Influencer Fighting for Life Spreading Awareness About Invisible Illnesses
ฝัง
- เผยแพร่เมื่อ 15 ก.ย. 2024
- Former model Erica Deazsa is fighting for her life battling several life-threatening illnesses. For years, she was misdiagnosed with a skin fungus, asthma, growing pains and allergies. At 26, doctors discovered she had antisynthetase syndrome, myositis and interstitial lung disease. She's now working towards getting a lung transplant and is using social media to spread awareness about invisible illnesses. She shared her story with Inside Edition Digital's Andrea Swindall
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A DOCTOR told a young woman she’s experiencing “growing pains” after her legs collapsed?! That’s unsettling
Very much bc what growing pains
Never her of what a lazy Octor
Her doctors failed her miserably. Pray for healing for her physically but also emotionally.
and insulting
Lord, bring healing to her heart, body and soul!🙏🏽❤
Another case of gaslighting, wasting time, and having someone suffer thanks to our medical industrial complex. I'm so glad her lung capacity is increasing and she's spreading awareness.
I think they only give you care, if you have a good insurance… I dont have one so I try to take care of myself as best as I can… internet is my doctor
if you came to canada, you would wait and wait and may never be treated. There's a higher mortality rate. At least she was seen at all. You will be on a wait list, a long wait list where I am. Sometimes its not wasting time, its that medical science isn't perfect. Only americans expect perfect medical science and they have more access to healthcare than canada. You have more doctors than we do. People go to the USA medical schools because you can actually get in to become a doctor. You cant even get a family doctor here. You can be turned away at multiple walk in clinics, wait several hours at the ER.
@@Skatejock21where in canada r u?
@@Skatejock21that’s not even true… Canadians have a longer life expectancy than Americans
Please, the medical world is limited to what is the true cause behind things, The medical world can only treat thinvs what they see, or know about- Otherwise they may try many things on you... I believe this girl needs to go beyond medical, since this is a sickness she does not understand the origin from and the medical world does not even know how to cure that sickness, only to "manage" it - She should seek for deliverance, it is a shame that she is living like this and is so young
This is Lupus. My 25 year-old daughter had interstitial lung disease, pulmonary hypertension, Raynaud's syndrome, joint pain and inflammation, etc. Her skin was chocolate and beautiful. She was diagnosed at age 21. My heart goes out to this young lady and her mother. This brings memories flooding back. It's been 12 years since she passed away and my heart is broken forever.
I'm sorry for your loss. I'm dealing with Systemic Lupus, as well. Sending love and prayers. 💜
I world not be surprised at all.
I have MS… I’m think I have POTS secondary after beating COVID…
I’m so sorry for your loss ❤
I am so sorry for your loss.
The doctor who told her she was only experiencing growing pains should have had their license revoked
They don’t try!
💯 File a complaint with the state medical board and sue.
There is this book I recently finished reading its called The 21 Former Doctor Secrets, Its full of secrets about modern health industry and my routines started to change so much!
Thanks for sharing it
I know that book, dr.Rachel is amazing doctor
Thank you Im checking it out now
Spam. This had nothing to do with this video and then all your bot answers.
Ty going to Pinterest now❤
⚠️ PLEASE BE YOUR OWN MEDICAL ADVOCATE!!!!!!
My sweet, beautiful and highly intelligent cousin just passed at the age of 28 of a repeated misdiagnosed case of colon cancer.
Once she finally had the correct diagnosis, the doctors failed her AGAIN claiming they found it in time and she would be ok with treatment.
Fast forward literally TWO WEEKS LATER....they told her she had 3MONTHS TO LIVE.
She passed within a week and a half.
Again, folks....I beg you all, BE YOUR OWN ADVOCATE no matter WHAT IT TAKES 💔
So very sorry, and sad for your, and your family's loss.
May she be rocking it in Heaven!
🙏🏾🙏🏾🙏🏾 I am so sorry
So very sad 😢😢😢 so young
If you don’t mind my asking what were her symptoms?
@@she_sings_delightful_things My heart goes out to you.🙏🏽❤️
Unfortunately most doctors would rather gaslight then do they're job.
thank you for realizing this
Amen
Yep Exactly
Yes it seems like a power trip for most
I also feel like most doctors can’t do their jobs because the bug insurance companies tell them what to do
Being a Black woman who suffers from an invisible, chronic illness…this was amazing!!! Thank you for sharing this with me and the world. ❤❤❤
Get tested for Sarcoidosis! Please
I’ve been thru it getting misdiagnosed for over 10 yrs even told it was cancer when it was Sarcoidosis all along!
@@qweenrebekkah5435 I have diagnoses, and that’s not it for me. When I say invisible, it means that I look fine physically, but I have internal issues.
@@Nille0212is it multiple sclerosis?
I've never seen someone look so good while sick... that's probably part of why it took so long for doctors to take her seriously. What a blessing to look like a model all the time no matter what but also a curse because it's hard to get help
This is why EXACTLY why I was once denied proper medical attention. I had to literally stop keeping up with my normal grooming habits to be taken seriously.
Yes. That happened to me too.
Yep happens to me. I look like a normal person who doesn’t have multiple “invisible” chronic illness and it sucks with dealing with doctor. I have found a few decent ones thankfully but unfortunately I my body reacts negatively to treatment so I’m stuck with what I got.
Unfortunately, most don't take any disease, disorder, or illness into consideration unless they can see it 😢
@@lunagrace2872Have you looked into natural remedies?
Doctors that gaslight should be sent to jail immediately
The worst thing about not finding a diagnosis for a long time is when doctors start looking at you as if you have a psych diagnosis. I was dying from heart failure for months which was progressively getting worse. They gave me a wrong diagnosis until I went to the ER. This was 20 years ago.
What were your symptoms? If you don't mind sharing.
Or like your an addict who just wants medication.
Judging by the name "Janette" you presumably suffered from the male-focussed view of healthcare, which often missed that women display significantly different symptoms when it comes to things like heart attacks.
What were your symptoms if you don’t mind
Much strength and love ❤️
From a lupus patient
Having chronic illness is so incredibly hard, every day is different and its so frustrating
Yes it is. Even harder when those in your life don't understand.
Yes it’s a truly terrible existence 💔 people do not understand
It sure is 😞
@@GooniesGirlDon’t understand or don’t believe you.
@@GooniesGirl❤🥄
I absolutely hate when doctors say it’s all in your head. My heart goes out to this young lady. I don’t understand why doctors don’t do more in-depth blood work.
They really do not know. Real peope who heal like Dr. Sebi, the industry tries to discredit. This is why him, amongst other Holistic doctors were murdered. There is no mystery. Lack of minerals, our diet, emotional factors, etc is the cause of many dis-eases in the body. If we think, using radiation ( something we all were taught is poisonous) to kill cancer cells is illogical to me. I hope everyone will continue to research and look up herbal remedies for ourselves!! 💜💜💜
More in-depth*
Get a new doctor any doctor that diagnosed without tests is lazy, arrogant and/or incompetent. It’s hard for them to say they don’t know or unsure I say it & run tests or refer you to a specialist.
Be insistent. The squeaky wheel gets grease.
'racism' is embedded everywhere towards Black People
Invisible illnesses need more public education and awareness. Hats off to this beautiful, resilient young lady for fighting every day to do and be as much as she can!
My friend was diagnosed with interstitial lung disease. She was told she had 3-5 years. She made 4 years,
God bless you Erica
My invisible chronic illness is Sickle Cell Anemia/Disease. I wasn’t diagnosed until age 3. My mom still hates the many crying episodes I had as a newborn-toddler due to experiencing excruciating sickle cell crises that wasn’t yet found by my doctor. I’ve lost a friend who had this same battle. I was told I may not live past 20, yet by the grace of God, here I am at 33yrs old with a daughter and husband. I’m currently admitted in the hospital now for pain treatment. It gets discouraging at times, but I know my support system and strength always carries me through. 💪🏾♥️
My daughter passed at 29 from Sickle Cell (complications due to iron overload) so if you have regular transfusions, make them do whatever needed to decrease your iron. My grandson is 14 today. My daughter helped her sister deliver him two months before she passed and he has Sickle Cell. Thankfully they have advanced and he is a candidate for the stem cell program that we pray will work for him. Praying for your health. Hang in there.
Arguably one of if not the worst kind of pain there is. Sending you healing energy ❤❤❤
Sickle cell anemia is part of testing done for all babies born In America at birth in 1975. It may be that your state/county didn’t implement it until later.
I find it hard to believe you had symptoms of crisis, sought medical attention, and it wasn’t diagnosed until 3.
@@iriemo721I was diagnosed at 2 1/2, so, depending on how old she is now and depending where she lives (especially if she’s not US based), it’s very possible. Nowadays, there’s more awareness, but not in my days.
God is good❤ Im happy for you!
When she said she cannot be relied on that was so sad. Her lack of productivity doesn’t define her value.
Yes. But it is a difficult and daily battle to remember that and try to embrace it. It becomes a sickness itself.
@@critterscute3642 so true!!!!! You nailed it!
I can relate, I have fibromyalgia
I have lupus, and I feel like I always let people down. Not telling if I feel well enough to socialize, volunteer, or show up anywhere!
Yes, it's an awful feeling, especially when you worked to help others & can't anymore. Family & friends stop asking you to do things. Pain on top of pain. 😢
ADVOCATE FOR YOUR CHILDREN’S MEDICAL CARE!!
Yupp! My little sister got told she has reoccurring uti’s for years!!! She ended up losing a kidney at 22!
💯
no kidding...find *their* baseline of normal (blood panels, etc in early 20's) to use to compare later on when someone tells them their test results came back "normal" and nothing is wrong with them. doctors don't cure, they treat and that treatment isn't good enough if they don't know why you're sick! it can even make things worse.
AMEN ❤❤❤❤
@@jessicab331and what were the reasons..did they find out what was actually wrong
Thank you INSIDE EDITION for sharing her story!!!! So much to unpack here from institutionalized racism in the healthcare system, to women especially Black women, not being taken seriously, to the trauma that invisible illnesses cause a person’s mental health…… 😩 my heart goes out to her. I too have an invisible rare illness, caused by Cauda Equina Syndrome and was misdiagnosed for 10 years until my left side below the waist became paralyzed. Has emergency spinal surgery and I’ve been grieving my old body ever since. Hearing her story is as much enraging as it is inspiring. She is so strong! Seeing her strength reminds me of my own and how I have to make the best of my diagnosis.
USA in general is incompetent
Chronic illness is horrible you look fine on the outside and feel like you're dying on the inside. It sucks being trapped in a body that is failing you. The constant pain you cant escape. Praying for everyone suffering. Definitely needs to be more awareness for invisible diseases.
This story reminds me of when my mother had multiple myeloma and she went to over 10 doctors until she finally received the diagnosis. Several doctors basically told her she had anxiety because all of her lab work kept coming back great. My mom said the same thing this young lady said. She said, “I know my body”. Finally, a young Puerto Rican female doctor took her seriously and dug deeper. She ran more tests, more labs and saw that her protein levels were off. From there, she referred her to an oncologist and she quickly received a diagnosis. She was in the hospital the same day she was diagnosed. I thank God my mother was an advocate for herself and she’s still with us! Advocate for yourself!! Know your body! Don’t let these doctors gaslight you! Go out of state if you need to! My mom didn’t give up! She’s officially in remission! Thank you Jesus! I’m praying for this young lady’s total and complete healing! 🙏🏽🙏🏽
But wait, was that her mom looking like her twin! They’re gorgeous!
Praise Jesus. Tell your mom to try Essiac tea.
Same with my mom who has MS they told her she was faking it then diagnosed her with Fibromyalgia and then realized it was actually MulitpleSclerosis
@@RochellB46💔
My heart breaks for your struggle, and I send you prayers of healing🙏❤️🙏
DO NOT LET THEM TELL U HOW LONG YOU HAVE LEFT TO LIVE, FIRST STRENGTHENING YOUR MIND, THEN YOUR BODY.. GOD IS ABLE TO DO THE IMPOSSIBLE, JUST PRAY MY CHILD🙏🙏🙏❤❤🇯🇲🇯🇲
There's a hockey player i know (20 years old 2m tall, healthy very fit) he got sick, they just told him to go home 3 times, they took tests and the tests were messed up they said nothing. after 2 weeks his dad had to carry him to the hospital because he couldn't walk and this time they refused to leave until they did everything correctly and actually looked at him. They found out he had covid 19 and sepsis. Now he might have to amputate his leg just because the doctors were lazy
Omg im sorry to hear this. Sending love, light and prayers for you young friend. It's extremely unsettling to hear such awful medical malpractice and lack in care for our American people. Many people cannot get honest and trustworthy medical care in this country. 😢 It really went downhill after 2020. We lost many good doctors and nurses over mandates and got replaced with compliant sheep. The doctors who think outside the box to find the rare conditions all left cause they refused to push the mandate.
Private healthcare has destroyed American lives. It’s all profits over people and that’s demonic
Sorry to hear this! Praying for healing and no amputation in Jesus name, Amen.🙏🏽
😮😮💔💔
Sepsis omg. My heart aches for him the Covid not getting treated Covid led to the Sepsis. I lost my aunt this April because to AKI and Sepsis its an awful awful disease.
I was losing weight, had ascites, and was having severe fatigue. My doctor told me to take antacids for a month and would schedule a gastroenterologist appointment. I went for my gynecologist appointment and found out I had stage three ovarian cancer and triple negative breast cancer. You have to be your own advocate for your health.
Yes, yes and I advise anyone to also seek out a good doctor that practices complimentary and holistic medicine. Continue to see the specialists but seek others for healing the body & mind.
Retired Scientist & Environmental Health Specialist
🙏🏾🙏🏾❤Praying for your full recovery ❤️🩹
God bless you. I pray for your healing. In Jesus name 🙏🏾
🙏🏾🙏🏾 for your recovery
🙌🏾🙌🏾🙌🏾🙌🏾🙌🏾🙌🏾🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾❣️❣️❣️❣️
She’s a fighter. Thank you for this spotlight. You never know who is struggling with these kinds of issues.
I remember being sick with flu like symptoms for 6 months. The doctor told me I had a damn cold. I got super skinny, always tired, just overall sick all the time. My mom would not stop advocating for me. She took me to so many doctors before they finally figured out it wasn't a 6 month long cold. I had a hereditary disease. Imagine if my mom had listened to those doctors. I may not be here today. I would say that you know your body better than any doctor. If something is wrong, never take no for an answer. Thank God for my mom catching my illness as quickly as she did.
There’s no day that she’s not looking her best. She’s absolutely STUNNING 🤩
Welcome to my life. I fought for 14 years to be awarded disability meanwhile everyone was calling me lazy for not being able to work anymore.
And even when you get your disability diagnosis, you’re still labeled lazy and treated as worthless. It’s exhausting!
@stormfaith It is. And instead of taking my application date to decide after all those years, they used the date I reported I started having symptoms so I don't receive SSDI. Only SSI. They would have owed me a quarter of a million otherwise. Living in this economy on $900 a month is impossible.
@@indianahoneybee8852 same thing happened to me. 900 a month is impossible to live on. It just makes the daily battle all the worse cause not only do you have to worry about your health but then you have to worry about how to "adult" pay bills and eat! Its a nightmare.
@@estellamitchell7518 That it is. It's all by design.
@@indianahoneybee8852 Why no empathy for the girl in the video? You just dismissed her entirely and made it all about you.
My invisible illness is Multiple Sclerosis. It was 3 years before I was diagnosed. I went blind then recovered. Then after my child was born, I started tingling from the neck down and my arms became paralyzed. I got a diagnosis then. Christmas 2005 I became paralyzed both legs and my left arm. Slowly by God’s grace I regained most of my function. I live with pain, but I live. “I shall live and not die and declare the works of the Lord.”
O glory to God!
I live with (Multiple Sclerosis) which I don’t claim in the name of Jesus! I don’t let it define who I am. Depends on the day,time or place when the symptoms may appear.
I have multiple sclerosis been kicking it butt 11 years now
In the name of Jesus! Amen - Mark 11:24 🙏🙏🙏
Amen!
My daughter is experiencing a illness that the doctors can't diagnose, I listen to her and pray the prayer of faith over her life. Erica I thank you for sharing your plight.
Take her to a neurologist so they can do what's called an ANA test for her her. ANA is an autoimmune blood test that can be from positive to negative to determine what is going on with the body, and then she will be referred to a rheumatologist if it is positive. Google ANA test! Most of the time, 😮 the body will fight itself.
When I was 29 I started having similar symptoms. I spent more than a decade and even now, I’m still undiagnosed. I just got tired of doctor after doctor telling me it’s in my head, just because they haven’t been able to diagnose me. On the outside I look completely normal, but I’m always in pain, and my muscles, especially those in my abdomen contract and twist uncontrollably….But here I am 15 years later, working full time, and being a single mother. The funniest part about the whole thing, is I’m a nurse. I’m not on disability, and I worked all through COVID visiting patients in their homes and hospitals. I’m putting a 22 year through college, so I’m always working and in discomfort while working. But I’m still living, and I feel like I’m thriving for having survived this long with an invisible illness. Don’t think us healthcare workers have it any better than anyone else. We often have it worse, because they think we’re just seeking attention. And if you’re a BW, your pain is minimized or ignored. And there is no pretty privilege. People will tell you you’re seeking attention. But let you go outside looking the way you feel and you will be crucified! So you always have to try to look presentable and semi attractive in order to not be dismissed when you do go outside. Prayers to this Queen, and all the rest who suffer with invisible and visible illnesses.
Glad you’re feeling better😊
In no way minimizing your experience..as I have had ME/CFS for 37 yrs this month (triggered by an EBV infection (Glandular Fever/Mono)...but I have found Dr Suessler's tissue salts work well for me, particularly 'Mag Phos'...Magnesium is a nerve relaxant, anti-spasmodic, & anti-inflammatory..when I get bad inflammation flares..I take up to 5 at a time..or 1 every half an hour.
A FODMAP diet may be of help to you also.
I have found that loratadine (non-drowsy antihistamine) helps me with GI flare ups, as well
The pain can be excruciating..totally empathise!
❤
I cried when they baptized her. God bless you sweet girl.
Amen ! 🙏🏽
I rejoiced for her in the Lord.
🎉🎊🎉💐🎚️💐🎊🎊
My eye's welling up 😢May God Bless this sweet soul
The whole time up until then I was praying for her to find her way to Jesus in all this. Suffering is always for a reason. I’m glad she’s able to shine through it all.
Jesus this poor young lady 😢 every doctor that gaslighted and downplayed her deserves consequences.
I went to school with her , she has always been a beautiful soul ❤ I pray her life changes for the better
She's so beautiful. Always be kind. You never know what someone else is dealing with. I hope for a miracle for her. Never take things for granted.
One of the difficulties with autoimmune diseases is the fluctuations. One minute you're fine, the next immobile. And always, always hoping to feel better. All the best to you.
This is the most accurate statement about autoimmune diseases I’ve ever read. Yes! Spot on.
Poor sweet girl! I wish she wasn't dismissed for all those years!
Racism
U think!
The amazing part is she survived the Covid-19 outbreak👏🏾
Amen, I think Covid probably caused most diseases to flare up worst.
If they’d listened to her when she was 19? What is wrong with doctors. Poor lady. So sick of doctors ignoring people and ruining lives and getting away with it.
I've been walking around w/11 herniated discs for 25+ yrs that no doctor bothered to tell me about. I found out by reading my own MRI results that's in our new online medical records through our insurance/hospital group! (Nevermind that I've complained & cried in pain for 30 yrs - was told it was fibromyalgia, stress, depression
She is so beautiful. Imagine the positive inspiration to others suffering from chronic illnesses if big cosmetic/clothing companies gave this flawless beauty a modeling contract. I would love to see imperfectly perfect models.
Doctors often brush people off and say it's in your head smh. God bless this young lady. 🙏
This is what disparities in health care looks like. We have to ADVOCATE for ourselves
Oh my gosh she made me cry at the end. I’ve had an invisible illness for 57 years and I’m tired. I’m so thankful she shared her story and tips on how to keep going. I’m also a Christian. Thanks for giving me something to motivate myself. ❤️
Same here. I was really in need of this reminder and pep talk.
I also don’t feel well. I have interstitial cystitis and went through breast cancer last year. Chemo, surgery, radiation. I’ve struggled with fatigue my whole life and it’s harder to deal with now. When I hear about other people’s health problems it makes me want to complain less about mine.
@@rachelsuchla2408No, you keep advocating. IC often comes with other autoimmune diseases like Fibromyalgia, migraines, IBS, Chronic Fatigue, and makes it very difficult to recover from any illnesses, especially something like cancer. You likely have CFS or Fibromyalgia which has been flared by your treatment for cancer. It might help to talk to your urologist or cancer specialist about that possibility and discuss management, or get a referral to a rheumatologist or pain specialist. Many of the meds that help with my IC also help my Fibro and CFS and migraines. Rest when you need and get a doctor who listens to ALL your symptoms.
Good health should not be taken for granted. Everytime you wake up healthy be grateful!
This young lady is so wise, and soooo beautiful! I grew up knowing that the disease I have is fatal and incurable, cystic fibrosis. I never really thought being an adult would happen, so I lived my life moment by moment. I tried to soak up every moment that I could with happiness and a lot of laughter. And now, here I am at 47 and still doing well! I sincerely hope that this beautiful young lady has the same opportunities! 💜
If you know something is wrong.never let a doctor tell u it's nothing.get every test you can. They love finding your illness when it's too late.
I’ve been fighting lupus for 10+ years now. It’s a continuous battle!! If you know anyone who is struggling with any autoimmune diseases please love on them we totally need it!!
I was diagnosed with Dermatomyositis in 2017. Specifically with the MDA5 auto-antibody which can cause also Interstitial Lung disease (ILD). I empathize with her, i wouldn't wish this kind of sickness on my worst enemy. But thanks to God's healing grace and mercy, I was rejected from one hospital and sent to another that gave me the care I needed. And I was declared to be in remission in 2022 and the sickness was not detectable in my blood tests earlier this year. God is still a healer and a provider.
🙏🏽🙏🏽
Amen, yes He is.🙏🏼🛐
Amen 🙏🏾❤❤❤❤🥺 God Is GOOD
Hallelujah 🙌🏾🙌🏾🙌🏾🌻
Amen
It makes me infuriated that no Doctor diagnosed her earlier! Something has to change
What is the incidence of her disease? Is it rare or is common like asthma?
@@iriemo721rare
@@iriemo721rare. And very unusual at her age.
It wont change for the better. It will get worse over time and socialised medicine will be the end result. Then you, and no one, will have a choice about health care.
Racism
Everyone should say thanks today for their health. Your body breathes by itself. You don’t have to labour every second or worry about suffocating. If you can breathe without pain, you’re very fortunate. 🙏🏻🌷
Amen! 🙏🏾❤
🎯
🙌🏾
Amen Amen & Amen-!!!
❤✨️🕊
Amen so very true
Prayers for her and I hope her lung transplant will be successful!
I’m so sorry you were let down by the medical professionals for so long, God willing you get your lung transplant asap. May God Bless you & family 😊❤🙏🏻🇦🇺
Thank you Inside Edition for bringing awareness to these health issues.
She's so strong and pretty, being able to keep up with her appearance with her health
My husband has 4 transplants. It's hard but you can do it. I wish you the very best. God bless you, beautiful lady.
Wow, that's bordering on Ship of Theseus levels of transplantation!
I feel for you. I can relate. I've had so many health problems for the past 37 years, including autoimmune illnesses, chronic fatigue, horrible back and neck issues, everything hurts, and like you, it's basically impossible for others to see or understand what I'm going through. I'm so glad you have a family who supports you, because I don't have a support system and am basically alone going through this. It's a blessing that you have your mom and support, so appreciate them, and be glad for what you do have going on. Blessings and love to you and yours. 💜👍👏🙏💜
As someone who has a chronic illness, yes it hurts but I’m never sad. When it’s my time, I’m going to be ready
She's pretty!❤
No doubt
Gorgeous ❤❤❤
Yes she is❤❤❤😊
She is! Beautiful and courageous.
Wishing her the best care for her issues❤
Sadly there is no cure.
God bless her! Doctors should do more in taking people seriously when they say something is wrong!! And stop passing it off as something else! Do your job!! More testing needs to be done!
Most of the doctors have been bought by Big Pharma. This poor beautiful girl. Please God heal this young woman.❤🙏🙏🙏🙏🙏🙏🙏
Right! Sadly many doctors try to accuse people of having anxiety or depression the push anti anxiety or depression meds that they get kick backs for from Big Pharmaceuticals! Do not accept it, go for further diagnoses.
Yesssss! Do YOUR JOB! and act like you care even a little bit!
I have Sarcoidosis. It’s hell. Most people don’t understand being tired and in pain everyday. People say things like why didn’t you do all your errands while you were out already. Not understanding that after a few physical movements you’re super tired & sometimes short of breath doing nothing. I pray for discovery for myself and others suffering like I do everyday.
Hey girl! If you see this, I'm 28, with an invisible illness that does the same stuff to me, and I'll die from. If you want someone to talk to, comment and we'll connect! I run a support group of thousands of people like us. You aren't alone. We aren't alone!
What was your diagnosis?
Lupus has a lot of the same symptoms. 🤒 Will keep you in my prayers. Stay strong just know TMH loves you.
Autoimmune diseases share symptoms.
My daughter passed away from an untreated illness. What she was told to us when she was a child. Wasn't what she died from. My heart goes out to her ❤️
so sorry for your loss
I'm sorry GOD BLESS you and your family sweetheart ❤❤❤❤
Condolences to you. I am so sorry.
So sorry for your loss. Prayers of comfort and strength. 🙏🙏
My condolences goes out to you and family
I've got 30 conditions. Turns out I have cervical instability that caused the bulk. Doctors always tell you it's in your head. You have to advocate for yourself. I feel so bad for this baby. She so young. Thank you for speaking out for those of us suffering in silence
She is a grown woman. Don’t call adults babies.
I have cervical stenosis. Let me tell ya, I know pain. It’s hard to function. I also have a lot of other health issues. I stay so tired.
ANdddd….. This is one of the MILLIONS of reasons why you should never take it upon yourself to ask anyone what their illness is for a handicapped spot or service dog!!! Not every sick person looks sick 🤢
Ha! I had a Brunette standing outside my car as I got out. She was looking at her phone as she told me, “You KNOW this is for wheelchair people.” She’d parked next to me and close by besides in other areas of the parking lots, there were three other disabled bays.
I didn’t talk to her and went into the pharmacy to collect my chronic meds. While waiting, she had gone and hunted down a mall security guard. The stupid guard asked me to move my car.
I asked her if she’d seen my disc right on my dash for all to see.
Nope, she’d believed the brunette and both had egg on their faces.
I hate that you have to LOOK disabled to apparently BE disabled. (I have active and not yet treatable Ankylosing Spondylitis (autoimmune inflammatory bone disease) and declining lung function.
I agree with you. More should mind their OWN business.
Erica is going on my prayer list.
I felt like she was telling my life story 😢 I have a rare genetic condition that took until I was 38 to get diagnosed.
People look at us and think we look fine and don't see how much effort it takes to look fine and that doesn't mean we aren't disabled. It takes the maximum allowable pain meds for me to function and walk, but my genetic condition also makes me look younger than I am so they think I am healthier than I am. People just need to BELIEVE in the pain of others.
doctors never wanna do their jobs fr
Yep. 90% became doctors for money.
Well they did diagnose her in fairness. Back in the say, they did not know. They see 1,000 people a week. It is up to the person to come back, get 2-3 opinions, and be their own advocates- always. I would NEVER depend on a Doctor for my own good health.
Yet they always collect payment
where's your medical degree to prove them wrong?
@@Skatejock21 took years and my dad demanding all testing possible to get dxed with PCOS. Had an inguinal hernia for years soooo many doctors misdiagnosed. A nurse finally helped me. A hole in my sinus that didn’t show on X-rays caused so much pain for years bc no one believed me. Had thyroid nodules that gave me difficulty swallowing doctors KNEW I didn’t have. Even had an endoscopy before an ultrasound. I had nodules. The doctor laughed. ‘Usually40-50 yr old women get those. Hahahaha’ wasn’t funny to me. I spent thousands when he cudve ordered the ultrasound first.
If I went on I’m sure you’d consider me the problem.
At least she got saved because this world is a temporary place
Amen!!!!
Exactly. Someone else’s lungs won’t keep her here when she’d pass regardless.
@@MeganJohnson913 she’s in bad shape to be young too but everybody was born with something
Amen 🙏
Amen 🙏🏾
Oh my goodness! I sympathise with you! I have fibromyalgia and feel like I’m 90 yrs old but look healthy.
I know the feeling. I have an invisible disability and the way people treat me because they can't see the problem was very upsetting to me at first,but then I had to realize that , that was their problem not mine. Now I stay focused on my health and leave them where they're at. Nobody checks on me really and I've learned to cope with it. I had to be my own advocate and keep pushing until I got health care professionals who took me more seriously. Now I'm getting somewhere and think I'm closer to my goal of recovery,or at least able bodied again. Take care of yourself young lady and GOD bless.
On a side note, she has the face of a doll. Stunning.
I also suffer autoimmune disorders, is freaking hard.
The insurance industry prevents health care, it is a profit money making business. Take care of yourself as best you can.
Doctors don't want to say a young person is ill. They just blow young people off. This abuse and delay of care is accepted everyday. That needs to stop. My niece is dealing with delayed care for her illness. She is only 20 and cannot work or go to school right now.
Yes! I just saw a presentation by National Nurses United that said 68% of adults have 2+ chronic issues and in the UK it’s just 33%. 😢
@@kaistockman6443 I'm 54 and I don't need to take any pharma prescriptions. Trying to keep it that way.
This reminds me of Asha Sharon's story. She was another beautiful young lady who suffered from lung disease and lupus. She documented her life and battles on YT. She kept in good spirits til the end. Wishing the best.❤
I miss Asha…she always tried no matter how she felt. I was newly diagnosed with lupus and it helps to have a friend to talk with
i am a lupus survivor for 2 years😳
I loved her so much
Going by my experience I started feeling sick all over. Eventually went to a psych lady and found out that some people were working against me through voodoo. Believe or not bad people exists and they envy you for whatever reasons. Please give it a thought. Best wishes to the beautiful young women. God Bless.
I wish this beautiful young lady the best!! I'm so glad to hear that she had the support of her mother.
Prayers for healing & peace
I had terrible menstrual pain as a teenager. I went to many doctors and their only advice was to have a baby. I didn’t know I had Fibroid’s until my 30s. I couldn’t believe a doctor would tell a kid to have a baby. So irresponsible of them. I can’t have children, it’s so devastating. I feel as though I was robbed.
I’m so sorry !
Did you end up have surgery?
Or just living with the fibroids?
For months I was diagnosed with laryngitis , not getting better getting sicker, unbelievable pain like elephant sitting on my chest…. Finally I went to ER and they did CAT SCAN…. Stage four lung cancer that had spread to my brain, lymph nodes, liver, and back bones…. Too bad my doctor did not find this earlier….
May God seek his vengeance on those who ignored you. May the almighty Lord give you endurance to breathe! Care about patients before its too late. Just know our almighty God witnessed them ignoring you. I'm sorry this happened.
I am so sorry. You deserved better.
Prayers for complete healing for you! 🙏🏽🙏🏽🙏🏽
God bless you with healing ❤
Sorry never give up
Bless u sis. I have a friend that has lupus and many of the same symptoms. Praying for yur health phy and mentally. Live every day to the fullest🙏🏾
It took me 10 years to get my diagnosis with Crohn’s disease. The diagnosis took so long even with me always at the ER they labeled me as a pain med seeker when I was dealing with debilitating pain that put me on the floor. I had to travel to Mayo Clinic in Minnesota to finally get the right diagnoses! Since I was in a flare for so long a lot of my intestines had to be removed and now I’m on so much medication. Had I gotten treatment right away I would of never suffered as much as I did I can totally relate
I hate when the ER dismiss peoples pain
Same thing happened to my older brother when we were kids, it took my mom years of fighting for him to get diagnosed with crohn’s. Then because he went into remission in his early twenties and did have a flare up until recently(35) they refuse to fill his prescription and he fought for a year to get diagnosed again because at some point one of his providers took it off because he was in remission without his consent. We live in Minnesota and the Mayo Clinic did his first diagnosis/treatment. They also ended up doing the second one since the his medical team the city refused to work with him. He has other invisible illnesses that have took years to diagnose since they would always gaslight him. Currently he has this horrible cough and some wheezing that they keep writing off.
I have Crohn’s disease too! Was diagnosed in 2008 and it’s tough but thank god I don’t have it severely like some do, and I’m in remission most of the time. My prayers go out to you 😊 We will make it in Jesus name!
Being a lupus warrior I understand this 100%
Im so sorry. I have six terminal and chronic illnesses. And I have one the doctors cant figure out. Its an auto immune disorder. My life is almost over but youre beautiful and young. Get the transplant. Keep the faith. You deserve every bit of happiness you can get. 💖💖🙏
Hang in there. God has the last saying. In gods name you shall heal completely. Keep that faith going God is good and everything will be ok .❤🙏🏿
I was diagnosed with myositis in 2020 after many failed diagnosis including having “pneumonia for a year” and severely elevated cardiac enzymes. I was on several antibiotics which caused my hands to blister and rashes all over my body. I too have interstitial lung disease and tachycardia as a result. I currently take Rituxan infusions every 5 months two weeks apart and Imuran daily. I can no longer do bedside nursing but I thank the Lord I went from using a cane and barely being able to breathe and walk to not using any assistive device and only needing an inhaler at times. I pray that the doctors find a treatment plan that works for you and gives you a new lease on life.
❤
I’m glad that this story broke regarding invisible illnessss. Disabilities and healthcare inequality delaying diagnosis for thousands of people of color who dont get treated the same. Keeping you in prayer Sis, I know what you’re going through 🙏🏽💪🏽❤Never give up!!
She's a clear case of appreciate everything in life no matter if you're rich or poor🤔
I can only Imagine how her mother feels because I was tearing up myself. But Erica's positive spirit is just as beautiful as she is. She is a fighter and won't just lay down, she changed her diet and continues to exercise which seems to have increased her lung capacity. I'm Rooting for her. 9x💯
My invisible illness is MS...it took 10 yrs and going temporarily blind, thankfully, before being diagnosed. But I wish this young lady so much love and support!
That's the first thing I thought, MS.
@mizzmolly7649 Yes, many of her illness symptoms sound very similar MS.
I have multiple sclerosis it's not for the weak
@DjMzunderstood it's not easy at all. Wishing you continued strength and good health! 🫂 🧡
Wow despite her condition she’s gorgeous ❤ it’s really appreciated that she’s sharing experience
She is so positive & strong! Her testimony gives strength & so much light to others! Praying for a complete healing for this young lady & her family!💕
If you're black and you complain to the doctor too much you're dramatic/emotional ..... They had u almost feeling like you mentally ill
Yes and it's sad. 😢
as a black woman (misogyny) it is worse
Story of my life. Even your family mocks you and calls you a hypochondriac. Very frustrating and depressing.
They do that to white folk too. It’s damn annoying!
@@juned1719 I think I just said something similar. Just more detailed. I'm sick of seeing it.
Smdh I hope she surpasses every doctors expectation. And I hope that original doctor is no longer practicing
I just prayed for this lovely lady and I know what my GOD can DO is will be set free from all this .
Oh please... your god is a man made fictional character similar to Mickey Mouse Donald Duck. 😳
@@alphaomega1351in what do you believe then? Nothing?
@@alphaomega1351 l will plead, with you to never,never Mock GOD, you will pay for your very words.😢😮
THank you for helping to spread awareness of hidden disabilities. I suffer with them and its hard
I’ve had Rheumatoid Arthritis since childhood, and the struggle with invisible illness is *real.*
This beautiful young woman describes it so well. My heart goes out to her.💞
I know this suffering from combination of Chronic Lyme, Bartonella and Babesia followed by RA. My heart goes out to her. 'But you look so good today' is like a knife in the heart.
7 yrs ago we almost lost our lil brother to Babesa (tick bite).
Who ever thought a lil tick could do so much harm. I thank God he survived. He gad to fight his way back with lil baby steps but he us doing very good now. He could only walk 3 feet and be totally exhausted. He was a gym rat before the bite. Muscles from head to toe. The tick bite gave him jaundice, neurological issues, lack of oxygen, brain fog etc etc.
🎚️BUT GOD❤
BE HEALED AND SET FREE BEAUTIFUL ONE IN JESUS NAME❤💐
A doctor told my mother I was experiencing “growing pains”, but I was not. Growing pains happen when a child has a growth spurt. I was and still am short. It was arthritis. Apparently I was born with it, and no doctors cared enough to ask enough questions. Every doctor who tells a mother her child is having growing pains should lose their license.
My close friend son diagnoised with growing pain, turned out CANCER, he past away age 18yrs old.
My daughter keeps being told this. She gets spasms in her legs. ESPECIALLY, eating bananas. The did so many test, n still don’t know.
Doctors need to remember to listen to their patients. Just because one doctor can't figure it out, they shouldn't just say "you're fine."
Another Doctor dismissing a black woman's pain. If they can dismiss Serina Williams pain, they can do it to anyone. Prayers
Thank you for being so brave and inspiring to share your story. I have several invisible medical conditions as well, one is a neuroimmune condition, 2nd a central nervous system condition and 3rd a neurological condition which affects my body's autonomic nervous system which causes severe autonomic dysfunction. These issues cause me wide spread pain of various forms, often severe, mobility problems, affects my overall function, brain fog, autoimmune issues and much more. I can completely appreciate how difficult this is for you. I hope and pray you have more good days than bad. Good is of course subjective, but at least it makes it more tolerable and manageable to get through those days. And I hope you get the lung transplant you need.
❤ love this. Sending you, comfort, relief and genuine support. I pray you receive all manners of love.
If you don't mind me asking, what is the neurological condition that is responsible for those symptoms?
I wish doctors would stop telling us it's all in our head.
P e r i o d