All of the above mentioned are an issue at times. The memory fog throws you off quite often. Truth 🤷 👍 it's like being over tired and trying but it's a struggle. Truthful 💯 👍
Train of thought is a problem. Ex: watching a new TV series- I watch with my wife the 1st two or three episodes, she can help me set the context, make me remember like “He is the neighbor, good guy” etc. combination of memory and understanding situations. For me it takes 1st two or three episodes to be fully aware of plot, characters etc. This sometimes makes me appear “not so bright” and foremost reason to quit job. Environmental factors like heat/humidity also affect the clarity of happenings Thanks a lot Dr, now I couldn’t recall the name of the 2nd year speech pathologist (have to rewatch the video) 😊
So much helpful information here. Thank you. Here's a useful tip that I employ: Keep to a schedule, a routine as much as you can. When you have a weekly schedule of housework, bill payments, etc. , the other stuff in life is easier to handle because there's just less chaos. I even go as far as to schedule regular visits and phone calls with friends so we keep in touch.
Thank you for this video. It validated some of the strategies I implement already. Planners; personal and work. Thank God for smartphones. I create a list for shopping. Sometimes I have to write down my tasks for the day. Now, I just need patience with processing and anxiety. 😆
Thank you for the video on cognition. My pcp appointment was rescheduled today. So I multitasked with my coffee in hand, paying bills, making appointments for the week, etc. Now, relaxing watching this video. Doug, coffee in hand from Lyndhurst.
Wow, this is really cool. Thanks so much. I've always prided myself in remembering things.. but I realise it's not because my memory is good but because I always have a list! Either on my phone with goodle keep (now keep notes) or things like excel sheets for more complicated things. My brain is superbly messed up.. so I'm more careful.. and i appear to have a good memory. But I'm terrible with names and faces 🙄
Likely extremely frustrated & not understanding why it’s actually happening. They can tell you whatever, but it’s mortifying, terrifying & I can guarantee he’s scared and trying to fight it; but it’s just not working. You feel like a failure & a total freak. (At least how I feel and how I’ve heard others describe it). You get ANGRY AF.
Thank for the wonderful video. I would love additional videos with ms Conway going deeper into these issues. Cognitive problems is one of my main MS issues. I would love as many tips, tricks, hacks as possible. Then I can use the FEW I remember after they go through my MS brain 😄.
Since I got MS, I just can't handle being in malls, It is too busy for me: music, the people, imagens and colors. I can't handle it. I must leave, otherwise I will pass out there.
Great presentation. I had a very cognitively challenging career (public health analytics/epidemiology) and I REALLY wish someone (dr?, NMSS?, somebody…) would have sat me down early and said “you have a really challenging career and these things might show up to make that harder…”. Instead I was on my own and then when the job got harder and harder and I was struggling and my performance deteriorated I would have already prepared for the possibilities. Instead I went from being outstanding at what I did to barely being able to do any of it. My neuropsych eval found I was in 2nd. Percentile on some executive function and memory skills. Like so many things. It was assessed and “treated” after the damage to my career was done. Just wish it had been different. Thanks!
And how can I remember to remember to look at the note I wrote myself? Or remember that the info on the note is even as important as I thought it was. In the end, it's all about fatigue.
@@zoranagavrilovic9403 I'm poised to blister you with...words...and reasons... something about church that rhymes with dire...and. yeah. seems to have slipped my gourd. It must not have been that important. 🤯 Looks like you've won this round, mylinky koshka. But I'll be back with my steno pad and concordance. 😆🖖
I need this like I need air. Outside of the not being able to regulate my temperature & then pouring sweat, when it’s cold out & im doing nothing - cognitive is my beast. I lose my things ALL DAY! I get pissed off about it. It’s soooo frustrating. I can’t remember things anymore. It’s BAD. I lost a few days of my life in 2021. I seriously am concerned I don’t have MS & it’s early dementia. I’m scared. What’s attention? 😂😂 I don’t have anything like that 😭
Another great video Dr. Boster. Good to see you again Carolyn from the other OSU (I'm in OK). I have a question for a future video. I read out loud to my wife. Morning news stories. But there are times that I read the words but say an incorrect/wrong word. Could you maybe explain that? Is that a cognition issue or speech?
I have AM and PM pill boxes and I’ve accidentally taking my AM meds at night and PM meds in the morning. I’ve been using the same system for over a decade. I know which is which. Not sure why I make these mistakes. AM pill box is clear and PM pill box is blue. I restock my pill boxes Tuesday mornings. Routine doesn’t always help me.
Hello doctor, I'm stuck with a hard decision that I can't find an answer. I was diagnosed 7 months ago with Aggressive RRMS and I'm taking Rituximab. Next month I'm going to travel to Germany where they have more medication for MS. My next infusion is after 10 days and I don't know what to do. Should I wait until I travel so the doctors can examine me and prescribe suitable medication for my condition (where I live we only have like 4 or 5 MS drugs), or I must take my next infusion before I travel? Knowing that I want to take the HPV vaccine. What should I do please help me.
I have a hard time remembering everything. I do all of these tips. I also take a picture with my phone of my calander. I have to set an alarm for my medicine but also set a second one for it because I will turn it off then forget to take it. What otc meds help with cognition? I just started taking alpha lypoic acid
DR. B recently read an article from the Mayo Clinic saying that your body can’t tell the difference between emotional trauma and physical trauma /stress and it can lead to auto immune diseases such as MS. If it’s prolonged What’s your take?
I'm no Dr. Boster but my life has been a poop show with a fan prop. I've been racing at high stress since I left the womb. Around my 30s I found some peace and that didn't agree with me at all. Every time I relaxed I would become ill or depressed or paranoid or narcoleptic, etc. Now I know I wasn't crazy or haunted. I figure that my immune system has PTSD and it's just so used to maximum overload that it just can't punch out. It doesn't know how to hibernate. Lol. That makes sense to me.
Hi Don! Thanks for reaching out. Unfortunately, the patient has to reside within Ohio to receive online speech therapy via OSU. I would encourage you to reach out to your local university or clinic to see if it is offered there.
@@dancerforever157 Thank you. As a follower of Dr. Boster, my wife a former patient, until we moved so far away, I was very impressed with your interview I sought someone with a deep understanding.
You have some really good information. I’m trying to follow the guest but she is talking so fast and the visual of the video has the TH-cam choppy jumpy editing that really bothers my eyesight. Sorry for the feedback but I thought you may be interested in things that may be hard for people to view.
All of the above mentioned are an issue at times. The memory fog throws you off quite often. Truth 🤷 👍 it's like being over tired and trying but it's a struggle. Truthful 💯 👍
Train of thought is a problem. Ex: watching a new TV series- I watch with my wife the 1st two or three episodes, she can help me set the context, make me remember like “He is the neighbor, good guy” etc. combination of memory and understanding situations. For me it takes 1st two or three episodes to be fully aware of plot, characters etc.
This sometimes makes me appear “not so bright” and foremost reason to quit job.
Environmental factors like heat/humidity also affect the clarity of happenings
Thanks a lot Dr, now I couldn’t recall the name of the 2nd year speech pathologist (have to rewatch the video) 😊
So much helpful information here. Thank you.
Here's a useful tip that I employ: Keep to a schedule, a routine as much as you can. When you have a weekly schedule of housework, bill payments, etc. , the other stuff in life is easier to handle because there's just less chaos. I even go as far as to schedule regular visits and phone calls with friends so we keep in touch.
Thank you for this video. It validated some of the strategies I implement already. Planners; personal and work. Thank God for smartphones. I create a list for shopping. Sometimes I have to write down my tasks for the day. Now, I just need patience with processing and anxiety. 😆
I have so many alarms. Some for meds, some just to remind me to call my boyfriend as I get distracted too easily. 😅🤣
Great video! I am already doing most of the things in the video. Glad to know I am on track! She’s really good!!
I stop drinking alcohol and a lot of my symptoms lessened by a lot. Now it's stress that I have to quit..
Thank you for the video on cognition. My pcp appointment was rescheduled today. So I multitasked with my coffee in hand, paying bills, making appointments for the week, etc. Now, relaxing watching this video. Doug, coffee in hand from Lyndhurst.
I set phone alarms for anything that is out of my routine. For example, go to this house or meeting instead of going to the office at 8am
Thank You For Sharing This Video With US ALL.
It's my pleasure
Wow, this is really cool. Thanks so much. I've always prided myself in remembering things.. but I realise it's not because my memory is good but because I always have a list! Either on my phone with goodle keep (now keep notes) or things like excel sheets for more complicated things. My brain is superbly messed up.. so I'm more careful.. and i appear to have a good memory. But I'm terrible with names and faces 🙄
My husband who had MS became very aggressive and very rude. 😵💫. Needless to say it was very hard on the family.
Likely extremely frustrated & not understanding why it’s actually happening. They can tell you whatever, but it’s mortifying, terrifying & I can guarantee he’s scared and trying to fight it; but it’s just not working. You feel like a failure & a total freak. (At least how I feel and how I’ve heard others describe it). You get ANGRY AF.
Excellant
Thank for the wonderful video. I would love additional videos with ms Conway going deeper into these issues. Cognitive problems is one of my main MS issues. I would love as many tips, tricks, hacks as possible. Then I can use the FEW I remember after they go through my MS brain 😄.
Thank you for sharing such great insight! 🧡
Since I got MS, I just can't handle being in malls, It is too busy for me: music, the people, imagens and colors. I can't handle it. I must leave, otherwise I will pass out there.
One of my Faves- she was so on point.- #Sharingiscaring
I agree, she was very much on point.
Great video! I do all the External strategies every day. I need to start practicing the Internal ones now. Thanks for the ideas.
Great presentation. I had a very cognitively challenging career (public health analytics/epidemiology) and I REALLY wish someone (dr?, NMSS?, somebody…) would have sat me down early and said “you have a really challenging career and these things might show up to make that harder…”. Instead I was on my own and then when the job got harder and harder and I was struggling and my performance deteriorated I would have already prepared for the possibilities. Instead I went from being outstanding at what I did to barely being able to do any of it. My neuropsych eval found I was in 2nd. Percentile on some executive function and memory skills. Like so many things. It was assessed and “treated” after the damage to my career was done. Just wish it had been different. Thanks!
As always…
Good Morning!
🔥🔥🌄🔥🔥
Helpful tips 😍😍👌
Thanks 😊
Please do a video on the grieving
This is my largest issue with MS! It’s very difficult.
Luckily I manage to remember what really matters. And that list just keeps getting smaller. Lol. Chicken or egg?
And how can I remember to remember to look at the note I wrote myself? Or remember that the info on the note is even as important as I thought it was. In the end, it's all about fatigue.
@@lauriegray8781 eh fatigue is another problem isn't it... I recommend strength training and sleeping enough to combat it like a boss
Also enough water
@@zoranagavrilovic9403 I'm poised to blister you with...words...and reasons... something about church that rhymes with dire...and. yeah. seems to have slipped my gourd.
It must not have been that important. 🤯 Looks like you've won this round, mylinky koshka.
But I'll be back with my steno pad and concordance. 😆🖖
I born my eggs 🥚 on the stove when I was talking on the phone that I forgot about it
I need this like I need air. Outside of the not being able to regulate my temperature & then pouring sweat, when it’s cold out & im doing nothing - cognitive is my beast. I lose my things ALL DAY! I get pissed off about it. It’s soooo frustrating. I can’t remember things anymore. It’s BAD. I lost a few days of my life in 2021. I seriously am concerned I don’t have MS & it’s early dementia. I’m scared. What’s attention? 😂😂 I don’t have anything like that 😭
Another great video Dr. Boster. Good to see you again Carolyn from the other OSU (I'm in OK). I have a question for a future video. I read out loud to my wife. Morning news stories. But there are times that I read the words but say an incorrect/wrong word. Could you maybe explain that? Is that a cognition issue or speech?
Until they rearrange the store when you’re not there…..
I have AM and PM pill boxes and I’ve accidentally taking my AM meds at night and PM meds in the morning. I’ve been using the same system for over a decade. I know which is which. Not sure why I make these mistakes. AM pill box is clear and PM pill box is blue. I restock my pill boxes Tuesday mornings. Routine doesn’t always help me.
I have a pill case, and alarms set on my phone, home google, and my watch, I still manage to forget to take my pills. it's ridiculous, I feel so dumb
Hello doctor,
I'm stuck with a hard decision that I can't find an answer.
I was diagnosed 7 months ago with Aggressive RRMS and I'm taking Rituximab.
Next month I'm going to travel to Germany where they have more medication for MS.
My next infusion is after 10 days and I don't know what to do.
Should I wait until I travel so the doctors can examine me and prescribe suitable medication for my condition (where I live we only have like 4 or 5 MS drugs), or I must take my next infusion before I travel?
Knowing that I want to take the HPV vaccine.
What should I do please help me.
I have a hard time remembering everything. I do all of these tips. I also take a picture with my phone of my calander. I have to set an alarm for my medicine but also set a second one for it because I will turn it off then forget to take it. What otc meds help with cognition? I just started taking alpha lypoic acid
DR. B recently read an article from the Mayo Clinic saying that your body can’t tell the difference between emotional trauma and physical trauma /stress and it can lead to auto immune diseases such as MS. If it’s prolonged What’s your take?
I'm no Dr. Boster but my life has been a poop show with a fan prop. I've been racing at high stress since I left the womb. Around my 30s I found some peace and that didn't agree with me at all. Every time I relaxed I would become ill or depressed or paranoid or narcoleptic, etc. Now I know I wasn't crazy or haunted. I figure that my immune system has PTSD and it's just so used to maximum overload that it just can't punch out. It doesn't know how to hibernate. Lol. That makes sense to me.
My depression has gotten way worse.
I get that. Especially when doctors discount your symptoms
I’m so sorry. Hang in there! 🙏🕯💛
I love the channel. But the Intro is waaaaay too loud.
Great interview Doctor Boster. Does OSU offer on-line zoom meetings for such Speech Therapy in area where this therapy isn't offered?
Hi Don! Thanks for reaching out. Unfortunately, the patient has to reside within Ohio to receive online speech therapy via OSU. I would encourage you to reach out to your local university or clinic to see if it is offered there.
@@dancerforever157 Thank you. As a follower of Dr. Boster, my wife a former patient, until we moved so far away, I was very impressed with your interview I sought someone with a deep understanding.
Can brain atrophy make cognitive problems worse?
You have some really good information. I’m trying to follow the guest but she is talking so fast and the visual of the video has the TH-cam choppy jumpy editing that really bothers my eyesight. Sorry for the feedback but I thought you may be interested in things that may be hard for people to view.