I love this video. It completely explains my son’s experience at age 7. He changed after that and became depressed, fearful, and later could never follow through with anything. He struggled through life and became an addict. Now, at age 36, after completing a degree, he slipped back into addiction, tried different career paths, and is now bedridden with mold and Lyme diseases and possibly autoimmune encephalitis. He’s in constant pain and doesn’t see a way out. At almost 68, I’m his caregiver and have no life outside of him. I have a broken arm and had to retire because of chronic illnesses myself, got autoimmune diseases, and awful things from breast implants and mold toxicity, but now I have 6 infections of Lyme coinfections. Life certainly sends us curve balls!🙏🙏🙏
A very good overview dear Dr Solomon. I waited to hear all that you say & my wait was worth it. To me, it seems that I’m one of those very few who completely recover & I hope that indeed is the case. As a Doctor, after being given permission, I have looked after my patients in my full clinical role for over 6 months & also my Trainer-role looking after a Trainee’s needs & teaching her in regular Tutorials. I hope it continues. Thank you.
Thank you for your comment and for sharing your experiences with us Dr Alka. It is good to hear that you have been making a good recovery. We are here for you. Please do not hesitate to reach out to us at support@encephalitis.info or call us on +44(0)1653699599 if ever you would like some support.
They found nothing in my lumbar puncture nor blood tests, but later I was finally diagnosed with a Parkinson's like autoimmune neuro encephalitis brought on by dorment west nile and Lyme disease and mono that I was originally infected with back in 2003
12 years ago my husband fought a pretty intense fight against encephalitis. From hallucinations to seizures to an evental coma. After 4 months of hospitalization he came home!! He is a part of a VERY lucky group who had minimal long term side effects. He still gets dizzy when his head tips back, but even this is something he has adjusted to. My question is , how was he never given a cause? Is this common? We are lucky enough to live in Canada so he received every test imaginable, but still to this day we have never had an answer. It's always been something we have wondered.
Hi Jessie, thank you for your comment and I am so sorry to hear of your husband's encephalitis 12 years ago. It is good to hear that he has made a good recovery with minimal outcomes. It can actually be fairly common never to be given a diagnosis of the cause. For some people it is not possible to identify a cause of the inflammation, especially after the acute event has passed. I hope this answer has been helpful, but support@encephalitis.info are always here to answer your questions in more detail. We are here for you.
Please help bring the Enterovirus 71 vaccine to the US. The virus is here! My husband (36) was in a long coma from this and will never be the same. We are in IN and have connected with multiple families via social media across the Midwest impacted by HFM in this way. Daycare providers have no idea that Hand Foot Mouth can be fatal! We need the vaccine and education. I’m begging for help on this, as a 36 year old near widow, now care taker and mother of 2 babies/toddlers.
Hi, thank you for sharing and I am so sorry to hear about your experience. Please do get in touch with our support team if you would like to talk though anything.
Hello and thank you.. Iv recently been in touch with a family friend who suffered infectious type roughly ten years ago.. He has been left to his own devices.. Needing support and help.. We are inN Ireland.. How can we access your support please.. Thanks
Thank you for reaching out to us Miss Heather, and I am so sorry to hear of your friend's encephalitis 10 years ago. Please can you or your family friend get in touch with our Support Team on +44(0)1653699599, or email in to us at support@encephalitis.info. You and your friend are not alone - we are here for you.
Res Sir , I am 45 yrs now suffered from simplex herpes encephalitis 8 yrs back , dr told me I had lost my 85% memory and from last 4 yrs I am on levipil 500 twice a day . Sir is there any chance of memory recovery as they told me there's a scare in part of brain which do deal with memory
Thank you for your comment Hemant, and for sharing with us about your HSV encephalitis. We have some information on managing memory problems after encephalitis that you might find useful on our website here: www.encephalitis.info/managing-memory-problems-after-encephalitis. Our Support Team are also here to answer your questions and provide information, advice and support. Please do get in touch with them on +44(0)1653699599 or support@encephalitis.info.
There was no acyclovir out when I had encephalitis in 1977. It only came out 28 years ago. I have never had rehabilitation what-so-ever but I kept fighting and persevering by learning new things 'that I most probably should have known about sooner' but never mind. I was always referred to as a 'little fighter' and when I was regularly admitted to hospital with gran mals,the staff there used to say 'look how brave she is', 'God she's so brave'. This was when I was on a drip and/or having my EEG's nothing like that ever got to me.
Hi Barbara, thank you for your comment. Yes, measles can cause very serious brain inflammation - please read this page for more information: www.encephalitis.info/measles-infection-and-encephalitis
Is there any cure for viral encephalitis caused by ebstain barr virus. My 4 years old cousin has recently been diagnosed with viral encephalitis. The doctor says there is no hope. He is currently in PICU.
We are so sorry to hear of your cousin's Epstein Barr virus encephalitis, hanabi. You are not alone - we are here for you. Please don't hesitate to reach out to support@encephalitis.info for support, information and advice.
Hello Doctor, Recently my wife died(29-May-21) after giving birth to a 2nd baby boy(5-May-21) (csection). MRI report says Acute Encephalitis in Aetiology. CSF fluid BIOFIRE test shows negative report for herpes virus. Then what can be the possibility of this inflammation? Still no answer to this question.😔
We are so sorry to hear of your loss, Sachin. You are not alone - we are here for you and your family. Encephalitis can be caused by a number of different viruses, bacteria, fungi, parasites and the body's own immune system. You can learn more here, under "causes of encephalitis?": www.encephalitis.info/what-is-encephalitis. Our support team are here for you should you have any questions, please don't hesitate to reach out to us at support@encephalitis.info
Please can you answer my question pls I had ENCHAPHILITIES I had 37 seizures they say I'm better even though 1 still have very bad heads fatigue problem pain my right kindly lung still I now hve chiken pox I feel very cold at times I can actually hv pain in spine head neck in same place were in the middle of head a fright side arm had a stroke after pls can you guide me wat do iv had chicken pox wen I'm was small and now I'm 45 I was 45 then had ENCHAPHILITIES what she I do I've got cold in lung I shake wen sun shining outsde I really thnk my imune system is weak especially now I hv chicken wat shall I do spoken dr who really doesnt ENCHAPHILITIES they evn say it cant re cure but since waking up those places In my brain are hurting mo then normal I'm on 13 medications including loads 4 seizures i smtmes hv palpation and truly can feel my heart weak and soar my right lung kidney r playing up what advice would u g e cus you are genuinely knowing and caring 2warda ppl like my self have suffered from ENCHAPHILITIES and WHOM are still i thankyou 4 everything that you 2 all of u do to help us ppl thankyou from a sad soul
Hello Ruqayyah S, thank you for reaching out to us, and we are so sorry to hear of your encephalitis. Please could you get in touch with our friendly support team at support@encephalitis.info, or +44(0)1653699599 for support, information and advice. We are here for you.
I love this video. It completely explains my son’s experience at age 7. He changed after that and became depressed, fearful, and later could never follow through with anything. He struggled through life and became an addict.
Now, at age 36, after completing a degree, he slipped back into addiction, tried different career paths, and is now bedridden with mold and Lyme diseases and possibly autoimmune encephalitis. He’s in constant pain and doesn’t see a way out.
At almost 68, I’m his caregiver and have no life outside of him. I have a broken arm and had to retire because of chronic illnesses myself, got autoimmune diseases, and awful things from breast implants and mold toxicity, but now I have 6 infections of Lyme coinfections.
Life certainly sends us curve balls!🙏🙏🙏
Thank you very much for the wonderful information regarding the illness, it’s a light in the dark tunnel for sufferers.
Thank you for watching, Tra-Ling Tu :)
A very good overview dear Dr Solomon. I waited to hear all that you say & my wait was worth it. To me, it seems that I’m one of those very few who completely recover & I hope that indeed is the case. As a Doctor, after being given permission, I have looked after my patients in my full clinical role for over 6 months & also my Trainer-role looking after a Trainee’s needs & teaching her in regular Tutorials. I hope it continues. Thank you.
Thank you for your comment and for sharing your experiences with us Dr Alka. It is good to hear that you have been making a good recovery. We are here for you. Please do not hesitate to reach out to us at support@encephalitis.info or call us on +44(0)1653699599 if ever you would like some support.
They found nothing in my lumbar puncture nor blood tests, but later I was finally diagnosed with a Parkinson's like autoimmune neuro encephalitis brought on by dorment west nile and Lyme disease and mono that I was originally infected with back in 2003
12 years ago my husband fought a pretty intense fight against encephalitis. From hallucinations to seizures to an evental coma. After 4 months of hospitalization he came home!! He is a part of a VERY lucky group who had minimal long term side effects. He still gets dizzy when his head tips back, but even this is something he has adjusted to.
My question is , how was he never given a cause? Is this common? We are lucky enough to live in Canada so he received every test imaginable, but still to this day we have never had an answer. It's always been something we have wondered.
Hi Jessie, thank you for your comment and I am so sorry to hear of your husband's encephalitis 12 years ago. It is good to hear that he has made a good recovery with minimal outcomes.
It can actually be fairly common never to be given a diagnosis of the cause. For some people it is not possible to identify a cause of the inflammation, especially after the acute event has passed. I hope this answer has been helpful, but support@encephalitis.info are always here to answer your questions in more detail. We are here for you.
Please help bring the Enterovirus 71 vaccine to the US. The virus is here! My husband (36) was in a long coma from this and will never be the same. We are in IN and have connected with multiple families via social media across the Midwest impacted by HFM in this way. Daycare providers have no idea that Hand Foot Mouth can be fatal! We need the vaccine and education. I’m begging for help on this, as a 36 year old near widow, now care taker and mother of 2 babies/toddlers.
Hi, thank you for sharing and I am so sorry to hear about your experience. Please do get in touch with our support team if you would like to talk though anything.
Hello and thank you.. Iv recently been in touch with a family friend who suffered infectious type roughly ten years ago.. He has been left to his own devices.. Needing support and help.. We are inN Ireland.. How can we access your support please.. Thanks
Thank you for reaching out to us Miss Heather, and I am so sorry to hear of your friend's encephalitis 10 years ago. Please can you or your family friend get in touch with our Support Team on +44(0)1653699599, or email in to us at support@encephalitis.info. You and your friend are not alone - we are here for you.
Thankyou so much will be in touch tomorrow😍
I had infectious encephalitis myself about four decades ago.
can ir be cuased by chikenpox?
Res Sir , I am 45 yrs now suffered from simplex herpes encephalitis 8 yrs back , dr told me I had lost my 85% memory and from last 4 yrs I am on levipil 500 twice a day . Sir is there any chance of memory recovery as they told me there's a scare in part of brain which do deal with memory
Thank you for your comment Hemant, and for sharing with us about your HSV encephalitis. We have some information on managing memory problems after encephalitis that you might find useful on our website here: www.encephalitis.info/managing-memory-problems-after-encephalitis. Our Support Team are also here to answer your questions and provide information, advice and support. Please do get in touch with them on +44(0)1653699599 or support@encephalitis.info.
There was no acyclovir out when I had encephalitis in 1977. It only came out 28 years ago. I have never had rehabilitation what-so-ever but I kept fighting and persevering by learning new things 'that I most probably should have known about sooner' but never mind. I was always referred to as a 'little fighter' and when I was regularly admitted to hospital with gran mals,the staff there used to say 'look how brave she is', 'God she's so brave'. This was when I was on a drip and/or having my EEG's nothing like that ever got to me.
Would measles cause infectious encephalitis?
Hi Barbara, thank you for your comment. Yes, measles can cause very serious brain inflammation - please read this page for more information: www.encephalitis.info/measles-infection-and-encephalitis
Is there any cure for viral encephalitis caused by ebstain barr virus. My 4 years old cousin has recently been diagnosed with viral encephalitis. The doctor says there is no hope. He is currently in PICU.
We are so sorry to hear of your cousin's Epstein Barr virus encephalitis, hanabi. You are not alone - we are here for you. Please don't hesitate to reach out to support@encephalitis.info for support, information and advice.
I had infectious encephalitis and herpes simplex virus was the cause of mine, in the 1970's
Hello Doctor,
Recently my wife died(29-May-21) after giving birth to a 2nd baby boy(5-May-21) (csection). MRI report says Acute Encephalitis in Aetiology. CSF fluid BIOFIRE test shows negative report for herpes virus. Then what can be the possibility of this inflammation? Still no answer to this question.😔
We are so sorry to hear of your loss, Sachin. You are not alone - we are here for you and your family. Encephalitis can be caused by a number of different viruses, bacteria, fungi, parasites and the body's own immune system. You can learn more here, under "causes of encephalitis?": www.encephalitis.info/what-is-encephalitis. Our support team are here for you should you have any questions, please don't hesitate to reach out to us at support@encephalitis.info
Bartonellosis
Please can you answer my question pls I had ENCHAPHILITIES I had 37 seizures they say I'm better even though 1 still have very bad heads fatigue problem pain my right kindly lung still I now hve chiken pox I feel very cold at times I can actually hv pain in spine head neck in same place were in the middle of head a fright side arm had a stroke after pls can you guide me wat do iv had chicken pox wen I'm was small and now I'm 45 I was 45 then had ENCHAPHILITIES what she I do I've got cold in lung I shake wen sun shining outsde I really thnk my imune system is weak especially now I hv chicken wat shall I do spoken dr who really doesnt ENCHAPHILITIES they evn say it cant re cure but since waking up those places In my brain are hurting mo then normal I'm on 13 medications including loads 4 seizures i smtmes hv palpation and truly can feel my heart weak and soar my right lung kidney r playing up what advice would u g e cus you are genuinely knowing and caring 2warda ppl like my self have suffered from ENCHAPHILITIES and WHOM are still i thankyou 4 everything that you 2 all of u do to help us ppl thankyou from a sad soul
Hello Ruqayyah S, thank you for reaching out to us, and we are so sorry to hear of your encephalitis. Please could you get in touch with our friendly support team at support@encephalitis.info, or +44(0)1653699599 for support, information and advice. We are here for you.