Doctor Reacts To Rarest Diseases Ep. 2
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- เผยแพร่เมื่อ 17 พ.ค. 2024
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00:00 Pocket Hercules
01:30 Ichthyosis with Confetti
03:30 Life In Bubbles
05:07 Werewolf Syndrome
07:07 Obese Baby
09:27 Reverse Knees
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Executive Producer: Doctor Mike
Production Director and Editor: Dan Owens
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** The information in this video is not intended nor implied to be a substitute for professional medical advice, diagnosis or treatment. All content, including text, graphics, images, and information, contained in this video is for general information purposes only and does not replace a consultation with your own doctor/health professional **
![[LIVE] : ONE ลุมพินี 63 วันนี้!! คู่เอก "ยอดภูผา vs โซเนอร์"](http://i.ytimg.com/vi/RGVmBsegKEI/mqdefault.jpg)
Disney Channel has some incredibly accurate & inaccurate medical scenes-> th-cam.com/video/SgLpXbaMZMQ/w-d-xo.html
Huge fan doctor mike :)
I like me
Hey Doctor Mike, I think you should do NHL injuries since hockey is very crazy and full of bad hits, fights, and lots of wild things.
rediscovering your channel after a longgg time mike and im glad
@justmads7256 i second this
The solution for the kid with the special skin condition was surprisingly wholesome, props to the mother for being able to come up with a solution who benefits everyone, especially the kid and the little fish even in desperate times for her.
I make soap and I had a customer who was always buying my soap with loofa in it, the soap also had a high glycerin content. When I asked why she always bought that soap she explained that her hubby had ichthyosis and the soap was the only thing that helped. It was better than the prescription stuff they had used. If I run into her again I will have to find out if she has ever heard of the method this boy's mother used.
@@rustynails8756 Hey, that'd be awesome 😍
Lots of faith in humanity restored on my end today
-That mom being able to come up with a good solution for everyone while probably super stressed out
-Dr Mike's channel always advocating for a good cause spreading this kind of info
-You doing this
I needed this today 😌
@@rustynails8756 I hope you meet her again so you can give her the advice. It would be great if it made a meaningful chance in the man's quality of life.
Absolutely! I immediately thought wow, what a creative and fantastic idea! Kudos to this mom, this is genius. I am seriously impressed. Having watched documentaries about the sisters with ichthyosis, they showed how painful it is to scrub off the dead skin... It's amazing that there's a different solution.
Is it wrong of me to think that those fish might be nibbling at skin flaking from more private areas? I dunno
The last lady and her surgeries, and the fact she can now go on walks, and enjoy herself without help, just made me generally smile. So wholesome
I met a little girl while out shopping who had XP and was wearing the protective gear. I told her how cool she looked when her mom told me of her condition. I had originally presumed it was because of the pandemic. I'll never forget the high five and smile her mother gave her after our interaction. Kindness costs nothing, and I'm glad I met them. The lady with hyperextension I've seen before. There was a Victorian/Edwardian side show performer, Ella Harper, with the same thing. She was billed as the Camel Girl.
IKR? Those helmets look like the spacesuits from Star Trek: The Motion Picture, and it's so awesome. I wish I could be a sci-fi badass.
Kindness is free, you are absolutely right.
Spread it when you can. Making someone's day better should make you feel better too!
I 100% agree that we need to change the names of so many of these diseases! Hopefully this is something you continue advocating for more on your platform!
what do you suggest we start calling them instead?
Substantial lion hair growth syndrome
As mean as some of the name sounds, it does describe what the disease is. Ichthyosis isn't exactly common knowledge but everyone knows what fish's skin looks like or what a werewolf is.
@linny356 well thats the frustrating part. But im sure we can figure out new names, we just need to work on it.
Please do NHL injuries. There’s lots. Hockey is wild,and full of injuries
I have ichthyosis. Not as extreme as Raphael's case. But, I found that swimming was a great solution. Being in the water softened the skin to allow me to exfoliate afterwards. And it was a great way to be active. And actually be an athlete. Which helped me socialize and come out of my shell. No pun intended
Hey, same!
I’ve always wanted to learn how to swim too… thanks for the inadvertent tip! Also thank God for aquaphor lololol
@@zachanikwano just gotta make sure you shower and lotion afterwards. I like Jergans Ultra Healing. I'll have to check out Aquaphor
@@foolishlyfoolhardy6004 Really You care more for a fish than a human?
@@foolishlyfoolhardy6004what is cruel? These are specific types of fish that eat meat. They are carnivorous .They're not starving, they've been used for hundreds and hundreds of years for this type of purpose. I can't even understand how you would get your brain to where you got it on this topic.
Saltwater wouldn't do anything different for this kid than regular water. The fish are literally eating the hyperkeratosis off of his body each day allowing him to move freely and not be in pain.
And you're worried about fish who might be hungry.
Do you think these people are not changing the fish water? Are you really that dense?
I have a very mild form of it too, my skin always itches but I can manage it relatively well with some skin care and exfoliating all parts of my body. Especially my legs and arms are bad.
My mom has psoriasis so at least she knew how to handle a condition like that and I was slathered in oil regularly. Her psoriasis has stopped showing up for about 20 years now since her menopause started because that condition really is a lot more influenced by hormones than mine.
"I learn a lot from my patients" is a lovely thing to hear. I have doctors in my family who just mock their patients
I'm a doctor, I have colleagues that have mocked patients and I always call them out when I hear it. That is a terrible thing to do.
I had a physician like that, who'd refuse to listen to me because I was a teen and well, HE had a diploma, so he'd left me under medication that made me sicker and ruined my high school because I would miss half of the morning class, because I'd pass out after taking my meds lol. But it's okay, I didn't know how my meds affect me, I was just a dumb teen.
Then the next doctor was as comprehensive and useful. She's the one who told my mom that "cancer isn't that bad, everyone gets one sooner or later and it's fine" because she's a survivor??? Like wtf are you on, lady. Back then my mom had to undergo a PET scan to check some unusual results, and she was worried af. Needless to say, being told that didn't help her feel better a second. 😐
My current physician is absolutely delightful, though. He cares, listens to his patients and actually tries to work things out with us. He's open-minded and when my mom, who's fibromyalgic and has multiple chronic pains, told him she was taking therapeutic CBD, he said it was a good idea and encouraged her to do so if it helped.
I'm also kind of a nerd and likes reading medical stuff, and when the one time I was searching online for a possible condition of mine and went to see him about it, he listened and never dismissed what I said or was thinking because ngl, "I have no diploma and the internet is no medicine school". Turns out I was right about it, so I actually us both saved time- 😂
Using the fish for Raphael and his ichthyosis is a genius idea 😲 I’m so glad it gives him some relief
It's interesting that the condition is named after fish, and the solution also happens to be fish
@@foolishlyfoolhardy6004 Oh get a life if it is working then it is good.
@@foolishlyfoolhardy6004
My man, you do realized that was caused by, oh i don't know, the fact that it was public?
Of course there's gonna be a lot of things running around, and bad things could highly happen, yeahh...
But like, come on, it was obvious it was made for him, *and him only*, meaning they have a lot more control than the one advertised for public use.
And yes most of the infection happen because of other human that used the tank full of the fish rather than the fish itself....
Ps. English is not my first language, so I'm sorry if there's Gramatical mistake. Thx
@@foolishlyfoolhardy6004it’s likely that they have a method for sanitizing the environment he submerged in and keeping it separate from the fish habitat. Also he may be at a higher risk of infection without the fish treatment because more dry skin increases the chance of cracks forming in the skin.
@@foolishlyfoolhardy6004obviously that doesn't work or they would have been doing that. You don't think they tried exfoliation first. Cmon now.
I remember my cousin getting a lot of judgemental stares for her "puffy" baby. They thought she was overfeeding him and he was an obese baby, but in truth it was caused by steroids and other medications for his infant seizures.
I have EDS. I am so, so grateful for any media coverage of it. 15 years ago when I was first diagnosed, barely anyone knew about it. It took me 20 years of severe, debilitating pain and sickness to get a proper diagnosis. Thank you Doctor Mike for talking about it.
Sorry for asking but which one is EDS?
@@sagiekaharizi: Ehlers-Danlos syndrome.
I can’t imagine waiting so long for a diagnosis, I’ve been diagnosed with EDS and it’s‘buddies’ this year. And was lucky enough to only have a few people refuse something was their. ❤
@@fyrefli4109 thank you
I have the vascular type and wish people would talk about it bc it’s such a scary and deadly illness… I always hear “at least it’s not cancer” but I’d argue it’s just as bad, sometimes worse bc there are no cures, there’s not even a treatment so lessen it’s effects and your body betrays you even when you’re not doing anything… I ruptured my liver leaning on a table in school. I perforated my colon rolling over in my bed while asleep…
Seeing how the surgeons changed that girl's life and how she looked so happy about being able to walk normally again truly warmed my heart. Not only that but also how moving these life changing events happen is truly a miracle.
I can understand the woman's knee procedures. I had both knees replaced. It was not fun. After surgery pain is real.
Hope you're doing well now
But it must feel amazing to walk normally again... to be able to just, decide to go for a walk. I have no cartilage left in either knee... and the left one routinely subluxates and sometimes even the femur telescops down between the tib & fib. I haven't done stairs normally for almost 23 years... when I was first diagnosed with early onset OA at age 14 after triple spraining my knee. They refused to do surgery for so long because I was too young... and now they refuse me because of my weight... which I gained from not being able to exercise anymore or even take a simple walk without oral steroids. I'd put up with any pain to walk normally again... goodness knows I'm in enough pain everyday already.
@@hosamhamdi819 Thank you. I am doing well. I have two wonderful scars down each knee. I can't cross my legs at the ankles when sitting. I have no flexibility in my knees. I am still afraid of stairs.
Mazel tov on getting new knees, and OOF on the recovery pain. I'm 2 1/2 weeks post-op (medical implant replacement) right now, and it's driving me nuts. The itching is gonna kill me, and I'm eating, like, twice what I normally do because my body won't stop demanding nutrients to heal this stupid 10cm/4" gash. Nobody talks about being ravenous after surgery, but it's real!
I used to work in a group home where one of the individuals living there had spastic quadriplegia. She was absolutely ripped because her muscles were always contracting and she had very little control of them. When I started working other staff told me that she used to have a 12 pack, but once she started a couple of medications it helped the spasms.
thank you for shedding light on such rare diseases. You are always open to learning new things and not afraid of admitting something you don’t know. Don’t change 💕
Pun intended?
@@Joetheknight406nah i didn’t even think about that 😭
@@Joetheknight406Took me a minute to see the pun but I found it and it's so hilarious 😂
Damn double puns 😂
@@OmerAsh what is it i don’t see it 😭😂
Your empathy that you express towards these delicate medical cases,just shows the type of man and amazing
caring doctor you are.Truly admire these qualities of you.Thanks 🤗
*it seems important to me to distinguish between disease and condition, because that’s also what makes kids/people believe it’s contagious, and you can catch it somehow, when it’s not even a disease*
Not all diseases are contagious.
We need to teach kids that not all diseases are contagious. I have thyroid disease. No one is going to catch thyroid disease from being near me.
I've been asked if my genetic illness is contagious. Next time, I'll probably just say, "Only sexually."
We take for granted being "normal". We complain about the most miniscule things on our body. Nothing but love to anybody going through these tough conditions
Oh yeah ! I can't phantom how brave those people have to be.
It makes me feel so humble and fortunate.
@oceaneo4603
I’m pretty sure you mean “fathom”
not phantom
phantom is a type of ghost/monster
@@Legendary_Starlight Gotta check a few worlds a couple of time, English isn't my mother tongue.
'Glad you still was able to understand.
I hope my little brain will remember your in put.
Don't forget that "normal" people can also become injured and disabled, so nobody is safe.
I have vascular ehlers danlos syndrome and would love to share my story… gravity is an enemy, my own organs are enemies, it’s a cruel disease that has you anxious 24/7 and there’s no cure. For example, I ruptured my liver leaning on a table, i perforated my colon rolling over in bed. The blood vessels in my legs will rip and rupture simply from gravity. Please highlight this subtype of ehlers danlos syndrome, it doesn’t have any awareness in media or online. It’s debilitating and I consider it a terminal genetic illness bc my life expectancy is 48.
I've only ever seen people speaking about their experience with hypermobile Ehlers-Danlos. I didn't know how terrifying the vascular form was until I read this comment. Thank you for sharing. I stand with you, friend.
Hugs ❤
@maayanstern9050, that's because vEDS is incredibly rare! There's simply not many people that have it, so it's much less prevalent on social media. I have aEDS, an even rarer (although much less dangerous) subtype of EDS, I never even heard of anyone else having it.
In my opinion newborns should be screened for vEDS, as it's so dangerous. All subtypes of EDS can be deadly, but vEDS is on a whole other level.
*Edit: aEDS has been described in literature 27 times and distinguishes itself from other subtypes by congenital bilateral hip dislocation and, if tested, a distinct mutation.
I didn't know about this one. It sounds unlike anything I have ever come across. Thank you for sharing
Love coming your way
Thank you Doctor Mike for talking about social acceptance for a moment. I used to be bullied in school for wearing hearing aids (i was the only one who had them) until i found a lot of good people who became good friends with me and taught me there were accepting people in this world
Props to the parents of these kids . I have special needs babies myself it is scary but rare condition is even scarier
Its always nice to see Ehlers Danlos Syndrome brought up by medical professionals. I have it and I have had to explain it to doctors and nurses.
Same!
I've seen so many of us in the comments. We should start a club.
It's interesting because I'm only in my second week of medical school and have already learned about ehlers danlos in great detail, it's one of the first diseases we learn about. And it's in study materials for national board exams, so I know all doctors in the US have to learn about it. Maybe they forget?
Shoutout to Dr Mike for making our Sundays & Wednesdays better!!
I love how you never judge people (at least outwardly) and never assume that someone is bad or wrong based on their condition
i have a rare form of muscular dystrophy and the doctor at 1:14 was my paediatric neuromuscular consultant for my entire childhood, dr neil thomas!! so crazy seeing him pop up on a dr mike video!
That's crazy!
The last story had me in tears. How wonderful and how patient doctors and surgeons are. That young woman is so brave.
I had Pseudotumor Cerebri in 2007 when I was like 12. They told me I had 24 hours to live before my optic nerve exploded and killed me. So they rushed me into an emergency spinal tap and had an insane amount of spinal fluid come out. Dr said he never heard of that much coming out. I heard it was a very rare condition. My eyes crossed, arms and legs were numb, WORST headache/neck pain of my entire life, and couldn’t walk. Found out when I was 18 that I had Lyme Disease my whole life that probably caused it. (My mom got bit by a tic when she was pregnant with me so we both have Lyme Disease). It was so scary tho. I even called my friends at school and told them goodbye and asked my best friend to get in my locker and get my boyfriends jacket and to give it back to him.
Lyme definitely needs to be more tested for. It is so often overlooked as a possibility. I went and got tested for it last week because my dog sleeps next to me and she has it. They are currently working to develop a human lyme vaccine.
@@foolishlyfoolhardy6004It is very unfortunate that you had that experience amd Im terribly sorry you went through that and i do sincerely hope you have since recovered and are well. But unfortunately there has been patients whove died from pseudotumor cerebri if thats what you were referring to in your comment. So if that was the condition you were referring to i think u shouldnt be saying that "you cant die from that" in your comment bc im pretty sure you are not a neurologist or neurosurgeon so how could you possibly know that? We should try not to spread misinformation and from all the info i gathered about that condition, the most common theme throughout it all was the unpredictability and incredible speed in which symptoms can develop. That itself already sounds very life threatening to me. If you were referring to your specific condition when you stated that phrase then by all means pls disregard my comment. Respectfully speaking, Its just that the last thing the world needs is more wrong information being spread.
The last story is making me tear up, god bless the charity that offered to pay for her surgeries. I hope she loves her new freedom and that she lives a happy, pain free life!
One should always weigh the risks of having any surgery with the risks of going without.
I remember seeing a story about a young man who was born with a condition that left his head resting upside down against his spine, and his limbs were twisted and smaller than normal. It turned out that he had a musculoskeletal disorder that left his ligaments and muscles weakened and unable to support various things like his head, and movement of his limbs. However, he was able to shuffle his legs in such a way that he could move around. He even had a thriving online business!
When he went to see specialists to access his over health and the possibility of surgery, they found him to be perfectly healthy in every way besides his disorder. Everyone including the young man agreed that putting him through several risky and painful surgeries just to move his head upright etc, would potentially cause more harm than good so it was decided to just leave things be and just keep monitoring the young man’s health though regular checkups.
It it ain’t broke, don’t fix it!
However, in this Chinese woman’s case, her quality of life seemed to be greatly improved by her leg and foot surgeries so I’m glad she is able to live a more fulfilling and enjoyable life.
Dr. Mike actually did a reaction to that one if you want to look it up
send link plz@@acidsupernova
HOW DID YOU TYPE ALL THIS?!
make this a mini series. want to see more of this from and with you. and add more of these rare medical cases from you or your medical friends. its like movie theater - totally amazing to hear.
I love how compassionate and caring you are towards all kind of disorders and illnesses and never judgemental. And the way you decrypt a situation from both patient’s and doctor’s POV is just something that’s commendable. Have been following you for a long time for this quality content. Peewoop!!
New Dr Mike video yess!!! I love hearing + learning about new conditions! I live with ehlers Danlos syndrome and a slew of other conditions and it means the world seeing a Dr with such a big audience raise awareness for illnesses that most have never even heard of/seen before!! ❤️ it’s so so appreciated by the spoonie/chronic illness/disability community! 👏🏼✨ my fav Dr on the internet
@@RandomUser822be supportive for once.
We dont care once pot
@@bignasty7JB"We" also don't know basic grammar. 🙄
@@RandomUser822Be relevant for once
@@megorex630 karen
I'm a physiotherapist from India..I enjoyed watching all these, especially the last case with multiple bony corrective surgeries. Thank you for mentioning about rehabilitation, as sometimes our work is not given enough importance. Post surgical rehab is an important component of overall recovery. Thank you❤
I have Ichthtyosis! CIE - because of that I also have rapid healing, a small % of us have it. If I get a small wound it's gone the next day. If anyone here has any questions about Ichthyosis, let me know, I'm happy to answer.
Does it itch at all? Is your skin thicker than average? Does it affect the whole body, or are there patches of thicker skin? And what about sunburn or typical burns? Does it peel extra, or does your skin shed often enough that you don’t really get burned?
You need sunscreen still?
Are you black? Or is it just white who can get it?
Does it get better with age somewhat?
@@akirahyrule2157 hi! Yes it itches A LOT. Much thicker skin than average. Yes my type is the whole body, another types are just patches
@@aldranzam3456 naahh worse
I loved the last condition of the video. So much respect for her learning to function and do what she did with her condition. But the most amazing thing of it was her smile at the end as she was just walking in the rain.
I am so happy for her that she got the help to get her to this point ❤
7:40 that mom needs a medal for pushing that baby out
I had one junior in my school long time ago with ichthyosis. I never thought he is one of the twenty in the world. Good for him now he is able to break all stigma and became a content creator with quite a followings
The video said that specifically it's ichthyosis with confetti- aka the version where the skin is constantly flaking off- that's so rare.
Channel name?
What I got from this, is there are a lot of things that are of "utmost importance". Thank you Dr Mike for drawing attention to some of these rare cases and pointing out the importance of empathy as well as science.
That last one made me smile. I was hesitant at first, like, will she really risk it? She's kinda doing well for herself despite everything but when I saw her walking upright, that just made me proud of her. Maybe if I was in her shoes (not trying to be rude or anything), I would have understood her choice and where she got that courage to go through with that scary procedure. So happy it worked out for her.
Tuanzhi's story brought tears to my eyes. As the story progresses, you begin rooting for her and her safe recovery. And the huge payoff was her taking that one step forward, just imagining how happy she must've been at the one moment is what did it for me.
I am so grateful to hear EDS mentioned, even in passing. I have hypermobile-type EDS and it took 17 years to hear about it and get diagnosed. We had to teach my doctor about it instead of vice versa. You are so knowledgeable and so kind, thank you so much for doing what you do.
Bro, if that mom really came up with the fish idea herself then that mom is a GENIUS!
Thank you for sharing these stories! I'm particularly amazed by the fella with the skin condition using the fish as a type of treatment.
At first, I thought of how expensive that must be, but then realized the upkeep must be practically nothing. Those fish don't need extra food and they'll breed themselves, so it's like having small friends in a beneficial relationship helping you daily.
Mike said it himself: a true symbiotic relationship :)
The only thing that they’d need to do is regularly change out the water to prevent ammonia buildup. It really is an effective setup, and I think it’s pretty fitting that they’re using fish to help treat ichthyosis. Like the fish are redeeming their name.
I hope they're taking good care of those fish. They can't survive on just dead skin and are at risk due to fungi/bacteria/etc on the skin. I know that they're often starved for those fish pedicures. Very bad conditions for them.
Only a concern, but considering how seemingly important these fish are for the kid, and these being just for private care, I'd expect them to be well taken care of.
@@SilverStarStorm. the fish weren't swarming him in the video the way they were in the pedicure video, so it seems like they're just regular hungry instead of starving hungry. i think they probably do the fish treatment right _before_ they do the do the fish's regular feeding.
Thank you for reminding everyone that YOU as the patient get to decide of a "routine" surgery is right for you. I have SVT, it popped up out of the blue when I was like 23 and nearly killed me, but it has been well controlled for the last almost 20 years with medicine. I got a new cardiologist who sent me to another cardio who wanted to do surgery, we talked about the pro's and con's and I decided that I just wanted to keep taking my medicine. I thought nothing of it until a month later when I got a bunch of paperwork about my up coming surgery. I called them and told them it must have been a mistake and cancelled. Two weeks later, I get a phone call about my surgery tomorrow, once again I cancel and tell them I do not want surgery. I was scheduled two more times before the doctor called me himself angry because I didn't want surgery. I was like we talked about this and i said no, he was offended, and finally said "fine, you can just spend your whole life taking a pill" I was like, yeah thats the plan. He couldn't understand why I didn't want that surgery but that's fine, he doesn't have to, because its not his decision.
my mom has a very close friend and her son has a very rare disease that less than 100 other people have been recorded having. But none the less, hes a very sweet person and we all love him very much
I love it when the the children can actually explain their conditions. It proves that their doctors care enough to tell THEM what's happening, instead of assuming they won't understand or care.
1:31 - spring 2022 i was in track and there was a girl who had something like this. since it’s so rare im not sure if she had this exact thing (she also said she was sick so it could’ve been for something else). but it did look very similar. she was very nice and we kinda cheered each other on the entire race. and told each other we did well at the end. i haven’t met her again. i don’t even remember her name but i hope she’s doing well
Thank you dr.mike for always being consistent despite your busy and hectic schedule. Being a med student (studying to get into med college) it really helps a lot and boosts my knowledge about incredible human body! Love from India❤
We do actually have very good laser technology here in Brazil. For the treatment of the girl with excess hair, it might be either the case of it being an older clip or the case where our universal healthcare system, SUS, might not cover for a more expensive laser machine. North Brazil is also not necessarily our Boston of medical technology, I come from there myself
i also wondered if those lighter patches were either covered with a thin medical tape or just still in the healing process. i'd like to see a follow-up later on to see if her skin regained its pigmentation.
@@dietotakuI don't understand why she didn't wore a long sleeve shirt.
Tools don't think.
I've seen a couples of videos where doctors didn't have the lastest technology but did an amazing job regardless.
I also wonder if some ways to treat patients get lost as technology goes on.
The most important thing remains for that girl to be treated. Even with advanced technology, if no physician is here there is no point.
Nos EUA, essa “tecnologia superior” que ele acha que tem la, provavelmente não ajudaria essa menina, pq não tem um equivalente ao SUS pra dar o tratamento de graça. Uma doença rara como a dela não tem nem tanto precedente e pesquisa pra determinar exatamente a melhor técnica, possíveis complicações e etc. Abordar esse caso precisa de uma dedicação enorme da equipe de querer ajudar. Gringo pensa q o Brasil não tem saúde de qualidade.. Infelizmente a qualidade superior às vezes fica reservada pra quem tem mais dinheiro, mas pelo menos ela teve sucesso no tratamento e melhorou a qualidade de vida.
Some social context of the last case: although the surgery was performed in Taiwan, the patient is from rural areas of Mainland China, where medical resources are so scarce that average people in developed countries can never imagine. In some way, situation there is more like the one in the poorest parts of the world, such as sub-Saharan Africa.
I’m from China and hospitals are literally everywhere
it was crazy seeing what they could do for some of these cases, particularly the last case! I appreciate the research effort that went into videos like these :)
The knee hyper extension story reminded me of this girl I went to 4th and 5th grade with who had Spina Bifida. She was very positive and approachable for a 9 year old, and if memory serves right, everyone at my school accepted her. It was incredible.
Thank you for the kindness you show when you speak about these conditions...
I just love constantly learning about medical conditions, their effects and PTG too! So, I'm loving your insight into all these videos and information on the topic of rare diseases. honestly, I feel you're the best, Doctor Mike ✨
Omg! I have a classmate who has Ichthyosis and she is a total rockstar!! I had no idea it was this rare but she is literally so sweet and doesn’t let her condition hold he back at all. That’s so crazy 😭
Dr.Mike thank you for pointing out the part about"routine surgery." I just had major surgery, and so many people said oh it's routine it's no big deal. When in actuality it is!
Watching that lovely lady walk outside at the end genuinely made me choke up. What a sweet girl, so happy for her and her new lease (and view!) on life. Bless her forever.
This is the best segment of this show I have ever seen. It is an HONEST look at real-life circumstances. Well done.
3:00 this is very creative and useful solution and I'm so glad his mom came up with this possibility. Like Dr Mike said a true symbiotic relationship 👌
love the vids Dr. Mike your channel makes me fall in love with the practise of medicine even more than i already am keep it up
I think this is one of my favourite shows, Dr. Mike. You show great compassion and explain underlying issues very clearly. Fascinating cases!
I'm a teenager and I really like to study more about decreases and Dr Mike's video makes everything understandable and feels like watching again and again
we need a Dr. Mike reacts to medical ASMR asap!
13:02 "This is like when medicine, artistry, and engineering all coincide" I like that sentence. cuz no "business" in there.
Thanks Dr Mike for this educational vid and for shedding light on these rare diseases ❤
Always enjoy your vids, Doctor Mike. I have EDS and am always interested in learning about conditions that aren’t well known. Great information, as usual!
Hey Doctor Mike :) With the heat so much of the US is staring down and as a Texas mail carrier, it would be great to see a video on the impact of heat exhaustion, heat stroke, how to avoid/prevent, and what to do if you feel yourself getting beat down by the heat monster. This past Saturday, after 10 days straight of working in a vehicle with no AC in temps and heat indexes of 105-115, I nearly had to call 911. Thankfully, I've done this for a while and I was able to pull myself together before I passed out. I bet some outdoor workers and/or NWS offices would love to do a collab and maybe share tips and tricks on how to literally survive the outdoors in extremely hot temps.
It's so sad that that girl with extra hair had to have laser-hair removal just to be accepted, when I don't imagine there was any medical reason she needed it. I mean she seemed healthy and absolutely fine, I can't believe people would be so mean about it. She was just a cute little girl with an unusual appearance.
I see woman on social media getting thousands of hate comment just because they choose to not shave their armpits, so sadly I can imagine how mean people would be to this little girl. 😞
Come on she wasn’t cute 😂
@@clemfandango6675 Yes she was, don't be so mean!
i love how you explain things. i struggle with big words and long explanations. you keep it to the point.
this was beautiful so happy to see kids accept someone so different than them as nothing is different.
cheating, he has abs w/o working out
He's basically working out 24/7
He’s also in severe pain. I’d take a flabby body over constant muscle cramps :(
Yeah imagine having a Charlie horse all over your body, all the time. What a hellish way to get abs. And you're incorrect his muscles are working out, constantly.
😂😂
This is terrible but it’s funny
I'm going to college right now as an MCD biology major. Doctor Mike has been one of my biggest inspirations to learn. It is such a good feeling to now understand some of the causes behind these unfortunate diseases and to keep up with the video in general.
the last case actually made me cry, she seemed so happy and thankful and thats everything to me
0:05 - Schwartz Jampel syndrome
1:30 - Icthyosis
3:30 - Xeroderma pigmentosum
5:05 - Congenital hypertrichosis
7:05 - Congenital leptin deficiency
9:30 - Severe genu recurvatum
14:25 - Conclusion
W
who needs med colleges when u have this guy fr tho hes a genius
Thanks Dr Mike for this educational video and shedding light on rare diseases 😊 and take care
This is an exciting and fun way to learn about medical conditions. I love reading my standard textbooks, but after a while, it becomes tedious. These videos help in reigniting my curiosity about medicine. Thanks, doc.
Ironic he says not to call it werewolf syndrome because of the terrible naming conditions, and yet put it in the chapters at 5:07
Jeez, I've never even heard of most of these conditions. It just shows how little this type of stuff is covered. Thanks for bringing a lot of this to our attention 🤩
Doctors know a lot but not everything.
Therefore it could be a journey of its own to get a diagnosis, when you can get one.
It's good to hear a doctor who understands hypermobility& EDS. My GPs don't have a clue & have no intention of finding out. It's so frustrating.
That poor lady is extremely likely to be in pain but doesn't realise it because she's so used to it & has probably had people tell her it's growing pain, period cramps or the classic 'stop complaining, everyone had pain sometimes' to the point you just accept it & assume everyone feels awful & family who don't take any notice of it
I would love for my rare diseases and condtions to have media time! I was born with GACI, which kille over half the babies born with it and can cause a number of health problems down the road. I also have May thurner syndrome and RCVS, both also rare. I hope to someday be able to being awareness to all three and others many suffer from. You're awesome Dr.Mike! We need more empathy and compassion from Healthcare providers like you 😊
About the brazilian girl, we do have the technology for it in the country, but we still have places (like countrysides or small or poor towns) where they arent really accessible. I'm from a big city so i got good laser treatments easily, but unfortunately some people still don't have that privilege. We're getting there tho!
5:22 I understand conditions not wanting to be named after animals or food, but I mean come on. If we are gonna call ANYTHING a werewolf, it's gotta be that, and it looks awesome.
I love that Mike stops and explains without making us feel like idiots for not knowing it
I love learning. And especially about the existence of these conditions and the challenges that those who have them face. It is important to know how to support them through their journeys. Thank you so much for the education you help provide.
I would love to see you do something on Poland's syndrome. I have it and have gone to so many doctors that have never heard of it or have told me it is not a real disability because they have never heard of it. I think getting the fact that it is out there can help a lot of people.
9:48 … so my knees aren’t supposed to bend like that??
Yeah ikr my legs are always like that
I enjoyed this type of content both as a medico and as a human being. Sometimes it’s easy to overlook how one intricate condition could alter someone’s life significantly
Amazing video Thank you Doctor Mike!!
IN DR. MIKE WE TRUST ✊✊✊✊✊🦅🦅🦅
Bro and I think being diabetic is bad :(
As always, the compassion and sensitivity with which Dr. Mike discusses these conditions is remarkable and really good. I especially appreciate his dismissal of the animal-termed diseases; I never thought of those being somewhat hurtful or insensitive, but Dr. Mike is right that perhaps its time for us to remove these kind of dehumanizing terms for illnesses that the sufferers have little or nothing to do with. Great video, Dr. Mike.
What’s the difference between the muscular disorder from the first kid and Stiff Person Syndrome?
Thank you dr.mike for always being consistent despite your busy and hectic schedule. Being a med student (studying to get into med college) it really helps a lot and boosts my knowledge about incredible human body! Really appreciate you for making my sundays and wednesdays the best days to be alive!! Love from India❤
That last one made me tear up. Incredible!
This is such a beautiful video. Thank you for sharing this, Mike.
It's unfortunate to know that, even with our hyper-advancing medical field, these will be some of the last diseases to be solved or cured, simply because of their rarity. Thousands of people may be suffering from conditions like these, but the majority of our funding has to be funneled towards solving things like AIDS or cancer, because they that affect many millions of times more people. My heart goes out to people with rare conditions like these. In some ways, they have it worse than anyone else.
We know that a great many conditions are genetic. I know people who have Nuerofibromitosis and have decided not to have children so that the gene dies with them. This is where genetic test of parents could help avoid some of these conditions.
@@Princesspufferthat's great and all, but I'm afraid to be tempted by the idea of removing these things, especially from, "the gene pool." That mindset can lead to shaming, and at the worst possible cases, eugenics, or the openness to ideas similar to eugenics. Or overall genocidal intent.
I don't think people with genetic disabilities would choose to have them, though, some might because that's just how their body works and that's okay for them. I'm not saying that that's what you're saying, I just think more emphasis should be placed on making healthcare, love, and opportunity easy to access. Instead of discouraging certain people from being born. But I don't know, as long as we have a system of government, I think my preferences ultimate goal is a pipe dream. Doesn't mean we can get like 70% of the way there though!
4:22 what an unfortunate abbreviatelion, imagine them trying to play a video game with their friends:
"Dude, I just made an XP farm!"
"That's great, let's-"
"For the last time guys, my disease is NOT A JOKE!
"wat"
i be ranching those cancers 💯
LOL
That last gal im so happy those operations worked for her!! I had to have one of my knees reconstructed after breaking my tibia into many pieces and i had to relearn how to use it the way i had before. I cant imagine learning to use a limb in an entirely new way like that. I admire her tenacity! I hope she continues to improve and go places!!
The last case is so amazing!! So happy she's able to walk upright! Amazing what surgery can do.
I love your videos dr mike you are my role model❤😊