I think this is a wonderful idea. Children do not belong in an adult hospice. Its a whole different family dynamic when a child is dying. Bravo to the people who work at this hospice providing support to these families.
szqsk8 I'm not sure how much the government should get involved with these centers. You have all kinds of different rules and regulations that if it is privately funded they may not have to deal with the government paper work. I do think the government should help for some of the cost.
Jill Farwell, the founder of this hospice (alongside her husband Eddie) sadly passed away from cancer in 2004. May she rest in peace, alongside the children she showed so much empathy for.
When my Dad was diagnosed with terminal cancer 3 years ago, he and my Mom broke the news to me and my brother and I screamed out "Why?! Why you?!? I will never forget his words...he said, "Why not me?!? Why do these little children have to have it? I'm 65, I've lived a good life.." He died 15 months after his diagnosis but I will NEVER forget those words...he was right...why these little children?
@@carina_loves_cats yes I agree! it's not that you want to be sad all the time BUT it's cruel to just pretend there aren't people suffering horribly in the world better to have compassion for them then to just ignore there pain and pretend it's not happening
I was a hospice nurse, occasionally had children and eventually I burned out, the respect I have for those who persevere in this profession is immeasurable, I wish I had the strength to return 💔
A little over 1month ago , I was diagnosed with terminal cancer. We were all very surprised because I’m still fairly you and up to a year ago I’ve felt, fine, just my normal happy go lucky, bubbly young woman. I am 36years old, I was the youngest person in our immediate family until my little nephew was born Jan 31, 2018. I still feel like the youngest for my parents. My parents are older than most of peers, and because I’m so big (I have lost a good amount weight, so that’s good), so now I’m living in a long care facility in hospice program, there are not many on hospice her, most live here in retirement, or have been injured and are in the rehabilitation program. I don’t know how long I have left on Earth, but I take one day at a time and just try to be positive, and still treat others the way always have, treat other how you want to be treated (the golden Rule). I have some good days and some bad days, but it’s ok.
No one is dying for you. They are already going to die but their liver won’t go to waste. It is not your fault. You didn’t kill the person who gave/gives you a liver. I know you know this but maybe it’ll be good to hear it from someone else.
JJ R I wish everyone thought like you. I cannot tell you how many times I've read "why waste your money" or msgs of disgust on my friends' pages, directed at the parents and kiddos. My daughter's old insurance rep once asked her colleagues, "why buy one [in regards to a medical stroller aka wheelchair] if she is going to be dead soon anyways?" Also, "If I were her mom I wouldn't be taking her (or traveling with her)". Something like that. Calling me either selfish or irresponsible. Granted I was flying her to a medical conference, at 12 mos old, to see how to save her or give her the best fighting chance possible. The woman was a disgusting moron, and yes I blocked her from working on my child's case. Without all the knowledge we gained or the connections we made or the intervention from the top doctors in the world at the conference, my daughter would have survived to maybe 14 mos old max. She is now 8 1/4 yrs old.
I'm thankful I live in Canada and we have socialized medicine ❤️ We all put in the pot and everyone benefits when they need care. I wouldn't have it any other way.
My sister went to a children's hospice for 12 years. It was just like a holiday and it meant that my parents could spend time with me. The staff took me and my sister out on trips, they visited us when my sister was in hospital. The best memories I have of us as a family with my sister are all at the hospice. When my sister was in intensive care and it was very obvious she wouldn't survive it, she was transferred to the hospice, had her ventilator turned off and she died the next day. The dignity and respect that they gave my sister throughout was something that you'd never get in hospital, and the support that they gave myself and my parents made everything easier. They helped us to arrange the funeral, they gave us information about who we needed to notify, registering the death, about sorting benefits, etc; I don't know what we would've done without their support. Everyone thinks that children's hospices are these depressing places where kids go to die, and yes that happens there, but that side is hidden from the day to day life of the hospice where kids are having fun on respite; you know it happens, but it's tucked away, away from the main bit of the house so you don't see it unless it's your relative that's died.
That was absolutely beautifully put. Losing a loved one is just jarring- it shatters and fragments your world. Especially somebody so little.💔 My genuine condolences
@@greenspark101 Thank you. She was only 15, although mentally 2-3. I promised to never let her life be forgotten. She loved life and was always happy. ❤️
the dad asking his wife so nicely and excitedly if he could go down the pub really made me cry. It hit home how strong and amazing these people are, and how they are gasping for some normality amidst all the grief they must feel constantly
They reminded me of two little boys- so excited to go out and about for a few hours, after getting ‘permission’ (and money!). I found it absolutely adorable. There are so many things we don’t realize we take for granted. So many, many things.
Jenny, such a pretty young lady. All of these children are beautiful. I cannot even imagine. Blessings to all of these families and the families to come.
That little Jenny touched my heart. Her sweet demeanor and just so precious as all the children are. Amazing place, amazing staff. It takes a special kind of person to do this work,
Can you believe she was diagnosed ON THE DAY Little Bridge House opened its doors? Yet she still had the strength to do all we saw in the video AND carry on for another eight years (despite losing Tom 2 years after this video was made). Incredible woman.
I'm so sorry for your loss. I to lost a son he was adult 36 years old. But the loss of a child no matter their age is so hard. But so sad your son was so so young. Prayers for you.
We lost my sister to leukemia in 1989 when she was 4. Places like this is a godsend for the family. No child should have to suffer. My heart breaks for these little kids and their parents.
How these folks can do this work is amazing. I'm6'3 230lb truck driver tough guy type and I'm weeping at the thought of having one of our daughters in a place to make them comfortable before death. Bless there work
I understand. I'm a wannabe tough gal (kind of...lol) and ride my Harley for charity events to do with children whenever I can. I get so weepy watching anything to do with children and animals.
I guess everyone is strong in different ways, and it's ok. Weakness and love is what makes us human, you should be proud for feeling so that much love for you daughters :) they're in good hands with you
7.756.935 he was profiled in the British media as an adult. Apparently he had a brain tumor that damaged the part of his brain that regulates hunger. So he was hungry like the wolf all the time and never satisfied. When he was profiled he was trying to get into a group home for people with Prader Willi Syndrome. He insisted if someone else weren’t in control he’d eat himself to death
Daniel O’leary Williams was a beautiful soul. I could tell that just from the first two minutes of hearing him talk. If he’s gone now, may God rest his soul ❤️ As well as all other the other children blessed to take their last breath in this wonderful place. Thank you for sharing!
Apparently he's still alive! From what I understand by other comments, he has to use a wheelchair to ambulate, but he's still kicking it. AND he's MY AGE! What a surprise!
America needs to their $h**t together and start having care homes like this for children all around the country. It’s insane that families have to choose paying their mortgage and buying groceries for their families or getting their dying children the right medical care they need. They shouldn’t have to deal with the stress of having to choose! They are going through enough as it is!!
@@livhines5629 taxes go up and down all the time, imagine having to choose between dying and being homeless, starving to death. every other first world country has free healthcare, it is human right to be cared for. look what happened to this girl...
@malcolm caden yeah my mom and dad have to pay tons of money just to find out if im gonna die by 48 and spend money on therapy so I have less pain till I die or if I get to live a long life and pay even more on therapy 😅
@malcolm caden don't bother. This country is finished with logic, science, or reason. We designed the systems we use and then complained that they don't work right. We are taught growing up that this is "the greatest country in the world" and if you so much as suggest that another country has anything better or more efficient you're unAmerican. We've gotten exactly what we fucking deserve for the last four years.
4 minutes in, and im already tearing up, the little girl singing happy birthday as we find out she died soon after is not a good scene to watch at 6 am
all these workers are so compassionate and kind ...it breaks my heart to see all these children but this is one of the most touching videos i have seen on yt thanks for sharing this
Jenny, such a brave girl, to choose to die. I can't even begin to imagine how hard that must be and yet she was so calm and certain about it. And the guy with the x-men shirt, such a lovable, sweet character. It's so unfair that children have to go through this. Respect for that hospice, they provide a happy and peaceful place when it's really needed.
You would be surprised what a kid knows. Perhaps she just saw that her liver wouldn't get better, no matter how many times she got a transplant, or perhaps she actually understands. Don't wave off a child's decisions just because of their age. Sometimes, they know more than you ever could.
Native But Jesus called the children to him and said, "Let the little children come to me, and do not hinder them, for the kingdom of God belongs to such as these.
NativePrairieWolf I'm sure a 14yr old understands death just as much as an adult. The only difference is death is usually harder for a child to accept as a reality..I'm sure this child had more time than most adults to accept this reality
Andrea King you can find a Bible verse to fit any narritive - that's the whole point of the book to give people 'answers' who can't find them within themselves - or who are easily manipulated Death with dignity like said by the families should be of universal importance. Let's leave the Bible out of it, religious voters serve something but it's not a God or people in pain. They are the reason there is not a universal healthcare system -better everyone suffer rather than those without means have access to family planning. On the backs of these poor brave children and those like them.
When my brother was 15 he had a marrow bone transplant and so he spent some time living in a hospice like this as well as in the hospital, he was very close to dying a few times but luckily he survived and is now alive and well. What I remember the most is going to visit him and seeing so many little kids there, I was little as well so I didn't quite get the whole situation but watching this video made me think of them. So heartbreaking, God bless them and their families.
It’s so sweet to watch the life and joy breathed back into these parents, you almost get a glimpse of who they used to be before they were worried and sad all the time
I'm crying, but I'm smiling.... I'm crying at the thought of the emotional pain all these parents went through ( and still go through cuz you never completely heal from losing a child) but smiling at all the love , compassion and dignity this place gave these beautiful children
Narcoleptic Mama *At least you will be with your child until the end in a beautiful caring place surrounded by other parents who goes through the same hell, it must be very relieving to support each other with people who know how you are feeling. It's a place of love.*
I just sent this video to my boyfriend. I asked him to watch the video and to please realize how lucky we are to have our health. We have something these kids don't. Our health and yet we choose to be unhappy we choose to do drugs we choose to be selfish. I'm so disappointed in myself. God please forgive me for I have sinned. I repent from my sins. God bless everyone.
I did the same thing when i was pregnant. Hell its even worse now that my daughter is 2 around the age of these kids in the video and im still watching making myself sad.
Thank God Jill and Eddie had one surviving daughter, Lizzy, who is continuing in her parents' footsteps now working with their hospices. Jill passed away in 2004, unfortunately.
A particularly toxic friend called as I was watching this, beginning the call with his usual "I'm so depressed" greeting, which meant he was about to launch into yet another delighted rendition of that day's petty annoyances, most of which, as experience has shown me, he will have forgotten about by tomorrow morning. I could tell he was annoyed when I quickly cut him off and I'm pretty sure that I won't be calling him back later. Life's too short and precious to allow miserable narcissists to steal even a moment.
Theree’s some BEAUTIFUL and SELFLESS . people in this world. I can’t imagine facing the loss of my child with the strength that these parents display. What a lovely place, in spite of the underlying sadness and the reasons for it. After watching this, I hugged my 14 Yo beautiful daughter a lot tighter and longer. Watching this helped me realize how much I have taken her presently wonderful health for granted but no more. Bless the ones that make this special place possible and bless these beautiful children and their families!!
For part of my nursing career I was a hospice case manager, mostly for adults, in Alaska. The population that I worked with were mostly indigent people, who were younger, from late teens to 40's. I loved that work, I loved that population. I learned so much about human life, myself, love and respect. This hospice is amazing and I am so delighted with the young tour guide. ❤
I just Googled him and holy crap, he's my age! Wow, that really brings things home to me. Anyway, he was the perfect tour guide for the facility during this documentary and I'm so glad they got him involved with things at the facility.
This is not fair, children shouldn't be dealing with debilitating diseases 😡 it breaks my heart. God bless all you little angels & their family along with wonderful nursing staff & doctors
At 11:58, they're playing Sonic 2 and they're at the Mystic Cave Zone. Awesome game, awesome level, awesome music in that level and in the whole game. No wonder those beautiful kids are excited. Also, this is a remarkable documentary. It's extremely touching and shows the best in human nature.
This reminds me of the Ronald McDonald house in Albany. I spent a couple weeks there when I was 6 because my younger sister was hospitalized due to complications from pneumonia. You'd expect a place that families go to be closer to their sick and possibly dying children would have a very depressing atmosphere, but that was not the case at all. The staff there were very kind and supportive, and there was an air of solidarity among the parents as well.
Was this the Ronald McDonald house in Albany NY? I had to go there my daughter was born premature just 4 pounds and needed the extra support that the local hospitial could give I was in Green Island at the time but I couldn't be far from Albany med due to the possibility of her heart stopping and a parent needs to be there ASAP And you are 100% right they were so nice and at the floor level by the premature unit there is a Ronald McDonald room with food drinks and a huge toy room and TV and phone ot was great what they do. Did your sister get better? I sure hope so,
You dedicated 4 yrs to something truly amazing and needed! I can barely get through watching this video so working a day in children’s hospice is something I can’t fathom, working 4 yrs?! Your remarkable!
This is an AWESOME videos. How WONDERFUL to have a place like this where parents can go and relate to others going through the same things in life. We need more places like this for parents and the children going through these devastating times. 💕
As a flight medic II hope this finds everyone happy and healthy.... kids ALWAYS got treated with nothing but TLC in my rig....They deserve it.... i am under the care of hospice out of Hartford Hospital as we speak and I will never forget my nurses whom has played a part in my continuos recovery and they bring us joy and happiness.....So kids? Take care....And know i love you all....
What an adorable princess. I'm sick now with heart failure and I watch this because these kids know better how to handle it. They just live for the good days, and forget about the bad days as soon as they are over. I thought it would be too sad but surprisingly was happy too. Wasn't expecting that. Kids are amazing.
I agree and Bless his heart when he calls the others "Children" this place looks spectacular,I am dying I have terminal Cancer and I also have a new baby ,so I'm looking at Death full on.We need to live each day to its fullest ,something that I never did before my diagnosis.After watching this I almost wish that I was a child again ,to receive such wonderful care in a loving environment,sheer bliss.
Marta Motevassel sometimes the cancer isn’t detected easily, the baby could be a few months old and the cancer only just diagnosed - i doubt she would have done it on purpose, think before you comment because comments like that are unnecessary
Children should never die before their parents That's what I would tell God if I saw him My heart goes out to all the families that have dealt with this
I thank God and the people who work at Hospice for all the care and patience they show their patients and family's. That's a very heartbreaking soul wrenching job to have. You haven't lived till you've helped someone die.
My brother was in a special program where he was a sort of big brother to a disabled child he was partnered with, his "little brother" had hurler syndrome like Emily, I think he is still alive, which would mean he is almost 14 now, pretty unheard of. But last time I saw him he didn't look so good :/ these poor, sweet, innocent children, the world is so unfair.
Kids are so precious and watching these Documentries I find really hard to do yet these kids deserved have as much of a normal life as possible. With each case I grieve for the kids and families that ❤️ Them so 👼👼👼👼👼
I'm so glad places like this exist to meet the needs of children with debilitating and terminal illnesses. There's really no way to quantify how much good you do if you can help these families enjoy life.
What an extraordinary place! All these wonderful, compassionate people paving the way for a dignifying, happy, comfortable, and full of love end of life for the kids. What a blessed place!! It is so comforting to see so much kindness.
i pray these kids are still living or at least got a little longer in life than expected. it's weird to wonder what the families must be doing now and what continued on in the house after this documentary :( i couldn't even imagine what this must feel like, but know you're not alone, but stronger than anyone else could ever be
I was only 18 when my dad died at age 47 of terminal lung cancer. We only learned of his condition 12 months before his death. It was the most devastating period of my life and we watched him deteriorate before our eyes until he just stopped breathing. Just to make matters worse, he died on his 25th wedding anniversary. Its been over 50 years but I still have trouble talking about him.
RIP to all these kids. This was made in 1996 and I'm very sure most if not ALL has passed away by now. even our little tour guide. They were all such cute and sweet kids. May they all rest in eternity now with Jesus. now they have no more pain or sickness. They are playing in the most soft greenest grass we ever seen. They are living still just they are in heaven and you cant see them right now but you will see them again, and what a great day that will be. To these brave parents you did what you could and you all are wonderful parents. God Bess all these parents and the donors that make this hospice possible and the volunteers that come in and hep cook and clean and stay up all night with these kids that cant sleep God Bless you. AMEN
Who could dislike this angelic video smh wish it showed all the names of those who hit the dislike button..God bless all the beautiful precious kids in hospice
Selena Grinage they probably dislike the idea of kids being sick, and they wish that the hospice wasn’t needed.And not the actual video. That happens a lot on these types of videos. But i agree with you it’s a beautiful place. So caring thoughtful and kind.
Two words that should never go together! I've got a friend who lost a child to cancer when she was 8. One of the hardest things a parent can do is say "yes" when a kid asks, "Am I going to die?" Personally I have no idea how I could do that myself.
+oksdhs61 I get that you're trying to be sympathetic but I don't understand comments like this. Why do you ask god to send them to heaven, shouldn't that be be automatic, are you saying he might send an innocent child to hell? And why did he send them to hell on earth and cause them so much suffering?
Privacy Lover, You make no sense. Why are you asking him/her questions that, as a mere human, he/she does not have the answers to? Did I miss where we were in a Philosophy or World Religion class? More importantly, why are you assuming that he/she believes any of the things you've asserted? Those ideas came out of your head and were never actually expressed by this person. He/she simply expressed a hopeful sentiment for these children rooted in his/her own faith. Nothing more, nothing less.
What a beautiful place. We need these places and many more of them. I love how the other children in the family are not pushed aside and are made to feel so welcome and special.
I am a Cancer specialist nurse and deal with adult and child cancers every day.it is a very humbling experience. These children are so much braver and can accept things easier than adults.that can help parents deal with their loss in a different way.any cancer is devastating but kids have taught me an awful lot in 15years.most of these children will have died now but at peace.in a hospice we try to involve family as much as possible but more places are needed.any patient I've had a talk about death with most have accepted their diagnosis and with children we try to explain in the way each child understands.some accept with the normal questions children ask,why,how,is mummy daddy going to be there.other kids are deep and quiet.i try to think how it would be if it were my kids and how I'd want them treated.i love ! My job and have no intention of giving up.
My god, if the US military cut their spending on war itself in half and put it into caring for their ill and injured veterans alone that would be a major step.
I know this documentary was shot in 1995 or 1996 because at 12:27 you can see a poster of Mariah Carey's Daydream album on the wall. The funny thing is, I was thinking of the song, "One Sweet Day" as I watched this! What a coincidence!!!!!
Amazing people, are the ones who can watch children die. My earliest memory is of my little brother Jeremy, suffering and dying from a rare form of leukemia. I was 5 at the time, and he died one week before turning 3 years old and in mother's day in our home. I could never forget the horror, pain and sinking feeling that I felt the night he died. My dad running screaming pulling his hair, my mom throwing up as she continued to hold little Jeremy's lifeless limp and battered body. Although home should be the first place tried for keeping a dying child, if some parents don't have the gull and strength to overcome and deal with their dying child's suffering, a child hospice should be available. I just turned 40 this year, and little jeremys suffering as well as my parents, goes through mind daily. To this day, I find it difficult to find happiness, without feeling guilty of little Jeremy's voice saying, "I want to go to heaven, but I don't want to leave mommy and daddy forever."
Thank God for giving me 2 healthy babys and I pray they will continue to stay healthy. These parents are Angel's and I dont know how they do it. I cqnt imagine wanting to make your child better and not being able to. No one can even imagine what they are going thru and the babies are so strong its incredible poor babies. Pray for all dealing with sick children and also sick parents!
What a fantastic place, looking after not only the sick children but their families too. I cannot even begin to imagine the pain of knowing you will have to bury your child... and then have to keep up with the chores and raising other children. The world stops for no one, but a place like this may be the closest it'll ever get. I hope that in the years following this documentary, many more pediatric hospices have opened so that parents the world over can experience this level of compassion and care.
I have tears in my eyes and heart is broken to see these inocent children ill and I'm pain if I had power I 'll finish all their pain and these hospice are very kind and big heart people God bless u all
My heart breaks watching this but my heart is joyful.such a beautiful home . These children are so very lucky as well as the parents. I’ve never heart of a place like this before. God Bless everyone ❤❤🙏🙏🙏
I worked on a pediatric oncology ward for several years. I learned so much from the children there that made me really grow up. These children are fighters and so are those that provide care for them. They are excellent teachers and wise far too far beyond their age. As they progressed through their treatments they truly understood what they were dealing with and were very matter of fact about their health. I was told my more than a few that they were being brave because they knew their mommies and daddies were afraid of the truth. You get terminal children at the age of six or seven telling you that and it gives you a much clearer view of your world. These children are not only angels but are hero's. Each and every one of them.
This is brilliance thank you, you are angels. NO CHILD should be born sick...none, no disease, no ailments, no pain. This I will never understand. I wish I could take away all of their pain. Rest in peace little cherubs. Little wee ones, Amen.💓💓🙏🏻🙏🏻
I lost a young friend of mine to Cystic Fibrosis. She was 9 when she passed. It got to the point she made the decision she refused to be intubated anymore. She was tired of the hospitals, tubes, and pain. It was a losing battle. We all knew it. She passed peacefully thanks to some wonderful caregivers who made sure she didn’t feel a thing.
This video made me really emotional. I can witness the happiness in their faces rather than their sickness. You can definitely tell that a hospice really helps someone gain good memories before approaching death. I love the concept of hospice which made me choose this as my thesis.
I think this is a wonderful idea. Children do not belong in an adult hospice. Its a whole different family dynamic when a child is dying. Bravo to the people who work at this hospice providing support to these families.
absolutely but I also think it's disgusting that it isn't government funded
A community can take care of its own community!
If it were government funded it would not be nearly as nice!
szqsk8 I'm not sure how much the government should get involved with these centers. You have all kinds of different rules and regulations that if it is privately funded they may not have to deal with the government paper work. I do think the government should help for some of the cost.
szqsk8 Amen i agree and they need Jesus to be saved
By Jesus you mean the entity who supposedly put them there in the first place? I love your little automatic weapon picture btw, sums you up nicely.
Jill Farwell, the founder of this hospice (alongside her husband Eddie) sadly passed away from cancer in 2004. May she rest in peace, alongside the children she showed so much empathy for.
Damn that is sad.
I am so sorry.🙏🏽
That's awful
Don't say that! She doesn't look like she's about to die in this! I don't know where you got that information but I don't believe you!!
@@dommidavros2211 She died 8 years after this was filmed
When my Dad was diagnosed with terminal cancer 3 years ago, he and my Mom broke the news to me and my brother and I screamed out "Why?! Why you?!? I will never forget his words...he said, "Why not me?!? Why do these little children have to have it? I'm 65, I've lived a good life.." He died 15 months after his diagnosis but I will NEVER forget those words...he was right...why these little children?
My sincerest condolences to you, and I can relate.
Rachel Lee condolences to you and your family and what a sweet strong man your father was ❤️
SOOOOO SORRY THAT HAPPENED, THAT MUST BE SOOOOO HEARTBREAKING, STAY STRONG, PRAYER💪😭😭😭🙏🙏🙏🙏🙏!!!!!
Sounds like your Dad was a great bloke.
Your Dad understood, he was wise, god bless him....
why am I doing this to myself this is so sad im supposed to be vibing
same lmfao
Potater Tots I agree
Me rn
Never close your eyes from reality.
@@carina_loves_cats yes I agree! it's not that you want to be sad all the time BUT it's cruel to just pretend there aren't people suffering horribly in the world better to have compassion for them then to just ignore there pain and pretend it's not happening
I was a hospice nurse, occasionally had children and eventually I burned out, the respect I have for those who persevere in this profession is immeasurable, I wish I had the strength to return 💔
You are amazing for doing hospice to begin with ❤ Much love and respect to you
You did amazing work. I can handle adults but kids hit my heart
kate carew so much respect for you! 💕
I'm a nursing student with a possible interest in hospice care. Any advice?
@@MrsDogLover Try to always have compassion and give them hope....because dying could be so scary and lonely.
That boy giving the tour is amazing....love him
There was an article about him recently
Miss Moxie link?
@@missmoxie9188 what did it say???
He sure is❤
for sure, i love his enthusiasm
A little over 1month ago , I was diagnosed with terminal cancer. We were all very surprised because I’m still fairly you and up to a year ago I’ve felt, fine, just my normal happy go lucky, bubbly young woman. I am 36years old, I was the youngest person in our immediate family until my little nephew was born Jan 31, 2018. I still feel like the youngest for my parents. My parents are older than most of peers, and because I’m so big (I have lost a good amount weight, so that’s good), so now I’m living in a long care facility in hospice program, there are not many on hospice her, most live here in retirement, or have been injured and are in the rehabilitation program. I don’t know how long I have left on Earth, but I take one day at a time and just try to be positive, and still treat others the way always have, treat other how you want to be treated (the golden Rule). I have some good days and some bad days, but it’s ok.
Love and hugs❤
Sending a hug ♥️
You are a courageous woman! May God’s love comfort you and know that you are loved!
Hugs
GOD bless you sweet heart 🙏 you are very strong! 💙💜 You've got this:)
Jenny broke my heart. I don't blame her for not wanting to go through another transplant -- there is only so much a person can endure.
Me too, I need a liver transplant, but I'm 53 and have lived life, what a brave girl, my heart aches for her.
I am very glad her decision has been respected by both her parents and doctors.
@@grammargrandma1234 I pray you get it.
@@flaffy6181 thank you, I sort of feel bad that for me to get one, someone is going to die.
No one is dying for you. They are already going to die but their liver won’t go to waste. It is not your fault. You didn’t kill the person who gave/gives you a liver. I know you know this but maybe it’ll be good to hear it from someone else.
Omg if TAX DOLLARS are gonna go for anything they must go TO THIS.
JJ R it’s tax pounds, it’s Devon in Britain
A lot of money is shipped abroad or on benefits, at least smokers tax goes to healthcare
JJ R I wish everyone thought like you.
I cannot tell you how many times I've read "why waste your money" or msgs of disgust on my friends' pages, directed at the parents and kiddos.
My daughter's old insurance rep once asked her colleagues, "why buy one [in regards to a medical stroller aka wheelchair] if she is going to be dead soon anyways?" Also, "If I were her mom I wouldn't be taking her (or traveling with her)". Something like that. Calling me either selfish or irresponsible. Granted I was flying her to a medical conference, at 12 mos old, to see how to save her or give her the best fighting chance possible. The woman was a disgusting moron, and yes I blocked her from working on my child's case. Without all the knowledge we gained or the connections we made or the intervention from the top doctors in the world at the conference, my daughter would have survived to maybe 14 mos old max. She is now 8 1/4 yrs old.
JJ R amen
I'm thankful I live in Canada and we have socialized medicine ❤️ We all put in the pot and everyone benefits when they need care. I wouldn't have it any other way.
im sooo deep in youtube....
super burger same dude. 😢
Mary Reale I just noticed that...
TH-cam got deep
We all have those moments 😂
So very interesting and heartbreaking
My sister went to a children's hospice for 12 years. It was just like a holiday and it meant that my parents could spend time with me. The staff took me and my sister out on trips, they visited us when my sister was in hospital. The best memories I have of us as a family with my sister are all at the hospice. When my sister was in intensive care and it was very obvious she wouldn't survive it, she was transferred to the hospice, had her ventilator turned off and she died the next day. The dignity and respect that they gave my sister throughout was something that you'd never get in hospital, and the support that they gave myself and my parents made everything easier. They helped us to arrange the funeral, they gave us information about who we needed to notify, registering the death, about sorting benefits, etc; I don't know what we would've done without their support.
Everyone thinks that children's hospices are these depressing places where kids go to die, and yes that happens there, but that side is hidden from the day to day life of the hospice where kids are having fun on respite; you know it happens, but it's tucked away, away from the main bit of the house so you don't see it unless it's your relative that's died.
Abigail Ash thanks for taking the time to write this and share your sisters memory
That was absolutely beautifully put. Losing a loved one is just jarring- it shatters and fragments your world. Especially somebody so little.💔 My genuine condolences
Beautifully written post. Sorry about your sister.
MAY OUR SISTER IN CHRIST CONTINUE TO RIP💜🙌🙏
@@greenspark101 Thank you. She was only 15, although mentally 2-3. I promised to never let her life be forgotten. She loved life and was always happy. ❤️
the dad asking his wife so nicely and excitedly if he could go down the pub really made me cry. It hit home how strong and amazing these people are, and how they are gasping for some normality amidst all the grief they must feel constantly
He’s just so delighted to have a break and a mate who understands what he’s going through, you can tell. What a dear.
They reminded me of two little boys- so excited to go out and about for a few hours, after getting ‘permission’ (and money!). I found it absolutely adorable.
There are so many things we don’t realize we take for granted. So many, many things.
Jenny, such a pretty young lady. All of these children are beautiful. I cannot even imagine. Blessings to all of these families and the families to come.
Sunflowers Are Awesome i
i just love daniel, what a great guide,
Yes - basically! ;-)
He's still alive, but sadly wheelchair bound :(
He was for sure! So articulate too
Bethany Devers I'm sorry to hear that
That little Jenny touched my heart. Her sweet demeanor and just so precious as all the children are. Amazing place, amazing staff. It takes a special kind of person to do this work,
So Pretty.
This film is over 20 years old. I wonder where these families are today
I just googled Jill Farwell (the mum at the beginning) it seems like she died in 2004 from cancer. This world is horrible.
The boy in the X-men shirt giving the tour (Daniel) is still alive.
Can you believe she was diagnosed ON THE DAY Little Bridge House opened its doors? Yet she still had the strength to do all we saw in the video AND carry on for another eight years (despite losing Tom 2 years after this video was made). Incredible woman.
I wonder how Jenny’s family are.
Retrospectors
That is one strong, beautiful woman 🌸. I’m sure she has a very special place in heaven with her little one☮️💗
MY SON WAS BRAVE TOO I WAS LUCKY TO BE ABLE TO CARE FOR HIM AT HOME HE WAS ONLY 5 WHEN HE DIED OF LEUKEMIA I WAS GRATEFUL I COULD CARE FOR HIM MYSELF
I can't imagine... im so sorry. You are very brave. 💚
I'm so sorry for your loss. I to lost a son he was adult 36 years old. But the loss of a child no matter their age is so hard. But so sad your son was so so young. Prayers for you.
My deepest condolences to you.
so sorry, sending love your way!
So sorry for your loss,😥 don't think I'd be as strong as you if I lost my son..
We lost my sister to leukemia in 1989 when she was 4. Places like this is a godsend for the family. No child should have to suffer. My heart breaks for these little kids and their parents.
I'm so deeply sorry.
How these folks can do this work is amazing. I'm6'3 230lb truck driver tough guy type and I'm weeping at the thought of having one of our daughters in a place to make them comfortable before death. Bless there work
Parents Basement you’re an emotionally available father
I understand. I'm a wannabe tough gal (kind of...lol) and ride my Harley for charity events to do with children whenever I can. I get so weepy watching anything to do with children and animals.
I guess everyone is strong in different ways, and it's ok. Weakness and love is what makes us human, you should be proud for feeling so that much love for you daughters :) they're in good hands with you
*Our host Daniel is a natural born star!*
7.756.935 he was profiled in the British media as an adult. Apparently he had a brain tumor that damaged the part of his brain that regulates hunger. So he was hungry like the wolf all the time and never satisfied. When he was profiled he was trying to get into a group home for people with Prader Willi Syndrome. He insisted if someone else weren’t in control he’d eat himself to death
yes he is,
They should do a new story on the hospice If its still around. People should know about it
It’s still around :)
also they should do an update of these families.
It’s still open
Courtney Egnor There were parents and siblings though
It's still here. I don't live far from it in fact, it'd be nice to have another documentary about it
Daniel O’leary Williams was a beautiful soul. I could tell that just from the first two minutes of hearing him talk. If he’s gone now, may God rest his soul ❤️ As well as all other the other children blessed to take their last breath in this wonderful place. Thank you for sharing!
Apparently he's still alive! From what I understand by other comments, he has to use a wheelchair to ambulate, but he's still kicking it. AND he's MY AGE! What a surprise!
@@ladyi7609 I am so happy to hear it! I hope he still here today as well.
@@klinikam.9135 He is! Still alive today c:
@@renyputman7118 Thank you! 😄
@@renyputman7118 I'm overjoyed!
America needs to their $h**t together and start having care homes like this for children all around the country. It’s insane that families have to choose paying their mortgage and buying groceries for their families or getting their dying children the right medical care they need. They shouldn’t have to deal with the stress of having to choose! They are going through enough as it is!!
All you need is health insurance!
but...taxes would go up... so no.
@@livhines5629 taxes go up and down all the time, imagine having to choose between dying and being homeless, starving to death. every other first world country has free healthcare, it is human right to be cared for. look what happened to this girl...
@malcolm caden yeah my mom and dad have to pay tons of money just to find out if im gonna die by 48 and spend money on therapy so I have less pain till I die or if I get to live a long life and pay even more on therapy 😅
@malcolm caden don't bother. This country is finished with logic, science, or reason. We designed the systems we use and then complained that they don't work right. We are taught growing up that this is "the greatest country in the world" and if you so much as suggest that another country has anything better or more efficient you're unAmerican.
We've gotten exactly what we fucking deserve for the last four years.
The amount of medical trauma that could be avoided if there were more places like this...
I always support Helen and Douglas house hospice in Oxfordshire since a school friend lived and died there when I was little.
I visited there as I was fundraising for them. It is such a beautiful place with wonderful staff x
4 minutes in, and im already tearing up, the little girl singing happy birthday as we find out she died soon after is not a good scene to watch at 6 am
What a beautiful child Jenny was inside and out
all these workers are so compassionate and kind ...it breaks my heart to see all these children but this is one of the most touching videos i have seen on yt
thanks for sharing this
Jenny, such a brave girl, to choose to die. I can't even begin to imagine how hard that must be and yet she was so calm and certain about it. And the guy with the x-men shirt, such a lovable, sweet character. It's so unfair that children have to go through this. Respect for that hospice, they provide a happy and peaceful place when it's really needed.
You would be surprised what a kid knows. Perhaps she just saw that her liver wouldn't get better, no matter how many times she got a transplant, or perhaps she actually understands. Don't wave off a child's decisions just because of their age. Sometimes, they know more than you ever could.
Native
But Jesus called the children to him and said, "Let the little children come to me, and do not hinder them, for the kingdom of God belongs to such as these.
NativePrairieWolf I'm sure a 14yr old understands death just as much as an adult. The only difference is death is usually harder for a child to accept as a reality..I'm sure this child had more time than most adults to accept this reality
Andrea King you can find a Bible verse to fit any narritive - that's the whole point of the book to give people 'answers' who can't find them within themselves - or who are easily manipulated
Death with dignity like said by the families should be of universal importance. Let's leave the Bible out of it, religious voters serve something but it's not a God or people in pain. They are the reason there is not a universal healthcare system -better everyone suffer rather than those without means have access to family planning.
On the backs of these poor brave children and those like them.
NativePrairieWolf She doesn't know what death is? What the fuck would you know dumbass?
Such a beautiful place for these families to spend their time with their children. Truly amazing people that own / run this facility!
4
im in tears because most of these kids would have passed away by now
When my brother was 15 he had a marrow bone transplant and so he spent some time living in a hospice like this as well as in the hospital, he was very close to dying a few times but luckily he survived and is now alive and well. What I remember the most is going to visit him and seeing so many little kids there, I was little as well so I didn't quite get the whole situation but watching this video made me think of them. So heartbreaking, God bless them and their families.
Glad your brother recovered.
Jenny.
such a young girl with such wisdom in her eyes
Wow
It’s so sweet to watch the life and joy breathed back into these parents, you almost get a glimpse of who they used to be before they were worried and sad all the time
I'm crying, but I'm smiling.... I'm crying at the thought of the emotional pain all these parents went through ( and still go through cuz you never completely heal from losing a child) but smiling at all the love , compassion and dignity this place gave these beautiful children
Narcoleptic Mama *At least you will be with your child until the end in a beautiful caring place surrounded by other parents who goes through the same hell, it must be very relieving to support each other with people who know how you are feeling. It's a place of love.*
We don’t realize how lucky we are to have our health.
I just sent this video to my boyfriend. I asked him to watch the video and to please realize how lucky we are to have our health. We have something these kids don't. Our health and yet we choose to be unhappy we choose to do drugs we choose to be selfish. I'm so disappointed in myself. God please forgive me for I have sinned. I repent from my sins. God bless everyone.
This is not the video to watch while pregnant. I don't think I've ever cried so much in my entire life.
Bwahahagaha
I did the same thing when i was pregnant.
Hell its even worse now that my daughter is 2 around the age of these kids in the video and im still watching making myself sad.
How’s the baby
@@allisongarrett4824 Same.
This is slightly off-topic... but congratulations!!!! You’re a mommy! Your baby must be almost 1/2 year old, now? So precious💗💗💗
that is adorable, first thing in the morning was for Emily to go to her friend 1:44
Omg I love the young man who shows the audience around the place. He's so charming.
Thank heaven for places like this. It must mean the world to families who are lucky enough to be able to access places like this.
Thank God Jill and Eddie had one surviving daughter, Lizzy, who is continuing in her parents' footsteps now working with their hospices. Jill passed away in 2004, unfortunately.
A particularly toxic friend called as I was watching this, beginning the call with his usual "I'm so depressed" greeting, which meant he was about to launch into yet another delighted rendition of that day's petty annoyances, most of which, as experience has shown me, he will have forgotten about by tomorrow morning. I could tell he was annoyed when I quickly cut him off and I'm pretty sure that I won't be calling him back later. Life's too short and precious to allow miserable narcissists to steal even a moment.
Amen!! Don’t let anyone ever be a parasite on your life force!
Truth. Glad you acknowledge that. Bless you and keep distance with that friend. Things could always be A LOT worse for most of us.
seems like this video gave you some extra perspective!
Depression is an illness too. Just because it’s not a physical one doesn’t mean it’s not real. I hate when people shame people with depression.
Depressed people usually don't answer the phone, let alone calling. Some just like to be victims.
Theree’s some BEAUTIFUL and SELFLESS . people in this world. I can’t imagine facing the loss of my child with the strength that these parents display. What a lovely place, in spite of the underlying sadness and the reasons for it. After watching this, I hugged my 14 Yo beautiful daughter a lot tighter and longer. Watching this helped me realize how much I have taken her presently wonderful health for granted but no more. Bless the ones that make this special place possible and bless these beautiful children and their families!!
For part of my nursing career I was a hospice case manager, mostly for adults, in Alaska. The population that I worked with were mostly indigent people, who were younger, from late teens to 40's. I loved that work, I loved that population. I learned so much about human life, myself, love and respect.
This hospice is amazing and I am so delighted with the young tour guide. ❤
No way would the US allow something so wonderful.
Well done to the host Daniel O'Leary Williams, what a charming young man,,
I just Googled him and holy crap, he's my age! Wow, that really brings things home to me. Anyway, he was the perfect tour guide for the facility during this documentary and I'm so glad they got him involved with things at the facility.
This is not fair, children shouldn't be dealing with debilitating diseases 😡 it breaks my heart. God bless all you little angels & their family along with wonderful nursing staff & doctors
PriscilLaLand Landers terminal diseases.
I can´t see this, it is break my heart.social workers are heroes too
Lol "god" would be the one who caused it
@@rdgloveshouse thats not how it works lol
@@Arda-Profession ya cuz he doesnt exist
At 11:58, they're playing Sonic 2 and they're at the Mystic Cave Zone. Awesome game, awesome level, awesome music in that level and in the whole game. No wonder those beautiful kids are excited. Also, this is a remarkable documentary. It's extremely touching and shows the best in human nature.
This is too incredible. A special place full of special people.
This reminds me of the Ronald McDonald house in Albany. I spent a couple weeks there when I was 6 because my younger sister was hospitalized due to complications from pneumonia. You'd expect a place that families go to be closer to their sick and possibly dying children would have a very depressing atmosphere, but that was not the case at all. The staff there were very kind and supportive, and there was an air of solidarity among the parents as well.
Jade I lived in RMH for about a year. Some of my favorite memories are from there.
I also have very fond memories at RMH, in Vancouver
The Children's Hospital at Albany Med is terrific as well.
Jade ive spent about a week their when my oldest daughter was 2 months old and stopped breathing on me. I live about 30 north of albany ny
Was this the Ronald McDonald house in Albany NY? I had to go there my daughter was born premature just 4 pounds and needed the extra support that the local hospitial could give I was in Green Island at the time but I couldn't be far from Albany med due to the possibility of her heart stopping and a parent needs to be there ASAP And you are 100% right they were so nice and at the floor level by the premature unit there is a Ronald McDonald room with food drinks and a huge toy room and TV and phone ot was great what they do. Did your sister get better? I sure hope so,
I worked in a children’s hospice for 4 years. It was the most amazing job. But 4 years was enough.
4 years is a long time. I have personally never known anyone that lasted more than 6 months.
@@lloydsgem I miss it. A lot. It was the best job have ever had
💞
You dedicated 4 yrs to something truly amazing and needed! I can barely get through watching this video so working a day in children’s hospice is something I can’t fathom, working 4 yrs?! Your remarkable!
@@emilywiebel3238 I miss it. So so much. I miss every child I looked after
This is an AWESOME videos. How WONDERFUL to have a place like this where parents can go and relate to others going through the same things in life. We need more places like this for parents and the children going through these devastating times. 💕
As a flight medic II hope this finds everyone happy and healthy.... kids ALWAYS got treated with nothing but TLC in my rig....They deserve it.... i am under the care of hospice out of Hartford Hospital as we speak and I will never forget my nurses whom has played a part in my continuos recovery and they bring us joy and happiness.....So kids? Take care....And know i love you all....
I am moved to tears. This is a timeless documentary. ♥️💚🧡💛💜
This breaks my soul... I cannot imagine the pain of losing a child.
Wow, how absolutely wonderful for the children and families.
What an adorable princess. I'm sick now with heart failure and I watch this because these kids know better how to handle it. They just live for the good days, and forget about the bad days as soon as they are over. I thought it would be too sad but surprisingly was happy too. Wasn't expecting that. Kids are amazing.
I agree and Bless his heart when he calls the others "Children" this place looks spectacular,I am dying I have terminal Cancer and I also have a new baby ,so I'm looking at Death full on.We need to live each day to its fullest ,something that I never did before my diagnosis.After watching this I almost wish that I was a child again ,to receive such wonderful care in a loving environment,sheer bliss.
Donna Regan My Love and strength to you Donna. I can only imagine how you bear up under such circumstances.
Marta Motevassel sometimes the cancer isn’t detected easily, the baby could be a few months old and the cancer only just diagnosed - i doubt she would have done it on purpose, think before you comment because comments like that are unnecessary
Donna Regan you still around?
Marta Motevassel I am so glad I am not a soulless person like you. I actually feel sorry for you.
Donna Regan I hope you are still with us. My heart is with you and all your loved ones.
Children should never die before their parents
That's what I would tell God if I saw him
My heart goes out to all the families that have dealt with this
Don Dressel amen
We have buried two 😢😢💙😇💚😇 4 months apart 2011 💔💔💔💔💔💔💔💔💔💔💔
God love vey one why dose God kill kids they don't know life is God go to hell
Don Dressel all children go to heaven maybe god takes them from this cruel world because he knows what their future holds x
@@sumi4684 well why make them suffer and die a cruel painful death ??? Makes no sense .
I thank God and the people who work at Hospice for all the care and patience they show their patients and family's. That's a very heartbreaking soul wrenching job to have. You haven't lived till you've helped someone die.
My brother was in a special program where he was a sort of big brother to a disabled child he was partnered with, his "little brother" had hurler syndrome like Emily, I think he is still alive, which would mean he is almost 14 now, pretty unheard of. But last time I saw him he didn't look so good :/ these poor, sweet, innocent children, the world is so unfair.
Kids are so precious and watching these Documentries I find really hard to do yet these kids deserved have as much of a normal life as possible. With each case I grieve for the kids and families that ❤️ Them so 👼👼👼👼👼
The staff at a children's hospice has to be amazingly strong and caring people. God bless the children, the families, and the staff.
I'm so glad places like this exist to meet the needs of children with debilitating and terminal illnesses. There's really no way to quantify how much good you do if you can help these families enjoy life.
What an extraordinary place! All these wonderful, compassionate people paving the way for a dignifying, happy, comfortable, and full of love end of life for the kids. What a blessed place!! It is so comforting to see so much kindness.
the boy did a great tour!
this is sad but beautiful
The horse just casually walking down the hallway 🥰
i pray these kids are still living or at least got a little longer in life than expected. it's weird to wonder what the families must be doing now and what continued on in the house after this documentary :( i couldn't even imagine what this must feel like, but know you're not alone, but stronger than anyone else could ever be
daniel (the kid in the x men shirt) is still alive ^-^
I was only 18 when my dad died at age 47 of terminal lung cancer. We only learned of his condition 12 months before his death. It was the most devastating period of my life and we watched him deteriorate before our eyes until he just stopped breathing. Just to make matters worse, he died on his 25th wedding anniversary. Its been over 50 years but I still have trouble talking about him.
im so sorry i hope you are doing ok
I'm so deeply sorry.
RIP to all these kids. This was made in 1996 and I'm very sure most if not ALL has passed away by now. even our little tour guide. They were all such cute and sweet kids. May they all rest in eternity now with Jesus. now they have no more pain or sickness. They are playing in the most soft greenest grass we ever seen. They are living still just they are in heaven and you cant see them right now but you will see them again, and what a great day that will be. To these brave parents you did what you could and you all are wonderful parents. God Bess all these parents and the donors that make this hospice possible and the volunteers that come in and hep cook and clean and stay up all night with these kids that cant sleep God Bless you. AMEN
cindy shaw amen 🙏
I think Daniel (the tour guy) is still alive comparing to the other comments on this video
Who could dislike this angelic video smh wish it showed all the names of those who hit the dislike button..God bless all the beautiful precious kids in hospice
Selena Grinage they probably dislike the idea of kids being sick, and they wish that the hospice wasn’t needed.And not the actual video. That happens a lot on these types of videos. But i agree with you it’s a beautiful place. So caring thoughtful and kind.
Maybe they were cutting onions and hit the wrong button. Tears mess with your eyes, otherwise I can't imagine anyone disliking this video.
Two words that should never go together! I've got a friend who lost a child to cancer when she was 8. One of the hardest things a parent can do is say "yes" when a kid asks, "Am I going to die?"
Personally I have no idea how I could do that myself.
Eric Taylor I don't either, but I might add something like, "But only when you are ready, and when you are at that point, I want you to fly."
I'm so sorry
@@janetslater129 You should never lie to a child in this situation.
God grant these beautiful children a beautiful place in heaven.
Allahuma Ameen.
+oksdhs61 I get that you're trying to be sympathetic but I don't
understand comments like this. Why do you ask god to send them to heaven,
shouldn't that be be automatic, are you saying he might send an innocent child to hell? And why did he send them to hell on earth and cause them so much suffering?
Privacy Lover Lol why are you looking so far into a harmless comment
Privacy Lover, You make no sense. Why are you asking him/her questions that, as a mere human, he/she does not have the answers to? Did I miss where we were in a Philosophy or World Religion class? More importantly, why are you assuming that he/she believes any of the things you've asserted? Those ideas came out of your head and were never actually expressed by this person. He/she simply expressed a hopeful sentiment for these children rooted in his/her own faith. Nothing more, nothing less.
Just tell your god to not let little children die like this.
What? Give it up. There's no heaven.
Jenny is such a smart girl.
What a beautiful place. We need these places and many more of them. I love how the other children in the family are not pushed aside and are made to feel so welcome and special.
It's heartbreaking places like this have to exsist.
yes it is but thank God that they do exist...
Thank the people that opened them u mean
I am a Cancer specialist nurse and deal with adult and child cancers every day.it is a very humbling experience. These children are so much braver and can accept things easier than adults.that can help parents deal with their loss in a different way.any cancer is devastating but kids have taught me an awful lot in 15years.most of these children will have died now but at peace.in a hospice we try to involve family as much as possible but more places are needed.any patient I've had a talk about death with most have accepted their diagnosis and with children we try to explain in the way each child understands.some accept with the normal questions children ask,why,how,is mummy daddy going to be there.other kids are deep and quiet.i try to think how it would be if it were my kids and how I'd want them treated.i love ! My job and have no intention of giving up.
What a wonderful team who do this. When children have just began life, to be snuffed up...horrendous. R.I.P. Tanya (childhood friend).
The U.S. government should cut our tax money going to the military in half and send the money to something like this instead.
all us healthcare should be funded, yes
Or stop welfare for lazy people and give it to the kids
My god, if the US military cut their spending on war itself in half and put it into caring for their ill and injured veterans alone that would be a major step.
Why would they do that, that would actually help the community. They just want to keep the money to themselves and fund useless projects
We have welfare for the poor and hospice for all ages this should be a human right Americans need new legislation
I revisit this documentary often. Such a wonderful, unique place with wonderful families. So impressed. ❤
I know this documentary was shot in 1995 or 1996 because at 12:27 you can see a poster of Mariah Carey's Daydream album on the wall. The funny thing is, I was thinking of the song, "One Sweet Day" as I watched this! What a coincidence!!!!!
輝希 the 90s era X-Men shirt too
lolol
Good spot! Daydream was my favourite album back in the day.
That's the what this documentary made you think of?!!! Smh.
It’s in the description
Amazing people, are the ones who can watch children die. My earliest memory is of my little brother Jeremy, suffering and dying from a rare form of leukemia. I was 5 at the time, and he died one week before turning 3 years old and in mother's day in our home. I could never forget the horror, pain and sinking feeling that I felt the night he died. My dad running screaming pulling his hair, my mom throwing up as she continued to hold little Jeremy's lifeless limp and battered body. Although home should be the first place tried for keeping a dying child, if some parents don't have the gull and strength to overcome and deal with their dying child's suffering, a child hospice should be available. I just turned 40 this year, and little jeremys suffering as well as my parents, goes through mind daily. To this day, I find it difficult to find happiness, without feeling guilty of little Jeremy's voice saying, "I want to go to heaven, but I don't want to leave mommy and daddy forever."
@@Adelicows thanks so much. It really means a lot.
Praying for you to find strength and joy in the LORD. trust in him and you’ll be reunited with your brother in Heaven 🙏🏼
@@JesusLovesYouSoMuch1 thank you so much for kind words.
Thank God for giving me 2 healthy babys and I pray they will continue to stay healthy. These parents are Angel's and I dont know how they do it. I cqnt imagine wanting to make your child better and not being able to. No one can even imagine what they are going thru and the babies are so strong its incredible poor babies. Pray for all dealing with sick children and also sick parents!
What a fantastic place, looking after not only the sick children but their families too. I cannot even begin to imagine the pain of knowing you will have to bury your child... and then have to keep up with the chores and raising other children. The world stops for no one, but a place like this may be the closest it'll ever get. I hope that in the years following this documentary, many more pediatric hospices have opened so that parents the world over can experience this level of compassion and care.
I have tears in my eyes and heart is broken to see these inocent children ill and I'm pain if I had power I 'll finish all their pain and these hospice are very kind and big heart people God bless u all
My heart breaks watching this but my heart is joyful.such a beautiful home . These children are so very lucky as well as the parents. I’ve never heart of a place like this before. God Bless everyone ❤❤🙏🙏🙏
I worked on a pediatric oncology ward for several years. I learned so much from the children there that made me really grow up. These children are fighters and so are those that provide care for them. They are excellent teachers and wise far too far beyond their age. As they progressed through their treatments they truly understood what they were dealing with and were very matter of fact about their health. I was told my more than a few that they were being brave because they knew their mommies and daddies were afraid of the truth. You get terminal children at the age of six or seven telling you that and it gives you a much clearer view of your world. These children are not only angels but are hero's. Each and every one of them.
Jenny had such a gentle soul. 😳
How absolutely heartbreaking. God bless these beautiful ppl and children
Why am I watching this? So heartbreaking. I need to go squeeze my babies. There are really beautiful people out there doing very wonderful things.
Makes us appreciate things, and not complain. Very lucky to have healthy babies!
The maturity of children faced with illness and death is remarkable and proof that young people are wiser than they are ever given credit for.
How magnificent communitary support. Sharing the pain, the process, the happiness as well. I am moved with this...
I just love that boys attitude that’s showing all the different places off. He just has a really positive view of everything. Something to thrive for.
This is brilliance thank you, you are angels. NO CHILD should be born sick...none, no disease, no ailments, no pain. This I will never understand. I wish I could take away all of their pain. Rest in peace little cherubs. Little wee ones, Amen.💓💓🙏🏻🙏🏻
I wish there was an update with about all of these families
I lost a young friend of mine to Cystic Fibrosis. She was 9 when she passed. It got to the point she made the decision she refused to be intubated anymore. She was tired of the hospitals, tubes, and pain. It was a losing battle. We all knew it. She passed peacefully thanks to some wonderful caregivers who made sure she didn’t feel a thing.
I hope we dont feel a thing when we go. I lost a few friends over the years. Suicide and drugs. They were under 30. Feels like such a waste.
This video made me really emotional. I can witness the happiness in their faces rather than their sickness. You can definitely tell that a hospice really helps someone gain good memories before approaching death. I love the concept of hospice which made me choose this as my thesis.
That’s just so sad. These children are so young and are in hospice... I can’t even imagine.
This sure puts things in perspective, doesn’t it?
100%
Thank you so much Jill. Thank you for your legacy of kindness. Just Thank You.