Uncombable Hair Syndrome and Other Rare Genetic Conditions
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- เผยแพร่เมื่อ 15 ม.ค. 2023
- These are rare medical conditions. In 2017, Jackson, Hunter and Caden Howard were born with a rare genetic disorder called craniosynostosis, which isn't unusual for newborns, but it’s very uncommon in triplets. In 2021, 14-month-old Locklan Sample was born with a rare genetic condition called uncombable hair syndrome. In 2018, Mui Thomas shared her story about living with harlequin ichthyosis. Inside Edition Digital’s Andrea Swindall has more.
The last segment made me cry, that mom saying if her baby wants to hike she would carry her just so she could have that experience. That is so wonderful and sweet.
Right! That's when you know the child got sent to the right address. No matter how hard it might be, accepting this rare condition. But love and goodness knows no boundaries. One way or the other.
Yes 🥲
It is so wonderful it shows u what we will go through for others it's just so sad but life's so beautiful
@@brandonbarton9016 exactly what I was thinking too
How about "mom I want to kill myself because you gave me this embarrassing unlivable condition"
I was born with something called mirror movements disorder. Which means my hands involuntarily do the same thing. It's less than one in a million and I'd love to meet someone else who has it one day
Meanwhile I find it impossible to mirror someone. I don’t have the proprioception! Very interesting
Is it just your hands or is it your whole arms? And does it always happen or just sometimes
bro the way you could work an assembly line would be unmatched
Ella, record and upload a video clip of it.
Educate us about it.
I thought it was just being Italian
Omg, those triplets really cute. I can’t stop smiling.
I was stuck on them too, some of the cutest babies ive ever seen
Oh yes, I think they're just so adorable! Such sweet innocent cherubs!
Mui seems wise beyond her years! 😌
If the first dude ever becomes a superhero, I'm 100% volunteering as his bizzaro version.
I’m already the bizzaro world. Two steps from the couch to the fridge and it’s time for a breather.
Or is that opposite world?
And all my "big" issues suddenly became a lot smaller! I love brave people they're the true celebrities.
“she can ill help her”. best five words i’ve ever heard.
Omg I was going to say something about someone else but that mom at the end just made me feel emotional. So glad both of those little girls have such loving parents that will give them the best life possible.
That mother saying if her daughter wants to ski, she will help her. Or if she wants to hike. I’ll pack her. Where did the worlds mothers like this go. I’m a grown man and this brought a tear to my eye. Prayers for these people and there conditions 🙏🏼
I was born with a form of icthyosis too; lamellar icthyosis to be specific. You can't even really tell I have it anymore as I have the mildest case they'd ever seen when I was born.
1:40 y’all seen that one triplet hanging there 😂 post operation….
They’re so adorable ❤ each of them looked so different from the other
Damn, running from Los Angeles to San Francisco feels like running from cambodia to Thailand, But thats crazy, I can’t even make it to a mile, Further than one mile, Nice one!!
Only sonic the hedgehog can do that in the few minutes on earth!
Imagine being able to run 350 miles in a single session and instead of running endlessly away from California you just go north to SF.
The runner is an absolute badass :)
I hope they all lead long, happy and fulfilling lives.
My heart goes out to these people and for their loving families who give them support and encouragement and teaching their to be independent.The young lady with the skin disorder she has such a beautiful heart and spirit
The mom at the end was so sweet If she wants top Go hiking and she cant she can i Just carry her... I almost was moved tob tears... I have a Chronicle desease too and my Mum helps me a Lot witch Things i cant do im 30 and she is still with me at every important doctors appointment and Sometimes at normal doctors appointment too
The last mother 💔
That teared me up.
I pray the best for these people and applaud their strength! Inspiring!
There's so many unexplainable conditions out there... I'm suffering from a neurological condition where I feel like I'm constantly rocking on a boat 24/7 every second... It's depressing and early on thought about ending life... Wish there was a cure
Thanks for sharing these stories!
That man that has superman strength definitely needs a documentary. He looks cool!!
My friend Eva has the skin condition where the skin grows really fast
The lady with Epidermolysis bullosa is lucky, to be able to shower. I worked with plenty of little children who have it. They had to be wrapped in sterile gauze. My heart hurts for them.
No one noticed when it showed distance from Los Angeles to San Francisco, the point was not all the way on San Francisco
So sad. All beautiful kids and people. Love the parents that truly love their children as is. Trying to help them as much as they can!
I would love to have that first rare genetic condition.
We could possibly make a pill that breaks down lactic acid to have the same affects as his condition some day we might be able to take a superhuman pill
@@redlight3932 Great! Let me know when we get there. 👍🏼
I saw a pic of my maternal grandpa, and noticed his hair looked like mine! Mom and my Aunt tell me that he always looked liked that, no matter what he did. I can't keep my hair looking brushed/combed, they also told me that I have his hair too!!!
The first running guy - just strap me to his back during a zombie apocalypse 🧟♀️🫠
Lmao yes
God bless them 🙏 love ❤️ for them. I had my daughter with a genetic disorder called I-cell disease. Very very rare, too. She is my angel now 🙏😇
My Condolences 🙏
💔 sending you a world of love.
May God Bless All These People And Us Too.
Bro the first guy is Forrest Gump irl 😂
Fax
The triplets holding hands 😍
The one with more layers of skin is actually a trait to survive better in colder conditions
I can’t even run one mile Without stopping 😂😂😂😂😂😅
Uncombable baby hair is cute .the 1st guy just wow
So basically the first guy is like a Husky, that can use an alternative source of energy and run for hours lmao
My niece also had the hair disorder, but she was so cute 💜😊💜
My baby has it. It's funny.
Impressive😮
My heart alwalways been hurting about people with ihtiosis
God bless this all people ❤️🙏 God with you ❤️🙏
Great Job 👍😄.
I'm happy l can just walk to my mailbox.
If she wants to hike, I'll carry her😭😭
I Carrey my lil bro with cp ,he's 90 lbs ,I'm 6'4 170, with terrible back.i got him on my back and walked up a creek to a waterfall and it blew his mind .I was juss glad to make it back lol but I love doing things like that and just being around him is like he glows lol
I would love to know more about Dean
needing surgery on my baby is my biggest fear 😩
The guy that can run 4 marathons in a single session will genetically cheat on being first place each time
that's me, I can do these things, I love it.
however pregnancy was tough on me, and harder on my body, not to be able to run.
Boris Johnston have that type of hair too
The first guy looked tired and sweaty after one marathon!
My brothers had the same condition the triplets had, what does that mean for twins?
He’s in his terry fox era 😭❤️
I'm just going to put this out there as a black woman before any other ignorant person comes along as says that uncomable hair syndrome is just a white person with black hair type, it is NOT just like black hair. Comparing the two is not only disrespectful to black hair but to the people with uncomable hair syndrome. Their experience is not the same as black people's, black people's experience is not the same as theirs. That's why it's called uncomable hair syndrome and not "a white person with black type hair that doesn't know how to take care of it". Not everything is about us, we do have to insert ourselves with the slightest things that resemble us. Thank you.
Someone with psoriatic arthritis and skin arthritis I feel for the Harlequin gal.
Wow, that one made me tear up.
Dean hasn't met goggins.
that mom on the end.
superwoman
They were already Hockey players since when they were born😃
Running 52 miles is crazy
Sounds like the first guy has an entire body made of cardiac muscle since he never tires
Uncombable hair would stand a chance against a few sprays of pump it up
I have a rare genetic disease,not as rare as these but still rare,Hypermobile Ehlers Danlos syndrome
rn i can't even run 5 feet without panting
I can see that baby at the beginning rockin a mohawk.
That's awesome..
Let's get cures out for all diseases and genetic conditions, regardless of the socioeconomic situation. That's the U.S. Jurisdictions spirit and intent to the letter of the law that I'll advocate!
Sometimes I feel like my hair is uncombable 😅 or maybe just untamable 😅
Beautiful.
Who else remembers Stew Pickles' Bonkomatic Baby Bumper?
Crazy that all 3 babies were born with the exact same helmets! 😆
Shame on me, i don't have any of this disorder but sitting in my room all days all week. Feeling insecure about thr outside world.
mui came to my school and i got a autograph
Surprised the first guy and David goggins haven’t crossed paths in the desert somewhere 😂
first guy would have made a great footballer(not soccer 😡) if he was discovered at a young age, level 9000 endurance he would be like kante on steroids
The ball is made of rubber/plastic, not feet
Wow
First guy is Chris Traeger in real life.
Dude has the lungs of 50 people lol wow
The flash is real ⚡️⚡️
damn glad she still doing what she loves and not letting it stop her. now she is a strong women then those women posing just for likes so called strong womens now a days.
Why people laugh at that hair?
That is so cool
The baby straight up look like anime protagonist
That blonde kid got Son Goku hair.
300+ miles 😯😯😯😯
Hope he's okay
You’re all beautiful
Couldn't you fix the uncombable hair syndrome with hairspray and gel
He hasn’t met David Goggins . They two should meet
They look like baby spaceman Apollo 11
W parents compilation
Forest Gumps brother!! 🏃 Run Forest, run!!
Terry fox has joined the chat.
Real world flash
He's not fast, he just last longer running and walking, the real flash is Usain Bolt
Zoolander Baby
Omg
I was good till that started crying
Hi
Your first
does Boris Johnson have the same hair condition?
I declare complete healing for all of them in Jesus name. Amen.
Uncombable hair syndrome sounds like a fancy way of saying bald.
My brother has that skin shedding disease below chest area of body
😮
Hey