it makes breathing difficult. I also have a heart condition where my heart beats super fast and very hard so that’s painful. Of course these things, plus my other symptoms make me have symptoms of panic attacks. I recently got a wheelchair to go out in, but have struggled because whenever I go out and try to walk to work my muscles, my body seizes up and I can hardly move. This worries me because I am not that old, and I fear that my body is just going to keep decaying to the point of being very severe. I’ve been going to a holistic doctor to help me,I thought that she could hopefully heal my ME, but now I’m not so sure, so I’m a bit scared. Before I got sick, when I was a toddler I would have seizures. I think it actually ended up being a sign of my ME. I will be praying for you.💗 stay strong your not alone in this horrible fight against ME!💗
Good luck to you and thank you
See my post on this video. I had two babies in diapers when I was infected 1991 GWI, my whole family was effected, as Nicolson reported. In 2015, I was dying of pneumonia the end stage of the scourge patented weapon. Doctors didn’t know what was killing me because there is no test “code” available for what I was infected with, patented by head scientist Army Biowarfare lab, back in the day. Our government/science bad behavior has a long, long history.
I was infected before they had any “names”, and the condition is progressive, as it was designed. Also, I was pregnant with the youngest when I was infected. She has seizures when her brain is attacked by neurological viruses, especially the patented Enterovurus-69. (the one crippling children in the U.S.)
She also can’t take any drugs (like ADHD meds) without causing seizures, my middle child was 18 months and directly injected through military base MMR to become the 1st Aspergers Syndrome child to go through our large metropolitan school district and our oldest 8, developed ADD within a year. Semper Fi
You are not alone. Never.
Maybe you could try some meditation to stay calm. In your condition even concentrating for a meditation is hard. But once you get used to it it will be a lot easier.
Or try to think about something special. For example try to think of maybe 5 things of which you are really thankful for. And do this every day with different things or maybe even the same things, when you really feel it. This could help to remember the positive things in your life :)
I really hope you find a way. Stay strong!
Thanks for your advice
I hear you, dear, and I'm cheering on you. Cheering on myself and all of us that are on this journey with longtime unbalanced bodies and brains. I know the darkness amd fear also of being in thia landscape. I feel I'm also in a special challenging time now, with change and worsening of symptoms.
What helps you? What words do you need to hear, what makes you feel safer in the midst of it all? (No pressure to answer...it can be as a slow reflection)
For me help is in: to give space for grief for my situation for so many years, try to let go of future. Go from my spinning brain down in my body, let myself have some distractions when there is much pain. I work with a therapist that is all about how can i create a feeling of more safety in myself. Even if just a tiny step towards it. I really like that. And it makes sence, allthoug easier said than done. When the nervous system feels more safe, it doesn't need to ramp up all these systems..
Hi there. Don’t know if this could help with the anxiety? I have horrible anxiety attacks. I started doing the Wim Hof breathing when I get them. Just LU on you tube. You can just do what you areable to, not all of it… I’ve been crashed too and lately before the crash getting much worse symptoms. I had to go to a doctor to be evaluated for disability which is why I crashed. I like your shorts about pain, btw. Hilarious and true. Hope you climb out of your crash.
Thank you
Hope things are a bit easier? Did you try LDN?
Completely understand new subscriber
❤
Hello, good morning SANTANA.
Hello there!
Check out Penny Kelly on TH-cam - The videos on Tea AND Consciousness where people ask for a body scan where she offers non medical advice and often dietary advice. Wishing you good health.
You are getting symptoms phobia, which mean your are frightened about your body sensations. And that IS the perfecto context for trauma and for activate your nervous system (fight flight Freezer response) and make It worst, as your autonomic nervous system is allready altered due to me/sfc and trigger.
Polyvagal therapy can help you a lot and many fisiotherapists are trained in applying polyvagal therapy, somatic experiencing and help your mundo coping with the relapses and not enter in a survival and trauma response.
Check a doctor Who tales care of the body with supplements and all that...and if you can afford It , choose a psycotherapist trained in body work and about all in polyvagal and somatic experiencing/trauma therapy. A fisiotherapists with the above knowdledge is worth too. In trauma, too much is too much. And too much body sensations as symptoms from relapses can overwhelmed your nervous system and your mind.
Take care of yourself and try to check when your are safe eventhought the overwhelming sensations.
Bless you
Get up my girl! Life is short!
Good one 👌...not
That's the worst advice for people who have ME/ Cfs we literally even don't have the energy to sit up
@@Toru-x2t yes you have!
@frkk6933 are you a doctor? If so, speak to it, if not STOP.
@@frkk6933 It seem you are not the person suffering from me/sfc and that you have very little and awry information and knowdledge about this illness.
I reckon that if you dont suffer It youcan mistake It from depression, deconditioning and lack of motivation.
But real me/sfc is any of this. Is a real and very debilitating illness.